2016-09-09T14:25:03-05:00 2015-12-31 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2015-01-01 132298956 CHILDREN'S TUMOR FOUNDATION CHIL 2123446633 120 WALL STREET NEW YORK NY 100053904 REID HOROVITZ COO & CFO 2123446633 2016-09-09 1 ROBERT LYONS CPA P00227472 2125038800 2015 2017-02-10 21:41:12Z ANNETTE BAKKER 120 WALL STREET NEW YORK NY 100053904 17619543 0 X WWW.CTF.ORG X 1978 NY THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS. 22 22 66 1000 0 0 15370815 15207544 0 0 55864 68011 42610 56252 15469289 15331807 4964065 5341818 0 0 3760039 4076328 0 0 1692756 5481062 5818901 14205166 15237047 1264123 94760 13235127 13073242 2886605 2634787 10348522 10438455 X OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF. 0 0 8783242 5341818 RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITIONALLY, OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH. 3792617 PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE, NF WALK, AND RACING 4 RESEARCH, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR. 12575859 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 35 0 66 1 0 0 0 0 0 1 1 0 0 0 0 X 22 22 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 NY AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X REID HOROVITZ 2123446633 120 WALL STREET NEW YORK NY 100053904 LINDA H MARTIN CHAIRPERSON 1.00 X X 0 0 0 RACHEL B TIVEN VICE CHAIRPERSON 1.00 X X 0 0 0 STEVEN L MCKENZIE DIRECTOR 1.00 X X 0 0 0 TRACY GALLOWAY SECRETARY 1.00 X X 0 0 0 COLIN BRYAR DIRECTOR (FORMER) 1.00 X 0 0 0 DANIEL ALTMAN DIRECTOR 1.00 X 0 0 0 LAURA GANIO BONA DIRECTOR 1.00 X 0 0 0 WILLIAM BROOKS DIRECTOR 1.00 X 0 0 0 SUZANNE EARLE DIRECTOR 1.00 X 0 0 0 DANIEL GILBERT DIRECTOR 1.00 X 0 0 0 JOHN GOLFINOS MD DIRECTOR 1.00 X 0 0 0 MATTHEW HAY DIRECTOR 1.00 X 0 0 0 JOHN MCCARTHY DIRECTOR 1.00 X 0 0 0 LESLEY OSLICA DIRECTOR 1.00 X 0 0 0 LAURA PERFETTI DIRECTOR 1.00 X 0 0 0 KENNETH RUDD DIRECTOR 1.00 X 0 0 0 ROBERT SCHAFFER DIRECTOR (FORMER) 1.00 X 0 0 0 RANDALL STANICKY TREASURER 1.00 X 0 0 0 STUART MATCH SUNA CHAIR EMERITUS 1.00 X 0 0 0 NATE WALKER DIRECTOR 1.00 X 0 0 0 ROBERT BRAININ DIRECTOR 0.00 X 0 0 0 BRENDAN HANRAHAN PHD DIRECTOR 0.00 X 0 0 0 KARL THOMPSON DIRECTOR 0.00 X 0 0 0 CHAD LEATHERS DIRECTOR 0.00 X 0 0 0 ANNETTE BAKKER PHD PRESIDENT/CHIEF SCIENTIFIC 40.00 X 297053 0 30599 DAVID WEBBER VP OF FINANCE (FORMER) 40.00 X 159395 0 18044 REID HOROVITZ COO & CFO 40.00 X 92606 0 8127 SALVATORE A LAROSA VP, RESEARCH AND DEVELOPMENT 40.00 X 168105 0 19027 JOHN HERPOULOS VICE PRESIDENT 40.00 X 127087 0 21167 MICHAEL DIVERS VP OF MAJOR GIFTS 40.00 X 164754 0 11885 SIMON VUKELJ VP OF COMMUNICATIONS 40.00 X 112010 0 10954 1121010 0 119803 6 0 1 0 SQUIRE PATTON BOGGS 2550 MAIN ST NW WASHINGTON DC 20037 LOBBYING/ADVOCACY 255000 HUDSONALPHA INSTITUTE FOR BIOTECHNOLOGY 601 GENOME WAY HUNTSVILLE AL 35806 RESEARCH 186505 2 72039 4366023 10769482 208095 15207544 66963 66963 1883483 1882435 1048 1048 1048 405301 4366023 405301 0 MISC. INCOME 999999 56252 56252 56252 15331807 0 0 124263 5036672 5036672 305146 305146 1197709 550230 294309 353170 2254099 1968456 38922 246721 47982 36782 3356 7844 343585 282324 14546 46715 232953 172003 21283 39667 67080 67080 31500 31500 255000 255000 771208 625958 45947 99303 28579 22141 1364 5074 308905 200600 54630 53675 341874 202004 74290 65580 331789 256987 20766 54036 1884056 1295000 116936 472120 52479 28864 13120 10495 25589 14099 6347 5143 FOOD AND BEVERAGE 390092 337767 19679 32646 DUES AND OTHER FEES 321797 219590 55634 46573 PRINTING AND PUBS. 318948 255992 18321 44635 POSTAGE AND SHIPPING 215831 167045 18470 30316 474174 343199 51932 79043 15237047 12575859 968432 1692756 3368762 4030642 2830251 1959348 445719 250375 430645 174212 224383 256433 6286996 6497428 62500 62500 16516 16516 13235127 13073242 356256 209246 2316941 2216045 213408 209496 2886605 2634787 X 7075607 6296227 3272915 4142228 10348522 10438455 13235127 13073242 X 94760 5218 -10045 X X 0 1 X 1 0 X 9337715 9359822 12171729 15370815 14360173 60600254 9337715 9359822 12171729 15370815 14360173 60600254 6074626 54525628 67827 343978 65814 144296 66963 688878 54072 67007 229554 42610 56252 449495 61738627 0.88320 0.88940 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 255000 0 0 255000 0 189926 189926 185876 4050 189926 175889 94946 80943 67801 49896 17905 186955 29370 157585 256433 DEFERRED RENT 13696 ASSETS HELD IN TRUST 195800 209496 X 15114654 5218 625000 630218 14484436 847371 847371 15331807 15024721 625000 10045 635045 14389676 847371 847371 15237047 PART X, LINE 2: THE FOUNDATION HAS NO UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2015, IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XI, LINE 4B - OTHER ADJUSTMENTS: PRIOR YEAR GRANTS RETURNED 847,371. PART XII, LINE 2D - OTHER ADJUSTMENTS: LOSS ON UNCOLLECTIBLE ACCOUNTS 10,045. PART XII, LINE 4B - OTHER ADJUSTMENTS: PRIOR YEAR GRANTS RETURNED 847,371. 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH GRANTS TO SCIENTISTS RESEARCH GRANTS 305146 0 0 0 0 0 0 305146 0 305146 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH - SYNODOS, YOUNG INVESTIGATOR AWARD 163548 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 31000 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH-SYNODOS 110598 WIRE N/A N/A 3 0 0 0 0 0 0 0 DETROIT GALA 3890326 3622895 267431 267431 NEW YORK CITY GALA 796041 680421 115620 115620 1 84957 62707 22250 22250 4771324 4366023 405301 405301 405301 0 1 BRIGHAM & WOMEN'S HOSPITAL PO BOX 3149 BOSTON MA 02241 042312909 501(C)(3) 404554 RESEARCH - PRECLINICAL CONSORTIUM CHILDREN'S HOSPITAL OF PHILADELPHIA ABRAMSON 1ST FLOOR PHIL PA 19104 231352166 501(C)(3) 66017 PATIENT SUPPORT - CLINIC NETWORK CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE ML 4006 CINCINNATI OH 45229 310833936 501(C)(3) 471732 RESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUM DANA-FARBER CANCER INSTITUTE 450 BROOKLINE AVE BP 412 BROOKLINE MA 02445 042263040 501(C)(3) 69976 RESEARCH - YOUNG INVESTIGATOR AWARD INDIANA UNIVERSITY PO BOX 66057 INDIANAPOLIS IN 46266 356001673 501(C)(3) 421208 RESEARCH - YOUNG INVESTIGATOR AWARDVRESEARCH - YOUNG INVESTIGATOR AWARDRESEARCH - YOUNG INVESTIGATOR AWARD JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DR CHICAGO IL 60693 237424440 501(C)(3) 42020 RESEARCH - DRUG DISCOVERY, YOUNG INVESTIGATOR AWARD, CONTRACT AWARD, SYNODOS UNIVERSITY OF CENTRAL FLORIDA 12201 RESEARCH PARKWAY SUITE 501 ORLANDO FL 32826 592924021 501(C)(3) 323542 RESEARCH - SYNODOS VANDERBILT UNIVERSITY MEDICAL CENTER DEPT AT 40303 ATLANTA GA 31192 620476822 501(C)(3) 64000 RESEARCH - YOUNG INVESTIGATOR AWARD WASHINGTON UNIVERSITY 700 ROSEDALE AVE CAMPUS BOX 1034 ST LOUIS MO 63112 061043412 501(C)(3) 119209 RESEARCH - YOUNG INVESTIGATOR AWARD, CLINIC NETWORK UNIVERSITY OF NORTH CAROLINA 115 MASON FARM RD CB 7250 CHAPEL HILL NC 27599 566001393 501(C)(3) 236764 RESEARCH - SYNODOS THE REGENTS OF UNIVERSITY OF MINNESOTA PO BOX 1450 NW 5957 MINNEAPOLIS MN 55489 416007513 501(C)(3) 328972 RESEARCH - DDI NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS COLUMBUS OH 43205 314379441 501(C)(3) 136145 RESEARCH - SYNODOS MEDICAL UNIVERSITY OF SOUTH CAROLINA 135 RUTLEDGE AVE CHARLESTON SC 29425 576000722 501(C)(3) 85000 RESEARCH - CONTRACT AWARD MASSACHUSETTS GENERAL PO BOX 414876 BOSTON MA 02241 041564655 501(C)(3) 766788 RESEARCH - CONTRACT AWARD, YIA, DDI ALZHEIMERS DRUG DISCOVERY 57 W 57ST STE904 NEW YORK NY 10019 201082179 501(C)(3) 7000 RESEARCH - OTHER BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA 8CM310 HOUSTON TX 77030 741613878 501(C)(3) 55947 RESEARCH-YOUNG INVESTIGATOR AWARD MASSACHUSETTS EYE AND EAR 243 CHARLES STREET BOSTON MA 02114 042103591 501(C)(3) 3363 RESEARCH-YOUNG INVESTIGATOR AWARD SCRIPPS RESEARCH INSTITUTE 10550 N TORREY PINES RD LA JOLLA CA 92037 330435954 501(C)(3) 185500 RESEARCH-YOUNG INVESTIGATOR AWARD UNIVERSITY OF ARIZONA 1303 E UNIVERSITY BLVD BOX 3 TUCSON AZ 85719 742652689 501(C)(3) 90500 RESEARCH-SYNODOS UNIVERSITY OF IOWA 200 HAWKINS DR W134 GH IOWA CITY IA 52242 420796760 501(C)(3) 95233 RESEARCH-SYNODOS UNIVERSITY OF CALIFORNIA PO BOX 1432 BAKERSFIELD CA 93302 946002123 501(C)(3) 324744 RESEARCH-SYNODOS THE TRUSTEES OF COLUMBIA UNIVERSITY 615 WEST 131ST STREET 4TH FLR NEW YORK NY 10027 135598093 501(C)(3) 369167 RESEARCH-SYNODOS THE REGENTS OF UNIVERSITY OF CALIFORNIA 1111 FRANKLIN ST 12TH FLR OAKLAND CA 94607 943067788 501(C)(3) 61379 RESEARCH-DDI SANFORD RESEARCH 2301 EAST 60TH STREET NORTH SIOUX FALLS SD 57104 460450378 501(C)(3) 181993 RESEARCH-DDI UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501(C)(3) 40000 RESEARCH-SYNODOS UNIVERSITY OF FLORIDA TRUSTEES 123 TIGERT HALL GAINESVILLE FL 32611 596002052 501(C)(3) 85919 RESEARCH-SYNODOS X X X 0 0 0 0 0 0 0 0 0 ANNETTE BAKKER PHD PRESIDENT/CHIEF SCIENTIFIC 284843 0 12210 0 0 0 0 0 30599 0 327652 0 0 0 DAVID WEBBER VP OF FINANCE (FORMER) 159395 0 0 0 0 0 0 0 18044 0 177439 0 0 0 SALVATORE A LAROSA VP, RESEARCH AND DEVELOPMENT 164105 0 4000 0 0 0 0 0 19027 0 187132 0 0 0 MICHAEL DIVERS VP OF MAJOR GIFTS 160754 0 4000 0 0 0 0 0 11885 0 176639 0 0 0 X 2 60244 FMV X AUCTION ITEMS 308 147851 FMV 0 1 0 FORM 990, PART VI, SECTION B, LINE 11 THE COMPLETE FORM 990 IS DISTRIBUTED IN DRAFT FORM VIA E-MAIL TO ALL BOARD MEMBERS WITH A RETURN RECEIPT PRIOR TO FILING. EACH BOARD MEMBER ACKNOWLEDGES THEIR RECEIPT, REVIEW, AND ACCEPTANCE OF THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY AND REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE POLICY ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S TOP MANAGEMENT AND KEY EMPLOYEES ARE REVIEWED FOR PERFORMANCE ON AN ANNUAL BASIS. COMPENSATION FOR THESE POSITIONS ARE REVIEWED AND APPROVED BY THE BOARD'S PERSONNEL COMMITTEE. COMPENSATION IS DETERMINED USING CURRENTLY AVAILABLE SALARY DATA FOR NON-PROFITS OF SIMILAR SIZE AND MISSION IN THE NEW YORK CITY AREA. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST WITHIN THE PRESCRIBED TIME FRAMES AS REQUIRED. FORM 990, PART XI, LINE 9: LOSS ON UNCOLLECTIBLE ACCOUNTS -10,045. FORM 990, PART XII, LINE 2C THE CHILDREN'S TUMOR FOUNDATION HAS AN AUDIT COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT.