2017-08-22T14:53:49-05:00 2016-12-31 KPMG LLP 1676 INTERNATIONAL DRIVE McLean VA 22102 990 2016-01-01 912059167 CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC % PRESTON W CAMPBELL MD CYST 3019514422 4550 Montgomery Avenue Suite 1100 N BETHESDA MD 20814 PRESTON CAMPBELL PRESIDENT & CEO 3019514422 2017-08-21 true JG WHITE P01498698 7032868000 2017-08-17 167.68.102.5 54028020172345000002 2017-08-22 P 3E895241A54B985E72EC2743C754C5778BD37633 6F321923765C04EB30ECA77512AF51A673583565 2016 2021-01-29 14:40:06Z X PRESTON W CAMPBELL MD 4550 Montgomery Avenue BETHESDA MD 20814 192669402 false X WWW.CFF.ORG/RESEARCH/CFFT/ X 2000 MD THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. 9 8 50 0 0 0 86230120 138829706 120217 51523824 0 0 37930832 2315872 124281169 192669402 62018896 68673186 0 0 9002193 8094213 0 0 0 53260080 115902003 124281169 192669402 0 85794978 102927707 85794978 102927707 0 0 X THE MISSION OF Cystic Fibrosis Foundation Therapeutics IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF MORE THAN 30,000 PEOPLE IN THE U.S. CURRENTLY, THERE IS NO CURE. false false 117151243 51400000 FUNDING BY CYSTIC FIBROSIS FOUNDATION THERAPEUTICS (CFFT) IN STATE-OF-THE-ART CONTRACTED RESEARCH HAS ACCELERATED PROGRESS TOWARD DEVELOPING NEW CF TREATMENTS AND FINDING A CURE FOR THE DISEASE. BY FUNDING CF DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES AND PROVIDING MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH, AND WITH A SPECIALIZED CF CLINICAL TRIALS NETWORK, CFFT HAS ATTRACTED SIGNIFICANT INDUSTRY INVOLVEMENT IN THE FIGHT AGAINST CF. CFFT ACCOMPLISHES ITS MISSION BY FUNDING LIFE-SAVING RESEARCH TO DISCOVER AND DEVELOP EFFECTIVE THERAPIES FOR PEOPLE WITH CF. CFFT HAS FUNDED HUNDREDS OF MILLIONS OF DOLLARS OF RESEARCH COSTS TO HELP DISCOVER/DEVELOP CF DRUGS AND THERAPIES. THROUGH CFFTS EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS DOUBLED IN THE LAST 30 YEARS, AND RESEARCH TO FIND A CURE IS MORE PROMISING THAN EVER BEFORE. 74169131 68673186 2439696 CFFT SUPPORTS A NATIONAL CLINICAL RESEARCH NETWORK OF NEARLY 80 FOUNDATION-ACCREDITED CARE CENTERS THAT COLLABORATE TO CONDUCT CLINICAL TRIALS, ALLOWING POTENTIAL NEW CF THERAPIES TO MOVE TO LARGER, LATE-STAGE STUDIES MORE QUICKLY. MEDICAL PROGRAMS IN 2016 CONSISTED OF COSTS TO SUPPORT SCIENTIFIC STUDY AND INVESTIGATIONS. 465 GRANTS WERE AWARDED IN 2016. 191320374 true true false false false false false false false false true false false true false true false true false false true true false false false false false true true true false false false false false false false false false false false false false true false false false true 162 0 true 50 true false false false false false false false false false false X 9 8 false false true false false true false true true false false true true true true true true true true false MI X X PRESTON W CAMPBELL MD 3019514422 4550 MONTGOMERY AVENUE STE 1100 N BETHESDA MD 20814 X JASON M ARYEH DIRECTOR 3.0 0.0 X 0 0 0 JONATHAN COHN MD DIRECTOR 3.0 0.0 X 0 0 0 CAROLE B GRIEGO MD DIRECTOR 3.0 3.0 X 0 0 0 CATHERINE C MCLOUD DIRECTOR 3.0 8.0 X 0 0 0 D PAUL FLESSNER DIRECTOR 3.0 0.0 X 0 0 0 STEVEN SHAK MD DIRECTOR 3.0 3.0 X 0 0 0 ERIC R OLSON PHD DIRECTOR 3.0 3.0 X 0 0 0 THEODORE J TORPHY PHD CHAIR 5.0 3.0 X 0 0 0 PRESTON CAMPBELL MD PRESIDENT & CEO 18.0 37.0 X X 304574 616640 255951 MARC S GINSKY EXECUTIVE VP, COO & SECRETARY 5.0 50.0 X 0 305540 149642 VERA H TWIGG EXECUTIVE VP & CFO 5.0 50.0 X 0 465131 103024 WILLIAM SKACH MD SENIOR VP , RESEARCH AFFAIRS 47.0 8.0 X 329757 58192 54167 BRUCE C MARSHALL MD SENIOR VP OF CLINICAL AFFAIRS 14.0 41.0 X 95540 386312 32117 MICHAEL P BOYLE MD SR VP, THERAPEUTICS DEV 55.0 0.0 X 430826 0 59921 MARTIN MENSE PHD VP OF DRUG DISCOVERY 55.0 0.0 X 227166 0 58464 HERMANN BIHLER PHD FELLOW SCIENTIST 55.0 0.0 X 175542 0 17866 FENG LIANG PHD SENIOR SCIENTIST 55.0 0.0 X 149425 0 42802 JEROME MAHIOU PHD SENIOR SCIENTIST 55.0 0.0 X 146742 0 43689 ELIZABETH JOSELOFF PHD DIRECTOR, INTEGRATIVE BIOLOGY 55.0 0.0 X 143303 0 37202 ROBERT J BEALL PHD FORMER CEO 0.0 10.0 X 126109 609460 565 C RICHARD MATTINGLY FORMER COO 0.0 0.0 X 0 135951 7251 2128984 2577226 862661 20 true true false VERTEX PHARMACEUTICALS INC 50 NORTHERN AVE BOSTON MA 02210 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999999999 2 false 98894 0 HEBREW UNIVERSITY OF JERUSALEM 999999999 2 false 64800 0 MCGILL UNIVERSITY 999999999 2 false 270248 0 ST MICHAEL'S HOSPITAL UNIVERSITY OF TORONTO 999999999 2 false 69878 0 THE HOSPITAL FOR SICK CHILDREN 999999999 3 false 801779 0 UNIVERSITY HEALTH NETWORK 999999999 3 false 320362 0 CYSTIC FIBROSIS STUDIES BRAZILIAN GROUP 999999999 7 false 249172 0 128 68666179 0 false true false true false true false false false false false false false false false false false false true true SUPPORTED ORGANIZATIONS SCHEDULE A, PART I, LINE 12G ALL SUPPORT PROVIDED BY CYSTIC FIBROSIS FOUNDATION THERAPEUTICS AND REPORTED IN COLUMN (V) IS FOR THE BENEFIT OF CYSTIC FIBROSIS FOUNDATION, ITS SUPPORTED ORGANIZATION. THE SUPPORT PROVIDED TO THE ORGANIZATIONS LISTED IN COLUMN (I) FUNDS RESEARCH CRITICAL TO FURTHERING THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION. SCHEDULE A, PART IV, LINE 1 CYSTIC FIBROSIS FOUNDATION IS THE ONLY SUPPORTED ORGANIZATION LISTED BY NAME IN THE GOVERNING DOCUMENTS OF CFFT. ALL OTHER SUPPORTED ORGANIZATIONS ARE DESIGNATED BY THE PURPOSE FOR WHICH THEY APPLY FOR SUPPORT FROM CFFT. ALL SUPPORT IS GIVEN FOR THE PURPOSE OF FUNDING RESEARCH INTO DRUG DEVELOPMENT FOR THE TREATMENT AND CURE OF CYSTIC FIBROSIS. CONTINUED SUPPORT TO ALL ORGANIZATIONS NOT NAMED IN THE GOVERNING DOCUMENTS IS CONTINGENT UPON THE ORGANIZATION DEMONSTRATING SCIENTIFIC PROGRESS. SCHEDULE A, PART IV, LINE 2 SUPPORTED ORGANIZATIONS WHO HAVE NOT RECEIVED AN IRS DETERMINATION LETTER ARE EITHER STATE GOVERNMENTAL UNITS DESCRIBED IN SECTION 170(B)(1)(A)(V) AND TAX EXEMPT UNDER IRC 115 OR ORGANIZATIONS OUTSIDE OF THE U.S. CFFT RECEIVES FROM ALL AWARD RECIPIENTS A W-8 OR W-9 AND A LETTER CERTIFYING THEIR STATUS AS A PUBLICLY SUPPORTED ORGANIZATION EQUIVALENT TO 509(A)(1) OR 509(A)(2) EITHER WITHIN THE U.S. OR THEIR COUNTRY. SCHEDULE A, PART IV, LINE 4B CYSTIC FIBROSIS FOUNDATION, A SUPPORTED ORGANIZATION, HAD ULTIMATE CONTROL AND DISCRETION IN DECIDING TO MAKE GRANTS TO FOREIGN SUPPORTED ORGANIZATIONS. SCHEDULE A, PART IV, LINE 4C CFFT RECEIVES FROM ALL FOREIGN SUPPORTED ORGANIZATIONS A W-8 AND A LETTER CERTIFYING THEIR STATUS AS A PUBLICLY SUPPORTED ORGANIZATION EQUIVALENT TO 509(A)(1) OR 509(A)(2) WITHIN THEIR COUNTRY. FOR THE FULL MONITORING PROCESS OF AWARDS MADE TO FOREIGN SUPPORTED ORGANIZATIONS SEE SCHEDULE F, PART V. SCHEDULE A, PART IV, SECTION B, LINE 2 SEE NARRATIVE FOR SCHEDULE A, PART I, LINE 12G ABOVE. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4914 4914 0 4074246 1833470 2240776 2240776 INTERCOMPANY RECEIVABLE 90415574 90415574 0 0 X SCHEDULE D, PART X FIN 48 FOOTNOTE THE FOUNDATION, CFFT, AND CFPAF ARE NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATIONS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAVE BEEN CLASSIFIED AS ORGANIZATIONS THAT ARE NOT PRIVATE FOUNDATIONS UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2016 AND 2015. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. true North America Grantmaking NONE 1462267 Europe (Including Iceland and Greenland) Grantmaking NONE 4394768 East Asia and the Pacific Grantmaking NONE 2027883 Middle East and North Africa Grantmaking NONE 163694 Europe (Including Iceland and Greenland) Program Services CONTRACTED RESEARCH 8607476 South America Grantmaking NONE 249172 East Asia and the Pacific Program Services CONTRACTED RESEARCH 32038 16937298 16937298 North America THERAPEUTICS DISCOVERY RESEARCH 270248 CHECK North America CLINICAL RESEARCH STUDY 69878 CHECK North America THERAPEUTICS DISCOVERY RESEARCH 485713 CHECK North America CLINICAL RESEARCH 38174 CHECK North America CLINICAL RESEARCH STUDY 277892 CHECK North America THERAPEUTICS DISCOVERY RESEARCH 185362 CHECK North America CLINICAL RESEARCH STUDY 135000 CHECK Europe (Including Iceland and Greenland) CLINICAL RESEARCH STUDY 60000 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH CENTER 746956 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH 380416 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 162000 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 264776 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 162000 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 54557 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH STUDY 242879 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 100000 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH CENTER 1372000 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 152168 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 182577 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 320957 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY RESEARCH 193482 WIRE East Asia and the Pacific CLINICAL RESEARCH CENTER 42000 WIRE East Asia and the Pacific THERAPEUTICS DISCOVERY RESEARCH 162000 WIRE East Asia and the Pacific CLINICAL RESEARCH 1281017 WIRE East Asia and the Pacific CLINICAL RESEARCH STUDY 542866 WIRE Middle East and North Africa THERAPEUTICS DISCOVERY RESEARCH 98894 WIRE Middle East and North Africa THERAPEUTICS DISCOVERY RESEARCH 64800 WIRE South America CLINICAL RESEARCH 249172 WIRE 23 0 false false false false false false PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. SCHEDULE F, PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANTS IN THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO BAR-ILAN UNIVERSITY AND HEBREW UNIVERSITY OF JERUSALEM, UNIVERSITIES IN ISRAEL. true CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 441067015 341018992 501c(3) 23921 ACADEMIC ADVISORY AWARD UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY 231 ALBERT SABIN WAY CINCINNATI OH 45267 311405915 501c(3) 97665 CLINICAL RESEARCH CENTER ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVE MAIL CODE 88 ALBANY NY 12208 141338310 501c(3) 128271 CLINICAL RESEARCH CENTER ALL CHILDREN'S HOSPITAL DEPT 9010 PO BOX 31020 ST PETERSBURG FL 33731 590683252 501c(3) 217888 CLINICAL RESEARCH CENTER ALL CHILDREN'S RESEARCH INSTITUTE INC 501 6TH AVE S DEPT 9581 ST PETERSBURG FL 337014634 592481742 501c(3) 21902 CLINICAL RESEARCH CENTER ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA BOX 43 CHICAGO IL 60614 363357006 501c(3) 160607 CLINICAL RESEARCH CENTER ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA SPONSORED PROJECTS 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115 27000 ADHERENCE VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND VA 232842506 546001758 IRC 115 106187 CLINICAL RESEARCH CENTER VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND VA 232842506 546001758 IRC 115 198046 CLINICAL RESEARCH STUDY WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 271571064 223849199 501c(3) 61280 CLINICAL RESEARCH CENTER WASHINGTON UNIVERSITY 660 S EUCLID AVENUE ST LOUIS MO 63110 430653611 501c(3) 341026 CLINICAL RESEARCH CENTER WASHINGTON UNIVERSITY 660 S EUCLID AVENUE ST LOUIS MO 63110 430653611 501c(3) 135000 CLINICAL RESEARCH STUDY WAYNE STATE UNIVERSITY GRANTS CONTRACTS OFFICE III RESEARCH AND SPONSORED PROGRAMS DETROIT MI 48201 383028425 501c(3) 169561 CLINICAL RESEARCH CENTER WAYNE STATE UNIVERSITY GRANTS CONTRACTS OFFICE III RESEARCH AND SPONSORED PROGRAMS DETROIT MI 48201 383028425 501c(3) 263068 THERAPEUTICS DISCOVERY RESEARCH YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 PO BOX 208047 NEW HAVEN CT 065208047 060646973 501c(3) 98977 CLINICAL RESEARCH CENTER YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 PO BOX 208047 NEW HAVEN CT 065208047 060646973 501c(3) 108000 CLINICAL RESEARCH STUDY YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 PO BOX 208047 NEW HAVEN CT 065208047 060646973 501c(3) 168418 THERAPEUTICS DISCOVERY RESEARCH 104 FELLOWSHIP 1 7000 PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTION. SCHEDULE I, PART III FELLOWSHIPS ARE AWARDED TO INVESTIGATORS CONDUCTING RESEARCH RELATED TO GRANTS REPORTED IN PART II. SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. PRIOR TO MAKING FELLOWSHIP PAYMENTS, SUPPORTING DOCUMENTATION OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. X X X X X X true true false false false false false true false PRESTON CAMPBELL MD PRESIDENT & CEO 180509 357226 75008 152289 49057 107125 66877 162842 0 26232 371451 805714 72607 147413 MARC S GINSKY EXECUTIVE VP, COO & SECRETARY 0 279180 0 25000 0 1360 0 128668 0 20974 0 455182 0 0 VERA H TWIGG EXECUTIVE VP & CFO 0 319108 0 128023 0 18000 0 72613 0 30411 0 568155 0 41247 ROBERT J BEALL PHD FORMER CEO 3206 268508 103459 39476 19444 301476 0 565 0 0 126109 610025 56096 113893 C RICHARD MATTINGLY FORMER COO 0 0 0 0 0 135951 0 7251 0 0 0 143202 0 102921 WILLIAM SKACH MD SENIOR VP , RESEARCH AFFAIRS 285530 50388 41136 7259 3091 545 20872 3683 25170 4442 375799 66317 0 0 BRUCE C MARSHALL MD SENIOR VP OF CLINICAL AFFAIRS 79919 323150 14896 60229 725 2933 6357 25703 11 46 101908 412061 0 0 MICHAEL P BOYLE MD SR VP, THERAPEUTICS DEV 383354 0 46200 0 1272 0 32060 0 27861 0 490747 0 0 0 MARTIN MENSE PHD VP OF DRUG DISCOVERY 190643 0 35902 0 621 0 28369 0 30095 0 285630 0 0 0 HERMANN BIHLER PHD FELLOW SCIENTIST 162134 0 12652 0 756 0 16287 0 1579 0 193408 0 0 0 FENG LIANG PHD SENIOR SCIENTIST 135716 0 13071 0 638 0 15434 0 27368 0 192227 0 0 0 JEROME MAHIOU PHD SENIOR SCIENTIST 134647 0 11449 0 646 0 13712 0 29977 0 190431 0 0 0 ELIZABETH JOSELOFF PHD DIRECTOR, INTEGRATIVE BIOLOGY 125360 0 17548 0 395 0 13557 0 23645 0 180505 0 0 0 PART I, LINE 4A SEVERANCE PAYMENTS A FORMER OFFICER LISTED ON THE FORM 990, PART VII, SECTION A RECEIVED PAYMENTS UNDER A SEVERANCE ARRANGEMENT, AS DESCRIBED IN FURTHER DETAIL IN SCHEDULE J, PART III, FOOTNOTE 10, BELOW. PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW. PART I, LINE 7: SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, (WHO ARE IDENTIFIED IN PART II, BELOW) PARTICIPATED IN AN INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE PLAN IS SPONSORED BY CFF, A RELATED ORGANIZATION. THE INDIVIDUALS PARTICIPATE BY VIRTUE OF BEING OFFICERS OF CFF. HOWEVER, IF AN INDIVIDUAL ALSO IS AN OFFICER OF CFFT AND RECEIVES COMPENSATION FROM CFFT, A PORTION OF THE INDIVIDUALS AWARD IS PAID BY CFFT. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. PART II: CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $180,509; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $45,396, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $29,612; (B)(III) OTHER REPORTABLE COMPENSATION: AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS - $4,125, VESTED SERP ACCOUNT (8) - $42,556; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $34,537, SERP (4) - $32,340; (D) NONTAXABLE BENEFITS: $0; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $72,607. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $357,226; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $92,169, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $60,120; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS - $8,375, VESTED SERP ACCOUNT (8) - $86,402; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $70,122, SERP (4) - $65,660; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $16,970, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $6,712; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $147,413. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $279,180; (B)(II) BONUS & INCENTIVE COMPENSATION: guaranteed incentive - $25,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $1,360; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $128,668; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $14,001, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,400, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,573; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $0. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $319,108; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $86,776, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $41,247; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $38,375, SERP (4) - $7,178; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $20,429, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,432; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $41,247. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $3,206; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $61,541, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS EARNED IN PRIOR YEARS AND PREVIOUSLY REPORTED AS DEFERRED COMPENSATION (6) - $41,918; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $19,444 (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $56,096. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $6,508; EXECUTIVE ADVISORY CONSULTING SERVICES FEES - $262,000; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT FOR 2015 (1) $124,948, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS EARNED IN PRIOR YEARS AND PREVIOUSLY REPORTED AS DEFERRED COMPENSATION (6) - $85,106; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $39,476; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $565; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $113,893. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $76,130, Severance pay (9) - $59,821; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN SEVERANCE BENEFIT (10) - $7,251; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $102,921. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE CFF BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2016 PLAN YEAR. (3) THIS AMOUNT, ALTHOUGH ALSO INCLUDED IN COLUMN B OF THIS FORM 990, HAS ALREADY BEEN REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED HERE. (4) THE SERP IS SPONSORED BY CFF, A RELATED ORGANIZATION. THE EXECUTIVE PARTICIPATES BY VIRTUE OF BEING AN OFFICER OF CFF. HOWEVER, BOTH CFFT AND CFF MAKE CONTRIBUTIONS ON THE EXECUTIVES BEHALF IF THE EXECUTIVE RECEIVES COMPENSATION FROM CFFT (AS AN OFFICER OF CFFT) AND FROM CFF (AS AN OFFICER OF CFF). A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) THE 457(B) PLAN IS SPONSORED BY CFF, A RELATED ORGANIZATION. THE EXECUTIVE PARTICIPATES BY VIRTUE OF BEING AN OFFICER OF CFF. HOWEVER, BOTH CFFT AND CFF MAKE CONTRIBUTIONS ON THE EXECUTIVES BEHALF IF THE EXECUTIVE RECEIVES COMPENSATION FROM CFFT (AS AN OFFICER OF CFFT) AND FROM CFF (AS AN OFFICER OF CFF). A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS (CURRENTLY $18,000). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES OF CFF, A RELATED ENTITY. THE INDIVIDUALS PARTICIPATE BY VIRTUE OF BEING OFFICERS OF CFF. HOWEVER, IF AN INDIVIDUAL ALSO IS AN OFFICER OF CFFT AND RECEIVES COMPENSATION FROM CFFT, A PORTION OF THE INDIVIDUALS AWARD IS PAID BY CFFT. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2016 (I.E., WITH RESPECT TO THE 2014-2016, 2015-2017 AND THE 2016-2018 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/16, 12/31/17 AND 12/31/18 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2014-2016, 2015-2017, AND THE 2016-2018 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/15 WAS PAID IN 2016, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2015, 2014 AND 2013 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS PAYMENT IS A DISTRIBUTION FROM THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, BECAUSE CONTRIBUTIONS TO THIS PLAN ARE FULLY VESTED WHEN MADE, CONTRIBUTIONS TO THIS PLAN WERE PREVIOUSLY REPORTED IN THE YEARS CONTRIBUTED, IN COLUMN B(III) AS "OTHER REPORTABLE COMPENSATION". THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2016 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH DR. CAMPBELL RECEIVED CONTRIBUTIONS FROM 2014-2015. AS REQUIRED, THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (9) AS PART OF A SEVERANCE AGREEMENT, THE EXECUTIVE RECEIVED THIS AMOUNT, WHICH RELATES TO A PORTION OF THE AMOUNT THAT WOULD HAVE BEEN PAID TO HIM UNDER THE ORGANIZATION'S LONG TERM INCENTIVE COMPENSATION PLAN HAD HE CONTINUED EMPLOYMENT WITH THE ORGANIZATION THROUGH 12/31/16. THE AMOUNT RELATED TO a portion of the three-year PERFORMANCE PERIOD (I.E., the portion of the 2013-2015 PERFORMANCE PERIOD DURING WHICH THE EXECUTIVE WAS EMPLOYED BY THE ORGANIZATION), AND WAS SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (NOTE THAT AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2015, 2014 AND 2013 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS. THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990.) THE SEVERANCE AMOUNT WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT AND APPROVED BY THE ORGANIZATION'S COMPENSATION COMMITTEE IN ACCORDANCE WITH THE IRS'S INTERMEDIATE SANCTIONS RULES. (10) THIS AMOUNT REFLECTS AMOUNTS THAT MAY BE PAID TO THE EXECUTIVE PURSUANT TO A SEVERANCE AGREEMENT. THE AMOUNT REFLECTS A PORTION OF THE AWARDS THAT THE EXECUTIVE WOULD HAVE BECOME ELIGIBLE TO RECEIVE UNDER THE INCENTIVE COMPENSATION PLAN DESCRIBED IN FOOTNOTE (6), ABOVE, AND RELATES to the portion of the THREE-YEAR PERFORMANCE PERIOD UNDER THE plan during WHICH HE WAS EMPLOYED. THE AWARD IS SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF THE AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN (I.E., WITH RESPECT TO THE 2014-2016 PERFORMANCE PERIOD), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE SEVERANCE AMOUNT WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT AND APPROVED BY THE ORGANIZATION'S COMPENSATION COMMITTEE IN ACCORDANCE WITH THE IRS'S INTERMEDIATE SANCTIONS RULES. SIGNIFICANT CHANGES TO GOVERNING DOCUMENTS PART VI, SECTION A, LINE 4 DURING 2016, CYSTIC FIBROSIS FOUNDATION THERAPEUTICS AMENDED ITS BYLAWS TO EXPAND THE DURATION OF DIRECTOR TERMS TO THREE YEARS. GOVERNING BODY APPOINTMENTS PART VI, SECTION A, LINE 7A THE MAJORITY OF THE ORGANIZATIONS BOARD MEMBERS ARE DESIGNATED BY THE BOARD OF TRUSTEES OF THE CYSTIC FIBROSIS FOUNDATION. THE OTHERS ARE EX-OFFICIO, APPOINTED TO THE BOARD BY THE BYLAWS. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 11B THE ORGANIZATIONS BOARD OF DIRECTORS RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE ORGANIZATIONS ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990 TO ENSURE COMPLETENESS AND ACCURACY. THE AUDIT COMMITTEE ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION THERAPEUTICS BOARD OF DIRECTORS RECEIVED A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED. CONFLICT OF INTEREST MONITORING PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF DIRECTORS, THE INTERESTED DIRECTOR OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2016 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY. DETERMINING COMPENSATION PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE ORGANIZATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. SHARES OFFICERS WITH CYSTIC FIBROSIS FOUNDATION, A RELATED ORGANIZATION. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION FOR EXECUTIVES OF THE ORGANIZATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE ORGANIZATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE ORGANIZATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE ORGANIZATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVES HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVES ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEES COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS AND KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO SENIOR VP, RESEARCH AFFAIRS SENIOR VP, THERAPEUTICS DEVELOPMENT SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2016, WITH THE EXCEPTION OF THAT FOR THE CEO POSITION WHICH WAS LAST CONDUCTED IN 2015. PUBLIC INSPECTION PART VI, SECTION C THE FORM 1023 FOR THE ORGANIZATION WAS AVAILABLE ON ITS WEBSITE, WWW.CFF.ORG/CFFTFinancialStatements, AND THE ORGANIZATION'S WEBSITE PROVIDES A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. CFFTS GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) ARE AVAILABLE UPON REQUEST BY CONTACTING THE ORGANIZATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS IS AVAILABLE ON THE WEBSITE, WWW.CFF.ORG/RESEARCH/CFFT. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED CONSOLIDATED FINANCIAL STATEMENTS ARE AVAILABLE ON THE WEBSITE, WWW.CFF.ORG/CFFTFinancialStatements. PART VII, SECTION A REPORTABLE COMPENSATION FROM THE ORGANIZATION A PORTION OF THIS BASE COMPENSATION AMOUNT WAS PAID TO DR. BEALL WITH RESPECT TO HIS SERVICES AS AN EMPLOYEE, WHICH TERMINATED ON 12/31/15. HE WAS PAID FOR THOSE SERVICES IN ACCORDANCE WITH THE ORGANIZATIONS STANDARD PAY PRACTICES, WHICH CAUSED HIS FINAL PAYCHECK AS AN EMPLOYEE TO BE PAID ON THE FIRST PAYDATE DURING 2016. THEREFORE THE COMPENSATION IS REPORTABLE COMPENSATION FOR 2016. DR. BEALL RECEIVED NO BASE PAY AS A FORMER OFFICER OF THE ORGANIZATION. IN ADDITION, DR. BEALL RECEIVED COMPENSATION FOR SERVICES HE PROVIDED AS AN INDEPENDENT CONTRACTOR FOR executive advisory consulting SERVICES HE PROVIDED TO THE ORGANIZATION DURING 2016. 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