2014-05-13T16:22:55-05:00 2013-12-31 521446779 JOHNSON LAMBERT LLP 700 SPRING FOREST RD STE 115 RALEIGH NC 27609 990 2013-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER EXECUTIVE DIRECTOR 9198096779 2014-04-18 1 JOHN HUSKINS P01081531 9197196400 2014-05-13 2013 2015-11-30 17:44:51Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 1617934 0 X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO RAPIDLY DEVELOP EFFECTIVE TREATMENTS AND ULTIMATELY, A CURE FOR CHORDOMA, AND TO HELP CHORDOMA PATIENTS GET THE BEST CARE POSSIBLE 8 7 7 25 0 0 780659 1609663 6400 7649 1075 622 0 0 788134 1617934 212807 250000 0 0 179553 239419 0 0 180795 251523 422644 643883 912063 144251 705871 833861 1676212 106004 242484 727857 1433728 THE MISSION OF THE CHORDOMA FOUNDATION IS TO RAPIDLY DEVELOP EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR CHORDOMA, AND TO HELP CHORDOMA PATIENTS GET THE BEST CARE POSSIBLE. 0 0 536763 250000 THE CHORDOMA FOUNDATION INITIATED, FACILITATED, AND FUNDED RESEARCH AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS FOR CHORDOMA. THIS INCLUDED PERFORMING GENOMIC ANALYSIS OF CHORDOMA TUMORS, DISTRIBUTING CHORDOMA CELL LINES TO RESEARCHERS ACROSS THE WORLD, FACILITATING THE EXCHANGE OF CHORDOMA TISSUE, AND BROKERING COLLABORATIONS AMONG PHYSICIANS AND SCIENTISTS. 101177 7649 THE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND OTHER RARE CANCERS, AND SPONSORED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA. 637940 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 7 1 0 0 0 0 0 1 1 0 0 0 0 X 8 7 1 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR FL CA KY HI MA NY NC OH OR SC VA OK IL KS MD NM TN MN MI WI CO AK ND PA CT ME WA WV MS RI UT GA X X JOSH SOMMER 9198096779 2525 MERIDIAN PKWY STE 210 DURHAM NC 27713 JOSH SOMMER PRESIDENT 80.00 X X 58061 0 5466 HEATHER LEE CHAIR 15.00 X X 0 0 0 JOHN THERIEN SECRETARY 4.00 X X 0 0 0 BRUCE NELSON TREASURER (TO JAN '13) 3.00 X X 0 0 0 ADAM ABRAM DIRECTOR 2.00 X 0 0 0 BENJAMIN ABRAM DIRECTOR (TO NOV '13) 1.00 X 0 0 0 JOEL BECKMAN DIRECTOR 4.00 X 0 0 0 ANDY SCHOELKOPF DIRECTOR (FROM FEB '13) 4.00 X 0 0 0 CHANDRA SEN DIRECTOR 2.00 X 0 0 0 PAULA SONG DIRECTOR (FROM AUG '13) 2.00 X 0 0 0 58061 0 5466 0 0 0 0 0 20000 1589663 7569 1609663 COMMUNITY CONFERENCE 900099 7649 7649 7649 622 622 1617934 7649 0 622 225000 225000 25000 25000 63527 40761 9981 12785 137625 64663 39485 33477 20359 9134 4430 6795 17908 9580 4343 3985 13311 673 11775 863 18970 18970 40924 22374 5945 12605 24753 6906 5503 12344 29851 8971 2111 18769 16986 8279 4110 4597 22567 14183 840 7544 126889 117879 2150 6860 3627 1813 907 907 8954 5662 1710 1582 BIOREPOSITORY EXPENSES 58092 58092 EMPLOYEE RECRUITING, TR 57720 38 57682 912063 637940 93328 180795 354870 1321999 321288 178998 87829 53000 47362 92061 13711 21342 20201 13854 8801 6347 0 2465 833861 1676212 23050 123223 82954 119261 106004 242484 X 535455 1298743 192402 134985 727857 1433728 833861 1676212 705871 0 X 0 1 X 1 0 X 501265 356563 584425 780659 1609663 3832575 501265 356563 584425 780659 1609663 3832575 637687 3194888 8342 9615 3820 1075 622 23474 12255 12255 3868304 44662 0.82590 0.86950 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 20201 13854 6347 6347 X 1859476 241542 241542 1617934 0 1617934 1153605 241542 241542 912063 0 912063 PART X, LINE 2: THE FOUNDATION CONSIDERS UNCERTAIN TAX POSITIONS AND MANAGEMENT DOES NOT BELIEVE THERE ARE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES. 1 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH 25000 0 0 0 0 0 0 25000 0 25000 EUROPE GENOME SEQUENCING AS PART OF THE CHORDOMA GENOME PROJECT 25000 WIRE TRANSFER 1 0 0 0 0 0 0 PART I, LINE 2: MONITORING THE USE OF GRANT FUNDS OUTSIDE THE US IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. 1 JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE 733 N BROADWAY STE 117 BALTIMORE MD 21205 900329755 501(C)(3) 150000 RESEARCH GRANT EMORY UNIVERSITY 201 DOWMAN DRIVE ATLANTA GA 30322 580566256 501(C)(3) 25000 RESEARCH GRANT MASSACHUSETTS GEN HOSPOTAL 100 BLOSSOM CT JACKSON 1115 BOSTON MA 02114 041564655 501(C)(3) 50000 RESEARCH GRANT 3 0 PART I, LINE 2: MONITORING USE OF GRANT FUNDS INSIDE THE US IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. FORM 990, PART VI, SECTION A, LINE 2 BEN ABRAM AND ADAM ABRAM HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION A, LINE 4 THE ORGANIZATION'S BYLAWS WERE AMENDED TO INCREASE THE NUMBER OF CONSECUTIVE TERMS A BOARD MEMBER MAY SERVE. FORM 990, PART VI, SECTION B, LINE 11 FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY COMPLIANCE IS MONITORED BY REGULAR COMPLETION OF CHECKLISTS BY DIRECTORS FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. FINANCIAL STATEMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE.