2014-11-14T11:25:30-06:00 2013-12-31 MITCHELL & TITUS LLP ONE BATTERY PARK PLAZA NEW YORK NY 10004 990 2013-01-01 202329938 AUTISM SPEAKS INC % JOHN GRUBEREVP FINANCE ADMI AUTI 2122528584 1 EAST 33RD STREET 4TH FLOOR Suite NEW YORK NY 10016 JOHN GRUBER EVP, FINANCE & ADMINISTRATION 6463858516 2014-11-13 true FREDERICK DAVIS P00446023 6463858516 2013 2015-11-30 17:44:51Z ELIZABETH FELD 1 EAST 33RD STREET New York NY 10016 65992738 false X WWW.AUTISMSPEAKS.ORG X 2005 DE AT AUTISM SPEAKS, OUR GOAL IS IT TO CHANGE THE FUTURE FOR ALL WHO STRUGGLE WITH AUTISM SPECTRUM DISORDER. 34 33 291 450000 0 53245999 63725069 0 0 19195 20220 35928 41620 53301122 63786909 16138087 18934366 0 0 22360833 23043010 25000 67719 14486073 20196336 20356254 58720256 62401349 -5419134 1385560 15783483 19677425 9968376 9969101 5815107 9708324 WE ARE DEDICATED TO FUNDING GLOBAL BIOMEDICAL RESEARCH INTO THE CAUSES, PREVENTION, TREATMENTS AND A POSSIBLE CURE FOR AUTISM. WE STRIVE TO RAISE PUBLIC AWARENESS ABOUT AUTISM AND ITS EFFECTS ON INDIVIDUALS, FAMILIES, AND SOCIETY AND WE WORK TO BRING HOPE TO ALL WHO DEAL WITH THE HARDSHIPS OF THIS DISORDER. WE ARE COMMITTED TO RAISING THE FUNDS NECESSARY TO SUPPORT THESE GOALS. AUTISM SPEAKS AIMS TO BRING THE AUTISM COMMUNITY TOGETHER AS ONE STRONG VOICE TO URGE THE GOVERNMENT AND PRIVATE SECTOR TO LISTEN TO OUR CONCERNS AND TAKE ACTION TO ADDRESS THIS URGENT GLOBAL HEALTH CRISIS. IT IS OUR FIRM BELIEF THAT, WORKING TOGETHER, WE WILL FIND THE MISSING PIECES OF THE PUZZLE. false false 22645826 14815394 60587 RESEARCH/SCIENCE: THE PROGRAMMATIC GOALS OF THE SCIENCE/RESEARCH PROGRAM STRIVE TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY AUTISM TODAY, AS WELL AS IMPROVE THEIR FUTURE BY ADVANCING SCIENTIFIC RESEARCH. THE RESEARCH FOCUSES ON DIAGNOSIS, TREATMENT, SERVICE DELIVERY AND PREVENTION. IN 2013, AUTISM SPEAKS' HISTORIC AUTISM SPEAKS TEN THOUSAND GENOMES PROGRAM (AUT10K) PUBLISHED ITS INAUGURAL STUDY IN THE AMERICAN JOURNAL OF HUMAN GENETICS. THE STUDY FOCUSED ON THE WHOLE GENOME SEQUENCING OF 32 FAMILIES AND IDENTIFIED AUTISM-LIKE GENE CHANGES IN HALF OF THEM. THE STUDY ALSO IDENTIFIED SEVERAL NEW AUTISM-LINKED GENES AND PROVIDED IMPORTANT MEDICAL INSIGHTS FOR THE PARTICIPATING FAMILIES. AUT10K CONTINUES ITS RAPID PROGRESS TOWARD THE WHOLE-GENOME SEQUENCING OF 10,000 INDIVIDUALS WITH AUTISM AND THEIR FAMILY MEMBERS, POTENTIALLY LEADING TO THE IDENTIFICATION OF VARIOUS AUTISM SUBSETS AND INDIVIDUALIZED TREATMENTS. THE AUTISM SPEAKS CO-SPONSORED THE WORLD HEALTH ORGANIZATION'S FIRST INTERNATIONAL CONFERENCE ON AUTISM. THE GENEVA MEETING REPRESENTED THE FIRST STEP IN ENACTING THE WORLD HEALTH ASSEMBLY RESOLUTION ON AUTISM. IN ADDITION, AUTISM SPEAKS LAUNCHED ITS EARLY ACCESS TO CARE INITIATIVE TO REDUCE THE AVERAGE AGE OF AUTISM DIAGNOSIS AND INCREASE ACCESS TO HIGH-QUALITY EARLY INTERVENTION IN UNDERSERVED COMMUNITIES. MAJOR OUTREACH PROJECTS INCLUDED COLLABORATIONS WITH THE NATIONAL BLACK CHURCHES INITIATIVE AND THE NEW YORK CITY KOREAN COMMUNITY. TAKING PLACE IN NEW YORK CITY, AUTISM SPEAKS HOSTED ITS INAUGURAL AUTISM INVESTMENT CONFERENCE. THE EVENT DREW MORE THAN A HUNDRED ENTREPRENEURS, INVESTORS, BUSINESS EXECUTIVES AND RESEARCHERS FOR THE WORLD'S FIRST CONFERENCE ON INVESTMENT AND PRODUCT DEVELOPMENT IN THE FIELD OF AUTISM SERVICES AND THERAPIES. AUTISM SPEAKS ALSO HELPED OPEN A NEW FIELD OF RESEARCH WITH THE FIRST LARGE STUDY ON THE ROLE OF EPIGENETICS IN THE DEVELOPMENT OF AUTISM. IN THE GROUNDBREAKING STUDY, RESEARCHERS, FUNDED BY AUTISM SPEAKS, DOCUMENTED TELL-TALE EPIGENETIC PATTERNS BETWEEN IDENTICAL TWINS WHO DIFFER IN AUTISM TRAITS. IN 2013, AUTISM SPEAKS SPENT $14,800,000 IN GRANTS FOR NEW AND CONTINUING PROJECTS IN THE FOLLOWING CATEGORIES: SPECIAL PROJECTS ($5,030,782) ARE AUTISM SPEAKS-INITIATED PROJECTS AIMED AT ADDRESSING SPECIFIC NEEDS WITHIN THE AUTISM RESEARCH COMMUNITY. AUTISM SPEAKS STAFF WORKED IN CONJUNCTION WITH INVESTIGATORS TO DEVELOP PROJECTS THAT MAY INCLUDE: IMPROVEMENTS TO RESEARCH INFRASTRUCTURE, RAPID RESPONSES TO NEW AND HIGHLY VISIBLE PUBLIC HEALTH INITIATIVES, OR FACILITATING COLLABORATIONS BETWEEN INVESTIGATORS TO ADDRESS COMPLEX RESEARCH ISSUES FROM A MULTI-DISCIPLINARY PERSPECTIVE. IN 2013, TOPICS INCLUDED AUTISM AND DEVELOPMENTAL DISABILITIES MONITORING NETWORK (ADDM), DETERMINING THE COST OF AUTISM, ANIMAL MODELS, PRECLINICAL AUTISM CONSORTIUM FOR THERAPEUTICS, DSM-5 (DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS, FIFTH EDITION) COMPARISONS AND PROJECTS AROUND EARLY INTERVENTION. TREATMENT, BASIC RESEARCH AND DISSEMINATION PROJECTS: AUTISM SPEAKS - AUTISM TREATMENT NETWORK ($2,449,005), BASIC & CLINICAL STUDIES ($3,360,285), GLOBAL AUTISM PUBLIC HEALTH (GAPH) ($300,000), SUZANNE AND BOB WRIGHT TRAILBLAZER ($100,000), AND TREATMENT STUDIES ($860,648). TRAINING GRANTS: MEIXNER TRANSLATIONAL POSTDOCTORAL FELLOWSHIPS ($1,412,944), AND WEATHERSTONE PREDOCTORAL FELLOWSHIPS ($464,437). 22661910 4118972 1104918 AWARENESS, FAMILY SERVICES, ADVOCACY: AWARENESS IS A CORNERSTONE OF THE AUTISM SPEAKS MISSION. IN 2013, ENORMOUS STRIDES WERE MADE TO SHINE A LIGHT ON AUTISM THROUGH AUTISM SPEAKS' AWARD-WINNING AD COUNCIL CAMPAIGN. A NEW SERIES OF PSAS WERE LAUNCHED TARGETING AFRICAN AMERICAN AND HISPANIC PARENTS. ENTITLED "MAYBE," THE PSAS DEPICT PARENTS OBSERVING THE UNUSUAL BEHAVIOR OR NON-REACTION OF THEIR CHILD IN SEEMINGLY ORDINARY SITUATIONS. THE PSAS - CURRENTLY APPEARING IN DONATED TV, ONLINE, RADIO AND PRINT MEDIA SPACE - ENCOURAGE PARENTS TO ASK WHETHER "MAYBE" SOMETHING IS WRONG AND SEEK FURTHER INFORMATION ABOUT AUTISM. IN TOTAL, THE VALUE OF DONATED MEDIA RECEIVED FOR THE AD COUNCIL CAMPAIGN AND OTHER AUTISM SPEAKS AWARENESS CAMPAIGNS EQUALED $51.9 MILLION IN 2013. ADDITIONALLY, OUR RETAIL PARTNERSHIPS, SPECIAL EVENTS AND PROGRAMS SUCH AS WALK NOW FOR AUTISM SPEAKS, TEAM UP WITH AUTISM SPEAKS AND AUTISM SPEAKS U ALL SERVED TO ADVANCE THE AWARENESS OF AUTISM THROUGHOUT THE NATION AND MOTIVATED INDIVIDUALS TO ACT ON BEHALF OF THEIR LOVED ONES. GLOBALLY, AUTISM SPEAKS "LIGHT IT UP BLUE" INITIATIVE KICKED OFF WORLD AUTISM AWARENESS DAY AND AUTISM AWARENESS MONTH ON APRIL 2. MORE THAN 8,400 LANDMARKS IN 1,335 CITIES ON ALL SEVEN CONTINENTS ILLUMINATED IN BLUE TO RAISE INTERNATIONAL AWARENESS OF AUTISM. AUTISM SPEAKS HOSTED THE SIXTH ANNUAL WORLD FOCUS ON AUTISM BRINGING TOGETHER FIRST SPOUSES AND HEADS OF STATE FROM AROUND THE WORLD IN AN UNPRECEDENTED SHOW OF SUPPORT TO RAISE AWARENESS OF AUTISM AND ENCOURAGE COLLABORATION AMONG NATIONS TO IMPROVE SERVICES AND PROVISIONS AND SHARE BEST PRACTICES. FAMILY SERVICES IS COMMITTED TO CONNECTING AND EMPOWERING INDIVIDUALS WITH AUTISM AND THEIR FAMILIES WITH RESOURCES TO IMPROVE THEIR QUALITY OF LIFE TODAY AND INTO THE FUTURE. IN 2013, FOUR NEW TOOL KITS WERE LAUNCHED: THE ADVOCACY TOOL KIT AIMS TO HELP INDIVIDUALS AND THEIR FAMILIES DEVELOP AND USE CRITICAL ADVOCACY SKILLS IN ORDER TO ACHIEVE THE BEST POSSIBLE OUTCOMES. LEADING THE WAY: AUTISM-FRIENDLY YOUTH ORGANIZATIONS IS A GUIDE FOR ORGANIZATIONS TO ENSURE THAT YOUTH WITH AUTISM HAVE THE SAME FORMATIVE EXPERIENCES THROUGH COMMUNITY PROGRAMS THAT ARE AVAILABLE TO THEIR PEERS. THE POSTSECONDARY EDUCATIONAL OPPORTUNITIES GUIDE WAS CREATED TO HELP INDIVIDUALS WITH AUTISM AND THEIR FAMILIES EXPLORE THE DIFFERENT OPPORTUNITIES AND LEARNING ENVIRONMENTS AVAILABLE AFTER HIGH SCHOOL. THE EMPLOYMENT TOOL KIT CONTAINS A WEALTH OF INFORMATION AND TOOLS TO HELP ADULTS WITH AUTISM RESEARCH FIND AND RETAIN EMPLOYMENT IN THE COMPETITIVE LABOR MARKET. NEW FAMILY SERVICES GRANT PROGRAMS ANNOUNCED IN 2013 INCLUDED THE BRIAN & PATRICIA KELLY POSTSECONDARY EDUCATIONAL SCHOLARSHIP FUND AND REGIONAL AND NEIGHBORHOOD GRANT PROGRAMS. THROUGH THE KELLY FUND, $249,000 WAS AWARDED TO 11 COLLEGES, AS WELL AS VOCATIONAL AND TRANSITION PROGRAMS TO PROVIDE SCHOLARSHIPS TO FINANCIALLY DISADVANTAGED INDIVIDUALS WITH AUTISM. A TOTAL OF $700,000 WAS DISTRIBUTED TO 141 LOCAL ORGANIZATIONS THROUGH THE THREE LOCAL GRANT PROGRAMS. $343,000 WENT TO 15 RECIPIENTS THROUGH THE ANNUAL COMMUNITY GRANTS PROGRAM. IN ADDITION, 800 IPADS WERE AWARDED TO FINANCIALLY DISADVANTAGED INDIVIDUALS AND SCHOOLS IN 48 STATES. THE NATIONAL HOUSING AND RESIDENTIAL SUPPORTS SURVEY, WHICH HAD MORE THAN 10,700 RESPONDENTS, QUANTIFIED AND CHARACTERIZED THE CURRENT HOUSING AND RESIDENTIAL SUPPORT NEED OF INDIVIDUALS WITH AUTISM ACROSS THE COUNTRY. THE RESULTS WERE ANNOUNCED AT THE AUTISM SPEAKS TO WASHINGTON SUMMIT IN NOVEMBER. THESE RESULTS WILL HELP PROMOTE PUBLIC AND PRIVATE SECTOR SUPPORT TO BETTER MEET THE UNIQUE NEEDS OF ADULTS WITH AUTISM. FOR GOVERNMENT RELATIONS/ADVOCACY, AUTISM SPEAKS HELPED PASS LEGISLATION IN MINNESOTA, OREGON AND THE DISTRICT OF COLUMBIA TO ENSURE GREATER ACCESS TO CARE VIA MEANINGFUL HEALTH INSURANCE COVERAGE FOR AUTISM TREATMENTS. AUTISM SPEAKS ALSO HELPED SECURE LEGISLATION TO EXPAND EXISTING COVERAGE IN CALIFORNIA, MASSACHUSETTS, NEW MEXICO AND TEXAS. TO HELP GUIDE FAMILIES AND INDIVIDUALS WITH AUTISM THROUGH THE MAZE OF STATE AND FEDERAL LAWS GOVERNING HEALTH INSURANCE, AUTISM SPEAKS INTRODUCED THE ONLINE AUTISM INSURANCE LINK. THE PROGRAM LEADS USERS THROUGH A SERIES OF QUESTIONS TO DETERMINE WHAT COVERAGES THEIR POLICIES MAY PROVIDE, DEPENDING ON THEIR TYPE OF COVERAGE AND WHAT STATE THEY LIVE IN. THE ROLLOUT OF THE AFFORDABLE CARE ACT WAS ANALYZED FOR ITS IMPACT ON AUTISM INSURANCE BENEFITS AND WEB RESOURCES WERE PROVIDED FOR EACH STATE. THE GOVERNMENT RELATIONS TEAM ALSO WORKED WITH NUMEROUS SELF-FUNDED COMPANIES, SUCH AS JP MORGAN CHASE, AMERICAN EXPRESS, AND SALESFORCE, TO ENCOURAGE THE VOLUNTARY EXPANSION OF THEIR HEALTH BENEFIT PLANS TO INCLUDE MEANINGFUL AUTISM BENEFITS. FINALLY, AUTISM SPEAKS HOSTED A NATIONAL POLICY SUMMIT IN WASHINGTON, DC IN NOVEMBER 2013. 45307736 true true false true false false false false false false true false false false false true false true false false true true false true true true false true true true false false false false false true true true true false false false true true true true false false true 286 1 true 291 true false false false false false true true false false false false X 34 33 true false false false false false false true true false true true true true true true true true true true false AL AK AR CA CO CT DE DC FL GA HI IL KS KY ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X JOHN GRUBEREVP FINANCE ADMI 6463858516 1 EAST 33RD STREET 4TH FLOOR NEW YORK NY 10016 ROBERT WRIGHT CHAIRMAN 20.0 X X 0 0 0 SUZANNE WRIGHT VICE CHAIRMAN 20.0 X X 0 0 0 CURTIS ARLEDGE DIRECTOR 1.0 X 0 0 0 SALLIE BERNARD DIRECTOR 1.0 X 0 0 0 JIM BRODER DIRECTOR 1.0 X 0 0 0 CUONG DO DIRECTOR AS OF 12/13 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CATEGORIES. ALSO INCLUDES OFFICE EXPENSES, SUCH AS TELEPHONES AND OFFICE SUPPLIES. 527299 211216 316083 552816 400229 152587 975898 166421 809477 1278147 0 0 X FIN 48 AS is exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code and from state income taxes under comparable laws. All significant tax positions have been considered by management and it has been determined that all tax positions would be sustained upon examination by taxing authorities. There are no uncertain tax positions that require recognition in the accompanying financial statements or further disclosure in the notes to the financial statements. AS is required to file Form 990 (Return of Organization Exempt from Income Tax). AS is subject to audits by taxing jurisdictions; however, no audits for any periods are currently in progress. Management believes that AS is no longer subject to such audits for years prior to 2010 under Federal and state tax jurisdictions. true Europe (Including Iceland and Greenland) 0 0 Grantmaking 1132166 Middle East and North Africa 0 0 Grantmaking 29500 0 0 0 0 1161666 1161666 Middle East and North Africa AUTISM RESEARCH 29500 CHECK Europe (Including Iceland and Greenland) AUTISM RESEARCH 280776 CHECK Europe (Including Iceland and Greenland) AUTISM 57996 CHECK Europe (Including Iceland and Greenland) AUTISM RESEARCH 99750 CHECK Europe (Including Iceland and Greenland) AUTISM RESEARCH 149916 CHECK Europe (Including Iceland and Greenland) AUTISM RESEARCH 143728 CHECK Europe (Including Iceland and Greenland) AUTISM RESEARCH 400000 CHECK 7 false false false false false false PART I, LINE 2 MONITORING USE OF FUNDS FOR ALL GRANTS DOMESTIC AND INTERNATIONAL, THE GRANTEE MUST SUBMIT PROGRESS REPORTS INDICATING PROGRESS TOWARD PRE-ESTABLISHED CRITERIA AND AN ACCOUNTING OF SPENDING. FUTURE PAYMENTS ARE DEPENDENT UPON AUTISM SPEAKS REVIEW OF THOSE REPORTS TO SUBSTANTIATE SATISFACTORY PROGRESS. X X X X X X X true IPM ADVANCEMENT 2340 E BEARDSLEY ROAD PHOENIX AZ 85024 DIRECT MAIL CONSULTING false 507904 67719 440185 507904 67719 440185 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY Chef Gala 1229199 816294 412905 233525 115939 28026 35416 Winter Ball 3156034 2944262 211772 55349 102963 3125 50335 50 6450029 4876402 1573627 258613 329400 112235 873378 10835262 8636958 2198304 547487 548302 143386 959129 2198304 49145 7525 false 49145 7525 7525 41620 IL MA NY PA true false true false 1.00000 ALEC ELBERT 1 EAST 33RD STREET 4TH FLOOR NEW YORK NY 10016 false ALEC ELBERT 0 RECORDKEEPING X X false PART I, LINE 2B, COLUMN V - AMOUNT PAID EXPENSE REIMBURSEMENTS PAID TO IPM $261,870. 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UNIVERSITY ROAD SANTA BARBARA CA 93106 956006145 501(C)(3) 29500 RESEARCH UNIVERSITY OF COLORADO 1250 14TH STREET DENVER CO 80202 846000555 501(C)(3) 298000 RESEARCH UNIVERSITY OF CONNECTICUT 115 N EAGLEVILLE ROAD STORRSMANSFIELD CT 062691020 060772160 501(C)(3) 219948 RESEARCH UNIVERSITY OF MISSOURI 104 JESSE HALL COLUMBIA MO 65211 436003859 501(C)(3) 136664 RESEARCH UNIVERSITY OF NORTH CAROLINA 220 EAST CAMERON AVENUE CHAPEL HILL NC 275997090 566001393 501(C)(3) 851386 RESEARCH UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER SERVICE CTR BLDG 228F 1100 N LIND OKLAHOMA CITY OK 73104 736017987 501(C)(3) 100000 RESEARCH UNIVERSITY OF PITTSBURGH 4200 FIFTH AVENUE PITTSBURGH PA 15260 250965591 501(C)(3) 172874 RESEARCH UNIVERSITY OF ROCHESTER 601 ELMWOOD AVE ROCHESTER NY 14642 160743209 501(C)(3) 140000 RESEARCH UNIVERSITY OF SOUTHERN CALIFORNIA 3500 S FIGUEROA UGB-102 LOS ANGELES CA 900898001 951642394 501(C)(3) 109348 RESEARCH UNIVERSITY OF TEXAS 5323 HARRY HINES BLVD DALLAS TX 753909127 756002868 501(C)(3) 118900 RESEARCH UNIVERSITY OF WASHINGTON 4001 1ST AVE NE CHICAGO IL 98105 916001537 501(C)(3) 256981 RESEARCH VANDERBILT UNIVERSITY 3319 WEST END AVE SUITE 800 NASHVILLE TN 372038480 620476822 501(C)(3) 347632 RESEARCH WAISMAN CENTER 777 E WISCONSIN AVE MILWAUKEE WI 53202 391805963 501(C)(3) 46254 RESEARCH WASHINGTON UNIVERSITY ONE BROOKINGS DRIVE ST LOUIS MO 63130 430653611 501(C)(3) 56900 RESEARCH WEILL CORNELL MEDICAL COLLEGE 445 E 69TH STREET NEW YORK NY 10021 131623978 501(C)(3) 191420 RESEARCH WOMEN AND INFANTS HOSPITAL 101 DUDLEY STREET PROVIDENCE RI 02905 050258937 501(C)(3) 53500 RESEARCH YALE UNIVERSITY 47 COLLEGE ST SUITE 216 NEW HAVEN CT 06510 060646973 501(C)(3) 257402 RESEARCH ALASKA AUTISM RESOURCE CENTER (SPECIAL EDUCATION S 3501 DENALI STREET SUITE 101 ANCHORAGE AK 99503 920117008 501(C)(3) 24850 FAMILY SRVCS UNIVERSITY OF TEXAS AT AUSTIN SPEECH AND HEARING C 2504A WHITIS AVE AUSTIN TX 78712 746000203 501(C)(3) 24643 FAMILY SRVCS MAKE STUDIO ART PROGRAM INC 3500 PARKDALE AVE BUILDING 1 SUIT BALTIMORE MD 21211 271830644 501(C)(3) 14550 FAMILY SRVCS PATHFINDERS FOR AUTISM 303 INTERNATIONAL CIRCLE SUITE 110 COCKEYSVILLE MD 21030 522226573 501(C)(3) 7500 FAMILY SRVCS UNIVERSITY OF COLORADO FOUNDATION 1800 GRANT STREET SUITE 75 DENVER CO 80203 846049811 501(C)(3) 20784 FAMILY SRVCS WAYNE STATE UNIVERSITY 5475 WOODWARD DETROIT MI 48202 386028429 501(C)(3) 24906 FAMILY SRVCS UNIVERSITY OF ARKANSAS FOUNDATION GRADUATE EDUCATION BUILDING 217 FAYETTEVILLE AR 72701 716056774 501(C)(3) 25000 FAMILY SRVCS MAILMAN SEGAL CENTER AT NOVA SOUTHEASTERN UNIVERSI 3301 COLLEGE AVE FORT LAUDERDALE FL 33314 591083502 501(C)(3) 25000 FAMILY SRVCS UNC GREENSBORO 1100 W MARKET STREET OFFICE 138B GREENSBORO NC 27402 566086393 501(C)(3) 25000 FAMILY SRVCS ST MICHAEL'S HARBOUR 3679 E STATE STREET HERMITAGE PA 16148 550897732 501(C)(3) 23500 FAMILY SRVCS ROBERT CROWN CENTER FOR HEALTH EDUCATION 21 SALT CREEK LANE HINSDALE IL 60521 362608742 501(C)(3) 20074 FAMILY SRVCS ACADEMY FOR INCLUSIVE LEARNING AND SOCIAL GROWTH KENNESAW STATE UNIVERSITY 1000 CHA KENNESAW GA 30144 237034345 501(C)(3) 25000 FAMILY SRVCS LAGRANGE AREA DEPARTMENT OF SPECIAL EDUCATION 1301 COSSITT AVE LAGRANGE IL 60525 363699084 501(C)(3) 24435 FAMILY SRVCS COMMUNITY LIVING OPPORTUNITIES INC 2125 DELAWARE ST LAWRENCE KS 66046 480896520 501(C)(3) 25000 FAMILY SRVCS NEW YORK COLLABORATES FOR AUTISM 601 WEST 26TH STREET ROOM 1500 NEW YORK NY 10001 571136147 501(C)(3) 1340803 FAMILY SRVCS RESOURCES FOR CHILDREN WITH SPECIAL NEEDS INC 116 EAST 16TH STREET 5TH FL NEW YORK NY 10003 112594790 501(C)(3) 25000 FAMILY SRVCS THE CENTER FOR TEACHING AND RESEARCH IN AUTISM 163 WILLIAM ST 16TH FLOOR NEW YORK NY 10038 135562314 501(C)(3) 25000 FAMILY SRVCS THE GILLEN BREWER SCHOOL 410 EAST 92ND STREET NEW YORK NY 10128 133676916 501(C)(3) 489707 FAMILY SRVCS LIFELINE NEW YORK 845 THIRD AVE FL 15 NEW YORK NY 10022 208695829 501(C)(3) 28000 FAMILY SRVCS UNIVERSITY OF DELAWARE 240 ACADEMY STREET SUITE 130 NEWARK DE 19716 516000297 501(C)(3) 25000 FAMILY SRVCS CHAPMAN UNIVERSITY CHAPMAN ABILITY PROJECT ONE UNIVERSITY DRIVE ORANGE CA 92866 951643992 501(C)(3) 9963 FAMILY SRVCS LEGAL AID SOCIETY OF THE ORANGE COUNTY BAR ASSOCIA 100 EAST ROBINSON STREET ORLANDO FL 32801 591208322 501(C)(3) 25000 FAMILY SRVCS HAVE DREAMS 515 BUSSE HIGHWAY SUITE 150 PARK RIDGE IL 60068 364078008 501(C)(3) 22127 FAMILY SRVCS VISTA VOCATIONAL & LIFE SKILLS CENTER 1356 OLD CLINTON RD WESTBROOK CT 06498 223106714 501(C)(3) 25000 FAMILY SRVCS DADS 4 SPECIAL KIDS INC PO BOX 73182 PHOENIX AZ 85050 261680108 501(C)(3) 24997 FAMILY SRVCS SOUTHWEST AUTISM RESEARCH & RESOURCE CENTER 300 N 18TH STREET PHOENIX AZ 85006 311496646 501(C)(3) 20000 FAMILY SRVCS COLLEGE INTERNSHIP PROGRAM 199 SOUTH ST PITTSFIELD MA 01201 880145134 12000 FAMILY SRVCS NONPAREIL INSTITUTE 5240 TENNYSON PARKWAY SUITE 105 PLANO TX 75024 263351005 501(C)(3) 25000 FAMILY SRVCS VIRGINIA COMMONWEALTH UNIVERSITY 800 E LEIGH STREET SUITE 3100 RICHMOND VA 23284 546001758 501(C)(3) 150000 FAMILY SRVCS ROCHESTER INSTITUTE OF TECHNOLOGY 50 LOMB MEMORIAL DRIVE ROCHESTER NY 14623 160743140 501(C)(3) 14291 FAMILY SRVCS COLLEGE LIVING EXPERIENCE 401 N WASHINGTON ST ROCKVILLE MD 20850 270293554 12000 FAMILY SRVCS AUTISTIC GLOBAL INITIATIVE (AGI) 4182 ADAMS AVENUE SAN DIEGO CA 92116 952548452 501(C)(3) 74800 FAMILY SRVCS NORTHEAST PA CENTER FOR INDEPENDENT LIVING 1142 SANDERSON AVENUE SCRANTON PA 18509 232525528 501(C)(3) 25000 FAMILY SRVCS WESTCHESTER INSTITUTE FOR HUMAN DEVELOPMENT CEDARWOOD HALL A-106 VALHALLA NY 10595 200738248 501(C)(3) 25000 FAMILY SRVCS EASTER SEALS SOUTHEAST WI 2222 S 114TH STREET WEST ALLIS WI 53227 390816849 501(C)(3) 24718 FAMILY SRVCS 94 4 EQUIPMENT ASSISTANCE 800 392727 IPADS RENT 97 75192 MORTGAGE 46 31958 UTILITIES 82 28075 CAR 14 9562 TORNADO ASSISTANCE 6 4500 CHILDCARE 2 2000 FUNERAL ASSISTANCE 2 1800 MEDICAL ASSISTANCE 3 1550 HOUSING ASSISTANCE 4 1500 LEGAL EXPENSES 1 1040 FIRE ASSISTANCE 1 500 HURRICANE SANDY ASSISTANCE 1 250 HOSPITAL 1 100 PART I LINE 2 - MONITORING USE OF GRANT FUNDS RESEARCH GRANTS ARE PEER-REVIEWED BY TWO CORE GROUPS OF HIGHLY ESTEEMED SCIENTISTS AND CLINICIANS KNOWN AS THE SCIENTIFIC ADVISORY BOARD (SAB) AND THE TREATMENT ADVISORY BOARD (TAB). FOR ANY GIVEN PEER REVIEW MEETING, SAB AND TAB COVERAGE IS AUGMENTED BY ADDITIONAL LEADERS IN THE FIELD IN ORDER TO ENSURE THAT EACH PROPOSAL IS THOROUGHLY AND CAREFULLY REVIEWED. IN ORDER TO MAINTAIN FAIRNESS, ALL CONFLICTS OF INTEREST ON THE PART OF THE PANEL MEMBERS MUST BE REVEALED PRIOR TO THE REVIEW MEETING THAT IS HELD TO EVALUATE AND DISCUSS ALL PROPOSALS. ALL SCIENTIFIC EVALUATIONS OF PROPOSALS FOR FUNDING ARE CONDUCTED IN THE ABSENCE OF REVIEWERS WHO HAVE A CONFLICT OF INTEREST. THE PEER REVIEW PANELS ARE RESPONSIBLE FOR DISCUSSING AND EVALUATING THE SCIENTIFIC QUALITY AND MERIT OF GRANT APPLICATIONS SUBMITTED TO AUTISM SPEAKS. THE PANEL RECEIVES EXTENSIVE INSTRUCTIONS AND USES STANDARD GUIDELINES FOR SCORING GRANT APPLICATIONS. RECOMMENDATIONS OF THE PEER REVIEW PANEL ARE THEN REVIEWED BY THE AUTISM SPEAKS SCIENTIFIC REVIEW PANEL (SRP), A GROUP OF HIGHLY DISTINGUISHED SCIENTIFIC AND MEDICAL EXPERTS WHO CONSIDER THE RESEARCH MISSION OF AUTISM SPEAKS AND MAKE RECOMMENDATIONS ON RELEVANCE AND INNOVATION AS WELL AS SCIENTIFIC MERIT AND THE OVERALL RESEARCH PORTFOLIO OF AS. THE SRP'S RECOMMENDATIONS ARE FORWARDED TO THE AUTISM SPEAKS BOARD OF DIRECTORS FOR DETERMINATION OF FINAL FUNDING DECISIONS BASED ON SCIENTIFIC MERIT, RELEVANCE AND PRIORITY, AND BUDGETARY CONSIDERATIONS. ALL GRANT PAYMENTS ARE DEPENDENT ON THE GRANTEE SUBMITTING THE NECESSARY DOCUMENTATION. THE FIRST PAYMENT REQUIRES A FULLY EXECUTED AGREEMENT, ETHICS APPROVAL, AND A TIMELINE BY WHICH THE FUNDED RESEARCH WILL BE COMPLETED. ALL GRANTEES ARE REQUIRED TO SUBMIT FINANCIAL AND PROGRESS REPORTS AT DEFINED INTERVALS DURING THE TERM OF THE AWARD. AUTISM SPEAKS GRANTS AND SCIENCE STAFFS REVIEW ALL DOCUMENTS FOR SATISFACTORY AND ACCURATE REPORTING BEFORE APPROVING SUBSEQUENT PAYMENTS. X X true true X X X X X true false false false false false false false false ELIZABETH N FELD PRESIDENT 314374 0 25500 0 690 0 9039 0 22116 0 371719 0 0 0 GERALDINE DAWSON CHIEF SCIENCE (THRU 7/13) 252618 0 40000 0 1155 0 10157 0 12901 0 316831 0 0 0 ROBERT H RING CHIEF SCIENCE (AS OF 8/13) 278293 0 0 0 450 0 10200 0 22116 0 311059 0 0 0 SCOTT D NEWMAN CFO AS OF 5/13 176955 0 0 0 403 0 1375 0 4248 0 182981 0 0 0 PETER BELL EVP PROGRAMS&SERVCS THRU 9/13 174906 0 0 0 61175 0 7115 0 16764 0 259960 0 0 0 ALEC M ELBERT CHIEF STRATEGY & DEVELOPMENT 217356 0 0 0 45262 0 1688 0 147 0 264453 0 0 0 MICHAEL J ROSEN EVP STRATEGIC COMMUNICATIONS 163908 0 0 0 753 0 1250 0 11369 0 177280 0 0 0 LISA GORING VP FAMILY SERVICES 151660 0 0 0 356 0 13290 0 107 0 165413 0 0 0 ANITA S MILLER VP SCIENTIFIC REVIEW THRU 9/13 172572 0 0 0 45644 0 6832 0 517 0 225565 0 0 0 GARY D JAWORSKI SVP OF DEVELOPMENT 207793 0 0 0 1290 0 2150 0 15182 0 226415 0 0 0 ANDY SHIH VP SCIENTIFIC AFFAIRS 205874 0 0 0 574 0 19128 0 22116 0 247692 0 0 0 CLARA M LAJONCHERE VP CLINICAL PROGRAMS 193987 0 0 0 286 0 17720 0 7258 0 219251 0 0 0 DANIEL G SMITH SR DIRECTOR, RESEARCH DISCOVER 174818 0 0 0 256 0 6214 0 13160 0 194448 0 0 0 PART I, LINE 1A ONE KEY COMPLOYEE RECEIVED TAXABLE HOUSING AND GROSS UP PAYMENTS AS PART OF A RELOCATION PACKAGE. PART I, LINE 4A PETER BELL $60,856 THOMAS G. HETZEL $80,762 ANITA S. MILLER $44,079 THE ADVERTISING COUNCIL COMMON BOARD MEMBER 755867 AWARENESS CAMPAIGN FEES false KARMA 411 35% CONTROLLED ENTITY 222248 WEB FUNDRAISING SERVICES false X 25 280097 SELLING PRICE false false true SCHEDULE M, LINE 32B THE ORGANIZATION USES AN INVESTMENT FIRM TO SELL STOCK CONTRIBUTIONS. FORM 990, PART VI, SECTION A, LINE 2 ROBERT WRIGHT (CHAIR) AND SUZANNE WRIGHT (CO-CHAIR) ARE HUSBAND AND WIFE. TOMMY HILFIGER, (DIRECTOR) AND DEE HILFIGER (DIRECTOR) ARE HUSBAND AND WIFE. FORM 990, PART VI, SECTION B, LINE 11 THE FORM IS PREPARED BY EXTERNAL TAX PREPARERS AND REVIEWED BY MANAGEMENT. ONCE COMPLETED, THE COMPLETE FORM 990 IS PRESENTED TO AND REVIEWED BY AUTISM SPEAKS AUDIT COMMITTEE AND THE BOARD OF DIRECTORS IN ADVANCE OF FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICTS OF INTEREST POLICY IS REVIEWED ANNUALLY AT A BOARD MEETING WITH KEY EXECUTIVES PRESENT. BOARD MEMBERS, KEY EXECUTIVES, AND ALL STAFF ARE REQUIRED TO REVIEW AND SIGN THE POLICY ON AN ANNUAL BASIS AND TO DISCLOSE ANY BUSINESS ENTITY TO WHICH THEY OR THEIR SPOUSE HAVE AN INTEREST AND WHICH PROVIDED SERVICES TO AUTISM SPEAKS OR TO WHICH AUTISM SPEAKS PROVIDED GRANTS OR SERVICES. ALSO, REQUIRED TO BE LISTED IS ANY ENTITY, WHETHER BUSINESS, INSTITUTION, OR NON-PROFIT ORGANIZATION, WITH WHICH THEY ARE CURRENTLY AFFILIATED WITH IN ANY WORKING CAPACITY. THE AUTISM SPEAKS STAFF REVIEW EACH GRANT AWARDED FOR POTENTIAL CONFLICTS OF INTEREST AND EVERY BUSINESS ENTITY REPORTED BY BOARD MEMBERS OR STAFF WITH WHICH A WORKING RELATIONSHIP OUTSIDE OF AUTISM SPEAKS EXISTS IS INVESTIGATED FOR A POTENTIAL CONFLICT OF INTEREST. AUTISM SPEAKS MAY IMPOSE SANCTIONS ON A COVERED PERSON FOR NON-COMPLIANCE INCLUDING TERMINATION. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD REVIEWS CEO COMPENSATION OF SEVERAL NATIONAL NON-PROFITS OF LIKE SIZE WHEN DETERMINING APPROPRIATE COMPENSATION FOR AUTISM SPEAKS PRESIDENT AND OTHER SENIOR EXECUTIVES. ADDITIONALLY, AUTISM SPEAKS HAS IN PLACE A FORMAL COMPENSATION STRUCTURE BASED ON MARKET DATA OF SIMILAR SIZED ORGANIZATION, WHICH DETERMINES A SALARY RANGE BY JOB. AUTISM SPEAKS AIMS TO PAY INDIVIDUALS AT COMPETITIVE MARKET DATA. FORM 990, PART VI, SECTION C, LINE 19 AUTISM SPEAKS AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE ON ITS WEBSITE- AUTISMSPEAKS.ORG AND ARE AVAILABLE UPON REQUEST. AUTISM SPEAKS FORM 1023, CONFLICTS OF INTEREST POLICY AND BY-LAWS ARE AVAILABLE UPON REQUEST. DELIVERING SCIENTIFIC INNOVATION FOR AUT 1060 STATE ROAD Princeton NJ 08540 461157381 SEE PART VII DE 0 205 AUTISM SPEAK ADVANCING FUTURES FOR ADULTS WITH AUTISM 1 EAST 33RD STREET NEW YORK NY 10016 264813657 SEE PART VII DE 501(c)(3) 7 AUTISM SPEAK true AUTISM SPEAKS CANADA 5401 EGLINTON AVENUE WEST STE 115 Toronto Canada CA 869420208 SEE PART VII CA Autism Speak true false false false false false false false false false false false false false true true false true false ADVANCING FUTURES FOR ADULTS with Autism Q 65806 ACTUAL EXPENSES AUTISM SPEAKS CANADA (AS CANADA) Q 45454 ACTUAL EXPENSES Sch R, Part I&II, Col b - Primary Activitiy Primary Activities DELIVERING SCIENTIFIC INNOVATION FOR AUTISM, LLC - FUND PRODUCT DEVELOPMENT TO MEET MEDICAL & HEALTH NEEDS OF AUTISM COMMUNITY. ADVANCING FUTURES FOR ADULTS WITH AUTISM INC - SUPPORT FOR ADULTS WITH AUTISM. AUTISM SPEAKS CANADA - AUTISM RESEARCH, AWARENESS, & FAMILY SERVICES.