2015-07-02T11:19:21-05:00 2014-12-31 410746749 CLIFTONLARSONALLEN LLP 220 SOUTH SIXTH STREET SUITE 300 MINNEAPOLIS MN 55402 990 2014-01-01 411984675 CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION CHIL 6129286326 201 CHICAGO AVENUE NO 200 MINNEAPOLIS MN 55415 W DONALD SHIELDS PRESIDENT 6129286326 2015-06-18 1 AMY HENDLEY P01300654 6123764500 2014 2016-02-25 16:41:14Z W DONALD SHIELDS 201 CHICAGO AVENUE NO 200 MINNEAPOLIS MN 55415 1315597 0 X WWW.CHILDNEUROLOGYFOUNDATION.ORG X 2000 MN TO IMPROVE THE LIVES OF CHILDREN WITH NEUROLOGIC DISORDERS BY FOSTERING CONNECTIONS BETWEEN PATIENTS AND THEIR FAMILIES, PHYSICIANS, OTHER HEALTHCARE PROFESSIONALS, AND PARTNERS TO ADVANCE CHILD NEUROLOGY AND IMPROVE QUALITY OF CARE. 13 13 0 15 0 0 1078482 1191713 0 100000 34 382 -55370 -185667 1023146 1106428 298055 255163 0 0 211151 304573 0 16500 81830 215560 211152 724766 787388 298380 319040 1030413 1261986 459257 371790 571156 890196 X CNF SERVES PATIENTS, FAMILIES, CHILD NEUROLOGY PROFESSIONALS, AND ADVOCACY ORGANIZATIONS REPRESENTING THE ONE-IN-FOUR CHILDREN AFFECTED BY OVER FOUR HUNDRED PEDIATRIC NEUROLOGIC DISEASES INCLUDING EPILEPSY, AUTISM, MIGRAINE, CEREBRAL PALSY AND ADHD. ADVANCEMENTS IN EDUCATION, ADVOCACY, AND RESEARCH IMPROVE THE OPPORTUNITY FOR ALL CHILDREN AFFECTED BY NEUROLOGIC DISEASE TO REACH THEIR FULL POTENTIAL. 0 0 199163 199163 RESEARCH GRANTS: CNF FUNDS RESEARCH BY CHILD NEUROLOGISTS EARLY IN THEIR RESEARCH CAREERS TOWARD FINDING CURES FOR NEUROLOGIC DISORDERS AFFECTING CHILDREN. 226109 21000 100000 EDUCATION/ADVOCACY: THE INFANTILE SPASMS AWARENESS PROGRAM PROVIDES EDUCATIONAL INFORMATION AND RESOURCES TO PARENTS, CAREGIVERS, PROVIDERS, AND THE PUBLIC TO INCREASE AWARENESS OF THE SYMPTOMS, DIAGNOSIS, TREATMENT, AND SUPPORT OF INFANTILE SPASMS THROUGH A DISEASE-SPECIFIC WEBSITE, BROCHURES, VIDEOS, A PROVIDER AWARD, PATIENT/FAMILY MINI-GRANTS, AND AN ANNUAL AWARENESS WEEK. 78750 TRANSITION PROGRAM: IN 2014, CNF UNDERTOOK A ROBUST EFFORT TO ADDRESS THE UNIQUE NEEDS OF CHILD NEUROLOGISTS AND THEIR PATIENTS AS THEY TRANSITION FROM THE PEDIATRIC TO ADULT HEALTHCARE SYSTEM. THIS EFFORT WAS IN RESPONSE TO THE 2011 PRIMARY CARE COMMUNITY'S CONSENSUS STATEMENT THAT CALLED FOR SUBSPECIALISTS TO OUTLINE THEIR ROLE IN TRANSITION. CNF'S LEADERSHIP THROUGH THIS PROJECT ENABLES NEUROLOGY TO RESPOND TO THIS CALL -TO-ACTION TO A DEGREE NO OTHER SUBSPECIALTY HAS DONE TO DATE. YEAR ONE ACTIVITIES FOCUSED ON AUTHORING A CONSENSUS PAPER WHICH DEFINES THE CHILD NEUROLOGIST'S ROLE DURING TRANSITION PROCESS. RECOMMENDATIONS REGARDING PROVIDER'S CLINICAL PRACTICE, AS WELL AS RESOURCES AND RESEARCH NEEDED TO IMPLEMENT THE CONSENSUS STATEMENT FINDINGS ARE TO BE INCLUDED IN THE PUBLICATION. FUTURE GRANT YEAR FUNDING WILL FOCUS ON IMPLEMENTING THE STATEMENT'S FINDINGS. 35000 35000 EDUCATIONAL SCHOLARSHIPS: THE SWAIMAN SCHOLARSHIPS PROVIDE TEN 1ST- AND 2ND-YEAR MEDICAL STUDENTS WITH $3500 EACH TO EXPLORE THE FIELD THROUGH A SUMMER RESEARCH PROJECT UNDER THE MENTORSHIP OF A CHILD NEUROLOGIST. 35000 35000 539022 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 1 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 36 0 0 0 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 0 0 0 1 0 1 1 0 0 1 1 1 1 1 1 1 0 0 MN X AMERICAN ACADEMY OF NEUROLOGY 6129286002 201 CHICAGO AVE MINNEAPOLIS MN 55415 DR W DONALD SHIELDS PRESIDENT 1.00 X X 0 0 0 DR WILLIAM TRESCHER SECRETARY/TREASURER, PRESIDENT ELECT 1.00 X X 0 0 0 DR SHAFALI SPURLING JESTE TRUSTEE, SECRETARY/TREASURER ELECT 1.00 X X 0 0 0 DR STEPHEN ASHWAL TRUSTEE 1.00 X 0 0 0 DR JAN BRUNSTROM TRUSTEE 1.00 X 0 0 0 DR SIDNEY GOSPE TRUSTEE 1.00 X 0 0 0 NANCY HARRIS TRUSTEE 1.00 X 0 0 0 DR BENNETT LAVENSTEIN TRUSTEE 1.00 X 0 0 0 DR JOHN PELLOCK TRUSTEE 1.00 X 0 0 0 CATHERINE M RYDELL TRUSTEE 1.00 X 0 0 0 PETER SALTONSTALL TRUSTEE 1.00 X 0 0 0 DR NINA SCHOR TRUSTEE/EX-OFFICIO 1.00 X 0 0 0 DR ANN TILTON TRUSTEE 1.00 X 0 0 0 DR AMY WALDMAN TRUSTEE 1.00 X 0 0 0 AMY BRIN MILLER ACTING EXECUTIVE DIRECTOR 40.00 X 81627 0 13372 JOHN L STONE EXECUTIVE DIRECTOR UNTIL DEC 2014 40.00 X 79283 0 22442 160910 0 35814 0 0 0 0 0 147943 1043770 1191713 MEMBERSHIP DUES 900099 100000 100000 100000 382 382 22500 147943 209169 -186669 -186669 MISCELLANEOUS REVENUE 900099 1002 1002 1002 1106428 100000 0 -185285 255163 255163 86061 39020 16878 30163 157537 82942 64648 9947 5784 3150 2634 35265 17700 12717 4848 19926 9106 5859 4961 22000 22000 15080 15080 16500 16500 39234 15509 14392 9333 13636 9665 3596 375 7129 3120 2110 1899 51986 44448 6792 746 30662 28977 1685 MISCELLANEOUS EXPENSES 16921 12243 4632 46 FOOD & BEVERAGE 10988 2899 7906 183 MEMBERSHIP DUES 3516 0 687 2829 787388 539022 166536 81830 477850 313606 545363 944849 4700 4540 1009 2500 3531 1030413 1261986 49257 47627 360000 299163 50000 25000 459257 371790 X -179876 -362586 651032 1152782 100000 100000 571156 890196 1030413 1261986 319040 0 X 0 1 X 1 0 X 583256 634665 913403 973418 1191713 4296455 583256 634665 913403 973418 1191713 4296455 2796141 1500314 123 67 64 34 382 670 1002 1002 4298127 322500 0.34910 0.31550 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 0 0 1 15080 0 0 15080 0 PART II-B, LINE 1, LOBBYING ACTIVITIES: THE ORGANIZATION CONDUCTS CONGRESSIONAL LEVEL LOBBYING TO PROMOTE AND ADVOCATE FOR CHILDREN AND ADOLESCENTS WITH NEUROLOGIC AND DEVELOPMENT DISORDERS. 0 117590 382 117972 0.00000 0.85000 0.15000 0 0 4540 1009 3531 3531 X 1315597 209169 209169 1106428 0 1106428 996557 209169 209169 787388 0 787388 PART V, LINE 4: IN 2010, THE SOCIETY OF NEURODEVELOPMENTAL DISABILITIES (NDD) DISSOLVED; AND THEREBY, TRANSFERRED REMAINING ASSETS TO THE CNF. THESE FUNDS ARE INTENDED TO ENDOW AN ANNUAL EDUCATIONAL SCHOLARSHIP FOR A MEDICAL STUDENT INTERESTED IN THE FIELD OF CHILD NEUROLOGY; WITH PRIORITY GIVEN TO AN APPLICANT FOCUSED ON NEURO DEVELOPMENTAL DISABILITIES. THE INITIAL AWARD IS TO BE $3,500. THE AMOUNT OR THE NUMBER OF AWARDS MAY BE ADJUSTED BASED ON ENDOWMENT VALUE AND AS APPROVED BY THE BOARD OF CNF. THE CNF IS COLLABORATING WITH CURRENT LEADERSHIP IN THE NDD SUB-SPECIALTY AREA TO AWARD THE INAUGURAL SCHOLARSHIP IN 2015. PART X, LINE 2: THE FOUNDATION IS ORGANIZED AND OPERATES ON A NOT-FOR-PROFIT BASIS AND ITS TAX EXEMPT STATUS HAS BEEN RECOGNIZED BY THE INTERNAL REVENUE SERVICE UNDER SECTION 501(C)(3). THE FOUNDATION IS CLASSIFIED AS AN ORGANIZATION WHICH IS NOT PRIVATE FOUNDATIONS UNDER THE INTERNAL REVENUE CODE AND CHARITABLE CONTRIBUTIONS BY DONORS ARE TAX DEDUCTIBLE. THE FOUNDATION IS SUBJECT TO UNRELATED BUSINESS INCOME TAXES UNDER THE INTERNAL REVENUE CODE FOR FEDERAL AND STATE TAX PURPOSES. THE FOUNDATION HAS ADOPTED THE PROVISIONS OF FASB ASC 740-10-25, WHICH REQUIRES THAT A TAX POSITION BE RECOGNIZED OR DERECOGNIZED BASED ON A "MORE LIKELY THAN NOT" THRESHOLD. THIS APPLIES TO POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE FOUNDATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY UNCERTAIN TAX POSITIONS. THE FOUNDATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AUTHORITIES. THE TAX RETURNS FOR THE YEARS 2011 THROUGH 2013 ARE OPEN TO EXAMINATION BY FEDERAL AUTHORITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES 209,169. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES 209,169. X 1 BLUE ROOM EVENTS 5777 W CENTURY BLVD LOS ANGELES CA 90045 COORDINATED HEROS DINNER 1 109306 16500 92806 109306 16500 92806 MARDI GRAS 61137 61137 10454 1500 39988 HEROS 109306 86806 22500 55718 822 100687 170443 147943 22500 66172 2322 140675 209169 -186669 1 RESEARCH GRANT 2 199163 N/A N/A MEDICAL STUDENT SCHOLARSHIP 10 35000 N/A N/A INFANTILE SPASMS MINI-GRANTS 19 19000 N/A N/A OTHER GRANTS AND ASSISTANCE 2 2000 N/A N/A PART I, LINE 2: THE CHILD NEUROLOGY FOUNDATION HAS AN EXCELLENT HISTORY OF SELECTING THE VERY BEST RESEARCHERS FOR ITS AWARDS. WE PUBLICIZE THE AWARD TO REQUEST CANDIDATES WITH THE AMERICAN ACADEMY OF NEUROLOGY; PROFESSORS OF CHILD NEUROLOGY IN AMERICA'S MEDICAL SCHOOLS; AMERICAN SOCIETY OF PEDIATRIC DEPARTMENT CHAIRS; THE AMERICAN ACADEMY OF PEDIATRICS; AND PLACE ADS IN PEDIATRIC NEUROLOGY. CHILD NEUROLOGIST RESEARCHER APPLICANTS ARE ASKED TO SUBMIT A LETTER OF APPLICATION. THESE LETTERS ARE RANKED BY A COMMITTEE OF WELL-RESPECTED CHILD NEUROLOGISTS. (MEMBERS AVOID CONFLICT OF INTEREST BY RECUSING THEMSELVES). TOP CONTENDERS ARE INVITED TO SUBMIT FULL APPLICATIONS. CNF USES A HYBRID OF THE NIH RESEARCH APPLICATION. THE COMMITTEE THEN RANKS AND SUBMITS THE TOP APPLICANT TO THE CNF BOARD OF DIRECTORS FOR CONFIRMATION. OUTSIDE DONORS ARE NOT INVOLVED IN THE SELECTION OF THE AWARDEE OR ANY GUIDELINES REGARDING THE USE OF RESEARCH FUNDS. GRANT AWARD CHECKS ARE NEVER MADE PAYABLE TO THE INDIVIDUAL RESEARCHER. RATHER, CHECKS ARE MADE PAYABLE TO THE INSTITUTIONS FOR WHICH THEY EITHER WORK OR GO TO SCHOOL. REPORTS ARE REQUIRED OF THE RESEARCHER AT THE MIDPOINT OF THEIR RESEARCH IN THE FORM OF PROGRESS REPORTS AND AT THE END TO SHOW THE RESULTS OF THEIR RESEARCH. IN THE CASE OF SCHOLARSHIP RECIPIENTS THE SAME IS TRUE. CHECKS ARE MADE PAYABLE TO THEIR INSTITUTION AND THEIR REPORTS ARE DUE AT THE END OF THEIR RESEARCH. FORM 990, PART VI, SECTION A, LINE 1 THE BOARD OF DIRECTORS MAY BY RESOLUTION ESTABLISH AN EXECUTIVE COMMITTEE AND APPOINT TWO OR MORE DIRECTORS TO SERVE ON SUCH EXECUTIVE COMMITTEE. EXCEPT FOR THE POWERS TO AMEND THE ARTICLES OF INCORPORATION AND BYLAWS OF THE FOUNDATION, THE EXECTUIVE COMMITTEE SHALL HAVE ALL OF THE POWERS AND AUTHORITY OF THE BOARD OF DIRECTORS IN THE MANAGEMENT OR THE PROPERTY, BUSINESS, AND AFFAIRS OF THE FOUNDATION IN THE INTERVALS BETWEEN MEETINGS OF THE BOARD OF DIRECTORS, SUBJECT ALWAYS TO THE CONTROL OF THE BOARD. FORM 990, PART VI, SECTION A, LINE 7A THE EXECUTIVE COMMITTEE OF THE CHILD NEUROLOGY SOCIETY HAS THE RIGHT TO APPROVE THE FOUNDATION'S BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11 THE ORGANIZATION'S FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM AND THE ORGANIZATION'S EXECUTIVE COMMITTEE REVIEW THE FORM 990. THE FORM 990 IS MADE AVAILABLE TO THE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE FOUNDATION HAS A CONFLICT OF INTEREST POLICY COVERING ALL BOARD MEMBERS. BOARD MEMBERS COMPLETE A POLICY FORM ON AN ANNUAL BASIS WHICH IS MONITORED AND REVIEWED BY BOARD OFFICERS AFTER SUBMISSION. SHOULD A CONFLICT EXIST, THE BOARD WOULD DETERMINE THE APPROPRIATE ACTION INCLUDING OMISSION FROM VOTING ON ANY RELATED MATTERS AND DOCUMENT IN THE MEETING MINUTES. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR OF THE FOUNDATION HAS A SALARY THAT IS DETERMINED BY THEIR INDEPENDENT MANAGING ORGANIZATION. THE MANAGING ORGANIZATION USES RELATIVE DATA INCLUDING THE COMPENSATION OF LIKE-SIZED FOUNDATIONS TO HELP DETERMINE THE APPROPRIATE SALARY LEVEL. THE COMPENSATION IS REVIEWED ON AN ANNUAL BASIS AND WAS LAST CONDUCTED IN 2014 FOR ACTING EXECUTIVE DIRECTOR, AMY BRIN MILLER. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO PUBLIC. THE ORGANZATION'S FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. CHILD NEUROLOGY SOCIETY 1000 WEST COUNTY ROAD E NO 290 ST PAUL MN 55126 237359775 PROFESSIONAL SOCIETY MN 501(C)(3) LINE 9 N/A 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0