2017-08-16T16:20:59-04:00 2017-02-28 271328499 Full Potential Accounting PO Box 12241 MILL CREEK WA 98082 990 2016-03-01 861108537 FRIENDS OF FSH RESEARCH FRIE 217 19TH PLACE KIRKLAND WA 98033 TERESA COLELLA PRESIDENT 4258278954 2017-07-06 true Justin Dagna CPA P00612140 2067749192 73.140.151.14 2017-08-16 16:22:03 91642320172285rlsd2n 2017-08-16 P 6E4E9D54132C4EBD78C8CF0F29B3B7F0E6F99679 6E4E9D54132C4EBD78C8CF0F29B3B7F0E6F99679 2016 2021-01-29 14:40:06Z TERESA COLELLA 557924 false X WWW.FSHFRIENDS.ORG X 2004 WA FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH 24 16 1 65 0 0 585082 440539 0 757 416 -10923 -24344 574916 416611 371560 315948 0 33836 7832 0 6255 44734 55827 450130 379607 124786 37004 538165 572093 3147 71 535018 572022 FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH false false 369130 315948 RESEARCH PROJECTS FUNDED DURING THE LAST FISCAL YEAR:FOR COMPLETE AND UP-TO-DATE INFORMATION, PLEASE REFER TO WWW.FSHFRIENDS.ORG.1) 3/30/2016 REGENTS U OF MINN. $65,401.00 HIDEKI AIHARA - DUX4-DNA INTERACTION PROJECTMICHAEL KYBA PHD AND HIDEKI AIHARA PHD, UNIVERSITY OF MINNESOTA. STRUCTURAL STUDIES OF DUX4-DNAINTERACTION.2) 3/30/2016 UNIV OF MD $50,000.00 BLOCH RESEARCH (SECOND YEAR)FSHD MYOFIBERS CULTURED FROM HUMAN XENOGRAFTS ROBERT BLOCH PHD3) 5/12/2016 NEUROLOGY GIFT FUND $16,500.00 UW CLINIC - MUSCLE TESTING EQUIPMENTQMA TESTING EQUIPMENT PURCHASE FOR THE UNIVERSITY OF WASHINGTON MUSCULAR DYSTROPHY CLINIC4) 5/17/2016 UNIV OF ROCHESTER $17,416.00 3 YEARS FUNDING GENETIC TESTING/FSH REGISTRYOPTIMIZING THE UTILITY OF THE NATIONAL REGISTRY FOR FSHD RESEARCH AND TRIAL RECRUITMENTFUNDING PROVIDED FOR ALL THREE YEARS. DR. RABI TAWIL. 5) 10/10/2016 UNIV. OF WASHINGTON $52,765.00 UW STUDY - DR. LEO WANGCLINICAL STUDY USING MRI TO MEASURE IMMUNE RESPONSE. INVESTIGATOR DR. LEO WANG.6) 10/23/2016 UNIV. OF MASS. $32,090.00 CHARLIE EMERSON GRANTA CELL CULTURE MODEL OF INNATE IMMUNITY FOR FSHD7) 10/25/2016 KENNEDY KRIEGER INSTITUTE $77,604.00 K. WAGNER STUDYHISTOCHEMICAL AND MORPHOMETRIC ANALYSIS OF FSHD BICEPS8) 10/24/2016 ENMC $4,500.00 FOR ENMC CONFERENCE/TRAVEL GRANT FOR 2 PARTICIPANTS 1686 PUBLIC EDUCATION AND AWARENESS 370816 true true false false false false false false false false false false false false false false false false false false false false false true false false true false true false false false false false false false false true false false false false false false false false false true 2 0 true 1 true false false false false true true false X 24 16 true false false false false false false true true false false true false true true false false true false WA X X LYNN COLELLA 4258278954 13001 176TH PL NE REDMOND WA 98052 TERESA COLELLA PRESIDENT 20.00 0.00 X X 0 0 0 SANDRA EACKER VPBANKING 1.00 0.00 X 0 0 0 SUSAN BRAUN SECRETARY AUCTION TEAM 2.00 0.00 X X 0 0 0 LYNN COLELLA TREASURERBOOKKEEPER 2.00 0.00 X 0 0 0 LYNN FISCHER MEMBER AT LARGE 2.00 0.00 X 0 0 0 RICHARD COLELLA MEMBER AT LARGE 10.00 0.00 X 0 0 0 BRADLEY H BAGSHAW VICE PRESIDENT 2.00 0.00 X X 0 0 0 TAI FUNG TREASURER 2.00 0.00 X X 0 0 0 GEORGE SHAW SECRETARY 2.00 0.00 X X 0 0 0 ABBI L ENGEL MEMBER AT LARGE 10.00 0.00 X 9231 0 0 SCOTT MICHELSON MEMBER AT LARGE 2.00 0.00 X 0 0 0 GREGORY BLOCK MEMBER AT LARGE 2.00 0.00 X 0 0 0 AMANDA RICKARD MEMBER AT LARGE 2.00 0.00 X 0 0 0 KELLI IMLAY MEMBER AT LARGE 2.00 0.00 X 0 0 0 JACQUI DAVIS MEMBER AT LARGE 2.00 0.00 X 0 0 0 KALYNN DIBBLE MEMBER AT LARGE 2.00 0.00 X 0 0 0 PATRICIA GRAHAM MEMBER AT LARGE 2.00 0.00 X 0 0 0 DEBORAH SHIELDS MEMBER AT LARGE 2.00 0.00 X 0 0 0 BRIAN COLELLA MEMBER AT LARGE 2.00 0.00 X 0 0 0 DIANA SHAW MEMBER AT LARGE 2.00 0.00 X 0 0 0 PETE COLELLA MEMBER AT LARGE 2.00 0.00 X 0 0 0 BILL HERZBERG MEMBER AT LARGE 2.00 0.00 X 0 0 0 JUDY MARANTZ-HERZBERG MEMBER AT LARGE 2.00 0.00 X 0 0 0 DIANE COOK MEMBER AT LARGE 2.00 0.00 X 0 0 0 9231 0 0 0 true false false 217878 222661 64715 440539 416 416 116666 217878 141010 -24344 -24344 303 303 416611 0 0 -23928 311448 311448 4500 4500 5984 5984 1848 1848 875 875 21785 21785 1686 1686 571 571 598 598 593 593 22972 22972 MERCHANT SERVICE AND BANK 6255 6255 LICENSES AND PERMITS 492 492 379607 370816 2536 6255 49890 61607 474805 510486 13470 538165 572093 3147 71 3147 71 X 535018 572022 535018 572022 538165 572093 37004 0 X false false false X 345046 416302 616658 631237 557205 2566448 345046 416302 616658 631237 557205 2566448 624283 1942165 1196 689 384 757 416 3442 538 794 29 1361 2571251 0.75530 0.88990 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED AUCTION 334544 217878 116666 48396 2882 89732 334544 217878 116666 48396 2882 89732 141010 -24344 true UNIVERSITY OF WASHINGTON 1400 NE CAMPUS PARKWAY SEATTLE WA 98195 916001537 1151 69265 RESEARCH STUDIES UNIVERSITY OF ROCHESTER 601 ELMWOOD AVE ROCHESTER NY 14642 160743209 501C3 17416 RESEARCH STUDIES UNIVERSITY OF MARYLAND 4100 CHESAPEAKE BUILDING COLLEGE PARK MD 207423135 526002033 1151 50000 RESEARCH STUDIES UNIVERSITY OF MASSACHUSETTS 55 LAKE AVE N WORCESTER MA 01655 043167352 501C3 32090 RESEARCH GRANT KENNEDY KRIEGER INSTITUTE INC 707 NORTH BROADWAY BALTIMORE MD 212051832 316056230 501C3 77604 RESEARCH GRANT UNIVERSITY OF MINNESOTA PO BOX 1450 MINNEAPOLIS MN 554855957 416007513 170C1 65401 Monitoring procedures (Part I, line 2) THE ORGANIZATION REQUIRES REPORTS FROM ALL GRANT RECIPIENTS. IN ADDITION, THE ORGANIZATION HAS A CONSULTING SCIENTIFIC ADVISORY BOARD THAT ASSISTS IN SELECTING GRANT RECIPIENTS AND EVALUATING RESULTS. X X false false false false false false false false false JUDY MARANTZ-HERZBERG MEMBER AT LARGE DIANE COOK MEMBER AT LARGE X 45 7263 STATED VALUE X 716 STATED VALUE X 20842 STATED VALUE X 7 1225 STATED VALUE X 82 9356 STATED VALUE X ENTERTAINMENT 16 3699 STATED VALUE X TRAVEL 31 16555 STATED OR TAX VALUE X SERVICES 13 TAX VALUE X RESTAURANTS 42 5059 STATED VALUE false false false Officer directors etc family relationship Part VI line 2 TERRY COLELLA AND RICHARD COLELLA ARE RELATED BY MARRIAGE.BILL AND JUDY HERZBERG ARE RELATED BY MARRIAGE.GEORGE SHAW AND LYNN FISCHER ARE RELATED BY MARRIAGE.LYNN COLELLA, PETE COLELLA AND RICK COLELLA ARE SIBLINGS.BRIAN COLELLA IS A CHILD OF TERRY AND RICK COLELLADIANA SHAW AND GEROGE SHAW ARE SIBLINGS. Form 990 governing body review Part VI line 11 FORM 990 IS SUBMITTED TO THE BOARD OF DIRECTORS FOR REVIEW BEFORE FINAL SUBMISSION. Governing documents etc available to public Part VI line 19 ANY GOVERNING DOCUMENT MAY BE MADE AVAILABLE UPON REQUEST. SOME ADDITIONAL DOCUMENTS ARE ALSO MADE AVAILABLE THROUGH THE ORGANIZATIONS WEB SITE.