2014-11-13T10:54:57-06:00 2014-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX ST SUITE 400 ALEXANDRIA VA 22314 990 2013-07-01 112779073 SJOGREN'S SYNDROME FOUNDATION INC SJOG 3015304420 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 3015304420 2014-11-12 1 JOAN MRENNER CPA P00456765 7035351200 2013 2015-11-30 17:44:51Z STEVEN TAYLOR 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 2039546 0 X WWW.SJOGRENS.ORG X 1983 NY THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 17 16 13 16 78178 0 1096264 1273958 485677 467926 4721 19711 40747 38903 1627409 1800498 151250 66250 0 0 866056 946883 0 0 201573 813032 726942 1830338 1740075 -202929 60423 493898 481395 528624 435995 -34726 45400 X THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 0 0 217957 66250 RESEARCH GRANTS TO PROMOTE CONTINUED MEDICAL AND SCIENTIFIC RESEARCH IN THE AREA OF SJOGREN'S SYNDROME. TWO GRANTS WERE AWARDED TO UNIVERSITY AFFILIATED RESEARCHERS DURING FYE 2014. TWO STUDENT FELLOWSHIPS WERE ALSO AWARDED FOR INTERNSHIPS IN A SJOGREN'S RESEARCH LABORATORY. 247009 NEWSLETTER - THE SSF PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 199124 60633 ONE NATIONAL PATIENT CONFERNCE WAS HELD THIS PAST YEAR. THIS CONFERENCE WAS HELD FOR PATIENTS AND THEIR FAMILIES TO LEARN FROM HEALTHCARE PROFESSIONALS ABOUT TREATMENT AND MANAGEMENT OF SJOGRENS SYNDROME. OVER 400 INDIVIDUALS ATTENDED THESE CONFERENCES. 781859 268720 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO PROFESSIONALS. OTHER MEMBER SERVICES 781859 268720 1445949 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 13 1 1 1 0 0 0 0 0 0 0 0 0 0 X 17 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AK CO CT FL IL MD MA MI MN MS NH NY OH OR PA SC TN UT VA WA WV WI AZ X X SJOGREN'S SYNDROME FOUNDATION 3015304420 6707 DEMOCRACY BLVD SUITE 325 BETHESDA MD 20817 DENISE FAUSTMAN MD PHD MSAB CHAIRMAN 2.00 X X 0 0 0 PAMELA S BROWN SECRETARY 2.00 X X 0 0 0 MARY MCNEIL DIRECTOR 2.00 X 0 0 0 VIDYA SANKAR DMD MHS DIRECTOR 2.00 X 0 0 0 MICHAEL BRENNAN DDS DIRECTOR 2.00 X 0 0 0 NANCY L CARTERON MD FACR DIRECTOR 2.00 X 0 0 0 SHARI ROOD DIRECTOR 2.00 X 0 0 0 S LANCE FORSTOT MD CHAIRMAN OF THE BOARD 2.00 X X 0 0 0 KATHRYN P MCCARREN TREASURER 2.00 X X 0 0 0 KEN ECONOMOU CHAIRMAN-ELECT 2.00 X X 0 0 0 STEPHEN COHEN OD DIRECTOR 2.00 X 0 0 0 THERESA LAWRENCE FORD MD DIRECTOR 2.00 X 0 0 0 JANET E CHURCH DIRECTOR 2.00 X 0 0 0 JACK FARICELLI DIRECTOR 2.00 X 0 0 0 HERBERT BARAF MD FACP FACR DIRECTOR 2.00 X 0 0 0 CATHY INGELS DIRECTOR 2.00 X 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 40.00 X 196494 0 17531 196494 0 17531 1 0 1 0 0 357898 916060 22344 1273958 MEMBERSHIP DUES 541900 233865 233865 CONFERENCE 541900 155883 60633 95250 ADVERTISING 541800 78178 78178 467926 7347 7347 4048 4048 123029 1670 110321 2014 12708 -344 12364 12364 100527 357898 100527 0 59484 26186 33298 33298 MISCELLANEOUS INCOME 541900 1557 1557 1557 1800498 329353 78178 119009 66250 66250 261060 208848 26106 26106 555684 475791 14975 64918 8848 7553 268 1027 68851 58332 2661 7858 52440 44003 2579 5858 21441 21441 3645 3645 60173 53565 1208 5400 221240 168188 3849 49203 121528 101830 6024 13674 54277 54277 102193 101546 647 5230 5230 23491 19711 1156 2624 9223 7740 453 1030 BANK AND CREDIT CARD FE 25767 14327 22 11418 AWARENESS ACTIVITIES 24780 17519 7261 TELEPHONE 19168 16085 942 2141 DUES, SUBSCRIPTIONS AND 12846 10779 632 1435 21940 19605 715 1620 1740075 1445949 92553 201573 14449 39005 1709 1710 70904 81882 2071 3619 4769 8171 190024 156861 54278 33163 338859 306986 6859 6859 493898 481395 152404 157572 190000 111250 117929 113115 68291 54058 528624 435995 X -34726 45400 -34726 45400 493898 481395 60423 19703 0 X X 0 1 X 1 0 X 1403954 1634110 1389185 1342705 1507822 7277776 246454 230508 245379 140908 155883 1019132 1650408 1864618 1634564 1483613 1663705 8296908 817293 791836 687653 591090 638819 3526691 0 817293 791836 687653 591090 638819 3526691 4770217 8368 17154 14515 13931 11395 65363 8368 17154 14515 13931 11395 65363 1658776 1881772 1649079 1497544 1675100 8362271 0.57040 0.54680 0.00780 0.00820 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 129178 96015 33163 60846 60846 0 33163 CAPITAL LEASE PAYABLE 21970 DEFERRED RENT 32088 54058 1843086 19703 19703 1823383 3645 -26530 -22885 1800498 1762960 26530 26530 1736430 3645 3645 1740075 PART XI, LINE 4B - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII -26,186. LOSS ON DISPOSAL OF PROPERTY -344. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII 26,186. LOSS ON DISPOSAL OF PROPERTY 344. WALKABOUTS AND SIPS EVENTS 427097 326570 100527 100527 ADDRESS LABEL 20841 20841 1 10477 10477 458415 357888 100527 100527 100527 0 1 NIDCR - MOLECULAR PHYSIOLOGY BRANCH 31 CENTER DR MSC 2324 BETHESDA MD 208922324 520858115 SECTION 501(C)(3) 15000 RESEARCH GRANT OKLAHOMA MEDICAL RESEARCH FOUNDATION 825 NE 13TH ST OKLAHOMA CITY OK 73104 730580274 SECTION 501(C)(3) 25000 RESEARCH GRANT ROCKEFELLER UNIVERSITY NEW YORK 1230 YORK AVE NEW YORK NY 10065 131624158 SECTION 501(C)(3) 15000 RESEARCH GRANT PART I, LINE 2: THE SJOGREN'S SYNDROME FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S SYNDROME BY OFFERING ANNUAL RESEARCH GRANT AND STUDENT FELLOWSHIPS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 155700 0 40794 0 0 0 3150 0 14381 0 214025 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BE CONTACTING MAIN OFFICE. FORM 990, PART XI, LINE 2C THE ORGANIZATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR.