2015-09-15T11:26:31-07:00 2014-12-31 NAWROCKI SMITH LLP 290 BROADHOLLOW RD STE 115E MELVILLE NY 117474822 990EZ 2014-01-01 161569293 CARDIO-FACIO-CUTANEOUS INTERNATIONAL CARD 6077729666 183 BROWN ROAD VESTAL NY 13850 Kayla Stein Treasurer 2015-09-15 true Michael E Nawrocki P00165703 6317569500 2014 2016-02-25 16:41:14Z X X www.cfcsyndrome.org X X 87289 X 58434 1450 0 27405 0 27405 0 87289 24222 2488 3270 17421 47401 39888 420094 459982 X 419992 463134 430 214 420422 463348 328 3366 420094 459982 To improve the quality of life through family support, research, and education. We are a rare disease advocacy group that provides education and literature to families and agencies that assist children born with the rare Cardio-Facio-Cutaneous syndrome. We hosts a website, biennial International family conferences, and a private family computer listserv and closed Facebook page. We support research projects on CFC syndrome. Family Support and Education This past year we have produced and mailed out the new Guide to CFC Syndrome and brochure for parents, providers, and educators in the USA. The foreign families were provided a PDF copy via our website. We mailed out three copies of our newsletter and rebranded our look with a professional graphic designer. 44913 Research We financially supported The Million Dollar Bike Ride. This fundraising bike ride is hosted through the Center for Orphan Disease Research and Therapy (CODRT) at University of Pennsylvania. Your organization has to be chosen to participate and raise money that CODRT will then match for research projects. 44913 Brenda Conger President 30.00 0 Judy Doyle List Serv Lias 1.00 0 Luba Djurdjnovic Board Member 1.00 0 Shelley Greenhaw Board Member 2.00 0 Jenny Iacobelli board member 2.00 0 Pilar Magoulas Secretary 1.00 0 Molly Santa Cruz Vice President 1.00 0 Kayla Stein Treasurer 30.00 0 X false false false false false false false false 0 0 false false NY Kayla Stein 7053 Deerwood Trail West Bloomfield MI 483232084 2486818212 false false false false false false false false false false false false false NONE NONE true X 70058 81632 76940 33580 58434 320644 26867 32993 59860 0 0 0 70058 108499 76940 66573 58434 380504 0 0 380504 5777 4453 4300 2557 1450 18537 0 5777 4453 4300 2557 1450 18537 0 0 75835 112952 81240 69130 59884 399041 0.95350 0.94550 0.04650 0.05450 X General Donations 27405 27405 27405 27405 27405 Other Expenses.1002 Office Expenses $1267 Other Expenses.1003 Information Technology $668 Other Expenses.1005 Travel $5642 Other Expenses.1007 Conferences, Conventions, and Meetings $1502 Other Expenses.1008 Interest $15 Other Expenses.1009 Depreciation $216 Other Expenses.1012 Insurance $672 Other Expenses.2 TELEPHONE $2554 Other Expenses.3 Charitable Contributions $2294 Other Expenses.4 Processing Fees $866 Other Expenses.5 PROMOTIONAL ITEMS $575 Other Expenses.6 Paychex Fee $495 Other Expenses.7 DUES AND MEMBERSHIP $346 Other Expenses.9 Bank and other service charges $199 Other Expenses.10 TAXES $110 Other Assets.1003 Machinery and Equipment - Beginning $430 Machinery and Equipment - Ending $214 Total Liabilities.1001 Accounts Payable and Accrued Expenses - Beginning $328 Accounts Payable and Accrued Expenses - Ending $3366