2017-02-02T15:36:07-06:00 2016-06-30 113266576 GRASSI & CO CPA'S PC 50 JERICHO QUADRANGLE JERICHO NY 11753 990 2015-07-01 133277408 ALZHEIMER'S DISEASE AND RELATED DISORDERS NEW YORK CITY INC ALZH 6467442900 360 LEXINGTON AVENUE 4TH FL NEW YORK NY 10017 LOU-ELLEN BARKAN PRESIDENT AND CEO 6467442900 2017-01-30 1 DAVID ROTTKAMP P01303468 5162563500 2015 2021-01-29 14:40:06Z CARINGKIND LOU-ELLEN BARKAN 360 LEXINGTON AVE 4TH FL NEW YORK NY 10017 10644171 0 X WWW.CARINGKINDNYC.ORG X 1985 NY THE MISSION OF CARINGKIND IS TO CREATE, DELIVER, AND PROMOTE COMPREHENSIVE AND COMPASSIONATE CARE AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ALZHEIMER'S DISEASE AND RELATED DIMENTIAS, AND TO ELIMINATE ALZHEIMER'S DISEASE THROUGH THE ADVANCEMENT OF RESEARCH. CARINGKIND ACHIEVES ITS MISSION BY PROVIDING PROGRAMS AND SERVICES FOR INDIVIDUALS WITH DEMENTIA, THEIR FAMILY AND PROFESSIONAL CAREGIVERS; INCREASING PUBLIC AWARENESS; COLLABORATING WITH RESEARCH CENTERS; AND INFORMING PUBLIC POLICY THROUGH ADVOCACY. 27 27 73 520 13820 10109 7915999 6883542 362979 1529926 44957 39784 -102166 230626 8221769 8683878 279928 306770 0 0 4649809 5162853 40000 46000 1394660 3676047 4676523 8645784 10192146 -424015 -1508268 10655538 8676636 2971245 2506571 7684293 6170065 X TO CREATE, DELIVER, AND PROMOTE COMPREHENSIVE AND COMPASSIONATE CARE AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, AND TO ELIMINATE ALZHEIMER'S DISEASE THROUGH THE ADVANCEMENT OF RESEARCH. 0 0 1308051 75000 278431 WORKSHOPS/CONFERENCES/SEMINARS - PROVIDES A VARIETY OF EDUCATIONAL SEMINARS OFFERED IN COMMUNITIES. 1583928 486451 PUBLIC AWARENESS: ALZHEIMER'S IS A PROGRESSIVE, DEGENERATIVE, AND ULTIMATELY FATAL DISEASE. TOO FEW AMERICANS UNDERSTAND THE CURRENT AND FUTURE ECONOMIC IMPACT OF ALZHEIMER'S. ALREADY MORE THAN 5 MILLION AMERICANS ARE LIVING WITH ALZHEIMER'S AND MORE THAN 15 MILLION PEOPLE ARE PROVIDING UNPAID CARE AND SUPPORT. THIS MASSIVE GROUP IS IN NEED OF INFORMATION AND RESOURCES. CARINGKIND HAS INVESTED IN EDUCATION CAMPAIGNS AND INITIATIVES TO INCREASE KNOWLEDGE ABOUT ALZHEIMER'S DISEASE AND AWARENESS OF THE ORGANIZATION AS THE CENTER OF HELP AND HOPE. KEY MESSAGES INCLUDE THE IMPORTANCE OF EARLY DETECTION, RESOURCES FOR PEOPLE WITH ALZHEIMER'S AND THEIR FAMILIES, AND THE SOCIETAL IMPACT OF THE DISEASE. MILLIONS OF CONSTITUENTS ARE ENGAGED TO EDUCATE THEIR COMMUNITIES AND WORKPLACES. 984432 6750 59272 SOCIAL WORK SERVICES: IMPROVES THE AFFECTED INDIVIDUAL AND THEIR CAREGIVER'S QUALITY OF LIFE AND DECREASES THE STRESSFUL IMPACT OF ALZHEIMER'S AND DEMENTIA. SOCIAL WORKERS IDENTIFY AREAS OF NEED AND PROVIDE ASSISTANCE AND PSYCHOSOCIAL SUPPORT THROUGH EDUCATION ABOUT THE DISEASE AND SYMPTOM MANAGEMENT, PROBLEM SOLVING, PLANNING FOR FUTURE NEEDS, AND LINKAGES WITH RESOURCES, PARTICULARLY DURING TRANSITIONAL OR CRISIS SITUATIONS. 3595210 225020 705772 1)SUPPORT GROUPS: PROVIDES SUPPORT GROUPS FOR CAREGIVERS AND PERSONS WITH THE DISEASE OFFERED IN A VARIETY OF LOCATIONS TO MEET THE NEEDS OF DIVERSE COMMUNITIES.2)SAFETY SERVICES: PROVIDES NATIONWIDE PROGRAMS, SUCH AS THE WANDERER'S SAFETY PROGRAM, WHICH ADDRESS THE SAFETY NEEDS OF PERSONS WITH THE DISEASE AND THEIR CAREGIVERS.3)EARLY STAGE SERVICES: ADDRESSES THE UNIQUE NEEDS OF INDIVIDUALS IN THE EARLY STAGES OF ALZHEIMER'S OR A RELATED DEMENTIA. CARINGKIND ADDRESSES EARLY STAGE NEEDS THROUGH EDUCATION PROGRAMS, SUPPORT GROUPS AND ENGAGEMENT OPPORTUNITIES DESIGNED TO HELP INDIVIDUALS AND FAMILIES COPE WITH THE DIAGNOSIS AND EMPOWER THEM TO MAKE DECISIONS REGARDING THEIR FUTURE AND MAKE THE MOST OF LIFE FOLLOWING THEIR DIAGNOSIS.4)PUBLIC POLICY: CARINGKIND ADVOCATES FOR PUBLIC POLICIES AIMED AT ADVANCING RESEARCH TOWARDS BETTER THERAPIES, DETECTION, AND METHODS OF PREVENTION AND ULTIMATELY A CURE, AS WELL AS FOR BETTER CARE AND RESOURCES, AND HEALTH AND LONG-TERM COVERAGE, TO ENSURE HIGH QUALITY COST EFFECTIVE CARE FOR PEOPLE WITH ALZHEIMER'S DISEASE AND THEIR FAMILIES. POLICY ACTIVITIES ALSO INCLUDE COLLABORATING WITH OTHER ORGANIZATIONS TO IMPROVE QUALITY CARE AND RAISE AWARENESS OF KEY ISSUES. 5)INFORMATION AND REFERRAL: PROVIDES SUPPORT AND INFORMATION ABOUT ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, PROGRAMS AND SERVICES PROVIDED BY THE ORGANIZATION, AND COMMUNITY RESOURCES THROUGH A 24/7 TOLL FREE HELPLINE AS WELL AS OUR WEBSITE. 6)ALL OTHER PROGRAM SERVICES: A)HEALTHCARE OUTREACH; B)PALLIATIVE CARE; C)CONNECT2CULTURE D)SPECIAL ASSISTANCE 3595210 225020 705772 7471621 1 1 0 1 0 0 0 0 0 1 1 1 0 1 1 1 1 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 58 0 1 73 1 1 1 0 0 0 0 1 1 0 0 0 0 X 27 27 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NY X X STEPHEN MAGGIO 6467442903 360 LEXINGTON AVENUE 4TH FL NEW YORK NY 10017 STEPHEN P CASPER CO-CHAIRMAN 1.20 X X 0 0 0 JOHN LATHAM CO-CHAIRMAN 1.10 X X 0 0 0 BENJAMIN J JENKINS CO-CHAIRMAN 1.20 X X 0 0 0 SHARON KILMER TREASURER 0.60 X X 0 0 0 PAULINE YEUNG-HA SECRETARY 0.30 X X 0 0 0 ELVIRA BISIGNANO DIRECTOR 0.30 X 0 0 0 WILLIAM BRACHFELD DIRECTOR 0.10 X 0 0 0 STEVE BOXER DIRECTOR 0.20 X 0 0 0 ARI F COHEN DIRECTOR 0.20 X 0 0 0 DOUGLAS COWIESON DIRECTOR 0.10 X 0 0 0 MARIANNE DZIUBA FIORE DIRECTOR 0.50 X 0 0 0 LORI OSCHER FRIEDMAN DIRECTOR 0.30 X 0 0 0 NATHAN HALEGUA DIRECTOR 0.50 X 0 0 0 JON HENES DIRECTOR 0.40 X 0 0 0 PETER HILL DIRECTOR 0.40 X 0 0 0 JEFFREY JONES DIRECTOR 0.40 X 0 0 0 LINDA LAGORGA DIRECTOR 0.30 X 0 0 0 J FRANCIS LAVELLE DIRECTOR 0.10 X 0 0 0 WAYNE MILLER DIRECTOR 0.20 X 0 0 0 AARON MARKS DIRECTOR 0.30 X 0 0 0 ABRAHAM PODOLSKY DIRECTOR 0.10 X 0 0 0 MIKE SCHNITZER DIRECTOR 0.40 X 0 0 0 ANNE MEBRIDE SCHREIBER DIRECTOR 0.30 X 0 0 0 LOU SALERNO DIRECTOR 0.10 X 0 0 0 ELAINE THOMAS DIRECTOR 0.20 X 0 0 0 DAVID WEINBERG DIRECTOR 0.30 X 0 0 0 MARK ZURACK DIRECTOR 0.30 X 0 0 0 ROBERT C DINERSTEIN DIRECTOR 0.20 X 0 0 0 CRAIG MEDWICK DIRECTOR 0.20 X 0 0 0 LOU-ELLEN BARKAN PRESIDENT & CEO 43.00 X 285260 0 47304 STEPHEN A MAGGIO SENIOR VICE PRESIDENT & CFO 34.00 X 133753 0 22365 JED A LEVINE EXECUTIVE VP, DIRECTOR OF PROGRAMS & SERVICES 46.00 X 182112 0 24602 CAROL BERNE SENIOR VP OF DEVELOPMENT DIRECTOR OF LEADERSHIP 45.00 X 185482 0 25934 PEGGY CHU SENIOR VP, CHIEF ADMINISTRATIVE OFFICER 44.00 X 115078 0 21955 MATTHEW L KUDISH SENIOR VP OF CAREGIVER SERVICES 45.00 X 103419 0 18421 1005104 0 160581 6 0 1 0 BEMPORAD BARANOWSKI INC 20 JAY STREET SUITE 1012 BROOKLYN NY 11201 BRAND AND INNOVATION CONSULTING 200000 ANN WYATT 116 PINEHURST C54 NEW YORK NY 10033 PALLIATIVE CARE PROJECT CONSULTING 104253 2 2310470 4573072 106673 6883542 WORKSHOPS/CONFERENCES/SEMINARS 624100 278431 278431 CARE CONSULTATION 624100 59272 59272 INFORMATION AND REFERRAL 624100 53443 53443 SUPPORT GROUPS 624100 48624 48624 SAFETY SERVICES 624100 35518 35518 1054638 1054638 1529926 48735 48735 1676088 1685039 -8951 -8951 -8951 330030 2310470 275254 54776 54776 REVENUE EARNED ON SHARED FUNDRAIS 900099 1014786 1014786 LESS: NATIONAL'S PORTION OF SHARE 900099 -859014 -859014 20078 13820 6258 175850 8683878 1529926 13820 256590 8000 8000 298770 298770 1151043 544902 332892 273249 3048506 2244219 424073 380214 165997 110246 29921 25830 469967 312128 84710 73129 327340 217402 59003 50935 96130 96130 36198 36198 46000 46000 988181 902651 24870 60660 442831 438602 645 3584 656430 385675 31122 239633 1355202 1074253 136994 143955 64661 44378 8018 12265 269149 255151 3480 10518 451767 366583 41804 43380 31318 21429 5255 4634 RESEARCH PAYMENTS TO NA 168077 168077 MISCELLANEOUS 91127 55843 9050 26234 STAFF DEVELOPMENT 18402 16262 1700 440 CLIENT SERVICES 7050 7050 10192146 7471621 1325865 1394660 X 1181898 427951 0 753947 501 501 1996112 1978953 870335 401143 104776 1108187 31139 6169 213566 237108 5343777 2775405 2822426 2568372 2254547 921499 1767644 838139 594492 616565 10655538 8676636 458477 455358 79550 110850 2433218 1940363 2971245 2506571 X 4736300 4017811 2686898 1891119 261095 261135 7684293 6170065 10655538 8676636 -1508268 -5960 0 X X 0 1 X 1 0 X 7905719 6103017 6663831 7915999 6883542 35472108 7905719 6103017 6663831 7915999 6883542 35472108 35472108 117734 191547 72565 53450 48735 484031 44700 54250 14902 11605 13820 139277 337433 347765 393912 491719 336288 1907117 38002533 2428292 0.93340 0.94020 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: SPECIAL EVENT REVENUE - 2011 AMOUNT: $ 306,446. 2012 AMOUNT: $ 323,065. 2013 AMOUNT: $ 368,555. 2014 AMOUNT: $ 465,602. 2015 AMOUNT: $ 330,030. OTHER INCOME - 2011 AMOUNT: $ 30,987. 2012 AMOUNT: $ 24,700. 2013 AMOUNT: $ 25,357. 2014 AMOUNT: $ 26,117. 2015 AMOUNT: $ 6,258. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 13 0 0 1 201025 0 1 860 201898 0 PART II-B, LINE 1: PAID LOBBYIST APPROACHES VARIOUS NYC COUNCILMEMBERS AND PARTICIPATES IN STATE LOBBYING. EACH YEAR, ORGANIZATION'S STAFF AND VOLUNTEERS ATTEND A PUBLIC POLICY FORUM IN WASHINGTON AND ON LOBBY DAY, A TEAM OF ORGANIZATION'S STAFF AND VOLUNTEERS GO TO ALBANY, NEW YORK, TO LOBBY ON BEHALF OF CARINGKIND. IN ADDITION, THE ORGANIZATION WAS A MEMBER OF THE COALITION OF NYS ALZHEIMER'S CHAPTERS, INC., WHO CONDUCTS PUBLIC POLICY AND GRANT ACTIVITIES WITHIN NEW YORK STATE. 261095 40 261135 261042 53 261095 260990 52 261042 260946 44 260990 260808 138 260946 1.00000 0 0 4122588 1997509 2125079 1221189 777896 443293 2568372 CERTIFICATES OF DEPOSIT 838139 F 838139 DUE FROM ALZHEIMER'S ASSOCIATION NATIONAL OFFICE 616565 616565 ANNUITY PAYMENT OBLIGATIONS 23983 DEFERRED RENT 1369267 DUE TO ALZHEIMER'S ASSOCIATION NATIONAL OFFICE 547113 1940363 X 8677918 -5960 -5960 8683878 0 8683878 10192146 0 10192146 0 10192146 PART V, LINE 4: THE ORGANIZATION'S ENDOWMENT CONSISTS OF FOUR INDIVIDUAL DONOR-RESTRICTED ENDOWMENT FUNDS ESTABLISHED TO CREATE AND PROMOTE COMPREHENSIVE AND HUMANE CARE AND TREATMENT FOR PERSONS WITH ALZHEIMER'S DISEASE AND RELATED DISORDERS, AND TO PROVIDE SUPPORT FOR THEIR FAMILIES AND PROFESSIONAL CAREGIVERS. PART X, LINE 2: CARINGKIND ADOPTED THE PROVISIONS PERTAINING TO UNCERTAIN TAX PROVISIONS OF FASB ASC TOPIC 740, INCOME TAXES, AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. CARINGKIND IS SUBJECT TO ROUTINE AUDITS BY TAXING JURISDICTIONS; HOWEVER, THERE ARE CURRENTLY NO AUDITS FOR ANY TAX PERIODS IN PROGRESS. CARINGKIND BELIEVES IT IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS PRIOR TO 2013. X X X X X X 1 KLO EVENTS LLC 1910 FOX HOLLOW LANE EASTON PA 18040 ALL FUND RAISING SERVICES - OCTOBER 2015 & 2016 CARINGKIND A 0 1422120 46000 1376119 1422120 46000 1376119 NY GALA 1351429 1105908 245521 132600 MARATHON 577063 577063 62278 10 712008 627499 84509 80376 2640500 2310470 330030 275254 275254 54776 SCHEDULE G, PART I, LINE 2B, COLUMN (V) PAYMENTS TO KLO EVENTS WERE FOR PROFESSIONAL FUNDRAISING SERVICES ONLY AND DID NOT INCLUDE PAYMENT OF OTHER FUNDRAISING EXPENSES. 1 CENTRO GERONTOLOGICO LATINO 133631719 501(C)(3) 5000 FMV SUPPORT CONFERENCE FOR LATINO ELDERS & THEIR FAMILIES VARIOUS GRANTS UNDER 5000 3000 FMV VARIOUS 18 WANDERER'S SAFETY PROGRAM-INDIVIDUAL GRANTS UNDER $5,000 1751 110544 FAIR MARKET VALUE TRAINING STIPENDS UNDER $5,000 250 75000 FAIR MARKET VALUE FINANCIAL ASSISTANCE PROVIDED TO FAMILY AND OTHER CAREGIVERS 79 113226 FAIR MARKET VALUE PART I, LINE 2: ALL FINANCIAL ASSISTANCE AWARDS GIVEN TO INDIVIDUALS OR ORGANIZATIONS ARE REVIEWED ON A REGULAR BASIS. PAYMENTS ARE REVIEWED AND APPROVED BY THE RESPONSIBLE MANAGER(S) TO ENSURE PROPER JUSTIFICATION. THERE ARE NO INDIVIDUAL GRANTS OVER $5,000. X X X X 0 0 0 0 0 0 0 0 0 LOU-ELLEN BARKAN PRESIDENT & CEO 270260 0 15000 0 0 0 25446 0 21858 0 332564 0 0 0 STEPHEN A MAGGIO SENIOR VICE PRESIDENT & CFO 133753 0 0 0 0 0 17072 0 5293 0 156118 0 0 0 JED A LEVINE EXECUTIVE VP, DIRECTOR OF PROGRAMS & 182112 0 0 0 0 0 19052 0 5550 0 206714 0 0 0 CAROL BERNE SENIOR VP OF DEVELOPMENT DIRECTOR OF 170482 0 15000 0 0 0 20455 0 5479 0 211416 0 0 0 X 5 2063 SELLING PRICE X 14 104610 MARKET VALUE 0 1 1 PART I, LINE 32B: THE ORGANIZATION USES "INSURANCE AUTO AUCTIONS" TO PROCESS VEHICLE DONATIONS. FORM 990, PART I, LINE 1 ON DECEMBER 1, 2015, THE ORGANIZATION SEPARATED FROM THE ALZHEIMER'S ASSOCIATION ("NATIONAL"), WHILE RETAINING ITS ORIGINAL LEGAL NAME. AS OF MARCH 1, 2016, THE ORGANIZATION STARTED OPERATING UNDER THE ASSUMED NAME, CARINGKIND. THE SEPARATION RESULTED IN NO CHANGE IN THE VALUE OF NET ASSETS AT THE TIME OF THE SEPARATION. AS A RESULT OF THE SEPARATION, CARINGKIND INCURRED NON-RECURRING COSTS AND EXPENSES TOTALING $749,287, OF WHICH $648,586 WAS RECOGNIZED AS AN EXPENSE AND $100,701 WAS RECOGNIZED AS FIXED ASSETS. FORM 990, PART VI, SECTION A, LINE 2 ARI COHEN AND JOHN LATHAM (DIRECTORS) HAVE A BUSINESS RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11 A DRAFT OF FORM 990 IS DISTRIBUTED TO THE AUDIT COMMITTEE APPROXIMATELY 14 DAYS PRIOR TO THE FILING DATE FOR THEIR REVIEW AND COMMENT. THE AMENDED DRAFT IS THEN SENT TO THE FULL BOARD APPROXIMATELY 7 DAYS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBER PROSPECTS MUST SIGN THE CONFLICT OF INTEREST POLICY, BEFORE THEY ARE INVITED TO JOIN THE BOARD. ADDITIONALLY, ALL CURRENT OFFICERS, DIRECTORS, TRUSTEES AND KEY EMPLOYEES ARE REQUIRED TO SIGN THE POLICY EACH YEAR. THEY ARE ALSO REQUIRED TO DISCLOSE IMMEDIATELY ANY INTERESTS THAT COULD GIVE RISE TO CONFLICTS, SHOULD THESE OCCUR DURING THE YEAR. FORM 990, PART VI, SECTION B, LINE 15 BOARD MEMBERS WERE ASKED TO PROVIDE WRITTEN COMMENT ON THE CEO'S PERFORMANCE. IN ADDITION, ALL STAFF MEMBERS WERE ASKED TO FILL OUT AN EMPLOYEE FEEDBACK SURVEY AROUND ENGAGEMENT THAT ADDRESSED THE WORK ENVIRONMENT AND PERFORMANCE OF ORGANIZATION LEADERSHIP. THE BOARD'S COMPENSATION COMMITTEE AND THE BOARD'S CO-CHAIRS REVIEWED THE RESULTS AND ALSO REVIEWED THE DATA RELATING TO SALARIES OF CEOS OF OTHER SIMILARY SITUATED NON-PROFIT ORGANIZATIONS. BASED ON THE FEEDBACK AND MARKET DATA, THE COMPENSATION COMMITTEE AND BOARD CO-CHAIRS DECIDED ON A RECOMMENDED COMPENSATION AMOUNT FOR THE CEO FOR THE UPCOMING FISCAL YEAR. THE FULL BOARD ADOPTED THE RECOMMENDATION AFTER DISCUSSION IN AN EXECUTIVE SESSION OF THE BOARD IN JUNE. THE SALARIES OF KEY MANAGEMENT EMPLOYEES WERE DETERMINED THROUGH DISCUSSIONS AMONG THE CEO, THE BOARD'S CO-CHAIRS AND THE COMPENSATION COMMITTEE. FORM 990, PART VI, SECTION C, LINE 19 CARINGKIND'S FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC ON THE ORGANIZATION'S WEBSITE. THE CONFLICT OF INTEREST POLICY IS AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED SINCE THE PRIOR YEAR. ALZHEIMER'S DISEASE & RELATED DISORDERS ASSOCIATION INC 225 NORTH MICHIGAN AVE 17TH FL CHICAGO IL 60601 133039601 UTILIZE SERVICES OF THE NATIONAL ORGANIZATION IL 501(C)(3) LINE 9 NO 0 COALITION OF NEW YORK STATE ALZHEIMER'S CHAPTERS INC 435 E HENRIETTA RD ROCHESTER NY 14620 134076596 PUBLIC POLICY ACTIVITIES NY 501(C)(3) LINE 7 NO 0 0 0 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 ALZHEIMER'S DISEASE & RELATED DISORDERS ASSOCIATION INC L 859014 FAIR MARKET VALUE ALZHEIMER'S DISEASE & RELATED DISORDERS ASSOCIATION INC M 1014786 FAIR MARKET VALUE