2017-03-23T12:31:43+00:00 2016-06-30 521798441 WOLFE & FIEDLER PA 634 FREDERICK RD STE 1 CATONSVILLE MD 21228 990 2015-07-01 521704978 CUREPSP INC CURE 3472942893 30 EAST PADONIA ROAD 201 TIMONIUM MD 21093 DAVID KEMP PRESIDENT 3472942893 2017-03-23 true JOHN R FIEDLER P00147612 4107470789 2017-03-23 2015 2021-01-29 14:40:06Z DAVID KEMP 30 EAST PADONIA ROAD LUTHERVILLE MD 21093 3719855 false X WWW.CUREPSP.ORG X 1990 MD INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. 17 17 19 100 0 2521513 3119335 101521 12746 5459 186164 -2494 2720423 3223821 530195 477501 0 881207 1165951 0 522075 1063448 1508769 2474850 3152221 245573 71600 3418875 3162762 1258878 936756 2159997 2226006 X INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. false false 837618 477501 GOALS OF THE RESEARCH PROGRAM: CUREPSP ADVANCES THE UNDERSTANDING AND SEEKS TREATMENT AND CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP) AND RELATED "PRIME OF LIFE" NEURODEGENERATIVE DISEASE BY FUNDING RESEARCH FOCUS ON (A) IDENTIFYING THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, (B) IDENTIFYING BIOMARKERS AND CLINICAL TESTS THAT AID IN DIAGNOSIS, (C) SUPPORTING RESEARCH TO PREVENT, TREAT OR REVERSE DISEASES PROGRESSION, AND (D) AIDING PHARMACEUTICAL COMPANIES AND RESEARCH INSTITUTIONS IN CONDUCTION CLINICAL TRIALS THROUGH ITS PATIENT ENGAGEMENT PROGRAM. 701207 GOALS OF PROGRAMS & EDUCATION: 1. CUREPSP SERVES PATIENTS, FAMILIES AND OTHER CAREGIVERS MANAGING PRIME OF LIFE NEURODEGENERATION TO IMPROVE QUALITY OF LIFE AND PATIENT OUTCOMES. CUREPSP DOES THIS THROUGH FAMILY CONFERENCES, CAREGIVER RETREATS, VOLUNTEER DEVELOPMENT, PROFESSIONAL COLLABORATION, ONLINE AND PRINTED RESOURCES AND SOCIAL MEDIA. CUREPSP PROVIDES SCIENTIFIC AND CLINICAL RESOURCES AID IN DIAGNOSIS AND TREATMENT OF PSP AND RELATED DISEASES. 504471 GOALS OF THE COMMUNICATION AND AWARENESS PROGRAM: CUREPSP PROVIDES EDUCATION AND AWARENESS THROUGH ONLINE RESOURCES, PRINTED MATERIALS AND PROFESSIONAL CONFERENCE ATTENDANCE TO NEUROLOGISTS AND RELATED HEALTHCARE PROFESSIONALS TO MAKE THEM BETTER ABLE TO PROVIDE ACCURATE DIAGNOSES AND TO ENCOURAGE THEM TO DIRECT PATIENTS INTO CLINICAL TRIALS. CUREPSP EDUCATES THE GENERAL PUBLIC ABOUT PRIME OF LIFE NEURODEGENERATION THROUGH PUBLICITY, SOCIAL MEDIA, EVENTS, WEBSITE AND ADVERTISING IN ORDER TO PROVIDE UNDERLYING SUPPORT FOR ITS PROGRAMS. 200927 GOALS OF THE PATIENT ENGAGEMENT PROGRAM: ACCELERATING CLINICAL TRIALS TO DEVELOP TREATMENTS AND DISCOVER CURES FOR RARE DISEASES. 200927 2244223 true true false false false false false false false true true false false false false false true false false false false true false false true false false true false true false false false false false false false true false false false false true false false false false true 19 0 19 true false false false false false false false false false false false false X 17 17 true true false false false false false true true false false false true true true true true true true false AL AK AR CA CO CT DC FL GA HI IL KS KY LA MD ME MA MI MN MS MO NV NH NJ NM NY NC ND OH OK OR PA RI SC TN TX UT VA WA WV WI X X DAVID KEMP 3472942893 30 E PADONIA ROAD TIMONIUM MD 21093 EVERETT COOK VICE CHAIR 2.00 X X 0 0 0 PAUL FREEMAN DIRECTOR 2.00 X 0 0 0 ADAM MURPHY DIRECTOR 2.00 X 0 0 0 ILEEN MCFARLAND DIRECTOR 2.00 X 0 0 0 YVETTE BORDELON DIRECTOR 2.00 X 0 0 0 HEATHER CIANCI DIRECTOR 2.00 X 0 0 0 LAWRENCE GOLBE DIRECTOR 2.00 X 0 0 0 AMY BRANCH DIRECTOR 2.00 X 0 0 0 BRENDAN DIXON SECRETARY 2.00 X X 0 0 0 GEORGE JANKIEWICZ TREASURER 2.00 X X 0 0 0 STEPHEN GOLDMAN DIRECTOR 2.00 X 0 0 0 WILLIAM MCFARLAND CHAIR 2.00 X X 0 0 0 JEFFREY FRIEDMAN DIRECTOR 2.00 X 0 0 0 JIM MCCLELLAN DIRECTOR 2.00 X 0 0 0 JAMES SHEA DIRECTOR 2.00 X 0 0 0 BURTON BENJAMIN DIRECTOR 2.00 X 0 0 0 DAVID KEMP PRESIDENT 40.00 X 193846 0 0 RICHARD ZYNE FORMER PRESI X 108159 0 0 302005 2 true true false 275653 2843682 3119335 PATIENT ENGAGEMENT PROGRAM 72121 72121 SPONSORSHIPS 29400 29400 101521 15298 15298 468940 473169 5610 -4229 -5610 -9839 -9839 10764 275653 17255 -6491 -3330 OTHER 3997 3997 3997 3223821 95679 11968 367501 367501 110000 110000 193846 123030 36317 34499 839942 533097 157356 149489 8887 5474 1750 1663 49932 30739 9845 9348 73344 45180 14441 13723 64719 25457 39262 26763 26763 292734 196484 96250 285851 282513 3338 207635 107239 5815 94581 65502 36918 7576 21008 101737 57834 17446 26457 19407 3046 16361 144404 144404 10756 6561 2151 2044 8509 5191 1702 1616 CORPORATE/DONOR DEVELOP 31750 31750 BANK & PAYROLL FEES 29456 3127 3719 22610 MEETINGS & BOARD EXPENSES 26521 3558 22963 SUPPORT GROUPS 24360 24360 168665 132510 19118 17037 3152221 2244223 385923 522075 1420212 1064908 1476504 1475532 3700 3850 12850 13104 83266 34854 121963 85104 32016 36859 383269 388290 7058 145365 3418875 3162762 296387 169646 962491 767110 1258878 936756 X 1555625 1311405 223545 542483 380827 372118 2159997 2226006 3418875 3162762 71600 -5591 X false true X true false X 2265656 1583318 3115827 2521513 3119335 12605649 142536 141364 210083 212132 105518 811633 2408192 1724682 3325910 2733645 3224853 13417282 30500 167351 1495316 956514 50696 2700377 30500 167351 1495316 956514 50696 2700377 10716905 11443 8418 10945 12746 15298 58850 11443 8418 10945 12746 15298 58850 2419635 1733100 3336855 2746391 3240151 13476132 0.79530 0.76130 0.00000 0.01000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 380827 -5591 3118 372118 383411 529 3113 380827 351169 35179 2937 383411 325369 29537 3737 351169 341164 -12480 3315 325369 false false 121963 85104 36859 36859 3218230 -5591 -5591 3223821 3223821 3152221 3152221 3152221 SCHEDULE D, PAGE 2, PART V, LINE 4 INCOME IS USED TO SUPPORT PSP RESEARCH BY STUDENTS AUSTRALIA RESEARCH 100000 CHECK GERMANY CONFERNCE SUPPORT 10000 CHECK false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 INVESTIGATORS ARE REQUIRED TO PROVIDE TWO PROGRESS REPORTS DURING THE TERM OF THE GRANT. THE PROGRESS REPORT IS SENT FOR REVIEW AND APPROVAL TO THE VICE PRESIDENT OF SCIENTIFIC AFFAIRS AND PAYMENT MAY BE RELEASED ONLY AFTER APPROVAL HAS BEEN GIVEN. IF PROGRESS REPORTS ARE NOT DETERMINED TO BE SATISFACTORY,PAYMENT MAY BE WITHHELD UNTIL THE INVESTIGATOR CAN PROVIDE A SATISFACTORY REPORT. SCHEDULE F, PAGE 5, PART V FINANCIAL STATMENT WAS PREPARED ON ACCRUAL METHOD BOOT/SCOOT 42910 42910 MARCO ISLAND WA 27015 23490 3525 1466 5591 8 62043 54804 7239 965 3080 1248 1744 131968 121204 10764 965 3080 2714 7335 14094 -3330 true UNIVERSITY OF CALIFORNIA 1855 FOLSOM STREET SAN FRANCISCO CA 94143 946036493 501C3 100000 PRECLINICAL RESEARCH COLUMBIA UNIVERSITY 615 WEST 131ST STREET NEW YORK NY 10027 135598093 501C3 75000 PRECLINICAL RESEARCH BOSTON UNIVERSITY 25 BUICK STREET BOSTON MA 022151301 042103547 501C3 100000 PRECLINICAL RESEARCH MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 322241865 593337028 501C3 92501 PRECLINICAL RESEARCH X true false false false false false false false false DAVID KEMP PRESIDENT 193846 193846 RICHARD ZYNE FORMER PRESIDENT 108159 108159 SCHEDULE J, PAGE 1, PART I, LINE 4 RICHARD ZYNE 108,159 0 0 WOLFE FIEDLER PA CPA 31500 ACCOUNTING & CONSULT false FORM 990 - ORGANIZATION'S MISSION INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. FORM 990, PAGE 2, PART III, LINE 4D GOALS OF THE PATIENT ENGAGEMENT PROGRAM: ACCELERATING CLINICAL TRIALS TO DEVELOP TREATMENTS AND DISCOVER CURES FOR RARE DISEASES. FORM 990, PAGE 6, PART VI, LINE 2 WILLIAM MCFARLAND ILEEN MCFARLAND CHAIR DIRECTOR SPOUSAL FORM 990, PAGE 6, PART VI, LINE 3 ORGANIZATION CONTRACTED CPA TO SERVE AS OUTSOURCE CFO FORM 990, PAGE 6, PART VI, LINE 11B 990 IS PROVIDED TO THE FINANCE COMMITTEE FOR REVIEW AND COMMENTS BEFORE FILING FORM 990, PAGE 6, PART VI, LINE 12C EXECUTIVE DIRECTOR REVIEWS FORMS FORM 990, PAGE 6, PART VI, LINE 15A BOARD DISCUSSED PERFORMANCE AND USES SALARY DATA TO DETERMINE. PERIODICAL LY THE BOARD ALSO OBTAINS AN INDEPENDENT COMPENSATION STUDY TO DETERMINE S ALARY LEVELS. FORM 990, PAGE 6, PART VI, LINE 15B PRESIDENT-CEO PERFORMS ANNUAL EMPLOYEE REVIEWS AND APPROVES INCREASES WITH IN THE SCOPE OF AN ANNUAL BUDGET. THE ORGANIZATION PERIODICALLY OBTAINS S ALARY REVIEWS FROM AN OUTSIDE CONSULTANT TO VERIFY THAT THE SALARIES ARE W ITHIN A COMPETITIVE RANGE. FORM 990, PAGE 6, PART VI, LINE 17 LOUISIANA, MARYLAND, MAINE, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSISSIPPI, MISSOURI, NEVADA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEW YORK, NORTH CAROLINA, NORTH DAKOTA, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, TEXAS, UTAH, VIRGINIA, WASHINGTON, WEST VIRGINIA, WISCONSIN FORM 990, PAGE 6, PART VI, LINE 19 UPON REQUEST PATIENT ENGAGEMENT PROGRAM LLC 404 5TH AVENUE 3RD FLOOR NEW YORK NY 10018 474679085 RESEARCH NY 72121 18649 CURE PSP