2017-05-15T10:45:42-05:00 2016-12-31 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2016-01-01 132298956 CHILDREN'S TUMOR FOUNDATION CHIL 2123446633 120 WALL STREET NEW YORK NY 100053904 REID HOROVITZ COO/CFO 2123446633 2017-05-15 1 ROBERT LYONS CPA P00227472 2125038800 69.74.165.34 2017-05-15 11:13:50 ED P 0EA133E925D455436872AF86EAC7847202410F97 B8E8917F0931719FE7A109CCAA1C726E9AF7A481 2016 2021-01-29 14:40:06Z ANNETTE BAKKER 120 WALL STREET NEW YORK NY 100053904 18042155 0 X WWW.CTF.ORG X 1978 NY THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS. 21 21 50 1000 0 0 15207544 15471546 0 0 68011 110093 56252 41162 15331807 15622801 5341818 4416029 0 0 4076328 4614556 0 0 1862625 5818901 5747415 15237047 14778000 94760 844801 13073242 13804303 2634787 2339491 10438455 11464812 X OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF. 0 0 7618638 3196478 RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITIONALLY, OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH. 4301514 1219551 PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE, NF WALK, AND RACING 4 RESEARCH, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR. 11920152 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 39 0 50 1 0 0 0 0 0 1 1 0 0 0 0 X 21 21 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 NY AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X REID HOROVITZ 2123446633 120 WALL STREET NEW YORK NY 100053904 RICHARD A HORVITZ CHAIRPERSON 1.00 X X 0 0 0 TRACY GALLOWAY VICE CHAIRPERSON 1.00 X X 0 0 0 RANDALL STANICKY TREASURER 1.00 X X 0 0 0 GABRIEL GROISMAN SECRETARY 1.00 X X 0 0 0 DANIEL ALTMAN DIRECTOR 1.00 X 0 0 0 LAURA GANIO BONA DIRECTOR (FORMER) 1.00 X 0 0 0 ROBERT BRAININ DIRECTOR 1.00 X 0 0 0 WILLIAM BROOKS DIRECTOR 1.00 X 0 0 0 SUZANNE EARLE DIRECTOR (FORMER) 1.00 X 0 0 0 DANIEL GILBERT DIRECTOR 1.00 X 0 0 0 JOHN GOLFINOS MD DIRECTOR 1.00 X 0 0 0 BRENDAN HANRAHAN PHD DIRECTOR 1.00 X 0 0 0 MATTHEW HAY DIRECTOR 1.00 X 0 0 0 CHAD LEATHERS DIRECTOR 1.00 X 0 0 0 LINDA H MARTIN DIRECTOR 1.00 X 0 0 0 JOHN MCCARTHY DIRECTOR 1.00 X 0 0 0 STEVEN L MCKENZIE DIRECTOR 1.00 X 0 0 0 LESLEY OSLICA DIRECTOR (FORMER) 1.00 X 0 0 0 LAURA PERFETTI DIRECTOR 1.00 X 0 0 0 MICHAEL PETERSON DIRECTOR 1.00 X 0 0 0 KENNETH RUDD DIRECTOR 1.00 X 0 0 0 STUART MATCH SUNA DIRECTOR 1.00 X 0 0 0 RACHEL B TIVEN DIRECTOR 1.00 X 0 0 0 KARL THOMSON DIRECTOR 1.00 X 0 0 0 NATE WALKER DIRECTOR (FORMER) 1.00 X 0 0 0 ANNETTE BAKKER PHD PRESIDENT/CHIEF SCIENTIFIC OFFICER 40.00 X 292417 0 36105 REID HOROVITZ COO/CFO 40.00 X 202983 0 33165 DAVID WEBBER VP OF FINANCE (FORMER) 40.00 X 31199 0 10324 SALVATORE LAROSA VP OF RESEARCH & DEVELOPMENT 40.00 X 173506 0 33328 MELISSA SOSA-LONGO VP OF MAJOR GIFTS 40.00 X 173126 0 1054 SIMON VUKELJ VP OF MARKETING & COMMUNICATIONS 40.00 X 137208 0 17176 MICHAEL DIVERS VP OF MAJOR GIFTS (FORMER) 40.00 X 161818 0 17609 1172257 0 148761 6 0 1 0 SQUIRE PATTON BOGGS 2550 MAIN ST NW WASHINGTON DC 20037 LOBBYING/ADVOCACY 270000 KOSTOPULOS DREAM FOUNDATION 4180 EMIGRATION CYN SALT LAKE CITY UT 84108 NF CAMP 103500 2 64745 5654118 9752683 475578 15471546 110210 110210 1968428 1968545 -117 -117 -117 450809 5654118 450809 0 MISC. INCOME 999999 41162 41162 41162 15622801 0 0 151255 4159999 4159999 256030 256030 770088 284409 292055 193624 3005660 2512751 78839 414070 111074 88660 8348 14066 474934 378836 30084 66014 252800 189214 23724 39862 1947 1947 28845 28845 270000 270000 570836 502431 22114 46291 14528 10086 816 3626 300508 193905 47203 59400 359511 197731 89878 71902 291944 234720 18563 38661 2210408 1371543 168559 670306 103177 56748 25793 20636 54600 30030 13650 10920 FOOD AND BEVERAGE 388388 334166 19911 34311 DUES AND OTHER FEES 313866 198886 62321 52659 PRINTING AND PUBS. 275254 219278 16069 39907 POSTAGE AND SHIPPING 186800 145584 14307 26909 376803 285145 32197 59461 14778000 11920152 995223 1862625 4030642 5848486 1959348 1098672 250375 178135 523560 277389 256433 246171 6497428 6353823 62500 62500 16516 16516 13073242 13804303 209246 318011 2216045 1814959 209496 206521 2634787 2339491 X 6296227 6673287 4142228 4791525 10438455 11464812 13073242 13804303 X 844801 194431 -12875 X X 0 1 X 1 0 X 9359822 12171729 15370815 14360173 15404494 66667033 9359822 12171729 15370815 14360173 15404494 66667033 2689918 63977115 343978 65814 144296 66963 110210 731261 67007 229554 42610 56252 41162 436585 67834879 0.94310 0.88320 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 270000 0 0 270000 0 189926 189926 175889 118037 57852 69399 58173 11226 278272 101179 177093 246171 DEFERRED RENT 10721 ASSETS HELD IN TRUST 195800 206521 X 15404494 194431 397591 592022 14812472 810329 810329 15622801 14378137 397591 12875 410466 13967671 810329 810329 14778000 PART X, LINE 2: THE FOUNDATION HAS NO UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2016, IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XI, LINE 4B - OTHER ADJUSTMENTS: PRIOR YEAR GRANTS RETURNED 810,329. PART XII, LINE 2D - OTHER ADJUSTMENTS: LOSS ON UNCOLLECTIBLE ACCOUNTS 12,875. PART XII, LINE 4B - OTHER ADJUSTMENTS: PRIOR YEAR GRANTS RETURNED 810,329. 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH GRANTS 256030 0 0 0 0 0 0 256030 0 256030 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH - DDA 40000 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH-SYNODOS 54137 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH-SYNODOS 37800 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH-CONTRACT AWARD 21478 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH-CONTRACT AWARD 10000 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH-DDA 42515 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH-YIA 16000 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH-YIA 25125 WIRE N/A N/A 8 0 0 0 0 0 0 0 DETROIT GALA 5054513 4706751 347762 347762 NEW YORK CITY GALA 1050414 947367 103047 103047 6104927 5654118 450809 450809 450809 0 1 BRIGHAM & WOMEN'S HOSPITAL PO BOX 3149 BOSTON MA 02241 042312909 501(C)(3) 284664 RESEARCH - YIA, NFTC & CONTRACT AWARD CALIFORNIA INSTITUTE OF TECHNOLOGY 1200 E CALIFORINA BLVD PASADENA CA 91125 951643307 501(C)(3) 21375 RESEARCH - YOUNG INVESTIGATOR AWARD CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE ML 4006 CINCINNATI OH 45229 310833936 501(C)(3) 394793 RESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUMRESEARCH - NFTC, SYNODOS & DDARESEARCH - PRECLINICAL CONSORTIUMRESEARCH - PRECLINICAL CONSORTIUM DEPARTMENT NEUROBIOLOGY PO BOX 951763 LOS ANGELES CA 90095 956006143 501(C)(3) 26022 RESEARCH - YOUNG INVESTIGATOR AWARD INDIANA UNIVERSITY PO BOX 66057 INDIANAPOLIS IN 46266 356001673 501(C)(3) 280543 RESEARCH - NFTC & SYNODOSVRESEARCH - YOUNG INVESTIGATOR AWARDRESEARCH - YOUNG INVESTIGATOR AWARD UNIVERSITY OF CENTRAL FLORIDA 12201 RESEARCH PARKWAY SUITE 501 ORLANDO FL 32826 592924021 501(C)(3) 103500 RESEARCH - YIA & CONTRACT AWARD VANDERBILT UNIVERSITY MEDICAL CENTER DEPT AT 40303 ATLANTA GA 31192 620476822 501(C)(3) 30666 RESEARCH - YOUNG INVESTIGATOR AWARD WASHINGTON UNIVERSITY 700 ROSEDALE AVE CAMPUS BOX 1034 ST LOUIS MO 63112 061043412 501(C)(3) 190151 RESEARCH - SYNODOS UNIVERSITY OF NORTH CAROLINA 115 MASON FARM RD CB 7250 CHAPEL HILL NC 27599 566001393 501(C)(3) 52750 RESEARCH - YOUNG INVESTIGATOR AWARD GEISEL SCHOOL OF MEDICINE AT DARTMOUTH COLLEGE 1 ROPE FERRY ROAD HANOVER NH 03755 020222111 501(C)(3) 32000 RESEARCH - YOUNG INVESTIGATOR AWARD MEDICAL UNIVERSITY OF SOUTH CAROLINA 135 RUTLEDGE AVE CHARLESTON SC 29425 576000722 501(C)(3) 144007 RESEARCH - CONTRACT AWARD & DDA MASSACHUSETTS GENERAL PO BOX 414876 BOSTON MA 02241 041564655 501(C)(3) 499173 RESEARCH - CONTRACT AWARD, YIA, DDI, CLINICAL TRIAL, & SYNODOS THE ARIZONA BOARD OF REGENTS ON BEHALF OF THE UNIVERSITY OF ARIZONA 2020 N CENTRAL AVE SUITE 230 PHOENIX AZ 85004 860196696 501(C)(3) 26167 RESEARCH - CONTRACT AWARD THE CHILDREN'S HOSPITAL OF PHOENIX 341 CIVIC CENTER BLDV PHILADELPHIA PA 19104 231352166 501(C)(3) 33008 RESEARCH - SYNODOS THE UNIVERSITY OF MINNESOTA PO BOX 1450 NW 5957 MINNEAPOLIS MN 55489 416007513 501(C)(3) 528539 RESEARCH - SYNODOS SCRIPPS RESEARCH INSTITUTE 10550 N TORREY PINES RD LA JOLLA CA 92037 330435954 501(C)(3) 139250 RESEARCH - YIA & DDA UNIVERSITY OF ARIZONA 1303 E UNIVERSITY BLVD BOX 3 TUCSON AZ 85719 742652689 501(C)(3) 45250 RESEARCH - YIA UNIVERSITY OF IOWA 200 HAWKINS DR W134 GH IOWA CITY IA 52242 420796760 501(C)(3) 67020 RESEARCH - SYNODOS UNIVERSITY OF CALIFORNIA PO BOX 1432 BAKERSFIELD CA 93302 946002123 501(C)(3) 190527 RESEARCH - NFTC THE TRUSTEES OF COLUMBIA UNIVERSITY 615 WEST 131ST STREET 4TH FLR NEW YORK NY 10027 135598093 501(C)(3) 184584 RESEARCH - CONTRACT AWARD THE REGENTS OF UNIVERSITY OF CALIFORNIA 1111 FRANKLIN ST 12TH FLR OAKLAND CA 94607 943067788 501(C)(3) 103442 RESEARCH - SYNODOS SANFORD RESEARCH 2301 EAST 60TH STREET NORTH SIOUX FALLS SD 57104 460450378 501(C)(3) 181992 RESEARCH - CONTRACT AWARD & SYNODOS UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501(C)(3) 25000 RESEARCH - DDA UNIVERSITY OF FLORIDA TRUSTEES 123 TIGERT HALL GAINESVILLE FL 32611 596002052 501(C)(3) 124315 RESEARCH - CONTRACT AWARD UNIVERSITY OF ALABAMA AT BIRMINGHAM PO BOX 870134 TUSCALOOSA AL 35487 636001137 501(C)(3) 143771 RESEARCH - CLINICAL TRIAL AWARD & CONTRACT AWARD UNIVERSITY OF CHICAGO 5801 S ELLIS AVE CHICAGO IL 60637 362177139 501(C)(3) 16000 RESEARCH - YOUNG INVESTIGATOR AWARD UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS TX 75360 756002868 501(C)(3) 52125 RESEARCH - YOUNG INVESTIGATOR AWARD X X X 0 0 0 0 0 0 0 0 0 ANNETTE BAKKER PHD PRESIDENT/CHIEF SCIENTIFIC OFFICER 292417 0 0 0 0 0 0 0 36105 0 328522 0 0 0 REID HOROVITZ COO/CFO 202983 0 0 0 0 0 0 0 33165 0 236148 0 0 0 SALVATORE LAROSA VP OF RESEARCH & DEVELOPMENT 173506 0 0 0 0 0 0 0 33328 0 206834 0 0 0 MELISSA SOSA-LONGO VP OF MAJOR GIFTS 173126 0 0 0 0 0 0 0 1054 0 174180 0 0 0 SIMON VUKELJ VP OF MARKETING & COMMUNICATIONS 137208 0 0 0 0 0 0 0 17176 0 154384 0 0 0 MICHAEL DIVERS VP OF MAJOR GIFTS (FORMER) 156718 0 0 0 5100 0 0 0 17609 0 179427 0 0 0 X 2 109448 FMV X AUCTION ITEMS 374 366130 FMV 0 1 0 FORM 990, PART VI, SECTION B, LINE 11B THE COMPLETE FORM 990 IS DISTRIBUTED IN DRAFT FORM VIA E-MAIL TO ALL BOARD MEMBERS WITH A RETURN RECEIPT PRIOR TO FILING. EACH BOARD MEMBER ACKNOWLEDGES THEIR RECEIPT, REVIEW, AND ACCEPTANCE OF THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY AND REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE POLICY ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S TOP MANAGEMENT AND KEY EMPLOYEES ARE REVIEWED FOR PERFORMANCE ON AN ANNUAL BASIS. COMPENSATION FOR THESE POSITIONS ARE REVIEWED AND APPROVED BY THE BOARD'S PERSONNEL COMMITTEE. COMPENSATION IS DETERMINED USING CURRENTLY AVAILABLE SALARY DATA FOR NON-PROFITS OF SIMILAR SIZE AND MISSION IN THE NEW YORK CITY AREA. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST WITHIN THE PRESCRIBED TIME FRAMES AS REQUIRED. FORM 990, PART XI, LINE 9: LOSS ON UNCOLLECTIBLE ACCOUNTS -12,875. FORM 990, PART XII, LINE 2C THE CHILDREN'S TUMOR FOUNDATION HAS AN AUDIT COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT.