2015-05-12T12:49:44-05:00 2014-12-31 522041603 SQUIRE LEMKIN COMPANY LLP 111 ROCKVILLE PIKE SUITE 475 ROCKVILLE MD 20850 990 2014-01-01 202897110 BLADDER CANCER ADVOCACY NETWORK INC BLAD 3012159099 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 DIANE ZIPURSKY QUALE PRESIDENT AND CO-FOUNDER 3012159099 2015-05-05 1 CLINT LEHMAN P00840525 3014246800 2014 2016-04-25 22:37:26Z DIANE ZIPURSKY QUALE 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 1953418 0 X WWW.BCAN.ORG X 2005 MD TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER; TO ADVANCE BLADDER CANCER RESEARCH; AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 10 9 9 0 0 0 1022404 1796181 26049 156986 263 251 0 0 1048716 1953418 288500 600000 0 0 408199 448977 0 0 119811 465489 508271 1162188 1557248 -113472 396170 825014 1364269 190532 333617 634482 1030652 X TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER; TO ADVOCATE BLADDER CANCER RESEARCH; AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 0 0 649535 600000 RESEARCH - BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS ALSO ENGAGED A NEW GENERATION OF RESEARCHERS WITH THE YOUNG INVESTIGATOR RESEARCH AWARDS (3 - $100,000 GRANTS PAYABLE OVER 2 YEARS). WITH AN ONGOING INVESTMENT, BCAN PLANS TO EXPAND THIS INNOVATIVE RESEARCH PROGRAM WHICH PROVIDES HOPE FOR FUTURE TREATMENTS. IN 2014, BCAN ESTABLISHED THE BLADDER CANCER RESEARCH INNOVATION AWARD, A $300,000 GRANT AWARDED OVER TWO-YEARS, FOR A SEASONED RESEARCHER TO BRING A NEW PERSPECTIVE TO BLADDER CANCER RESEARCH. THE NEW AWARD HELPED THE ORGANIZATION REACH THE $1 MILLION MARK FOR RESEARCH INVESTMENT. 171182 680 EDUCATION AND INFORMATION - BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. NOW IN ITS SECOND PRINTING, BCAN'S COMPREHENSIVE PATIENT HANDBOOK, "BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED," HAS BEEN PROVIDED TO THOUSANDS OF SURVIVORS, CAREGIVERS, UROLOGY PRACTICES, AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE WEB PROGRAM THAT ADDRESSES A VARIETY OF ISSUES FROM CLINICAL TRIALS TO LIVING WITH URINARY DIVERSION. THE WEBINARS FEATURE TOP EXPERTS IN THEIR FIELD AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. IN 2014, BCAN EXPANDED SUPPORT PROGRAMS BY ENGAGING COMMUNITY VOLUNTEERS TO STAFF THE BCAN CONNECTION INFORMATION AND REFERRAL LINE. THE PROGRAM PROVIDES PRACTICAL RESOURCES FOR THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. THE SURVIVOR 2 SURVIVOR PROGRAM CONNECTS NEWLY DIAGNOSED PATIENTS WITH SURVIVORS WITH A SIMILAR DIAGNOSIS. 180935 28050 THINK TANK - THE BLADDER CANCER THINK TANK (THINK TANK) IS THE ONLY MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION UROLOGISTS, ONCOLOGISTS, SCIENTISTS, AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE. THE JOHN QUALE TRAVEL FELLOWSHIP PROGRAM PROVIDES FINANCIAL SUPPORT TO HELP SELECT RESEARCHERS PAY TRAVEL EXPENSES RELATED TO THEIR ATTENDANCE AT THE ANNUAL BLADDER CANCER THINK TANK WHERE THEY HAVE THE OPPORTUNITY TO PRESENT THEIR RESEARCH, NETWORK WITH LEADING BLADDER CANCER RESEARCHERS AND GAIN INSIGHTS FROM THE THINK TANK. EACH YEAR, FOUR $1,700 TRAVEL FELLOWSHIPS ARE AWARDED TO EARLY CAREER PHYSICIANS AND SCIENTISTS. THE 2014 THINK TANK WAS THE LARGEST TO DATE ENGAGING NEARLY 170 PARTICIPANTS. 120084 128256 WALK FOR BLADDER CANCER - THE WALK FOR BLADDER CANCER IS AN AWARENESS INITIATIVE IN MAY THAT UNITES BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2014, WALKS WERE ORGANIZED IN 62 CITIES IN 29 STATES BY COMMUNITY VOLUNTEERS. OVER 4,000 PEOPLE PARTICIPATED IN WALKS NATIONWIDE TO INCREASE AWARENESS AND PROMOTE EARLY BLADDER CANCER DETECTION. THE EVENT INCLUDES A HEALTH WALK, SURVIVOR RECOGNITION AND EDUCATION ABOUT THE SIGNS AND SYMPTOMS OF BLADDER CANCER. MANY WALK PARTICIPANTS ALSO RAISE ADDITIONAL FUNDS TO SUPPORT BCAN'S MISSION PROGRAMS. THE WALK FOR BLADDER CANCER IS HELD ON THE FIRST SATURDAY IN MAY TO KICK-OFF BLADDER CANCER AWARENESS MONTH. 91704 ADVOCACY - AS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. IN 2014, BCAN HOSTED AN ADVOCACY DAY ON CAPITOL HILL FOR SURVIVORS AND LOVED ONES TO MEET WITH THEIR CONGRESSIONAL REPRESENTATIVES. THE ADVOCATES URGED LEGISLATORS TO SUPPORT A RESOLUTION RECOGNIZING NATIONAL BLADDER CANCER AWARENESS MONTH. EXPANDING CANCER RESEARCH IS A PRIORITY FOR BCAN. WE ARE A MEMBER OF ONE VOICE AGAINST CANCER, A COALITION OF PATIENT ADVOCACY GROUPS THAT WORK TOGETHER TO SUPPORT GOVERNMENT FUNDED CANCER RESEARCH. DRUG SHORTAGES, ACCESS TO SCREENING, AND INSURANCE COVERAGE ISSUES ARE BCAN'S OTHER LEGISLATIVE PRIORITIES. 75787 PATIENT AND VOLUNTEER SUPPORT - BCAN IS A GRASSROOTS ORGANIZATION AND VOLUNTEERS ARE AN IMPORTANT PART OF PATIENT OUTREACH. IN 2014, THREE PATIENT AND VOLUNTEER PROGRAMS WERE FORMALIZED." BCAN CONNECTION IS AN INFORMATION AND RESOURCE PHONE SUPPORT PROGRAM THAT PROVIDES PRACTICAL HELP AND RESOURCES TO CANCER PATIENTS AND THEIR LOVED ONES. VOLUNTEERS ANSWER QUESTIONS FROM PATIENTS RANGING FROM FINANCIAL CONCERNS TO LOCATING A UROLOGY CENTER IN THEIR AREA. " SURVIVOR 2 SURVIVOR MATCHES NEWLY DIAGNOSED PATIENTS WITH OTHER SURVIVORS WHO HAVE HAD A SIMILAR EXPERIENCE. THROUGH THESE PERSONAL CONNECTIONS, NEWLY DIAGNOSED PATIENTS LEARN MORE ABOUT LIVING WITH BLADDER CANCER AND TREATMENT OPTIONS." THE SPEAKER'S BUREAU IS A NEW PROGRAM THAT TRAINS COMMUNITY VOLUNTEERS TO PROMOTE BLADDER CANCER AWARENESS. THE PROGRAM HAS THREE COMPONENTS - PROVIDING BASIC INFORMATION AT HEALTH FAIRS, SHARING YOUR PERSONAL STORY TO MAKE AN IMPACT, AND CONDUCTING A FORMAL COMMUNITY EDUCATION PRESENTATION "BLADDER CANCER 101". 287575 128256 1289227 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 9 1 0 0 0 0 0 1 1 0 0 0 0 X 10 9 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MD IL CA CT FL MA MI MO NJ NY OH PA RI VA WA GA X X X DIANE ZIPURSKY QUALE 3012159099 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 DIANE ZIPURSKY QUALE DIRECTOR/PRESIDENT 25.00 X X 66150 0 0 SETH LERNER DIRECTOR 2.00 X 0 0 0 DAVID PULVER DIRECTOR 2.00 X 0 0 0 MACE ROSENSTEIN DIRECTOR 2.00 X 0 0 0 RICHARD SCOLIO DIRECTOR 2.00 X 0 0 0 JARED SHER DIRECTOR/SECRETARY 2.00 X X 0 0 0 ROBERT LEVIN DIRECTOR/TREASURER 2.00 X X 0 0 0 WILLIAM SHIPLEY DIRECTOR 2.00 X 0 0 0 GERALD MCNAMARA DIRECTOR 2.00 X 0 0 0 CHERYL TAYLORE LEE DIRECTOR 2.00 X 0 0 0 JANICE ASHLEY DIRECTOR 2.00 X 0 0 0 MONICA SMITH EXECUTIVE DIRECTOR 40.00 X 121667 0 0 187817 0 0 1 0 0 0 0 1796181 5084 1796181 CONFERENCE INCOME 900099 156306 156306 OTHER INCOME 900099 680 680 156986 251 251 1953418 156986 0 251 600000 600000 187817 136355 22914 28548 198428 144122 24296 30010 33836 24571 4135 5130 28896 20984 3531 4381 746 550 196 22710 22710 48595 34708 13887 30265 28713 1552 89070 66280 22063 727 95698 47180 15201 33317 47635 35330 5239 7066 37305 34641 2507 157 80079 78844 962 273 3880 3057 59 764 4540 3730 810 DUES AND MEMBERSHIP 10327 7486 2841 MEDIA PRODUCTION SERVIC 10195 10195 LICENSES & PERMITS 10142 704 9438 VOLUNTEER RECOGNITION 8197 8197 8887 4284 4603 1557248 1289227 148210 119811 194083 603785 560533 436773 40000 301413 18968 2996 17745 28967 28262 4586 705 3848 3848 825014 1364269 7449 2358 150000 300000 20000 20000 13083 11259 190532 333617 X 165775 557422 468707 473230 634482 1030652 825014 1364269 396170 0 X 0 1 X 1 0 X 387929 737781 1317133 1022404 1796181 5261428 387929 737781 1317133 1022404 1796181 5261428 945481 4315947 399 65 1244 263 251 2222 5263650 286981 0.82000 0.82010 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 1 21500 0 0 21500 0 PART II-B, LINE 1: THE LOBBYIST COORDINATED THE MEETINGS AND MESSAGING FOR OUR ANNUAL HILL DAY TO SUPPORT BLADDER CANCER AWARENESS MONTH. HE LED A TRAINING FOR OUR PATIENT ADVOCATES WHO JOINED US FROM AROUND THE COUNTRY FOR THIS DAY ON THE HILL. THE LOBBYIST ALSO MET WITH LEGISLATIVE AIDES IN CONGRESSIONAL OFFICES TO URGE THEM TO SUPPORT A RESOLUTION TO RECOGNIZE MAY AS NATIONAL BLADDER CANCER AWARENESS MONTH. 28967 28262 705 705 DEFERRED LEASE BENEFIT 11259 11259 X 1953418 0 1953418 0 1953418 1557248 0 1557248 0 1557248 PART X, LINE 2: ACCOUNTING FOR UNCERTAIN TAX PROVISIONS - IN GENERAL, WHEN TAX RETURNS ARE FILED, IT IS HIGHLY CERTAIN THAT SOME POSITIONS TAKEN WOULD BE SUSTAINED UPON EXAMINATION BY THE TAXING AUTHORITIES, WHILE OTHERS ARE SUBJECT TO UNCERTAINTY ABOUT THE MERITS OF THE POSITION TAKEN OR THE AMOUNT OF THE POSITION THAT WOULD BE ULTIMATELY SUSTAINED. THE BENEFIT OF A TAX POSITION IS RECOGNIZED IN THE FINANCIAL STATEMENTS IN THE PERIOD DURING WHICH, BASED ON ALL AVAILABLE EVIDENCE, MANAGEMENT BELIEVES IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL BE SUSTAINED UPON EXAMINATION, INCLUDING THE RESOLUTION OF APPEALS OR LITIGATION PROCESSES, IF ANY. TAX POSITIONS TAKEN ARE NOT OFFSET OR AGGREGATED WITH OTHER POSITIONS. TAX POSITIONS THAT MEET THE MORE-LIKELY-THAN-NOT RECOGNITION THRESHOLD ARE MEASURED AS THE LARGEST AMOUNT OF TAX BENEFIT THAT IS MORE THAN 50 PERCENT LIKELY OF BEING REALIZED UPON SETTLEMENT WITH THE APPLICABLE TAXING AUTHORITY. THE PORTION OF THE BENEFITS ASSOCIATED WITH TAX POSITIONS TAKEN THAT EXCEEDS THE AMOUNT MEASURED AS DESCRIBED ABOVE IS REFLECTED AS A LIABILITY FOR UNRECOGNIZED TAX BENEFITS IN THE ACCOMPANYING BALANCE SHEETS, ALONG WITH ANY ASSOCIATED INTEREST AND PENALTIES THAT WOULD BE PAYABLE TO THE TAXING AUTHORITIES UPON EXAMINATION. BCAN HAS DETERMINED THAT NO SUCH LIABILITIES WERE REQUIRED AT DECEMBER 31, 2014 AND 2013. 1 RESEARCH 4 600000 PART I, LINE 2: FOR A 24 MONTH GRANT PERIOD: THE RECIPIENTS ARE REQUIRED TO SUBMIT AN ANNUAL WRITTEN SUMMARIES TO BCAN DOCUMENTING THE PROGRESS MADE IN CONNECTION WITH THE GRANT. FORM 990, PART VI, SECTION B, LINE 11 THE TREASURER REVIEWS THE ANNUAL FORM 990 AND THE ANNUAL AUDIT WITH THE AUDITOR, AND PRESENTS BOTH TO THE BOARD OF DIRECTORS FOR APPROVAL AS BCAN'S ANNUAL AUDITED FINANCIAL STATEMENTS. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, EACH BOARD MEMBER, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD DELEGATED POWERS SIGNS A STATEMENT WHICH AFFIRMS THEY HAVE READ AND ARE COMPLYING WITH BCAN'S CONFLICT OF INTEREST POLICIES. FORM 990, PART VI, SECTION B, LINE 15 TO DETERMINE APPROPRIATE COMPENSATION FOR BCAN'S EXECUTIVE DIRECTOR, THE OFFICERS ANNUALLY REVIEW THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA BEFORE DESIGNATING A SALARY RANGE BASED ON THE EXECUTIVE DIRECTOR'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS. BCAN'S OFFICERS DO NOT DRAW ANY SALARY, NOR DO THEY GET REIMBURSED FOR TRAVEL TO BOARD MEETINGS. THE APPROPRIATE COMPENSATION FOR BCAN'S OTHER STAFF IS REVIEWED AT LEAST ANNUALLY BY BCAN'S EXECUTIVE DIRECTOR. SHE REVIEWS THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA TO DESIGNATE A SALARY RANGE BASED ON STAFF'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS EACH YEAR WHEN THEY APPROVE THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 BLADDER CANCER'S 990 AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC BY REQUEST. THEY ALSO HAVE THE 990 AVAILABLE ON GUIDESTAR.ORG