2016-05-04T10:25:35-05:00 2015-12-31 410746749 CLIFTONLARSONALLEN LLP 220 SOUTH SIXTH STREET SUITE 300 MINNEAPOLIS MN 55402 990 2015-01-01 411984675 CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION CHIL 9528467942 201 CHICAGO AVENUE NO 200 MINNEAPOLIS MN 55415 WILLIAM TRESCHLER MD PRESIDENT 9528467942 2016-04-25 1 DEIRDRE HODGSON P01484710 6123764500 2015 2016-09-27 15:27:22Z WILLIAM TRESCHLER MD 1611 WOODHAVEN DRIVE HUMMELSTOWN PA 17036 643313 0 X WWW.CHILDNEUROLOGYFOUNDATION.ORG X 2000 MN TO IMPROVE THE LIVES OF CHILDREN WITH NEUROLOGIC DISORDERS BY STRENGTHENING CONNECTIONS BETWEEN PATIENTS AND THEIR FAMILIES, PHYSICIANS, OTHER HEALTHCARE PROFESSIONALS, AND ADVOCACY AND INDUSTRY PARTNERS. 13 13 0 16 0 0 1191713 491002 100000 150000 382 310 -185667 2001 1106428 643313 255163 144118 0 0 304573 229031 16500 0 21426 211152 231297 787388 604446 319040 38867 1261986 1334667 371790 405604 890196 929063 X CNF SERVES PATIENTS, FAMILIES, CHILD NEUROLOGY PROFESSIONALS, AND ADVOCACY ORGANIZATIONS REPRESENTING THE ONE-IN-SIX CHILDREN AFFECTED BY OVER FOUR HUNDRED PEDIATRIC NEUROLOGIC DISEASES INCLUDING EPILEPSY, AUTISM, MIGRAINE, CEREBRAL PALSY AND ADHD. ADVANCEMENTS IN EDUCATION, ADVOCACY, AND RESEARCH IMPROVE THE OPPORTUNITY FOR ALL CHILDREN AFFECTED BY NEUROLOGIC DISEASE TO REACH THEIR FULL POTENTIAL. 0 0 129618 129618 RESEARCH GRANTS: SINCE 2001, CHILD NEUROLOGY FOUNDATION HAS AWARDED OVER 3.5 MILLION DOLLARS TO THE RESEARCH ENDEAVORS OF 69 YOUNG INVESTIGATORS, AIMED AT IDENTIFYING TREATMENTS AND CURES FOR PEDIATRIC NEUROLOGIC DISEASES. GRANTS SUPPORT TRANSLATIONAL, CLINICAL, OR BASIC RESEARCH BY CHILD NEUROLOGISTS EARLY IN THEIR ACADEMIC CAREERS. 72194 TRANSITION PROGRAM: IN 2014, CNF UNDERTOOK AN EFFORT TO ADDRESS THE UNIQUE NEEDS OF CHILD NEUROLOGISTS AND THEIR PATIENTS AS THEY TRANSITION FROM THE PEDIATRIC TO ADULT HEALTHCARE SYSTEM. YEAR ONE ACTIVITIES FOCUSED ON AUTHORING A CONSENSUS PAPER WHICH DEFINES THE NEUROLOGIST'S ROLE DURING TRANSITION PROCESS. RECOMMENDATIONS REGARDING PROVIDER'S CLINICAL PRACTICE AS WELL AS RESOURCES AND RESEARCH NEEDED TO IMPLEMENT THE CONSENSUS STATEMENT FINDINGS ARE TO BE INCLUDED IN THE PUBLICATION. IN 2015, A TRANSITION PROJECT ADVISORY COMMITTEE (TPAC) PRODUCED A STRATEGIC DOCUMENT THAT OUTLINES RECOMMENDATIONS FOR IMPLEMENTATION IN ORDER TO ADVANCE THE CONSENSUS STATEMENT'S FINDINGS. TPAC SUB-COMMITTEES INCLUDE DISSEMINATION/ PROMOTION OF CONSENSUS STATEMENT, CAREGIVER EDUCATION, CLINICAL TOOLS, AND QUALITY INITIATIVES. 180560 14500 150000 EDUCATION/ADVOCACY: WE HAVE PARTNERED WITH OTHER NATIONAL ADVOCACY ORGANIZATIONS TO LEAD A MULTI-YEAR INFANTILE SPASMS (IS) AWARENESS AND EDUCATION INITIATIVE. 2015 EFFORTS INCLUDED THE PUBLICATION OF AN IS EDUCATION INFOGRAPHIC; EDUCATIONAL VIDEOS IN ENGLISH & SPANISH; AN IS WEBINAR WITH PROVIDER, CAREGIVER, AND ADVOCATE PRESENTERS; A CONTINUING MEDICAL EDUCATION OPPORTUNITY FOR CHILD NEUROLOGISTS AT THE ANNUAL MEETING OF THE CHILD NEUROLOGY SOCIETY; THE ANNUAL IS HEROES AWARD AND BRENDAN MICHAEL HARNETT IS MINI-GRANT; AWARENESS BOOTHS AT THE CHILD NEUROLOGY SOCIETY AND AMERICAN EPILEPSY SOCIETY ANNUAL MEETINGS; AND INFANTILE SPASMS AWARENESS WEEK. 33796 WEBSITE REVISION: THIS WEBSITE WAS CREATED PRIMARILY TO SERVE AS AN EDUCATIONAL PORTAL FOR PATIENTS AND CAREGIVERS. IT ALSO ALLOWS OUR ADVOCACY AND INDUSTRY PARTNERS TO GET THE WORD OUT ABOUT THEIR OWN PROGRAMS, EDUCATIONAL MATERIALS, RESEARCH STUDIES, AND MANY OTHER INITIATIVES AIMED AT SERVING THE CHILD NEUROLOGY COMMUNITY. WHILE THERE ARE MANY VIABLE AND TRUSTWORTHY DISEASE-SPECIFIC ORGANIZATIONS, THE CHILD NEUROLOGY FOUNDATION IS IN A UNIQUE POSITION TO SERVE THE OVERARCHING NEEDS OF ALL MEMBERS OF THE COMMUNITY. THIS WEBSITE SERVES AS A HOME WITHIN THE CHILD NEUROLOGY COMMUNITY WHERE MEMBERS CAN BE CERTAIN THAT THE INFORMATION THEY RECEIVE IS CREDIBLE, AS ALL CONTENT IS VETTED BY CHILD NEUROLOGISTS. OUR DISORDER DIRECTORY ALLOWS VISITORS TO LEARN FROM THE EXPERTS WITH DISEASE-SPECIFIC ARTICLES WRITTEN FOR CAREGIVERS BY LEADING CHILD NEUROLOGISTS. ACCOMPANIED BY STORIES FROM FAMILIES LIVING WITH THE SAME DISORDERS AS WELL AS TRUSTED RESOURCES. THIS GROWING DIRECTORY SERVES AS A STARTING POINT FOR CAREGIVERS SEEKING DIRECTION AND GUIDANCE RELATED TO THEIR CHILD'S UNIQUE SITUATION. 33796 416168 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 19 0 0 0 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 MN X AMERICAN ACADEMY OF NEUROLOGY 6129286002 201 CHICAGO AVE MINNEAPOLIS MN 55415 DR WILLIAM TRESCHER PRESIDENT 1.00 X X 0 0 0 DR W DONALD SHIELDS PAST-PRESIDENT 1.00 X X 0 0 0 DR ANN TILTON PRESIDENT ELECT 1.00 X X 0 0 0 DR SHAFALI SPURLING JESTE SECRETARY 1.00 X X 0 0 0 DR AMY WALDMAN TREASURER 1.00 X X 0 0 0 DR STEPHEN ASHWAL TRUSTEE 1.00 X 0 0 0 DR JAN BRUNSTROM TRUSTEE 1.00 X 0 0 0 DR SIDNEY GOSPE TRUSTEE 1.00 X 0 0 0 NANCY HARRIS TRUSTEE (THROUGH OCTOBER 2015) 1.00 X 0 0 0 JOHN HUTCHINS TRUSTEE 1.00 X 0 0 0 ROGER LARSON TRUSTEE EX-OFFICIO 1.00 X 0 0 0 DR BENNETT LAVENSTEIN TRUSTEE 1.00 X 0 0 0 DR KEN MACK TRUSTEE 1.00 X 0 0 0 DR JOHN PELLOCK TRUSTEE 1.00 X 0 0 0 CATHERINE M RYDELL TRUSTEE (THROUGH OCTOBER 2015) 1.00 X 0 0 0 PETER SALTONSTALL TRUSTEE (THROUGH OCTOBER 2015) 1.00 X 0 0 0 DR NINA SCHOR TRUSTEE 1.00 X 0 0 0 SUE YUDOVIN TRUSTEE 1.00 X 0 0 0 AMY BRIN MILLER EXECUTIVE DIRECTOR 40.00 X 81785 0 26391 81785 0 26391 0 0 0 0 0 491002 491002 MEMBERSHIP DUES 900099 142500 142500 REGISTRATION FEES 900099 7500 7500 150000 310 310 MISCELLANEOUS REVENUE 900099 2001 2001 2001 643313 150000 0 2311 X 144118 144118 108176 49978 50409 7789 79880 37529 38310 4041 6668 3142 3213 313 7989 3789 3892 308 26318 12261 12441 1616 3370 3370 3076 3076 79258 68120 10694 444 5000 5000 9544 4758 4559 227 28500 13277 13472 1751 26587 24772 1567 248 35909 34717 1192 3431 3431 5438 853 4585 FOOD & BEVERAGE 25678 14676 11002 MISCELLANEOUS 3368 31 3337 MEMBERSHIP DUES 2138 2034 104 604446 416168 166852 21426 313606 468432 944849 851961 0 1529 15294 2549 3531 12745 1261986 1334667 47627 44422 299163 323682 25000 37500 371790 405604 X -362586 -229346 1152782 1058409 100000 100000 890196 929063 1261986 1334667 38867 0 X 0 1 X 1 0 X 634665 913403 973418 1191713 491002 4204201 634665 913403 973418 1191713 491002 4204201 2684007 1520194 67 64 34 382 310 857 1002 2001 3003 4208061 472500 0.36130 0.34910 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 0 0 1 3076 0 0 3076 0 PART II-B, LINE 1, LOBBYING ACTIVITIES: THE ORGANIZATION CONDUCTS CONGRESSIONAL LEVEL LOBBYING TO PROMOTE AND ADVOCATE FOR CHILDREN AND ADOLESCENTS WITH NEUROLOGIC AND DEVELOPMENT DISORDERS. 117972 310 118282 117590 382 117972 0.84540 0.15460 0 0 15294 2549 12745 12745 X 643313 0 643313 0 643313 604446 0 604446 0 604446 PART V, LINE 4: IN 2010, THE SOCIETY OF NEURODEVELOPMENTAL DISABILITIES (NDD) DISSOLVED; AND THEREBY, TRANSFERRED REMAINING ASSETS TO THE CNF. THESE FUNDS ARE INTENDED TO ENDOW AN ANNUAL EDUCATIONAL SCHOLARSHIP FOR A MEDICAL STUDENT INTERESTED IN THE FIELD OF CHILD NEUROLOGY; WITH PRIORITY GIVEN TO AN APPLICANT FOCUSED ON NEURO DEVELOPMENTAL DISABILITIES. THE INITIAL AWARD IS TO BE $3,500. THE AMOUNT OR THE NUMBER OF AWARDS MAY BE ADJUSTED BASED ON ENDOWMENT VALUE AND AS APPROVED BY THE BOARD OF CNF. THE CNF IS COLLABORATING WITH CURRENT LEADERSHIP IN THE NDD SUB-SPECIALTY AREA TO AWARD THE INAUGURAL SCHOLARSHIP IN 2016. PART X, LINE 2: THE FOUNDATION IS ORGANIZED AND OPERATES ON A NOT-FOR-PROFIT BASIS AND ITS TAX EXEMPT STATUS HAS BEEN RECOGNIZED BY THE INTERNAL REVENUE SERVICE UNDER SECTION 501(C)(3). THE FOUNDATION IS CLASSIFIED AS AN ORGANIZATION WHICH IS NOT PRIVATE FOUNDATIONS UNDER THE INTERNAL REVENUE CODE AND CHARITABLE CONTRIBUTIONS BY DONORS ARE TAX DEDUCTIBLE. THE FOUNDATION IS SUBJECT TO UNRELATED BUSINESS INCOME TAXES UNDER THE INTERNAL REVENUE CODE FOR FEDERAL AND STATE TAX PURPOSES. THE FOUNDATION HAS ADOPTED THE PROVISIONS OF FASB ASC 740-10-25, WHICH REQUIRES THAT A TAX POSITION BE RECOGNIZED OR DERECOGNIZED BASED ON A "MORE LIKELY THAN NOT" THRESHOLD. THIS APPLIES TO POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE FOUNDATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY UNCERTAIN TAX POSITIONS. THE FOUNDATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AUTHORITIES. 1 RESEARCH GRANT 2 129618 N/A N/A INFANTILE SPASMS MINI-GRANTS 15 14500 N/A N/A PART I, LINE 2: THE CHILD NEUROLOGY FOUNDATION HAS AN EXCELLENT HISTORY OF SELECTING THE VERY BEST RESEARCHERS FOR ITS AWARDS. WE PUBLICIZE THE AWARD TO REQUEST CANDIDATES WITH THE AMERICAN ACADEMY OF NEUROLOGY; PROFESSORS OF CHILD NEUROLOGY IN AMERICA'S MEDICAL SCHOOLS; AMERICAN SOCIETY OF PEDIATRIC DEPARTMENT CHAIRS; AND THE AMERICAN ACADEMY OF PEDIATRICS. CHILD NEUROLOGIST RESEARCHER APPLICANTS ARE ASKED TO SUBMIT A LETTER OF APPLICATION. THESE LETTERS ARE RANKED BY A COMMITTEE OF WELL-RESPECTED CHILD NEUROLOGISTS. (MEMBERS AVOID CONFLICT OF INTEREST BY RECUSING THEMSELVES). TOP CONTENDERS ARE INVITED TO SUBMIT FULL APPLICATIONS. CNF USES A HYBRID OF THE NIH RESEARCH APPLICATION. THE COMMITTEE THEN RANKS AND SUBMITS THE TOP APPLICANT TO THE CNF BOARD OF DIRECTORS FOR CONFIRMATION. OUTSIDE DONORS ARE NOT INVOLVED IN THE SELECTION OF THE AWARDEE OR ANY GUIDELINES REGARDING THE USE OF RESEARCH FUNDS. GRANT AWARD CHECKS ARE NEVER MADE PAYABLE TO THE INDIVIDUAL RESEARCHER. RATHER, CHECKS ARE MADE PAYABLE TO THE INSTITUTIONS FOR WHICH THEY EITHER WORK OR GO TO SCHOOL. REPORTS ARE REQUIRED OF THE RESEARCHER AT THE MIDPOINT OF THEIR RESEARCH IN THE FORM OF PROGRESS REPORTS AND AT THE END TO SHOW THE RESULTS OF THEIR RESEARCH. IN THE CASE OF SCHOLARSHIP RECIPIENTS THE SAME IS TRUE. CHECKS ARE MADE PAYABLE TO THEIR INSTITUTION AND THEIR REPORTS ARE DUE AT THE END OF THEIR RESEARCH. FORM 990, PART VI, SECTION A, LINE 1 THE BOARD OF DIRECTORS MAY ESTABLISH OR TERMINATE STANDING, SPECIAL, OR AD HOC COMMITTEES OF THE FOUNDATION AS THE BOARD DETERMINES NECESSARY. UNLESS OTHERWISE DESCRIBED IN THESE BYLAWS, THE PRESIDENT SHALL APPOINT AND MAY REMOVE THE MEMBERS OF EACH STANDING, SPECIAL, OR AD HOC COMMITTEE. THE EXECUTIVE COMMITTEE SHALL INCLUDE THE PRESIDENT, PRESIDENT-ELECT, IMMEDIATE PAST-PRESIDENT, SECRETARY, TREASURER, AND NO MORE THAN THREE OTHER MEMBERS OF THE BOARD AS APPOINTED BY THE PRESIDENT. THE PRESIDENT OF THE BOARD SHALL BE THE CHAIR OF THE EXECUTIVE COMMITTEE. MEETINGS MAY BE CONDUCTED BY GROUP MEETINGS, CONFERENCE CALL, OR OTHER ELECTRONIC MEANS OF COMMUNICATION. BETWEEN MEETINGS OF THE BOARD, THE BOARD'S POWER IS DELEGATED TO THE EXECUTIVE COMMITTEE. THE EXECUTIVE COMMITTEE SHALL REPORT ITS ACTIVITY TO THE BOARD. FORM 990, PART VI, SECTION A, LINE 4 IN OCTOBER 2015, CNF BOARD OF DIRECTORS SUSPENDED THE PREVIOUSLY ADOPTED BYLAWS, AND APPROVED AND ACCEPTED NEW BYLAWS. THE NEWLY ADOPTED BYLAWS ARE ALIGNED WITH BEST PRACTICE STANDARDS UTILIZED BY NONPROFITS OF SIMILAR SIZE AND STRUCTURE, CURRENT OPERATIONS AND INFRASTRUCTURE, AS WELL AS THEIR BREVITY AND CLARIFY PROVIDE A MORE WORKING FRAMEWORK FOR THE BOARD OF DIRECTORS TO REFERENCE IN THEIR LEADERSHIP. A NOTABLE CHANGE IN THE NEW BYLAWS IS THAT THE CHILD NEUROLOGY SOCIETY NO LONGER APPROVES THE CNF BOARD OF DIRECTORS; INSTEAD, CNS PRESIDENT AND PRESIDENT-ELECT HOLD VOTING, EX-OFFICIO POSITIONS ON THE CNF BOARD, AND THE CNS EXECUTIVE DIRECTOR IS A NON-VOTING, EX-OFFICIO MEMBER. FORM 990, PART VI, SECTION B, LINE 11 THE ORGANIZATION'S FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM AND THE ORGANIZATION'S EXECUTIVE COMMITTEE REVIEW THE FORM 990. THE FORM 990 IS MADE AVAILABLE TO THE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE FOUNDATION HAS A CONFLICT OF INTEREST POLICY COVERING ALL BOARD MEMBERS. BOARD MEMBERS COMPLETE A POLICY FORM ON AN ANNUAL BASIS WHICH IS MONITORED AND REVIEWED BY BOARD OFFICERS AFTER SUBMISSION. SHOULD A CONFLICT EXIST, THE BOARD WOULD DETERMINE THE APPROPRIATE ACTION INCLUDING OMISSION FROM VOTING ON ANY RELATED MATTERS AND DOCUMENT IN THE MEETING MINUTES. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR OF THE FOUNDATION HAS A SALARY THAT IS DETERMINED BY THEIR INDEPENDENT MANAGING ORGANIZATION. THE MANAGING ORGANIZATION USES RELATIVE DATA INCLUDING THE COMPENSATION OF LIKE-SIZED FOUNDATIONS TO HELP DETERMINE THE APPROPRIATE SALARY LEVEL. THE COMPENSATION IS REVIEWED ON AN ANNUAL BASIS AND WAS LAST CONDUCTED IN 2015 FOR EXECUTIVE DIRECTOR, AMY BRIN MILLER. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO PUBLIC. THE ORGANZATION'S FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 68,120. MANAGEMENT AND GENERAL EXPENSES 10,694. FUNDRAISING EXPENSES 444. TOTAL EXPENSES 79,258.