2014-02-26T10:12:03-06:00 2013-06-30 010720052 MORRISON BROWN ARGIZ & FARRA LLC 1450 BRICKELL AVENUE 18TH FLOOR MIAMI FL 33131 990 2012-07-01 590968031 NATIONAL PARKINSON FOUNDATION INC NATI 8003274545 200 SE 1ST STREET SUITE 800 MIAMI FL 33131 JOYCE OBERDORF 8003274545 2014-02-26 1 P00124528 3053735500 2012 2015-11-30 17:44:51Z X JOYCE OBERDORF 200 SE 1ST STREET SUITE 800 MIAMI FL 33131 19111992 0 X WWW.PARKINSON.ORG X 1957 FL SEE SCHEDULE O. 22 22 33 0 0 0 7494136 8643105 313950 642594 1451589 665130 0 0 9259675 9950829 3255625 2890095 0 0 3082178 3370485 262907 376100 1929693 3873884 4054872 10474594 10691552 -1214919 -740723 19608254 18946557 1415110 1839955 18193144 17106602 X SEE SCHEDULE O 0 0 3063313 2082243 PATIENT CARE SERVICES CONSISTS OF PROGRAMS DESIGNED TO IMPROVE PATIENT CARE BY FACILITATING ACCESS TO TODAY'S BEST PRACTICES OR SUPPORTING THE DEVELOPMENT OF TOMORROW'S. THESE INCLUDE EDUCATION AND DIAGNOSTIC TOOLS FOR HEALTH CARE PROFESSIONALS, DESIGNED TO IMPROVE PATIENT OUTCOMES. ANNUALLY, NPF REACHES 50,000 PEOPLE WITH PARKINSON'S THROUGH ITS CENTERS OF EXCELLENCE PROGRAM AND HAS TRAINED MORE THAN 1,200 HEALTHCARE PROVIDERS THROUGH ITS INTENSIVE TEAM PROGRAM. PROGRAMS TO IMPROVE IN-HOSPITAL CARE FOR PEOPLE WITH PARKINSON'S DIRECTLY REACHED 10,000 PATIENTS IN FISCAL 2013 AND INDIRECTLY COUNTLESS MORE. OUR 1-800-4PD-INFO HELPLINE TRACKS MORE THAN 12,000 CALLERS A YEAR, PROVIDING ADVICE & COUNSEL. 1217968 615814 RESEARCH PROGRAMS CONSISTS OF GRANTS TO FUND RESEARCH TO ADVANCE THE BETTER TREATMENT AND CARE OF PARKINSON'S PATIENTS THROUGH THE DEVELOPMENT OF NEW EVIDENCE, ANALYSIS OF EXISTING EVIDENCE, CREATION OF NEW GUIDELINES/BEST PRACTICES (E.G., THROUGH FORMING A NEW CONSENSUS ON A TOPIC WHERE PREVIOUSLY THERE HAD BEEN NO OR INCONSISTENT GUIDELINES). NPF'S QUALITY IMPROVEMENT INITIATIVE IS THE LARGEST CLINICAL STUDY IN PARKINSON'S TRACKING THE IMPACT OF TREATMENTS ON PATIENT OUTCOMES, WITH MORE THAN 7,500 PEOPLE, AND 150 NEUROLOGISTS PARTICIPATING IN 20 CENTERS IN FOUR COUNTRIES. 2261109 116117 46049 PUBLIC EDUCATION CONSISTS OF PROGRAM ACTIVITIES AND SUPPORT DESIGNED PRIMARILY TO RAISE AWARENESS OF PARKINSON'S DISEASE, ADVOCATE FOR BETTER CARE, AND EDUCATE PATIENTS AND FAMILIES IN ORDER TO ENGAGE THEM IN IMPROVING AND EXTENDING THEIR LIVES WITH THE DISEASE. THESE PROGRAMS INCLUDE PUBLICATIONS, PATIENT CONFERENCES, WEBCASTS, AND OUR ON-LINE INITIATIVES INCLUDING OUR WEBSITE (WWW.PARKINSON.ORG), AND SMARTPHONE APPS. NPF HAS DISTRIBUTED FOR FREE OVER 60,000 EDUCATIONAL MATERIALS, CONNECTED WITH AN ESTIMATED 900,000 PEOPLE IN OUR ON-LINE NETWORK, AND REACHED OVER ONE MILLION PEOPLE ACROSS ALL CHANNELS. 1308362 75922 596545 CHAPTER SERVICES CONSISTS OF ACTIVITIES AND PROGRAMS THAT SUPPORT NPF'S CHAPTER NETWORK, WHICH ARE DESIGNED TO OFFER EDUCATION, SUPPORT AND REFERRAL SERVICES. NPF HAS A NETWORK OF 23 CHAPTERS IN THE US PLUS THE BAHAMAS AND PUERTO TO RAISE AWARENESS OF PARKINSON'S DISEASE AT THE GRASSROOTS LEVEL. 1308362 75922 596545 7850752 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 50 0 1 33 1 0 0 0 0 0 0 0 0 0 0 X 22 22 1 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT FL GA HI IL KS KY LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X X JOYCE OBERDORF 3055379902 200 SE 1ST STREET SUITE 800 MIAMI FL 33131 DR BERNARD FOGEL MD 0.50 X X 0 0 0 E RICHARD ALHADEFF ESQ 0.50 X X 0 0 0 MARTIN SOLOMON 0.50 X X 0 0 0 JOHN W KOZYAK ESQ 0.50 X X 0 0 0 MR HAROLD KRAVITZ 0.50 X 0 0 0 ANDREW B ALBERT 0.50 X 0 0 0 DANIEL ARTY CPA 0.50 X 0 0 0 A JEFFREY BARASH ESQ 0.50 X 0 0 0 J GORDON BECKHAM JR 0.50 X 0 0 0 MARSHALL R BURACK ESQ 0.50 X 0 0 0 CARMEN CARTAYA ESQ 0.50 X 0 0 0 EDYTHE KAY-MARSA 0.50 X 0 0 0 HON SHELLEY J KRAVITZ 0.50 X 0 0 0 GAIL MILHOUS 0.50 X 0 0 0 PAUL F OREFFICE 0.50 X 0 0 0 JO ANN PEPPER OREFFICE 0.50 X 0 0 0 KATHARINE F ROBERTS 0.50 X 0 0 0 ALAN SLEWETT 0.50 X 0 0 0 ENRIQUE J SOSA 0.50 X 0 0 0 SEN PAUL B STEINBERG 0.50 X 0 0 0 ROBERT H TRAURIG ESQ 0.50 X 0 0 0 BRUCE WISNICKI 0.50 X 0 0 0 JOYCE OBERDORF 40.00 X 302250 0 13223 PETER SCHMIDT 40.00 X 213000 0 22485 JORGE ZAMUDIO 40.00 X 114500 0 19785 MELANIE SMITH 40.00 X 100001 0 7439 ROBERT SHAW 40.00 X 109216 0 7211 DAVID WEISS 40.00 X 107500 0 12881 PAMELA OLMO 40.00 X 104000 0 8414 ROBIN BOETTCHER 40.00 X 117568 0 15790 1168035 0 107228 8 1 1 0 GRIZZARD 229 PEACHTREE STREET NE STE 1400 ATLANTA GA 30353 MAIL CAMPAIGN SVC 551656 CONVIO 2000 DANIEL ISLAND DR CHARLESTOWN SC 29492 WEBSITE SERVICES 155177 FRANKLIN-DODD COMMUNICATIONS PO BOX 83053 CHICAGO IL 60691 PRINTING 149988 MERKLE RESPONSE SERVICE INC 100 JAMISON COURT HAGERSTOWN MD 21740 GIFT PROCESSING SVC 108296 4 75738 103520 8463847 50417 8643105 CHAPTER SERVICES 900099 596545 596545 EDUCATION CONFERENCES 611710 46049 46049 642594 349117 349117 9474639 9158626 316013 316013 316013 2537 103520 2537 0 9950829 642594 0 665130 X 2501370 2501370 388725 388725 545278 393373 30381 121524 2244671 1372433 264584 607654 65005 40350 6077 18578 307523 217451 41332 48740 208008 129836 22990 55182 13646 13296 350 57500 57500 376100 376100 60426 50576 9850 1214834 952374 71046 191414 284418 281813 2245 360 1054485 731949 27152 295384 289390 146731 49148 93511 30790 21568 4084 5138 418285 352319 20759 45207 179592 149304 9965 20323 63277 63277 242573 59253 169287 14033 118274 89905 6874 21495 27382 21998 534 4850 10691552 7850752 911107 1929693 X 774913 250872 0 524041 922689 2291173 199325 1298836 194155 172477 1327209 1255009 259215 72200 17982345 15069004 50525 42867 19608254 18946557 579212 614852 75000 269675 125000 346250 635898 609178 1415110 1839955 X 16218329 14972113 894999 1054673 1079816 1079816 18193144 17106602 19608254 18946557 -740723 -345819 0 X X 0 1 X 1 0 X 7176041 8881327 9695787 7564998 9182180 42500333 305238 319508 294292 243088 103520 1265646 7481279 9200835 9990079 7808086 9285700 43765979 298085 255020 185866 155585 134040 1028596 0 298085 255020 185866 155585 134040 1028596 42737383 516271 402632 428669 409251 349117 2105940 516271 402632 428669 409251 349117 2105940 7997550 9603467 10418748 8217337 9634817 45871919 0.93170 0.92290 0.04590 0.05490 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 17982345 319310 3232651 15069004 18789565 1172160 1979380 17982345 16649642 10070453 2356371 10106901 18789565 14032363 9330392 1469015 8362128 16469642 19457595 -2286489 3138743 14032363 0.89000 0.07000 0.04000 0 0 51594 51594 0 1275615 1203415 72200 72200 ANNUITIES PAYABLE 609178 609178 X 9869370 -345819 264360 -81459 9950829 0 9950829 10955912 264360 264360 10691552 0 10691552 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: TO FUND PATIENT-CENTERED PROGRAMS, RESEARCH AND GENERAL CHARITABLE PURPOSES. DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE FOUNDATION RECOGNIZES AND MEASURES TAX POSITIONS BASED ON THEIR TECHNICAL MERIT AND ASSESSES THE LIKELIHOOD THAT THE POSITIONS WILL BE SUSTAINED UPON EXAMINATION BASED ON THE FACTS, CIRCUMSTANCES AND INFORMATION AVAILABLE AT THE END OF EACH PERIOD. INTEREST AND PENALTIES ON TAX LIABILITIES, IF ANY, WOULD BE RECORDED IN INTEREST EXPENSE AND OTHER NON-INTEREST EXPENSE, RESPECTIVELY. PART XII, LINE 4B - OTHER ADJUSTMENTS: ROUNDING 0 NORTH AMERICA - CANADA AND MEXICO, BUT 0 0 GRANTMAKING 228225 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTMAKING 75150 MIDDLE EAST AND NORTH AFRICE 0 0 GRANTMAKING 85350 0 0 0 0 0 0 388725 0 388725 EUROPE (INCLUDING ICELAND & GREENLAND) QII - (SEE SCHEDULE O) 7650 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) PATIENT CARE - (SEE SCHEDULE O) 60000 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) QII - (SEE SCHEDULE O) 7500 CHECK MIDDLE EAST AND NORTH AFRICA QII - (SEE SCHEDULE O) 85350 CHECK NORTH AMERICA-(INCLUDING CANADA & MEXICO, BUT NOT THE UNITED STATES) QII - (SEE SCHEDULE O) 29325 CHECK NORTH AMERICA-(INCLUDING CANADA & MEXICO, BUT NOT THE UNITED STATES) PATIENT CARE - (SEE SCHEDULE O) 60000 CHECK NORTH AMERICA-(INCLUDING CANADA & MEXICO, BUT NOT THE UNITED STATES) PATIENT CARE - (SEE SCHEDULE O) 60000 CHECK NORTH AMERICA-(INCLUDING CANADA & MEXICO, BUT NOT THE UNITED STATES) QII - (SEE SCHEDULE O) 18900 CHECK NORTH AMERICA-(INCLUDING CANADA & MEXICO, BUT NOT THE UNITED STATES) PATIENT CARE - (SEE SCHEDULE O) 60000 CHECK 9 0 0 0 0 0 0 SCHEDULE F, PART I, LINE 2: ALL GRANT RECIPIENTS (DOMESTIC & FOREIGN) MAKE A FULL WRITTEN REPORT OF THE UTILIZATION OF FUNDS AWARDED TO NPFS SCIENTIFIC ADVISORY BOARD AND GRANT ADMINISTRATION AT NPF. X X X X X X 1 GRIZZARD 229 PEACHTREE STREET SUITE 1400 ATLANTA GA 30303 DIRECT MAIL LIST MANAGEMENT 0 1534910 557751 977159 LW ROBBINS 201 SUMMER ST PO BOX 5838 HOLLISTER MA 01746 DIRECT MAIL LIST MANAGEMENT 0 0 16700 -16700 TRYLON DATA MANAGEMENT INC 30 BUCK RD HANOVER NH 03755 DIRECT MAIL LIST MANAGEMENT 0 0 26488 -26488 1534910 600939 933971 AL AK AZ AR CA CO CT FL GA HI IL KS LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN VA WA WV WI KY UT OUT-OF-THE-PARK 21745 21745 62 84312 81775 2537 845 1692 106057 103520 2537 845 1692 2537 0 1 UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE DEPARTMENT OF NEUROLOGY 6550 FANNIN ST STE 1801 MIAMI FL 33102 590624458 410000 PATIENT CARE - (SEE SCHEDULE O) PARKINSON'S ACTION NETWORK CONTACTS GRANTS ACCOUNTING 123 GRINTER HALL BOX 113001 WASHINGTON DC 20005 943172675 124450 ADVOCACY PARKINSON'S INSTITUTE & CLINICAL CENTER JOHNS HOPKINS CENTRAL LOCKBOX 12529 COLLECTIONS CENTER DRIVE SUNNYVALE CA 94085 943061594 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF CALIFORNIA SAN FRANCISCO DEPT OF NEUROLOGY HF-1154 1429 HARPER STREET SAN FRANCISCO CA 94143 946036493 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF SOUTHERN CALIFORNIA PARKINSON'S DIS & MOV DIS CTR DEPT OF NEUROLOGY HF-1154 1429 HARPER STREET SAN FRANCISCO CA 94131 60000 PATIENT CARE - (SEE SCHEDULE O) GEORGETOWN UNIVERSITY HOSPITAL CONTRACTS GRANTS OFFICE 1855 FOLSOM ST MCG425 0897 WASHINGTON DC 20007 522339873 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF SOUTH FLORIDA PARKINSON'S DISEASE & MOV DIS CTR DEPT OF NEUROLOGY MS2012 3599 RAINBOW BLVD ORLANDO FL 32886 237313346 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF FLORIDA PD& MOVEMENT DISORDER CENTER DEPARTMENT OF NEUROLOGY 6550 FANNIN ST STE 1801 GAINSVILLE FL 32610 596002052 60000 PATIENT CARE - (SEE SCHEDULE O) GEORGIA REGENTS UNIVERSITY ABBOTT HALL 11TH FLOOR 710 NORTH LAKE SHORE DRIVE AUGUSTA GA 30912 352310573 60000 PATIENT CARE - (SEE SCHEDULE O) V&ERBILT UNIVERSITY MEDICAL CENTER DEPT OF NEUROLOGY MOV DISORDERS 7PHC 3800 RESERVOIR ROAD NW ATLANTA GA 31192 620476822 60000 PATIENT CARE - (SEE SCHEDULE O) NORTHWESTERN UNIVERSITY PARKINSON'S DISEASE & MOV DISORDERS CTR 330 BROOKLINE AVE RM KS 228 COGNITIVE NEUROLOGY UNIT CHICAGO IL 60611 362167817 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF KANSAS MEDICAL CENTER PARKINSON'S DISEASE & MOVEMENT DISORDE 330 BROOKLINE AVE RM KS 228 COGNITIVE NEUROLOGY UNIT KANSAS CITY KS 66160 481108830 60000 PATIENT CARE - (SEE SCHEDULE O) BETH ISRAEL DEACONESS MEDICAL CENTER DEPARTMENT OF FINANCE DEPT AT 40303 40303 BOSTON MA 02215 042103881 60000 PATIENT CARE - (SEE SCHEDULE O) MASSACHUSETTS GENERAL HOSPITAL 545 FIRST AVENUE GREENBERG HALL SCI-81 BOSTON MA 02241 043230035 60000 PATIENT CARE - (SEE SCHEDULE O) JOHNS HOPKINS MEDICAL INSTITUTE PO BOX 414876 MGH- RESEARCH FINANCE FINANCE CHICAGO MD 21287 520595110 60000 PATIENT CARE - (SEE SCHEDULE O) STRUTHERS PARKINSON'S CENTER SPONSORED PROGRAMS PO BOX 025405 GOLDEN VALLEY MN 55427 410132080 60000 PATIENT CARE - (SEE SCHEDULE O) DUKE UNIVERSITY MEDICAL CENTER 5 EAST 98TH STREET PO BOX 1139 DURHAM NC 27705 560532129 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL SCHOOL OF MEDICINE DEPARTMENT OF NEUROLOGY PO BOX 100236 CHAPEL HILL NC 27599 561732213 60000 PATIENT CARE - (SEE SCHEDULE O) BETH ISRAEL MEDICAL CENTER PD & MOVEMENT 1025 VERMONT AVE NW 1120 NEW YORK NY 10003 135564934 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF ROCHESTER MEDICAL CENTER 675 ALMANOR AVENUE ROCHESTER NY 14620 160743209 60000 PATIENT CARE - (SEE SCHEDULE O) NEW YORK UNIVERSITY SCHOOL OF MEDICINE 1520 SAN PABLO STREET STE 3000 NEW YORK NY 10016 60000 PATIENT CARE - (SEE SCHEDULE O) OREGON HEALTH & SCIENCE UNIVERSITY PARKINSON CENTER OF OREGON PO BOX 864568 PORTLAND OR 97201 237083114 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF PENNSYLVANIA 750 N LAKE SHORE DR RUBLOFF 7 FL PHILADELPHIA PA 19107 311538725 60000 PATIENT CARE - (SEE SCHEDULE O) BAYLOR COLLEGE OF MEDICINE 3599 RAINBOW BLVD MS-2012 HOUSTON TX 77030 741613878 60000 PATIENT CARE - (SEE SCHEDULE O) ST JOSEPH'S HOSPITAL & MEDICAL CENTER 600 N WOLFE ST MEYER 6-119B PHOENIX AZ 85013 860096787 60000 PATIENT CARE - (SEE SCHEDULE O) NORTHWESTERN MEMORIAL HOSPITAL 710 NORTH LAKE SHORE DR 11TH FL LAKE WAUKOMIS MO 64151 42694 CHAPTERS GRANT ST JOSPEH'S HOSPITAL & MEDICAL CENTER 6701 COUNTRY CLUB DRIVE PHOENIX AZ 85013 860096787 33000 QII - (SEE SCHEDULE O) OREGON HEALTH & SCIENCE UNIVPARKINSON CENTER 6701 COUNTRY CLUB DRIVE PORTLAND OR 97201 237083114 30750 QII - (SEE SCHEDULE O) UNIVERSITY OF KANSAS MEDICAL CENTER PARKINSON'S DISEASE & MOVEMENT DISORDE 240 W THOMAS ROAD STE 301 KANSAS CITY KS 66160 481108830 28275 QII - (SEE SCHEDULE O) STRUTHERS PARKINSON'S CENTER 675 ALMANOR AVENUE GOLDEN VALLEY MN 55427 410132080 28025 QII - (SEE SCHEDULE O) UNIVERSITY OF FLORIDA 10 UNION SQUARE EAST SUITE 5H GAINSVILLE FL 32610 591680273 27825 QII - (SEE SCHEDULE O) V&ERBILT UNIVERSITY MEDICAL CENTER PARKINSON DISEASE MOV DISORDERS 330 SOUTH 9TH STREET 3RD FLOOR PITTSBURG PA 15203 26400 QII - (SEE SCHEDULE O) GEORGIA REGENTS UNIVERSITY 601 ELMWOOD AVE BOX 673 AUGUSTA GA 30912 352310573 23250 QII - (SEE SCHEDULE O) UNIVERSITY OF PENNSYLVANIA 3181 SW SAM JACKSON PARK RD OP-32 PHILADELPHIA PA 19107 311538725 21450 QII - (SEE SCHEDULE O) JOHNS HOPKINS PARKINSON'S DISEASE & MOV DISORDERS PARKINSON DISEASE MOV DISORDERS 330 SOUTH 9TH STREET 3RD FLOOR CHICAGO MD 21287 520595110 21300 QII - (SEE SCHEDULE O) BETH ISRAEL DEACONESS MEDICAL CENTER 240 W THOMAS ROAD SUITE 301 BOSTON MA 02215 042103881 20100 QII - (SEE SCHEDULE O) BAYLOR COLLEGE OF MEDICINE VUMC-NEUROLOGY A-0118 MCN HOUSTON TX 77030 741613878 16950 QII - (SEE SCHEDULE O) NORTHWESTERN UNIV PD MOVEMENT DISORDERS CENTER 3181 SW SAM JACKSON PARK RD OP-32 CHICAGO IL 60611 362167817 16500 QII - (SEE SCHEDULE O) PARKINSON'S INSTITUTE & CLINICAL CENTER 932 MOREENE ROAD SUNNYVALE CA 94085 943061594 15600 QII - (SEE SCHEDULE O) UNIVERSITY OF SOUTH FLORIDA PARKINSON'S DISEASE & MOVEMENT DISORDERS CENTE 107 MANNING DRIVE CB 7025 ORLANDO FL 32886 237313346 11775 QII - (SEE SCHEDULE O) NPF SOUTH DAKOTA 1000 N WEST AVENUE STE 220 MADISON SD 57042 911803180 5034 CHAPTERS GRANT NPF NORTH FLORIDA 1114 CARRIAGE RD TALLAHASSEE FL 32313 743154511 5000 CHAPTERS GRANT NPF HEARTL& 8900 STATE LINE ROAD STE 320 LEAWOOD KS 66206 481171504 5000 CHAPTERS GRANT NPF MINNESOTA 5905 GOLDEN VALLEY RD STE 210 MINNEAPOLIS MN 55422 411820111 5000 CHAPTERS GRANT PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: ALL GRANT RECIPIENTS (DOMESTIC & FOREIGN) MAKE A FULL WRITTEN REPORT OF THE UTILIZATION OF FUNDS AWARDED TO NPF'S SCIENTIFIC ADVISORY BOARD AND GRANT ADMINISTRATION AT NPF. X X 0 0 0 0 0 0 0 0 0 JOYCE OBERDORF 290000 0 12250 0 0 0 7350 0 5873 0 315473 0 0 0 PETER SCHMIDT 200000 0 13000 0 0 0 6000 0 16485 0 235485 0 0 0 PAMELA OLMO 104000 0 0 0 0 0 4500 0 3914 0 112414 0 0 0 ROBIN BOETTCHER 112768 0 4800 0 0 0 4800 0 10990 0 133358 0 0 0 X 14 50417 FAIR MARKET VALUE 0 1 0 MISSION STATEMENT FORM 990, PART III, LINE 1 & PART I, LINE 1 THE MISSION OF THE NATIONAL PARKINSON FOUNDATION IS TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH PARKINSON'S DISEASE THROUGH RESEARCH, EDUCATION AND OUTREACH. FOUNDED IN 1957, NPF IS A LEADING NATIONAL ORGANIZATION WITH AN EXTENSIVE GRASSROOTS NETWORK OF CENTERS OF EXCELLENCE, CHAPTERS AND SUPPORT GROUPS IN THE UNITED STATES, CANADA AND INTERNATIONALLY. UNIQUE AMONG THE NATIONAL PARKINSON'S ORGANIZATIONS, NPF HAS A SINGULAR FOCUS ON IMPROVING THE QUALITY OF CARE IN PARKINSON'S DISEASE. SINCE 1982, NPF HAS FUNDED MORE THAN $180 MILLION IN RESEARCH AND SUPPORT SERVICES. THE CORE OF OUR EFFORTS IS THE NPF CENTER OF EXCELLENCE NETWORK, 39 LEADING MEDICAL CENTERS AROUND THE GLOBE THAT DELIVER CARE TO MORE THAN 50,000 PARKINSON'S PATIENTS. THROUGH THIS NETWORK, NPF CREATES A COMMUNITY OF HEALTH CARE PROFESSIONALS DEDICATED TO IMPROVING CLINICAL CARE IN PARKINSON'S DISEASE. IN EACH OF OUR RESEARCH, EDUCATION AND OUTREACH PROGRAMS, NPF IS DEDICATED TO PROMOTING OUR PASSIONATE BELIEF THAT THE BEST CARE IS A COMPREHENSIVE APPROACH THAT ADDRESSES THE WHOLE PERSON AND THE FULL RANGE OF SYMPTOMS OF THE DISEASE. FORM 990, PART VI, SECTION A, LINE 2 HAROLD KRAVITZ, SHELLEY KRAVITZ - FAMILY RELATIONSHIP PAUL OREFFICE, JOANNE PEPPER OREFFICE - FAMILY RELATIONSHIP FORM 990, PART VI, SECTION B, LINE 11 AS INFORMATION IS COMPILED, VARIOUS COMPONENTS ARE REVIEWED BY SENIOR MANAGEMENT AND THE CHAIRMAN OF THE BOARD. ONCE FINALIZED, THE ENTIRE FORM 990 IS REVIEWED BY THE V.P. OF FINANCE AND PRESIDENT AND CEO. A COPY OF THE FORM 990 IS DISTRIBUTED ELECTRONICALLY TO DIRECTORS BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT MUST BE COMPLETED AND SIGNED BY EACH BOARD MEMBER, EMPLOYEE, AGENT, OR TRUSTEE OF THE FOUNDATION. ANY KNOWN OR REASONABLY FORESEEABLE ACTUAL OR POTENTIAL CONFLICT OF INTEREST MUST BE DISCLOSED IN WRITING AS SOON AS POSSIBLE TO THE VICE PRESIDENT, FINANCE AND ADMINISTRATION, CHIEF EXECUTIVE OFFICER OR A MEMBER OF THE EXECUTIVE COMMITTEE OF THE BOARD. THE DISCLOSURE STATEMENT MUST BE COMPLETED, EXECUTED AND FILED WITH THE FOUNDATION BY ALL INDIVIDUALS SEEKING TO SERVE THE FOUNDATION AS AN INTERESTED PERSON PRIOR TO SUCH INDIVIDUALS COMMENCING HIS OR HER SERVICE TO THE FOUNDATION. FORM 990, PART VI, SECTION B, LINE 15A THE PRESIDENT AND CEO'S COMPENSATION WAS ESTABLISHED BASED ON ADVICE PROVIDED BY A PROFESSIONAL RECRUITING FIRM RETAINED BY NPF, WHICH ADVICE WAS BASED ON COMPARABLE MARKET DATA. NPF HAD FORMED A COMMITTEE, COMPRISED OF THREE BOARD MEMBERS, TO RECRUIT A NEW CEO, AND THAT COMMITTEE VOTED TO APPROVE THE LEVEL OF COMPENSATION PROPOSED. NO ADJUSTMENTS TO THE CEO'S SALARY HAVE BEEN MADE SINCE THE DATE OF HIRE. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE LATEST FINANCIAL STATEMENTS AND TAX RETURN ARE ALSO AVAILABLE FOR DOWNLOAD FROM THE ORGANIZATION'S WEBSITE. OTHER FEES FORM 990, PART IX, LINE 11G PROFESSIONAL & CONSULTING FEES: PROGRAM SERVICE EXPENSES 952,374. MANAGEMENT AND GENERAL EXPENSES 71,046. FUNDRAISING EXPENSES 191,414. TOTAL EXPENSES 1,214,834. FINANCIAL STATEMENTS FORM 990, PART XI, LINE 2C THE ORGANIZATION'S AUDIT COMMITTEE IS RESPONSIBLE FOR THE SELECTION OF THE INDEPENDENT ACCOUNTANTS AND OVERSIGHT OF THE ANNUAL AUDIT. THIS PROCESS HAS NOT CHANGED FROM THE PREVIOUS YEAR. EXPLANATION OF GRANTS SCHEDULE F, PART II, COLUMN (F) AND SCHEDULE I, PART II, COLUMN (H) GRANTS WERE AWARDED TO INSTITUTIONS IN THE FOUNDATION'S NETWORK OF 39 CENTERS OF EXCELLENCE (COE'S) AND 11 CARE CONSORTIUM MEMBER CENTERS. THROUGH THE COES ALONE, NPF REACHES MORE THAN 50,000 PATIENTS WITH PARKINSON'S DISEASE AND ALMOST 70,000 PATIENTS WITH MOVEMENT DISORDERS. NPF DEDICATED APPROXIMATELY $616,000 (21%) TO RESEARCH, OF WHICH $428,000 WAS ALLOCATED FOR THE QUALITY IMPROVEMENT INITIATIVE (QII); $116,000 (4%) WENT TO ADVOCACY AND OUTREACH;$76,000 (3%) WENT TO PROGRAMS FOR LOCAL CHAPTERS; AND $2.08 MILLION (72%) TO COMPREHENSIVE CARE SERVICES FOR THE 2012-2013 FISCAL YEAR. RESEARCH FUNDED IS LARGELY THROUGH NPF'S CLINICAL RESEARCH FUND, DESIGNED TO SUPPORT CUTTING-EDGE CLINICAL STUDIES OF NEW THERAPEUTIC OPTIONS FOR PARKINSON'S PATIENTS AS WELL AS RESEARCH COMPARING THE EFFECTIVENESS OF EXISTING TREATMENT OPTIONS. EACH YEAR, NPF, UNDER THE DIRECTION OF OUR CLINICAL AND SCIENTIFIC ADVISORY BOARD (CSAB), SUPPORTS FORWARD-LOOKING RESEARCH CONDUCTED BY THE WORLD'S TOP PARKINSON'S DISEASE (PD) EXPERTS. THE SINGULAR AIM OF NPF'S CLINICAL RESEARCH FUND IS TO DISCOVER THE BEST TREATMENT AND CARE OPTIONS FOR PEOPLE LIVING WITH PARKINSON'S DISEASE ANNUAL FUNDING PROCESS: REQUEST FOR APPLICATIONS ("RFAS") ARE ISSUED AS FUNDING BECOMES AVAILABLE, BUT NO LESS THAN ONCE PER YEAR. APPLICATIONS ARE ACCEPTED FROM ANY PRINCIPAL INVESTIGATOR AFFILIATED WITH A CURRENTLY CERTIFIED COE INDIVIDUAL INVESTIGATORS AT NON-CERTIFIED INSTITUTIONS ARE INVITED TO APPLY AS COLLABORATORS ALL RESEARCH IS PEER-REVIEWED BY NPF'S CLINICAL AND SCIENTIFIC ADVISORY BOARD, (CSAB) NPF DOES NOT FUND BASIC LABORATORY RESEARCH. PROGRAMS FUNDED IN COMPREHENSIVE CARE WERE AWARDED TO OFFER PATIENTS ACCESS TO AN ARRAY OF SERVICES THAT MANY TIMES ARE NOT COVERED BY INSURANCE INCLUDING TELEMEDICINE, EXERCISE AND PHYSICAL AND VOICE THERAPY. COMPREHENSIVE CARE GRANTS ALSO PROMOTED EDUCATION OF PATIENTS, CAREGIVERS AND HEALTHCARE PROVIDERS IN MULTIPLE AREAS; THESE EDUCATION PROGRAMS OFFERED THE TOOLS NECESSARY TO IMPROVE QUALITY OF LIFE AND PROMOTE CONTINUITY OF CARE OF THOSE AFFECTED BY PARKINSON'S DISEASE. THE QUALITY IMPROVEMENT INITIATIVE (QII) IS NPF'S SIGNATURE INITIATIVE; THE CORE IS THE CREATION OF A STANDARDIZED, MULTI-CENTER CLINICAL PRACTICE DATABASE IN REAL-WORLD CLINICAL SETTINGS. IN PARTNERSHIP WITH OUR CENTERS OF EXCELLENCE, IN 2009 NPF LAUNCHED THE FIRST DATA-DRIVEN QUALITY IMPROVEMENT INITIATIVE TO INTRODUCE TO PARKINSON'S DISEASE A FOCUS ON CONTINUOUS IMPROVEMENT. THIS ENROLLED PROJECT SYSTEMATICALLY MEASURES AND TRACKS CARE OVER TIME FOR EVERY PATIENT DIAGNOSED WITH PARKINSON'S DISEASE. THE GOAL IS TO EXPLORE THE VARIATION IN CURRENT CLINICAL PRACTICE IN ORDER TO DETERMINE THE "RECIPES" FOR BEST OUTCOMES IN PARKINSON'S. OUR ULTIMATE AIM IS TO CREATE AND SHARE MODELS OF EXCELLENT CARE, SO THAT EVERY PARKINSON'S PATIENT RECEIVES THE MOST EFFECTIVE TREATMENT OPTIONS AVAILABLE, WHETHER THEY ARE SEEN BY A SPECIALIST AT A NPF CENTER OF EXCELLENCE, A GENERAL NEUROLOGIST OR THEIR PRIMARY CARE PHYSICIAN. THIS TYPE OF CLINICAL DATABASE, CAPTURING NON-SELECTED PATIENTS WHO ARE PROSPECTIVELY FOLLOWED OVER TIME IN LARGE NUMBERS AND MULTIPLE LOCATIONS, DOES NOT CURRENTLY EXIST IN PARKINSON'S CARE. IN ADDITION TO IMPROVING THE QUALITY OF CARE AND EXPANDING THE RESEARCH CAPACITY ACROSS THE NETWORK OF CENTERS, THE DATABASE WILL: DRIVE IDENTIFICATION OF BEST PRACTICES IN PD CARE DISSEMINATE THESE PRACTICES TO BENEFIT EVERY PATIENT ESTABLISH PROVEN BASELINES FOR CARE TO INCREASE THE SENSITIVITY OF FUTURE RESEARCH THE DATA COLLECTED IN QII RELIES NOT ONLY ON PHYSICIANS TO ASSESS BUT ALSO THE EXPERIENCES OF PATIENTS. THE INTENT IS TO DEVELOP SCIENTIFICALLY VALIDATED QUALITY INDICATORS OF PARKINSON'S CARE WHICH CAN BE USED BY CENTERS TO BENCHMARK THEIR PROGRESS, TARGET CARE PROCESSES IN NEED OF IMPROVEMENT AND THUS, ENHANCE THEIR POSITIVE TREATMENT OUTCOMES. NATIONAL PARKINSON FOUNDATION SOUTH FLORIDA INC 1501 NW 9TH AVENUE 1ST FLOOR MIAMI FL 33136 453266918 FUNDRAISING FL 501(C)(3) LINE 7 NATIONAL PARKINSON FOUNDATION INC 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0