2017-11-09T09:46:18-06:00 2016-12-31 411504933 CARLSON ADVISORS LLP 7101 NORTHLAND CIRCLE SUITE 123 MINNEAPOLIS MN 55428 990 2016-01-01 481038050 ORGANIC ACIDEMIA ASSOCIATION CORPORATION ORGA 7635591797 9040 DULUTH STREET GOLDEN VALLEY MN 55427 KATHY STAGNI EXECUTIVE DIRECTOR 7635591797 2017-11-08 1 DEA JOHNSON P00187701 7635358150 50.207.197.114 2017-11-08 13:08:57 CS P 6C9B1A35775087DBDB8A6D25ECA509C7F6C27838 B53761FEF430B86974813EC3185EE889E93C1FE4 2016 2021-01-29 14:40:06Z KATHY STAGNI 9040 DULUTH ST MINNEAPOLIS MN 55427 76008 0 X WWW.OAANEWS.ORG X 1991 NV PROVIDE SUPPORT AND INFORMATION TO PROFESSIONALS AND PARENTS DEALING WITH A SET OF INBORN ERRORS OF METABOLISM CALLED ORGANIC ACIDEMIA. 3 3 0 20 0 0 23037 75330 0 0 1 3 1230 605 24268 75938 10350 15000 0 0 0 0 0 0 0 19058 88073 29408 103073 -5140 -27135 51228 29074 1915 367 49313 28707 TO PROVIDE INFORMATION AND SUPPORT TO PARENTS AND PROFESSIONALS DEALING WITH A SET OF INBORN ERRORS OF METABOLISM DISEASES KNOWN AS ORGANIC ACIDEMIA. 0 0 69489 18868 ATTENDED A NOMINAL GROUP MEETING FOR PROPIONIC ACIDEMIA NUTRITIONAL GUIDELINES ON FEBRUARY 26-27, 2016 IN ATLANTA, GA.SPONSORED AND HOSTED THE FOD/OAA INTERNATIONAL METABOLIC CONFERENCE IN DENVER, CO. THIS IS A 1-1/2 DAY CONFERENCE WHERE FAMILIES AND PROFESSIONALS GATHER TO LEARN ABOUT OUR RARE ORGANIC ACID DISORDERS. ATTENDED THE NORD RARE DISEASE SUMMIT IN OCTOBER, 2016 HOSTED BY NORD (NATIONAL ORGANIZATION FOR RARE DISORDERS). 13307 PUBLISHES A NEWSLETTER THREE TIMES A YEAR TO PROVIDE INFORMATION TO PARENTS AND HEALTH PROFESSIONALS ON UPDATES, EDITORIALS AND LETTERS FROM AND FOR AFFECTED FAMILIES. MONITORS PRIVATE/PUBLIC FACEBOOK GROUP WITH OTHER SOCIAL MEDIA PRESENCE ON TWITTER AND INSTAGRAM. 15000 15000 GRANTS PROVIDED FOR MEDICAL RESEARCH ON RARE METABOLIC DISORDERS. 97796 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 MN NV X X KATHY STAGNI 7635591797 9040 DULUTH ST MINNEAPOLIS MN 55427 X MENTA PITRE DIRECTOR 2.00 X 0 0 0 CAY WELCH DIRECTOR 2.00 X 0 0 0 JANA MONACO BOARD LIASON 2.00 X 0 0 0 KATHY STAGNI EXECUTIVE DIRECTOR 15.00 X 0 0 0 0 0 0 0 0 0 0 0 75330 75330 3 3 675 70 605 605 75938 608 0 0 X 15000 15000 1485 1485 91 91 572 51 521 3504 3504 68884 68884 877 877 PRINTING AND REPRODUCTI 5004 5004 TELEPHONE/INTERNET 2303 2303 POSTAGE AND DELIVERY 2300 2300 FAMILY SUPPORT 1832 1832 1221 1221 103073 97796 5277 0 51228 29074 51228 29074 1915 367 1915 367 X 44197 23591 5116 5116 0 49313 28707 51228 29074 -27135 6529 0 X 0 0 0 X 41788 39378 48080 23067 75330 227643 41788 39378 48080 23067 75330 227643 152071 75572 2 1 2 1 3 9 227652 0.33200 0.31300 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 NATIONAL HUMAN GENOME RESEARCH INSTITUTE 5625 FISHERS LN MSC 9418 BETHESDA MD 20892 520858115 15000 MEDICAL RESEARCH ON MMA AND PA FOR DR CHUCK VENDITTI. 1 0 SCHEDULE 1, PART 1, LINE 2 RESEARCH FUNDING GUIDELINES WERE ESTABLISHED IN 2004. GRANT REQUESTS ARE REVIEWED FOR ALIGNMENT WITH PRIMARY PURPOSE. GRANT REQUESTS ARE REVIEWED BY THE MEDICAL ADVISORY BOARD CONSISTING OF APPROXIMATELY 15 MEMBERS. GRANTS REQUIRE A FORMAL AGREEMENT BETWEEN THE OAA RESEARCH FUND AND THE RESEARCH INSTITUTION, REQUIRING A REPORT ON PROGRESS FROM THE RESEACHER. FORM 990, PART VI, SECTION B, LINE 11B BOARD MEMBERS REVIEW AND APPROVE THE TAX RETURN AND SIGN THE STATE OF MINNESOTA ATTORNEY GENERAL FILING. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION PROVIDES FORM 1023, ALL TAX RETURNS AND FINANCIAL STATEMENTS TO INDIVIDUALS OR BUSINESSES UPON REQUEST. FORM 990, PART IX, LINE 24E WEBSITE: PROGRAM SERVICE EXPENSES 1,108. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,108. MISCELLANEOUS: PROGRAM SERVICE EXPENSES 113. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 113.