2016-05-03T11:03:58-05:00 2015-12-31 204723636 ISLER CPA LLC 1976 GARDEN AVENUE EUGENE OR 97403 990 2015-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 BARRY RUBENSTEIN PRESIDENT 5416874658 2016-04-29 1 GARY ISKRA P00051776 5413425161 2015 2016-09-27 15:27:22Z KEVIN MCQUEEN 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 3408713 0 X WWW.FANCONI.ORG X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE 11 11 12 19 0 0 1719329 3378398 0 0 35113 5693 15366 24622 1769808 3408713 809450 1124784 0 0 348416 373030 0 0 192073 814428 851901 1972294 2349715 -202486 1058998 4946640 6111920 808957 973275 4137683 5138645 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE 0 0 1660464 1124784 SUPPORT OF RESEARCH INTO THE CAUSE AND CURE OF FANCONI ANEMIA 276851 10820 PROVIDING EDUCATION AND SUPPORT TO FAMILIES AFFECTED BY FANCONI ANEMIA 1937315 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 12 0 12 1 0 0 0 0 0 0 0 0 0 0 X 11 11 1 0 0 1 0 0 0 1 0 0 0 0 1 1 1 1 1 1 1 0 AL AK AR CA CT FL GA IL KS KY ME MD MA MI MN MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI CO DC HI MS VT X X PAMELA NORR 5416874658 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 BARRY RUBENSTEIN BOARD MEMBER 1.00 X 0 0 0 LYNN FROHNMAYER VICE-PRESIDENT 10.00 X 0 0 0 SHARON SCHUMAN SECRETARY/TREASURER 1.00 X X 0 0 0 DAVID FIASCHETTI BOARD MEMBER 1.00 X 0 0 0 BRIAN HORRIGAN BOARD MEMBER 1.00 X 0 0 0 MARK PEARL BOARD MEMBER 1.00 X 0 0 0 KEVIN MCQUEEN PRESIDENT 2.00 X X 0 0 0 RICHARD GELINAS BOARD MEMBER 1.00 X 0 0 0 CHRISTOPHER BYRD BOARD MEMBER 1.00 X 0 0 0 ANNETTE WAXBERG BOARD MEMBER 1.00 X X 0 0 0 AMY FROHNMAYER BOARD MEMBER 1.00 X 0 0 0 PETER PLESS BOARD MEMBER 1.00 X 0 0 0 PAMELA NORR EXECUTIVE DIRECTOR - AS OF 10/2015 40.00 X 28269 0 3364 LAURA HAYES EXECUTIVE DIRECTOR - UNTIL 10/2015 40.00 X 76399 0 10540 104668 0 13904 0 0 0 0 0 3378398 3378398 5693 5693 OTHER INCOME 900099 24622 24622 24622 3408713 24622 0 5693 808898 808898 315886 315886 118572 78440 24134 15998 202486 118486 65488 18512 4601 3121 415 1065 21945 15361 2451 4133 25426 16636 6250 2540 1233 1233 15010 15010 13322 13322 74116 23625 50491 446 446 20785 12635 5718 2432 28001 14473 11074 2454 23144 16200 3472 3472 433100 412976 12460 7664 4346 4346 9310 3359 5834 117 PRINTING 68046 56615 1034 10397 SPECIAL PROJECTS 64118 5728 58390 POSTAGE 34816 26145 3547 5124 MISCELLANEOUS 24737 13530 6705 4502 37371 18826 13763 4782 2349715 1937315 220327 192073 321 151 910457 1394139 1763 1126 96236 96236 4346 0 4026746 4714697 3007 1807 4946640 6111920 22169 12824 786788 960451 808957 973275 X 4137683 4138645 1000000 4137683 5138645 4946640 6111920 1058998 -58036 0 X X 0 1 X 1 0 X 2935471 1579265 1870643 1719329 3378398 11483106 2935471 1579265 1870643 1719329 3378398 11483106 2227718 9255388 116443 98735 79452 35113 5693 335436 11818542 0.78310 0.81830 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 96236 96236 0 0 INVESTMENTS - CD'S & CASH SWEEP 2584734 F US EQUITIES 427665 F INTERNATIONAL EQUITIES 273369 F TIPS BOND ETFS 1201368 F REITS 227561 F 4714697 X 3337355 -58036 -58036 3395391 13322 13322 3408713 2336393 0 2336393 13322 13322 2349715 PART X, LINE 2: FANCONI ANEMIA RESEARCH FUND, INC. IS EXEMPT FROM INCOME TAXES UNDER INTERNAL REVENUE CODE ("IRC") SECTION 501(C)(3) AND IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF THE IRC AND AS AN ENTITY THAT QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS. ACCORDINGLY, NO PROVISION HAS BEEN MADE FOR INCOME TAXES IN THE FINANCIAL STATEMENTS. THE ORGANIZATION CONSIDERS ANY UNCERTAIN TAX POSITIONS CONSISTENT WITH GAAP. THE ORGANIZATION IS NO LONGER SUBJECT TO EXAMINATION BY FEDERAL OR OREGON TAXING AUTHORITIES FOR 2011 AND EARLIER YEARS. 1 AMSTERDAM, NETHERLANDS 0 0 RESEARCH GRANT CORRECTING FANCONI AMEMIA MUTATIONS BY CRISPR/CAS9 GENOME EDITING TO EXPLORE A NOVEL THERAPEUTIC STRATEGY. 125000 LONDON, UNITED KINGDOM 0 0 RESEARCH GRANT THE EFFECTS OF LOSS OF FANCONI GENE FUNCTION ON THE BEHAVIOR AND THERAPEUTIC RESPONSES OF HEAD AND NECK CANCERS. 90886 SWINDON, UNITED KINGDOM 0 0 RESEARCH GRANT THE ROLE OF ALDEHYDES IN FANCONI ANEMIA ORAL SQUAMOUS CELL CARICNOMA. 100000 0 0 0 0 0 0 315886 0 315886 AMSTERDAM, NETHERLANDS CORRECTING FANCONI ANEMIA MUTATIONS BY CRISPR/CAS9 GENOME EDITING TO EXPLORE A NOVEL THERAPEUTIC STRATEGY. 125000 LONDON, UNITED KINGDOM THE EFFECTS OF LOSS OF FANCONI GENE FUNCTION ON THE BEHAVIOR AND THERAPEUTIC RESPONSES OF HEAD AND NECK CANCERS. 90886 SWINDON, UNITED KINGDOM THE ROLE OF ALDEHYDES IN FANCONI ANEMIA ORAL SQUAMOUS CELL CARICNOMA. 100000 0 0 0 0 0 0 PART I, LINE 2: THE PROPOSAL REVIEW COMMITTEE (PRC), COMPRISED OF FOUR BOD MEMBERS (INCLUDING ONE SCIENTIST), REVIEWS ALL GRANT PROPOSALS WITH A MINIMUM OF TWO SCIENTIFIC REVIEWERS. THE PRC THEN MEETS AND VOTES TO DETERMINE IF FUNDING OF THE PROPOSAL IS RECOMMENDED OR NOT. THE PRC RECOMMENDATION IS THEN SENT TO THE FULL BOD FOR A VOTE. IF THE MAJORITY OF THE BOD AGREES WITH THE PRC RECOMMENDATION, THE GRANT IS FUNDED. AN ACCEPTANCE OF AWARD DOCUMENT IS THEN SENT TO THE INVESTIGATOR THAT DETAILS THE AMOUNT OF FUNDING AND THE DATES OF THE PROJECT. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS, FINANCIAL AND RESEARCH REPORTS ARE REQUIRED EVERY YEAR OF THE PROJECT. 1 THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DR STE 2200 CB1350 CHAPEL HILL NC 275991350 566001393 160000 IDENTIFYING THE NATURE OF ENDOGENOUS ALDEHYDES-INDUCED DNA DAMAGE THAT FANCONI ANEMIA DNA REPAIR PATHWAYS COUNTERACT. UNIVERSITY OF NEBRASKA MEDICAL CENTER 985100 NEBRASKA MEDICAL CENTER OMAHA NE 681985100 470049123 175000 DECIPHERING THE ENDOCRINE-SPECIFIC ROLE OF FA PROTEINS IN PANCREAS ISLETS. OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT PORTLAND OR 972394244 193117610 81208 BRIDGE FUNDING FOR METFORMIN STUDIES. OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT PORTLAND OR 972394244 193117610 392690 A PORCINE MODEL OF FANCONI ANEMIA. PART I, LINE 2: THE PROPOSAL REVIEW COMMITTEE (PRC), COMPRISED OF FOUR BOD MEMBERS (INCLUDING ONE SCIENTIST), REVIEWS ALL GRANT PROPOSALS WITH A MINIMUM OF TWO SCIENTIFIC REVIEWERS. THE PRC THEN MEETS AND VOTES TO DETERMINE IF FUNDING OF THE PROPOSAL IS RECOMMENDED OR NOT. THE PRC RECOMMENDATION IS THEN SENT TO THE FULL BOD FOR A VOTE. IF THE MAJORITY OF THE BOD AGREES WITH THE PRC RECOMMENDATION, THE GRANT IS FUNDED. AN ACCEPTANCE OF AWARD DOCUMENT IS THEN SENT TO THE INVESTIGATOR THAT DETAILS THE AMOUNT OF FUNDING AND THE DATES OF THE PROJECT. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS, FINANCIAL AND RESEARCH REPORTS ARE REQUIRED EVERY YEAR OF THE PROJECT. X 1 280115 FAIR MARKET VALUE 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 AMY FROHNMAYER IS ON THE BOARD OF DIRECTORS AND HER MOTHER, LYNN FROHNMAYER IS AN ADVISOR TO THE BOARD. FORM 990, PART VI, SECTION A, LINE 5 THE PREVIOUS LONG-TIME BOOKKEEPER EMBEZZLED APPROXIMATELY $25,000 FROM THE ORGANIZATION OVER NEARLY 9 YEARS. THE FUNDS HAVE BEEN REPAID THROUGH THE ORGANIZATIONAL INSURANCE WHICH COVERED TWO PREVIOUS PERIODS OF LOSS TOTALING $13,702.13. AN ANONYMOUS DONOR CONTRIBUTED ENOUGH TO COVER THE ADDITIONAL LOST FUNDS NOT RECOVERED BY INSURANCE PAYMENTS. THE EX-EMPLOYEE RECEIVED COURT MANDATED RESTITUTION OF $200 PER MONTH FOR AT LEAST THE NEXT FIVE YEARS. FORM 990, PART VI, SECTION A, LINE 8B NO COMMITTEES WERE FORMED OR AUTHORIZED TO ACT ON BEHALF OF THE GOVERNING BOARD IN 2015. FORM 990, PART VI, SECTION B, LINE 11 FORM 990 WILL ONLY BE REVIEWED BY THE EXECUTIVE DIRECTOR AND THEN BY THE BOARD PRESIDENT BEFORE FILING. ONCE FILING IS COMPLETE, A COPY WILL BE PROVIDED TO THE GOVERNING BOARD. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ANNUALLY STATE ANY REAL OR POTENTIAL CONFLICTS OF INTEREST ON A CONFLICT OF INTEREST DISCLOSURE FORM. FORM 990, PART VI, SECTION B, LINE 15 IN 2015, EMPLOYEE COMPENSATION WAS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES, AND WITH ADVICE FROM A PROFESSIONAL EXECUTIVE RECRUITER. FORM 990, PART VI, SECTION C, LINE 19 WHEN REQUESTED, WE MAKE A COPY AND MAIL THEM TO THE REQUESTING PARTY. FORM 990, PART XII, LINE 2C: FINANCIAL STATEMENT OVERSIGHT PROCESS HAS NOT CHANGED.