2016-11-14T14:26:35-06:00 2015-12-31 GRANT THORNTON LLP 757 THIRD AVE 3RD FLOOR NEW YORK NY 100172013 990 2015-01-01 136193105 Crohn's & Colitis Foundation of America Inc % RONALD GOLDSMAN VP FINANCE CROH 8009322423 733 Third Avenue Suite 510 New York NY 10017 ROBERT TERRITO CFO/C00 2126853440 2016-11-14 true Scott Thompsett P00741490 2125990100 2015 2017-02-10 21:41:12Z Michael Osso 733 Third Avenue new york NY 10017 74757658 false X www.ccfa.org X 1967 NY To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. 22 22 345 4805 0 0 60902280 65605925 353610 457281 402525 303867 1574562 955617 63232977 67322690 22077615 27125150 0 0 22344207 23859390 319998 295706 4864100 16499515 16172963 61241335 67453209 1991642 -130519 32021379 34825663 21056497 24310087 10964882 10515576 X FOR ALMOST FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION of america ("CCFA") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. CCFA HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). false false 29391182 27125150 0 RESEARCH - SINCE ITS INCEPTION, CCFA HAS BEEN AT THE FOREFRONT OF MEDICAL RESEARCH IN CROHN'S DISEASE AND ULCERATIVE COLITIS -COLLECTIVELY KNOWN AS INFLAMMATORY BOWEL DISEASE (IBD). THERE ARE Three MAIN RESEARCH CATEGORIES: basic research, clinical research and translational research. BASIC RESEARCH EXPLORES THE SCIENTIFIC FOUNDATIONS OF THE DISEASES. IT ANSWERS SUCH QUESTIONS AS: WHAT IS THE UNDERLYING CAUSE OF CROHN'S AND ulcerative COLITIS? WHICH GENES ARE INVOLVED IN THESE DISEASES? WHAT IMPACT DOES the gut microbiome have on the course of the disease? ALTHOUGH BASIC RESEARCH IS COMPLEX, it is important to recognize that THESE STUDIES WILL ULTIMATELY LEAD TO THE CURE FOR IBD. CLINICAL RESEARCH DETERMINES WHICH MEDICAL AND SURGICAL OPTIONS WORK BEST FOR PATIENTS. Translational research applies findings from basic science to enhance human health and well-being. It aims to translate findings in fundamental research into medical practice and meaningful health outcomes, producing new treatments that can be used clinically. -CCFA HAS PLAYED A SIGNIFICANT ROLE IN MANY MAJOR SCIENTIFIC BREAKTHROUGHS IN IBD, FROM GENERATING DATA THAT LED TO NEW THERAPIES TO THE DISCOVERY OF THE FIRST GENE FOR CROHN'S. -CCFA INVESTS IN building a new generation of researchers: IT TAKES 10 YEARS TO "build" a full-fledged, senior investigator. TO MAKE SURE THAT THE MOST TALENTED RESEARCHERS ENTER AND REMAIN IN THE FIELD OF IBD, CCFA PROVIDES RESEARCH TRAINING AWARDS TO DEVELOP THE NEXT GENERATION OF INVESTIGATORS. MANY OF TODAY'S MOST PROMINENT RESEARCHERS RECEIVED TRAINING AWARDS FROM CCFA EARLY IN THEIR CAREERS. -CCFA HAS A SCIENTIFIC STRATEGIC RESEARCH PLAN, "challenges in IBD research" WHICH PROVIDES A ROADMAP FOR ALL OF CCFAS RESEARCH PROGRAMS. As technology and science advance, CCFA recruits top IBD thought leaders from around the world to identify the priorities and resources that are essential for moving research from laboratory bench to patient care. CCFA BRINGS THE FINEST MINDS IN THE INTERNATIONAL COMMUNITY (BOTH BASIC AND CLINICAL) AT ITS ANNUAL CONFERENCES, ADVANCES IN IBD AND DIGESTIVE DISEASE WEEK TO UPDATE THE PLAN. -CCFA SUPPORTS INNOVATIVE AND ESSENTIAL RESEARCH IN THE FIELD OF IBD. SINCE ITS INCEPTION IN 1967, CCFA HAS FUNDED OVER 1,400 PROJECTS AND INVESTED $268 MILLION IN RESEARCH. 24920838 0 457281 CCFA PROVIDES INFORMATION AND EDUCATION IN AN EFFORT TO REACH THE MORE THAN 1.6 MILLION american IBD PATIENTS AND THEIR FAMILIES THROUGH A VARIETY OF PERIODICALS, BOOKS, AWARENESS CAMPAIGNS, LOCAL CHAPTERS, ITS WEBCASTS, AND THROUGH ITS WEBSITE. CCFA ALSO REACHES ITS MANY MEMBERS WITH EXCLUSIVE MAILINGS. CCFA ALSO OFFERS PROFESSIONAL EDUCATION ON INFLAMMATORY BOWEL DISEASES, ITS IBD JOURNAL, AND HEALTH PROFESSIONAL WORKSHOPS. CCFA SUPPORT SERVICES ARE DELIVERED THROUGH ITS CHAPTERS NATIONWIDE WHICH OFFER MORE THAN 200 SUPPORT GROUPS AND 12 SUMMER CAMPS for children with ibd. READ MORE ABOUT CCFA'S CHAPTERS ON ITS WEBSITE, WWW.CCFA.ORG, OR VIEW ITS WEBCASTS. 54312020 true true false true false false false false false false true false false false true true true false false false true true false true true true false true false true false false false false false false false false true false false false false false false false false true 359 0 true 345 true false false false false false true true false false false false X 22 22 true false true false false false false true true false true true true true true true true true true true false AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI X X RONALD GOLDSMAN VP FINANCE 2126853440 733 THIRD AVENUE NEW YORK NY 100178804 Richard Geswell non-voting President/CEO - (Thru 8/2015) 35.0 0.0 X X 520651 0 84859 michael Osso non-voting President/CEO (as of 8/2015) 35.0 0.0 X X 326752 0 24188 Andrew Stern Secretary 1.0 0.0 X X 0 0 0 Bishop Walter Scott Thomas Trustee 1.0 0.0 X 0 0 0 Christopher Collette Trustee 1.0 0.0 X 0 0 0 David levenson Trustee 1.0 0.0 X 0 0 0 Donald Burke Trustee 1.0 0.0 X 0 0 0 Eric Stone Trustee 1.0 0.0 X 0 0 0 Francisco Sylvester MD Trustee 1.0 0.0 X 0 0 0 Irwin Rosenthal Trustee 1.0 0.0 X 0 0 0 james lewis trustee 1.0 0.0 X 0 0 0 Jeffrey Margolis Trustee (Thru 3/2015) 1.0 0.0 X 0 0 0 Jeffrey Nedelman Trustee 1.0 0.0 X 0 0 0 Jennifer Feikin Trustee 1.0 0.0 X 0 0 0 Jennifer O'Neill Trustee 1.0 0.0 X 0 0 0 John Crosson Trustee 1.0 0.0 X 0 0 0 John Hasenauer Trustee 1.0 0.0 X 0 0 0 Maria Oliva-Hemker MD Trustee 1.0 0.0 X 0 0 0 Matt Leavitt Trustee 1.0 0.0 X 0 0 0 Maura Breen Chairman (thru 3/2015) 1.0 0.0 X X 0 0 0 Michele Rubin APN CNS CGRN Trustee (Thru 3/2015) 1.0 0.0 X 0 0 0 Paul Salerno Treasurer 1.0 0.0 X X 0 0 0 Paul Tartell MD Trustee 1.0 0.0 X 0 0 0 Paula Hilbert Trustee 1.0 0.0 X 0 0 0 Scott Snapper MD NSAC Chairman 1.0 0.0 X X 0 0 0 Shelby Modell Trustee 1.0 0.0 X 0 0 0 Vance Gibbs Esquire Chairman (as of 3/2015) 1.0 0.0 X X 0 0 0 Robert Territo cfo/coo 35.0 0.0 X 231449 0 13053 Caren Heller Chief Scientific Officer 35.0 0.0 X 306856 0 8909 Judith Brown Chief development officer 35.0 0.0 X 250576 0 36655 Michael Elkow EVP, CHAPTER GROWTH & DEVELOP. 35.0 0.0 X 215688 0 15053 Marie Granieri chief of staff 35.0 0.0 X 225390 0 13067 Sheri Markus-Kennell Senior VP,Business Development 35.0 0.0 X 159429 0 19591 Kimberly Frederick-snapper AREA EXEC. DIR., NEw england 35.0 0.0 X 163798 0 9443 Craig Comins Vice President, Team Challenge 35.0 0.0 X 153858 0 17360 Erin Mulvey Stoeber VP marketing & communications 35.0 0.0 X 150864 0 7521 Kristin Kaplan Vice President, Special Events 35.0 0.0 X 151605 0 15873 Sheryl Rosenfeld Vice President, Take Steps 35.0 0.0 X 148959 0 16247 3005875 0 281819 36 false true false Blackbaud Po box 930256 ATLANTA GA 311930256 cnstnt. d.base impl. 1676473 Deloitte Consulting LLP 4022 belle drive HERMINTAGE TN 37076 patient d.base impl. 1343998 SANKY COMMUNICATION INC 599 11TH AVENUE NEW YORK NY 10036 DIRECT RESPONSE 566115 BARKLEY REI PO BOX 876270 KANSAS CITY MO 641876270 Marketing 558821 ROBERT MICHAEL EDUCATIONAL INSTITUT 101 LAUREL ROAD SUITE 200 VOORHEES NJ 080432368 EDUCATIONAL SERVICES 391025 22 1697539 27132904 421795 36353687 738120 65605925 EDUCATION & CAMP REGISTRATION FEES 900099 457281 457281 457281 144240 144240 0 505884 505884 0 0 0 1134024 974397 159627 159627 159627 6136123 27132904 6395785 -259662 -259662 323928 64786 259142 259142 0 IBD JOURNAL STIPENDS/SPONSORSHIPS 900099 233000 233000 REIMBURSEMENTS 900099 88154 88154 SETTLEMENT PROCEEDS 900099 40000 40000 89099 89099 450253 67322690 457281 1259484 25224006 25224006 0 1901144 1901144 0 2582556 1682723 566768 333066 0 16173529 10234893 4050980 1887654 719504 457173 177142 85189 2924574 1858274 720030 346270 1459227 927193 359262 172772 0 88174 70996 10820 6358 117980 94974 14476 8530 74248 74248 295706 295706 0 5485037 4416467 673062 395508 1360174 853767 130113 376294 1986870 1599789 243806 143275 1161194 934971 142488 83735 0 1652548 1330600 202782 119166 1895983 1526609 232653 136721 0 478477 478477 0 0 551925 444399 67726 39800 318039 256079 39026 22934 PUBLICATIONS 1001939 806742 122947 72250 GRANTS REFUNDED/RESCINDED -955716 -955716 LIST RENTAL FEES 183054 147392 22462 13200 MISCELLANEOUS 773037 21068 426297 325672 67453209 54312020 8277088 4864100 0 0 8675578 12287542 5469618 5145241 0 0 0 0 0 0 0 0 518622 519703 833797 471861 5545567 2854113 2879128 2691454 11258021 11275738 886862 849027 0 0 0 0 1499753 1585097 32021379 34825663 3740751 2815809 15478378 20559402 1300000 352646 0 0 0 0 0 0 0 0 0 0 537368 582230 21056497 24310087 X 2555201 -601899 8409681 11117475 0 0 10964882 10515576 32021379 34825663 X -130519 -350478 31691 X false true X true false X 49476219 49808240 52916365 60902280 65605925 278709029 0 0 49476219 49808240 52916365 60902280 65605925 278709029 37289997 241419032 802238 780816 723526 625821 650124 3582525 6130 0 0 48092 0 54222 6614989 7552953 7753879 7775390 6910304 36607515 318953291 1998201 0.75691 0.74711 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false true false false true 80814 false true 74248 155062 false Schedule C, Part II-B, Line 1(i) The Crohn's & Colitis Foundation of America, Inc. (CCFA) pays the Health and Medicine Counsel of Washington D.C. to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. (Total amount paid in 2015 was $74,248). It should be noted that the Health and Medicine Counsel of Washington is a healthcare advocacy group that may lobby on behalf of healthcare organizations; however, it is not paid to directly undertake any lobbying activities on behalf of CCFA. CCFA holds a "Day on the Hill" event every year, in which patients suffering with Crohn's disease volunteer to travel to Washington D.C. to discuss proposed healthcare bills with legislators. The "Day on the Hill" event was conducted during the calendar year 2015, for which expenses incurred were approximately $80,814. Expenditures of $80,814 for the Day on the Hill of event have been reported on Schedule C, Part II-B, 1(g). Included within the $80,814 are expenses incurred for mailings made to members, legislators or the public (line 1(d)); accordingly the Foundation has marked box 1(d) yes, but not reported an expense on that line (to avoid double-counting). 445868 111305 334563 2090488 1610449 480039 3009211 1132359 1876852 2691454 0 REINSURANCE CONTRACTS 263086 DEFERRED RENT 319144 582230 X 78650474 -350478 11734725 31691 11415938 67234536 88154 88154 67322690 79099780 11734725 11734725 67365055 88154 88154 67453209 Reconciliation of Revenue Part XI, Line 2d Changes in Charitable Remainder Trusts: $31,691 Part XI, Line 4b Reimbursements reclassed to Part VIII: $88,154 Reconciliation of Expenses Part XII, Line 4b Reimbursements reclassed to Part VIII: $88,154 Income Taxes Part X Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The tax years ending 2012, 2013, 2014 and 2015 are still open to audit for both federal and state purposes. The adoption of this guidance did not have an impact on the Foundation's financial statements as management believes that there are no material uncertain tax positions within its financial statements. true Europe (Including Iceland and Greenland) Grantmaking research 1140674 East Asia and the Pacific Grantmaking research 147429 North America Grantmaking research 613041 1901144 1901144 East Asia and the Pacific Research 147429 Bank Wire Europe (Including Iceland and Greenland) Research 80000 Bank Wire Europe (Including Iceland and Greenland) Research 170000 Bank Wire Europe (Including Iceland and Greenland) Research 98306 Bank Wire Europe (Including Iceland and Greenland) Research 116600 Bank Wire Europe (Including Iceland and Greenland) Research 121850 Bank Wire Europe (Including Iceland and Greenland) Research 83069 Bank Wire Europe (Including Iceland and Greenland) Research 117342 Bank Wire Europe (Including Iceland and Greenland) Research 119900 Bank Wire Europe (Including Iceland and Greenland) Research 107843 Bank Wire Europe (Including Iceland and Greenland) Research 115764 Bank Wire Europe (Including Iceland and Greenland) Research 10000 Bank Wire North America Research 107295 Bank Wire North America Research 129121 Bank Wire North America Research 110795 Bank Wire North America Research 115830 Bank Wire 16 false false false false false false X X X X X X X true sanky communication direct response false 4075549 266282 3509434 infocision management corp tele- marketing false 19235 29424 -10189 4094784 295706 3499245 AL AK AR CA CO CT FL GA HI IL KS KY LA ME MD MA MI MN MS MO NV NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI Take Steps 10498878 9312594 1186284 469348 716936 Team Challenge 7290483 5809068 1481415 239454 1241962 77 15479666 12011242 3468424 2610630 1117455 33269027 27132904 6136123 3319432 3076353 6395785 -259662 false false 323928 64786 false 323928 64786 64786 259142 CA CO CT FL GA MA MO NV NY NC OH OR PA TX WA true false false false 1.00000 Ronald Goldsman 733 Third Avenue Suite 510 New York NY 10017 false See part IV 0 none false Schedule G, Part III - GAMING ACTIVITIES The Crohn's & Colitis Foundation of America, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own special event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only seventeen chapters held raffles in fifteen states: California, Colorado, Connecticut, Massachusetts, Florida, Georgia, Missouri, Nevada, North Carolina, New York, Ohio, Pennsylvania, Tennessee, Texas and Washington. true Albert Einstein College of Medicine of YU 1300 Morris Park Ave Bronx NY 10461 131624225 501(C)(3) 140000 Research Baylor College of Medicine One Baylor Plaza Houston TX 77030 741613878 501(C)(3) 80700 Research Beth Israel Deaconess Med Center 330 Brookline Avenue Boston MA 02215 042103881 501(C)(3) 115799 Research Boston Childrens Hospital 300 Longwood Avenue Boston MA 02215 104277444 501(C)(3) 916564 Research Brigham & Womens Hospital Inc 75 Francis Street Boston MA 02215 104231290 501(C)(3) 225248 Research Broad Institute Inc 415 Main Street Cambridge MA 02142 042312909 501(C)(3) 40000 Research Brown University Brown University 164 Providence RI 02912 050258809 501(C)(3) 90000 Research California Inst Biomedical Research 11119 N Torrey Pines La Jolla CA 92037 453682796 501(C)(3) 58250 Research Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501(C)(3) 386500 Research Children's Hospital & Research Center at Oakland 747 52nd Street Oakland CA 94609 940382330 501(C)(3) 115830 Research Children's Hospital Los Angeles 4650 Sunset Blvd Los Angeles CA 90027 195612191 501(C)(3) 58250 Research Cincinnati Children's Hospital Medical Center 3333 Burnet Avenue Cincinnati OH 45229 131083393 501(C)(3) 629330 Research Cleveland Clinic Foundation 9500 Euclid Avenue Cleveland OH 44195 340714585 501(C)(3) 115830 Research Columbia University Med Center 630 West 168th St New York NY 10032 135598093 501(C)(3) 57915 Research Dartmouth Medical school 1 Rope Ferry Rd Hanover NH 03755 020222111 501(C)(3) 1000000 Research Duke University Medical Center 2200 West Main Street Durham NC 27705 560532129 501(C)(3) 90000 Research Emory University 1599 Clifton Road NE Atlanta GA 30322 580566256 501(C)(3) 1648085 Research Federation of American Societies for Experimental 9650 Rockville Pike Bethesda MD 20814 520700497 501(C)(3) 10000 Research Fed Clin Immunology Soc N83 W13410 Leon Rd M Falls WI 53051 760715404 501(C)(3) 10000 Research Georgia State University 38 Peachtree Center Avenue Suite 5 Atlanta GA 30302 158056625 501(C)(3) 342000 Research Harvard Medical School 25 Shattuck Street Boston MA 02115 042103580 501(C)(3) 58250 Research Icahn School of Medicine at Mount Sinai One Gustave L Levy Place Box 1075 New York NY 10029 136171197 501(C)(3) 1279495 Research Iowa State Un of Science & Tech 3069 Admin services Bldg Ames IA 50011 426004224 501(C)(3) 82707 Research Johns Hopkins U 12529 Coll Center Dr Chicago IL 60693 586002050 501(C)(3) 55685 Research La Jolla Institute for Allergy & Immunology 9420 Athena Circle La Jolla CA 92037 330328688 501(C)(3) 58250 Research Massachusetts General Hospital 55 Fruit Street Boston MA 02114 104269798 501(C)(3) 981660 Research Massachusetts Institute of Technology 77 Massachusetts Avenue Cambridge MA 02139 042103594 501(C)(3) 152676 Research Mayo Clinic 200 First St SW Rochester MN 559050001 416011702 501(C)(3) 208250 Research NYU School of Medicine One Park Avenue New York NY 10016 135562308 501(C)(3) 90000 Research Oklahoma Medical Research Foundation 825 NE 13th Street Oklahoma City OK 73104 173058027 501(C)(3) 54450 Research Research Institute at Nationwide Children's Hospit 700 Childrens Dr Columbus OH 43205 316056230 501(C)(3) 203609 Research Sanford-Burnham Med Research Inst 10901 N T Pines Rd La Jolla CA 92037 520595110 501(C)(3) 58250 Research Soc for Mucosal Immunology N83 W13410 Leon Rd M Falls WI 53051 541419447 501(C)(3) 10000 Research St Jude Children's Research Hospital 262 Danny Thomas Pl Memphis TN 381053678 162064601 501(C)(3) 115830 Research Stanford University 3172 Porter Drive Palo Alto CA 94304 941156365 501(C)(3) 57935 Research State University of New York University at Buffal 3435 Main Street Buffalo NY 14214 160865182 501(C)(3) 89500 Research SUNY Upstate Medical U 750 E ADAMS St Syracuse NY 13210 141368361 501(C)(3) 58250 Research Children's Hospital 3615 Civic Cent Philadelphia PA 19104 232237932 501(C)(3) 110129 Research The Medical College of Wisconsin Inc 8701 Watertown Plank Rd PO Box 2 Milwaukee WI 532260509 060646973 501(C)(3) 115830 Research The Rector and Visitors of the University of Virgi PO Box 400195 Charlottesville VA 22904 546001796 501(C)(3) 115830 Research The Regents of the U of Ca 11000 Kinross Ave Los Angeles CA 90095 956006143 501(C)(3) 2352850 Research The Regents of the U of Ca - SD 9500 Gilman Dr La Jolla CA 92093 195600614 501(C)(3) 231660 Research Regents of U of Ca Riverdale Office of Research Riverdale CA 92521 956006142 501(C)(3) 115830 Research Regents of the U of Ca San Fran 3333 California St San Francisco CA 94118 946036493 501(C)(3) 379910 Research The Regents of U of Mi 1500 E Med Center Dr Ann Arbor MI 48109 386006309 501(C)(3) 545269 Research The Rockefeller University 1230 York Avenue New York NY 10065 131624158 501(C)(3) 205830 Research Trustees of U PA 3451 Walnut St Phil PA 19104 231352685 501(C)(3) 804279 Research The University of AL 1720 2nd Ave S Birmingham AL 352940111 636005396 501(C)(3) 321660 Research The University of Chicago 1427 E 60TH St Chicago IL 60637 362177139 501(C)(3) 114325 Research The University of NC 104 Airport Drive Chapel Hill NC 27599 566001393 501(C)(3) 1689061 Research Trudeau Institute Inc 154 Algonquin Avenue Saranac Lake NY 12983 430653611 501(C)(3) 115830 Research Tulane University School of Med 1430 Tulane Ave New Orleans LA 70112 720423889 501(C)(3) 108915 Research University of California Davis Health Systems 4400 V Street Sacramento CA 95817 846000555 501(C)(3) 90000 Research University of California Los Angeles 675 Charles E Young Dr LA CA 90095 956006143 501(C)(3) 122360 Research University of California San Diego - Health Scien 9500 Gilman Drive La Jolla CA 92093 956006144 501(C)(3) 334955 Research University of Colorado 500 13001 E 17th Pl Aurora CO 80045 846000555 501(C)(3) 349371 Research University of Massachusetts Medical School 55 Lake Avenue North Worcester MA 01655 043167352 501(C)(3) 115830 Research University of New Mexico HSC 1 U of New Mexico Albuquerque NM 87131 856000642 501(C)(3) 90000 Research University of Pittsburgh 123 University Place Pittsburgh PA 15213 250965591 501(C)(3) 115517 Research University of Utah 75 S 2000 Rm111 Salt Lake City UT 84112 876000525 501(C)(3) 114938 Research UT SW Medicine 5323 Harry Hines Blvd Dallas TX 75390 175600286 501(C)(3) 58250 Research Vanderbilt University Medical Center 1400 18th Avenue South Nashville TN 37212 162047682 501(C)(3) 408423 Research Virginia Commonwealth University PO BOX 980568 Richmond VA 232980568 546001758 501(C)(3) 79835 Research Washington University One Brookings Drive St Louis MO 63130 430653611 501(C)(3) 3424903 Research Weill Medical College 413 East 69th St New York NY 10022 131623978 501(C)(3) 241660 Research Yale University 300 Cedar Street PO Box 208057 New Haven CT 06520 060646973 501(C)(3) 347260 RESEARCH 67 Grants Part I, Line 1 The Crohn's & Colitis Foundation of America, Inc. ("CCFA") is a non-profit organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and ccfa requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated. X X X X X false false false false false false false true false Richard Geswell non-voting President/CEO - (Thru 8/2015) 520651 0 0 76753 8106 605510 0 michael Osso non-voting President/CEO (as of 8/2015) 291752 35000 0 20750 3438 350940 0 Robert Territo cfo/coo 219449 12000 0 10961 2092 244502 0 Caren Heller Chief Scientific Officer 306856 0 0 6909 2000 315765 0 Judith Brown Chief development officer 235576 15000 0 31622 5033 287231 0 Michael Elkow EVP, CHAPTER GROWTH & DEVELOP. 215688 0 0 7000 8053 230741 0 Marie Granieri chief of staff 213390 12000 0 12772 295 238457 0 Sheri Markus-Kennell Senior VP,Business Development 154429 5000 0 9835 9756 179020 0 Kimberly Frederick-snapper AREA EXEC. DIR., NEw england 157498 6300 0 9443 0 173241 0 Craig Comins Vice President, Team Challenge 151358 2500 0 9512 7848 171218 0 Erin Mulvey Stoeber VP marketing & communications 150864 0 0 7521 0 158385 0 Kristin Kaplan Vice President, Special Events 146605 5000 0 9180 6693 167478 0 Sheryl Rosenfeld Vice President, Take Steps 146459 2500 0 7688 8559 165206 0 COMPENSATION SCHEDULE J, PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, GEOGRAPHIC LOCATIONS, TENURE, MISSION EXPENSES AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD AND COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABle DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF CHIEF STAFF EXECUTIVES. IN JANUARY, 2015, THE FOUNDATION HIRED AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION CCFA PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. Incentive Program Schedule J, Part I, Line 7 The President's bonus and incentive compensation is predicated off of a set of objectives that are developed and updated each year. These objectives include raising revenues, management of expenses, development of regions and related performance, building of infrastructure and maximization of mission expenditures. Results are evaluated by the Compensation and Benefits Committee and the incentive is ultimately determined based on ratings of performance of these objectives. For all other employees, presidents' impact awards are given if the individual exceeds his/her annual performance objectives and must be recommended by their supervisor. X 79 738120 Market Price false true true Relationships Part VI, Section A, line 2 Board member Scott Snapper and highly compensated employee Kimberly Frederick-Snapper have a family relationship. Bylaws Changes Part VI, Section A, line 4 Crohn's & Colitis Foundation of America amended its bylaws in calendar year 2015 to clarify which officers are empowered with signatory authority on contractual arrangements involving the organization. Process used to review form 990 Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the Chair of the Audit and Finance Committee members for discussion and comment. A copy of the 990 is distributed to all Board of Trustees prior to filing. Conflict of Interest Policy Monitoring & Enforcement Part VI, Section B, Line 12 All officers, directors, trustees, and key employees of the Crohn's & Colitis Foundation of America, Inc. ("CCFA") are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with CCFA. CCFA monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately. Process for determining compensation Part VI, section B, Lines 15 a & b The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic locations, tenure, mission and individual performance help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board and Compensation and Benefits Committee using guidelines and comparable data provided in National Compensation Studies of Chief Staff Executives. In January 2015, The Foundation hired an independent compensation consultant to review and validate the compensation it pays its executives (and all employees, for that matter). The Foundation's practice will be to continue to rely on benchmarking surveys and other industry data comparing the compensation CCFA pays to its employees with compensation paid to employees of other not for profit organizations of similar size. Availability of documents to the public part vi, section C, line 19 The taxpayer makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.ccfa.org. The Form 990 is likewise published on the internet at www.guidestar.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion. Contributions Part VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation of America, Inc. ("CCFA") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to CCFA nor does CCFA have ownership rights to them. In 2015, CCFA received $17,304 in revenues from this program. Additionally, CCFA receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of CCFA's mission. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, CCFA has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2015, contributed services and airtime amounted to $11,734,725. Form 990, Part XI, Line 9 Other changes in net assets Changes in Charitable Remainder Trusts - $31,691