2015-08-13T12:02:10-05:00 2014-12-31 BDO USA LLP 8405 GREENSBORO DRIVE 7TH FLOOR MCLEAN VA 22102 990 2014-01-01 136161105 CYSTIC FIBROSIS FOUNDATION - GROUP RETURN FOR THE CHAPTERS % THE ORGANIZATION CYST 3019514422 6931 ARLINGTON ROAD Suite 200 BETHESDA MD 20814 ROBERT J BEALL PHD PRESIDENT/CEO 7038930600 2015-08-13 true Jeffrey J Schragg P00234543 7038930600 2014 2016-02-25 16:41:14Z ROBERT J BEALL PHD 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 134340970 true false 1393 X WWW.CFF.ORG X THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. 17 16 385 250000 0 0 118721081 117748007 0 0 0 0 1048800 1077347 119769881 118825354 0 0 0 0 19362586 19739953 0 0 8128778 100407295 99085401 119769881 118825354 0 0 0 0 0 0 0 The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high quality, specialized care. A life-shortening genetic disease, CF affects the lungs and digestive systems of nearly 30,000 children and young adults in the U.S. Currently, there is no cure. nearly 30,000 children and young adults in the U.S. Currently, there is no cure. false false 93317810 0 0 MEDICAL PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION HAS 70 OFFICES IN 39 STATES THAT HELP TO COMMUNICATE AND DISTRIBUTE INFORMATION ABOUT SCIENTIFIC STUDIES AND INVESTIGATIONS, CYSTIC FIBROSIS CENTERS AND OTHER MEDICAL PROGRAMS. 8689383 0 0 PUBLIC INFORMATION AND EDUCATION: TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CYSTIC FIBROSIS FOUNDATION HAS PROGRAMS DESIGNED TO INFORM CYSTIC FIBROSIS PATIENTS, THEIR FAMILIES AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2014, CHAPTER OFFICES PREPARED AND DISTRIBUTED EDUCATIONAL MATERIALS TO THE CF COMMUNITY, INCLUDING AUDIO AND VISUAL AIDS, EXHIBITS AND CORRESPONDENCE. THE CHAPTER OFFICES ALSO MADE AVAILABLE UP TO 17 PUBLICATIONS AND 29 VIDEOS THAT WERE DEVELOPED SPECIFICALLY FOR THE CF COMMUNITY BY THE CYSTIC FIBROSIS FOUNDATION. 5045448 0 0 COMMUNITY SERVICE PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM AND EMPOWER PATIENTS AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING THOSE WITH CYSTIC FIBROSIS. APPROXIMATELY 28,600 PATIENTS WERE SERVED IN 2014, INCLUDING APPROXIMATELY 840 PATIENTS WHO WERE NEWLY DIAGNOSED. 107052641 true true false false false false false false false false false false false false false false true false false false false false false true true false false false true false false false false false false false false true false false false false true false false false true 989 12 true 385 true false false false false false true true true 1 false false true false X 17 16 false false false false false false false true true false true true true true true true true true true true false AL AK AR CA CT FL GA HI IL IN KS KY MD MA MI MS NH NJ NM NY OK OR PA RI SC TN UT VA WA WV WI X X THE ORGANIZATION 3019514422 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 MiCHAEL L BEATTY ESQ TRUSTEE 3.0 3.0 X 0 0 0 J TAYLOR CRANDALL TRUSTEE 3.0 3.0 X 0 0 0 RICHARD L DANDURAND VICE CHAIRMAN 3.0 5.0 X 0 0 0 LOUIS DEFALCO TRUSTEE 3.0 3.0 X 0 0 0 RICHARD J GRAY ESQ VICE CHAIRMAN 3.0 5.0 X 0 0 0 CAROLE B GRIEGO MD TRUSTEE 3.0 3.0 X 0 0 0 SUSAN L HOOK LEADERSHIP COUNCIL CHAIR 3.0 5.0 X 0 0 0 CATHERINE C MCLOUD CHAIR 3.0 11.0 X 0 0 0 CHAD T MOORE CHAIR 3.0 3.0 X 0 0 0 DAVID A MOUNT TRUSTEE 3.0 3.0 X 0 0 0 GRAY B SABIN VICE CHAIRMAN 3.0 5.0 X 0 0 0 STEVEN SHAK MD TRUSTEE 3.0 6.0 X 0 0 0 CHARLES J THAYER TREASUER 3.0 0.0 X 0 0 0 AMY S WEINBERG TRUSTEE 3.0 3.0 X 0 0 0 PAUL W WHETSELL EXECUTIVE VICE CHAIRMAN 3.0 5.0 X 0 0 0 KC BRYAN WHITE ADULT ADVISORY COUNCIL CHAIR 3.0 5.0 X 0 0 0 ROBERT J BEALL PHD PRESIDENT AND CEO 4.0 56.0 X X 0 973691 224033 C RICHARD MATTINGLY EXECUTIVE VP, COO & SECRETARY 5.0 55.0 X 0 645755 189266 PRESTON W CAMPBELL MD EXEC VP OF MEDICAL AFFAIRs 4.0 56.0 X 0 646800 174822 VERA H TWIGG EXEC VP & CFO 5.0 55.0 X 0 461903 85449 BARBARA BALIK DIR OF SPECIAL GIVING 50.0 0.0 X 125484 0 18150 TERESA GAUDIO ASSOCIATE EXECUTIVE DIRECTOR 50.0 0.0 X 103659 0 8232 229143 2728149 699952 2 false true false VAIL CASCADE RESORT SPA 1300 WESTHAVEN DR VAIL CO 81657 EVENT venue 694839 SOFTREK CORPORATION 30 BRYANT WOODS NORTH AMHERST NY 14228 DATA PROCESSING 662327 GG OUTFITTERS 4901 FORBES BLVD LANHAM MD 20706 EVENT MATERIAL 406502 THE RESORT AT PELICAN HILL 550 NEWPORT CENTER DR NEWPORT BEACH CA 92660 EVENT VENUE 260069 PREMIUM WORKS 811 WEST 5TH STREET BLDG 7 LANSDALE PA 19446 EVENT MATERIAL 219686 15 1236826 95168994 21342187 11172135 117748007 0 0 0 0 0 0 0 1279262 1279262 0 13899530 95168994 13899530 0 1414171 336824 1077347 1077347 0 0 118825354 1077347 0 0 0 0 0 0 15715435 9114952 2043007 4557476 751972 436144 97756 218072 1950988 1131573 253628 565787 1321558 766503 171803 383252 0 45998 26679 5980 13339 0 0 0 0 15980 9269 2077 4634 5176 3002 673 1501 2825483 1638780 367313 819390 1142123 662431 148476 331216 0 2322753 1347197 301958 673598 692775 401809 90061 200905 0 268445 155698 34898 77849 0 90795086 90795086 537275 311619 69846 155810 0 MISCELLANEOUS 434307 251899 56459 125949 118825354 107052641 3643935 8128778 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 X false true X true false X 101601796 106170741 117695633 118721081 117748007 561937258 0 0 101601796 106170741 117695633 118721081 117748007 561937258 0 561937258 0 0 13271440 12838318 14069535 14478203 15313701 69971197 631908455 0.88927 0.89003 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED GALA 2288469 1995756 292713 32364 81461 12546 166342 WALK 1687172 1656189 30983 12139 3667 3943 0 11234 1137 105092883 91517049 13575834 21839 882071 4316339 3464367 534536 4356682 109068524 95168994 13899530 21839 894210 4352370 3549771 547082 4534258 13899530 1414171 1074 250873 7710 77167 false 1414171 1074 250873 7710 77167 336824 1077347 AL AK AZ AR CA CO CT DE DC FL GA IL IN IA KS LA ME MD MA MI MN MO NE NV NJ NM NY NC OH OK OR PA RI SC TN TX UT VA WA WI true false false false 1.00000 THE ORGANIZATION 6931 ARLINGTON ROAD STE 200 bethesda MD 20814 false false GAMING ACTIVITY ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. X X X X X X false true false false false false false false false ROBERT J BEALL PHD PRESIDENT AND CEO 0 600563 0 348254 0 24874 0 204778 0 19255 0 1197724 0 97143 C RICHARD MATTINGLY EXECUTIVE VP, COO & SECRETARY 0 399981 0 222762 0 23012 0 173105 0 16161 0 835021 0 72377 PRESTON W CAMPBELL MD EXEC VP OF MEDICAL AFFAIRs 0 395545 0 225831 0 25424 0 148386 0 26436 0 821622 0 71511 VERA H TWIGG EXEC VP & CFO 0 300886 0 139087 0 21930 0 59013 0 26436 0 547352 0 30185 SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. compensation Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $384,583, 401(k) bonus - $15,410; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $121,344, long-term incentive plan payment, which was previously reported (6) - $65,086, long-term incentive plan treatment award (3) - $46,900; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,165, automobile allowance - $4,824, other benefits - $8,825; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $53,773, SERP (4) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $12,031, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $192,980, 401(k) bonus - $7,590; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $59,767, long-term incentive plan payment, which was previously reported (6) - $32,057, long-term incentive plan treatment award (3) - $23,100; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,559, automobile allowance - $2,376, other benefits - $4,125 (C) Deferred Compensation: long-term incentive plan benefit (6) - $26,485, SERP (4) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $261,919; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $69,894, long-term incentive plan payment, which was previously reported (6) - $47,912, long-term incentive plan treatment award (3) - $33,500; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $7,924, Section 457(b) Plan (5) - $11,725; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $39,099, SERP (4) - $42,551; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $133,626; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $34,426, long-term incentive plan payment, which was previously reported (6) - $23,599, long-term incentive plan treatment award (3) - $16,500; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,775; (C) Deferred Compensation: long-term incentive plan benefit (6) - $19,258, SERP (4) - $20,958; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $399,981; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $100,385, long-term incentive plan payment, which was previously reported (6) - $72,377, long-term incentive plan treatment award (3) - $50,000; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,500; other benefits including taxable general organization group term life insurance premium - $5,512; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $58,531, SERP (4) - $88,054; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $10,760, employee contribution to flexible spending account benefit - $1,600, employee contribution to general organization health plan benefit - $3,801 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $300,886; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $73,902, long-term incentive plan payment, which was previously reported (6) - $30,185, long-term incentive plan treatment award (3) - $35,000; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $4,430, Section 457(b) Plan (5) - $17,500; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $27,386, SERP (4) - $5,107; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2014 Plan Year. (3) This is an award under a plan that pays a specified dollar amount only if and when the FDA approves certain pre-specified types of therapies. In the event the employee terminates employment prior to FDA approval of the specified therapy type and payment of the award, the employee will forfeit his or her right to receive payment, unless termination is due to retirement or disability. The plan will terminate on December 31, 2018 unless the Foundation determines to extend the plan. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or date, depending on the participant). C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. Each year, a new three-year performance period begins. As required by the Form 990 instructions, the amounts reported on this Form 990 reflect an estimate of the portion of each award that the executive accrued under the Plan for performance in 2014 (i.e., with respect to the 2012-2014, 2013-2015 and the 2014-2017 performance periods), but the amounts reported have not been earned, awarded or paid under the Plan. The individual must be employed on 12/31/15 and 12/31/16 to be eligible to receive full payment of the award for the 2013-2015, and the 2014-2016 performance periods, respectively. The award relating to the 3-year performance period ending 12/31/13 was paid in 2014, and is properly reported again (as compensation) on this Form 990. X 77 52233 Net Cash Receipts X 132 1279262 Net Cash Receipts X tangible and service auction items 23434 9840640 Net Cash Receipts 1 false true true third party seller SCH M, LINE 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS. REVIEW OF 990 BY GOVERNING BODY Part VI, Section B, Line 11b (Page 6 Core Form) The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Board of Trustees received a complete copy of the final form 990 before it is filed. CONFLICT OF INTEREST MONITORING Part VI, Section B, Line 12c (Page 6 Core Form) A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2014 and had no conflicts of interest as defined by the policy. interest as defined by the policy. DETERMINING COMPENSATION Part VI, Section B, Line 15a and 15b (Page 6 Core Form) The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent, to fulfill the critically important mission of curing cystic fibrosis and providing all people with the disease the opportunity to lead full, productive lives. The subordinates included in this group return do not have their own officers. Rather, the officers of the Cystic Fibrosis Foundation serve as the officers of each subordinate included in this group return. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation for officers. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers of the organization: President & CEO Executive Vice President, COO and Secretary Executive Vice President for Medical Affairs Executive Vice President & CFO The process was last undertaken in 2014. PUBLIC INSPECTION Part VI, Section C, Line 19 (Page 6 Core Form) Forms 1023 and 990-T for the Cystic Fibrosis Foundation were available on its website,CFF.org and the Cystic Fibrosis Foundation's website provided a direct link to its Form 990 on Guidestar.org. The Foundation's governing documents (Bylaws and Articles of Incorporation) were available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents was also available on the Foundation's website, www.cff.org during 2014. The Board and Officer Conflict of Interest Policy and the audited financial statements were available on the Foundation's website, www.cff.org during 2014. COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, ETC PART VII, SECTION A NAME AND TITLE MICHAEL L. BEATTY, ESQ., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE J. TAYLOR CRANDALL, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE RICHARD L. DANDURAND, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE LOUIS DEFALCO, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE RICHARD J. GRAY, ESQ., VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CAROLE B. GRIEGO, M.D. AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE SUSAN L. HOOK, LEADERSHIP COUNCIL CHAIR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CATHERINE C. MCLOUD, CHAIR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 11 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CHAD T. MOORE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE DAVID A. MOUNT, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE GARY B. SABIN, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE STEVEN SHAK, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CHARLES J. THAYER, TREASURER AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE AMY S. WEINBERG, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE PAUL W. WHETSELL, EXEC VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE KC BRYAN WHITE ADULT ADVISORY COUNCIL CHAIR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE ROBERT J. BEALL, PH.D, PRES/CEO AVG HRS WORKED 4 HRS AVG HRS WORKED - RELATED 56 HRS POSITION INDIVIDUAL TRUSTEE & OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 973,691 EST. AMT OF OTHER COMP 224,033 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP & COO AND SECRETARY AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 645,755 EST. AMT OF OTHER COMP 189,266 NAME AND TITLE PRESTON W. CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 4 HRS AVG HRS WORKED - RELATED 56 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 646,800 EST. AMT OF OTHER COMP 174,822 NAME AND TITLE VERA H. TWIGG, EXEC VP & CFO AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 461,903 EST. AMT OF OTHER COMP 85,449 NAME AND TITLE BARBARA BALIK, DIR OF SPECIAL GIVING AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP EMPLOYEE REPORTABLE COMP FROM THE ORG 125,484 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP 18,150 NAME AND TITLE TERESA GAUDIO ASSOCIATE EXECUTIVE DIRECTOR AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP EMPLOYEE REPORTABLE COMP FROM THE ORG 103,659 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP 8,232 TOTAL REPORTABLE COMP FROM THE ORG 229,143 TOTAL REPORTABLE COMP FROM RELATED ORG 2,728,149 TOTAL EST. AMT OF OTHER COMP 699,952 cystic fibrosis foundation therapeutics 6931 ARLINGTON RD BETHESDA MD 20814 912059167 RESEARCH MD 501(c)(3) 11A cff hq false Cystic fibrosis foundation- headquarters 6931 ARLINGTON RD BETHESDA MD 20814 131930701 research DE 501(c)(3) 7 na false false true false false false false false false false false false false false false false false false false Cystic fibrosis foundation - headquarters 1b 90795086 FMV NORTHERN NEW ENGLAND CHAPTER 114 Perimeter Rd Units G and H Nashua NH 03063 026013029 CYST MASSACHUSETTS-RHODE ISLAND CHAPTER 220 North Main St Suite 104 Natick MA 01760 042297106 CYST CONNECTICUT CHAPTER 101 CENTERPOINT DR STE 107 MIDDLETOWN CT 06457 060834391 CYST GREATER NEW YORK CHAPTER 424 MADISON AVE 6TH FLOOR New York NY 10017 133133923 CYST NORTHEASTERN NEW YORK CHAPTER 16 WADE ROAD SUITE 2 LATHAM NY 12110 146027360 CYST WESTERN NEW YORK CHAPTER 1775 WEHRLE DRIVE SUITE 150 WILLIAMSVILLE NY 14221 160869529 CYST ROCHESTER CHAPTER PO BOX 368 PITTSFORD NY 14534 160875760 CYST CENTRAL NEW YORK CHAPTER 2507 james st suite 106 SYRACUSE NY 13206 160919466 CYST GREATER NEW JERSEY CHAPTER 1719 STATE RT 10 SUITE 229 PARSIPPANY NJ 07054 221901115 CYST DELAWARE VALLEY CHAPTER 2004 Sproul Rd Suite 208 Broomall PA 19008 231518199 CYST CENTRAL PENNSYLVANIA CHAPTER 2408 PARK DRIVE SUITE A Harrisburg PA 17110 231683126 CYST NORTHEASTERN PENNSYLVANIA CHAPTER 1541 Alta Dr Suite 204 Whitehall PA 18052 232299592 CYST INDIANA CHAPTER 1261 W 86th St Suite E-2 Indianapolis IN 46260 237117120 CYST WESTERN PENNSYLVANIA CHAPTER 810 River Ave Suite 100 Pittsburgh PA 15212 251155227 CYST CENTRAL OHIO CHAPTER 740 Lakeview Plaza Blvd SUITE 225 Worthington OH 43085 310680391 CYST GREATER CINCINNATI CHAPTER 4420 Carver Woods Dr CINCINNATI OH 45242 310708677 CYST GREATER ILLINOIS CHAPTER 150 N Michigan AVE SUITE 1550 Chicago IL 60601 362468111 CYST MICHIGAN CHAPTER 2265 Livernois Suite 410 Troy MI 48083 381723341 CYST WISCONSIN CHAPTER 20875 CROSSROADS CIR SUITE 350 Waukesha WI 53186 390987132 CYST MINNESOTA CHAPTER 8011 34TH AVENUE SOUTH SUITE 116 BLOOMINGTON MN 55425 410877670 CYST IOWA CHAPTER 4150 WESTOWN PARKWAY SUITE 203 W Des Moines IA 50266 426096497 CYST HEART OF AMERICA CHAPTER 6950 Squibb Rd Suite 310 Mission KS 66202 430814799 CYST GATEWAY CHAPTER 8251 MARYLAND AVE SUITE 12 CLAYTON MO 63105 436016821 CYST NEBRASKA CHAPTER 11917 Pierce Plaza Omaha NE 68144 470527737 CYST MARYLAND CHAPTER 10626 YORK ROAD SUITE A Cockeysville MD 21030 526019357 CYST METROPOLITAN WASHINGTON DC CHAPTER 6931 Arlington Rd Suite B Bethesda MD 20814 526068825 CYST VIRGINIA CHAPTER 1500 FOREST AVENUE SUITE 124 Richmond VA 23229 540859311 CYST CAROLINAS CHAPTER 7101 CREEDMOOR RD SUITE 130 Raleigh NC 27613 560902621 CYST SOUTH CAROLINA CHAPTER 537 LONG POINT ROAD SUITE 203 MOUNT PLEASANT SC 29464 570539635 CYST GEORGIA CHAPTER 2302 Parklake Dr NE Suite 210 Atlanta GA 30345 580943901 CYST NORTHERN OHIO CHAPTER 5410 transportation blvd suite 5 Garfield heights OH 44125 581315123 CYST FLORIDA CHAPTER 3443 NW 55th St Bldg 1 Ft Lauderdale FL 33309 591280455 CYST KENTUCKY-WEST VIRGINIA CHAPTER 1941 BISHOP LANE SUITE 108 LOUISVILLE KY 40218 610673019 CYST TENNESSEE CHAPTER 4825 Trousdale Dr Suite 238 Nashville TN 37220 620851705 CYST ALABAMA CHAPTER 200 cahaba park circle suite 114 birmingham AL 35242 630511731 CYST MISSISSIPPI CHAPTER 1907 Dunbarton Dr Suite C Jackson MS 39216 640473630 CYST SACRAMENTO CHAPTER 4804 GRANITE DRIVE SUITE F-140 ROCKLIN CA 95677 680448497 CYST ARKANSAS CHAPTER 1501 n peirce st suite 114 Little Rock AR 72207 716053928 CYST LOUISIANA CHAPTER 1215 prytania st suite 371 new orleans LA 70130 720572440 CYST SOONER CHAPTER 2642 E 21st St Suite 100 Tulsa OK 74114 730932820 CYST TEXAS GULF COAST CHAPTER 50 Briar Hollow Lane suite 250E Houston TX 77027 741400718 CYST LONE STAR CHAPTER 6800 PARK TEN BVLD SUITE 131e San Antonio TX 78213 741487797 CYST CENTRAL TEXAS CHAPTER 3316 Bee Cave Rd Suite A Austin TX 78746 742326310 CYST NORTHEAST TEXAS CHAPTER 3102 MAPLE AVENUE SUITE 120 Dallas TX 75201 751233021 CYST COLORADO CHAPTER 400 S COLORADO BLVD SUITE 840 Denver CO 80246 840513516 CYST NEW MEXICO CHAPTER PO BOX 16232 Albuquerque NM 87191 850193380 CYST ARIZONA CHAPTER 5055 e washington st suite 130 Phoenix AZ 85034 860185398 CYST UTAH CHAPTER 124 SOUTH 400 EAST SUITE 250 SALT LAKE CITY UT 84111 876127344 CYST NEVADA CHAPTER 7582 LAS VEGAS BLVD SUITE 474 LAS VEGAS NV 89123 880364349 CYST WASHINGTON CHAPTER 520 Pike St Suite 1075 Seattle WA 98101 911742590 CYST OREGON CHAPTER 2701 NW VAUGHN ST SUITE 203 Portland OR 97210 936038596 CYST NORTHERN CALIFORNIA CHAPTER 455 MARKET ST SUITE 640 San Francisco CA 94105 941710453 CYST SAN DIEGO CHAPTER 10455 SORRENTO VALLEY RD Suite 103 San Diego CA 92121 952248725 CYST SOUTHERN CALIFORNIA CHAPTER 2150 Towne Center Pl Suite 120 Anaheim CA 92806 956219308 CYST