2017-09-07T16:54:06-05:00 2016-12-31 954303700 JOHN S BALISY & COMPANY 23792 ROCKFIELD BLVD STE 140 LAKE FOREST CA 92630 990 2016-01-01 200299958 CURE DUCHENNE CURE 9498722552 1400 QUAIL STREET NO 110 NEWPORT BEACH CA 92660 DEBRA MILLER PRESIDENT 9498722552 2017-08-31 JOHN S BALISY COMPANY P01385861 9495407519 40.78.20.113 2017-08-31 17:00:00 PD P 6C9B1A35775087DBDB8A6D25ECA509C7F6C27838 6C9B1A35775087DBDB8A6D25ECA509C7F6C27838 2016 2021-01-29 14:40:06Z DEBRA MILLER 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 4522179 0 X WWW.CUREDUCHENNE.ORG X 2003 CA COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. 14 12 0 0 0 0 1649355 1505094 0 0 217136 -79356 35615 624898 1902106 2050636 478067 797517 0 0 763677 1051064 144891 116000 483831 1131509 1290602 2518144 3255183 -616038 -1204547 6440098 5890732 165805 1031882 6274293 4858850 CURE DUCHENNE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THEIR CARE AND HEALTH. 0 0 2493501 797517 CURE DUCHENNE WAS ORGANIZED IN 2003 WITH A MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. 2493501 1 1 0 0 0 0 0 0 0 0 1 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 X 14 12 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 CA X X DEBRA MILLER 9497214063 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 PAUL MILLER SECRETARY 10.00 X X 0 0 0 DEBRA MILLER PRESIDENT 40.00 X X 120000 0 0 JEFFREY GOFFMAN DIRECTOR 1.00 X 0 0 0 RON PHILIP DIRECTOR 1.00 X 0 0 0 TOM SCRANTON DIRECTOR 1.00 X 0 0 0 KEVIN DORSEY DIRECTOR 1.00 X 0 0 0 RYAN WILLIAMS DIRECTOR 1.00 X 0 0 0 EVONNE SEPSIS DIRECTOR 1.00 X 0 0 0 ELAINE WU DIRECTOR 1.00 X 0 0 0 TJ FARNSWORTH DIRECTOR 1.00 X 0 0 0 GEORGE BLANK DIRECTOR 1.00 X 0 0 0 THOM MCELROY DIRECTOR 1.00 X 0 0 0 ALLESANDRO PLOL DIRECTOR 1.00 X 0 0 0 STEPHEN SPIVAK DIRECTOR 1.00 X 0 0 0 JOSEPH KNOWLES VICE-PRESIDENT 40.00 X 266417 0 0 KAREN E HARLEY VICE-PRESIDENT 40.00 X 122363 0 0 508780 0 0 3 0 1 0 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 FUNDRAISING 116000 RLM FINSBURY LLC 3 COLUMBUS CIRCLE FLOOR 9 NEW YORK NY 10105 MARKETING 93523 2 863411 641683 1505094 249 249 1691333 1770938 -79605 -79605 -79605 1325503 863411 700605 624898 624898 2050636 249 0 545293 797517 797517 508780 508780 409827 221178 27009 161640 66271 51718 1903 12650 66186 53277 2113 10796 140369 72780 54520 13069 28573 28573 116000 116000 1852 462 1390 38905 15712 22181 1012 61857 25735 22704 13418 74416 39245 11731 23440 254379 215289 1376 37714 44060 30679 371 13010 94 94 OUTSIDE CONTRACT SERVIC 517048 411927 88388 16733 BANK & CREDIT CARD CHAR 35336 1036 3683 30617 PRINTING & REPRODUCTION 24514 7504 2714 14296 DUES & SUBSCRIPTIONS 16896 9325 2310 5261 52303 31337 8181 12785 3255183 2493501 277851 483831 607140 2942774 2576683 5129 17063 17063 96 0 3254147 2867497 2032 75332 6440098 5890732 165805 1031882 165805 1031882 X 6274293 4858850 6274293 4858850 6440098 5890732 -1204547 -210896 0 X 0 0 0 X 2386942 2346536 1993544 2457585 2830597 12015204 2386942 2346536 1993544 2457585 2830597 12015204 12015204 38984 41362 22594 18688 67051 188679 12203883 0.98450 0.98530 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 17063 17063 0 0 INVESTMENTS HELD 2867497 F 2867497 CREDIT CARD PAYABLE 31882 LOAN PAYABLE 1000000 1031882 X 0 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 GOLF TOURNAMENT/ANNUAL GALA FUNDRAISING 0 1042979 116000 926979 1042979 116000 926979 CA GETZLAF GOLF TOURNAMENT 363627 250 363377 213659 FUNDRAISER-NEWPORT BEACH GALA 679352 88500 590852 227806 7 1145935 774661 371274 259140 2188914 863411 1325503 700605 700605 624898 SCHEDULE G, PART I, LINE 2B, COLUMN (V) DURING 2016, THE ORGANIZATION PAID THE FUNDRAISER $116,000. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS. 0 NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 311036372 442367 EDUCATION / OUTREACH / RESEARCH RASRX LLC 231 BONETTI DRIVE STE 400 SAN LUIS OBISPO CA 93401 100000 EDUCATION / OUTREACH / RESEARCH MYOTHERIX 29540 KOHOUTEK WAY UNION CITY CA 94587 25000 EDUCATION / OUTREACH / RESEARCH USC SCHOOL OF PHARMACY 1985 ZONAL AVE LOS ANGELES CA 90089 100000 EDUCATION / OUTREACH / RESEARCH OTHER MISCELLANEOUS GRANTS 1400 QUAIL STREET NEWPORT BEACH CA 92660 130150 EDUCATION / OUTREACH / RESEARCH X 0 0 0 0 0 0 0 0 0 JOSEPH KNOWLES VICE-PRESIDENT 253000 0 0 0 13417 0 0 0 0 0 266417 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE. CUREDUCHENNE VENTURE LLC 23792 ROCKFIELD BOULEVARD SUITE 140 LAKE FOREST CA 92630 383934145 INVESTING IN RESEARCH CA -608446 4543953