2016-05-09T11:56:47-05:00 2015-12-31 954557617 Harrington Group CPAs LLP 234 East Colorado Blvd Suite M150 Pasadena CA 91101 990 2015-01-01 454597425 The Familial Hypercholesterolemia Foundation FAMI 6265834674 959 E Walnut Street No 220 Pasadena CA 91106 Katherine Wilemon CEO 6265834674 2016-05-09 1 Tonetta L Conner P01775198 6264036801 2015 2016-09-27 15:27:22Z The FH Foundation Katherine Wilemon 959 E Walnut Street No 220 Pasadena CA 91106 4349570 0 X www.thefhfoundation.org X 2012 CA The Familial Hypercholesterolemia Foundation's (FH) mission is to raise awareness and save lives by increasing the rate of early diagnosis and encouraging proactive treatment. If left untreated, FH leads to aggressive and premature heart disease in women, men and children of all racial and ethnic backgrounds. 7 6 11 0 0 0 2008384 2948133 1088000 1400000 3494 1437 0 0 3099878 4349570 0 0 0 0 256324 587888 0 0 59405 1191803 2594027 1448127 3181915 1651751 1167655 3582214 4836419 31226 117776 3550988 4718643 X The FH Foundation is a patient-centered nonprofit organization dedicated to education, advocacy, and research of Familial Hypercholesterolemia(FH). 0 0 1158238 FIND FH is a comprehensive initiative that will utilize advanced machine-learning, natural language processing, and data mining techniques to identify individuals with FH on a national scale. FIND FH is one initiative with three elements: Data Mining, Lab Results and Claims Data Mining, and Individual Engagement. 1105777 Cascade Registry - To address gaps in familial hypercholesterolemia (FH) diagnosis and treatment, the FH Foundation has launched a national FH patient registry, the CASCADE FH designed to collect comprehensive data on individuals with confirmed or suspected FH on a longitudinal basis. The CASCADE FH Registry will serve as a key instrument to support health service planning, increase knowledge on the disease and pool data for epidemiological, clinical and outcomes research, as well as for surveillance of therapy effectiveness. CASCADE FH stands for "Cascade Screening for Awareness and Detection of FH." The name, CASCADE FH, highlights the need for systematic cascade screening of families to improve the rate of diagnosis and quality of FH care. The registry operates using a dual-pathway enrollment design that maximizes outreach and provides both the clinical and patient perspective of the disease. 455717 Summit - The FH Global Summit is an annual event solely dedicated to the science and treatment of FH. It is a global gathering of medical experts, patient advocacy organizations, health care providers, and individuals with FH. The two-day event features compelling presentations that provide a platform to share insights and practices for improved awareness, diagnosis and treatment of FH. 170459 Advocates for Awareness - The FH Foundation 's FH Advocates for Awareness is designed to engage and empower individuals living with familial hypercholesterolemia (FH). The FH Advocates receive formal training as public speakers and FH Foundation representatives. 67393 See FH (Outreach) - Support, Educate, Empower (SEE) FH program was established to address the shortcomings and lack of awareness in the general public and the medical community about FH inheritability and diagnosis standards. This program aims to raise awareness and increase knowledge of FH in the general population and among health care providers.Global Network - The FH Foundation has garnered attention from key opinion leaders in the realms of cardiology, lipidology and genetics, as well with international scientific and professional organizations. With a Scientific Advisory Board comprised of the top national FH experts, combined with our current, global strategic stakeholder relationships, the organization is uniquely positioned to be a nexus for both emerging and already established FH advocacy groups. The goal is to collaborate with other patient-centric FH Organizations (Global Affiliates) that share the same mission. 237852 2957584 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 11 1 0 0 0 0 0 0 0 0 0 0 X 7 6 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 CA X The Organization 6265834674 959 E Walnut Street No 220 Pasadena CA 91106 William Neal Chair 1.00 X X 0 0 0 Stacey Lane Vice Chair 1.00 X X 0 0 0 Seth Baum Secretary/Treasurer 1.00 X X 0 0 0 Katherine Wilemon CEO 40.00 X X 200000 0 0 Joshua Knowles Board Member 1.00 X 0 0 0 Dan Rader Board Member 1.00 X 0 0 0 Christian Jacobs Board Member 1.00 X 0 0 0 200000 0 0 1 0 1 0 DCRI PO Box 17969 Durham NC 27715 Consulting 546866 IMS Health Inc PO Box 8500-4290 Philadelphia PA 19178 Consulting 388300 Atomo 700 Lavaca Ste 1400-2480 Austin TX 78701 Consulting 383734 Zilker Technology 103 E 5th Street Ste 203 Austin TX 78701 Consulting 149291 4 2948133 2948133 Program service fees 900099 1400000 1400000 1400000 1437 1437 4349570 1400000 0 1437 X 200000 172400 27600 339625 292462 4448 42715 5378 3783 1148 447 42885 30277 9392 3216 103654 99819 3524 311 50401 49678 572 151 530580 510905 18040 1635 176894 162335 12718 1841 65720 44861 20032 827 50078 48225 1703 150 55508 42096 10938 2474 202809 197119 4852 838 2246 494 1752 2210 2210 10247 8719 1131 397 Data & research 1139112 1096965 38730 3417 Events 173066 170750 2316 Temporary staffing 18292 17615 621 56 Licenses & fees 11911 9081 1900 930 1299 1299 3181915 2957584 164926 59405 709319 719560 50001 2806053 1726115 1280237 1088000 2600 21451 3936 3579 17515 5200 10454 3582214 4836419 31226 117776 31226 117776 X 52581 1907517 3498407 2811126 3550988 4718643 3582214 4836419 1167655 0 X 0 1 X 1 0 X 581875 2515111 2008384 2948133 8053503 581875 2515111 2008384 2948133 8053503 6974948 1078555 1439 1439 966 1222 3494 5682 8060624 2488000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 10917 397 10520 10534 3539 6995 17515 X 4349570 0 4349570 0 4349570 3181915 0 3181915 0 3181915 Part X, Line 2: The FH Foundation is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by The FH Foundation in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. The FH Foundation's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed. X 0 0 0 0 0 0 0 0 0 Katherine Wilemon CEO 200000 0 0 0 0 0 0 0 0 0 200000 0 0 0 Form 990, Part VI, Section B, line 11 The Form 990 is e-mailed to each member and reviewed via electronic media prior to filing. Form 990, Part VI, Section B, line 12c Conflicts of interest are monitored annually and reviewed by the governing body prior to approval or determination of action. Form 990, Part VI, Section B, line 15a The CEO's salary is reviewed on an annual basis by the Board of Directors and then approved by the Executive Committee. Part VI, line 15(b) was answered "no" as there were no other officers or key employees as defined in Form 990 instructions who received compensation. Form 990, Part VI, Section C, line 19 All documents are available to the public upon request. Form 990, Part IX, line 11g Other professional services: Program service expenses 510,905. Management and general expenses 18,040. Fundraising expenses 1,635. Total expenses 530,580.