2015-11-02T11:25:02-06:00 2014-12-31 204723636 ISLER CPA LLC 1976 GARDEN AVENUE EUGENE OR 97403 990 2014-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 BARRY RUBENSTEIN PRESIDENT 5416874658 2015-10-14 1 GARY ISKRA P00051776 5413425161 2014 2016-03-07 17:11:31Z X BARRY RUBENSTEIN 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 1769808 0 X WWW.FANCONI.ORG X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE 12 12 6 19 0 0 1870643 1719329 0 0 42664 35113 10570 15366 1923877 1769808 1170514 809450 0 0 363291 348416 0 0 109893 800539 814428 2334344 1972294 -410467 -202486 5325551 4946640 960302 808957 4365249 4137683 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE 0 0 1319293 809450 SUPPORT OF RESEARCH INTO THE CAUSE AND CURE OF FANCONI ANEMIA 410658 15366 PROVIDING EDUCATION AND SUPPORT TO FAMILIES AFFECTED BY FANCONI ANEMIA 1729951 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 1 6 1 0 0 0 0 0 0 0 0 0 0 X 12 12 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 AL AK AZ AR CA CT FL GA IL KS KY LA ME MD MA MI MN MS SC NJ NH MO ND NC NY NM OR OK OH RI PA TN UT VA WA WV WI X X BARRY RUBENSTEIN 5416874658 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 BARRY RUBENSTEIN PRESIDENT 2.00 X X 0 0 0 LYNN FROHNMAYER VICE-PRESIDENT 10.00 X X 0 0 0 SHARON SCHUMAN SECRETARY/TREASURER 1.00 X X 0 0 0 DAVID FIASCHETTI BOARD MEMBER 1.00 X 0 0 0 BRIAN HORRIGAN BOARD MEMBER 1.00 X 0 0 0 MARK PEARL BOARD MEMBER 1.00 X 0 0 0 KEVIN MCQUEEN BOARD MEMBER 1.00 X 0 0 0 RICHARD GELINAS BOARD MEMBER 1.00 X 0 0 0 CHRISTOPHER BYRD BOARD MEMBER 1.00 X 0 0 0 ANNETTE WAXBERG BOARD MEMBER 1.00 X 0 0 0 AMY FROHNMAYER BOARD MEMBER 1.00 X 0 0 0 PETER PLESS BOARD MEMBER 1.00 X 0 0 0 LAURA HAYS EXECUTIVE DIRECTOR 55.00 X 97292 0 1000 97292 0 1000 0 0 0 0 0 1719329 1719329 35113 35113 OTHER INCOME 900099 15366 15366 15366 1769808 15366 0 35113 445250 445250 364200 364200 98292 73719 19658 4915 194781 141266 31655 21860 5367 3920 914 533 25434 18656 4451 2327 24542 18002 4295 2245 14495 14495 2461 2461 495 495 27294 17750 4417 5127 24172 12449 8134 3589 19318 13522 2898 2898 510272 498919 10728 625 8748 8748 7924 3533 3331 1060 SPECIAL PROJECTS 52327 5349 46978 PRINTING 47762 38664 15 9083 POSTAGE 36523 32185 2152 2186 MISCELLANEOUS 21681 17242 2672 1767 40956 25325 10931 4700 1972294 1729951 132450 109893 190 321 1061329 910457 1653 1763 96236 91890 4373 4346 4254718 4026746 3288 3007 5325551 4946640 31640 22169 928662 786788 960302 808957 X 4365249 4137683 4365249 4137683 5325551 4946640 -202486 -25080 0 X X 0 1 X 1 0 X 1696806 2935471 1579265 1870643 1719329 9801514 1696806 2935471 1579265 1870643 1719329 9801514 1396839 8404675 139545 116443 98735 79452 35113 469288 10270802 0.81830 0.76080 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 96236 91890 4346 4346 INVESTMENTS - CD'S & CASH SWEEP 1762453 F US EQUITIES 505631 F INTERNATIONAL EQUITIES 286278 F CORPORATE BONDS 290307 F TIPS BOND ETFS 991289 F REITS 190788 F 4026746 X 1742267 -25080 -25080 1767347 2461 2461 1769808 1969833 0 1969833 2461 2461 1972294 PART X, LINE 2: FANCONI ANEMIA RESEARCH FUND, INC. IS EXEMPT FROM INCOME TAXES UNDER INTERNAL REVENUE CODE ("IRC") SECTION 501(C)(3) AND IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF THE IRC AND AS AN ENTITY THAT QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS. ACCORDINGLY, NO PROVISION HAS BEEN MADE FOR INCOME TAXES IN THE FINANCIAL STATEMENTS. THE ORGANIZATION CONSIDERS ANY UNCERTAIN TAX POSITIONS CONSISTENT WITH GAAP. THE ORGANIZATION IS NO LONGER SUBJECT TO EXAMINATION BY FEDERAL OR OREGON TAXING AUTHORITIES FOR 2010 AND EARLIER YEARS. 1 EAST ASIA AND THE PACIFIC 0 0 RESEARCH GRANT A BIOCHEMICAL SYSTEM FOR TESTING THE FUNCTION OF UNCLASSIFIED FANCONI ANEMIA PROTEIN VARIANTS 176200 NORTH AMERICA 0 0 RESEARCH GRANT A PROSPECTIVE PHASE I/II STUDY TO EVALUATE THE CYSTEINE AND GLATATHIONE PRODRUG NACETYLCYSTEINE FOR SAFETY AND AMELIORATION OF DNA DAMAGE, OXIDATIVE STRESS, AND HEMATOLOGICAL ANOMALIES IN PATIENTS WITH FANCONI ANEMIA 188000 0 0 0 0 0 0 364200 0 364200 EAST ASIA AND THE PACIFIC A BIOCHEMICAL SYSTEM FOR TESTING THE FUNCTION OF UNCLASSIFIED FANCONI ANEMIA PROTEIN VARIANTS 176200 NORTH AMERICA A PROSPECTIVE PHASE I/II STUDY TO EVALUATE THE SYSTEINE AND GLUTATHIONE PRODRUG NACETYLCYSTEINE FOR SAFETY AND AMELIORATION OF DNA DAMAGE, OXIDATIVE STRESS, AND HEMATOLOGICAL ANOMALIES IN PATIENTS WITH FANCONI ANEMIA 188000 0 0 0 0 0 0 PART I, LINE 2: THE PROPOSAL REVIEW COMMITTEE (PRC), COMPRISED OF THREE BOD MEMBERS (INCLUDING ONE SCIENTIST), REVIEWS ALL GRANT PROPOSALS. THE PRC THEN MEETS AND VOTES TO DETERMINE IF FUNDING OF THE PROPOSAL IS RECOMMENDED OR NOT. THE PRC RECOMMENDATION IS THEN SENT TO THE FULL BOD FOR A VOTE. IF THE MAJORITY OF THE BOD AGREES WITH THE PRC RECOMMENDATION, THE GRANT IS FUNDED. AN ACCEPTANCE OF AWARD DOCUMENT IS THEN SENT TO THE INVESTIGATOR THAT DETAILS THE AMOUNT OF FUNDING AND THE DATES OF THE PROJECT. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS, FINANCIAL AND RESEARCH REPORTS ARE REQUIRED EVERY YEAR OF THE PROJECT. 1 UNIVERSITY OF COLORADO DENVER SCHOOL OF MEDICINE BLDG 500 13001 E 17TH PL RM W1126 AURORA CO 80045 846000555 70000 SUPPLEMENT: POTENTIAL THERAPEUTIC USE OF RESVERATROL FOR HEAD AND NECK CARCOGENESIS IN FANCONI ANEMIA ROCKEFELLER UNIVERSITY 1230 NEW YORK AVENUE BOX 259 NEW YORK NY 10065 131624158 148200 GENOMIC AND FUNCTIONAL ANALYSIS OF THE ANOGENITAL AND HEAD AND NECK SQUAMOUS CELL CARCINOMAS (SCCS) IN PATIENTS WITH FANCONI ANEMIA FRED HUTCHINSON CANCER RESEARCH CENTER 1100 FARIVIEW AVENUE NORTH PO BOX 19024 MAIL STOP J6-330 SEATTLE WA 98109 237156071 200000 PHOSPHATASES THAT REGULATE THE FANCONI ANEMIA PATHWAY UNIVERSITY OF CALIFORNIA LOS ANGELES 11000 KINROSS AVENUE SUITE 102 BOX 951506 LOS ANGELES CA 90024 956006143 23500 SALIVARY BIOMARKER FOR ORAL CANCER DETECTION IN FANCONI ANEMIA PART I, LINE 2: THE PROPOSAL REVIEW COMMITTEE (PRC), COMPRISED OF THREE BOD MEMBERS (INCLUDING ONE SCIENTIST), REVIEWS ALL GRANT PROPOSALS. THE PRC THEN MEETS AND VOTES TO DETERMINE IF FUNDING OF THE PROPOSAL IS RECOMMENDED OR NOT. THE PRC RECOMMENDATION IS THEN SENT TO THE FULL BOD FOR A VOTE. IF THE MAJORITY OF THE BOD AGREES WITH THE PRC RECOMMENDATION, THE GRANT IS FUNDED. AN ACCEPTANCE OF AWARD DOCUMENT IS THEN SENT TO THE INVESTIGATOR THAT DETAILS THE AMOUNT OF FUNDING AND THE DATES OF THE PROJECT. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS, FINANCIAL AND RESEARCH REPORTS ARE REQUIRED EVERY YEAR OF THE PROJECT. FORM 990, PART VII, SECTION A, LINES 11 AND 12, AMENDMENT: FORM 990 IS BEING AMENDED TO ADD TWO BOARD MEMBERS, AMY FROHNMAYER AND PETER PLESS. THE TWO BOARD MEMBERS WERE ERRONEOUSLY LEFT OFF THE ORIGNAL FORM 990, PART VII. THE AMENDMENT WILL AGREE THE TOTAL NUMBER OF INDEPENDENT VOTING MEMBERS TO THE 12 LISTED ON PAGE 1, PART I, LINES 3 AND 4. FORM 990, PART VI, SECTION A, LINE 2 DIRECTORS LYNN AND AMY FROHNMAYER HAVE A FAMILY RELATIONSHIP FORM 990, PART VI, SECTION B, LINE 11 THE 990 IS REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR PRIOR TO FILING AND THEN DISTRIBUTED TO THE BOARD FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ANNUALLY STATE ANY REAL OR POTENTIAL CONFLICTS OF INTEREST ON A CONFLICT OF INTEREST DISCLOSURE FORM FORM 990, PART VI, SECTION B, LINE 15 IN 2014, EMPLOYEE COMPENSATION WAS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES FORM 990, PART VI, SECTION C, LINE 19 WHEN REQUESTED, WE MAKE A COPY AND MAIL THEM TO THE REQUESTING PARTY FORM 990, PART XII, LINE 2C: FINANCIAL STATEMENT OVERSIGHT PROCESS HAS NOT CHANGED