2015-05-14T17:19:50-07:00 2014-12-31 NIENOW & TIERNEY LLP 17822 E 17TH STREET SUITE 305 TUSTIN CA 927802151 990 2014-01-01 454597425 The Familial Hypercholesterolemia Foundation DBA The FH Foundation FAMI 6264651234 1515 Hope Street South Pasadena CA 91030 Katherine Wilemon President & CEO 2015-05-14 true Stephen E Tierney P00163962 7148368300 2014 2016-02-25 16:41:14Z 3099878 false false X www.thefhfoundation.org X 2012 CA The FH Foundation is a patient-centered organization dedicated to education, advocacy, and research of Familial Hypercholerterolemia, the mission is to raise awareness and save lives by increasing the rate of early diagnosis and encouraging proactive treatment. 8 7 3 0 765111 2008384 1088000 3494 1222 0 766333 3099878 0 0 58567 256324 0 63493 791066 1191803 849633 1448127 -83300 1651751 366923 3582214 5720 31226 361203 3550988 X The FH Foundation is a patient-centered organization dedicated to education, advocacy, and research of Familial Hypercholerterolemia, the mission is to raise awareness and save lives by increasing the rate of early diagnosis and encouraging proactive treatment. false false 614825 150000 Cascade Registry To address gaps in familial hypercholesterolemia (FH) diagnosis and treatment, the FH Foundation has launched a national FH patient registry, the CASCADE FH designed to collect comprehensive data on individuals with confirmed or suspected FH on a longitudinal basis. The CASCADE FH Registry will serve as a key instrument to support health service planning, increase knowledge on the disease and pool data for epidemiological, clinical and outcomes research, as well as for surveillance of therapy effectiveness. CASCADE FH stands for Cascade Screening for Awareness and Detection of FH. The name, CASCADE FH, highlights the need for systematic cascade screening of families to improve the rate of diagnosis and quality of FH care. The registry operates using a dual-pathway enrollment design that maximizes outreach and provides both the clinical and patient perspective of the disease. 311904 Summit The FH Global Summit is an annual event solely dedicated to the science and treatment of FH. It is a global gathering of medical experts, patient advocacy organizations, health care providers, and individuals with FH. The two-day event features compelling presentations that provide a platform to share insights and practices for improved awareness, diagnosis and treatment of FH. 150844 See FH (Outreach) Support, Educate, Empower (SEE) FH program was established to address the shortcomings and lack of awareness in the general public and the medical community about FH inheritability and diagnosis standards. This program aims to raise awareness and increase knowledge of FH in the general population and among health care providers. 192202 938000 1269775 true true false false false false false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 13 0 false 3 true false false false false false false false false 0 false false false false false false false false false false X 8 7 false false false false false false false true true false false true true true true false false true false false CA X Rose Lam 7142702960 1515 Hope Street Ste 204 South Pasadena CA 91030 Katherine Wilemon President & CEO 50.00 0.00 X 142789 0 0 Dave Pickhardt Treasurer/Chair 5.00 0.00 X X 0 0 0 Seth J Baum Board Member 3.00 0.00 X 0 0 0 Christian Jacobs Board Member 1.00 0.00 X 0 0 0 Joshua Knowles Board Member 5.00 0.00 X 0 0 0 Stacey Lane Secretary 3.00 0.00 X X 0 0 0 William A Neal Board Member 3.00 0.00 X 0 0 0 Ted Tussing Board Member 1.00 0.00 X 0 0 0 142789 1 false false false Duke Clinical Research Institute DCRI PO Box 17969 Durham NC 27715 Registry Management 310562 1 2008384 2008384 Cascade Registry 150000 150000 Find FH Data Service 938000 938000 1088000 3494 3494 0 0 0 0 0 0 0 0 3099878 1088000 3494 X 0 0 0 0 142789 107741 35048 0 96665 67915 28750 0 0 16870 16870 0 38556 38556 12241 12241 0 0 0 575253 572330 2923 0 11284 455 10829 0 0 26858 22826 2689 1343 131594 97756 16108 17730 0 57 57 0 0 1016 1016 5259 5259 Program events 156576 156420 156 Raising Awareness 126994 125605 1389 Printing and Publications 69562 67908 1654 Licenses & Fees 18940 6980 2944 9016 17613 5283 11974 356 1448127 1269775 114859 63493 364140 759320 0 1726115 1088000 0 0 0 0 0 5305 1726 2783 3579 0 0 0 0 5200 366923 3582214 5720 31226 5720 31226 X 361203 52581 3498407 361203 3550988 366923 3582214 X 1651751 1538034 X false true X true false X 581875 765111 2008384 3355370 0 0 581875 765111 2008384 3355370 3136322 219048 0 0 966 1222 1091494 1093682 4449052 X 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 5305 1726 3579 3579 3099878 3099878 3099878 1448127 1448127 1448127 Form 990, Part III, Line 4d: Other Program Services Description OTHER PROGRAM SERVICES 4: Global Network The FH Foundation already has a global impact, as our work has garnered attention from key opinion leaders in the realms of cardiology, lipidology and genetics, as well with international scientific and professional organizations. With a Scientific Advisory Board comprised of the top national FH experts, combined with our current, global strategic stakeholder relationships, we are uniquely positioned to be a nexus for both emerging and already established FH advocacy groups. The goal is to collaborate with other patient-centric FH Organizations (Global Affiliates) that share our mission. OTHER PROGRAM SERVICES 5: See FH (Outreach) Support, Educate, Empower (SEE) FH program was established to address the shortcomings and lack of awareness in the general public and the medical community about FH inheritability and diagnosis standards. This program aims to raise awareness and increase knowledge of FH in the general population and among health care providers. OTHER PROGRAM SERVICES 6: Summit The FH Global Summit is an annual event solely dedicated to the science and treatment of FH. It is a global gathering of medical experts, patient advocacy organizations, health care providers, and individuals with FH. The two-day event features compelling presentations that provide a platform to share insights and practices for improved awareness, diagnosis and treatment of FH. Form 990, Part VI, Line 11b: Form 990 Review Process Document e-mailed to each member and reviewed via electronic media. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts All expenses and contracts are reviewed an approved by the board. Any conflicts are discussed prior to approval. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management CEO salary is reviewed on an annual basis by the Board of Directors and then approved by the Executive Committee. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available All documents are available to the public upon request. Change in Accounting Method The Organization has changed its accounting method to accrual as of 2014 to be consistent with financial reporting basis as well as in compliance with Accounting Standards Board Statement 116. Prior period adjustments have been made to record beginning of year accrual amounts. This automatic change does not require the filing of Form 3115. Part XI - Reconciliation of Net Assets, Line 8 The organization reported a prior period adjustment to record beginning of year accrual amounts. The organization changed from the cash to accrual method of accounting to comply with Accounting Standards Board Statement 116 and reconcile with the audited financial statements.