2017-06-13T09:56:25-05:00 2017-01-31 410746749 CLIFTONLARSONALLEN LLP 901 N GLEBE ROAD SUITE 200 ARLINGTON VA 22203 990 2016-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1275 K STREET NW WASHINGTON DC 20005 GREGORY MITCHELL EXEC VP, FINANCE & ADMIN 2024078580 2017-06-13 1 DAVID TRIMNER P00444822 5712279500 67.137.57.251 2017-06-13 09:51:20 ED P 4AE8B4CC46490A203BA9688EA9B949F8853F30D0 A1F046B953991414D17544BCF233C1AB5D570FBA 2016 2021-01-29 14:40:06Z THE ALS ASSOCIATION BARBARA J NEWHOUSE 1275 K STREET NW WASHINGTON DC 20005 54433047 0 4119 X WWW.ALSA.ORG X 1985 DE LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 25 25 97 28 0 0 23487328 27407957 115362 100392 2060242 3380924 -17782 -10206 25645150 30879067 18279400 18551544 0 0 7018063 7901975 330000 345000 4664674 9834399 8176211 35461862 34974730 -9816712 -4095663 113419744 110397924 7378564 5929328 106041180 104468596 X THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 16779742 16044481 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TODOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERALSCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2017, RESEARCHGRANTS WERE $16,044,481. THIS LEVEL OF FUNDING WAS MADE POSSIBLE BY THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT TOOK PLACE IN THE SUMMER OF 2014, THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. BECAUSE OF THE SUCCESS OF THE IBC, THE ASSOCIATION PLANS ON FURTHER INCREASING RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH. 7977048 2505017 1000 PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARESERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OFCHAPTERS (WHO ARE SEPARATELY INCORPORATED AND FILE THEIR OWN FORM 990), IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED ANDEVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES,CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMSINCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLELIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BESTPRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIESADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING AFOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ONSPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE (1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; (2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; (3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH 'OTHER THAN' CERTIFIED CENTERS; (4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND (5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. WITH THE HELP OF IBC FUNDING, THE ASSOCIATION CONTINUES TO FUND GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE. 3773248 2046 99392 PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31,2017, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. THE ASSOCIATION ALSO WORKED TO DRAFT AN FDA GUIDANCE DOCUMENT FOR ALS DRUG DEVELOPMENT. 28530038 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 35 0 97 1 0 0 0 0 0 1 1 0 0 0 1 0 X 25 25 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AK AR CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NV NY NC ND OH OK OR PA RI SC TN UT WA WV WI NM X X GREGORY MITCHELL 2024078580 1275 K STREET NW SUITE 250 WASHINGTON DC 20005 ANDREW BROPHY TRUSTEE 3.00 X 0 0 0 CAMERON WARD TRUSTEE 2.00 X 0 0 0 CHRIS W BRUSSALIS TRUSTEE 3.00 X 0 0 0 CHRISTI KOLARICK PHD TRUSTEE 2.00 X 0 0 0 CONNIE HOUSTON TRUSTEE 2.00 X 0 0 0 DON CASEY TRUSTEE 2.00 X 0 0 0 DOUGLAS BUTCHER CHAIRMAN 5.00 X X 0 0 0 ELLYN C PHILLIPS SECRETARY 4.00 X X 0 0 0 FRED DEGRANDIS TRUSTEE 2.00 X 0 0 0 JOHN P KRAVE TRUSTEE 2.00 X 0 0 0 JUDY PRATT DMD TRUSTEE 2.00 X 0 0 0 KENNETH F MCGUNAGLE JR ESP TRUSTEE 2.00 X 0 0 0 KIM ANN MINK TRUSTEE 2.00 X 0 0 0 LAWRENCE R BARNETT ESQ TRUSTEE 2.00 X 0 0 0 LOU LIBBY MD TRUSTEE 3.00 X 0 0 0 MARK CALMES TRUSTEE 2.00 X 0 0 0 MILLIE ARNOLD TRUSTEE 2.00 X 0 0 0 NANCY FRATES TRUSTEE 2.00 X 0 0 0 SCOTT KAUFFMAN TRUSTEE 2.00 X 0 0 0 STEPHEN WINTHROP TRUSTEE 2.00 X 0 0 0 STUART OBERMANN TRUSTEE 3.00 X 0 0 0 SUE GORMAN VICE CHAIRMAN 4.00 X X 0 0 0 TED HARADA TRUSTEE 2.00 X 0 0 0 THOMAS D KETTLER TRUSTEE 2.00 X 0 0 0 TOM CARROLL TRUSTEE 2.00 X 0 0 0 WARREN NELSON TREASURER 4.00 X X 0 0 0 WILLIAM SOFFEL TRUSTEE 3.00 X 0 0 0 WILLIAM THOET TRUSTEE 2.00 X 0 0 0 BARBARA NEWHOUSE PRESIDENT AND CEO 37.50 X 307024 0 19726 GREGORY MITCHELL EXECUTIVE VP, FINANCE & ADMINISTRATION 37.50 X 216788 0 7400 BRIAN FREDERICK EXECUTIVE VP, COMMUNICATION & DEVELOMENT 37.50 X 190481 0 6361 CARRIE MUNK VP, COMMUNICATIONS 37.50 X 183573 0 6394 KIMBERLY HARDINGMAGINNIS SENIOR VP, CARE SERVICES 37.50 X 174296 0 17777 LANCE SLAUGHTER EXECUTIVE VP, CHAPTER RELATIONS & GOVERNANCE 37.50 X 203107 0 16888 STEVAN W GIBSON CHIEF PUBLIC POLICY OFFICER 37.50 X 233800 0 8502 PATRICK W WILDMAN SR. VP PUBLIC POLICY 37.50 X 169629 0 17711 MARY BRUNEY VP, CHAPTER RELATIONS 37.50 X 142004 0 16658 MONICA SANTA CRUZ VP, HUMAN RESOURCES & TALENT MANAGEMENT 37.50 X 135121 0 4468 TERESSA HARRIS VP, FINANCE 37.50 X 135392 0 22733 KATHI J KROMER VICE PRESIDENT ADVOCACY 37.50 X 135103 0 7063 DAVID J HAMPTON II SR. VP DEVELOPMENT 37.50 X 162430 0 12103 2388748 0 163784 25 0 1 0 NNE MARKETING 105 PAUL REVERE ROAD CONCORD MA 01742 DIRECT MARKETING SERVICES 345000 FAEGRE BAKER DANIELS LLP 1050 K STREET NW SUITE 400 WASHINGTON DC 20001 CONSULTANT CDC GRANT & PUBLIC POLICY SER 326061 LUCIE BRUIJN PO BOX 670236 CHUGIAK AK 99567 SCIENTIFIC OFFICER RESEARCH OVERSIGHT 290000 BEACONFIRE CONSULTING 2300 CLARENDON BLVD SUITE 925 ARLINGTON VA 22201 WEBSITE DESIGN SERVICES 182181 OPTIMAL NETWORKS INC 15201 DIAMONDBACK DR SUITE 220 ROCKVILLE MD 20850 IT & NETWORK SERVICES 146306 5 219144 575608 278151 26335054 147221 27407957 CONFERENCE FEES 900099 100392 100392 100392 2633793 2633793 24243117 23495986 747131 747131 747131 0 575608 57994 -57994 -57994 47788 47788 47788 30879067 100392 0 3370718 X 17679093 17679093 7746 7746 864705 864705 1875462 1231707 480792 162963 5091513 3230308 272126 1589079 57864 40716 17148 363014 248291 10442 104281 514122 355258 24149 134715 221090 38733 181382 975 42240 42240 345000 345000 3881646 2058246 160095 1663305 423018 382112 1212 39694 317323 119616 84457 113250 93501 93501 756735 502088 68119 186528 1885515 1501995 218563 164957 180477 103983 36284 40210 CREDIT CARD & DATA FEES 215783 31520 98955 85308 TELECOMMUNICATIONS 187425 153669 10053 23703 CHAPTER SUPPORT 3779 0 1011 2768 BAD DEBT EXPENSE -32321 -19748 -3363 -9210 34974730 28530038 1780018 4664674 X 1390000 209000 0 1181000 -883859 8646096 3452236 839878 3662396 7563559 126878 284689 389773 161555 965039 708172 332690 256867 102785856 88965198 3553774 3680082 113419744 110397924 1665531 1516343 4739872 3453065 10000 0 963161 959920 7378564 5929328 X 78060212 82712789 27044659 20794826 936309 960981 106041180 104468596 113419744 110397924 X -4095663 2561915 -38836 X 0 1 X 1 0 X 19357009 23550946 137917563 23487328 27407957 231720803 19357009 23550946 137917563 23487328 27407957 231720803 1019575 230701228 174222 179732 221293 1466148 2633793 4675188 30161 15926 29343 2042 47788 125260 236521251 377928 0.97540 0.98450 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 33626 0 496361 529987 0 34444743 34974730 0 1000000 0 250000 0 0 0 932385 1000000 1000000 1000000 3932385 5898578 440857 422780 546049 529987 1939673 233096 250000 250000 250000 983096 1474644 43750 53629 48109 33626 179114 6333662 386180 203527 6516315 6516315 -182653 6333662 5990000 526315 313081 313081 6516315 240000 5750000 21965 21965 5990000 240000 13666 13666 240000 0.03680 0.96320 0 0 146536 109548 36988 422200 221427 200773 396303 377197 19106 256867 ANNUITY PAYMENT LIABILITY 872645 DEFERRED RENT 87275 959920 X 33402146 2561915 -38836 2523079 30879067 0 30879067 34974730 0 34974730 0 34974730 PART V, LINE 4: EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES. PART X, LINE 2: THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 24,672. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -63,508. 1 EUROPE 0 0 GRANTS RESEARCH 654684 NORTH AMERICA 0 0 GRANTS RESEARCH 105021 MIDDLE EAST & NORTH AFRICA 0 0 GRANTS RESEARCH 20000 EAST ASIA & THE PACIFIC 0 0 GRANTS RESEARCH 40000 SOUTH AMERICA 0 0 GRANTS RESEARCH 45000 0 0 0 0 0 0 864705 0 864705 EUROPE TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 240000 CHECK & WIRE TRANSFER EUROPE LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS 54725 CHECK & WIRE TRANSFER EUROPE POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 75000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 3177 CHECK & WIRE TRANSFER NORTH AMERICA POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 25000 CHECK & WIRE TRANSFER MIDDLE EAST & NORTH AFRICA TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER EAST ASIA & THE PACIFIC TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER SOUTH AMERICA TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER SOUTH AMERICA POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 25000 CHECK & WIRE TRANSFER NORTH AMERICA LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS 76844 CHECK & WIRE TRANSFER EUROPE CLINICAL MANAGEMENT 100000 CHECK & WIRE TRANSFER EUROPE LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS 79959 CHECK & WIRE TRANSFER EUROPE CLINICAL PILOT TRIAL 75000 CHECK & WIRE TRANSFER EUROPE CREATE 30000 CHECK & WIRE TRANSFER 21 0 0 0 0 0 0 PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT. X X X X X X X 1 NNE MARKETING 105 PAUL REVERE RD CONCORD MA 01742 FUNDRAISING COUNSEL 0 4618842 345000 4273842 4618842 345000 4273842 CA AL AK AR CO DE DC FL GA HI KS KY LA ME MD MA MI MN MS NH NJ NM NV NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI WALK NNE CONCORD, NH 121384 121384 1656 325 5331 WALK OKLAHOMA 97602 97602 1376 1214 2793 12 356622 356622 4530 4613 468 35688 575608 575608 7562 6152 468 43812 57994 -57994 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 ADVANTAGE HEALTH ST MARY'S MEDICAL GROUP 200 JEFFERSON AVE SE GRAND RAPIDS MI 49503 272491974 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALLEGHENY SINGER RESEARCH INSTITUTE 320 EAST NORTH AVENUE PITTSBURGH PA 15212 251320493 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALS CENTER 330 S NINTH ST PHILADELPHIA PA 19107 232743545 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALS CENTER AT MAYO CLINIC ARIZONA ATTN PETER BOSCH MD ALS CLINIC - NEUROLOGY 13400 EAST SHEA BOULEVARD SCOTTSDALE AZ 852595404 860800150 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)3 145000 TREAT ALS CLINICAL SCIENTIST AMYLYX PHARMACEUTICALS INC 210 BROADWAY NO 201 CAMBRIDGE MA 02139 464600503 501(C)3 150000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT AQUINNAH PHARMACEUTICALS INC 700 MAIN ST CAMBRIDGE MA 02139 465070024 501(C)3 197785 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT BAYLOR COLLEGE OF MEDICINE 7200 CAMBRIDGE ST SUITE 9A HOUSTON TX 770304202 741613878 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BETH ISRAEL MEDICAL CENTER ALS CLINIC ONE GUSTAVE L LEVY PL BOX NEW YORK NY 10029 042103881 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BLUESKY DESIGNS INC 2637 27TH AVE S STE 209 MINNEAPOLIS MN 55406 411891890 501(C)3 50000 CLINICAL MANAGEMENT BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARL STREET SUITE 6401 MADISON WI 53715 396006492 501(C)3 160000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY OFFICE OF SPONSORED PROJECTS ADMINISTRATION 900 S NORMAL AVE WOO CARBONDALE IL 62901 376005961 501(C)3 20000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT BOSTON CHILDRENS HOSPITAL ATTN RESEARCH FINANCE PO BOX 414413 414413 BOSTON MA 02241 042774441 501(C)3 50000 POST DOCTORAL FELLOWSHIP RESEACH GRANT BROWN UNIVERSITY BOX 1911 PROVIDENCE RI 02912 050258809 501(C)3 145000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD 6500 WIL SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)3 673800 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD 6500 WIL SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)3 503969 TREAT ALS CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 90048 951644600 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CHILDRENS HOSPITAL CORPORATION DBA BOSTON CHILDRENS HOSP 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501(C)3 50000 CLINICAL MANAGEMENT CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON MA 02215 042774441 501(C)3 150000 PRESERVE A VOICE, PROTECT A LEGACY CLEVELAND CLINIC FOUNDATION EUCLID AVENUE CLEVELAND OH 441950001 340714585 501(C)3 76061 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT COMMUNITY FOUNDATION OF HUNTSVILLEMADISON COUNTY PO BOX 332 HUNTSVILLE AL 35804 263750673 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CPMC RESEARCH INSTITUTE 475 BRANNAN STREET SUITE 220 SAN FRANCISCO CA 94107 940562680 501(C)3 133000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT DANA-FARBER CANCER INSTITUTE INC 450 BROOKLINE AVENUE BP331 BOSTON MA 02215 042263040 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT DIGNITY HEALTH - ST JOSEPHS HOSPITAL AZ 350 WEST THOMAS ROAD LOS ANGELES CA 90074 860096787 501(C)3 105000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT DIGNITY HEALTH - ST JOSEPHS HOSPITAL AZ 350 WEST THOMAS ROAD LOS ANGELES CA 90074 860096787 501(C)3 181051 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT DIGNITY HEALTH - ST JOSEPHS HOSPITAL AZ 350 WEST THOMAS ROAD LOS ANGELES CA 90074 860096787 501(C)3 50000 POST DOCTORAL FELLOWSHIP RESEACH GRANT DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR ST JOSEPHS HOSPITAL AZ FILE 57431 LOS ANGELES CA 90074 860096787 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT DREXEL UNIVERSITY TD BANK P O BOX 95000-1090 PHILADELPHIA PA 19195 231352630 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT DREXEL UNIVERSITY TD BANK P O BOX 95000-1090 PHILADELPHIA PA 19195 231352630 501(C)3 80000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT DUKE UNIVERSITY MEDICAL CENTER 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT EMORY UNIVERSITY PO BOX 935084 ATLANTA GA 303224250 580566256 501(C)3 50000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT EMORY UNIVERSITY PO BOX 935084 ATLANTIS GA 31193 580566256 501(C)3 64000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94115 942728423 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GENERAL ELECTRIC COMPANY 500 1ST AVE PITTSBURGH PA 15219 140689340 501(C)3 110399 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT GEORGIA HEALTH SCIENCES FOUNDATION INC ALS FUND 1078 1120 15TH STREET FL-1033 AUGUSTA GA 30912 352310573 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HENNEPIN COUNTY MEDICAL CENTER (HCMC) 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MN 55404 381357020 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HENRY FORD HEALTH SYSTEM 2799 WEST GRAND BOULEVARD DETROIT MI 482022689 381357020 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOPE LOVES COMPANY INC C/O JODI ODONNELL-AMES P O BOX 931 PENNINGTON NJ 08534 208418402 501(C)3 12000 CAMP HLC OUTREACH GRANT HOSPITAL FOR SPECIAL CARE 2150 CORBIN AVE NEW BRITAIN CT 06053 060646766 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOSPITAL FOR SPECIAL SURGERY 535 EAST 70TH ST NEW YORK NY 10021 131624135 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOUSTON METHODIST HOSPITAL FOUNDATION 6565 FANNIN STREET 802 HOUSTON TX 77030 760094743 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT INDIANA UNIVERSITY ALS CENTER 355 WEST 16TH STREET ROOM 3222 INDIANAPOLIS IN 46202 356001673 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE BALTIMORE MD 21201 520595110 501(C)3 125000 DRUG DEVELOPMENT CONTRACT JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE BALTIMORE MD 21201 520595110 501(C)3 658310 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE BALTIMORE MD 21201 520595110 501(C)3 446535 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE BALTIMORE MD 21201 520595110 501(C)3 25000 POST DOCTORAL FELLOWSHIP RESEACH GRANT KANSAS CITY UNIVERSITY OF MEDICINE AND BIOSCIENCES 1750 INDEPENDENCE AVENUE KANSAS CITY MO 64106 KANSAS CITY MO 64106 440545280 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT KU ENDOWMENT ASSOCIATION 3901 RAINBOW BLVD KANSAS CITY KS 66160 480547734 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC 41 MALL ROAD BURLINGTON MA 01805 042704683 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT LANKENAU INSTITUTE FOR MEDICAL RESEARCH 100 LANCASTER AVENUE WYNNEWOOD PA 19096 232175659 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT LAUREN SCIENCES LLC 345 EAST 94TH ST SUITE 18A NEW YORK NY 10128 273076076 501(C)3 100000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT LOUISIANA STATE UNIVERSITY HEALTH SCIENCE CENTER PO BOX 33932 1501 KINGS HIGHWAY SHREVEPORT LA 71130 720702002 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT LOUISIANA STATE UNIVERSITY HEALTH SCIENCE CENTER PO BOX 33932 1501 KINGS HIGHWAY SHREVEPORT LA 71130 720702002 501(C)3 50000 TREAT ALS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 LA JOLLA CA 92093 237121131 501(C)3 533000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT MARY HITCHCOCK MEMORIAL HOSPITAL DARTMOUTH HITCHCOCK MEDICAL CENTER ONE MEDIVAL CENTER DRIVE LEBANON NH 03756 020222140 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT MASSACHUSETTS GENERAL HOSPITAL CNY-BUILDING 120 110 6TH ST CHARLESTOWN MA 02129 042697983 501(C)3 250000 ALS ONE MASSACHUSETTS GENERAL HOSPITAL CNY-BUILDING 120 110 6TH ST CHARLESTOWN MA 02129 042697983 501(C)3 30000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT MASSACHUSETTS GENERAL HOSPITAL CNY-BUILDING 120 110 6TH ST CHARLESTOWN MA 02129 042697983 501(C)3 279849 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT MASSACHUSETTS GENERAL HOSPITAL CNY-BUILDING 120 110 6TH ST CHARLESTOWN MA 02129 042697983 501(C)3 50000 POST DOCTORAL FELLOWSHIP RESEACH GRANT MASSACHUSETTS GENERAL HOSPITAL CNY-BUILDING 120 110 6TH ST CHARLESTOWN MA 02129 042697983 501(C)3 1065132 TREAT ALS MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 240000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 38433 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 50000 POST DOCTORAL FELLOWSHIP RESEACH GRANT MAYO CLINIC JACKSONVILLE 4500 SAN 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INITIATED RESEARCH GRANT ORIGENT DATA SCIENCES INC 8245 BOONE BLVD SUITE 600 VIENNA VA 22182 383916182 501(C)3 300000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT PHOENIX NEUROLOGICAL ASSOCIATES 5090 40TH STREET SUITE 250 PHOENIX AZ 85018 860217237 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 415649 BOSTON MA 02241 042103580 501(C)3 39036 CLINICAL MANAGEMENT PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 415649 BOSTON MA 02241 042103580 501(C)3 138750 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT PRIZE4LIFE INC PO BOX 5755 BERKELEY BERKELEY CA 94705 205055664 501(C)3 108500 TREAT ALS PROVIDENCE ALS CENTER 5050 NE HOYT STE 315 PORTLAND OR 97213 930386929 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT REGENTS OF THE UNIVERSITY OF CALIFORNIA 405 HILGARD AVENUE LOS ANGELES CA 900959000 956006144 501(C)3 130000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVE DAVIS CA 95616 946036494 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT RICHARD BEDLACK 9 LOGGING TRAIL DURHAM NC 27707 049543372 501(C)3 60000 CLINICAL MANAGEMENT RWJ UNIVERSITY HOSPITAL FOUNDATION 10 PLUM STREET SUITE 910 NEW BRUNSWICK NJ 08901 222378007 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ST JUDE CHILDREN'S RESEARCH HOSPITAL PO BOX 1000 DEPT 949 MEMPHIS TN 381480949 620646012 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT ST JUDE CHILDREN'S RESEARCH HOSPITAL PO BOX 1000 DEPT 949 MEMPHIS TN 381480949 620646012 501(C)3 167187 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT ST LOUIS UNIVERSITY HOSPITAL 1438 SOUTH GRAND BLVD MONTELEONE HALL ST LOUIS MO 63104 430654872 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT STANFORD UNIVERSITY P O BOX 44253 SAN FRANCISCO CA 94144 941156365 501(C)3 75000 POST DOCTORAL FELLOWSHIP RESEACH GRANT SYRACUSE UNIVERSITY 102 ARCHBOLD NORTH SYRACUSE UNIVERSITY SYRACUSE NY 13244 150532081 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT TACONIC BIOSCIENCES INC 273 HANOVER AVENUE GERMANTOWN NY 12526 141381104 501(C)3 80543 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER C/O LYNN AARONSON 315 NORWOOD PARK SOUTH 1ST FLOOR NORWOOD MA 02062 043085718 501(C)3 100000 ASSISTIVE TECHNOLOGY GRANT FOR REGIONAL OUTREACH PROGRAM THE ALS ASSOCIATION-MICHIGAN CHAPTER 675 E BIG BEAVER STE 207 TROY MI 48083 382190726 501(C)3 100000 TELEHEALTH GRANT THE ALS ASSOCIATION-NEVADA CHAPTER ATTENTION APRIL MASTROLUCA 3191 E WARM SPRINGS RD LAS VEGAS NV 89120 201531344 501(C)3 18972 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION-ROCKY MOUNTAIN CHAPTER 10855 DOVER ST SUITE 500 WESTMINSTER CO 80021 841337868 501(C)3 60000 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION-TEXAS CHAPTER 1231 GREENWAY DRIVE SUITE 295 IRVING TX 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STANLEY APPEL'S ALS CLINIC THE ALS THERAPY DEVELOPMENT INSTITUTE 300 TECHNOLOGY SQUARE CAMBRIDGE MA 02139 043462719 501(C)3 450000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE CURATORS OF THE UNIVERSITY OF MISSOURI PO BOX 807012 KANSAS CITY MO 64180 436003859 501(C)3 78879 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE EMORY CLINIC INC EMORY ALS CENTER 12 EXECUTIVE PARK DR NE ROOM 433 ATLANTA GA 30329 582030692 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)3 37500 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE MEDICAL COLLEGE OF WISCONSIN INC 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316401599 501(C)3 242492 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE PENNSYLVANIA STATE UNIV TRESSA JILEK COLLEGE OF MEDICINE CONTROLLERS OFFICE G230 500 UNIVERS HERSHEY PA 17033 246000376 501(C)3 97812 CLINICAL MANAGEMENT THE PENNSYLVANIA STATE UNIV TRESSA JILEK COLLEGE OF MEDICINE CONTROLLERS OFFICE G230 500 UNIVERS HERSHEY PA 17033 246000376 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE PENNSYLVANIA STATE UNIV ATTN DEBBIE MUSSER CONTROLLER G230 PO BOX 850 HERSHEY PA 17033 246000376 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA UCSF CONTROLLERS OFFICE 1855 FOLSOM STREET MCB 425 BOX 0897 SAN FRANCISCO CA 94143 946036493 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR MI 48109 386006309 501(C)3 141562 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE REGENTS OF THE UNIVERSITY OF MICHIGAN MELLON BANK BOX 223131 PITTSBURGH PA 152512131 386006309 501(C)3 10000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK P O BOX 29789 NEW YORK NY 10087 135598093 501(C)3 130000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK P O BOX 29789 NEW YORK NY 10087 135598093 501(C)3 1309652 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE UNIVERSITY OF CHICAGO 6030 SOUTH ELLIS AVENUE ROOM ED114 CHICAGO IL 60637 362177139 501(C)3 120000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE UNIVERSITY OF CHICAGO MEDICINE 5801 SOUTH ELLIS AVENUE CHICAGO IL 606375418 362177139 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE UNIVERSITY OF SOUTH FLORIDA BOARD OF TRUSTEES PO BOX 864568 ORLANDO FL 32886 593102112 501(C)3 20000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT TRANSLATIONAL GENOMICS RESEARCH INSTITUTE 445 N FIFTH STREET PHOENIX AZ 85004 753065445 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA PO BOX 785541 PHILADELPHIA PA 19178 231352685 501(C)3 14328 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT UC DAVIS MULTIDISCIPLINARY ALS CLINIC ONE SHIELDS AVE DAVIS CA 95616 946036494 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UMASS MEDICAL SCHOOL BURSARS OFFICE S1-802 55 LAKE AVE N N WORCESTER MA 01655 043167352 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF ARIZONA 1303 E UNIVERSITY BLVD BOX 3 TUSCON AZ 85719 742652689 501(C)3 20000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF CALIFORNIA CASHIERS OFFICE 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 501(C)3 130000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF CHICAGO 6030 S ELLIS AVENUE CHICAGO IL 60637 362177139 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF COLORADO DENVER 13001 E 17TH PL AURORA CO 80045 846000555 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF FLORIDA 123 GRINTER HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 99999 CLINICAL MANAGEMENT UNIVERSITY OF FLORIDA 123 GRINTER HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 155000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF ILLINOIS AT CHICAGO ALS CLINIC 1801 W TAYLOR ST SUITE 4E CHICAGO IL 60612 376000511 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MARYLAND BALTIMORE 620 W LEXINGTON STREET 4TH FLOOR BALTIMORE MD 21208 526002033 501(C)3 50000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF MARYLAND BALTIMORE 110 SOUTH PACA ST 3RD FLOOR BALTIMORE MD 21202 526002033 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE N WORCESTER MA 01655 043167352 501(C)3 250000 ALS ONE UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE N WORCESTER MA 016550002 043167352 501(C)3 130000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE N WORCESTER MA 016550002 043167352 501(C)3 584656 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE N WORCESTER MA 016550002 043167352 501(C)3 125000 POST DOCTORAL FELLOWSHIP RESEACH GRANT UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE N WORCESTER MA 016550002 043167352 501(C)3 27750 STRATEGIC INITIATIVE UNIVERSITY OF MIAMI P O BOX 405803 ATLANTA GA 30384 592579826 501(C)3 100000 TREAT ALS UNIVERSITY OF MIAMI 1120 NW 14TH ST SUITE 1311 MIAMI FL 33136 592579826 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MICHIGAN ALS CLINIC 1500 E MEDICAL CENTER DRIVE ANN ARBOR MI 48109 386006309 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MINNESOTA FOUNDATION PO BOX 860266 MINNEAPOLIS MN 554860266 416042488 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF PITTSBURGH OFFICE OF RESEARCH 123 UNIVERSITY PLACE B21 PITTSBURGH PA 15213 125096559 501(C)3 25000 POST DOCTORAL FELLOWSHIP RESEACH GRANT UNIVERSITY OF ROCHESTER 518 HYLAND BUILDING ROCHESTER NY 14627 160743209 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF SOUTH FLORIDA FOUNDATION INC 4202 E FOWLER AVE ALC 100 TAMPA FL 33620 590879015 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF VERMONT DEPARTMENT OF NEUROLOGICAL SCIENCES ATTN JOANNE STETSON COLLEGE OF MEDICINE 89 BEAUMONT DR GIVEN C225 BURLINGTON VT 05405 030179440 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF WASHINGTON 12455 COLLECTIONS DR CHICAGO IL 606930001 916001537 501(C)3 225000 TREAT ALS UNIVERSITY OF WISCONSIN-MILWAUKEE BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM PO BOX 500 MILWAUKEE WI 53201 396006492 501(C)3 16834 YOUTH EDUCATION MATERIALS UTHSCSA CERTIFIED TREATMENT CENTER OF EXCELLENCE 8300 FLOYD CURL DRIVE MSC 7883 SAN ANTONIO TX 782293900 741586031 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VIRGINIA MASON MEDICAL CENTER ALS CLINIC PO BOX 900 M/S X7 NEU SEATTLE WA 98111 910565539 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT WAKE FOREST BAPTIST MEDICAL CENTER MEDICAL CENTER BLVD WINSTONSALEM NC 27157 223849199 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT WASHINGTON UNIVERSITY 700 ROSEDALE AVE BOX 1034 ST LOUIS MO 63112 430653611 501(C)3 81666 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT WASHINGTON UNIVERSITY IN ST LOUIS CAMPUS BOX 1034 700 ROSEDALE AVENUE AVENUE ST LOUIS MO 63112 430653611 501(C)3 100000 ALS ACT WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 575 LEXINGTON AVENUE 9TH FLOOR NEW YORK NY 10022 133376695 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT 152 DURABLE MEDICAL EQUIPMENT 5 7746 FMV WHEELCHAIR POWER LIFT SEATS PART I, LINE 2: ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT. 1 X X X X X X 1 0 0 0 0 0 0 0 0 BARBARA NEWHOUSE PRESIDENT AND CEO 302336 0 4688 0 0 0 7747 0 11979 0 326750 0 0 0 GREGORY MITCHELL EXECUTIVE VP, FINANCE & ADMINISTRATI 214338 0 0 0 2450 0 6287 0 1113 0 224188 0 0 0 BRIAN FREDERICK EXECUTIVE VP, COMMUNICATION & DEVELO 188862 0 0 0 1619 0 5486 0 875 0 196842 0 0 0 CARRIE MUNK VP, COMMUNICATIONS 182267 0 0 0 1306 0 5539 0 855 0 189967 0 0 0 KIMBERLY HARDINGMAGINNIS SENIOR VP, CARE SERVICES 172800 0 0 0 1496 0 5071 0 12706 0 192073 0 0 0 LANCE SLAUGHTER EXECUTIVE VP, CHAPTER RELATIONS & GO 201361 0 0 0 1746 0 5916 0 10972 0 219995 0 0 0 STEVAN W GIBSON CHIEF PUBLIC POLICY OFFICER 85334 0 0 0 148466 0 3186 0 5316 0 242302 0 0 0 PATRICK W WILDMAN SR. VP PUBLIC POLICY 132713 0 0 0 36916 0 4699 0 13012 0 187340 0 0 0 MARY BRUNEY VP, CHAPTER RELATIONS 141131 0 0 0 873 0 4143 0 12515 0 158662 0 0 0 TERESSA HARRIS VP, FINANCE 134079 0 0 0 1313 0 4212 0 18521 0 158125 0 0 0 DAVID J HAMPTON II SR. VP DEVELOPMENT 156360 0 0 0 6070 0 4687 0 7416 0 174533 0 0 0 PART I, LINE 3 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. PART I, LINE 4A STEVAN W GIBSON - SEVERANCE - 110,670 KATHI J KROMER - SEVERANCE - 64,375 X 110 55487 FMV X 20 91734 AVG HIGH/LOW AT DATE 0 0 1 1 PART I, COLUMN (B): THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTORS FOR STOCK AND NUMBER OF ITEMS FOR THE CAR PROGRAM. PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION A, LINE 1 THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING. FORM 990, PART VI, SECTION B, LINE 11B THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990'S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. FORM 990, PART IX, LINE 11G APPEAL EXPENSES: PROGRAM SERVICE EXPENSES 148,101. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 835,143. TOTAL EXPENSES 983,244. OTHER PROFESSIONAL EXPENSES: PROGRAM SERVICE EXPENSES 1,910,145. MANAGEMENT AND GENERAL EXPENSES 160,095. FUNDRAISING EXPENSES 828,162. TOTAL EXPENSES 2,898,402. FORM 990, PART XI, LINE 9: CHANGE IN SPLIT INTEREST AND PERPETUAL TRUSTS -38,836.