2016-06-22T14:13:15-05:00 2015-12-31 521446779 JOHNSON LAMBERT LLP 700 SPRING FOREST RD STE 115 RALEIGH NC 27609 990 2015-01-01 364253176 CITIZENS UNITED FOR RESEARCH IN EPILEPSY CITI 3122551801 430 W ERIE NO 210 CHICAGO IL 60654 ROBIN HARDING CHIEF EXECUTIVE OFFICER 3122551801 2016-06-22 1 JOHN HUSKINS P01081531 9197196400 2016-06-22 2015 2016-09-27 15:27:22Z ROBIN HARDING 430 W ERIE NO 210 CHICAGO IL 60654 6115976 0 X WWW.CUREEPILEPSY.ORG X 1998 IL CURE'S MISSION IS TO CURE EPILEPSY, TRANSFORMING AND SAVING MILLIONS OF LIVES. WE IDENTIFY AND FUND CUTTING-EDGE RESEARCH, CHALLENGING SCIENTISTS WORLDWIDE TO COLLABORATE AND INNOVATE IN PURSUIT OF THIS GOAL. OUR COMMITMENT IS UNRELENTING. 15 15 17 370 0 0 5533358 5734565 0 0 186204 182661 -329404 -281802 5390158 5635424 4832430 4452139 0 0 752661 1307742 0 0 384798 1114187 1159185 6699278 6919066 -1309120 -1283642 9967864 8986158 2952799 3728037 7015065 5258121 CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS DEDICATED TO FINDING A CURE FOR EPILEPSY BY RAISING FUNDS FOR RESEARCH AND BY INCREASING AWARENESS OF THE PREVALENCE AND DEVASTATION OF THIS DISEASE. 0 0 6056940 4452139 ISSUING OF GRANTS TO FUND RESEARCH FOR A CURE FOR EPILEPSY. SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $43 MILLION TO FUND EPILEPSY RESEARCH PROJECTS AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO A CURE. CURE AWARDS SEED GRANTS FOR NOVEL RESEARCH PROJECTS THAT ADDRESS THE GOALS OF "NO SEIZURES, NO SIDE EFFECTS." THESE GRANTS ALLOW NEW AND ESTABLISHED INVESTIGATORS TO EXPLORE NEW INNOVATIVE AREAS AND COLLECT THE DATA NECESSARY TO APPLY FOR FURTHER FUNDING BY THE NATIONAL INSTITUTES OF HEALTH (NIH). TO DATE, CURE HAS AWARDED FUNDING FOR OVER 190 CUTTING EDGE PROJECTS IN 15 COUNTRIES. 145790 CURE SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES, DRIVING AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY THROUGH THE FRONTIERS IN RESEARCH SEMINAR SERIES. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. 6202730 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 22 0 1 17 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AR AZ CA CO CT DC FL GA HI IL KS KY ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WI WV X ROBIN HARDING 3122551801 430 W ERIE NO 210 CHICAGO IL 60654 SUSAN AXELROD FOUNDING CHAIR 1.00 X X 0 0 0 SHARON O'KEEFE CHAIR 1.00 X X 0 0 0 GARDINER LAPHAM IMMEDIATE PAST CHAIR 1.00 X X 0 0 0 ANN BENSCHOTER SECRETARY 1.00 X X 0 0 0 PAUL HELDMAN TREASURER 1.00 X X 0 0 0 BLAKE CUNNEEN DIRECTOR (FROM SEP '15) 1.00 X 0 0 0 PHIL EMERY DIRECTOR 1.00 X 0 0 0 LYNN FLEISHER DIRECTOR (FROM SEP '15) 1.00 X 0 0 0 CAROL FULP DIRECTOR 1.00 X 0 0 0 SCOTT LEISHER DIRECTOR 1.00 X 0 0 0 GREG LEWIS DIRECTOR 1.00 X 0 0 0 JOEL MARCUS DIRECTOR 1.00 X 0 0 0 CONNIE MILSTEIN DIRECTOR 1.00 X 0 0 0 EVELYN NUSSENBAUM DIRECTOR 1.00 X 0 0 0 C RENZI STONE DIRECTOR 1.00 X 0 0 0 ROBIN HARDING CHIEF EXECUTIVE OFFICER 37.50 X 244507 0 17287 244507 0 17287 1 0 1 0 0 2372640 67290 3294635 5734565 182661 182661 198750 2372640 480552 -281802 -281802 5635424 0 0 -99141 3468939 3468939 983200 983200 261794 188492 36651 36651 858616 618202 120207 120207 9552 6878 1337 1337 110587 79623 15482 15482 67193 48379 9407 9407 13390 9640 1875 1875 256862 184940 35961 35961 17920 17920 151385 66862 43518 41005 103550 84188 9681 9681 82902 58106 13498 11298 66836 43696 22703 437 410274 306297 15278 88699 12769 9193 1788 1788 9944 7160 1392 1392 DUES & SUBSCRIPTIONS 19717 14197 2760 2760 LICENSES & FEES 13636 6818 0 6818 6919066 6202730 331538 384798 1094588 571866 3638131 2646206 420000 1110000 78086 180690 40602 52980 154320 26627 45338 127693 4632455 4278061 18664 18662 9967864 8986158 132851 68302 2819948 3659735 2952799 3728037 X 6245065 3328014 770000 1930107 7015065 5258121 9967864 8986158 -1283642 -473302 0 X 0 1 X 1 0 X 2000856 5517115 4584975 5533358 5734565 23370869 2000856 5517115 4584975 5533358 5734565 23370869 1380472 21990397 204428 150303 186840 181509 182661 905741 1482 5417 5293 8099 20291 24296901 3037245 0.90510 0.92740 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 6919066 6919066 495953 123988 0 0 400421 376531 484964 495953 1757869 2636804 100105 94133 121241 123988 439467 659201 68862 4089 64773 85458 22538 62920 127693 5085078 -473302 11655 -461647 5546725 88699 88699 5635424 6842022 11655 11655 6830367 88699 88699 6919066 PART XI, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 88,699. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 88,699. 1 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION 483700 EAST ASIA AND THE PACIFIC 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION 499500 0 0 0 0 0 0 983200 0 983200 EUROPE LGI1 AUTOANTIPODIES AS A CAUSE AND THERAPEUTIC TARGET FOR SEIZURE CONTROL 234400 EUROPE HMGB1 AS A TARGET AND A MECHANISTIC BIOMARKER OF EPILEPTOGENESIS 249300 EAST ASIA AND THE PACIFIC A NOVEL THERAPEUTIC INTERVENTION FOR DRAVET SYNDROME 249500 EAST ASIA AND THE PACIFIC MOLECULAR GENETIC DECODING OF BRAIN SOMATIC MUTATIONS IN INTRACTABLE PEDIATRIC EPILEPSIES 250000 0 0 0 0 0 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. CHICAGO GALA BENEFIT 2071331 1906331 165000 68811 341299 NEW YORK 271559 249059 22500 66010 1 228500 217250 11250 4432 2571390 2372640 198750 68811 411741 480552 -281802 1 COLUMBIA UNIVERSITY PO BOX 28789 NEW YORK NY 10087 135598093 501(C)(3) 778173 TARGETING THE MTOR PATHWAY IN GLIOMA-ASSOCIATED EPILEPSY IN MICE AND HUMANS; CURE EPILEPSY GENETICS REPOSITORS (EGI) BAYLOR COLLEGE OF MEDICINE PO BOX 201361 HOUSTON TX 77216 741613878 501(C)(3) 512038 INFANTILE SPASMS: MECHANISMS AND CONSEQUENCES AS THERAPEUTIC TARGETS; PILOT IN SILICO MORTALITY RISK ATTRIBUTION IN SUDY WEILL MEDICAL COLLEGE OF CORNELL 1300 YORK AVE NEW YORK NY 10065 131623978 501(C)(3) 500000 REGULATION OF CORTICAL INTERNEURON MIGRATION AND EPILEPSY ALBERT EINSTEIN COLLEGE 1300 MORRIS PARK AVE BRONX NY 10461 131624225 501(C)(3) 253595 IDENTIFYING NEW THERAPIES FOR INFANTILE SPASMS BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVE BOSTON MA 02215 104210338 501(C)(3) 250000 MEASURING AND MODIFYING CORTICAL HYPEREXCITABILITY IN PATIENTS AT HIGH RISK FOR ACQUIRED EPILEPSY LOUISIANA STATE UNIVERSITY HEALTH CENTER 1501 KINGS HIGHWAY SHREVEPORT LA 71103 770702002 501(C)(3) 250000 EMPLOYMENT OF IN VIVO BIOSIGNAL DYNAMICS AS BIOMARKERS OF SUDEP. UNIVERSITY OF MICHIGAN BOX 223131 PITTSBURGH PA 15251 386006309 501(C)(3) 250000 PATIENT-SPECIFIC INDUCED PLURIPOTENT STEM CELL CARDIAC MYOCYTES AS PREDICTORS OF SUDEP RISK TEXAS A&M 400 HARVEY MITCHELL PARKWAY SOUTH COLLEGE STATION TX 77845 742907553 501(C)(3) 249453 THE CONTRIBUTIONS OF CD74 TO ACQUIRED EPILEPSY. DR. NEWELL-ROGERS UNIVERSITY OF WASHINGTON 12455 COLLECTIONS DR SEATTLE WA 60693 605799469 501(C)(3) 125000 MECHANISM OF ANTI-EPILEPTIC ACTION OF CANNABIDIOL IN A MOUSE MODEL OF DRAVET SYNDROME UNIVERSITY OF COLORADO DENVER PO BOX 910238 DENVER CO 80291 846000555 501(C)(3) 102985 METABOLOMIC BIOMARKER DISCOVERY IN INFANTILE SPAMS PENNSYLVANIA STATE UNIVERSITY 227 W BEAVER AVE STATE COLLEGE PA 16801 246000376 501(C)(3) 100000 A MURINE MODEL FOR PREVENTING POSTMALARIAL EPILEPSY TUFTS UNIVERSITY 200 HARRISON AVE BOSTON MA 02111 042103634 501(C)(3) 95000 APC CKO MOUSE AS A NEW MODEL OF INFANTILE SPASMS UNIVERSITY OF CALIFORNIA 1855 FOLSOM STREET SAN FRANCISCO CA 94143 946036493 501(C)(3) 75000 CLINICAL AND GENETIC PREDICTORS OF OUTCOMES AND THERAPEUTIC INSIGHTS 13 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. 0 0 0 0 0 0 0 0 0 ROBIN HARDING CHIEF EXECUTIVE OFFICER 230000 0 14507 0 0 0 6900 0 10387 0 261794 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15A COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE NOT GENERALLY AVAILABLE TO THE PUBLIC.