2015-11-12T16:44:18-06:00 2015-06-30 930900579 MCDONALD JACOBS PC 520 SW YAMHILL ST STE 500 PORTLAND OR 97204 990 2014-07-01 930571472 NATIONAL PSORIASIS FOUNDATION NATI 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 RANDY BERANEK PRESIDENT/CEO 5032447404 2015-11-05 1 SANG AHN P00540880 5032270581 2014 2016-02-25 16:41:14Z RANDY BERANEK 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 13735453 0 X WWW.PSORIASIS.ORG X 1968 OR TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED. 13 13 70 6705 632576 -500 8404896 8705798 665631 732004 363271 644050 -208187 -222376 9225611 9859476 1806264 1899460 0 0 3969545 4587328 36501 35030 1323422 3280315 3037417 9092625 9559235 132986 300241 7766193 7578099 538338 694185 7227855 6883914 X THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE. 0 0 3359750 1899460 75957 RESEARCH AND PROFESSIONAL EDUCATIONDIRECTLY SUPPORTING SIXTEEN PROMISING EARLY-STAGE RESEARCH AND EMERGING RESEARCHERS THROUGH OUR DISCOVERY AND TRANSLATIONAL GRANTS. AWARDED ELEVEN MEDICAL RESEARCH FELLOWSHIPS DESIGNED TO INCREASE THE NUMBER OF PHYSICIAN RESEARCHERS INVESTIGATING PSORIATIC DISEASES, LEADING TO MORE DISCOVERIES, BETTER TREATMENTS AND ULTIMATELY, A CURE. MORE THAN $13 MILLION HAS BEEN COMMITTED TO RESEARCH SINCE OUR INCEPTION.HOSTED PROFESSIONAL EDUCATION FOR MEDICAL PROFESSIONALS AND DERMATOLOGY RESIDENTS TO LEARN ABOUT THE LATEST ADVANCEMENTS IN TREATMENTS AND THE MANAGEMENT OF PSORIASIS.PROMOTED PATIENT INVOLVEMENT IN RESEARCH STUDIES AND CLINICAL TRIALS.CONTINUE TO MAINTAIN THE NATIONAL PSORIASIS VICTOR HENSCHEL BIOBANK, AIDING IN THE SEARCH FOR SPECIFIC GENES THAT CAUSE PSORIASIS AND PSORIATIC ARTHRITIS.PUBLISHED PSORIASIS FORUM, A PEER-REVIEWED MEDICAL JOURNAL TO PROVIDE RHEUMATOLOGISTS, DERMATOLOGISTS AND OTHER MEDICAL PROFESSIONALS WITH THE LATEST RESEARCH AND TREATMENT INFORMATION.LEAD DISCUSSIONS WITH HEALTH POLICY AND REGULATORY GROUPS TO IMPROVE HEALTH OUTCOMES MEASURES AND REMOVE BARRIERS TO CARE. 1067929 ADVOCACYTHE FOUNDATIONS ADVOCACY PRIORITIES ARE FOCUSED ON STRATEGIES THAT PROMOTE FEDERAL RESEARCH EFFORTS AND ENSURE INDIVIDUALS LIVING WITH PSORIATIC DISEASES HAVE FAIR AND AFFORDABLE ACCESS TO NEEDED TREATMENTS. HARNESSING THE COLLECTIVE EFFORTS OF TENS OF THOUSANDS OF ADVOCATES, THE PSORIASIS FOUNDATION WORKED TO: MAKE INSURANCE MORE FAIR AND AFFORDABLE AND HELP IMPROVE COVERAGE FOR PEOPLE WITH PSORIATIC DISEASE, HELP SET PUBLIC HEALTH POLICY FOR PSORIASIS AND PSORIATIC ARTHRITIS THROUGH THE FINDINGS FROM DATA COLLECTION AT THE CENTERS FOR DISEASE CONTROL (CDC), WORKED TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSORIATIC ARTHRITIS TREATMENTS, AND INCREASE FEDERAL FUNDING FOR PSORIASIS AND PSORIATIC ARTHRITIS RESEARCH IN ORDER TO FIND BETTER TREATMENTS AND A CURE. 3025054 23549 EDUCATION, OUTREACH AND PATIENT SERVICESPUBLISHED INFORMATION ON LIVING WELL WITH PSORIATIC DISEASES, AS WELL AS THE LATEST SCIENCE AND TREATMENT UPDATES FOR SOME 198,000 READERS OF PSORIASIS ADVANCE MAGAZINE AND OTHER PRINT PUBLICATIONS.PROVIDED COMPREHENSIVE RESOURCES AT WWW.PSORIASIS.ORG AND OTHER SITES FOR MORE THAN 4.15 MILLION VISITORS.SENT EDUCATIONAL E-NEWSLETTERS TO MORE THAN 270,000 SUBSCRIBERS.HOSTED 25 MORE THAN SKIN DEEP AND SIX BE JOINT SMART EDUCATIONAL EVENTS ATTRACTING MORE THAN 1,470 PARTICIPANTS. 7452733 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 57 0 70 1 1 1 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X BETTE DRAKE 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 DANIEL E FARRINGTON IMMEDIATE PAST CHAIR 1.00 X X 0 0 0 KRISTA KELLOGG CHAIR 1.00 X X 0 0 0 COLBY EVANS MD CHAIR-ELECT 1.00 X X 0 0 0 PETE REDDING VICE-CHAIR 1.00 X X 0 0 0 CHIP NEWTON TREASURER 1.00 X X 0 0 0 TERRI THEISEN SECRETARY 1.00 X X 0 0 0 STEVE BISHKOFF DIRECTOR 1.00 X 0 0 0 KATHLEEN GALLANT DIRECTOR 1.00 X 0 0 0 HOLLY FIELDS KRAFSUR DIRECTOR 1.00 X 0 0 0 SARAH KURTS PA-C DIRECTOR 1.00 X 0 0 0 MIKE LAUB DIRECTOR 1.00 X 0 0 0 CAROL OSTROW DIRECTOR 1.00 X 0 0 0 RON GRAU DIRECTOR 1.00 X 0 0 0 RANDY BERANEK PRESIDENT/CEO 40.00 X 283822 0 21714 WILLIAM CARDAMON CHIEF FIELD SVC OFFICER 40.00 X 205981 0 26423 SALLY NORBY DIRECTOR OF TRAINING & ORGANIZATIONAL DEVELOPMENT 40.00 X 114289 0 17961 ANDREW ROBERTSON CHIEF SCIENTIFIC AND MEDICAL OFFICER 40.00 X 117481 0 14122 LEAH HOWARD DIRECTOR OF GOVERNMENT RELATIONS AND ADVOCACY 40.00 X 117145 0 6855 CATHERINE COMAN VICE PRESIDENT OF MARKETING & COMMUNICATIONS 40.00 X 132530 0 14419 DARYL WOOLSEY COMMUNITY DEVELOPMENT MANAGER 40.00 X 104692 0 0 1075940 0 101494 7 0 1 0 SMART BUSINESS NETWORK INC 835 SHARON DRIVE STE 200 CLEVELAND OH 44145 PUBLICATION DEVELOPMENT AND DISTRIBUTION 232805 FAEGRE BAKER DANIELS LLP 1050 K STREET NW SUITE 400 WASHINGTON DC 20001 CONSULTING 151902 2 78547 2030871 6596380 242906 8705798 ADVERTISING INCOME 541800 632576 632576 EDUCATION CONFERENCES 532000 86950 86950 CONFERENCE REGISTRATION 611710 12478 12478 732004 84329 84329 4199196 3639475 559721 559721 559721 0 2030871 222454 -222454 -222454 14126 14048 78 78 9859476 99506 632576 421596 1899460 1899460 573877 439154 40633 94090 3160075 2418216 223749 518110 107932 82594 7642 17696 443970 339744 31435 72791 301474 230700 21346 49428 70447 53669 9864 6914 19179 19179 153685 153685 35030 35030 727035 558578 111730 56727 41766 40219 1547 631008 336676 79959 214373 277153 232361 13315 31477 461905 189961 172627 99317 382695 322864 43847 15984 16664 12752 1180 2732 39168 29972 2773 6423 DUES & SUBSCRIPTIONS 79562 66728 1063 11771 BAD DEBT 48551 3351 45200 SPECIAL EVENTS 37724 37724 STAFF EDUCATION & TRAIN 23024 20333 789 1902 27851 21716 1949 4186 9559235 7452733 783080 1323422 X 91168 45584 0 45584 95102 1056777 353364 127585 2009542 2414324 144140 162128 31743 29162 115835 438438 607182 557195 36704 49987 4947706 3268124 32057 31574 7766193 7578099 449512 545553 14324 7001 74502 141631 538338 694185 X 4552220 3851379 2675635 3032535 7227855 6883914 7766193 7578099 300241 -644182 0 X X 0 1 X 1 0 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PER YEAR, AS WELL AS SUBJECT TO APPROVAL. PART X, LINE 2: THE ORGANIZATION FOLLOWS THE PROVISION OF FASB ASC TOPIC OF ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND CONCLUDED THAT THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS TOPIC. PART XI, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 14,048. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 14,048. X X X X X X 1 ARIA COMMUNICATIONS 717 WEST ST GERMAIN STREET ST CLOUD MN 56301 PHONE CAMPAIGN 0 54419 35030 19389 54419 35030 19389 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY TEAM NPF WALK 1193543 1193543 43535 1360 42435 TEAM NPF 300945 300945 45245 1 536383 536383 60572 29307 2030871 2030871 43535 60572 1360 116987 222454 -222454 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE AGREEMENT WITH FUNDRAISER PROVIDED THAT POSTAGE AND PRINTING WERE PAID SEPARATELY FROM OTHER FEES, IN THE AMOUNT OF $1,786. ENTIRE AMOUNT PAID TO FUNDRAISER IS LISTED ABOVE. 1 UNIVERSITY OF CALIFORNIA DAVIS PO BOX 989062 WEST SACRAMENTO CA 95798 946036494 501(C)(3) 99510 TRANSLATIONAL UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM ST SAN FRANCISCO CA 94143 946036493 501(C)(3) 100000 TRANSLATIONAL SANFORD-BURNHAM MEDICAL RESEACH INSTITUTE 10901 NORTH TORREY PINES RD LA JOLLA CA 92037 510197108 501(C)(3) 100000 TRANSLATIONAL COLUMBIA UNIVERSITY PO BOX 29789 NEW YORK NY 10087 135598093 501(C)(3) 100000 TRANSLATIONAL CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501(C)(3) 50000 TRANSLATIONAL HARVARD COLLEGE 1350 MASSACHUSETTS AVE CAMBRIDGE MA 02138 042103580 501(C)(3) 100000 TRANSLATIONAL UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM ST SAN FRANCISCO CA 94143 946036493 501(C)(3) 100000 TRANSLATIONAL CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 100000 TRANSLATIONAL EMORY UNIVERSITY SCHOOL OF MEDICINE PO BOX 935084 ATLANTA GA 31193 580566256 501(C)(3) 75000 DISCOVERY ST JUDE CHILDREN'S RESEARCH HOSPITAL PO BOX 1000 DEPT 949 MEMPHIS TN 38148 620646012 501(C)(3) 75000 DISCOVERY MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501(C)(3) 75000 DISCOVERY UNIVERSITY OF MICHIGAN 3003 S STATE STREET ANN ARBOR MI 48109 386006309 501(C)(3) 75000 DISCOVERY ROCKEFELLER UNIVERSITY 1230 YORK AVENUE BOX 259A NEW YORK NY 10065 131624158 501(C)(3) 75000 DISCOVERY BAYLOR RESEARCH INSTITUTE 1950 N STEMMONS FWY STE 5010 DALLAS TX 75207 751921898 501(C)(3) 75000 DISCOVERY BOSTON CHILDREN'S HOSPITAL PO BOX 414413 BOSTON MA 02115 042774441 501(C)(3) 75000 DISCOVERY CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 75000 DISCOVERY BROWN UNIVERSITY 164 ANGELL STREET BOX 1929 PROVIDENCE RI 02912 050258809 501(C)(3) 50000 FELLOWSHIP BAYLOR RESEARCH INSTITUTE 3310 LIVE OAK ST STE 501 DALLAS TX 75204 751921898 501(C)(3) 50000 FELLOWSHIP NORTHWESTERN UNIVERSITY 633 CLARK ST ROOM G-547 EVANSTON IL 60208 362167817 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF SOUTHERN CALIFORNIA COMPTROLLERS OFFICE UGB 203 LOS ANGELES CA 90089 951642394 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF CALIFORNIA DAVIS 1800 RESEARCH PARK DRIVE SUITE 300 DAVIS CA 95618 946036494 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF PENNSYLVANIA 3542 WALNUT STREET ROOM P-221 PHILADELPHIA PA 19104 231352685 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF UTAH 30 NORTH 1900 EAST SCHOOL OF MEDICINE SALT LAKE CITY UT 84132 876000525 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF CALIFORNIA UCSD 9500 GILMAN DRIVE MC 0831 LA JOLLA CA 92093 956006144 501(C)(3) 50000 FELLOWSHIP STANFORD UNIVERSITY 3145 PORTER DRIVE PALO ALTO CA 94304 941156365 501(C)(3) 50000 FELLOWSHIP BRIGHAM & WOMEN'S HOSPITAL 75 FRANCIS ST BOSTON MA 02115 042312909 501(C)(3) 49950 FELLOWSHIP UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE MC 0953 LA JOLLA CA 92093 956006144 501(C)(3) 50000 FELLOWSHIP 27 PART I, LINE 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE DIRECTOR OF RESEARCH PROGRAMS OF THE NATIONAL PSORIASIS FOUNDATION. X X X 1 0 0 0 0 0 0 0 0 RANDY BERANEK PRESIDENT/CEO 247322 0 36500 0 0 0 12365 0 9349 0 305536 0 0 0 WILLIAM CARDAMON CHIEF FIELD SVC OFFICER 197841 0 8140 0 0 0 10245 0 16178 0 232404 0 0 0 PART I, LINE 4A WILLIAM CARDAMON SEVERANCE PAYMENT $44,333 X 9 242906 SALE PRICE 0 1 1 PART I, LINE 32B: THE ORGANIZATION USES AN OUTSIDE COMPANY THAT RECEIVES DONATED AUTOMOBILES AND SELLS THEM ON BEHALF OF THE ORGANIZATION. FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 IS EMAILED TO ALL BOARD MEMBERS FOR THEIR REVIEW PRIOR TO ITS BEING FILED ELECTRONICALLY WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C WE HAVE A CONFLICT OF INTEREST POLICY THAT IS SIGNED BY ALL DIRECTORS ANUALLY. ALL DIRECTORS AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS ANNUALLY REVEIWS AND APPROVES THE CEO'S COMPENSATION. THE FOUNDATION UTILIZES AN INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY FOR COMPARABLE INFORMATION FOR SALARIES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AUDTIED FINANCIAL STATEMENTS ARE ALSO DISPLAYED ON THE WEBSITE. FORM 990, PART XII, LINE 2C: PROCESS HAS NOT CHANGED