2017-01-28T10:38:43-08:00 2016-08-31 POTTER & LAMARCA LLP 101 TYRELLAN AVE STATEN ISLAND NY 103092651 990 2015-09-01 131962771 American Parkinson Disease Assoc AMER 7189818001 135 Parkinson Avenue Staten Island NY 10305 Leslie Chambers President & CEO 2017-01-28 true Fred M LaMarca CPA P00170223 7182278000 2015 2021-01-29 14:40:06Z Leslie Chambers 135 Parkinson Avenue Staten Island NY 10305 10922882 false false X www.apdaparkinson.org X 1961 NY The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinsons disease (PD) and works tirelessly to assist the more than 1 million Americans with PD live life to the fullest in the face of this chronic, neurological disorder. Founded in 1961, APDA focuses on providing outstanding patient services and educational programs, elevates public awareness about the disease, and supports research designed to unlock the mysteries of PD and ultimately put an end to this disease. 22 22 36 685 0 10550536 8569054 0 87297 -12048 -329897 64568 10307936 8621574 2404712 1971056 0 2583671 2930446 360000 390775 1783158 3211486 3454676 8559869 8746953 1748067 -125379 11739483 11347085 2212921 1846843 9526562 9500242 The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinsons disease (PD) and works tirelessly to assist the more than 1 million Americans with PD live life to the fullest in the face of this chronic, neurological disorder. Founded in 1961, APDA focuses on providing outstanding patient services and educational programs, elevates public awareness about the disease, and supports research designed to unlock the mysteries of PD and ultimately put an end to this disease. false false 2510640 Public Awareness APDA currently provides ( on-line and in print) more than 30 free educational publications to address medical and social aspects of the diagnosis, treatment and care of Parkinson disease patients. Distributed through APDA Chapters, I&R Centers and with its 800 # call line, APDA also raises awareness through a television Public Service Announcement (PSA) campaign entitled Live with Optimism that has aired nationwide since 2015. Approximately 165,000 newsletters are mailed annually. 2120561 593306 Patient Services and Educational Programs - APDA aims to support every person and every family impacted by Parkinsons. Through its nationwide system of Chapters and Information & Referral (I&R) Centers, APDA uniquely delivers education, support, and patient services to Americans with Parkinsons and their families each day. 22 Information and Referral centers funded. 1585732 1377750 Research - APDA proudly invests in eight Centers for Advanced Research and supports grants to fund the most promising science focused on discovering the cause(s) and finding the cure for Parkinsons disease. Since its founding in 1961, APDA has been a funding partner in most of the major PD scientific breakthroughs. Seven Advanced Centers were funded. Two summer fellowships were funded. 6216933 true true false false false false false false false true true true false false true true true false false false false false false true true false false true false true false false false false false false false true false false true false false false false false false false false false false true 42 0 true 36 true false false false false false false true true false 0 false false false false false false false false false false X 22 22 true false false false false false false true true false true true true true true true true true true true false CT FL GA IA IL MA MN MS NE NH NJ NY OH OK RI TN TX UT VA VT WA WI X X Cheryl Weiner 7189818001 135 Parkinson Avenue Staten Island NY 10305 David G Standaert Director 0.50 0.00 X 0 0 0 Athol Cochrane Director 0.50 0.00 X 0 0 0 John Marangos 1st V Chair 1.50 0.00 X X 0 0 0 Jerry Wells Secretary 1.50 0.00 X X 0 0 0 Patrick McDermott Chairman 1.50 0.00 X X 0 0 0 Elliot Shapiro 2nd V Chair 1.50 0.00 X X 0 0 0 Sally Ann Esposito-Browne Secretary 0.50 0.00 X 0 0 0 David J Butler Director 0.50 0.00 X 0 0 0 Fred Greene Director 0.50 0.00 X 0 0 0 Elizabeth Braun Director 0.50 0.00 X 0 0 0 Joseph G Conte Director 0.50 0.00 X 0 0 0 George A Esposito Jr Director 0.50 0.00 X 0 0 0 Lisa Esposito Director 0.50 0.00 X 0 0 0 Mario J Esposito Jr Director 0.50 0.00 X 0 0 0 Michael Esposito Director 0.50 0.00 X 0 0 0 Donna JC Fanelli Director 0.50 0.00 X 0 0 0 Marvin Henick Director 0.50 0.00 X 0 0 0 John Lagana Jr Director 0.50 0.00 X 0 0 0 Thomas K Penett 3rd V Chair 1.50 0.00 X X 0 0 0 Elena Imperato Treasurer 1.50 0.00 X X 0 0 0 Michael Pietrangelo Director 0.50 0.00 X 0 0 0 Daniel Wheeler Director 0.50 0.00 X 0 0 0 Michael Melnicke Director 0.50 0.00 X 0 0 0 Joel A Miele Jr Director 0.50 0.00 X 0 0 0 Leslie Chambers Pres & CEO 40.00 0.00 X 238698 0 44917 Cheryl Weiner Controller & HR 40.00 0.00 X 108098 0 31344 Stephanie Paul VP Development & Mktg 40.00 0.00 X 157381 0 37758 Michelle McDonald VP Chapter Relations Field Op 40.00 0.00 X 148968 0 35259 Robin Kornhaber VP Program & Services 40.00 0.00 X 125953 0 33757 Joel Gerstel Former Pres and ED 0.00 0.00 X 25000 0 0 804098 183035 5 true true false Thomson Habib & Denison 80 Hayden Ave suite 300 Lexington MA 02421 Fulfillment 383019 Edge Direct PO Box 840 Tulsa OK 74101 Fulfillment 167356 Southwest Publishing 4000 SE Adams St Topeka KS 66609 Fulfillment 564313 3 160809 6062 1454937 6947246 8569054 0 55175 55175 0 0 28878 28878 28878 28878 1895301 1962524 -67223 -67223 -67223 318546 1454937 338784 -20238 -20238 0 0 Insurance Proceeds 45840 45840 Reimbursements 10088 10088 55928 8621574 52520 1971056 1971056 0 0 0 764220 504056 160311 99853 1398954 969065 224734 205155 0 222723 151674 39645 31404 388972 264890 69237 54845 155577 105948 27693 21936 0 89112 60685 15862 12565 75200 51212 13386 10602 0 390775 390775 19527 13297 3476 2754 0 0 269602 183599 47989 38014 0 0 85153 57989 15157 12007 24069 16392 4284 3393 0 515209 515209 0 0 106998 72866 19046 15086 79686 54266 14184 11236 Mailings 1385873 515761 40863 829249 Patient Services 513869 513869 Supplies 94232 64171 16773 13288 Maintenance & Repairs 68997 46987 12281 9729 127149 83941 21941 21267 8746953 6216933 746862 1783158 X 3872364 4569771 1716502 2163836 0 1788291 307448 0 0 0 0 344597 360973 3839098 1253971 2663553 2585127 0 1354176 1359930 0 0 0 11739483 11347085 285981 383276 1871219 1304926 109264 55721 49377 2212921 1846843 X 6011117 7097139 3342501 2230159 172944 172944 9526562 9500242 11739483 11347085 -125379 99059 X false true X true false X 8378136 8653946 9620063 10570856 8569054 45792055 0 0 8378136 8653946 9620063 10570856 8569054 45792055 5825 45786230 63856 167122 182888 115609 16828 546303 0 -618118 -630733 -585132 -363688 -20238 -2217909 44120449 41878 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3515445 900289 2575 2015206 2403103 3141973 2180260 2836 1809624 3515445 4568672 2440085 132 790225 3076691 3141973 4226791 3101119 575944 2183294 4568672 4410922 2028273 799808 1412596 4226791 0.07200 0.92800 false false false 696071 696071 2820627 1026079 1794548 122354 39046 83308 54657 48258 6399 145389 140588 4801 2585127 1359930 Annuities Payable 49376 Rounding 1 49377 X 20908534 99059 11849117 338784 12286960 8621574 8621574 20934854 11849117 338784 12187901 8746953 8746953 Part V, Line 4: Intended uses of the endowment fund. Endowment funds are restricted for research, for patient and program services, and program expenses at specific chapters. Part X : FIN48 Footnote APDA is incorporated as a not-for profit organization and is exempt from Federal income taxes under Section 501(c) (3) of the Internal Revenue Code. In addition, APDA has been determined not to be a private foundation under Section 509(A) of said Code. APDA regularly reviews and evaluates its tax positions taken on current and previously filed tax returns and as reflected in its financial statements, with regard to issues affecting its not for profit status. APDA believes that in the event of an examination by taxing authorities, APDAs position would prevail based on technical merits. APDAs tax returns are generally subject to examination by the Internal Revenue Service for three years including August 31, 2016, 2015 and 2014. Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 Special Event Expenses $338784 Part XII, Line 2d: Other expenses and losses per audited F/S Special Event Expenses $338784 X X X X X X true Thomson Habib & 80 Hayden Ave Lexington MA 02421 Fundraising false 3082693 390775 2691918 3082693 390775 2691918 AL AK AZ AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NM NY NC ND OH OK OR PA RI SD TN UT VA WA WV WI Walk a Thon 693422 693422 5784 10887 76032 Galas, dinners, and luncheons 336296 148728 187568 8413 49167 32235 3 743765 612787 130978 49996 27088 79182 1773483 1454937 318546 64193 87142 187449 338784 -20238 true Boston University 635 Commonwealth Avenue Boston MA 02215 042103547 50000 0 Medical Research Boston University 635 Commonwealth Avenue Boston MA 02215 042103547 50000 0 Medical Research Boston University 635 Commonwealth Avenue Boston MA 02215 042103547 52000 0 Rehab Center Boston University 635 Commonwealth Avenue Boston MA 02215 042103547 87000 0 Information and Referral Boston University School of Medicine 715 Albany Street Suite C-329 Boston MA 02118 042103545 100000 0 Medical Research Brigham & Womens Hospital 77 Ave Louis Pastuer Boston MA 02115 131962771 50000 0 Medical Research Centennial Medical Center 2300 Patterson Street Nashville TN 37203 953062349 30600 0 Information and Referral Columbia University Medical Cnt 710 W 168th Street 3rd Fl New York NY 10032 135598093 50000 0 Medical Research Cornell University 413 East 69th St New York NY 10021 131623978 50000 0 Medical Research CUNY 230 W 41st St New York NY 10036 131988190 50000 0 Medical Research Emory U Sc of Medicine 401 Woodtuff Memorial Blvd Atlanta GA 30322 580566256 100000 0 Medical research Emory University Med 1841 Clifton Road NE Room 504 Atlanta GA 30329 580566256 40000 0 Information and Referral Iowa Health - Des Moines 1200 Pleasant St E-524 Des Moines IA 50309 421195202 34650 0 Information and Referral Kent Hospital 455 Toll Gate Road Building 2C Warwick RI 02886 050258896 39000 0 Information and Referral Louisiana State University 1501 Kings Hwy Shreveport LA 71130 726000848 50000 0 Medical Research Mayo Clinic Jacksonville 4500 San Pablo Road Jacksonville FL 32224 590714831 35000 0 Medical Research New York Methodist Hos 506 6th St Brooklyn NY 11215 111631796 30000 0 Information and Referral NY College of Osteopathic PO Box 8000 Northern Blvd Old Westbury NY 11568 237190271 29700 0 Information and Referral Orange Coast Memorial Med 9940 Talbert Avenue Suite 204 Fountain Valley CA 92708 330332723 26665 0 Information and Referral Oregon Health & Science U 3181 SW Sam Jackson Park RD Portland OR 97239 364631835 50000 0 Medical Research Penn Sttae Hershey Co of Med 500 University Drive Hershey PA 17033 246000376 10000 0 Information & Referral Regents of the U of Californi 710 Westwood plaza Los Angeles CA 90095 946036494 100000 0 Medical Research Robert Wood Johnson U 120 Albany Street Suite 360 New Brunswick NJ 08901 226014339 50000 0 Information and Referral Robert Wood Johnson University Hospital 97 Paterson Street Room 206 New Brunswick NJ 08901 462354111 100000 0 Medical Research Seattle Institute of Biomedic 1660 S Columbia Way Seattle WA 98108 916001537 25000 0 Research St Catherines of Sienna Hosp 50 Route 25A Smithtown NY 11787 061562701 6000 0 Physical Therapy Program St Catherines of Siena Hosp 50 Route 25A Smithtown NY 11787 061562701 29700 0 Information and Referral St Marys Hospital 700 S Park Street Madison WI 53715 390806393 24274 0 Information and Referral U of TX HSC at San Antonio 8300 Floyd Curl MSC 7883 San Antonio TX 78229 741586031 29700 0 Information and Referral United Hospital 333 Smith Avenue N St Paul MN 55102 363261413 13825 0 Information and Referral University Neurology Inc 260 Stetson Street Ste 2300 Cincinnati OH 45267 311000664 36000 0 Information and Referral University of Alabama 1719 6th Ave Birmingham AL 35244 636005396 100000 0 Medical Research University of Alabama 17207 7th Ave Birmingham AL 35223 636001138 34650 0 Information and Referral University of Kentucky 800 Rose Street Lexington KY 40536 616033693 10000 0 Information & Referral University of Maryland Hospital 110 S Paca Street 3 Floor Baltimore MD 21201 522238893 27000 0 Information and Referral University of Nebraska 982045 Nebraska Medical Cente Omaha NE 68198 470491233 28875 0 Information and Referral University of Pittsburgh 3109 Cathedral of Learning Pittsburgh PA 15260 250965591 135000 0 Medical Research University of Utah 520 Wakara Way Salt Lake City UT 84108 876000052 35000 0 Medical Researc University of Virginia Med Ct The McKim Hall - Box 394 Charlottesville VA 22908 237173411 29700 0 Information and Referral VA Hospital 1000 Locust Street Reno NV 89502 208903914 35000 0 Information and Referral Van Andel Research Inst 333 Bostwick Ave NE Grand Rapids MI 49503 522000820 35000 0 Medical Research Vanderbilt University 1161 21st Ave S Nashville TN 37232 620476822 30000 0 Washington University Medical Center 4525 Scott Avenue Box 8225 St Louis MO 63110 430653611 100000 0 Medical Research 25 18 Grantmaker's Description of How Grants are Used APDA has an independent scientific advisory board (SAB) that recommends the recepients of the grants, who are in turn approved by the Board of Directors. Initial funding is made based on the grant and subsequent payments are made contingent on progress reports. Final reports are mandatory for the grants and only after their receipt is final payment disbursed. Centers for Advanced Research where funding extends out to more than one year submit annual progress reports.Information and Referal Centers are monitored for volume activity and similarly, after the initial payment, subsequent payments are contingent upon receipt of progress reports. X X X X X X true false false false false false false false false false Joel Gerstel Former Pres and ED 25000 25000 Leslie Chambers Pres & CEO 238698 26660 18257 283615 Michelle McDonald VP Chapter Relations Field Op 148968 17493 17766 184227 Robin Kornhaber VP Program & Services 125953 15500 18257 159710 Stephanie Paul VP Development & Mktg 157381 18789 18969 195139 David Standaert Director 134650 Grants Research & I&R OxfordP McDermott agent Director 352349 Ins Premiums/Commiss false Schedule L, Part V Supplemental Information David Standaert is a member of the Board of Directors of APDA and is also the Chairman of the Scientific Advisory Board. In addition, this member heads the Department of Neurology at the University of Alabama at Birmingham and receives research funding in the amount of $100,000 per year and Information and Referral funding in the amount of $34,650 per year.A member of the Board of Directors is the managing member of an employee benefits consulting firm that is the insurance broker who represents the insurance company that provides medical, dental, and optical insurance to APDA. Total insurance premiums paid to the insurance company during the fiscal year ended August 31, 2016 was $352,349. Commissions paid to this employee benefits consulting firm out of these premium payments were $11,077. The premium rates were determined to be comparable with other providers. This member recused himself from all decisions pertaining to insurance. Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et 1)Elizabeth Braun - Board MemberSister to board member Elena Imperato2) Mario J. Esposito Jr. - Board MemberBrother of board member Michael Esposito3) Michael Esposito - Board MemberBrother of board member Mario J. Esposito Jr.4)Lisa Esposito - Board MemberSister of board member Sally Ann Browne Esposito 5) Elena Imperato - TreasurerSister of board member Elizabeth Braun 6) Sally Ann Esposito Browne - Board memberSister of board member Lisa Esposito Form 990, Part VI, Line 11b: Form 990 Review Process Form 990 was reviewed in detail by Finance & Audit Committees & distributed electronically to all other board members Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts Conflict of Interest policy signed by the Board annually. Members recuse themselves from voting if there is a potential conflict of interest. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management Independent compensation committee formed to approve the salaries of the President & CEO and that of the key employees. In addition, APDA hired an independent compensation firm to perform a compensation study for the key employees and officers at the organization. Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees Same as 15a above. Independent compensation committee formed to approve the salaries of the President & CEO and that of the key employees. In addition, APDA hired an independent compensation firm to perform a compensation study for the key employees and officers at the organization. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available Financial statements available on website and upon request. Governing documents and policies provided upon request.