2015-10-15T11:39:22-05:00 2014-12-31 GRANT THORNTON LLP 757 THIRD AVE 2ND FLOOR NEW YORK NY 100172013 990 2014-01-01 136193105 Crohn's & Colitis Foundation of America Inc % RONALD GOLDSMAN VP FINANCE CROH 8009322423 733 Third Avenue New York NY 10017 Ronald Goldsman Vice President of Finance 2125990100 2015-10-14 true Scott Thompsett P00741490 2125990100 2014 2016-02-25 16:41:14Z richard geswell 733 Third Avenue new york NY 10017 71187576 false X www.ccfa.org X 1965 NY To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. 22 22 342 4530 809610 48092 52916365 60902280 284995 353610 280895 402525 937733 1574562 54419988 63232977 16592814 22077615 0 0 21164340 22344207 299269 319998 4291920 15250649 16499515 53307072 61241335 1112916 1991642 26203655 32021379 17088116 21056497 9115539 10964882 X FOR OVER FOUR DECADES, THE CROHN'S & COLITIS FOUNDATION ("CCFA") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. CCFA HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS AND SEEDING THE FIELD WITH GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). false false 24956743 21553258 Research - Since its inception, CCFA has been at the forefront of medical research in Crohn's disease and ulcerative colitis -collectively known as inflammatory bowel disease (IBD). There are two main research categories. Basic research explores the scientific foundations of the diseases. It answers such questions as: What is the underlying cause of Crohn's and colitis? Which genes are involved in these diseases? Although basic research is complex and can be difficult for laypersons to understand, these studies will ultimately lead to the cure for IBD. Clinical research determines which medical and surgical options work best for patients. - CCFA HAS PLAYED A SIGNIFICANT ROLE IN MANY MAJOR SCIENTIFIC BREAKTHROUGHS IN IBD, FROM GENERATING DATA THAT LED TO NEW THERAPIES TO THE DISCOVERY OF THE FIRST GENE FOR CROHN'S. - CCFA invests in human resources: It takes 10 years to "build" a full-fledged, senior investigator. To make sure that the most talented researchers enter and remain in the field of IBD, CCFA provides research training awards to develop the next generation of investigators. Many of today's most prominent researchers received training awards from CCFA early in their careers. - CCFA sets the research agenda: CCFA brings together the finest minds in the international scientific community (both basic and clinical) to develop and update our strategic plan for research "Challenges in IBD Research". - CCFA SUPPORTS INNOVATIVE AND ESSENTIAL RESEARCH IN THE FIELD OF IBD. SINCE ITS INCEPTION IN 1967, CCFA HAS FUNDED over 1,400 PROJECTS AND INVESTED $224 MILLION IN RESEARCH. CCFA-FUNDED GRANTEES HAVE RECEIVED NEARLY $2.9 BILLION IN FUNDING FROM THE UNITED STATES NATIONAL INSTITUTES OF HEALTH. THIS FIGURE REPRESENTS A RETURN ON INVESTMENT OF 7.1 FEDERAL AWARDS PER CCFA-SPONSORED PROJECT. - CCFA-SPONSORED GRANTEES HAVE ALSO RECEIVED FUNDING FROM INTERNATIONALLY RENOWNED ORGANIZATIONS INCLUDING 25 DIVISIONS OF THE UNITED STATES NATIONAL INSTITUTES OF HEALTH, THE JOHN D. AND CATHERINE MACARTHUR FOUNDATION, THE LEONA M. AND HARRY B. HELMSLEY CHARITABLE TRUST AND THE BILL AND MELINDA GATES FOUNDATION. - CCFA HAS INVESTED $9.3 MILLION ON PROJECTS CONDUCTED IN Fifteen NATIONS OUTSIDE THE UNITED STATES. - CCFA TRAINING AWARD RECIPIENTS HAVE SUCCESSFULLY USED THEIR PROJECTS AS A LAUNCH PAD FOR SUCCESSFUL CAREERS IN IBD RESEARCH. FOR EXAMPLE, CCFA'S $29 MILLION COMMITMENT TO CAREER DEVELOPMENT AWARDEES HAS RESULTED IN $158 MILLION IN FEDERAL SUPPORT. 23069558 353610 CCFA provides information and education in an effort to reach the more than 1.6 million IBD patients and their families through a variety of periodicals (Under the Microscope), books, awareness campaigns, local chapters, its Webcasts, and through its website. CCFA also reaches its many members with exclusive mailings. CCFA also offers professional education on Inflammatory Bowel Diseases, its IBD journal, and health professional workshops. Revenues reported as program service revenue of $353,610 represents camp registration fees for workshops/camp programs run for children and families affected by either crohn's disease or colitis. CCFA support services are delivered through its chapters nationwide which offer more than 300 support groups annually, 12 summer camps for children with IBD, and a range of educational and training programs for local communities. Read more about CCFA's chapters on its website, www.ccfa.org, or view its webcasts. 48026301 true true false true false false false false false false true false false false true true true false false false true true false true true true false true false true false false false false false false false true true false false false false false false false false true 461 0 true 342 true true true false false false false true true false false false false X 22 22 false false true false false false false true true false true true true true true true true true true false false AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI X X RONALD GOLDSMAN VP FINANCE 2126853440 733 THIRD AVENUE NEW YORK NY 100178804 Richard Geswell non-voting President 35.0 0.0 X X 551719 0 48841 Paul Salerno Treasurer 6.0 0.0 X X 0 0 0 Irwin Rosenthal Trustee 6.0 0.0 X 0 0 0 Shelby Modell Trustee 6.0 0.0 X 0 0 0 Maura Breen Chairman 6.0 0.0 X X 0 0 0 David Alberga Trustee (Thru 3/2014) 6.0 0.0 X 0 0 0 Jennifer Feikin Trustee 6.0 0.0 X 0 0 0 Lawrence Finkelstein Trustee (Thru 3/2014) 6.0 0.0 X 0 0 0 Vance Gibbs Esquire General Counsel & Secretary 6.0 0.0 X X 0 0 0 Steve Goodman Trustee 6.0 0.0 X 0 0 0 John Hasenauer Trustee 6.0 0.0 X 0 0 0 David levenson Trustee 6.0 0.0 X 0 0 0 Joel Margolese Trustee (Thru 3/2014) 6.0 0.0 X 0 0 0 Jeffrey Margolis Trustee 6.0 0.0 X 0 0 0 Jeffrey Nedelman Trustee 6.0 0.0 X 0 0 0 Michele Rubin APN CNS CGRN Trustee 6.0 0.0 X 0 0 0 Francisco Sylvester MD Trustee 6.0 0.0 X 0 0 0 Paul Tartell MD Trustee 6.0 0.0 X 0 0 0 Donald Burke Trustee 6.0 0.0 X 0 0 0 John Crosson Trustee 6.0 0.0 X 0 0 0 Matt Leavitt Trustee 6.0 0.0 X 0 0 0 james lewis trustee 6.0 0.0 X 0 0 0 Paula Hilbert Trustee 6.0 0.0 X 0 0 0 Bishop Walter Scott Thomas Trustee 6.0 0.0 X 0 0 0 Eric Stone Trustee 6.0 0.0 X 0 0 0 Maria Oliva-Hemker MD Trustee 6.0 0.0 X 0 0 0 Robert Territo cfo/coo 35.0 0.0 X 213374 0 12261 Judith Brown Chief development officer 35.0 0.0 X 236235 0 35254 Marie Granieri chief of staff 35.0 0.0 X 194172 0 11298 Kathleen Boggan SVP, volunteer & Chapter mgmt 35.0 0.0 X 208488 0 13396 michael Osso chief business dvlp officer 35.0 0.0 X 280276 0 12472 Caren Heller Chief Scientific Officer 35.0 0.0 X 236563 0 2500 Kimberly Frederick-snapper sr reg. director, NEw england 35.0 0.0 X 177035 0 15483 Craig Comins National Dir. Team Challenge 35.0 0.0 X 147923 0 15333 Anthony Leon Dir. of information technology 35.0 0.0 X 136364 0 22396 Erin Mulvey Stoeber VP marketing & communications 35.0 0.0 X 150957 0 7364 Sheri Markus-Kennell Senior Dir Mission Development 35.0 0.0 X 135816 0 22489 2668922 0 219087 33 false true false Blackbaud Po box 930256 ATLANTA GA 311930256 donor database 1887277 DIRECT PRINT COMMUNICATIONS INC 201 EAST SANDPOINTE Suite 400 SANTA ANA CA 92707 printing 1073887 Competitor group inc 9477 waples street suite 150 SAN DIEGO CA 92121 marketing 640172 Robert Michael Educational Institut 101 laurel road suite 200 VOORHEES NJ 080432368 Educational Services 546484 BARKLEY REI PO BOX 876270 KANSAS CITY MO 641876270 Marketing 346983 21 1603945 27370458 415313 31512564 462466 60902280 EDUCATION & CAMP REGISTRATION FEES 900099 353610 353610 353610 125019 125019 0 500802 500802 0 0 0 720865 443359 277506 277506 277506 7218499 27370458 7452692 -234193 -234193 292741 58548 234193 234193 0 CUSTOMIZED TRAINING 900099 809610 809610 IBD JOURNAL 900099 229000 229000 VEHICLE DONATION PROGRAM 900099 35150 35150 1073760 63232977 353610 809610 1167477 20818705 20818705 0 1258910 1258910 0 2056849 1306974 506334 243541 0 15606039 9916471 3841735 1847833 688419 437439 169468 81512 2613924 1660953 643469 309502 1378976 876236 339462 163278 0 116244 95244 14180 6820 103795 85044 12661 6090 70161 70161 319998 319998 0 5545164 4863085 653841 28238 807261 483920 218328 105013 1676287 1013457 447559 215271 1490700 1116512 252661 121527 0 1623964 973420 439263 211281 1942794 1240892 473941 227961 0 408954 408954 0 0 396212 288170 72953 35089 302359 181907 81332 39120 PUBLICATIONS 1201729 719707 325473 156549 GRANTS REFUNDED/RESCINDED -524357 -524357 LIST RENTAL FEES 523294 314827 140762 67705 PROV FOR DOUBTFUL ACCTS 164349 98412 44522 21415 650605 391419 175009 84177 61241335 48026301 8923114 4291920 0 0 3229003 8119582 6458007 5469618 0 0 0 0 0 0 0 0 0 0 1750928 2258701 5342585 2463457 2081832 2879128 10995312 11814017 1019030 886862 0 0 0 0 669543 593470 26203655 32021379 2175424 3740751 13742189 15478378 465050 1300000 0 0 0 0 0 0 0 0 0 0 705453 537368 17088116 21056497 X 1342935 2555201 7772604 8409681 0 0 9115539 10964882 26203655 32021379 X 1991642 -153833 11534 X false true X true false X 43742531 49476219 49808240 52916365 60902280 256845635 0 0 43742531 49476219 49808240 52916365 60902280 256845635 35868869 220976766 588755 802238 780816 723526 625821 3521156 13745 6130 0 0 48092 67967 5643836 6614989 7552953 7753879 7775390 35341047 295775805 1938334 0.74711 0.74704 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false true false false true 52618 false true 70161 122779 false Schedule C, Part II-B, Line 1(i) The Crohn's & Colitis Foundation of America, Inc. (CCFA) pays the Health and Medicine Counsel of Washington D.C. to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. (Total amount paid in 2014 was $70,161). It should be noted that the Health and Medicine Counsel of Washington is a healthcare advocacy group that may lobby on behalf of healthcare organizations; however, it is not paid to directly undertake any lobbying activities on behalf of CCFA. CCFA holds a "Day on the Hill" event every year, in which patients suffering with Crohn's disease volunteer to travel to Washington D.C. to discuss proposed healthcare bills with legislators. The "Day on the Hill" event was conducted during the calendar year 2014, for which expenses incurred were approximately $52,618. Expenditures of $52,618 for the Day on the Hill of event have been reported on Schedule C, Part II-B, 1(g). Included within the $52,618 are expenses incurred for mailings made to members, legislators or the public (line 1(d)); accordingly the Foundation has marked box 1(d) yes, but not reported an expense on that line (to avoid double-counting). 445869 66574 379295 1720226 1655610 64616 3176490 741273 2435217 2879128 0 REINSURANCE CONTRACTS 264227 DEFERRED RENT 259217 CAPITAL LEASE OBLIGATION 13924 537368 X 77906231 -153833 14815553 11534 14673254 63232977 63232977 76056888 14815553 14815553 61241335 61241335 Reconciliation of Revenue Part XI, Line 2d Changes in gift annuities valuations: $11,534 Income Taxes Part X Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The tax years ending 2011, 2012, 2013 and 2014 are still open to audit for both federal and state purposes. The adoption of this guidance did not have an impact on the Foundation's financial statements as management believes that there are no uncertain tax positions within its financial statements. true Europe (Including Iceland and Greenland) Grantmaking research 885067 East Asia and the Pacific Grantmaking research 248013 North America Grantmaking research 125830 1258910 1258910 Europe Research 117128 Bank Wire Europe Research 103234 Bank Wire Europe Research 133738 Bank Wire Europe Research 108908 Bank Wire Europe Research 110000 Bank Wire Europe Research 121295 Bank Wire Europe Research 115764 Bank Wire Europe Research 75000 Bank Wire East Asia and the Pacific Research 109992 Bank Wire East Asia and the Pacific Research 128021 Bank Wire North America Research 10000 Bank Wire North America Research 115830 Bank Wire East Asia and the Pacific Research 10000 Bank Wire 13 false false false false false false X X X X X X X true sanky communication direct mail false 4074666 286946 3787720 infocision management corp tele- marketing false 38228 33052 5176 4112894 319998 3792896 AL AK AR CA CO CT FL GA HI IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VT VA WA WV WI Take Steps 10695327 9672495 1022832 387852 634980 Team Challenge 9788626 6905645 2882981 1615825 1267157 77 14105004 10792318 3312686 2606272 940606 34588957 27370458 7218499 4609949 2842743 7452692 -234193 false false 292741 58548 false 292741 58548 58548 234193 CA FL GA MN MO NJ NY NC OH OR PA TX true false false false 1.00000 Ronald Goldsman 733 Third Avenue Suite 510 New York NY 10017 false See part IV 0 none false Schedule G, Part III - Gaming Activities The Crohn's & Colitis Foundation of America, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own special event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only seventeen chapters held raffles in twelve states: California, Florida, Georgia, Minnesota, Missouri, North Carolina, New Jersey, New York, Ohio, Oregon, Pennsylvania, and Texas. true Beth Israel Deaconess Medical Center 330 Brookline Avenue Boston MA 02215 470049123 501(C)(3) 115799 Research Brigham and Women's Hospital Inc 75 Francis Street Boston MA 02115 042312909 501(C)(3) 264080 Research Broad Institute Inc 415 Main Street Cambridge MA 02142 263428781 501(C)(3) 40000 Research Brown University 164 Angell Street Box 1929 Providence RI 02912 050258809 501(C)(3) 90000 Research Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501(C)(3) 206500 Research Cedars-Sinai Medical Center 8700 Beverly Boulevard Suite 1150 Los Angeles CA 90048 951644600 501(C)(3) 365830 Research Children's Hospital & Research Center 747 52nd Street Oakland CA 94609 940382330 501(C)(3) 225830 Research Children's Hospital Boston 300 Longwood Avenue Boston MA 02115 042774441 501(C)(3) 641430 Research Children's Hospital Los Angeles 4650 Sunset Boulevard Los Angeles CA 90027 951690977 501(C)(3) 191120 Research Cincinnati Children's Hospital 3333 Burnet Avenue Cincinnati OH 45229 310833936 501(C)(3) 454910 Research Cleveland Clinic Foundation 9500 Euclid Avenue Cleveland OH 44195 912153073 501(C)(3) 115830 Research Dartmouth Medical school 1 Medical Center Dr Lebanon NH 03756 020222111 501(C)(3) 991000 Research Duke University Medical Center 2200 West Main Street Suite 820 Durham NC 27705 060646973 501(C)(3) 258714 Research Emory University PO Box 935084 Atlanta GA 311935084 580566256 501(C)(3) 1650189 Research Federation of Clinical Immunology Societies N83 W13410 Leon Road Menomonee Falls WI 53051 760715404 501(C)(3) 10000 Research Fred Hutchinson Cancer Research Center 1100 Fairview Ave N Seattle WA 981091024 237156071 501(C)(3) 74237 Research Georgia State University 38 Peachtree Center Ave Suite 540 Atlanta GA 30302 586033185 501(C)(3) 184750 Research Harvard Medical School 677 Huntington Avenue Boston MA 02115 125096559 501(C)(3) 81540 Research Icahn School of Medicine at Mount Sinai One Gustave L Levy Place Box 1075 New York NY 10029 136171197 501(C)(3) 869567 Research Johns Hopkins University 12529 Collections Center Drive Chicago IL 60693 237424444 501(C)(3) 50600 Research La Jolla Institute for Allergy & Immunology 9420 Athena Circle La Jolla CA 92037 330328688 501(C)(3) 148250 Research Massachusetts General Hospital 7 Cambridge Center Boston MA 021421401 041564655 501(C)(3) 87703 Research Massachusetts Institute of Technology 77 Massachusetts Avenue Cambridge MA 021394307 042103594 501(C)(3) 104562 Research Mayo Clinic 200 First St SW Rochester MN 559050001 411506440 501(C)(3) 174080 Research Michigan State University 220 Trowbridge Rd East Lansing MI 48824 237326030 501(C)(3) 115830 Research New York University School of Medicine One Park Avenue 6th Floor New York NY 10016 111361711 501(C)(3) 259665 Research Oklahoma Medical Research Foundation 825 NE 13th Street Oklahoma City OK 73104 730580274 501(C)(3) 58250 Research Oregon Health & Science University 3181 SW Sam Jackson Park Rd Portland OR 97239 237083114 501(C)(3) 115830 Research Sanford-Burnham Medical Research Institute 10901 North Torrey Pines Road La Jolla CA 92037 510197108 501(C)(3) 115830 Research St Jude Children's Research Hospital 262 Danny Thomas Place Memphis TN 381053678 620646012 501(C)(3) 115830 Research St Vincent Healthcare Foundation 1105 N 30th Street Billings MT 59101 810468034 501(C)(3) 130000 Research Stanford University 3172 Porter Drive Palo Alto CA 94304 941156365 501(C)(3) 264160 Research SUNY University at Buffalo 3435 Main Street Buffalo NY 14214 160865182 501(C)(3) 89500 Research SUNY Upstate Medical University 750 E Adams Street Syracuse NY 13210 361408475 501(C)(3) 172580 Research The Children's Hospital of Philadelphia 3615 Civic Center Blvd Philadelphia PA 19104 232237932 501(C)(3) 115830 Research The Medical College of Wisconsin Inc 8701 Watertown Plank Rd Milwaukee WI 532260509 390806261 501(C)(3) 115830 Research The Rector and Visitors of Univ Virginia PO Box 400195 Charlottesville VA 229044195 546001796 501(C)(3) 115830 Research The Regents of the University of California San Di 9500 Gilman Drive Mail Code 0742 La Jolla CA 92093 956006144 501(C)(3) 115830 Research The Regents of the University of California Berke 2150 Shattuck Avenue Suite 300 Berkeley CA 947045940 946002123 501(C)(3) 57800 Research The Regents of the University of California Los A 11000 Kinross Avenue Suite 211 Los Angeles CA 90095 956006143 501(C)(3) 1926680 Research The Regents of the University of California San F 3333 California Street Suite 315 San Francisco CA 94118 946036493 501(C)(3) 522240 Research The Regents of the University of Michigan 1500 E Medical Center Dr Ann Arbor MI 481095212 386006309 501(C)(3) 743854 Research The Rockefeller University 1230 York Avenue Box 82 New York NY 10065 131624158 501(C)(3) 205830 Research Trustees of Univ of Pennsylvania 3451 Walnut Street Franklin Build Philadelphia PA 19104 231352685 501(C)(3) 800540 Research The University of Alabama at Birmingham 1720 2nd Avenue South Birmingham AL 352940111 636005396 501(C)(3) 231660 Research The University of Chicago 5801 South Ellis Avenue Chicago IL 60637 362177139 501(C)(3) 227401 Research The University of North Carolina at Chapel Hill 104 Airport Drive Suite 2200 Chapel Hill NC 27599 566001393 501(C)(3) 787185 Research University of Texas Health Science Center Post Office Box 20036 Houston TX 772250036 741761309 501(C)(3) 88628 Research Trudeau Institute Inc 154 Algonquin Avenue Saranac Lake NY 12983 141401413 501(C)(3) 115830 Research UCLA 11000 Kinross Avenue Suite 211 Los Angeles CA 90095 956006143 501(C)(3) 234766 Research University of Alabama at Birmingham 1530 3rd Avenue South AB 990 Birmingham AL 352940109 636005396 501(C)(3) 109451 Research Univ of California Davis Health Systems 4400 V Street Sacramento CA 95817 846000555 501(C)(3) 90000 Research University of Colorado Denver AMC and DC 500 13001 E 17th Place Rm W1126 Aurora CO 80045 846000555 501(C)(3) 760232 Research University of Massachusetts Medical School 55 Lake Avenue North Worcester MA 01655 043167352 501(C)(3) 115830 Research University of Miami 1320 S Dixie highway Suite 650 Miami FL 331462403 590624458 501(C)(3) 236830 Research University of North Carolina at Chapel Hill 104 Airport Drive Suite 2200 Chapel Hill NC 275991350 566001393 501(C)(3) 20000 Research University of Pittsburgh 123 University Place Pittsburgh PA 15213 250965591 501(C)(3) 115714 Research University of texas at southwestern medical center 5323 Harry Hines Blvd Dallas TX 75390 276690619 501(C)(3) 88580 Research University of Texas Health Science Center at Houst 7000 Fannin UCT 1006 Houston TX 770305401 741761309 501(C)(3) 110000 Research Univ Texas MD Anderson Cancer Center 1515 Holcombe Blvd Houston TX 77030 131624158 501(C)(3) 76411 Research US Food and Drug Administration 10903 New Hampshire Ave Silver Spring MD 20993 956006144 501(C)(3) 10000 Research UT Southwestern Medical Center 5323 Harry Hines Blvd Dallas TX 753909020 752556007 501(C)(3) 58250 Research Vanderbilt University Medical Center 1400 18th Avenue South Nashville TN 37212 352528741 501(C)(3) 407801 Research Virginia Commonwealth University PO BOX 980568 Richmond VA 232980568 546001758 501(C)(3) 58250 Research Washington University in St Louis One Brookings Drive Campus Box 105 St Louis MO 631304862 125096559 501(C)(3) 2558250 Research Washington Univ School Medicine St Louis 8116 660 S Euclid Avenue St Louis MO 63110 362177139 501(C)(3) 115830 Research Weill Cornell Medical College in Qatar 413 East 69th Street New York NY 10065 131623978 501(C)(3) 115395 Research Yale University 47 College Street Suite 203 PO Bo New Haven CT 065208047 060646973 111100 Research 68 Grants Part I, Line 1 The Crohn's & Colitis Foundation of America, Inc. ("CCFA") is a non-profit organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and ccfa requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated. X X X X X false false false false false false false true false Richard Geswell non-voting President 514557 0 37162 0 0 33100 0 15741 0 600560 0 0 0 Judith Brown Chief development officer 228235 0 8000 0 0 30656 0 4598 0 271489 0 0 0 Kimberly Frederick-snapper sr reg. director, NEw england 161359 0 15676 0 0 10003 0 5480 0 192518 0 0 0 Marie Granieri chief of staff 194172 0 0 0 11003 0 295 0 205470 0 0 0 Craig Comins National Dir. Team Challenge 147923 0 0 0 8008 0 7325 0 163256 0 0 0 Kathleen Boggan SVP, volunteer & Chapter mgmt 203488 0 5000 0 0 10269 0 3127 0 221884 0 0 0 Robert Territo cfo/coo 201374 0 12000 0 0 10063 0 2198 0 225635 0 0 0 Anthony Leon Dir. of information technology 132364 0 4000 0 0 7364 0 15032 0 158760 0 0 0 Erin Mulvey Stoeber VP marketing & communications 147457 0 3500 0 0 7364 0 0 0 158321 0 0 0 michael Osso chief business dvlp officer 250276 0 30000 0 0 9492 0 2980 0 292748 0 0 0 Caren Heller Chief Scientific Officer 236563 0 0 0 0 0 2500 0 239063 0 0 0 Sheri Markus-Kennell Senior Dir Mission Development 135816 0 0 0 8698 0 13791 0 158305 0 0 0 Incentive Program Schedule J, Part I, Line 7 The President's incentive is predicated off of a set of objectives that are developed and updated each year. These objectives include raising revenues, management of expenses, development of regions and related performance, building of infrastructure and maximization of research expenditures. Each area's results are evaluated by the Compensation and Benefits Committee and the incentive is ultimately determined based on ratings of performance of these objectives. For all other employees, impact awards are given to employees if the individual meets net income and net revenue targets and must be recommended by their supervisor. David Alberga Board Member 280000 See part V false Form 990, Schedule L, Part IV Board of Trustees member, David Alberga, is the President and CEO of Active Network, Inc., an organization that transacts business with the Crohn's & Colitis Foundation of America, Inc. ("CCFA") CCFA uses a website to process online contributions for its special events; this website is affiliated with Active Network, Inc. CCFA paid $280,000 to Active Network Inc. This transaction has been fully disclosed in CCFA's audited financial statements. David Alberga came off the board in March 2014. X 75 462466 Market Price false true true Bylaws Changes Part VI, Section A, line 4 Crohn's & Colitis Foundation of America amended its bylaws in calendar 2014 that impacted the manner in which the organization selects certain voting trustees. In addition, various other changes were made that had a modest impact on the organization's daily governance. Process used to review form 990 Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the Chair of the Audit and Finance Committee members for discussion and comment. A copy of the 990 is distributed to all Board of Trustees prior to filing. Conflict of Interest Policy Monitoring & Enforcement Part VI, Section B, Line 12 All officers, directors, trustees, and key employees of the Crohn's & Colitis Foundation of America, Inc. ("CCFA") are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with CCFA. CCFA monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately. Process for determining compensation Part VI, section B, Line 15 The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic locations, tenure, mission and other factors help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board using guidelines and comparability data provided in National Compensation Studies of Chief Staff Executives. The Foundation hired an independent compensation consultant to review and validate the compensation it pays its employees. The consultant conducted an internal and external landscape analysis to develop a competitive pay philosophy encompassing CCFAs size, geographical location, position type, pay trends and market competitiveness amongst health-related not-for-profit organizations. Availability of documents to the public part vi, section C, line 19 The taxpayer makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.ccfa.org. The Form 990 is likewise published on the internet at www.guidestar.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion. Contributions Part VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation of America, Inc. ("CCFA") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to CCFA nor does CCFA have ownership rights to them. In 2014, CCFA received $35,150 in revenues from this program. Additionally, CCFA receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of CCFA's programs. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, CCFA has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2014, contributed services and airtime amounted to $14,815,553. Form 990, Part XI, Line 9 Other changes in net assets Changes in Gift Annuities and Remainder Trust Valuations - $11,534