2015-06-19T12:11:02-05:00 2015-01-31 953001179 WINDES INC PO BOX 87 LONG BEACH CA 908010087 990 2014-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1275 K STREET NW NO 250 WASHINGTON DC 20005 GREGORY MITCHELL CFO 2024078580 2015-06-19 1 DONITA M JOSEPH P00286656 5624351191 2015-06-16 2014 2016-03-07 17:11:31Z THE ALS ASSOCIATION BARBARA J NEWHOUSE 1275 K STREET NW NO 250 WASHINGTON DC 20005 140186210 0 4119 X WWW.ALSA.ORG X 1985 DE TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH. TO EMPOWER PEOPLE WITH THE DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 24 24 69 25 0 0 23517487 137917563 56675 162174 440600 269009 15925 -8187 24030687 138340559 7086727 22560285 0 0 5843475 6041807 467822 398696 6023408 7766341 10121584 21164365 39122372 2866322 99218187 24512086 130622674 4111696 10862558 20400390 119760116 X LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 13610936 12918711 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2015, RESEARCH GRANTS WERE $12,918,711, WHICH ALMOST DOUBLED THE AMOUNT OF RESEARCH GRANT FUNDING FROM THE PRIOR YEAR. THE SIGNIFICANT INCREASE WAS MADE POSSIBLE BY THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. BECAUSE OF THE SUCCESS OF THE IBC, THE ASSOCIATION PLANS ON FURTHER INCREASING RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH. 14208270 9641574 64311 PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE (1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; (2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; (3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH 'OTHER THAN' CERTIFIED CENTERS; (4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND (5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE' AND AVAILABLE RESOURCES.AS A RESULT OF THE SUCCESS OF IBC, THE ASSOCIATION WAS ABLE TO PROVIDE GRANTS OF APPROXIMATELY $8.5 MILLION TO ITS CHAPTER NETWORK TO HELP SUPPORT CHAPTER INITIATIVES FOR THE YEAR ENDING JANUARY 31, 2015. IN ADDITION, THE ASSOCIATION PROVIDED APPROXIMATELY $1.1 MILLION IN GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE. 3400573 97863 PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31,2015, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. THE ASSOCIATION ALSO WORKED WITH CONGRESS TO HELP ENSURE ACCESS TO SPEECH GENERATING DEVICES AND ADVANCE THE DEVELOPMENT OF NEW TREATMENTS FOR ALS BY WORKING TO PASS THE MODDERN CURES ACT. 31219779 1 0 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 78 0 1 69 1 0 0 0 0 0 1 1 0 0 0 1 0 X 24 24 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AK AR CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NV NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI NM X X GREGORY MITCHELL 2024078580 1275 K STREET NW SUITE 250 WASHINGTON DC 20005 WILLIAM THOET CHAIRMAN 5.00 X X 0 0 0 LAWRENCE R BARNETT ESQ VICE CHAIR 4.00 X X 0 0 0 WARREN NELSON TREASURER 4.00 X X 0 0 0 DOUGLAS BUTCHER SECRETARY 4.00 X X 0 0 0 PHYLLIS R BROURMAN ESQ TRUSTEE 2.00 X 0 0 0 CHRIS W BRUSSALIS TRUSTEE 3.00 X 0 0 0 MILLIE ARNOLD TRUSTEE 2.00 X 0 0 0 ANDREW T BROPHY TRUSTEE 3.00 X 0 0 0 DON CASEY TRUSTEE 2.00 X 0 0 0 KIM ANN MINK PHD TRUSTEE 2.00 X 0 0 0 ELLYN G PHILLIPS TRUSTEE 3.00 X 0 0 0 ALLAN J TOBIN TRUSTEE 2.00 X 0 0 0 WILLIAM D SOFFEL TRUSTEE 3.00 X 0 0 0 ANDREA PAULS BACKMAN TRUSTEE 2.00 X 0 0 0 STUART OBERMANN TRUSTEE 3.00 X 0 0 0 JOHN P KRAVE TRUSTEE 2.00 X 0 0 0 CHRISTI L KOLARCIK PHD TRUSTEE 2.00 X 0 0 0 LOU LIBBY MD TRUSTEE 2.00 X 0 0 0 JUDY PRATT DMD TRUSTEE 2.00 X 0 0 0 THOMAS D KETTLER TRUSTEE 2.00 X 0 0 0 GEORGE HARADA JR TRUSTEE 2.00 X 0 0 0 SUE GORMAN TRUSTEE 2.00 X 0 0 0 NANCY E FRATES TRUSTEE 2.00 X 0 0 0 MARTY HERBERT TRUSTEE 3.00 X 0 0 0 JANE H GILBERT PRESIDENT & CEO (THRU 07/01/2014) 40.00 X 208386 0 10842 BARBARA J NEWHOUSE PRES.& CEO (EFFECTIVE 06/02/2014) 40.00 X 166002 0 10429 DANIEL M REZNIKOV CFO (THRU 05/02/14) 40.00 X 97658 0 2724 GREGORY MITCHELL CFO (EFFECTIVE 09/29/14) 40.00 X 54189 0 1273 STEVE GIBSON CHIEF PUBLIC POLICY OFFICER 40.00 X 189051 0 16835 LANCE SLAUGHTER CHIEF CHAPT. RELATIONS OFFICER 40.00 X 171938 0 14993 KIMBERLY HARDING-MAGINNIS CHIEF CARE SERVICES OFFICER 40.00 X 163930 0 12708 CARRIE MUNK CHIEF COMM. & MKTING OFFICER 40.00 X 147166 0 5258 JOHN W APPLEGATE ASSOCIATE FINANCE OFFICER 40.00 X 135677 0 12621 MONICA SANTA CRUZ VP, TALENT MANAGEMENT & HR 40.00 X 113465 0 12413 MARY SUSAN BRUNEY VP, CHAPTER RELATIONS 40.00 X 117690 0 14492 BETTY YUAN-CARDINAL DIRECTOR, DIGITAL STRAT. & OPERATIONS 40.00 X 117461 0 6892 1682613 0 121480 16 0 1 0 NNE MARKETING 105 PAUL REVERE RD CONCORD MA 01742 MARKETING 361570 BRUIJN-YARD CONSULTANTS PO BOX 670236 CHUGIAK AK 99567 RESEARCH CONSULTANT 261458 2 227576 600749 273482 136815756 44258 137917563 CONFERENCE FEES 900099 97863 97863 CHAPTER SUBLEASE 900099 64311 64311 162174 221293 221293 1855837 1808121 47716 47716 47716 0 600749 37530 -37530 -37530 MISCELLANEOUS INCOME 900099 29343 29343 29343 138340559 162174 0 260822 21582577 21582577 977708 977708 1124232 811031 234949 78252 3990928 2531407 488104 971417 116534 73612 14998 27924 389763 245769 57733 86261 420350 273816 59506 87028 118981 2619 96480 19882 53540 53540 398696 398696 3826519 1929278 348665 1548576 333273 229990 2473 100810 398542 128019 64700 205823 72894 63395 9499 697102 454360 72053 170689 1482635 1218248 182669 81718 126990 87063 13901 26026 CREDIT CARD & DATA FEES 2100763 2100763 CHAPTER SUPPORT 448173 448173 TELECOMMUNICATIONS 172107 126796 13957 31354 BAD DEBT EXPENSE 163182 163182 126883 35918 2776 88189 39122372 31219779 1879185 6023408 X 1250986 150986 0 1100000 8998024 7497387 1427846 109295145 1541569 925274 262525 438608 1564449 1364707 235614 199742 7778069 8108414 4268439 4158104 24512086 130622674 2242302 2618660 1002005 7269898 867389 974000 4111696 10862558 X 8312123 81245556 11169117 37551888 919150 962672 20400390 119760116 24512086 130622674 X 99218187 180375 -38836 X 0 1 X 1 0 X 17744381 19126742 19357009 23550946 137959833 217738911 17744381 19126742 19357009 23550946 137959833 217738911 1377767 216361144 55620 119967 174222 179732 221293 750834 31744 14736 30161 15926 29343 121910 218611655 343904 0.98970 0.94910 X 53629 369151 422780 36834308 37257088 1000000 250000 0 0 869634 879798 932385 1000000 3681817 5522726 374683 285767 440857 422780 1524087 217409 219950 233096 250000 920455 1380683 32593 26625 43750 53629 156597 FORM 990, SCHEDULE C, PART II-B THE PUBLIC POLICY DEPARTMENT IS THE ALS COMMUNITY'S VOICE IN OUR NATION'S CAPITAL, ADVOCATING FOR ALS RESEARCH FUNDING AND OTHER PUBLIC POLICIES THAT BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES. THE DEPARTMENT COORDINATES THE ANNUAL NATIONAL ALS ADVOCACY DAY AND PUBLIC POLICY CONFERENCE, WHICH IS THE SINGLE LARGEST GATHERING OF THE ENTIRE ALS COMMUNITY AND IS OUR OPPORTUNITY TO JOIN TOGETHER, EDUCATE CONGRESS ABOUT ALS AND URGE THEM TO JOIN THE FIGHT AGAINST THIS HORRIFIC DISEASE. THE DEPARTMENT ALSO MANAGES THE ALS ASSOCIATION'S FEDERAL ADVOCACY PROGRAM, WORKING DIRECTLY WITH CONGRESS, THE WHITE HOUSE, FEDERAL AGENCIES AND OTHER NATIONAL ORGANIZATIONS TO ADVANCE THE ASSOCIATION'S MISSION. THE DEPARTMENT PROVIDES TRAINING AND SUPPORT TO THE ALS ASSOCIATION'S CHAPTERS AND ADVOCATES FROM ACROSS THE COUNTRY AND EMPOWERS THEM WITH THE TOOLS THEY NEED TO PLAY AN ACTIVE ROLE IN THE FIGHT FOR A TREATMENT AND CURE. THE ASSOCIATION BELIEVES THIS KIND OF ACTIVITY, WHICH IT INTENDS TO CONTINUE AS ITS ADVOCACY PROGRAM, IS CRITICAL TO THE ACHIEVEMENT OF ITS MISSION, AND THEREFORE, IS IN DIRECT RELATION TO ITS TAX EXEMPT PURPOSE. 5990000 28557 28557 5990000 5990000 21965 21965 5990000 240000 13666 13666 240000 240000 8091 8091 240000 240000 26305 26305 240000 0.00000 0.04000 0.96000 0 0 230648 189944 40704 1333801 1174763 159038 199742 ANNUITY PAYMENT LIABILITY 974000 974000 X 138553385 180375 79800 -38836 221339 138332046 8513 8513 138340559 39193659 79800 79800 39113859 8513 8513 39122372 PART V, LINE 4: IN DECEMBER 2013, THE ASSOCIATION RECEIVED A BEQUEST TOTALING $5,750,000, ESTABLISHING A TERM ENDOWMENT ACCORDING TO DESIGNATIONS MADE BY THE DONOR. THE PROCEEDS OF THIS BEQUEST ARE TO BE MAINTAINED BY THE ASSOCIATION IN AN ENDOWMENT FUND FOR A PERIOD OF TEN YEARS. EARNINGS FROM THE FUND ARE RESTRICTED TO SUPPORT RESEARCH AND MAY BE SPENT ON A CURRENT BASIS. UPON EXPIRATION OF THE ENDOWMENT TERM, THE CORPUS OF THE FUND MUST ALSO BE USED TO SUPPORT RESEARCH. THE ASSOCIATION ANTICIPATES THAT IT WILL RECEIVE ADDITIONAL CONTRIBUTIONS FROM THE DONOR'S ESTATE WHICH ARE NOT CURRENTLY ABLE TO BE ESTIMATED. THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES. PART X, LINE 2: THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN, AND THEREFORE DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 43,522. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -82,358. PART XI, LINE 4B - OTHER ADJUSTMENTS: CAR DONATION PROGRAM 8,513. PART XII, LINE 4B - OTHER ADJUSTMENTS: CAR DONATION PROGRAM 8,513. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - 0 0 RESEARCH GRANTS 604020 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 RESEARCH GRANTS 273688 MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT, 0 0 RESEARCH GRANTS 60000 EAST ASIA AND THE PACIFIC 0 0 RESEARCH GRANTS 40000 0 0 0 0 0 0 977708 0 977708 EAST ASIA AND THE PACIFIC TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 339061 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 214959 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 50000 CHECK & WIRE TRANSFER MIDDLE EAST AND NORTH AFRICA TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 60000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 248688 CHECK & WIRE TRANSFER NORTH AMERICA POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 25000 CHECK & WIRE TRANSFER 18 0 0 0 0 0 0 PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO U.S. INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT. PART I, LINE 3: ALL FOREIGN APPLICANTS, SIMILAR TO U.S. INVESTIGATORS, PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. X X X X X X X 1 NNE MARKETING LLC 754 MASSACHUSETTS AVENUE ARLINGTON MA 02476 FUNDRAISING COUNSEL 0 3710686 361570 3349116 AMERICA'S CAR DONATION CENTER 3755 OMEC CR 4 RANCHO CORDOVA CA 95742 CAR DONATIONS 1 34259 8513 25746 STRATEGIC FUNDRAISING INC 7800 3RD STREETN SUITE 900 ST PAUL MN 55128 MANAGES TELEMARKETING SOLICITATIONS 0 14961 28613 -13652 3759906 398696 3361210 AL AK AR CA CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NM NY ND OH OK OR PA RI SC TN UT VA WA WV WI NV ALSA WALK - BANGOR, ME 79602 79602 778 450 2226 ALSA WALK - BURLINGTON, VT 74768 74768 778 560 3120 5 446379 446379 2406 3081 750 23381 600749 600749 3962 4091 750 28727 37530 -37530 SCHEDULE G, PART II, LINE 11 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. 1 AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE SOUTH MINNEAPOLIS MN 55401 411717098 501(C)(3) 18852 TREAT ALS CLINICAL SCIENTIST BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARL STREET SUITE 6401 MADISON WI 53715 369006492 501(C)(3) 179991 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRANDEIS UNIVERSITY MS 110 415 SOUTH STREET WALTHAM MA 02454 041103552 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRIGHAM AND WOMEN'S HOSPITAL RESEARCH P O BOX 3887 BOSTON MA 022413887 042312909 501(C)(3) 140000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRIGHAM AND WOMEN'S HOSPITAL RESEARCH 75 FRANCIS STREET BOSTON MA 02115 042312909 501(C)(3) 121751 TREAT ALS BROWN UNIVERSITY PO BOX 1929 PROVIDENCE RI 02912 050258809 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BROWN UNIVERSITY PO BOX 1911 PROVIDENCE RI 02912 050258809 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CEDARS SINAI 8700 BEVERLY BLVD 6500 WIL SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CEDARS-SINAI MEDICAL CENTER 6500 WILSHIRE BLVD SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)(3) 526000 TREAT ALS CEDARS-SINAI MEDICAL CENTER 6500 WILSHIRE BLVD SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)(3) 534000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVE ML 4900 CINCINNATI OH 452293039 310833936 501(C)(3) 10000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CLEVELAND CLINIC FOUNDATION P O BOX 931531 CLEVELAND OH 44193 340714585 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS DIGNITY HEALTH ST JOSEPH'S HOSPITAL & MEDICAL CENTER DIGNITY HEALTH ST JOSEPHS HOSPITAL AZ FILE 57431 LOS ANGELES CA 90074 860096787 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS EMORY UNIVERSITY 1599 CLIFTON RD 4TH FLOOR ATLANTA GA 303224250 580566256 501(C)(3) 18091 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS EMORY UNIVERSITY 101 WOODRUFF CIRCLE ATLANTA GA 30322 580566256 501(C)(3) 149486 TREAT ALS EMORY UNIVERSITY PO BOX 935084 ATLANTIS GA 31193 580566256 501(C)(3) 158729 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE CHICAGO IL 606930001 520595110 501(C)(3) 50000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 11476 520595110 501(C)(3) 292540 TREAT ALS JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE CHICAGO IL 606930001 520595110 501(C)(3) 25000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE CHICAGO IL 606930001 520595110 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY AT EASTERN 725 N WOLFE STREET WBSB 1003 BALTIMORE MD 21205 520595110 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 CMM-EAST ROOM 3041 LA JOLLA CA 920930660 237121131 501(C)(3) 65500 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH P O BOX 12385 LA JOLLA CA 92039 237121131 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 CMM- EAST ROOM 3041 LA JOLLA CA 92093 237121131 501(C)(3) 37500 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 CMM- EAST ROOM 3041 LA JOLLA CA 92093 237121131 501(C)(3) 534000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS MARY HITCHCOCK MEMORIAL HOSPITAL ONE MEDIVAL CENTER DRIVE LEBANON NH 03756 020222139 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVE STE 300 BOSTON MA 02199 042697983 501(C)(3) 150000 TREAT ALS MASSACHUSETTS GENERAL HOSPITAL P O BOX 414876 BOSTON MA 02241 042697983 501(C)(3) 115000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 02241 042697983 501(C)(3) 638192 TREAT ALS MASSACHUSETTS GENERAL HOSPITAL - RESEARCH PO BOX 414876 BOSTON MA 022414876 042697983 501(C)(3) 50000 CLINCIAL MANAGEMENT MAYO CLINIC JACKSONVILLE BIRDSALL 102 4500 SAN PABLO RD JACKSONVILLE FL 32224 593337028 501(C)(3) 130000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS MAYO CLINIC JACKSONVILLE BIRDSALL 102 4500 SAN PABLO RD JACKSONVILLE FL 32224 593337028 501(C)(3) 75000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS MAYO CLINIC JACKSONVILLE BIRDSALL 102 4500 SAN PABLO RD JACKSONVILLE FL 32224 593337028 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MAYO CLINIC JACKSONVILLE 200 FIRST STREET SW PLUMMER 5 ROCHESTER MN 559034008 593337028 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS 9000 ROCKVILLE PIKE BETHESDA MD 20892 520858115 501(C)(3) 125000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS NEW YORK GENOME CENTER 101 AVENUE OF THE AMERICAS NEW YORK NY 10013 800631734 501(C)(3) 2500000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS NORTHWESTERN UNIVERSITY 633 CLARK ROOM G-547 EVANSTON IL 60208 362167817 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS NORTHWESTERN UNIVERSITY 1801 MAPLE AVE 2ND FLOOR SUITE 2410 2410 EVANSTON IL 60201 362167817 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS NYU SCHOOL OF MEDICINE ONE PARK AVENUE 6TH FLOOR NEW YORK NY 10016 135562308 501(C)(3) 113808 TREAT ALS OHIO STATE UNIVERSITY RESEARCH FOUNDATION 1960 KENNY ROAD RESEARCH FOUNDATION 4TH FLOOR COLUMBUS OH 432101063 316401599 501(C)(3) 65000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS OREGON HEALTH AND SCIENCE UNIVERSITY 0690 SW BANCROFT L106SPA PORTLAND OR 97239 931176109 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS PRESIDENT AND FELLOWS OF HARVARD COLLEGE HARVARD UNIV OFFICE OF SPNSRD PRG HOLYOKE CENTER SUITE 600 CAMBRIDGE MA 02138 042103580 501(C)(3) 79922 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 415649 BOSTON MA 022415649 042103580 501(C)(3) 29990 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA 11000 KINROSS AVE STE 211 LOS ANGELES CA 90095 946036493 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA 11000 KINROSS AVE STE 211 LOS ANGELES CA 90095 946036493 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA 9500 GILMAN DRIVE MC 0934 LA JOLLA CA 92093 946036493 501(C)(3) 160000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 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501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS ALABAMA CHAPTER PO BOX 2888 HUNTSVILLE AL 35804 202218566 501(C)(3) 127866 CHAPTER SUPPORT ARKANSAS CIO 1200 W WALNUT ST STE 2309 ROGERS AR 72756 204863643 501(C)(3) 80429 CHAPTER SUPPORT ARIZONA CHAPTER 360 E CORONADO STE 140 PHOENIX AZ 85004 860727136 501(C)(3) 171477 CHAPTER SUPPORT ALS ASSOCIATION GOLDEN WEST CHAPTER 27001 AGOURA RD STE 250 AGOURA HILLS CA 91301 954163338 501(C)(3) 911668 CHAPTER SUPPORT GREATER SACRAMENTO CHAPTER 2717 COTTAGE WAY STE 17 SACRAMENTO CA 95825 680159292 501(C)(3) 72216 CHAPTER SUPPORT GREATER SAN DIEGO CHAPTER 7920 SILVERTON AVE STE E SAN DIEGO CA 92126 043651272 501(C)(3) 77983 CHAPTER SUPPORT ROCKY MOUNTAIN CHAPTER 10855 DOVER ST STE 500 WESTMINSTER CO 80021 841337868 501(C)(3) 180488 CHAPTER SUPPORT CONNECTICUT CHAPTER 4 OXFORD RD UNIT D4 MILFORD CT 06460 043417472 501(C)(3) 152812 CHAPTER SUPPORT ALS ASSOCIATION FLORIDA CHAPTER INC 3242 PARKSIDE CENTER CIR TAMPA FL 33619 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700 NE MULTNOMAH ST STE 1180 PORTLAND OR 97232 680516066 501(C)(3) 276527 CHAPTER SUPPORT GREATER PHILADELPHIA CHAPTER 321 NORRISTOWN RD STE 260 AMBLER PA 19002 232387205 501(C)(3) 630073 CHAPTER SUPPORT WESTERN PENNSYLVANIA CHAPTER 416 LINCOLN AVE PITTSBURGH PA 15209 237123851 501(C)(3) 205246 CHAPTER SUPPORT RHODE ISLAND CHAPTER 2915 POST RD WARWICK RI 02886 050460482 501(C)(3) 72946 CHAPTER SUPPORT SOUTH CAROLINA CHAPTER 7499 PARK LANE RD STE 144 COLUMBIA SC 29223 203780277 501(C)(3) 54109 CHAPTER SUPPORT TENNESSEE CHAPTER PO BOX 40244 NASHVILLE TN 37204 943124723 501(C)(3) 185055 CHAPTER SUPPORT ALS ASSOCIATION TEXAS CHAPTER 2251 CHENAULT CARROLLTON TX 75006 742678974 501(C)(3) 362768 CHAPTER SUPPORT EVERGREEN CHAPTER 19115 68TH AVE S H-105 KENT WA 98032 911950869 501(C)(3) 254046 CHAPTER SUPPORT ALS CENTER 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALLEGHANY HEALTH NETWORK 30 ISABELLA STREET SUITE 300 PITTSBURGH PA 15212 251320493 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BANNER GOOD SAMARITAN MEDICAL CENTER 1012 E WILLETTA STREET PHOENIX AZ 85006 410726167 501(C)(3) -12500 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BAYLOR COLLEGE OF MEDICINE 6550 FANNIN SUITE 1801 SMITH TOWER HOUSTON TX 77030 741613878 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BETH ISRAEL MEDICAL CENTER ALS CLINIC 10 UNION SQUARE EAST NEW YORK NY 10003 042103881 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CEDARS-SINAI MEDICAL CENTER 127 S SAN VICENTE BLVD 6TH FLOOR LOS ANGELES CA 90048 951644600 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT COMMUNITY FOUNDATION OF HUNTSVILLEMADISON COUNTY POBOX 332 HUNTSVILLE AL 35804 263750673 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CURT AND SHONDA SCHILLING ALS CLINIC 41 MALL ROAD BURLINGTON MA 01805 237121131 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)(3) 36800 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT DUKE UNIVERSITY MEDICAL CENTER DUMC BOX 3333 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94115 262047755 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GEORGE WASHINGTON UNIVERSITY 2150 PENNSYLVANIA AVE NW 7-401 WASHINGTON DC 20037 542126575 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GEORGIA HEALTH SCIENCES FOUNDATION INC 1120 15TH STREET BP 4390 AUGUSTA GA 309120004 352310573 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HARRY J HOENSLAAR ALS CLINIC 2799 WEST GRAND AVE K-11 NEUROLOGY DETROIT MI 48202 381357020 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HENNEPIN COUNTY MEDICAL CENTER (HCMC) 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MD 55404 381357020 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT INDIANA UNIVERSITY ALS CENTER 1050 WISHARD BLVD REGENSTRIEF 6TH FLOOR INDIANAPOLIS IN 46202 520595110 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO CLINIC - ALS CLINIC 13400 EAST SHEA BLVD SCOTTSDALE AZ 852595404 593337028 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD S CANNADAY 2E JACKSONVILLE FL 322241865 593337028 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO MEDICAL CLINIC 200 FIRST STREET SW ROCHESTER MD 55905 416011702 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT NEUROLOGY ASSOCIATES OF STONY BROOK 179 BELLE MEADE ROAD SUITE 3 EAST SETAUKET NY 11733 113243405 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PENN STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PHOENIX NEUROLOGICAL ASSOCIATES 5090 40TH STREET SUITE 250 PHOENIX AZ 85018 860217237 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PROVIDENCE ALS CENTER 5050 NE HOYT STE 315 PORTLAND OR 97213 931176109 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL & UMDNJ MEDICAL SCHO 97 PATERSON ST NEW BRUNSWICK NJ 08903 201285267 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT SOUTH TEXAS ALS CLINIC 8300 FLOYD CURL DRIVE MSC 7883 SAN ANTONIO TX 782293900 741586031 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ST LOUIS UNIVERSITY HOSPITAL 1438 SOUTH GRAND BLVD MONTELEONE HALL ST LOUIS MO 63104 430654872 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT SUNY RESEARCH FOUNDATION 750 E ADAMS ST SYRACUSE NY 13210 141368361 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE NEUROMUSCULAR ALS CLINIC 2150 CORBIN AVE NEW BRITAIN CT 06053 060546766 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF CALIFORNIA-DAVIS MULTIDISCIPLINARY ALS CLINIC 4860 Y STREET SACRAMENTO CA 95817 946036494 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF CALIFORNIA-SAN FRANCISCO 350 PARNASSUS AVENUE SUITE 500 SAN FRANCISCO CA 94117 946036493 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF CHICAGO MEDICINE 5841 S MARYLAND AVENUE MC 2030 CHICAGO IL 60637 363488183 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF KANSAS MEDICAL CENTER 3599 RAINBOW BLVD MAIL STOP 2012 KANSAS CITY KS 66160 480647721 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF KENTUCKYCARDINAL HILL ALSA CTR ALBERT CHANDLER MED CTR LEXINGTON KY 40536 616001218 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MARYLAND BALTIMORE PO BOX 41428 BALTIMORE MD 21203 520595110 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE 1120 NW 14TH STREET SUITE1311 MIAMI FL 33136 590624458 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MICHIGAN HEALTH SYSTEM 1500 E MEDICAL CENTER DR ANN ARBOR MI 481090316 386006309 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MINNESOTA ALS CLINIC 420 DELAWARE STREET SE MINNEAPOLIS MN 55455 416007513 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF NEBRASKA MEDICAL CENTER 987400 NEBRASKA MEDICAL CENTER OMAHA NE 681987400 470049123 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF NEW MEXICO-SCHOOL OF MEDICINE 2211 LOMAS NE - MSC 10 5620 ALBUQUERQUE NM 87131 856000642 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF VERMONT 89 BEAUMONT AVENUE BURLINGTON VT 05405 030179440 501(C)(3) 61800 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VIRGINIA MASON MEDICAL CENTER ALS CLINIC PO BOX 900 M/S X7 NEU SEATTLE WA 98111 910565539 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT WAKE FOREST BAPTIST MEDICAL CENTER MEDICAL CENTER BLVD 3RD FLOOR MEADS MEADS WINSTONSALEM NC 271571078 223849199 501(C)(3) 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT 159 PART I, LINE 2: ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. SCHEDULE I, PART III ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT. 1 X X X X X X 0 0 0 0 0 0 0 0 0 JANE H GILBERT PRESIDENT & CEO (THRU 07/01/2014) 198386 0 10000 0 0 0 5400 0 5442 0 219228 0 0 0 BARBARA J NEWHOUSE PRES.& CEO (EFFECTIVE 06/02/2014) 166002 0 0 0 0 0 4275 0 6154 0 176431 0 0 0 STEVE GIBSON CHIEF PUBLIC POLICY OFFICER 189051 0 0 0 0 0 5819 0 11016 0 205886 0 0 0 LANCE SLAUGHTER CHIEF CHAPT. RELATIONS OFFICER 171938 0 0 0 0 0 5321 0 9672 0 186931 0 0 0 KIMBERLY HARDING-MAGINNIS CHIEF CARE SERVICES OFFICER 163930 0 0 0 0 0 4933 0 7775 0 176638 0 0 0 CARRIE MUNK CHIEF COMM. & MKTING OFFICER 147166 0 0 0 0 0 4422 0 836 0 152424 0 0 0 PART I, LINE 3 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. X 49 34259 FMV X SEAT LIFTS 10 9999 FMV 0 1 1 PART I, COLUMN (B): THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTIONS. PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION B, LINE 11 THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990, PART XI, LINE 9: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 43,522. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -82,358. FORM 990, PART VIII, LINE 8C THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. CHARITABLE REMAINDER TRUST (1) CA T 0 LIVING TRUST (1) CA T 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0