2016-11-08T18:49:01-06:00 2016-06-30 930900579 MCDONALD JACOBS PC 520 SW YAMHILL ST STE 500 PORTLAND OR 97204 990 2015-07-01 930571472 NATIONAL PSORIASIS FOUNDATION NATI 5032447404 6600 SW 92ND AVENUE No 300 PORTLAND OR 97223 RANDY BERANEK PRESIDENT/CEO 5032447404 2016-11-03 1 Sang Ahn P00540880 5032270581 2015 2017-02-10 21:41:12Z RANDY BERANEK 6600 SW 92ND AVENUE No 300 PORTLAND OR 97223 10403564 0 X WWW.PSORIASIS.ORG X 1968 OR TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED. 13 13 76 9100 542092 -500 8705798 9161189 732004 611101 644050 192279 -222376 -489913 9859476 9474656 1899460 1495327 0 0 4587328 4968864 35030 34934 1373316 3037417 4472147 9559235 10971272 300241 -1496616 7578099 6546778 694185 1368180 6883914 5178598 X THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE. 0 0 3770028 1495327 69009 RESEARCH AND PROFESSIONAL EDUCATIONDIRECTLY SUPPORTING THIRTEEN EARLY-STAGE RESEARCH PROJECTS AND EMERGING RESEARCHERS THROUGH RESEARCH GRANTS. AWARDED SEVEN MEDICAL RESEARCH FELLOWSHIPS DESIGNED TO INCREASE THE NUMBER OF PHYSICIAN RESEARCHERS INVESTIGATING PSORIATIC DISEASES, LEADING TO MORE DISCOVERIES, BETTER TREATMENTS AND ULTIMATELY, A CURE. MORE THAN $14 MILLION HAS BEEN COMMITTED TO RESEARCH SINCE OUR INCEPTION.HOSTED PROFESSIONAL EDUCATION FOR MEDICAL PROFESSIONALS, DERMATOLOGY RESIDENTS AND RHEUMATOLOGY FELLOWS TO LEARN ABOUT THE LATEST ADVANCEMENTS IN TREATMENTS AND THE MANAGEMENT OF PSORIATIC DISEASE.PROMOTED PATIENT INVOLVEMENT IN RESEARCH STUDIES AND CLINICAL TRIALS.CONTINUE TO MAINTAIN THE NATIONAL PSORIASIS VICTOR HENSCHEL BIOBANK, AIDING IN THE SEARCH FOR SPECIFIC GENES THAT CAUSE PSORIASIS AND PSORIATIC ARTHRITIS. HOST AN ON-LINE COMMUNITY CALLED CITIZEN PSCIENTIST TO CONNECT PATIENTS WITH RESEARCH.PUBLISHED THE JOURNAL OF PSORIASIS AND PSORIATIC ARTHRITIS, A PEER-REVIEWED MEDICAL JOURNAL TO PROVIDE RHEUMATOLOGISTS, DERMATOLOGISTS AND OTHER MEDICAL PROFESSIONALS WITH THE LATEST RESEARCH AND TREATMENT INFORMATION.LEAD DISCUSSIONS WITH HEALTH POLICY AND REGULATORY GROUPS TO IMPROVE HEALTH OUTCOMES MEASURES AND REMOVE BARRIERS TO CARE. 1149701 ADVOCACYTHE FOUNDATION'S ADVOCACY PRIORITIES ARE FOCUSED ON STRATEGIES THAT PROMOTE FEDERAL RESEARCH EFFORTS AND ENSURE INDIVIDUALS LIVING WITH PSORIATIC DISEASES HAVE FAIR AND AFFORDABLE ACCESS TO NEEDED TREATMENTS. HARNESSING THE COLLECTIVE EFFORTS OF TENS OF THOUSANDS OF ADVOCATES, THE PSORIASIS FOUNDATION WORKED TO: MAKE INSURANCE MORE FAIR AND AFFORDABLE AND HELP IMPROVE COVERAGE FOR PEOPLE WITH PSORIATIC DISEASE, HELP SET PUBLIC HEALTH POLICY FOR PSORIASIS AND PSORIATIC ARTHRITIS THROUGH THE FINDINGS FROM DATA COLLECTION AT THE CENTERS FOR DISEASE CONTROL (CDC), WORKED TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSORIATIC ARTHRITIS TREATMENTS, AND INCREASE FEDERAL FUNDING FOR PSORIASIS AND PSORIATIC ARTHRITIS RESEARCH IN ORDER TO FIND BETTER TREATMENTS AND A CURE. 3943719 4624 EDUCATION, OUTREACH AND PATIENT SERVICESPUBLISHED INFORMATION ON LIVING WELL WITH PSORIATIC DISEASES, AS WELL AS THE LATEST SCIENCE AND TREATMENT UPDATES FOR SOME 212,000 READERS OF PSORIASIS ADVANCE MAGAZINE AND OTHER PRINT PUBLICATIONS.PROVIDED COMPREHENSIVE RESOURCES AT WWW.PSORIASIS.ORG AND OTHER SITES FOR MORE THAN 4.4 MILLION VISITORS.SENT EDUCATIONAL E-NEWSLETTERS TO MORE THAN 270,000 SUBSCRIBERS.HOSTED 19 MORE THAN SKIN DEEP AND NINE BE JOINT SMART EDUCATIONAL EVENTS ATTRACTING MORE THAN 1,200 PARTICIPANTS. ESTABLISHED THE PATIENT NAVIGATION CENTER WHICH OFFERS FREE GUIDANCE ON LIVING A HEALTHY LIFE WITH PSORIASIS AND PSORIATIC ARTHRITIS BY WORKING ONE ON ONE WITH PATIENTS TO FIND SPECIALISTS, ACCESS NEW MEDICINES AND CONNECTIONS TO OTHERS WHO ARE LIVING WITH PSORIATIC DISEASE. 8863448 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 74 0 76 1 1 1 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X BETTE DRAKE 5032447404 6600 SW 92ND AVENUE No 300 PORTLAND OR 97223 COLBY EVANS MD CHAIR 1.00 X X 0 0 0 PETE REDDING Chair-elect 1.00 X X 0 0 0 CHIP NEWTON vice-chair 1.00 X X 0 0 0 CAROL OSTROW secretary 1.00 X X 0 0 0 TERRI THEISEN treasurer 1.00 X X 0 0 0 KRISTA KELLOGG iMMEDIATE PAST CHAIR 1.00 X X 0 0 0 STEVE BISHKOFF DIRECTOR 1.00 X 0 0 0 KATHLEEN GALLANT DIRECTOR 1.00 X 0 0 0 HOLLY FIELDS KRAFSUR DIRECTOR 1.00 X 0 0 0 matthew kiselica DIRECTOR 1.00 X 0 0 0 MIKE LAUB DIRECTOR 1.00 X 0 0 0 ben lockshin md DIRECTOR 1.00 X 0 0 0 RON GRAU DIRECTOR 1.00 X 0 0 0 abby van voorhees md dIRECTOR 1.00 X 0 0 0 RANDY BERANEK President/CEO 40.00 X 328535 0 22596 william cardamon chief Field Svc Officer 40.00 X 167186 0 8645 jeremy hall director of field operations 40.00 X 110228 0 16719 jules greenwald DIRECTOR OF MAJOR GIFTS 40.00 X 103154 0 11568 CATHERINE COMAN VICE PRESIDENT OF MARKETING 40.00 X 148862 0 13030 leaH HOWARD VP OF GOVERNMENT REL & ADVOCACY 40.00 X 123360 0 7538 sALLY NORBY VP OF TRAINING & ORG DEVELOPMENT 40.00 X 118147 0 18322 bridget hart director of major gifts 40.00 X 104185 0 16453 1203657 0 114871 8 0 1 0 CONVERO 835 SHARON DRIVE SUITE 200 CLEVELAND OH 44145 PUBLICATION DEVELOPMENT AND DISTRIBUTION 224574 FAEGRE BAKER DANIELS LLP 1050 K STREET NW WASHINGTON DC 20001 CONSULTING 141794 MASH LLC 3433 MCNARY PARKWAY 802 LAKE OSWEGO OR 97035 CONSULTING 114705 3 1000959 1965108 6195122 98460 9161189 ADVERTISING INCOME 541800 542092 542092 CONSULTING 532000 68874 68874 CONFERENCE REGISTRATION 611710 135 135 611101 76192 76192 550458 434371 116087 116087 116087 0 1965108 494537 -494537 -494537 4624 0 4624 4624 9474656 73633 542092 -302258 X 1222297 1222297 273030 273030 324635 253909 22664 48062 3743661 2928060 261354 554247 129697 101441 9054 19202 437201 341952 30522 64727 333670 260976 23294 49400 56016 49325 3554 3137 19835 19835 158361 158361 34934 34934 1115060 1011181 64425 39454 27458 25481 1977 738773 419201 97763 221809 350681 300980 15701 34000 752852 509503 138041 105308 832562 771502 40107 20953 30984 24238 2164 4582 29543 22608 2091 4844 BAD DEBT 168764 102234 66530 DUES & SUBSCRIPTIONS 84306 68648 1389 14269 SPECIAL EVENTS 74029 74029 STAFF EDUCATION & TRAIN 12459 9190 1030 2239 20464 9331 1520 9613 10971272 8863448 734508 1373316 X 1056777 559070 127585 113090 2414324 1935697 162128 159464 29162 29839 438438 218834 657626 514601 49987 143025 3268124 3356668 31574 31091 7578099 6546778 545553 1191569 7001 0 141631 176611 694185 1368180 X 3851379 2490840 3032535 2687758 6883914 5178598 7578099 6546778 -1496616 -208700 0 X X 0 1 X 1 0 X 8320464 6743692 8404896 8705798 9161189 41336039 8320464 6743692 8404896 8705798 9161189 41336039 14494483 26841556 82622 84774 84661 84329 76192 412578 41748617 715231 0.64290 0.67870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 17322 413544 430866 9167090 9597956 629898 157475 0 0 477188 545781 561791 629898 2214658 3321987 361373 357816 404532 430866 1554587 119297 136445 140448 157475 553665 830498 28318 34188 16786 17322 96614 5562686 23940 -51232 200000 5335394 5418985 189359 -45658 5562686 4839410 350615 513960 285000 5418985 4433255 506647 159508 260000 4839410 2578880 1872185 72190 90000 4433255 1.00000 0 0 15698 13898 1800 556830 489357 67473 85098 11346 73752 143025 DEFERRED RENT 98293 GIFT ANNUITY LIABILITY 45304 DEFERRED COMPENSATION 33014 176611 X 9265956 -208700 -208700 9474656 0 9474656 10971272 0 10971272 0 10971272 Part V, Line 4: THE ENDOWMENT WILL BE USED FOR SUPPORT OF THE ORGANIZATION'S EXEMPT PURPOSE, LIMITED TO FIVE PERCENT OF PRINCIPAL PER YEAR, AS WELL AS SUBJECT TO APPROVAL. Part X, Line 2: THE ORGANIZATION FOLLOWS THE PROVISION OF FASB ASC TOPIC OF ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND CONCLUDED THAT THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS TOPIC. 1 0 0 0 0 0 0 0 0 0 North America RESEARCH-DISCOVERY GRANT 73860 CHECK North America RESEARCH-EARLY CAREER 50000 CHECK Europe (Including Iceland & Greenland) RESEARCH-TRANSLATIONAL GRANT 100000 CHECK Europe (Including Iceland & Greenland) RESEARCH-EARLY CAREER 49170 CHECK 4 0 0 0 0 0 0 X X X X X X 1 ARIA COMMUNICATIONS 717 WEST ST GERMAIN STREET ST CLOUD MN 56301 PHONE CAMPAIGN 0 43230 34934 8296 43230 34934 8296 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY TEAM NPF WALK 100959 100959 26608 81356 10069 16618 26687 TEAM NPF 731561 731561 19030 120762 34877 1 232588 232588 1000 24451 76696 56383 1065108 1065108 46638 226569 86765 16618 117947 494537 -494537 Schedule G, Part I, Line 2b, Column (v) THE AGREEMENT WITH FUNDRAISER PROVIDED THAT POSTAGE AND PRINTING WERE PAID SEPARATELY FROM OTHER FEES, IN THE AMOUNT OF $2,788. ENTIRE AMOUNT PAID TO FUNDRAISER IS LISTED ABOVE. 1 UNIVERSITY OF CALIFORNIA DAVIS PO BOX 989062 WEST SACRAMENTO CA 95798 946036494 501(C)(3) 99510 TRANSLATIONAL UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM ST SAN FRANCISCO CA 94143 946036493 501(C)(3) 100000 TRANSLATIONAL SANFORD-BURNHAM MEDICAL RESEACH INSTITUTE 10901 NORTH TORREY PINES RD LA JOLLA CA 92037 510197108 501(C)(3) 100000 TRANSLATIONAL COLUMBIA UNIVERSITY PO BOX 29789 NEW YORK NY 10087 135598093 501(C)(3) 100000 TRANSLATIONAL CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501(C)(3) 50000 TRANSLATIONAL UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM ST SAN FRANCISCO CA 94143 946036493 501(C)(3) 50000 FELLOWSHIP CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 50000 EARLY CAREER UNIVERSITY OF MICHIGAN 3003 S STATE STREET ANN ARBOR MI 48109 386006309 501(C)(3) 50000 DISCOVERY BAYLOR RESEARCH INSTITUTE 1950 N STEMMONS FWY STE 5010 DALLAS TX 75207 751921898 501(C)(3) 50000 FELLOWSHIP NORTHWESTERN UNIVERSITY 633 CLARK ST ROOM G-547 EVANSTON IL 60208 362167817 501(C)(3) 75000 DISCOVERY UNIVERSITY OF PENNSYLVANIA 3542 WALNUT STREET ROOM P-221 PHILADELPHIA PA 19104 231352685 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF UTAH 30 NORTH 1900 EAST SCHOOL OF MEDICINE SALT LAKE CITY UT 84132 876000525 501(C)(3) 50000 FELLOWSHIP STANFORD UNIVERSITY 3145 PORTER DRIVE PALO ALTO CA 94304 941156365 501(C)(3) 100000 TRANSLATIONAL UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE MC 0953 LA JOLLA CA 92093 956006144 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF NEW MEXICO 1 UNIVERSITY OF NEW MEXICO ALBUQUERQUE NM 87131 856000642 78810 DERM RESIDENCY FELLOWSHIP PALO ALTO VETERANS INSTITUTE FOR RESEARCH PO BOX V-38 PALO ALTO CA 94304 770207331 501(C)(3) 75000 DISCOVERY NATIONAL INSTITUTE OF ALLERGY AND INFECTIOUS DISEASES 5601 FISHERS LANE ROCKVILLE MD 20852 520858115 49544 EARLY CAREER ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 1 GUSTAVE L LEVY PL NEW YORK NY 10029 136171197 501(C)(3) 50000 FELLOWSHIP MASSACHUSSETTS GENERAL HOSPITAL 125 NASHAU ST BOSTON MA 02114 041564655 501(C)(3) 50000 FELLOWSHIP 17 2 Part I, Line 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE DIRECTOR OF RESEARCH PROGRAMS OF THE NATIONAL PSORIASIS FOUNDATION. X X 1 0 0 0 0 0 0 0 0 RANDY BERANEK President/CEO 295985 0 32550 0 0 0 13170 0 9426 0 351131 0 0 0 william cardamon chief Field Svc Officer 122853 0 0 0 44333 0 2902 0 5743 0 175831 0 0 0 CATHERINE COMAN VICE PRESIDENT OF MARKETING 148862 0 0 0 0 0 3750 0 9280 0 161892 0 0 0 Part I, Line 4a WILLIAM CARDAMON SEVERANCE PAYMENT $44,333 X 11 98460 SALE PRICE 0 1 1 Part I, Line 32b: THE ORGANIZATION USES AN OUTSIDE COMPANY THAT RECEIVES DONATED AUTOMOBILES AND SELLS THEM ON BEHALF OF THE ORGANIZATION. Form 990, Part VI, Section B, line 11 THE FORM 990 IS EMAILED TO ALL BOARD MEMBERS FOR THEIR REVIEW PRIOR TO ITS BEING FILED ELECTRONICALLY WITH THE IRS. Form 990, Part VI, Section B, line 12c WE HAVE A CONFLICT OF INTEREST POLICY THAT IS SIGNED BY ALL DIRECTORS ANUALLY. ALL DIRECTORS AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. Form 990, Part VI, Section B, line 15 THE BOARD OF DIRECTORS ANNUALLY REVEIWS AND APPROVES THE CEO'S COMPENSATION. THE FOUNDATION UTILIZES AN INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY FOR COMPARABLE INFORMATION FOR SALARIES. Form 990, Part VI, Section C, line 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AUDTIED FINANCIAL STATEMENTS ARE ALSO DISPLAYED ON THE WEBSITE. Form 990, Part IX, line 11g OTHER PROFESSIONAL FEES: Program service expenses 1,011,181. Management and general expenses 64,425. Fundraising expenses 39,454. Total expenses 1,115,060. Form 990, Part XII, Line 2c: THE PROCESS HAS NOT CHANGED