2016-01-25T09:24:15-07:00 2015-09-30 990EZ 2014-10-01 300585106 Rothmund-Thomson Syndrome Foundation ROTH 7038023167 4307 Woodward Court Chantilly VA 20151 John Kimmel Chair 7038023167 2016-01-13 2014 2016-04-25 22:37:26Z X X www.rtsplace.org X X 31375 X 8357 0 0 0 0 0 0 21128 1890 6580 16438 0 0 0 0 24795 4497 0 0 0 0 288 1706 6491 18304 57482 0 75786 57482 75786 0 0 0 0 57482 75786 0 0 57482 75786 Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes Hosted a Sharing and Caring Conference in Lake Orion, Michigan in August.. Arranged for RTS specialist from Baylor Medical Center to participate in the conference. A total of 11 families participated in the conference. 0 3212 Sponsored genetic testing for RTS families. 0 1250 Prepared educational materials to hand out at conferences and to share with medical professionals. 0 35 4497 John Kimmel Chair 20 0 0 0 Laurie Sperou Vice-Chair 20 0 0 0 Shelley Sanders Treasurer 10 0 0 0 Ta-Tara Rideau Secretary 5 0 0 0 Emil Zakutny Director 5 0 0 0 Peter Chadha Director 5 0 0 0 Gillian O'Reilly Director 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 CA IL MA MD ME MI NH NM NY PA VA John Kimmel 4307 Woodward Court Chantilly VA 20151 7038023167 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 5995 10255 10256 10725 8157 45388 0 0 0 0 0 0 0 0 0 0 5995 10255 10256 10725 8157 45388 45388 0 0 0 0 0 0 0 0 0 0 0 0 200 200 45588 0 X Schedule A, Part II, Line 10 We received a credit back from the Orion Township Hall that was used for our Sharing and Caring Conference. 21129 6580 1 1 21129 0 0 0 6580 6580 14549 MA VA 1 0 0 0 1 0 John Kimmel 4307 WOODWARD CT CHANTILLY VA 20151 0 Laurie Sperou 0 Ms Sperou is the Vice Chair of the foundation and oversees are raffle fundraisers. X 0 0 Form 990-EZ, Part I, Line 10 Funds were used to hold a Sharing and Caring Conference, provide genetic testing for affected families and produce brochures and other literature for families. Form 990-EZ, Part I, Line 16 Other expenses include costs for our CDG Commerce site, Intercall conferencing costs and required registration fees.