2017-04-14T19:35:09-05:00 2016-09-30 461497033 EKS&H LLLP 7979 E TUFTS AVENUE SUITE 400 DENVER CO 802372521 990 2015-10-01 951727656 NATIONAL MULTIPLE SCLEROSIS SOCIETY SOUTHERN CALIFORNIA & NEVADA CHAPTER NATI 3104794456 5150 GOLDLEAF CIRCLE NO 400 LOS ANGELES CA 90056 JULIE KAUFER PRESIDENT 3104794456 2017-04-12 1 DORI J EGGETT P00645252 3037409400 2015 2021-01-29 14:40:06Z JULIE KAUFER 5150 GOLDLEAF CIRCLE NO 400 LOS ANGELES CA 90056 8875893 0 1048 X WWW.NATIONALMSSOCIETY.ORG/CAL X 1946 CA OUR VISION IS A WORLD FREE OF MS. 29 28 48 450 0 0 8965784 7650494 8414 6133 120067 10467 -672648 376386 8421617 8043480 725053 525669 0 0 2658506 2270448 0 0 1502751 5185605 4576311 8569164 7372428 -147547 671052 3769838 3796393 1383720 712544 2386118 3083849 X PEOPLE AFFECTED BY MS CAN LIVE THEIR BEST LIVES AS WE STOP MS IN ITS TRACKS, RESTORE WHAT HAS BEEN LOST AND END MS FOREVER. 0 0 1786980 RESEARCH - TO MOVE US CLOSER TO A WORLD FREE OF MS, IN 2015, THE NATIONAL MULTIPLE SCLEROSIS SOCIETY INVESTED IN EXCESS OF $53 MILLION TO SUPPORT MORE THAN 380 RESEARCH PROJECTS AROUND THE WORLD AIMED AT STOPPING MS IN ITS TRACKS, RESTORING FUNCTION, AND ENDING THE DISEASE FOREVER. THE SOCIETY COLLABORATES WORLDWIDE TO DEVELOP SOLUTIONS FOR EVERYONE AFFECTED BY MS, INCLUDING THOSE WITH PROGRESSIVE MS, THROUGH THE ACCELERATED DISCOVERY AND COMMERCIAL DEVELOPMENT OF PROMISING RESEARCH DISCOVERIES, NEW MS THERAPIES, AND RESEARCH TOOLS. 1277712 PUBLIC EDUCATION - THERE ARE MANY WAYS THE SOCIETY EDUCATES THE PUBLIC ABOUT MULTIPLE SCLEROSIS INCLUDING THE SOCIETY'S ANNUAL MS AWARENESS CAMPAIGN, PUBLIC SERVICE ANNOUNCEMENTS, MOMENTUM, THE SOCIETY'S QUARTERLY MAGAZINE DISTRIBUTED TO PEOPLE WITH MS, HEALTHCARE PROVIDERS, SUPPORTERS OF THE SOCIETY AND MORE. IN ADDITION TO A NATION-WIDE E-NEWSLETTER, CHAPTERS ALSO DISTRIBUTE A LOCAL NEWSLETTER, MS CONNECTION, TO THEIR CONSTITUENTS THAT INCLUDES LOCAL ANNOUNCEMENTS AND INFORMATION ON UPCOMING PROGRAMS AND SERVICES, AND MORE. IN TOTAL, MORE THAN 1.8 MILLION PEOPLE RECEIVE SOCIETY PUBLICATIONS, NEWSLETTERS AND MOMENTUM EACH YEAR. 1105017 COMMUNITY PROGRAMS: THE SOCIETY COLLABORATES WITH DOZENS OF OTHER COMMUNITY ORGANIZATIONS, FOCUSING ON ACCESS TO HEALTH CARE, REHABILITATION, TREATMENTS AND THERAPIES; LONG-TERM CARE; DISABILITY RIGHTS ISSUES; VOCATIONAL TRAINING AND REHAB, WELLNESS AND FITNESS; AND OUTREACH AND EDUCATION TO RURAL AND UNDERSERVED POPULATIONS. 1094352 525669 6133 CLIENT PROGAMS - PEOPLE AFFECTED BY MS CONNECT TO ONE ANOTHER AND AN EXTENSIVE NETWORK OF SERVICES AND RESOURCES. MANY PROGRAMS FACILITATE EDUCATION, RECREATION, PHYSICAL AND EMOTIONAL WELLNESS, AND CONNECTION WITH OTHERS AFFECTED BY MS. OTHER PROGRAMS SUPPORT INDEPENDENCE, SAFETY, HEALTH AND QUALITY OF LIFE. IN 2016, THE MS NAVIGATOR PROGRAM PROVIDED MORE THAN 162,000 PEOPLE WITH INFORMATION, EMOTIONAL SUPPORT, AND CONNECTIONS TO RESOURCES. IN ADDITION, MORE THAN 62,000 PEOPLE ATTENDED SOCIETY PROGRAMS. MORE THAN 950,000 PEOPLE ENGAGED IN CONVERSATIONS AND ACCESSED INFORMATION AND SUPPORT ON THE SOCIETY'S ONLINE COMMUNITY AND SOCIAL MEDIA CHANNELS. 174240 PROFESSIONAL EDUCATION & TRAINING: THE SOCIETY KEEPS HEALTHCARE PROVIDERS ENGAGED IN PATIENT CARE BY KEEPING THEM ABREAST OF NEW DIAGNOSTIC TECHNIQUES, THERAPIES, ETC. INFORMATION AND EDUCATION IS PROVIDED TO THOUSANDS OF PROFESSIONALS THROUGH THE SOCIETY'S CLINICAL CARE NETWORK, MD ON CALL PROGRAM, AND EDUCATIONAL MATERIALS FOR PHYSICAL AND OCCUPATIONAL THERAPISTS, MENTAL HEALTH PROFESSIONAL, NURSES AND OTHERS. A FREE QUARTERLY NEWSLETTER IS EMAILED TO MORE THAN 18,000 PROFESSIONALS, AND THE SOCIETY'S DIAGNOSTIC AND SYMPTOM MANAGEMENT SMARTPHONE APP HAS BEEN DOWNLOADED MORE THAN 66,300 TIMES. 1268592 525669 6133 5438301 1 1 0 1 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 44 0 1 48 1 0 0 0 0 0 1 1 0 0 0 0 X 29 28 1 0 0 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA X X ALTHEA SAMUELS 2124760401 733 THIRD AVENUE NEW YORK NY 10017 KIM PHILLIPS CHAIR 1.00 X X 0 0 0 DON FRACCHIA TREASURER 1.00 X X 0 0 0 DAVE PERREN AUDIT CHAIR 1.00 X X 0 0 0 SUE SCHROEDER SECRETARY 1.00 X X 0 0 0 LARRY WINTER GOVERNANCE CHAIR 1.00 X X 0 0 0 JOHN V BOCK JR TRUSTEE 1.00 X 0 0 0 BARRY ENGELMAN TRUSTEE 1.00 X 0 0 0 DAVID M GOLDSTEIN TRUSTEE 1.00 X 0 0 0 BRUCE HECKER TRUSTEE 1.00 X 0 0 0 LISA KARPE TRUSTEE 1.00 X 0 0 0 RAY KARPE TRUSTEE 1.00 X 0 0 0 PAM KEHALY TRUSTEE 1.00 X 0 0 0 PHIL KEOGHAN TRUSTEE 1.00 X 0 0 0 STANLEY E MARON TRUSTEE 1.00 X 0 0 0 LARRY MCEWEN TRUSTEE 1.00 X 0 0 0 JAMES D POWER IV TRUSTEE 1.00 X 0 0 0 TOM REGAL TRUSTEE 1.00 X 0 0 0 CHRIS RUHE TRUSTEE 1.00 X 0 0 0 SHERI SAFAN TRUSTEE 1.00 X 0 0 0 FERN SEIZER TRUSTEE 1.00 X 0 0 0 DINA TECIMER ESQ TRUSTEE 1.00 X 0 0 0 ALEXI VARANKO TRUSTEE 1.00 X 0 0 0 FRANK YEAGER TRUSTEE 1.00 X 0 0 0 GREG GIESELER TRUSTEE 1.00 X 0 0 0 NANCY SICOTTE TRUSTEE 1.00 X 0 0 0 PAUL HUETHER TRUSTEE 1.00 X 0 0 0 SHANNON REEVES TRUSTEE 1.00 X 0 0 0 WENDY GILMORE TRUSTEE 1.00 X 0 0 0 JULIE KAUFER ESQ PRESIDENT 35.00 X X 109901 0 322 DR BARBARA GIESSER TERM END 316 TRUSTEE 1.00 X 0 0 0 JOYCE JEFFRIES TERM END 1215 TRUSTEE 1.00 X 0 0 0 SIMPSON LEONARD TRUSTEE 1.00 X 0 0 0 DAVID FORD TERM END 0116 TRUSTEE 1.00 X 0 0 0 DENISE NOWACK EXECUTIVE VP OF PROGRAMS 35.00 X 127587 0 10105 KATE MCINTOSH VP OF DEVELOPMENT 35.00 X 107451 0 7905 SUSAN BRADLEY TERM END 22715 FORMER PRESIDENT 35.00 X 101338 0 4151 446277 0 22483 4 1 0 0 0 4309407 3341087 43232 7650494 PROGRAM FEES 900099 6133 6133 6133 13286 13286 4970 7789 -2819 -2819 -2819 1201010 4309407 824624 376386 376386 8043480 6133 0 386853 366236 366236 159433 159433 181526 90763 18153 72610 1797699 1175774 100649 521276 126816 81329 7561 37926 164407 105221 9864 49322 21360 13670 1282 6408 419255 103043 733 315479 146211 52692 4090 89429 321565 204442 19166 97957 91836 31715 1314 58807 57589 11506 254 45829 3335156 3005376 264799 64981 4301 2753 258 1290 MISCELLANEOUS 133107 5505 509 127093 FURNITURE AND EQUIPMENT 42315 27081 2539 12695 DUES AND MEMBERSHIP 2735 1715 161 859 PRIZES AND PROMOTION 881 47 44 790 7372428 5438301 431376 1502751 471397 156426 2101761 2884659 386360 140652 27934 14950 11634 12984 504244 540010 294442 61662 3769838 3796393 375535 434689 870827 135668 137358 142187 1383720 712544 X -712487 -631439 3098605 3715288 2386118 3083849 3769838 3796393 671052 26679 0 X 0 1 X 1 0 X 9671149 8497926 9328408 8965784 7650494 44113761 9671149 8497926 9328408 8965784 7650494 44113761 4137324 39976437 35884 32313 22641 27317 13286 131441 376386 376386 300 300 44621888 73349 0.89590 0.93490 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS INCOME - 2013 AMOUNT: $ 300. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 6639 1 7979 0 14618 0 PART II-B, LINE 1: MS ACTIVISTS ARE HELPING CHANGE THE WORLD, MOVING TOGETHER AND SPEAKING WITH ONE VOICE TO CREATE LEGISLATIVE AND REGULATORY CHANGES THAT BENEFIT PEOPLE LIVING WITH MS AND THEIR FAMILIES. MS ACTIVISM DRIVES CHANGE IN PUBLIC POLICIES TO BRING POSITIVE IMPACT FOR PEOPLE AFFECTED BY MS, SHARING POWERFUL STORIES ABOUT LIVING WITH MS, CONNECTING WITH DECISION-MAKERS, WORKING WITH LIKE-MINDED PARTNERS AND CREATING SYSTEMATIC CHANGE TO IMPACT THE GREATEST NUMBER OF PEOPLE POSSIBLE. 2150 694 1456 18944 9689 9255 6840 4567 2273 12984 NMSS POOLED INVESTMENT FUND 540010 F 540010 DUE TO OTHER CHAPTER 11507 DEFERRED RENT LIABILITY 130680 142187 X 8112589 26679 42430 69109 8043480 0 8043480 7414858 42430 42430 7372428 0 7372428 PART X, LINE 2: SOCIETY MANAGEMENT HAS ANALYZED THE TAX POSITIONS IT HAS TAKEN AND HAS CONCLUDED THAT, AS OF SEPTEMBER 30, 2016, THERE WERE NO UNCERTAIN TAX POSITIONS TAKEN OR ARE EXPECTED TO BE TAKEN. ACCORDINGLY, NO INTEREST OR PENALTIES RELATED TO UNCERTAIN TAX POSITIONS HAVE BEEN ACCRUED IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE CHAPTER IS SUBJECT TO AUDITS BY TAXING JURISDICTIONS; HOWEVER, NO AUDITS FOR ANY TAX PERIODS ARE CURRENTLY IN PROGRESS. MANAGEMENT BELIEVES THAT THE CHAPTER IS NO LONGER SUBJECT TO SUCH AUDITS FOR YEAR ENDED ON OR PRIOR TO SEPTEMBER 30, 2012 UNDER FEDERAL AND OTHER STATE TAX JURISDICTIONS. MS WALK 2377549 2356992 20557 49199 132024 22208 400 40568 MS DINNER OF CHAMPIONS 1610520 472930 1137590 19 55213 132371 36697 18425 5 1522348 1479485 42863 20948 113303 62767 8237 132245 5510417 4309407 1201010 70166 300540 217346 45334 191238 824624 376386 1 UNIVERSITY OF CALIFORNIA REGENTS 710 WESTWOOD PLAZA STE 4151 LOS ANGELES CA 90095 956006143 501(C)(3) 366236 TO SUPPORT PROGRAM SERVICES 1 DIRECT FINANCIAL ASSISTANCE FOR INDIVIDUALS AFFECTED BY MS 447 159433 N/A PART I, LINE 2: GRANTEES ARE REQUIRED TO SUBMIT FINANCIAL AND PROGRAM PROGRESS REPORTS THAT ARE REVIEWED AND APPROVED BEFORE ADDITIONAL FUNDING IS PROVIDED. IN ORDER TO SECURE FINANCIAL ASSISTANCE, AN INDIVIDUAL MUST WORK WITH AN MS NAVIGATOR TO RESEARCH AND OBTAIN OTHER COMMUNITY RESOURCES AND SUSTAINABLE SOLUTIONS WHERE POSSIBLE. DOCUMENTATION INCLUDES A FINANCIAL ASSISTANCE AGREEMENT, CONFIRMATION OF AN MS DIAGNOSIS, AND WHERE APPLICABLE A PHYSICIAN'S PRESCRIPTION AND/OR ESTIMATES FROM VENDORS FOR SERVICES PROVIDED. ANNUAL SPENDING CAPS ARE ESTABLISHED AND MONITORED TO MAXIMIZE THE NUMBER OF INDIVIDUALS RECEIVING ASSISTANCE. X X X X X 1 0 0 0 0 0 0 0 0 SUSAN BRADLEY TERM END 22715 FORMER PRESIDENT 35744 0 0 0 65594 0 3034 0 1117 0 105489 0 0 0 PART I, LINE 4A SUSAN BRADLEY RECEIVED $65,594 IN COMPENSATION AS PART OF A SEVERANCE PACKAGE. X EVENT ITEMS 8 43232 FAIR MARKET VALUE 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 THE FOLLOWING TRUSTEES HAVE FAMILY RELATIONSHIPS: LISA KARPE AND RAY KARPE FORM 990, PART VI, SECTION A, LINE 6 CHAPTER MEMBERSHIP CONSISTS OF ALL PERSONS WHO ARE MEMBERS OF THE SOCIETY AND WHO RESIDE WITHIN (OR WHO HAVE PREVIOUSLY RESIDED WITHIN AND HAVE INDICATED THAT THEY WISH TO RETAIN THEIR MEMBERSHIP) THE CHAPTER'S TERRITORY. FORM 990, PART VI, SECTION A, LINE 7A THE CHAPTER HOLDS A MEETING OF ITS MEMBERS ANNUALLY FOR THE PURPOSES OF ELECTING A BOARD OF TRUSTEES, CONSIDERING ANY OTHER REPORTS THAT MAY BE PRESENTED, AND FOR THE TRANSACTION OF SUCH OTHER BUSINESS AS MAY PROPERLY COME BEFORE THE MEETING. FORM 990, PART VI, SECTION B, LINE 11 THE CHAPTER'S AUDIT COMMITTEE REVIEWS AND APPROVES THE IRS FORM 990 AND ACCOMPANYING SCHEDULES PRIOR TO DISTRIBUTION TO THE ENTIRE BOARD. A COPY OF THE IRS FORM 990 AND ACCOMPANYING SCHEDULES IS PROVIDED TO THE ENTIRE BOARD WITH A PERIOD FOR PROVIDING COMMENTS, EDITS OR CORRECTIONS PRIOR TO SUBMISSION TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ON AN ANNUAL BASIS, CHAPTER MANAGEMENT REVIEWS THE CONFLICT OF INTEREST DISCLOSURE FORMS FILED BY TRUSTEES, OFFICERS AND EMPLOYEES FOR POTENTIAL CONFLICTS. ADDITIONALLY, ALL COVERED PERSONS HAVE AN ONGOING DUTY TO DISCLOSE POTENTIAL CONFLICTS TO CHAPTER MANAGEMENT. POTENTIAL CONFLICTS OF INTEREST ARE PRESENTED TO THE CHAPTER'S AUDIT COMMITTEE FOR REVIEW. WHERE CONFLICTS EXIST, A CONFLICT RESOLUTION REPORT IS CREATED AND THE TRUSTEE, OFFICER OR EMPLOYEE IS NOT ALLOWED TO PARTICIPATE IN ANY VOTE OR DISCUSSION OF THE DISCLOSED MATTER. AT THE CURRENT TIME, NO POTENTIAL CONFLICTS OF INTEREST HAVE BEEN IDENTIFIED. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION COMMITTEE OF THE NATIONAL BOARD OF DIRECTORS IS PROVIDED WITH INTERNAL AND EXTERNAL SALARY DATA FOR SOCIETY LEADERSHIP AND MANAGEMENT TEAM - WHICH INCLUDES THE PRESIDENTS. THE COMMITTEE PROVIDES INPUT TO THE CEO ON THE COMPENSATION RECOMMENDATIONS. IN ADDITION, THE PRESIDENT'S PERFORMANCE IS EVALUATED ANNUALLY BY EXECUTIVE VICE PRESIDENT, LEADERSHIP AND ORGANIZATIONAL DEVELOPMENT WITH INPUT PROVIDED BY THE PRESIDENT REVIEW AND PROFESSIONAL DEVELOPMENT ADVISORY COMMITTEE OF THE CHAPTER BOARD OF TRUSTEES. FORM 990, PART VI, SECTION C, LINE 19 THE CHAPTER'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. THE CHAPTER'S IRS FORM 990 AND FINANCIAL STATEMENTS ARE AVAILABLE ON THE CHAPTER'S WEBSITE.