2015-01-18T10:16:05-07:00 2014-09-30 990EZ 2013-10-01 300585106 Rothmund-Thomson Syndrome Foundation ROTH 7038023167 4307 Woodward Court Chantilly VA 20151 John Kimmel Chair 7038023167 2015-01-18 2013 2016-02-25 16:41:14Z X www.rtsplace.org X X 30564 X 10745 0 0 0 0 0 0 11668 8151 4488 15331 0 0 0 0 26076 14660 0 0 602 0 443 2435 18140 7936 49546 0 57482 49546 57482 0 0 0 0 49546 57482 0 0 49546 57482 Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes Hosted a Sharing and Caring Conference during Nov 2013 in London, UK. Contacted doctors at the Great Ormond Street Hospital and coordinated use of their facilities and doctor participation in the event. Arranged for RTS specialist from Baylor Medical Center to participate in the conference. A total of 15 families from Europe participated in the conference. 0 12096 Sponsored genetic testing for RTS families. 0 2500 Prepared educational materials to hand out at conferences and to share with medical professionals. 0 64 14660 John Kimmel Chair 20 0 0 0 Laurie Sperou Vice-Chair 20 0 0 0 Shelley Sanders Treasurer 10 0 0 0 Ta-Tara Rideau Secretary 10 0 0 0 Emil Zakutny Director 10 0 0 0 Peter Chadha Director 10 0 0 0 Gillian O'Reilly Director 10 0 0 0 Sandra Sperou Director 10 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 CA IL MA MD ME MI NH NM NY PA VA John Kimmel 4307 Woodward Court Chantilly VA 20151 7038023167 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 3145 5995 10255 10256 10725 40376 0 0 0 0 0 0 0 0 3145 5995 10255 10256 10725 40376 40376 0 0 0 0 0 0 0 0 0 0 0 0 40376 0 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 10 These expenses covered the cost of hosting a Caring and Sharing Conference in London, including travel and lodging expenses for families attending. Funds were also allocated to pay for Genetic Testing for two families. Form 990-EZ, Part I, Line 16 Description;Amount^State Registration Fees and renewals;511|Board meeting expenses;1924^Total;2435^