2015-01-16T05:04:44-08:00 2014-06-30 WOLFE AND FIEDLER PA 634 Frederick Road Catonsville MD 212284625 990 2013-07-01 521704978 Foundation For PSP CBD and Related Brain Diseases FOUN 4107857004 30 East Padonia Road Timonium MD 21093 GEORGE JANKIEWICZ Treasurer 2015-01-16 true John R Fiedler P00147612 4107470789 2013 2016-03-07 17:11:31Z 3319294 false false X WWW.CUREPSP.ORG X 1990 MD INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. 18 18 9 140 0 1583318 3173974 0 8418 10945 245181 117617 1836917 3302536 991000 1996786 0 636833 662807 0 257593 519511 505685 2147344 3165278 -310427 137258 2230181 3282151 488723 1368256 1741458 1913895 INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. false false 2246935 1996786 GOALS OF THE RESEARCH PROGRAM: CUREPSP ADVANCES THE UNDERSTANDING OF PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CORTICOBASAL DEGENERATION (CBD) AND CLOSELY RELATED BRAIN DISEASES BY FUNDING RESEARCH FOCUSING ON: A) IDENTIFYING THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, B) DEVELOPING EARLY STAGE DIAGNOSTIC TESTS, AND D) DEVELOPING TREATMENTS OR INTERVENTIONS TO AMELIORATE SYMPTOMS AND TO PREVENT, SLOW, HALT OR REVERSE DISEASE PROGRESSION. 369558 Goals of Programs and Education: 1. CurePSP serves the needs of patients and caregivers managing with PSP, CBD, and other atypical Parkinsonian disorders in order to maintain wellbeing and quality of life; serves as the core and link to a network of support, ensuring accessibility of information, education and counsel for each patient and caregiver confronted by PSP and CBD; provides support services through patient/caregiver educational resources, support networks, volunteer development, professional collaborations, on-line resources, webinars, social media, national conferences, and international leadership. 2. CurePSP provides scientific and clinical resources regarding the specific nature of the PSP, CBD, and other atypical Parkinsonian disorders-including their diagnoses, symptoms, and treatments-to neurologists, physical therapists, occupational therapists, speech-language pathologists and nurses. 3. CurePSP serves as a unified voice and advocate on various public policy issues for individuals affected with PSP, CBD and other atypical Parkinsonian disorders. 143050 Goals of the Communications and Public Awareness Program: CurePSP expands the general public's awareness of PSP, CBD, and related brain diseases through use of various print and web-based media, providing education and general information. CurePSP educates the public and governmental leaders about research and an improved quality of life for people living with PSP, CBD and other atypical Parkinsonian disorders. 2759543 true true false false false false false false false true true false false false false false true false false false false true false false true false false true false false false false false false false false false false false false true false false false false false false false false false false true 0 0 false 9 true false false false false false false false false 0 false false false false false false false false false false X 18 18 false true false false false false false true true false false true true true true true true true true false X X GEORGE JANKIEWICZ 4107857004 30 East Padonia Road Timonium MD 21093 BURTON BENJAMIN Director 2.00 0.00 X 0 0 0 DAN JOHNSON Director 4.00 0.00 X 0 0 0 ILEEN WATSON Director 2.00 0.00 X 0 0 0 YVETTE BORDELON Director 2.00 0.00 X 0 0 0 HEATHER CIANCI Director 2.00 0.00 X 0 0 0 LAWRENCE GOLBE Director 4.00 0.00 X 0 0 0 ADAM MURPHY Director 2.00 0.00 X 0 0 0 AMY BRANCH Director 2.00 0.00 X 0 0 0 BRENDAN DIXON Director 2.00 0.00 X 0 0 0 STEPHEN GOLDMAN Director 2.00 0.00 X 0 0 0 JOHN PORTER Director 2.00 0.00 X 0 0 0 JEFFREY FRIEDMAN Director 2.00 0.00 X 0 0 0 JIM MCCLELLAN Director 2.00 0.00 X 0 0 0 JUSTIN SHEA Director 2.00 0.00 X 0 0 0 RICHARD ZYNE President & CEO 40.00 0.00 X 119498 0 0 EVERETT COOK Vice President 4.00 0.00 X 0 0 0 JOHN BURHOE Chairman 4.00 0.00 X 0 0 0 GEORGE JANKIEWICZ Treasurer 2.00 0.00 X 0 0 0 WILLIAM MCFARLAND Secretary 4.00 0.00 X 0 0 0 119498 1 false false false 0 58147 3115827 3173974 0 10945 10945 0 0 0 0 134375 58147 16758 117617 117617 0 0 0 3302536 128562 1633000 1633000 0 363786 363786 0 119498 82471 15513 21514 0 445591 307521 57846 80224 9948 6830 1307 1811 40686 27935 5346 7405 47084 32332 6188 8564 0 2888 2310 145 433 21972 21972 0 0 0 0 16004 16004 5300 4315 246 739 30610 22177 755 7678 0 67104 53683 3355 10066 0 0 67163 67148 15 0 0 5688 4606 514 568 7444 7444 Postage and Shipping 133230 38364 974 93892 BANK AND PAYROLL FEES 23566 10697 296 12573 MEETINGS/BOARD EXPENSES 20046 20046 Printing and Publications 18450 17718 183 549 86220 68646 6012 11562 3165278 2759543 148142 257593 6772 1398 1798118 2437432 14850 310485 6409 83432 0 0 0 0 26636 38557 234364 210911 22169 23453 351244 383411 0 0 0 3983 3983 2230181 3282151 76403 91862 412320 1276394 488723 1368256 X 795012 1220901 595277 309583 351169 383411 1741458 1913895 2230181 3282151 137258 35179 X false true X true false X 1407590 1213491 2265656 1583318 3115827 9585882 16732 11830 142536 141364 210083 522545 0 0 0 1424322 1225321 2408192 1724682 3325910 10108427 16750 30422 30500 167351 250000 495023 0 16750 30422 30500 167351 250000 495023 9613404 27466 15453 11443 8418 10945 73725 0 27466 15453 11443 8418 10945 73725 0 4973 159071 1529 125000 290573 1456761 1399845 2421164 1858100 3336855 10472725 0.91790 0.67640 0.00700 0.01020 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 351169 35179 2937 383411 325369 29537 3737 351169 341164 -12480 3315 325369 285520 55644 341164 29241 292058 292058 false false false 234364 210911 23453 23453 3337715 35179 35179 3302536 3302536 3165278 3165278 3165278 Part V, Line 4: Intended uses of the endowment fund. INCOME IS USED TO SUPPORT PSP RESEARCH BY STUDENTS true ENGLAND RESEARCH 75049 CHECK GERMANY RESEARCH 25000 CHECK GERMANY RESEARCH 89085 CHECK SPAIN RESEARCH 75000 CHECK SWITZERLAND RESEARCH 99652 CHECK 5 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US INVESTIGATORS ARE REQUIRED TO PROVIDE TWO PROGRESS REPORTS DURING THE TERM OF THE GRANT. THE PROGRESS REPORT IS SENT FOR REVIEW AND APPROVAL TO THE SCIENTIFIC ADVISORY BOARD AND PAYMENT MAY BE RELEASED ONLY AFTER APPROVAL HAS BEEN GIVEN. IF PROGRESS REPORTS ARE NOT DETERMINED TO BE SATISFACTORY, PAYMENT MAY BE WITHHELD UNTIL THE INVESTIGATOR CAN PROVIDE A SATISFACTORY REPORT. X false MARCO ISLE WALK 25269 20000 5269 4143 FEDOR EVENT 14529 5000 9529 7 62677 33147 29530 6791 3052 102475 58147 44328 6791 7195 13986 30342 false BIRDSALL MEDICAL CLINIC 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 66000 0 BRAIN BANK BRIGHAM & WOMENS HOSPITAL 75 FRANCIS STREET BOSTON MA 02115 042312909 75000 0 INVESTIGATOR INITIATED RESEARCH COLOMBIA UNIVERSITY 630 WEST 168TH STREET NEW YORK NY 10032 135598093 100000 0 INVESTIGATOR INITIATED RESEARCH MAYO CLINIC 200 FIRST STREET ROCHESTER MN 55905 416011702 25000 0 MSA RESEARCH UNIVERSITY OF CA SD 9500 GILMAN DRIVE LAJOLLA CA 92093 956006144 100000 0 INVESTIGATOR INITIATED RESEARCH UNIVERSITY OF CA SD 9500 GILMAN DRIVE LAJOLLA CA 92093 956006144 267000 0 CBD RESEARCH UNIVERSITY OF CA SF 1855 FOLSOM STREET SAN FRANCISCO CA 94143 946036493 100000 0 INVESTIGATOR INITIATED RESEARCH UNIVERSITY OF CALIFORNIA 3333 CALIFORNIA STREET SAN FRANCISCO CA 94143 946036493 100000 0 TRANSGENIC RATS MUTANT HUMAN TAU UNIVERSITY OF PA 3620 HAMILTON WALK PHILADELPHIA PA 19104 231352685 100000 0 GENE ANALYSIS FOLLOW UP AND REPLICA UNIVERSITY OF PENN 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 600000 0 BIOMARKERS IN NEURODEGENERATIVE UNIVERSITY OF SOUTH FLORIDA 4202 E FOWLER AVENUE TAMPA FL 33620 593102112 100000 0 INVESTIGATOR INITIATED RESEARCH 11 0 WOLFE & FIEDLER PA CPA 31000 ACCOUNTING AND CONSULTING false Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company ORGANIZATION CONTRACTED CPA TO SERVE AS OUTSOURCE CFO Form 990, Part VI, Line 11b: Form 990 Review Process 990 IS PROVIDED TO BOARD FOR REVIEW AND COMMENTS BEFORE FILING Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts EXECUTIVE DIRECTOR REVIEWS FORMS Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management BOARD DISCUSSED PERFORMANCE AND USES SALARY DATA TO DETERMINE. PERIODICALLY THE BOARD ALSO OBTAINS AN INDEPENDENT COMPENSATION STUDY TO DETERMINE SALARY LEVELS. Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees PRESIDENT-CEO PERFORMS ANNUAL EMPLOYEE REVIEWS AND APPROVES INCREASES WITHIN THE SCOPE OF AN ANNUAL BUDGET. THE ORGANIZATION PERIODICALLY OBTAINS SALARY REVIEWS FROM AN OUTSIDE CONSULTANT TO VERIFY THAT THE SALARIES ARE WITHIN A COMPETITIVE RANGE. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available UPON REQUEST