2014-05-13T13:20:48-05:00 2013-12-31 522041603 SQUIRE LEMKIN COMPANY LLP 111 ROCKVILLE PIKE SUITE 475 ROCKVILLE MD 20850 990 2013-01-01 202897110 BLADDER CANCER ADVOCACY NETWORK INC BLAD 3012159099 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 DIANE ZIPURSKY QUALE PRESIDENT AND CO-FOUNDER 3012159099 2014-05-09 1 CLINT LEHMAN P00840525 3014246800 2013 2015-11-30 17:44:51Z DIANE ZIPURSKY QUALE 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 1048716 0 X WWW.BCAN.ORG X 2005 MD TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER; TO ADVANCE BLADDER CANCER RESEARCH; AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 10 9 9 0 0 0 1317133 1022404 25856 26049 1244 263 0 0 1344233 1048716 25000 288500 0 0 364438 408199 0 0 104603 424575 465489 814013 1162188 530220 -113472 839449 825014 91495 190532 747954 634482 X TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER; TO ADVOCATE BLADDER CANCER RESEARCH; AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 0 0 98404 6000 THINK TANK - THE BLADDER CANCER THINK TANK IS THE ONLY MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION UROLOGISTS, ONCOLOGISTS, SCIENTISTS AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE. THE JOHN QUALE TRAVEL FELLOWSHIP PROGRAM PROVIDES FINANCIAL SUPPORT TO HELP SELECT RESEARCHERS PAY TRAVEL EXPENSES RELATED TO THEIR ATTENDANCE AT THE ANNUAL BLADDER CANCER THINK TANK WHERE THEY HAVE THE OPPORTUNITY TO PRESENT THEIR RESEARCH, NETWORK WITH LEADING BLADDER CANCER RESEARCHERS AND GAIN INSIGHTS FROM THE THINK TANK. EACH YEAR, FOUR $1,500 TRAVEL FELLOWSHIPS ARE AWARDED TO EARLY CAREER PHYSICIANS AND SCIENTISTS. 226886 26049 EDUCATION AND INFORMATION - BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. NOW IN ITS SECOND PRINTING, BCANS COMPREHENSIVE PATIENT HANDBOOK, BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED, HAS BEEN PROVIDED TO THOUSANDS OF SURVIVORS, CAREGIVERS, UROLOGY PRACTICES AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE WEB PROGRAM THAT ADDRESSES A VARIETY OF ISSUES FROM CLINICAL TRIALS TO LIVING WITH URINARY DIVERSION. THE WEBINARS FEATURE TOP EXPERTS IN THEIR FIELD AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. IN 2013, BCAN LAUNCHED CONVERSATIONS: LETS TALK ABOUT BLADDER CANCER. HOSTED BY DIANE ZIPURSKY QUALE, THE INTERNET TALK SHOW INTERVIEWS TOP DOCTORS AND ASKS THE QUESTIONS THAT PATIENTS MAY BE INTIMIDATED TO ASK. THE FIRST VIDEO IN THE SERIES ADDRESSED BLADDER CANCER AND SEXUAL FUNCTION. BOTH THE PATIENT INSIGHT WEBINARS AND CONVERSATIONS VIDEOS ARE AVAILABLE FOR REPLAY ON WWW.BCAN.ORG. 439043 282500 RESEARCH - BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS ALSO ENGAGED A NEW GENERATION OF RESEARCHERS WITH THE YOUNG INVESTIGATOR RESEARCH AWARDS. WITH AN ONGOING INVESTMENT, BCAN HOPES TO EXPAND THIS INNOVATIVE RESEARCH PROGRAM WHICH PROVIDES HOPE FOR FUTURE TREATMENTS. THE 2013 AWARDS WERE PRESENTED TO THE TOTAL OF $300,000. EACH RESEARCHER RECEIVED A TWO-YEAR GRANT TOTALING $100,000. 178191 178191 942524 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 9 1 0 0 0 0 0 1 1 0 0 0 0 X 10 9 0 0 0 0 0 0 0 1 1 0 1 0 1 1 1 1 1 1 1 1 0 MD IL CA CT FL MA MI MO NJ NY OH PA RI VA WA GA X X DIANE ZIPURSKY QUALE 3012159099 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 DIANE ZIPURSKY QUALE DIRECTOR/PRESIDENT 25.00 X X 79404 0 0 JANICE ASHLEY DIRECTOR 2.00 X 0 0 0 SETH LERNER DIRECTOR 2.00 X 0 0 0 DAVID PULVER DIRECTOR 2.00 X 0 0 0 MACE ROSENSTEIN DIRECTOR/TREASURER 2.00 X X 0 0 0 RICHARD SCOLIO DIRECTOR 2.00 X 0 0 0 JARED SHER DIRECTOR/SECRETARY 2.00 X X 0 0 0 ROBERT LEVIN DIRECTOR 2.00 X 0 0 0 WILLIAM SHIPLEY DIRECTOR 2.00 X 0 0 0 GERALD MCNAMARA DIRECTOR 2.00 X 0 0 0 MONICA SMITH EXECUTIVE DIRECTOR 40.00 X 41500 0 0 120904 0 0 0 0 0 0 0 1022404 1022404 CONFERENCE INCOME 900099 24490 24490 OTHER INCOME 900099 1559 1559 26049 263 263 1048716 26049 0 263 288500 288500 120904 84633 15718 20553 241804 175386 29770 36648 17202 12332 2157 2713 28289 20280 3548 4461 241 241 22650 22650 82213 78000 4213 27749 23500 2015 2234 78299 68917 7900 1482 50577 25883 6044 18650 48535 36402 6067 6066 33703 27623 6080 82502 81981 521 6785 5088 848 849 3496 2622 437 437 LICENSES & PERMITS 10261 15 10246 DUES AND MEMBERSHIP 9090 6250 2635 205 MEDIA PRODUCTION SERVIC 4636 4636 BOARD EXPENSES 3127 3127 1625 491 1075 59 1162188 942524 115061 104603 545715 194083 250448 560533 19704 58968 4516 2996 28967 24381 11371 4586 7695 3848 839449 825014 8489 7449 50000 150000 20000 20000 13006 13083 91495 190532 X 197970 165775 549984 468707 747954 634482 839449 825014 -113472 0 X 0 1 X 1 0 X 345406 387929 737781 1317133 1022404 3810653 345406 387929 737781 1317133 1022404 3810653 682058 3128595 2401 399 65 1244 263 4372 3815025 201546 0.82010 0.78720 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 28967 24381 4586 4586 DEFERRED LEASE BENEFIT 13083 13083 X 1048716 0 1048716 0 1048716 1162188 0 1162188 0 1162188 PART X, LINE 2: ACCOUNTING FOR UNCERTAIN TAX PROVISIONS - IN GENERAL, WHEN TAX RETURNS ARE FILED, IT IS HIGHLY CERTAIN THAT SOME POSITIONS TAKEN WOULD BE SUSTAINED UPON EXAMINATION BY THE TAXING AUTHORITIES, WHILE OTHERS ARE SUBJECT TO UNCERTAINTY ABOUT THE MERITS OF THE POSITION TAKEN OR THE AMOUNT OF THE POSITION THAT WOULD BE ULTIMATELY SUSTAINED. THE BENEFIT OF A TAX POSITION IS RECOGNIZED IN THE FINANCIAL STATEMENTS IN THE PERIOD DURING WHICH, BASED ON ALL AVAILABLE EVIDENCE, MANAGEMENT BELIEVES IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL BE SUSTAINED UPON EXAMINATION, INCLUDING THE RESOLUTION OF APPEALS OR LITIGATION PROCESSES, IF ANY. TAX POSITIONS TAKEN ARE NOT OFFSET OR AGGREGATED WITH OTHER POSITIONS. TAX POSITIONS THAT MEET THE MORE-LIKELY-THAN-NOT RECOGNITION THRESHOLD ARE MEASURED AS THE LARGEST AMOUNT OF TAX BENEFIT THAT IS MORE THAN 50 PERCENT LIKELY OF BEING REALIZED UPON SETTLEMENT WITH THE APPLICABLE TAXING AUTHORITY. THE PORTION OF THE BENEFITS ASSOCIATED WITH TAX POSITIONS TAKEN THAT EXCEEDS THE AMOUNT MEASURED AS DESCRIBED ABOVE IS REFLECTED AS A LIABILITY FOR UNRECOGNIZED TAX BENEFITS IN THE ACCOMPANYING BALANCE SHEETS, ALONG WITH ANY ASSOCIATED INTEREST AND PENALTIES THAT WOULD BE PAYABLE TO THE TAXING AUTHORITIES UPON EXAMINATION. BCAN HAS DETERMINED THAT NO SUCH LIABILITIES WERE REQUIRED AT DECEMBER 31, 2013 AND 2012. 1 RESEARCH 3 275000 QUALE TRAVEL FELLOWS 4 6000 SURVIVORSHIPCARE PLAN 1 7500 PART I, LINE 2: FOR A 24 MONTH GRANT PERIOD: THE RECIPIENTS ARE REQUIRED TO SUBMIT AN ANNUAL WRITTEN SUMMARIES TO BCAN DOCUMENTING THE PROGRESS MADE IN CONNECTION WITH THE GRANT. FORM 990, PART VI, SECTION B, LINE 10B THERE ARE FIVE BCAN CHAPTERS. THE VOLUNTEERS OPERATE TWO FUNDRAISING EVENTS PER YEAR INCLUDING THE WALK FOR BLADDER CANCER. THE CHAPTERS OPERATE UNDER BCAN'S 501(C)(3) NUMBER AND PROMOTE BLADDER CANCER AWARENESS AND EDUCATION IN THEIR LOCAL COMMUNITIES THROUGH HEALTH FAIRS AND SUPPORT GROUPS. FORM 990, PART VI, SECTION B, LINE 11 THE TREASURER REVIEWS THE ANNUAL FORM 990 AND THE ANNUAL AUDIT WITH THE AUDITOR, AND PRESENTS BOTH TO THE BOARD OF DIRECTORS FOR APPROVAL AS BCAN'S ANNUAL AUDITED FINANCIAL STATEMENTS. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, EACH BOARD MEMBER, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD DELEGATED POWERS SIGNS A STATEMENT WHICH AFFIRMS THEY HAVE READ AND ARE COMPLYING WITH BCAN'S CONFLICT OF INTEREST POLICIES. FORM 990, PART VI, SECTION B, LINE 15 TO DETERMINE APPROPRIATE COMPENSATION FOR BCAN'S EXECUTIVE DIRECTOR, THE OFFICERS ANNUALLY REVIEW THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA BEFORE DESIGNATING A SALARY RANGE BASED ON THE EXECUTIVE DIRECTOR'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS. BCAN'S OFFICERS DO NOT DRAW ANY SALARY, NOR DO THEY GET REIMBURSED FOR TRAVEL TO BOARD MEETINGS. THE APPROPRIATE COMPENSATION FOR BCAN'S OTHER STAFF IS REVIEWED AT LEAST ANNUALLY BY BCAN'S EXECUTIVE DIRECTOR. SHE REVIEWS THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA TO DESIGNATE A SALARY RANGE BASED ON STAFF'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS EACH YEAR WHEN THEY APPROVE THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 BLADDER CANCER'S 990 AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC BY REQUEST. THEY ALSO HAVE THE 990 AVAILABLE ON GUIDESTAR.ORG