2016-05-09T09:23:53-05:00 2015-12-31 431985162 SMITH SULLIVAN & BROWN PC 80 FLANDERS ROAD - SUITE 200 WESTBOROUGH MA 01581 990 2015-01-01 043563445 JETT FOUNDATION INC JETT 7815855566 68 EVERGREEN STREET SUITE ONE KINGSTON MA 02364 CHRISTINE MCSHERRY EXECUTIVE DIRECTOR & PRESIDENT 7815855566 2016-05-05 1 MAUREEN L SULLIVAN CPA P00296843 5088717178 2016-05-05 2015 2016-09-27 15:27:22Z CHRISTINE MCSHERRY 68 EVERGREEN STREET SUITE ONE KINGSTON MA 02364 1175368 0 X HTTP://JETTFOUNDATION.ORG X 2001 MA RESEARCH FOR DUCHENNE MUSCULAR DYSTROPHY 6 6 9 87 0 0 833429 1101741 0 0 0 0 20029 10489 853458 1112230 106886 24058 0 0 324322 400330 9000 0 66893 492699 478648 932907 903036 -79449 209194 337139 564746 12711 31124 324428 533622 X THE MISSION OF THE JETT FOUNDATION IS TO INCREASE WORLDWIDE AWARENESS OF DUCHENNE MUSCULAR DYSTROPHY WITH THE PURPOSE OR RAISING AND APPROPRIATING FUNDS FOR RESEARCH THAT WILL REALIZE A CURE FOR THIS FATAL DISEASE AND ENSURE THAT CHILDREN LIKE JETT HAVE THE OPPORTUNITY TO ENJOY A FULL LIFE. WHILE OUR EFFORTS ARE ONGOING AND WE WILL NOT STOP UNTIL WE FIND A CURE, WE RECOGNIZE THAT TIME IS OF THE ESSENCE FOR MANY OF THESE YOUNG BOYS AND THAT SIGNIFICANT FINANCIAL SUPPORT IS NEEDED NOW TO HELP MAKE A DIFFERENCE IN THEIR LIVES. 0 0 257026 24058 DIRECT SERVICE:CAMP PROMISE:JETT FOUNDATION'S SUMMER CAMP, CALLED CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, WE PROVIDE A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. AT CAMP PROMISE, WE PROVIDE CAMPER-FOCUSED PROGRAMMING THAT BUILDS INDEPENDENCE, CONFIDENCE AND LIFE SKILLS THROUGH TRADITIONAL CAMP ACTIVITIES AND BY BRINGING CAMPERS NEW EXPERIENCES THROUGH ADAPTATION, TECHNOLOGY, CREATIVITY, AND SPECIAL GUESTSIN 2015, WE SERVED MORE THAN 65 CAMPERS AND WORKED WITH 85 VOLUNTEERS ACROSS 3 WEEKS IN 3 DIFFERENT GEOGRAPHICAL LOCATIONS, EAST, WEST AND THE ROCKIES. IN 2014, WE SERVED MORE THAN 60 CAMPERS AND WORKED WITH 80 VOLUNTEERS. IT IS NUMBERS LIKE THESE, IN ADDITION TO THE INTANGIBLE MEMORIES OF CAMP, THROUGH WHICH WE MEASURE AND BELIEVE IN THE MAGNITUDE OF THE IMPACT OF CAMP PROMISE.ROUNDTABLES:THE JETT FOUNDATION HAS PARTNERED WITH OTHER DUCHENNE ORGANIZATIONS, INSTITUTIONS, PHARMACEUTICAL COMPANIES, CLINICIANS AND OTHER EXPERTS AROUND THE COUNTRY IN A SERIES OF REGIONAL ROUNDTABLE CLINICAL TRIAL DISCUSSIONS. THESE EVENTS HELP INFORM AND CREATE A DISCUSSION AROUND CLINICAL TRIALS OPTIONS BOTH LOCALLY AND WORLDWIDE. WITH THE DEVELOPMENT OF NEARLY 60 ONGOING DRUG TRIALS IN THE DUCHENNE SPACE, JETT FOUNDATION HAS BECOME A LEADER IN EDUCATING FAMILIES AND THE BROADER COMMUNITY ABOUT CLINICAL TRIALS.JETTRIDE:JETTRIDE IS A DIRECT SERVICE PROGRAM FOR SIBLINGS OF BOYS AFFLICTED WITH DUCHENNE. THE JETTRIDE GIVES THESE INDIVIDUALS THE OPPORTUNITY TO CONNECT WITH OTHER TEENS WHO ARE LIVING THROUGH THE SAME EXPERIENCES IN ORDER TO BUILD LIFELONG FRIENDSHIP. 206706 EDUCATION:JETT SPONSORED CONTINUING EDUCATION:THE JETT FOUNDATION HAS SPONSORED EDUCATIONAL FORUMS FOR PARENTS, CAREGIVERS, FRIENDS, FAMILY AND RESEARCHERS SINCE 2007. IT IS THE ONLY PROGRAM LIKE IT IN THE COUNTRY AND FILLS A MUCH NEEDED GAP IN SERVICES FOR FAMILIES AND INDIVIDUALS AFFECTED BY MUSCULAR DYSTROPHY. THE JETT FOUNDATION ALSO PARTICIPATES IN BOTH NATIONAL AND INTERNATIONAL CONFERENCES TO SHARE OUR SUCCESSES AND TO CONTINUALLY EDUCATE OURSELVES SO THAT WE CAN CONTINUE TO ASSIST CHILDREN AND FAMILIES AS THEY NAVIGATE THE PERSONAL, MEDICAL AND COMMUNITY CHALLENGES OF LIVING WITH DUCHENNE. 154362 ADVOCACY:IN 2014, THE JETT FOUNDATION SPENT A SIGNIFICANT AMOUNT OF TIME AND EFFORT LAUNCHING AN AGGRESSIVE ADVOCACY CAMPAIGN EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAY TO FINDING TREATMENTS FOR THIS FATAL DISEASE. THIS HAS REQUIRED A LARGE SCALE COORDINATION EFFORT OF EXPERTS, CONFERENCES, CONGRESSIONAL MEETINGS AND OVERSIGHT HEARINGS. WE HAVE BROUGHT EXPERTS IN THE RESEARCH AND MEDICAL FIELDS, TOGETHER WITH PATIENT ADVOCATES TO EDUCATE THE FDA ON THE URGENT NEED OF ACCELERATED APPROVAL. 128853 RESEARCH:DUCHENNE ALLIANCE AND DUCHENNE DASHBOARD:THE DUCHENNE ALLIANCE IS AN ALLIANCE OF OVER TWENTY INDEPENDENT DUCHENNE ORGANIZATIONS (INCLUDING THE JETT FOUNDATION) DEDICATED TO ADVANCING OUR MISSIONS TO IMPROVE QUALITY OF LIFE, CARE AND TREATMENT OF THOSE AFFECTED BY DUCHENNE. THE GOAL OF THE ALLIANCE IS TO BUILD TRUST, SHARE KNOWLEDGE, LEVERAGE RESOURCES AND STREAMLINE BUSINESS PRACTICES TO SERVICE THE ENTIRE DUCHENNE COMMUNITY. THE DUCHENNE DASHBOARD IS A DIRECT SERVICE TOOL FOR RESEARCHERS AND NONPROFIT ORGANIZATIONS TO COMMUNICATE AND STREAMLINE FUNDING.LEVERAGING RESEARCH COLLABORATIONS:THE JETT FOUNDATION HAS ALWAYS, AND CONTINUES TO SUPPORT RESEARCH IN A VARIETY OF WAYS INCLUDING, BUT NOT LIMITED TO, ADVOCATING FOR AND FACILITATING DONATIONS FROM OTHER NONPROFIT ORGANIZATIONS. THROUGH THE DUCHENNE ALLIANCE AND DUCHENNE DASHBOARD, THE JETT FOUNDATION HAS STRATEGICALLY LINKED NONPROFITS WITH RESEARCH FUNDING OPPORTUNITIES HELPING TO MOVE THE BEST RESEARCH FORWARD AS FAST AS POSSIBLE. THESE FINANCIAL STATEMENTS DO NOT REFLECT THE RESULTS OF THESE BENEFICIAL RESEARCH RELATIONSHIPS. 128853 746947 1 1 0 1 0 0 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 4 0 9 1 0 0 0 0 0 1 1 0 0 0 0 X 6 6 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA X CHRISTINE MCSHERRY 7815855566 68 EVERGREEN STREET SUITE ONE KINGSTON MA 02364 RHONDA KALLMAN CHAIRMAN OF THE BOARD 2.00 X X 0 0 0 EVY NELSON VICE CHAIR 1.00 X X 0 0 0 LEO ROBINSON TREASURER 2.00 X X 0 0 0 KRISTEN DALY DIRECTOR 1.00 X 0 0 0 CAROL MCKEAN DIRECTOR 1.00 X 0 0 0 ROBERT HIGGINS DIRECTOR 1.00 X 0 0 0 CHRISTINE MCSHERRY PRESIDENT & EXECUTIVE DIR. 60.00 X 100338 0 0 100338 0 0 1 0 0 0 0 174403 927338 1101741 73627 174403 63138 10489 10489 1112230 0 0 10489 X 24058 24058 85800 77220 4290 4290 282450 221296 29249 31905 32080 26005 2922 3153 4045 4045 14075 14075 95289 89500 2789 3000 12680 12680 28302 10661 10429 7212 28501 19951 2850 5700 33503 12775 13086 7642 71981 71155 826 5274 4276 480 518 4155 4155 CAMP PROMISE 85794 85794 DUCHENNE DASHBOARD 65422 65422 ROUNDTABLES 21431 21431 PROGRAM/EVENT SUPPLIES 5997 2524 3473 2199 2199 903036 746947 89196 66893 164947 428946 31720 5122 1924 31183 26307 6350 4876 129000 129000 337139 564746 12711 31124 12711 31124 X 278312 533622 46116 0 324428 533622 337139 564746 209194 0 X 0 1 X 1 0 X 316073 432876 1092352 833429 1101741 3776471 316073 432876 1092352 833429 1101741 3776471 1104600 2671871 13 13 3776484 522035 0.70750 0.78690 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 903036 903036 160455 40114 0 0 164936 160455 325391 488087 41234 40114 81348 122022 24886 22352 2534 6297 3955 2342 4876 SECURITY DEPOSITS 4000 INVESTMENT IN LLC 125000 129000 1564129 451899 451899 1112230 0 1112230 1354935 451899 451899 903036 0 903036 ANNUAL GOLF TOURNAMENT 114474 56307 58167 46250 GALS FOR CAL/TRI FOR JETT 118093 116043 2050 8548 1 15463 2053 13410 10550 248030 174403 73627 65348 65348 8279 1 DIRECT CLIENT ASSISTANCE 1 11404 FMV WHEELS FOR WYATT VAN & MEDICAL ASSISTANT PART I, LINE 2: THE BOARD APPROVES GRANTS GIVEN IN ADVANCE. AT THE COMPLETION OF THE PROJECT, THE BOARD REVIEWS THE FINAL REPORT. FORM 990, PART VI, SECTION B, LINE 11 THE GOVERNING BODY REVIEWS THE FORM 990 FOR ACCURACY AND COMPLETENESS BEFORE BEING FILED WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION'S GOVERNING BODY REQUIRES AN ANNUAL DECLARATION FROM ALL BOARD MEMBERS AND SENIOR MANAGEMENT AS TO THE EXISTENCE AND DISCLOSURE OF ANY POTENTIAL CONFLICTS OF INTEREST. THE BOARD MEMBERS SIGN A DISCLOSURE STATEMENT. ANY POTENTIAL CONFLICTS ARE DISCUSSED BY THE DIS-INTERESTED BOARD MEMBERS, WHILE THE PARTY IN POTENTIAL CONFLICT IS REQUIRED TO LEAVE THE ROOM. BOARD MEETING MINUTES WILL DOCUMENT THE DISCUSSION AND DECISION MAKING PROCESS. IN THE EVENT OF A POTENTIAL CONFLICT, PROCEDURES TO OBTAIN COMPETITIVE BIDS AND DILIGENCE ON FAIR MARKET VALUE WILL BE ESTABLISHED. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S GOVERNING BODY REVIEWS SALARY DATA, MARKET CONDITIONS AND OTHER APPLICABLE DATA FOR DETERMINING THE COMPENSATION OF THE CEO AND KEY EMPLOYEES WHEN NECESSARY. FORM 990, PART VI, SECTION C, LINE 19 UPON REQUEST FORM 990, PART IX, LINE 11G PAYROLL PROCESSING FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 2,389. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,389. ADVOCACY AND PUBLIC RELATIONS: PROGRAM SERVICE EXPENSES 13,000. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 13,000. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 76,500. MANAGEMENT AND GENERAL EXPENSES 400. FUNDRAISING EXPENSES 3,000. TOTAL EXPENSES 79,900.