2017-10-18T09:56:59-07:00 2016-12-31 Mark Mumm CPA 12655 Fiori Lane Sebastopol CA 954729571 990 2016-01-01 272947576 ADVOCATES FOR INFORMED CHOICE dba interACT ADVO 7077931190 365 BOSTON POST RD SUDBURY MA 01776 KIMBERLY ZIESELMAN Executive Dir. 2017-10-18 true Mark Mumm P01765746 4154533341 X 2016 2021-01-29 14:40:06Z 233756 false false X WWW.INTERACTADVOCATES.ORG X 2010 CA THE MISSION OF THE ORGANIZATION IS TO ENGAGE PARENTS, DOCTORS, ATTORNEYSAND INTERSEX ACTIVISTS IN STRATEGY DISCUSSIONS; STIMULATE LEGAL DIALOGUE ABOUT THE FUNDAMENTAL RIGHTS OF CHILDREN BORN WITH INTERSEX CONDITIONS OR DSD'S; AND EMPLOY TRADITIONAL AND NON-TRADITIONAL LEGAL TOOLS TO ENSURE JUSTICE FOR CHILDREN BORN WITH INTERSEX CONDITIONS OR DSD'S. THESE ACTIVITIES ARE GROUNDED IN A SENSE OF RESPECT AND COMPASSION FOR THE CHILDREN, PARENTS, DOCTORS AND INTERSEX ADULTS INVOLVED. 10 10 7 57 0 299780 231838 1350 1906 23 12 0 301153 233756 0 0 174129 237668 0 20304 68200 58218 242329 295886 58824 -62130 135907 70165 18233 14621 117674 55544 X THE MISSION OF THE ORGANIZATION IS TO ENGAGE PARENTS, DOCTORS, ATTORNEYSAND INTERSEX ACTIVISTS IN STRATEGY DISCUSSIONS; STIMULATE LEGAL DIALOGUE ABOUT THE FUNDAMENTAL RIGHTS OF CHILDREN BORN WITH INTERSEX CONDITIONS OR DSD'S; AND EMPLOY TRADITIONAL AND NON-TRADITIONAL LEGAL TOOLS TO ENSURE JUSTICE FOR CHILDREN BORN WITH INTERSEX CONDITIONS OR DSD'S. THESE ACTIVITIES ARE GROUNDED IN A SENSE OF RESPECT AND COMPASSION FOR THE CHILDREN, PARENTS, DOCTORS AND INTERSEX ADULTS INVOLVED. false false 129341 LAW AND POLICYinterACTs Law & Policy program aims to protect children born with intersex traits by promoting policy changes in medical practice, legislation, regulation, and the courts both in the U.S. and beyond. Here is a sampling of what we've helped bring about in in 2016: Together with the Arcus Foundation, we co-hosted a policy forum entitled: Invisible No More: The Global Intersex Rights Movement, an international convening of intersex activists at Creating Change, the largest leadership and skills-building conference for the LGBTQ social justice movement in the United States. Our work with the U.S. Department of Health and Human Services led them to recognize that discrimination against intersex people in healthcare is prohibited under the Affordable Care Act. This is the first major recognition of intersex rights in any federal regulation. We began conversations three years ago with Human Rights Watch and Physicians for Human Rights in an effort to bring a human rights investigation to fruition in the U.S. We are now guiding the effort to create a report documenting the experiences of intersex people, their families, and their care providers, which will be the first long-form report of its kind. We spearheaded efforts with GLMA: Health Professionals Advancing LGBT Equality to bring about a resolution calling for the delay of medically unnecessary genital surgeries on intersex infants until the child can participate in the decision. We worked with the U.S. Department of State to build awareness of issues facing our community. As a result, this Intersex Awareness Day they issued a statement clarifying that the United States stands in solidarity with intersex persons around the world[I]ntersex persons routinely face forced medical surgeries that are conducted at a young age without free or informed consent. These interventions jeopardize their physical integrity and ability to live free. We submitted testimony to the United Nations Committee Against Torture, pressing the Committee to consider intersex human rights as it prepares for meetings with the U.S. Government later this year. We participated in the launch of the Equal Rights Coalition in Montevideo, Uruguay, a partnership of 31 governments (including the United States) aiming to strengthen cooperation to advance the human rights of, and support inclusive development for all persons regardless of sexual orientation, gender identity or expression, and sex characteristics. We published in multiple academic journals this year, including the Journal of Pediatric Urology and the International Journal of Human Rights in Healthcare, outlining why doctors must respect the autonomy and bodily integrity of intersex young people. We also presented at multiple medical conferences, including those held by the Society for Pediatric Urology and the American Academy of Pediatrics. The response from physicians who promote surgery on intersex infants has shifted from strident to defensivetheyre starting to see that the end of nonconsensual surgeries is near. 45744 YOUTHinterACT Youth is our intersex youth advocacy project providing young interex people with connection, leadership skills and a platform to raise their voices which are at the heart and soul of our mission to honor bodily integrity and choice in decision making.We know how much individual voices matter like Emily Quinn, interACTs Youth Coordinator.Emily had the courage to share her story with a room full of surgeons at the Society of Pediatric Urologists annual meeting, in a panel she co-facilitated with an interACT board member. Soon afterwards one of those doctors contacted us to share that his conscience was bothering him. He ended up canceling genital surgery scheduled just days away on a 4-year-old.Youth advocates can make a tremendous difference, like Emily did in the life of that small child. It is because of you and your support that we were able to send Emily to speak to those doctors, and that that child was spared surgery. And last year we had enough stories to fill many more pages:like the one of a child whose parents contacted interACT after their doctor, prompted by another one of our presentations, expressed previously undisclosed risks of gonad removal, leading the parents to decline surgery on their child.interACT Youth members also continue raise awareness and speak out publicly in support of intersex rights. Here are just a few highlights from last year: interACT Youth collaborated with the International Lesbian, Gay, Bisexual and Transgender Youth Organization (IGLYO) on the creation of a video filled with young intersex voices for Intersex Awareness Day. interACT Youth members created and disseminated videos, featuring entirely interACT Youth members, addressing intersex discrimination in Olympic sports as well as the intersex perspective on the so-called Bathroom Bills aimed at the transgender community and their impact on our two communities. Several interACT Youth members provided intersex education in their local communities telling their stories and advocating for intersex rights in front of their classmates, medical students, teachers, clinicians, and parents. 39152 MEDIAinterACT Media was formally named our newest program in 2016 in recognition of the the increasing amount of public intersex visibility raising and media consult we are doing on a national and global scale. These projects often incorporate interACT Youth voices and are always in alignment with our law and policy goals. Some highlights from interACT Media in 2016: We facilitated a media training for twelve intersex young people to learn important advocacy and communication skills, empowering them to speak to journalists and share their important stories in the media. One of our youth members, Amanda Saenz, was featured on the MTV show Faking It as the first out intersex person ever to play an intersex role on television. One of our youth members, Axel, was featured as part of Logo TVs Global Ally Campaign in a video PSA on Intersex Awareness Day. We partnered with the Voices project and the Narrative Inquiry in Bioethics journal to provide open access to Normalizing Intersex a publication of diverse intersex narratives reporting their experiences with medical treatment. Our youth members and other interACT representatives were highlighted in multiple national media outlets, including Good Housekeeping, the Huffington Post, the Salt Lake City Tribune, National Geographic, and Seventeen Magazine. 14393 228630 true true false false false false false false false false true false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 2 0 true 7 true false false false false false false false false 0 false false false false false false false false false false X 10 10 false false false false false false false true false false false true true true true false false true false false CA Kimberly Zieselman 6179473988 365 BOSTON POST RD 163 SUDBURY MA 01776 ALICE ALVAREZ Director 0.50 0.00 X 0 0 0 JULIE GREENBERG JD President 2.00 0.00 X X 0 0 0 REID WILLIAMS Director 0.50 0.00 X 0 0 0 DR ARLENE BARATZ Director 0.50 0.00 X 0 0 0 KAREN WALSH Treasurer 2.00 0.00 X X 0 0 0 GEORGIANN DAVIS Director 0.50 0.00 X 0 0 0 LYNNELL STEPHANI LONG Director 0.50 0.00 X 0 0 0 MANI BRUCE MITCHELL Director 0.50 0.00 X 0 0 0 ERIC LOHMAN Director 0.50 0.00 X 0 0 0 EMILY DOSKOW JD Secretary 2.00 0.00 X X 0 0 0 KIMBERLY ZIESELMAN Executive Dir. 40.00 0.00 X 54000 0 0 54000 0 false false false 0 231838 231838 PROGRAM INCOME 1906 1906 1906 12 12 0 0 0 0 0 0 0 0 233756 1906 12 0 0 0 0 54000 54000 0 163409 127766 20549 15094 2352 2257 95 607 277 283 47 17300 15461 684 1155 0 390 390 5107 5107 0 0 0 8000 8000 0 0 0 0 0 17823 9566 7624 633 0 0 0 0 0 6258 4225 2033 TELEPHONE 5641 4113 1213 315 Printing and Publications 4015 1388 884 1743 BANK CHARGES 2778 2778 COMMUNICATIONS/OUTREACH 2243 422 1024 797 5963 765 4678 520 295886 228630 46952 20304 135907 67853 2312 0 0 0 0 0 0 0 8111 8111 0 0 0 0 0 0 135907 70165 18233 14621 18233 14621 X 99438 55544 18236 117674 55544 135907 70165 -62130 X false false false X 127576 170097 205471 299780 281838 1084762 0 0 127576 170097 205471 299780 281838 1084762 495226 589536 13 32 23 12 80 0 0 1084842 13081 0.54340 0.59950 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 8111 8111 DUE TO PAGONIX FILM PROJECT 1455 Due to/from Interface Project 13166 14621 Form 990, Part III, Line 4d: Other Program Services Description OTHER PROGRAM SERVICES 4: MEDIAinterACT Media was formally named our newest program in 2016 in recognition of the the increasing amount of public intersex visibility raising and media consult we are doing on a national and global scale. These projects often incorporate interACT Youth voices and are always in alignment with our law and policy goals. Some highlights from interACT Media in 2016: We facilitated a media training for twelve intersex young people to learn important advocacy and communication skills, empowering them to speak to journalists and share their important stories in the media. One of our youth members, Amanda Saenz, was featured on the MTV show Faking It as the first out intersex person ever to play an intersex role on television. One of our youth members, Axel, was featured as part of Logo TVs Global Ally Campaign in a video PSA on Intersex Awareness Day. We partnered with the Voices project and the Narrative Inquiry in Bioethics journal to provide open access to Normalizing Intersex a publication of diverse intersex narratives reporting their experiences with medical treatment. Our youth members and other interACT representatives were highlighted in multiple national media outlets, including Good Housekeeping, the Huffington Post, the Salt Lake City Tribune, National Geographic, and Seventeen Magazine. Form 990, Part VI, Line 11b: Form 990 Review Process COPY OF FORM 990 AND RELATED SCHEDULES IS REVIEWED BY THE ORGANIZATION'S EXECUTIVE DIRECTOR AND IS MADE AVAILABLE TO ALL BOARD MEMBERS PRIOR TO FILING Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts ANNUALLY EACH MEMBER OF THE BOD IS REQUIRED TO SIGN A CONFLICT OF INTEREST FORM Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management EXECUTIVE DIRECTORS COMPENSATION PACKAGE PREPARED BY THE BOARD AFTER CONSIDERING SIMILAR JOB POSITIONS IN THE AREA Form 990, Part VI, Line 19: Other Organization Documents Publicly Available ALL GOVERNING DOCUMENTS, POLICIES AND FINANCIAL STATEMENTS ARE DISCLOSED AS PROVIDED BY LAW. THE FORM 990 IS ALSO AVAILABLE ON GUIDESTAR.ORG