2017-06-20T11:48:34-05:00 2016-12-31 410746749 CLIFTONLARSONALLEN LLP 220 SOUTH SIXTH STREET SUITE 300 MINNEAPOLIS MN 55402 990 2016-01-01 411984675 CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION CHIL 9528467942 201 CHICAGO AVENUE NO 200 MINNEAPOLIS MN 55415 WILLIAM TRESCHER MD PRESIDENT 9528467942 2017-05-16 1 DEIRDRE HODGSON P01484710 6123764500 67.137.57.251 2017-05-16 11:28:46 CD P EB257C677C23210A1BABF3CC3C8E15734A982BF5 4E72427CC63A664232B1FAFCED3E8A8BBE83D563 2016 2021-01-29 14:40:06Z WILLIAM TRESCHER MD 1611 WOODHAVEN DRIVE HUMMELSTOWN PA 17036 1582146 0 X WWW.CHILDNEUROLOGYFOUNDATION.ORG X 2000 MN SERVE AS A COLLABORATIVE CENTER OF EDUCATION AND SUPPORT FOR CHILDREN AND FAMILIES LIVING WITH NEUROLOGIC CONDITIONS 15 15 0 15 0 0 491002 1407084 150000 169165 310 3897 2001 2000 643313 1582146 144118 292753 0 0 229031 252675 0 0 42332 231297 391687 604446 937115 38867 645031 1334667 1916094 405604 442000 929063 1474094 TO SERVE AS THE COLLABORATIVE CENTER OF EDUCATION AND SUPPORT FOR CHILDREN AND FAMILIES LIVING WITH NEUROLOGIC CONDITIONS. 0 0 306301 292753 0 RESEARCH GRANTS: SINCE 2001, CHILD NEUROLOGY FOUNDATION HAS AWARDED OVER 3.5 MILLION DOLLARS TO THE RESEARCH ENDEAVORS OF 69 YOUNG INVESTIGATORS, AIMED AT IDENTIFYING TREATMENTS AND CURES FOR PEDIATRIC NEUROLOGIC DISEASES. GRANTS SUPPORT TRANSLATIONAL, CLINICAL, OR BASIC RESEARCH BY CHILD NEUROLOGISTS EARLY IN THEIR ACADEMIC CAREERS. 188551 0 169165 EDUCATION/ADVOCACY: CNF SERVES AS A CONVENER IN THE NEUROLOGY COMMUNITY RELATED TO EDUCATION AND ADVOCACY EFFORTS, SUCH AS: INFANTILE SPASMS ADVOCACY FORUM WHICH BROUGHT TOGETHER 16 NATIONAL ORGANIZATIONS TO PARTNER IN THE IS AWARENESS WEEK 2016. CNF PROVIDED MINI-GRANTS TO SUPPORT THOSE PARTNERS' EFFORTS; CONVENED A MULTI-DISCIPLINARY SYMPOSIUM AND WEBINAR ON MEDICAL CANNABIS; AND CONTINUE TO ADD DISEASES TO WEB-BASED DISEASE DIRECTORY. FINALLY, CNF INITIATED A PILOT TEST OF A PARENT COACH PROGRAM TO PROVIDE PEER- VIRTUAL SUPPORT TO PATIENTS AND FAMILIES LIVING WITH NEUROLOGIC CONDITIONS 107108 0 0 TRANSITION PROGRAM: IN JULY 2016, CNF'S FIRST PEER REVIEWED PUBLICATION WAS RELEASED "THE NEUROLOGIST'S ROLE IN TRANSITIONING YOUNG ADULTS TO THE ADULT HEALTHCARE SYSTEM: A CONSENSUS STATEMENT." ADDITIONALLY, TRANSITION PROJECT ADVISORY COMMITTEE (TPAC) WORK CONTINUES IN IMPLEMENTING THE CONSENSUS STATEMENT'S FINDINGS IN THE AREAS OF YOUTH/ FAMILY EDUCATION, CLINICAL TOOLS, AND QUALITY IMPROVEMENT. A NEW WEB PORTAL WAS DEVELOPED FOR YOUTH AND FAMILIES, SIX NEW CLINICAL TOOLS AND A SURVEY TO IDENTIFY CURRENT TRANSITION SERVICES WITHIN THE NEUROLOGY COMMUNITY WAS DRAFTED THIS PAST YEAR. 107108 601960 1 1 0 0 0 0 0 0 0 1 1 0 0 1 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 10 0 0 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 MN X AMERICAN ACADEMY OF NEUROLOGY 6129286002 201 CHICAGO AVE MINNEAPOLIS MN 55415 DR WILLIAM TRESCHER PRESIDENT 1.00 X X 0 0 0 DR W DONALD SHIELDS PAST-PRESIDENT 1.00 X X 0 0 0 DR ANN TILTON PRESIDENT-ELECT 1.00 X X 0 0 0 DR SHAFALI SPURLING JESTE SECRETARY 1.00 X X 0 0 0 DR AMY WALDMAN TREASURER 1.00 X X 0 0 0 DR STEPHEN ASHWAL DIRECTOR: TERM ENDED 10.4.16 1.00 X 0 0 0 DR SIDNEY GOSPE DIRECTOR: TERM ENDED 10.4.16 1.00 X 0 0 0 DR BENNETT LAVENSTEIN DIRECTOR: TERM ENDED 10.4.16 1.00 X 0 0 0 DR JAN BRUNSTROM DIRECTOR: TERM ENDED 10.4.16 1.00 X 0 0 0 DR NINA SCHOR DIRECTOR: TERM ENDED 10.4.16 1.00 X 0 0 0 JOHN HUTCHINS DIRECTOR 1.00 X 0 0 0 SUE YUDOVIN DIRECTOR 1.00 X 0 0 0 STEPHEN PETERS DIRECTOR: TERM STARTED 10.5.16 1.00 X 0 0 0 DR SCOTT POMEROY DIRECTOR: TERM STARTED 10.5.16 1.00 X 0 0 0 DR SHAUN HUSSAIN DIRECTOR: TERM STARTED 10.5.16 1.00 X 0 0 0 SANDRA CUSHNER WEINSTEIN DIRECTOR: TERM STARTED 10.5.16 1.00 X 0 0 0 DR THOMAS LANGAN DIRECTOR: TERM STARTED 10.5.16 1.00 X 0 0 0 DR MARY ZUPANC DIRECTOR: TERM STARTED 10.5.16 1.00 X 0 0 0 DR JONATHAN MINK DIRECTOR: TERM STARTED 10.5.16 1.00 X 0 0 0 DR KENNETH MACK DIRECTOR 1.00 X 0 0 0 ROGER LARSON DIRECTOR, EX-OFFICIO 1.00 X 0 0 0 AMY BRIN MILLER DIRECTOR, EX-OFFICIO, EXECUTIVE DIRECTOR 40.00 X 114066 0 32485 114066 0 32485 1 0 0 0 0 1407084 1407084 MEMBERSHIP DUES 900099 169165 169165 169165 3897 3897 MISCELLANEOUS REVENUE 900099 2000 2000 2000 1582146 169165 0 5897 X 286693 286693 6060 6060 146551 68879 68879 8793 76854 20744 38653 17457 7030 1723 3564 1743 7575 1349 3924 2302 14665 5711 7087 1867 25720 10017 12429 3274 173851 125582 48130 139 100 100 11064 4136 6268 660 65364 37874 26395 1095 12948 8370 2756 1822 5098 5098 6001 6001 BAD DEBT EXPENSE 51000 51000 FOOD & BEVERAGE 37914 24243 11138 2533 MEMBERSHIP DUES 2372 324 1401 647 MISCELLANEOUS 255 255 937115 601960 292823 42332 468432 613326 851961 1174598 1529 2515 15294 7647 12745 7647 0 118008 1334667 1916094 44422 60508 323682 366492 37500 15000 405604 442000 X -229346 -163826 1058409 1537920 100000 100000 929063 1474094 1334667 1916094 X 645031 -100000 X 0 1 X 1 0 X 913403 973418 1191713 491002 1307084 4876620 913403 973418 1191713 491002 1307084 4876620 3357480 1519140 64 34 382 310 3897 4687 1002 2001 2000 5003 4886310 641665 0.31090 0.36130 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS REVENUE RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 118282 3897 5530 116649 117972 310 118282 117590 382 117972 0.00000 0.85720 0.14280 1 0 15294 7647 7647 7647 INVESTMENT FUNDS HELD BY OTHERS 118008 118008 X 1482146 0 1482146 100000 100000 1582146 937115 0 937115 0 937115 PART V, LINE 4: IN 2010, THE SOCIETY OF NEURODEVELOPMENTAL DISABILITIES (NDD) DISSOLVED; AND THEREBY, TRANSFERRED REMAINING ASSETS TO THE CNF. THESE FUNDS ARE INTENDED TO ENDOW AN ANNUAL EDUCATIONAL SCHOLARSHIP FOR A MEDICAL STUDENT INTERESTED IN THE FIELD OF CHILD NEUROLOGY; WITH PRIORITY GIVEN TO AN APPLICANT FOCUSED ON NEURO DEVELOPMENTAL DISABILITIES. THE INITIAL AWARD IS TO BE $3,500. THE AMOUNT OR THE NUMBER OF AWARDS MAY BE ADJUSTED BASED ON ENDOWMENT VALUE AND AS APPROVED BY THE BOARD OF CNF. THE CNF IS COLLABORATING WITH CURRENT LEADERSHIP IN THE NDD SUB-SPECIALTY AREA TO AWARD THE INAUGURAL SCHOLARSHIP IN 2016. PART X, LINE 2: THE FOUNDATION IS ORGANIZED AND OPERATES ON A NOT-FOR-PROFIT BASIS AND ITS TAX EXEMPT STATUS HAS BEEN RECOGNIZED BY THE INTERNAL REVENUE SERVICE UNDER SECTION 501(C)(3). THE FOUNDATION IS CLASSIFIED AS AN ORGANIZATION WHICH IS NOT PRIVATE FOUNDATIONS UNDER THE INTERNAL REVENUE CODE AND CHARITABLE CONTRIBUTIONS BY DONORS ARE TAX DEDUCTIBLE. THE FOUNDATION IS SUBJECT TO UNRELATED BUSINESS INCOME TAXES UNDER THE INTERNAL REVENUE CODE FOR FEDERAL AND STATE TAX PURPOSES. THE FOUNDATION HAS ADOPTED THE PROVISIONS OF FASB ASC 740-10-25, WHICH REQUIRES THAT A TAX POSITION BE RECOGNIZED OR DERECOGNIZED BASED ON A "MORE LIKELY THAN NOT" THRESHOLD. THIS APPLIES TO POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE FOUNDATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY UNCERTAIN TAX POSITIONS. THE FOUNDATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AUTHORITIES. PART XI, LINE 4B - OTHER ADJUSTMENTS: CHANGE IN TEMPORARILY RESTRICTED PLEDGE 100,000. 1 CHILD NEUROLOGY SOCIETY 1000 WEST COUNTY RD E STE 209 ST PAUL MN 551268096 237359775 501(C)(3) 30773 N/A N/A 2016 UNRESTRICTED GRANT SYMPOSIUM VI & DONATION TO CNS - PHILIP DODGE FUND THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER AT DALLAS 5323 HARRY HINES BLVD DALLAS TX 753909036 756002868 N/A 100000 N/A N/A 2016 SHIELDS RESEARCH FOUNDATION FOR THE STATE 35 STATE ST PO BOX 9 ALBANY NY 12207 141368361 501(C)(3) 100000 N/A N/A 2016 PERF AMERICAN ACADEMY OF PEDIATRICS 141 NORTHWEST POINT BLVD ELK GROVE VILLAGE IL 60007 362275597 501(C)(3) 5000 N/A N/A IS ADVOCACY MINI GRANT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA 1855 FOLSON ST STE 425 BOX 0897 SAN FRANCISCO CA 941430897 946036493 501(C)(3) 3500 N/A N/A 2016 NDD SUMMER RESEARCH SCHOLARSHIP SEIZURE TRACKER PO BOX 10738 ALEXANDRIA VA 22310 262311059 N/A 5000 N/A N/A IS ADVOCACY MINI GRANT LGS FOUNDATION 80 ORVILLE DR STE 100 BOHEMIA NY 11716 262051377 501(C)(3) 2420 N/A N/A IS ADVOCACY MINI GRANT DANNY DID FOUNDATION PO BOX 46576 CHICAGO IL 60646 271642251 501(C)(3) 5000 N/A N/A IS ADVOCACY MINI GRANT AMERICAN COLLEGE OF EMERGENCY PHYSCIANS 4950 WEST ROYAL LN IRVING TX 75063 381888798 N/A 5000 N/A N/A IS ADVOCACY MINI GRANT MAYO CLINIC PO BOX 860334 MINNEAPOLIS MN 554860334 416011702 N/A 30000 N/A N/A 2016 LGS 6 4 IS ADVOCACY MINI GRANT 1 5000 N/A N/A 2016 HARRNETT IS MINI-GRANT 1 1000 0 N/A N/A PART I, LINE 2: THE CHILD NEUROLOGY FOUNDATION HAS AN EXCELLENT HISTORY OF SELECTING THE VERY BEST RESEARCHERS FOR ITS AWARDS. WE PUBLICIZE THE AWARD TO REQUEST CANDIDATES WITH THE AMERICAN ACADEMY OF NEUROLOGY; PROFESSORS OF CHILD NEUROLOGY IN AMERICA'S MEDICAL SCHOOLS; AMERICAN SOCIETY OF PEDIATRIC DEPARTMENT CHAIRS; AND THE AMERICAN ACADEMY OF PEDIATRICS. CHILD NEUROLOGIST RESEARCHER APPLICANTS ARE ASKED TO SUBMIT A LETTER OF APPLICATION. THESE LETTERS ARE RANKED BY A COMMITTEE OF WELL-RESPECTED CHILD NEUROLOGISTS. (MEMBERS AVOID CONFLICT OF INTEREST BY RECUSING THEMSELVES). TOP CONTENDERS ARE INVITED TO SUBMIT FULL APPLICATIONS. CNF USES A HYBRID OF THE NIH RESEARCH APPLICATION. THE COMMITTEE THEN RANKS AND SUBMITS THE TOP APPLICANT TO THE CNF BOARD OF DIRECTORS FOR CONFIRMATION. OUTSIDE DONORS ARE NOT INVOLVED IN THE SELECTION OF THE AWARDEE OR ANY GUIDELINES REGARDING THE USE OF RESEARCH FUNDS. GRANT AWARD CHECKS ARE NEVER MADE PAYABLE TO THE INDIVIDUAL RESEARCHER. RATHER, CHECKS ARE MADE PAYABLE TO THE INSTITUTIONS FOR WHICH THEY EITHER WORK OR GO TO SCHOOL. REPORTS ARE REQUIRED OF THE RESEARCHER AT THE MIDPOINT OF THEIR RESEARCH IN THE FORM OF PROGRESS REPORTS AND AT THE END TO SHOW THE RESULTS OF THEIR RESEARCH. IN THE CASE OF SCHOLARSHIP RECIPIENTS THE SAME IS TRUE. CHECKS ARE MADE PAYABLE TO THEIR INSTITUTION AND THEIR REPORTS ARE DUE AT THE END OF THEIR RESEARCH. ADDITIONALLY IN 2016, CNF PROVIDED GRANTS TO SUPPORT ORGANIZATIONS' EFFORTS IN INCREASING INFANTILE SPASMS AWARENESS. TO BE ELIGIBLE FOR AN AWARD, AN ORGANIZATION NEEDED TO ATTEND THE 2016 ADVOCACY FORUM, AND COMPLETE THE GRANT APPLICATION. IF ALL CRITERIA ON THE APPLICATION WERE MET, THEN THE ORGANIZATION WAS CUT A CHECK. EACH ORGANIZATION AWARDED WAS REQUIRED TO SUBMIT A RECONCILIATION REPORT 90-DAYS AFTER THE COMPLETION OF THEIR AWARENESS BUILDING ACTIVITY CONCLUDED. FORM 990, PART VI, SECTION A, LINE 1 THE BOARD OF DIRECTORS MAY ESTABLISH OR TERMINATE STANDING, SPECIAL, OR AD HOC COMMITTEES OF THE FOUNDATION AS THE BOARD DETERMINES NECESSARY. UNLESS OTHERWISE DESCRIBED IN THESE BYLAWS, THE PRESIDENT SHALL APPOINT AND MAY REMOVE THE MEMBERS OF EACH STANDING, SPECIAL, OR AD HOC COMMITTEE. THE EXECUTIVE COMMITTEE SHALL INCLUDE THE PRESIDENT, PRESIDENT-ELECT, IMMEDIATE PAST-PRESIDENT, SECRETARY, TREASURER, AND NO MORE THAN THREE OTHER MEMBERS OF THE BOARD AS APPOINTED BY THE PRESIDENT. THE PRESIDENT OF THE BOARD SHALL BE THE CHAIR OF THE EXECUTIVE COMMITTEE. MEETINGS MAY BE CONDUCTED BY GROUP MEETINGS, CONFERENCE CALL, OR OTHER ELECTRONIC MEANS OF COMMUNICATION. BETWEEN MEETINGS OF THE BOARD, THE BOARD'S POWER IS DELEGATED TO THE EXECUTIVE COMMITTEE. THE EXECUTIVE COMMITTEE SHALL REPORT ITS ACTIVITY TO THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM AND THE ORGANIZATION'S EXECUTIVE COMMITTEE REVIEW THE FORM 990. THE FORM 990 IS MADE AVAILABLE TO THE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE FOUNDATION HAS A CONFLICT OF INTEREST POLICY COVERING ALL BOARD MEMBERS. BOARD MEMBERS COMPLETE A POLICY FORM ON AN ANNUAL BASIS WHICH IS MONITORED AND REVIEWED BY BOARD OFFICERS AFTER SUBMISSION. SHOULD A CONFLICT EXIST, THE BOARD WOULD DETERMINE THE APPROPRIATE ACTION INCLUDING OMISSION FROM VOTING ON ANY RELATED MATTERS AND DOCUMENT IN THE MEETING MINUTES. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR OF THE FOUNDATION HAS A SALARY THAT IS DETERMINED BY THEIR INDEPENDENT MANAGING ORGANIZATION. THE MANAGING ORGANIZATION USES RELATIVE DATA INCLUDING THE COMPENSATION OF LIKE-SIZED FOUNDATIONS TO HELP DETERMINE THE APPROPRIATE SALARY LEVEL. THE COMPENSATION IS REVIEWED ON AN ANNUAL BASIS AND WAS LAST CONDUCTED IN 2015 FOR EXECUTIVE DIRECTOR, AMY BRIN MILLER. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 32,567. MANAGEMENT AND GENERAL EXPENSES 48,130. FUNDRAISING EXPENSES 139. TOTAL EXPENSES 80,836. INFANTILE SPASMS AWARENESS CONSULTING SERVICES: PROGRAM SERVICE EXPENSES 93,015. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 93,015. FORM 990, PART XI, LINE 9: CHANGE IN TEMPORARILY RESTRICTED PLEDGE -100,000.