2015-10-20T06:46:42-05:00 2015-06-30 591818353 KAUFMAN ROSSIN & CO PA 2699 S BAYSHORE DRIVE MIAMI FL 33133 990 2014-07-01 363320440 FAMILIES OF SPINAL MUSCULAR ATROPHY FAMI 8008861762 925 BUSSE ROAD ELK GROVE VILLAGE IL 60007 KENNETH HOBBY PRESIDENT 8008861762 2015-10-19 1 JANET FIFER P01225772 3058585600 2015-10-19 2014 2016-02-25 16:41:14Z CURE SMA KENNETH HOBBY 925 BUSSE ROAD ELK GROVE VILLAGE IL 60007 5532109 0 X WWW.CURESMA.ORG X 1984 IL CURE SMA LEADS THE WAY TO A WORLD WITHOUT SPINAL MUSCULAR ATROPHY, THE NUMBER ONE GENETIC CAUSE OF DEATH FOR INFANTS. CURE SMA FUNDS AND DIRECTS COMPREHENSIVE RESEARCH THAT DRIVES BREAKTHROUGHS IN TREATMENT AND CARE, AND PROVIDES FAMILIES THE SUPPORT THEY NEED FOR TODAY. 13 12 22 5000 0 0 4639671 4716073 381031 403981 3452 18312 26540 98289 5050694 5236655 1004654 1339999 0 0 1355302 1570338 15413 18809 1172480 2460052 2466129 4835421 5395275 215273 -158620 3380394 3255155 1155939 1193942 2224455 2061213 X CURE SMA FUNDS AND DIRECTS THE LEADING SMA RESEARCH PROGRAMS TO DEVELOP A TREATMENT AND CURE FOR THE DISEASE. THE SUCCESSFUL RESULTS AND PROGRESS THAT THE ORGANIZATION HAS DELIVERED, FROM BASIC RESEARCH TO DRUG DISCOVERY TO CLINICAL TRIALS, PROVIDE REAL HOPE FOR FAMILIES AND PATIENTS IMPACTED BY THE DISEASE. THE CHARITY HAS INVESTED OVER $50 MILLION IN RESEARCH AND BEEN INVOLVED IN FUNDING HALF OF ALL THE ONGOING NOVEL DRUG PROGRAMS FOR SMA. CURE SMA IS A NONPROFIT 501(C)3 ORGANIZATION, WITH 33 CHAPTERS AND 85,000 MEMBERS AND SUPPORTERS THROUGHOUT THE UNITED STATES, AND IS DEDICATED TO CREATING A TREATMENT AND CURE BY: FUNDING AND ADVANCING A COMPREHENSIVE RESEARCH PROGRAM; SUPPORTING SMA FAMILIES THROUGH NETWORKING, INFORMATION AND SERVICES; IMPROVING CARE FOR ALL SMA PATIENTS; EDUCATING HEALTHCARE PROFESSIONALS AND THE PUBLIC ABOUT SMA; ENLISTING GOVERNMENT SUPPORT FOR SMA; EMBRACING ALL TOUCHED BY SMA IN A CARING COMMUNITY. 0 0 554060 INDIVIDUALS WITH SMA NEED SPECIALIZED CARE AND EQUIPMENT, WHICH CAN PUT ENORMOUS EMOTIONAL, LOGISTICAL, AND FINANCIAL PRESSURE ON FAMILIES. CURE SMA IS COMMITTED TO MAKING SURE THAT FAMILIES HAVE THE BEST, MOST ACCURATE INFORMATION ABOUT SMA AND WHAT IT MEANS FOR THEM, AND TO MAKING SURE THAT THEY UNDERSTAND ALL THE OPTIONS AND RESOURCES AVAILABLE TO THEM FROM DAY TO DAY CARE TO THE CHANGING LANDSCAPE OF RESEARCH BREAKTHROUGHS.THIS INCLUDES OUR CARE SERIES BOOKLETS, WHICH ARE SENT OUT AS PART OF INFORMATIONAL PACKETS AVAILABLE AT NO COST TO ANYONE WHO REQUESTS ONE. DEVELOPED BY MEDICAL EXPERTS AND REVIEWED BY FAMILIES, THESE BOOKLETS COVER TOPICS SUCH AS BREATHING, NUTRITION, PALLIATIVE CARE, GENETICS, MUSCULOSKELETAL ISSUES, AND MORE. IN ADDITION, OUR EQUIPMENT POOL GIVES FAMILIES ACCESS TO SPECIALIZED ITEMS LIKE CAR BEDS, STROLLERS AND BATHING SYSTEMS AT NO COST. EVERY NEWLY DIAGNOSED FAMILY RECEIVES A CARE PACKAGE FROM CURE SMA, FULL OF TOYS APPROPRIATE TO THE CHILD'S TYPE OF THE DISEASE, IMPARTIAL INFORMATION FOR PARENTS, AND USEFUL ITEMS SUGGESTED BY OTHER SMA PARENTS BASED ON THEIR OWN EXPERIENCES.CURE SMA ALSO EDUCATES THE PUBLIC ABOUT SMA, TO STRENGTHEN THE SUPPORT AVAILABLE TO FAMILIES. THIS INCLUDES DIRECTIONS, A BIANNUAL FAMILY SUPPORT NEWSLETTER, AND COMPASS, A QUARTERLY UPDATE ON RESEARCH DEVELOPMENTS.CURE SMA WORKS DIRECTLY WITH CLINICIANS, MEDICAL DOCTORS, SPECIALISTS, AND SKILLED CAREGIVERS TO ENSURE THAT PATIENTS HAVE ACCESS TO THE BEST POSSIBLE CARE. 1990595 1339999 CURE SMA FOCUSES ON THREE DIFFERENT YET EQUALLY CRITICAL AND INTERDEPENDENT RESEARCH AREAS: BASIC RESEARCH, TO UNDERSTAND THE CAUSE AND BIOLOGY OF SMA; DRUG DISCOVERY, TO CONVERT BASIC RESEARCH IDEAS INTO PRACTICAL NEW DRUG CANDIDATES; AND CLINICAL TRIALS, TO TEST THE DRUG CANDIDATES. CURE SMA ALSO FUNDS CLINICAL CARE RESEARCH TO UNDERSTAND THE ISSUES THAT AFFECT DAILY LIFE FOR PEOPLE WITH SMA, FROM BREATHING TO NUTRITION, AND TO IMPROVE THEIR QUALITY OF LIFE TODAY. CURRENTLY, THERE ARE 18 DRUG PROGRAMS IN DEVELOPMENT, AND SEVEN OF THOSE ARE IN CLINICAL TRIALS, BOTH OF WHICH ARE THE HIGHEST TOTALS EVER. CURE SMA HAS FUNDED HALF OF THE ONGOING DRUG PROGRAMS IN SMA. IN THE PAST YEAR, FUNDED TWO OF THE MAJOR DRUG PROGRAMS FOR SMA, INCLUDING ONE ON GENE THERAPY FOR SMA AND ANOTHER ON SMALL MOLECULES TO ENHANCE SMN2 EXPRESSION, THE LOW FUNCTIONAL BACK-UP GENE FOUND IN SMA PATIENTS. CURE SMA ALSO FUNDED FIVE NEW BASIC RESEARCH GRANTS AND FOUR NEW CLINICAL CARE GRANTS WITHIN THE PAST TWELVE MONTHS. THIS TOTALS $1.55M NEW DOLLARS IN RESEARCH FUNDING OVER THIS PERIOD OF TIME.THROUGH SURVEYS, FOCUS GROUPS, AND DIRECT MEETINGS WITH THE FDA, CURE SMA IS WORKING TO PURSUE TIMELY AND SAFE APPROVAL OF SMA DRUGS BY THE FDA, ONCE CLINICAL TRIALS HAVE BEEN COMPLETED FOR THE DRUGS NOW IN DEVELOPMENT. THIS INCLUDES MAKING SURE THE PATIENT PERSPECTIVE IS PROPERLY REPRESENTED TO THE FDA ON TOPICS LIKE RISK/BENEFIT ANALYSIS, AND MEANINGFUL CHANGE. CURE SMA ALSO RELEASED "LEARNING ABOUT CLINICAL TRIALS", A NEW GUIDEBOOK TO EDUCATE THE PATIENT AND MEDICAL PROVIDER COMMUNITY ON THE CLINICAL TRIAL PROCESS. 1410203 403981 CURE SMA HOSTED OUR 26TH ANNUAL SMA CONFERENCE IN KANSAS CITY, WITH OVER 1,300 TOTAL ATTENDEES. OUR ANNUAL CONFERENCE IS AN INVALUABLE RESOURCE FOR THE ENTIRE SMA COMMUNITY, BRINGING TOGETHER RESEARCHERS, CLINICIANS, AND FAMILIES TO NETWORK, LEARN, AND COLLABORATE. THE CONFERENCE IS THE LARGEST IN THE WORLD FOCUSED SPECIFICALLY ON SMA, AND IT ATTRACTS THE TOP SCIENTISTS AND COMPANIES IN THE FIELD. THE FAMILY CONFERENCE INCLUDES A VARIETY OF WORKSHOPS, KEYNOTE SESSIONS WITH LEADING RESEARCHERS, A FAMILY FRIENDLY RESEARCH POSTER SESSION, AND MORE PLUS FUN EVENTS LIKE OUR DANCE PARTY, MEET AND GREET, PAJAMA PARTY AND MOVIE NIGHT, AND TEEN AND ADULT SOCIAL ACTIVITIES. THE RESEARCHER CONFERENCE CREATES OPEN COMMUNICATION OF EARLY, UNPUBLISHED SCIENTIFIC DATA, ACCELERATING THE PACE OF RESEARCH. THE MEETING ALSO FURTHERS RESEARCH BY BUILDING PRODUCTIVE COLLABORATIONS INCLUDING CROSS DISCIPLINARY DIALOGUE, PARTNERSHIPS, INTEGRATION OF NEW RESEARCHERS AND DRUG COMPANIES, AND EDUCATIONAL OPPORTUNITIES FOR JUNIOR RESEARCHERS.THE MOST POWERFUL ACTIVITIES OF THE CONFERENCE HAPPEN WHEN THE FAMILY AND RESEARCHER CONFERENCES COME TOGETHER. FAMILIES HAVE DIRECT ACCESS TO THE LATEST INFORMATION ABOUT RESEARCH, AND RESEARCHERS HAVE AN OPPORTUNITY TO BUILD PERSONAL CONNECTIONS WITH THE PATIENTS WHO WILL BENEFIT FROM THEIR WORK. 3954858 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 47 0 22 1 0 0 0 0 0 1 1 0 0 0 0 X 13 12 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AZ CA CO CT FL IA IL KS LA NJ NY OH TN TX WA AK VA NC SC UT AR KY ME WV GA DE HI ID IN MD MT ND NE NV NH OK SD VT WI WY X X KENNETH HOBBY 8008861762 925 BUSSE ROAD ELK GROVE VILLAGE IL 60007 RICHARD RUBENSTEIN BOARD CHAIR 15.00 X X 0 0 0 KENNETH HOBBY PRESIDENT 70.00 X X 138022 0 9955 ROBERT LOCKWOOD SECRETARY 6.00 X X 0 0 0 BRAD NUNEMAKER TREASURER 6.00 X X 0 0 0 ROCCO ARIZZI DIRECTOR 2.00 X 0 0 0 COREY BRAASTAD DIRECTOR 2.00 X 0 0 0 DOUGLAS ERWIN DIRECTOR 2.00 X 0 0 0 JUSTIN KUESTER DIRECTOR 2.00 X 0 0 0 MELISSA MILINOVICH DIRECTOR 2.00 X 0 0 0 STEVE RAGLAND DIRECTOR 2.00 X 0 0 0 ADI RAPPOPORT DIRECTOR 2.00 X 0 0 0 BARB TRAINOR DIRECTOR 2.00 X 0 0 0 GREG ZERZAN DIRECTOR 2.00 X 0 0 0 JILL JARECKI RESEARCH DIRECTOR 50.00 X 131421 0 84 SUSAN KOVACH FINANCE & ADMINISTRATION DIRECTOR 60.00 X 104327 0 70 373770 0 10109 3 0 0 0 0 2834502 20000 1861571 150577 4716073 ANNUAL CONFERENCE 900099 403981 403981 403981 21373 21373 170650 173711 -3061 -3061 -3061 201715 2834502 104128 97587 97587 18317 17615 702 702 5236655 404683 0 115899 1339999 1339999 395857 263905 65976 65976 994936 608815 18866 367255 69368 44103 3274 21991 110177 69215 7146 33816 18073 18073 38411 38411 27968 15438 2658 9872 18809 18809 2347 2347 131731 69619 26180 35932 79212 53643 12785 12784 329827 220736 20722 88369 118666 88999 5934 23733 87773 57550 14344 15879 333674 225312 26234 82128 412541 411536 60 945 60238 53485 2451 4302 15061 12690 1021 1350 FUNDRAISING EVENTS 662452 310063 7398 344991 BANK CHARGES 63968 25588 3198 35182 PATIENT SERVICES 49603 44289 63 5251 MISCELLANEOUS 22840 10056 8869 3915 11744 11744 5395275 3954858 267937 1172480 2400803 1775752 337411 1031833 279648 128835 99413 36432 0 14691 651125 389857 256775 261268 547 547 5797 5797 3380394 3255155 469441 490193 686498 703749 1155939 1193942 X 1275179 1034679 358761 315616 590515 710918 2224455 2061213 3380394 3255155 -158620 -4622 0 X X 0 1 X 1 0 X 3603995 4241909 4596877 4639671 4716073 21798525 3603995 4241909 4596877 4639671 4716073 21798525 21798525 1278 2193 2391 3330 21373 30565 918280 362448 589565 556430 605696 3032419 24861509 2294106 0.87680 0.85900 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 1 27968 27968 0 PART II-B, LINE 1: THE ORGANIZATION PAID WASHINGTON STRATEGIC CONSULTING, INC, A PROFESSIONAL LOBBYING FIRM, FEES TO LOBBY FOR LEGISLATION THAT BENEFITS THE ORGANIZATION'S MISSION AND TO KEEP THE ORGANIZATION'S MANAGEMENT INFORMED ABOUT LEGISLATION THAT MAY AFFECT THE ORGANIZATION'S MISSION. 620515 109608 11343 741466 436946 181698 1871 620515 220438 214976 1532 436946 220438 220438 0.04120 0.95880 0 0 651125 389857 261268 261268 X 5390573 -4622 39144 121743 156265 5234308 2347 2347 5236655 5553815 39144 121743 160887 5392928 2347 2347 5395275 PART X, LINE 2: THE ORGANIZATION ASSESSES ITS TAX POSITION IN ACCORDANCE WITH "ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES" AS PRESCRIBED BY THE ACCOUNTING STANDARDS CODIFICATION, WHICH PROVIDES GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN FOR OPEN TAX YEARS (GENERALLY A PERIOD OF THREE YEARS FROM THE LATER OF EACH RETURN'S DUE DATE OR THE DATE FILED) THAT REMAIN SUBJECT TO EXAMINATION BY THE ORGANIZATION'S MAJOR TAX JURISDICTIONS. THE ORGANIZATION BELIEVES THAT IT DOES NOT HAVE ANY SIGNIFICANT UNCERTAIN TAX POSITIONS REQUIRING RECOGNITION OR MEASUREMENT. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE REPORTED ON PAGE 9, LINE 8B 104,128. COST OF SALES REPORTED ON PAGE 9, LINE 10B 17,615. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES REPORTED ON PAGE 9, LINE 8A 104,128. COST OF SALES REPORTED ON PAGE 9, LINE 10B 17,615. X X 0 EPIPHANY PRODUCTIONS INC 104 HUME AVE ALEXANDRIA VA 22301 SPECIAL EVENTS ASSISTANCE 0 152845 15285 137560 EPIPHANY PRODUCTIONS INC 104 HUME AVE ALEXANDRIA VA 22301 FUND RAISING CONSULTATIONS 0 0 2824 0 152845 18109 137560 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC WALK-N-ROLL 1307862 1276002 31860 DINNERS / GALAS 845223 675368 169855 104128 120 883132 883132 3036217 2834502 201715 104128 104128 97587 SCHEDULE G, PART I, LINE 2B, COLUMN (V) EPIPHANY PRODUCTIONS, INC WAS PAID TO PROVIDE FUND RAISING AND CONSULTING SERVICES AND ADVICE AND TO ASSIST WITH THE PLANNING AND CONDUCTING OF THE CONGRESSIONAL DINNER. THE FUNDRAISER DOES NOT TAKE POSSESSION OF ANY FUNDS BUT INVOICES THE ORGANIZATION FOR THE EXPENSES. THE FINANCIAL AGREEMENT INCLUDES 10% OF GROSS RECEIPTS FOR THE ASSISTANCE OF THE SPECIFIC SPECIAL EVENT. THESE AMOUNTS ARE INCLUDED ON PART 1 LINE 2B (1). THE FUNDRASIER ALSO PROVIDES GENERAL ADVICE ON FUNDRASING ISSUES. EXPENSES FOR THESE SERVICES ARE INCLUDED ON PART 1, LINE 2B (2). FORM 990, SCHEDULE G, PART II, FUNDRAISING EVENTS CURE SMA HAS MULTIPLE CHAPTERS IN MANY STATES WHOSE PURPOSE IS TO RAISE FUNDS FOR THE ORGANIZATION. THE AMOUNTS LISTED IN COLUMNS (A) AND (B) ARE SUMMARY AMOUNTS FOR MULTIPLE SIMILAR EVENTS HELD THROUGH OUT THE COUNTRY. AMOUNTS LISTED IN COLUMN (C) ARE FOR A VARIETY OF EVENTS HELD BY CHAPTERS THROUGHOUT THE COUNTRY. COLUMN (A): PARTICIPANTS IN THE WALK-N-ROLL EVENTS RECEIVE NO DIRECT BENEFITS OTHER THAN A TEE-SHIRT AND ACCESS TO BEVERAGES ALONG THE RACE PATH AND AT THE END OF THE RACE PATH. COLUMN (C): OTHER EVENTS ARE SIMILAR IN NATURE TO THE CURE SMA WALK-N-ROLLS, SUCH AS FUN-RUNS OR 5K RUNS, AND NO OTHER BENEFITS ARE RECEIVED OTHER THAN A TEE-SHIRT OR RACE BEVERAGES. OTHER EVENTS ARE NOT HELD UNDER THE NATIONALLY BRANDED NAME "WALK-N-ROLL" WHICH ARE COORDINATED AND PROMOTED AS A NATION-WIDE FUNDRAISING EVENT BY CURE SMA. 1 TRUSTEES OF INDIANA UNIVERSITY PO BOX 78000 DETROIT MI 48278 366001673 501(C)(3) 140000 RESEARCH GRANT UNIVERSITY OF SOUTHERN CALIFORNIA 3720 S FLOWER STREET LOS ANGELES CA 90089 951642394 501(C)(3) 104999 RESEARCH GRANT - DRUG DISCOVERY THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL PO BOX 781653 DETROIT MI 48278 314379441 501(C)(3) 445000 RESEARCH GRANT - DRUG DISCOVERY THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL PO BOX 781653 DENVER MI 48278 314379441 501(C)(3) 80000 RESEARCH GRANT CALIFORNIA INSTITUTE OF BIOMEDICAL RESEARCH 10931 NORTH TORREY PINES ROAD LA JOLLA CA 92037 453682796 501(C)(3) 315000 RESEARCH GRANT - DRUG DISCOVERY BAYADA HOME HEALTH CARE 101 EXECUTIVE DRIVE SUITE 6 MOORESTOWN NJ 08057 231943113 501(C)(3) 30000 RESEARCH GRANT - PATIENT CARE BOSTON CHILDREN'S HOPSITAL PO BOX 414443 BOSTON MA 02241 042774441 501(C)(3) 50000 RESEARCH GRANT - PATIENT CARE BOSTON CHILDREN'S HOPSITAL PO BOX 414443 BOSTON MA 02241 042774441 501(C)(3) 140000 RESEARCH GRANT GILLETTE CHILDREN'S SPECIALTY HEALTHCARE 200 UNIVERSITY AVE EAST ST PAUL MN 55101 363379150 501(C)(3) 50000 RESEARCH GRANT - PATIENT CARE TRUSTEES OF COLUMBIA UNIVERSITY IN NY 615 WEST 131ST STREET MAIL CODE 8749 NEW YORK NY 10027 135598093 501(C)(3) 140000 RESEARCH GRANT UNIVERSITY OF ROCHESTER 518 HYLAN BUILDING ROCHESTER NY 14627 160743209 501(C)(3) 100000 RESEARCH GRANT - PATIENT CARE UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY UT 84112 876000525 501(C)(3) 50000 RESEARCH GRANT - PATIENT CARE PART I, LINE 2: DETAILED REQUIREMENTS MADE OF RECIPIENTS IN GRANT CONTRACTS: RECIPIENTS SHALL PROVIDE THE ORGANIZATION WITH REPORTS OF THE WORK PERFORMED UNDER THIS AGREEMENT IN ACCORDANCE WITH THE FOLLOWING SCHEDULE: QUARTERLY WRITTEN PROGRESS REPORTS DUE WITHIN THIRTY (30) DAYS AFTER THE END OF THE QUARTER. RECIPIENTS SHALL ALSO SUBMIT TO THE ORGANIZATION A COMPREHENSIVE FINAL REPORT WITHIN NINETY (90) DAYS OF TERMINATION OF THE RESEARCH PROJECT. FOR THE PURPOSE OF IDENTIFYING PATENTABLE INVENTIONS NOT COVERED BY PRE EXISTING PATENTS, RECIPIENTS SHALL SUBMIT A COPY OF ALL PROPOSED PUBLICATIONS, PAPERS, AND ANY OTHER WRITTEN DISCLOSURE OF SUCH DATA OR INFORMATION TO THE ORGANIZATION AT LEAST THIRTY (30) DAYS PRIOR TO SUBMISSION FOR PUBLICATION OR DISCLOSURE TO A THIRD PARTY. SCHEDULE I, PART II CERTAIN GRANT PAYMENTS ARE MADE TO GRANTEES BASED ON RESEARCH MILESTONES BEING MET. THESE AMOUNTS ARE NOT INCLUDED IN THE GRANTS PAYABLE. AS OF THE END OF THE CURRENT YEAR, FUTURE AMOUNTS OF THESE PAYMENTS ARE ESTIMATED TO BE $560,000. X 0 0 0 0 0 0 0 0 0 X 7 59152 FAIR MARKET VALUE X SEE PART II 1 91425 RETAIL RENTAL VALUE 0 0 0 PART I, LINE 33: PAGE 1, LINE 25: DONATED RENTAL EQUIPMENT FOR SPECIAL EVENTS FORM 990, PART VI, SECTION B, LINE 11 THE FINANCE COMMITTEE OF THE BOARD AND THE PRESIDENT PERFORM AN INITIAL REVIEW OF FORM 990. AFTER ACCEPTANCE OF FORM 990 BY THE FINANCE COMMITTEE AND THE PRESIDENT, FORM 990 IS EMAILED TO THE FULL BOARD FOR REVIEW AND APPROVAL BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C MEMBERS OF THE BOARD OF DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL STATEMENT DISCLOSING ANY POSSIBLE CONFLICTS OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 PRESIDENT'S COMPENSATION - APPROVED BY THE BOARD OF DIRECTORS. THE BOARD'S EXECUTIVE COMMITTEE CONDUCTS A MARKET SURVEY OF THE POSITION USING INDEPENDENT COMPENSATION SOURCES, AND THEN PRESENTS A RECOMMENDATION TO THE FULL BOARD FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE REQUEST FOR DOCUMENTS CAN BE MADE IN WRITING OR BY PHONE BY CONTACTING THE NATIONAL OFFICE. WHEN A REQUEST IS MADE FOR DOCUMENTS, THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS APPROVES THE RELEASE OF THE DOCUMENTS. FORM 990, PAGE 12, PART XII, QUESTION 2C: NO CHANGES WERE MADE TO THE AUDIT OVERSIGHT PROCESS FOR THE CURRENT YEAR.