2016-11-14T10:41:10-06:00 2016-06-30 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 650N BETHESDA MD 208142930 990 2015-07-01 520856660 EPILEPSY FOUNDATION OF AMERICA EPIL 3014593700 8301 PROFESSIONAL PLACE LANDOVER MD 20785 PHILIP M GATTONE PRESIDENT AND CEO 3014593700 2016-11-14 1 3019519090 2015 2017-02-10 21:41:12Z PHILIP M GATTONE 8301 PROFESSIONAL PLACE LANDOVER MD 20785 16357358 0 X WWW.EPILEPSY.COM X 1967 DE SEE PART III, LINE 1. 20 19 64 100 0 0 12995210 14630365 902238 975700 432365 137848 -1206937 -709560 13122876 15034353 2160223 1850184 0 0 4988897 4862265 353150 463500 2766475 5814622 6910214 13316892 14086163 -194016 948190 16184412 15741755 4708772 3793964 11475640 11947791 X THE MISSION OF THE EPILEPSY FOUNDATION IS TO STOP SEIZURES AND SUDEP, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY THROUGH EFFORTS INCLUDING EDUCATION, ADVOCACY AND RESEARCH TO ACCELERATE IDEAS INTO THERAPIES. 0 0 4734559 766523 383031 COMMUNITY SERVICES - THE FOUNDATION HELPS ENSURE THAT COMMUNITIES ACROSS THE COUNTRY SUPPORT INDIVIDUALS, FAMILIES, CAREGIVERS AND OTHERS IMPACTED BY EPILEPSY AND SEIZURES. PROGRAMS ARE DEVELOPED FOR OUR NATIONWIDE NETWORK OF LOCAL EPILEPSY FOUNDATIONS. SERVICES ARE ALSO PROVIDED DIGITALLY. PROGRAMS ARE FUNDED THROUGH NATIONAL PARTNERSHIPS WITH GOVERNMENT AGENCIES, CORPORATE SPONSORS, FOUNDATION GRANTS AND PRIVATE DONATIONS. THE FOUNDATION IS COMMITTED TO SERVING AN INCREASING DIVERSE COMMUNITY BY BUILDING PROGRAMS AND INITIATIVES FOCUSING ON ETHNIC AND OTHER CULTURAL OUTREACH. THE FOUNDATION ACTIVELY ENGAGES IN LEGISLATIVE ADVOCACY TO IMPROVE ACCESS TO MEDICATIONS, HEALTH CARE, EMPLOYMENT AND CIVIL RIGHTS. THE FOUNDATION'S GOAL IS TO ENSURE THAT ALL PEOPLE AFFECTED BY EPILEPSY AND SEIZURES HAVE ACCESS TO APPROPRIATE SERVICES AND CARE. 2477898 15000 PUBLIC HEALTH EDUCATION - THE FOUNDATION BUILDS A NATIONWIDE PUBLIC HEALTH PROGRAM IN THE EPILEPSIES, FOCUSED ON EDUCATING THE PUBLIC AND PROFESSIONALS WHO INTERACT WITH THE PUBLIC ABOUT EPILEPSY, ITS CARE AND TREATMENT, REDUCING STIGMA THROUGH PUBLIC AWARENESS CAMPAIGNS, AND ADDRESSING THE EDUCATIONAL AND RESOURCE NEEDS OF PRIORITY POPULATIONS, INCLUDING TEENS, SENIORS AND THEIR CAREGIVERS, SCHOOL NURSES AND PERSONNEL, FIRST RESPONDERS, LAW ENFORCEMENT, AFRICAN-AMERICANS, HISPANICS, AND ASIAN AMERICANS. THE FOUNDATION RUNS A DIGITAL ENTERPRISE ANCHORED BY EPILEPSY.COM, WHICH SERVES OVER 11 MILLION UNIQUE USERS ANNUALLY. OUR SOCIAL MEDIA REACHES OVER 50 MILLION PEOPLE ANNUALLY. IN ADDITION, WE EDUCATE THROUGH ENGAGEMENT WITH TRADITIONAL MEDIA SOURCES, AND PARTNERSHIPS WITH PROFESSIONAL ORGANIZATIONS. THE FOUNDATION OWNS A 24/7 NATIONWIDE SUPPORT AND HELP LINE. EDUCATION IS ALSO DISSEMINATED THROUGH OUR NETWORK OF LOCAL EPILEPSY FOUNDATIONS AROUND THE COUNTRY. 2274326 1039349 592669 RESEARCH - THE EPILEPSY FOUNDATION SUPPORTS INNOVATIVE NEW THERAPIES AND RESEARCH TO ELIMINATE SEIZURES, SIDE EFFECTS, EPILEPSY-RELATED MORTALITY, CO-MORBIDITIES AND THE CONSEQUENCES OF EPILEPSY. THE FOUNDATION FOCUSES ON ACCELERATING RESEARCH THROUGH GRANTS, INVESTMENTS AND INNOVATIVE PARTNERSHIPS. OUR STRATEGIC RESEARCH GOALS INCLUDE ENCOURAGING SCIENTISTS AND CLINICIANS TO DEVOTE THEIR CAREERS TO EPILEPSY RESEARCH AND CLINICAL CARE THROUGH FINANCIAL AND OTHER FORMS OF SUPPORT. THE FOUNDATION ALSO ENCOURAGES ENGAGEMENT BY EXPERTS IN NON-TRADITIONAL DISCIPLINES TO HELP FIND ANSWERS TO EPILEPSY. 658684 29312 PATIENT SERVICES 61813 PROFESSIONAL EDUCATION AND TRAINING 720497 29312 10207280 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 0 1 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 21 0 1 64 1 0 0 0 0 0 1 1 0 0 0 1 0 X 20 19 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AR CA CT FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT WV WI X X DIANE RUBINSTEIN 3019183702 8301 PROFESSIONAL PLACE LANDOVER MD 207852353 WARREN LAMMERT CHAIR 1.00 0.10 X X 0 0 0 ROGER HELDMAN TREASURER 1.00 0.10 X X 0 0 0 MAY J LIANG SECRETARY 1.00 0.10 X X 0 0 0 ARLENE GORELICK DIRECTOR 1.00 0.10 X 0 0 0 BARI MILKEN DIRECTOR 1.00 0.10 X 0 0 0 BRADLEY BOYER DIRECTOR 1.00 0.10 X 0 0 0 BROOKE GORDON DIRECTOR 1.00 0.10 X 0 0 0 DANIEL MOORE DIRECTOR 1.00 0.10 X 0 0 0 FRANK FISCHER DIRECTOR 1.00 0.10 X 0 0 0 GARRY MENZEL DIRECTOR 1.00 0.10 X 0 0 0 GEOFFREY POPE DIRECTOR 1.00 0.10 X 0 0 0 HOWARD R SOULE DIRECTOR 1.00 0.10 X 0 0 0 JIM JACOBY DIRECTOR 1.00 0.10 X 0 0 0 JOYCE BENDER DIRECTOR 1.00 0.10 X 0 0 0 RICK HARRISON DIRECTOR 1.00 0.10 X 0 0 0 ROBERT W SMITH DIRECTOR 1.00 0.10 X 0 0 0 STEVE WULCHIN DIRECTOR 1.00 0.10 X 0 0 0 STEVEN SCHACHTER DIRECTOR 1.00 0.10 X 0 0 0 TONY COELHO DIRECTOR 1.00 0.10 X 0 0 0 PHILIP M GATTONE PRESIDENT/CEO 35.00 0.10 X X 245193 0 33961 ELLEN HOBBY VP/CFO 35.00 0.10 X 108111 0 3979 ANGELA OSTROM VP OF LEGAL & ADVISORY 35.00 0.10 X 162252 0 28845 JANICE M BUELOW VP OF PROGRAMS & RESEARCH 35.00 X 146827 0 16630 ALEXANDRA FINUCANE SENIOR ADVISOR 35.00 X 124727 0 9576 NICHOLE D MANNING-ASHE ASST. VP OF DEVELOPMENT 35.00 X 124313 0 19369 KENNETH LOWENBERG VP OF COMMUNICATIONS 35.00 X 123404 0 15783 1034827 0 128143 10 0 1 0 DESIGN DATA 610 PROFESSIONAL DRIVE SUITE 102 GAITHERSBURG MD 20879 IT SUPPORT 340446 BURTON STRATEGIES 2920 NEILSON WAY SUITE 501 SANTA MONICA CA 90405 FUNDRAISING 235500 COLUMBIA UNIVERSITY PO BOX 28789 NEW YORK NY 100879789 SUBCONTRACTOR 177372 HARGROVE 1 HARGROVE DRIVE LANHAM MD 20706 EVENT PLANNING 176840 MINDSET DIRECT 1220 N FILMORE ST SUITE 400 ARLINGTON VA 22201 DIRECT MAIL 148950 12 1739933 3084053 9806379 604338 14630365 PCORI CONTRACTS 900099 592669 592669 AFFILIATE FEES 900099 383031 383031 975700 135397 135397 10333 10333 63739 61288 2451 2451 2451 3604 1739933 716539 -712935 -712935 491492 545178 -53686 -53686 MISCELLANEOUS 900099 44635 44635 REIMBURSEMENTS 900099 2093 2093 46728 15034353 922014 0 -518026 X 1758372 1758372 40812 40812 51000 51000 445785 215229 203652 26904 3483518 2199589 435137 848792 261848 162000 40352 59496 390244 249501 53647 87096 280870 176641 42759 61470 7608 5018 647 1943 75734 49954 6436 19344 261333 172376 22209 66748 463500 463500 2342335 1998158 70708 273469 1073961 536906 56527 480528 165419 109111 14058 42250 38457 25377 3266 9814 372931 261449 28108 83374 420740 358931 18307 43502 723587 617289 31485 74813 683559 683559 452789 327326 35561 89902 105964 74288 7987 23689 EQUIPMENT MAINTENANCE 155161 120883 32354 1924 MEMBERSHIP 24718 12675 4127 7916 MISCELLANEOUS 5918 836 5081 1 14086163 10207280 1112408 2766475 X 766000 340880 0 425120 1632750 456308 653100 2837077 2201294 1112989 4891 6135 254946 152666 4850268 4149366 772266 700902 7131906 6824502 3533259 3651176 16184412 15741755 1541393 936370 958567 760407 16864 13820 2191948 2083367 4708772 3793964 X 6879824 8293009 122726 -635974 4473090 4290756 11475640 11947791 16184412 15741755 X 948190 -210614 -265425 X 0 1 X 1 1 1 X 9561857 14174311 17745071 12995210 14602451 69078900 9561857 14174311 17745071 12995210 14602451 69078900 1078523 68000377 317911 277119 165951 141400 145730 1048111 56668 152746 925765 79370 46728 1261277 71388288 9834416 0.95250 0.95020 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 27942 233391 261333 13824830 14086163 854308 213577 0 0 906061 848121 815845 854308 3424335 5136503 237654 245623 279882 261333 1024492 226515 212030 203961 213577 856083 1284125 20760 23581 19540 27942 91823 4473090 67914 -231086 19162 4290756 4584406 38059 149375 4473090 4301136 50000 379801 146531 4584406 4078116 240137 17117 4301136 4257131 250 -159908 19357 4078116 1.00000 0 0 4850268 4149366 700902 700902 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 3137241 DUE FROM AFFILIATES 130724 DEFERRED RENT 355297 BENEFICIAL INTEREST IN ASSETS HELD BY A COMMUNITY FOUNDATION 27914 3651176 DUE TO AFFILIATES 350046 DUE TO THE FOUNDATION 1733321 2083367 X 14872780 -210614 314466 -265425 -161573 15034353 0 15034353 14400629 314466 314466 14086163 0 14086163 PART V, LINE 4: THE ENDOWMENT FUNDS INCLUDE BOTH ENDOWMENT FUNDS AND PERPETUAL FUNDS HELD BY OUTSIDE INVESTMENT COMPANIES. INCOME IS EITHER FOR THE UNRESTRICTED USE OF THE FOUNDATION OR RESEARCH. PART X, LINE 2: FOR THE YEARS ENDED JUNE 30, 2016 AND 2015, THE EPILEPSY FOUNDATION AND THE EPILEPSY RESEARCH FOUNDATION HAVE DOCUMENTED THEIR CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGE IN VALUE OF SPLIT INTEREST AGREEMENTS REPORTED AS -265,425. INCOME ON THE FINANICAL STATEMENTS AND REPORTED AS AN OTHER CHANGE IN NET ASSETS ON FORM 990, PART XI, LINE 9 1 SUB-SAHARAN AFRICA 0 0 GRANT TO RECIPIENT LOCATED IN REGION 51000 0 0 0 0 0 0 51000 0 51000 SUB-SAHARAN AFRICA SHARK TANK AWARD 51000 WIRE TRANSFER 1 0 1 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION GENERALLY REQUIRES DOCUMENTATION OF EXPENDITURES AND ACHIEVEMENT OF GOALS OF GRANT. X X X X X X 1 MINDSET DIRECT 1220 N FILMORE STREET ARLINGTON VA 22201 DIRECT RESPONSE 0 1624175 168000 1456175 BURTON STRATEGIES 2920 NEILSON WAY SUITE 501 SANTA MONICA CA 90405 FUNDRAISING CONSULTANT 0 409342 295500 113842 2033517 463500 1570017 AK AR CA CO CT FL GA HI IL KS KY ME MD MA MI MN MS NH NJ NM NY NC ND OH OK OR PA RI SC TN UT NV WA WV WI DC WALK 1047373 1047373 17139 18848 2700 351290 AVE EVENT 286272 286272 92888 15 409892 406288 3604 5439 31103 197132 1743537 1739933 3604 22578 49951 2700 641310 716539 -712935 1 AMERICAN EPILEPSY SOCIETY 135 S LASALLE STREET 2850 CHICAGO IL 60603 046112600 501(C)(3) 150000 RESEARCH GRANTS AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE SOUTH MINNEAPOLIS MN 55415 411717098 501(C)(3) 22699 RESEARCH GRANTS THERASTAT LLC 44 KINGS GRANT ROAD WESTON MA 02493 300882390 OTHER 304600 NEW THERAPY GRANT EMPATICA INC 1 BROADWAY 14TH FLOOR CAMBRIDGE MA 02142 462401194 OTHER 25000 SEAL OF EXCELLENCE AWARD ZETO INC 1226 CHIAPAS TERRACE SAN JOSE CA 95126 472104946 OTHER 150000 SHARK TANK GRAND WINNER UNIVERSITY OF PENNSYLVANIA PO BOX 785541 PHILADELPHIA PA 191785441 231352685 501(C)(3) 61050 NEW THERAPY GRANT INNOCENTIVE 265 WINTER STREET 2ND FLOOR WALTHAM MA 02451 OTHER 165000 SUDEP AWARDS UNIVERSITY OF MINNESOTA NW 5957 PO BOX 1450 MINNEAPOLIS MN 554855957 416007513 501(C)(3) 50000 RESEARCH GRANTS MIT 77 MASSACHUSETTS AVENUE CAMBRIDGE MA 021394307 042103594 501(C)(3) 50000 RESEARCH GRANT - ZEBRA FISH IMPACT REDUCTION APPAREL 3739 BALBOA TERRACE UNIT B SAN DIEGO CA 92117 464966423 OTHER 6000 RESEARCH CTC FOUNDATION 2711 JEFFERSON DAVIS HIGHWAY ARLINGTON VA 22202 251811888 501(C)(3) 7500 RESEARCH EPILEPSY FOUNDATION ALABAMA OFFICE PARK 3 273 AZALEA RD 310 MOBILE AL 366091925 630639307 501(C)(3) 14500 COMMUNITY GRANTS EPILEPSY FOUNDATION ARIZONA 350 W THOMAS ROAD PHOENIX AZ 85013 866080639 501(C)(3) 14850 COMMUNITY GRANTS EPILEPSY FOUNDATION CENTRALSOUTH TX 10615 PERRIN BEITEL SUITE 602 SAN ANTONIO TX 782170000 760415338 501(C)(3) 24600 COMMUNITY GRANTS EPILEPSY FOUNDATION CHESAPEAKE REGION 8503 LASALLE ROAD TOWSON MD 212865915 522210541 501(C)(3) 14600 COMMUNITY GRANTS EPILEPSY FOUNDATION COLORADO 5889 GREENWOOD PLAZA BLVD 404 GREENWOOD VILLAGE CO 801112054 840607069 501(C)(3) 17600 COMMUNITY GRANTS EPILEPSY FOUNDATION CONNECTICUT 386 MAIN STREET MIDDLETOWN CT 064573360 222535999 501(C)(3) 15100 COMMUNITY GRANTS EPILEPSY FOUNDATION DELAWARE 61 CORPORATE CIRCLE NEW CASTLE CORPORATE COMMONS NEW CASTLE DE 197202439 516018401 501(C)(3) 16500 COMMUNITY GRANTS EPILEPSY FOUNDATION EAST TENNESSEE 1715 E MAGNOLIA AVE KNOXVILLE TN 379177827 581328013 501(C)(3) 14600 COMMUNITY GRANTS EPILEPSY FOUNDATION EASTERN PA 919 WALNUT STREET SUITE 700 PHILADELPHIA PA 19107 231882279 501(C)(3) 14350 COMMUNITY GRANTS EPILEPSY FOUNDATION FLORIDA 1200 NW 78TH AVENUE SUITE 400 MIAMI FL 331261891 592164525 501(C)(3) 36600 COMMUNITY GRANTS EPILEPSY FOUNDATION GEORGIA 6065 ROSWELL RD SUITE 715 ATLANTA GA 303284030 581115869 501(C)(3) 13850 COMMUNITY GRANTS EPILEPSY FOUNDATION GREATER CHICAGO 17 N STATE STREET SUITE 650 CHICAGO IL 60602 362317619 501(C)(3) 34100 COMMUNITY GRANTS EPILEPSY FOUNDATION GREATER CINCINNATI & COLUMB 895 CENTRAL AVE SUITE 550 CINCINNATI OH 452025757 237284156 501(C)(3) 48500 COMMUNITY GRANTS EPILEPSY FOUNDATION GREATER LOS ANGELES 5777 W CENTURY BLVD SUITE 820 LOS ANGELES CA 900455659 952046033 501(C)(3) 15600 COMMUNITY GRANTS EPILEPSY FOUNDATION GREATER SOUTHERN IL 140 IOWA AVENUE SUITE A BELLEVILLE IL 62220 510225010 501(C)(3) 6100 COMMUNITY GRANTS EPILEPSY FOUNDATION HAWAII 1050 ALA MOANA BLVD SUITE 255 SUITE 2250 HONOLULU HI 968144932 237216782 501(C)(3) 13000 COMMUNITY GRANTS EPILEPSY FOUNDATION HEART OF WISCONSIN 1302 MENDOTA STREET 100 MADISON WI 537141059 391370658 501(C)(3) 35000 COMMUNITY GRANTS EPILEPSY FOUNDATION KENTUCKIANA KOSAIR CHARITIES CENTRE 982 EASTERN PARKWAY LOUISVILLE KY 402171566 611314540 501(C)(3) 29100 COMMUNITY GRANTS EPILEPSY FOUNDATION LONG ISLAND 1500 HEMPSTEAD TURNPIKE EAST MEADOW NY 11554 111821135 501(C)(3) 15100 COMMUNITY GRANTS EPILEPSY FOUNDATION LOUISIANA 11762 S HARRELLS FERRY RD SUITE A BATON ROUGE LA 708162398 720824847 501(C)(3) 12600 COMMUNITY GRANTS EPILEPSY FOUNDATION METROPOLITAN NEW YORK METROPOLITAN NEW YORK 65 BROADWAY SUITE 505 NEW YORK NY 100062540 222146295 501(C)(3) 13000 COMMUNITY GRANTS EPILEPSY FOUNDATION MICHIGAN 25200 TELEGRAPH ROAD SUITE 110 SOUTHFIELD MI 48033 381508581 501(C)(3) 32500 COMMUNITY GRANTS EPILEPSY FOUNDATION MINNESOTA 1600 UNIVERSITY W SUITE 300 ST PAUL MN 551043800 410874541 501(C)(3) 15600 COMMUNITY GRANTS EPILEPSY FOUNDATION MISSISSIPPI 2001 AIRPORT ROAD N SUITE 307 FLOWOOD MS 392328849 640605780 501(C)(3) 8000 COMMUNITY GRANTS EPILEPSY FOUNDATION MISSOURI AND KANSAS 4406 ST VINCENT SAINT LOUIS MO 631193429 436048869 501(C)(3) 15600 COMMUNITY GRANTS EPILEPSY FOUNDATION NEW ENGLAND 335 MAIN STREET 8 WILMINGTON MA 01887 222505819 501(C)(3) 20600 COMMUNITY GRANTS EPILEPSY FOUNDATION NEW JERSEY 1 AAA DRIVE SUITE 203 TRENTON NJ 08691 237082215 501(C)(3) 22600 COMMUNITY GRANTS EPILEPSY FOUNDATION NORTH CAROLINA PIEDMONT ONE 1920 W FIRST STR SUITE 5541A WINSTONSALEM NC 27104 561011151 501(C)(3) 15600 COMMUNITY GRANTS EPILEPSY FOUNDATION NORTHCENTRAL IL IOWA AND NEBRASKA 321 WEST STATE ST STE 208 ROCKFORD IL 61101 362741730 501(C)(3) 18600 COMMUNITY GRANTS EPILEPSY FOUNDATION NORTHEASTERN NEW YORK THREE WASHINGTON SQUARE ONE UNITED WAY ALBANY NY 12205 141637156 501(C)(3) 17600 COMMUNITY GRANTS EPILEPSY FOUNDATION NORTHERN CALIFORNIA 1736 FRANKLIN STREET SUITE 450 OAKLAND CA 94612 946128891 501(C)(3) 9500 COMMUNITY GRANTS EPILEPSY FOUNDATION NORTHWEST 2311 N 45TH STREET SUITE 134 SEATTLE WA 981036905 911062461 501(C)(3) 31600 COMMUNITY GRANTS EPILEPSY FOUNDATION SOCIEDAD PUERTORRIQUENA DE 1100 CALLE MARGINAL RUIZ SOLER BAYAMON PR 009597365 660312587 501(C)(3) 5500 COMMUNITY GRANTS EPILEPSY FOUNDATION ROCHESTERSYRACUSE AND BINGHAMTON 1650 SOUTH AVE SUITE 300 ROCHESTER NY 146203926 222146295 501(C)(3) 7600 COMMUNITY GRANTS EPILEPSY FOUNDATION SAN DIEGO COUNTY 2055 EL CAJON BLVD SAN DIEGO CA 921041091 951981182 501(C)(3) 9750 COMMUNITY GRANTS EPILEPSY FOUNDATION SE TENNESSEE 1 SISKIN PLAZA CHATTANOOGA TN 374031306 581309190 501(C)(3) 9000 COMMUNITY GRANTS EPILEPSY FOUNDATION TEXAS HOUSTON/DALLAS/FT WORTH 2401 FOUNTAIN VIEW SUITE 900 HOUSTON TX 77057 742141084 501(C)(3) 35400 COMMUNITY GRANTS EPILEPSY FOUNDATION VERMONT PO BOX 6292 RUTLAND VT 057026292 030273967 501(C)(3) 10100 COMMUNITY GRANTS EPILEPSY FOUNDATION VIRGINIA 560 RAY C HUNT DRIVE ROOM 2142 CHARLOTTESVILLE VA 22903 541379432 501(C)(3) 6923 COMMUNITY GRANTS EPILEPSY FOUNDATION WESTERN & CENTRAL PA 1501 REEDSDALE STREET SUITE 3002 PITTSBURGH PA 15233 237241930 501(C)(3) 28100 COMMUNITY GRANTS EPILEPSY FOUNDATION WESTERN OHIO 11 W MONUMENT AVE SUITE 101 DAYTON OH 45402 310920600 501(C)(3) 12600 COMMUNITY GRANTS EPILEPSY FOUNDATION WESTERN WISCONSIN 1812 BRACKETT AVE STE 5 SUITE 5 EAU CLAIRE WI 547014677 391372185 501(C)(3) 5500 COMMUNITY GRANTS 48 5 PENRY TRAVEL FUND 56 14681 PATIENT ASSISTANCE FUND 21 7130 TRAVEL STIPEND - SHARK TANK 4 19000 PART I, LINE 2: THE ORGANIZATION GENERALLY REQUIRES DOCUMENTATION OF EXPENDITURES AND ACHIEVEMENT OF GOALS OF GRANT. X X 0 0 0 0 0 0 0 0 0 PHILIP M GATTONE PRESIDENT/CEO 245193 0 0 0 0 0 17164 0 16797 0 279154 0 0 0 ANGELA OSTROM VP OF LEGAL & ADVISORY 162252 0 0 0 0 0 11358 0 17487 0 191097 0 0 0 JANICE M BUELOW VP OF PROGRAMS & RESEARCH 146827 0 0 0 0 0 10278 0 6352 0 163457 0 0 0 X 455843 FMV X 106 37998 FMV X 10 110497 FMV 0 0 1 1 PART I, COLUMN (B): THE AMOUNTS IN COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTIONS THE ORGANIZATION RECEIVED DURING THE YEAR. PART I, LINE 32B: A SEPARATE COMPANY COLLECTS AND SELLS CARS THAT ARE DONATED TO THE ORGANIZATION. THIS ORGANIZATION THEN REMITS THE FUNDS RECEIVED FROM THE SALE OF THESE VEHICLES TO EFA. FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND AN ELECTRONIC COPY OF THE DRAFT FORM 990 WAS SENT TO ALL BOARD MEMBERS FOR QUESTIONS, COMMENTS, OR CHANGE REQUESTS. WHEN CHANGES ARE MADE, THE ORGANIZATION RESENDS THE FINAL COPY TO ALL BOARD MEMBERS BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C THE EPILEPSY FOUNDATION HAS A CONFLICT OF INTEREST POLICY AS PART OF ITS CODE OF ETHICS THAT IS SHARED WITH ALL VOLUNTEERS, BOARD, EMPLOYEES AND AFFILIATES. BOARD MEMBERS AND STAFF ANNUALLY COMPLETE A WRITTEN CONFLICT OF INTEREST DISCLOSURE STATEMENT, WHICH IS KEPT ON FILE AT FOUNDATION HEADQUARTERS. FOUNDATION POLICY REQUIRES ANYONE WITH A CONFLICT OF INTEREST TO REVEAL THE CONFLICT DURING ANY DISCUSSIONS, DECISIONS, OR ACTIONS THAT TAKE PLACE IN WHICH A CONFLICT MAY ARISE, AND TO RECUSE HIM OR HERSELF FROM THE DECISION-MAKING OR ACTION TAKEN. THE EXECUTIVE COMMITTEE MAINTAINS AND REVIEWS THE CONFLICT OF INTEREST DISCLOSURE STATEMENTS FROM BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 15 THE EPILEPSY FOUNDATION'S EXECUTIVE COMMITTEE SETS COMPENSATION FOR THE PRESIDENT & CEO OF THE FOUNDATION AND REVIEWS AND APPROVES ALL COMPENSATION FOR VICE PRESIDENTS (KEY EMPLOYEES). THE CEO IS HIRED AND COMPENSATION TERMS ARE SET BY CONTRACT WHICH HAS BEEN DEVELOPED BY THE EXECUTIVE COMMITTEE OF THE BOARD. THE EXECUTIVE COMMITTEE IS MADE UP OF EPILEPSY FOUNDATION OFFICERS AND BOARD MEMBERS, ALL WHO ARE VOLUNTEERS, AND INCLUDES THE CEO AS A NONVOTING MEMBER ONLY. DURING THE PROCESS FOR CONTRACT DETERMINATION, THE CEO IS RECUSED FROM ALL MEETINGS OF THE EXECUTIVE COMMITTEE THAT CONCERN HIS CONTRACT TERMS. THE CHAIR OF THE FOUNDATION NEGOTIATES THE TERMS OF THE CONTRACT WITH THE CEO UNDER THE DIRECTION AND WITH APPROVAL OF TERMS ESTABLISHED BY THE EXECUTIVE COMMITTEE OF THE BOARD. IN ORDER TO DETERMINE AN APPROPRIATE SALARY AND COMPENSATION, THE EXECUTIVE COMMITTEE REVIEWS COMPARABLE DATA FROM THE WASHINGTON, DC METRO AREA FOR THE CEO POSITION, AS WELL AS DATA FROM THE NATIONAL HEALTH COUNCIL ON COMPENSATION OF CEOS FOR COMPARABLY SIZED AND SIMILARLY SITUATED NONPROFIT ENTITIES. SOURCES REVIEWED AT LAST CONTRACT NEGOTIATION FOR THE CEO INCLUDED THE NATIONAL HEALTH COUNCIL SURVEY DATA, THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES SURVEY FOR THE WASHINGTON, DC METRO AREA, DATA FROM THE AMERICAN RESEARCH COMPANY'S GENERAL SURVEY, AND HEALTH AND DISEASE SEGMENT FOR ALL GEOGRAPHY, FOR THE DC METRO AREA. BASED UPON THIS DATA, A SALARY RANGE IS DETERMINED FOR THE CEO POSITION. MINUTES OF THE EXECUTIVE COMMITTEE DELIBERATIONS AND ACTION CONCERNING COMPENSATION ARE KEPT AT THE FOUNDATION'S HEADQUARTERS OFFICE. IN ADDITION, THE SIGNED CONTRACT SETTING SALARY AND COMPENSATION AND ALL TERMS OF EMPLOYMENT FOR CEO ARE MAINTAINED IN THE FOUNDATION'S HEADQUARTERS RECORDS. DOCUMENTATION OF THE DATA SOURCES, THE COMPARATIVE EVALUATIONS MADE, AND THE RESULTS OF THE EXECUTIVE COMMITTEE DELIBERATIONS, AND MINUTES OF MEETINGS DURING EXECUTIVE SESSION ARE ALSO INCLUDED IN THESE FILES. ANNUAL REVIEW OF CEO PERFORMANCE IS DONE BY THE EXECUTIVE COMMITTEE IN EXECUTIVE SESSION (WITHOUT THE CEO BEING PRESENT), WITH A FORMAL WRITTEN REVIEW REQUIRED. THIS PERFORMANCE REVIEW SERVES AS THE BASIS FOR AN ANNUAL BONUS FOR THE CEO, IF ANY, WITHIN THE TERMS OF THE CEO CONTRACT. THE LAST COMPENSATION REVIEW TOOK PLACE AFTER APRIL 11, 2015. THE CEO IS RESPONSIBLE FOR HIRING AND COMPENSATION OF ALL EMPLOYEES OF THE FOUNDATION, INCLUDING KEY EMPLOYEES (VICE PRESIDENTS). NO KEY EMPLOYEE OTHER THAN THE CEO PARTICIPATES IN THE EXECUTIVE COMMITTEE'S COMPENSATION REVIEW OF THE VICE PRESIDENTS (KEY EMPLOYEES) OF THE FOUNDATION, AND THE CEO IS ASKED TO RECUSE HIMSELF DURING THE EXECUTIVE SESSION MEETING. DOCUMENTATION OF THE MATERIALS REVIEWED AND DISCUSSION IS MAINTAINED BY CHAIR OF EXECUTIVE COMMITTEE. FORM 990, PART VI, SECTION C, LINE 19 THE EPILEPSY FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G CONSULTANTS & OTHER: PROGRAM SERVICE EXPENSES 1,998,158. MANAGEMENT AND GENERAL EXPENSES 70,708. FUNDRAISING EXPENSES 273,469. TOTAL EXPENSES 2,342,335. FORM 990, PART XI, LINE 9: CHANGE IN VALUE OF SPLIT INTEREST AGREEMENTS -265,425. EPILEPSY FOUNDATION OF AMERICA (UTAH) LLC 8301 PROFESSIONAL PLACE LANDOVER MD 20785 520856660 OVERCOME CHALLANGES CREATED BY EPILEPSY DE EPILEPSY FOUNDATION OF AMERICA EPILEPSY FOUNDATION OF AMERICA (OKLAHOMA) LLC 520856660 OVERCOME CHALLANGES CREATED BY EPILEPSY DE EPILEPSY FOUNDATION OF AMERICA EPILEPSY RESEARCH FOUNDATION 8301 PROFESSIONAL PLACE LANDOVER MD 207852237 562369930 RESEARCH MD 501(C)(3) LINE 11, TYPE I EPILEPSY FOUNDATION OF AMERICA 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0