2017-11-15T07:38:48-07:00 2016-12-31 870381988 PINNOCK ROBBINS POSEY & RICHINS PC 215 S STATE ST STE 850 SALT LAKE CITY UT 841112380 990 2016-01-01 455354811 CROWDCARE FOUNDATION CROW 8019491034 3315 MAYFLOWER DR SUITE 1 LEHI UT 84043 JENNIFER AHLSTROM PRESIDENT 8019491034 2017-11-06 true GREGORY O HYDE P00641196 8015330409 2017-11-15 91DF67BEE56A6DEEAC0951DC88FC70C0B3CADF07 F3B1C9BB9B2DE4F84CAE0537A02A666D01C90B8D 2016 2018-03-14 21:41:22Z JENNIFER AHLSTROM 3315 MAYFLOWER DR 1 LEHI UT 84043 636884 false X WWW.CROWDCARE.ORG X 2012 DE A PATIENT-CENTERED APPROACH TO HEALTHCARE INNOVATION FOR RARE CANCERS AND ORPHAN DISEASES. 5 5 2 4 0 218003 636693 0 -1042 124 191 218127 635842 310000 0 12852 7659 0 16295 113745 236744 126597 554403 91530 81439 126372 220966 10112 23267 116260 197699 X A PATIENT-CENTERED APPROACH TO HEALTHCARE INNOVATION FOR RARE CANCERS AND ORPHAN DISEASES. false false 178485 PATIENT ADVOCACY (PSA): WITH A PATIENT'S PERSPECTIVE, THE CROWDCARE FOUNDATION SOLVES COMMON PROBLEMS FOR PATIENTS WITH ORPHAN DISEASE USING PRACTICAL AND SIMPLE SOLUTIONS. THE MYELOMA CROWD (WWW.MYELOMACROWD.ORG) AND ALS CROWD (ALSCROWD.ORG) WEBSITES OFFER AGGREGATED INFORMATION AND THE LATEST NEWS AND INFORMATION FOR EACH DISEASE COMMUNITY. ADDITIONALLY WE PROVIDE ONLINE SUPPORT GROUPS FOR EACH COMMUNITY FOR PATIENTS TO SHARE CRITICAL INFORMATION ABOUT THEIR DISEASE. 319944 310000 SUPPORT FOR CLINICAL TRIALS (SCT): THE CROWDCARE FOUNDATION RECOGNIZES THAT LITTLE-KNOWN DISEASES PROVIDE A SIGNIFICANT CHALLENGE: THERE AREN'T THAT MANY PATIENTS TO PARTICIPATE IN CLINICAL RESEARCH. THE CROWD CARE FOUNDATION AIMS TO PROMOTE CLINICAL TRIAL PARTICIPATION TO HELP ACCELERATE THE PACE OF MEDICAL RESEARCH. THE MYELOMA CROWD RADIO AND ALS CROWD RADIO SHOWS INTERVIEW TOP RESEARCHERS AND ENCOURAGE PATIENTS TO JOIN CLINICAL TRIALS IN THEIR RESPECTIVE DISEASE STATES. THESE SHOWS GIVE PATIENTS INSIGHT INTO THE LATEST RESEARCH BEING PERFORMED. ADDITIONALLY, THE MYELOMA CROWD RESEARCH INITIATIVE IS A CROWDSOURCED AND CROWDFUNDING RESEARCH PROJECT TO FIND AND FUND THE BEST RESEARCH FOR HIGH-RISK MYELOMA PATIENTS. THE MCRI IS NOW FUNDING TWO IMMUNOTHERAPY PROJECTS: DR. HERMANN EINSELE AND DR. MICHAEL HUDECEK AT THE UNIVERSITY OF WURZBURG AND DR. IVAN BORRELLO AT JOHNS HOPKINS. ALS CROWD IS DEVELOPING A DATA AGGREGATE SYSTEM FOR ALS PATIENTS TO IDENTIFY KEY DRIVERS AND BIOMARKERS TO BETTER DEFINE THE DISEASE. 5345 DATA SOLUTIONS (DS): THE MYELOMA CROWD LAUNCHED THE HEALTHTREE DATA SOLUTIONS INITIATIVE AS A DECISION TREE SUPPORT TOOL FOR PATIENTS. THIS INITIATIVE WILL SERVE AS BOTH A PATIENT EDUCATION AND RESEARCH TOOL. TODAY THERE ARE A WIDE VARIETY OF AVAILABLE TREATMENT OPTIONS FOR MYELOMA PATIENTS. KNOWING HOW TO BEST STAGE AND TIME THESE OPTIONS IS BOTH AN ART AND SCIENCE. WITH INPUT FROM TOP MYELOMA EXPERTS, THE POSSIBLE TREATMENT COMBINATIONS WILL BE IDENTIFIED AND PRESENTED TO PATIENTS. AS THEY USE THE TOOL, IMPORTANT PATIENT DATA WILL BE GATHERED, HELPING RESEARCHERS IDENTIFY NEW OPPORTUNITIES FOR CLINICAL TRIALS AND BEST PRACTICES. 503774 true true false false false false false false false false true false false false false false false false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 4 0 2 true false false false false false false false false false false false false X 5 5 true false false false false false false true true false false true true true true false false false false false UT X X JENNIFER AHLSTROM 8019491034 3315 MAYFLOWER DRIVE 1 LEHI UT 84043 X NEAL HARRIS BOARD MEMBER 1.00 X 0 0 0 SETH CHRISTENSEN BOARD MEMBER 1.00 X 0 0 0 MICHAEL WOLFGRAMM BOARD MEMBER 1.00 X 0 0 0 JENNIFER AHLSTROM PRESIDENT 60.00 X 0 0 0 SONDRA HUDGENS SECRETARY/TR 1.00 X 0 0 0 false false false 636693 636693 1042 -1042 -1042 -1042 MISCELLANEOUS 191 191 191 635842 -851 X 110000 110000 200000 200000 7659 7659 850 850 5158 5158 162563 157931 4632 16679 16679 16570 1243 15327 552 552 15997 15997 1436 957 479 FUNDRAISING EVENTS (PSA) 16295 16295 MCRI 328 328 BUSINESS LICENSE 229 229 NEWSLETTER 87 87 554403 503774 34334 16295 122180 213830 9685 2549 4192 7136 126372 220966 10112 23267 10112 23267 X 116260 197699 116260 197699 126372 220966 81439 X false false false X 41100 56060 94515 218003 636693 1046371 41100 56060 94515 218003 636693 1046371 801293 245078 1046371 191 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4263 2375 1888 5422 174 5248 7136 EUROPE IMMUNOTHERAPY PROJ. 200000 WIRE TRANSFER 1 false false false false false false false JOHNS HOPKINS UNIVERSITY 3400 N CHARLES STREET BALTIMORE MD 21218 520595110 501C3 100000 IMMUNOTHERAPY PROJ. ALDEVRON 4837 AMBER VALLEY PARKWAY FARGO ND 58104 10000 CAR T CELL RESEARCH FORM 990, PAGE 2, PART III, LINE 4B DR. MICHAEL HUDECEK AT THE UNIVERSITY OF WURZBURG AND DR. IVAN BORRELLO AT JOHNS HOPKINS. ALS CROWD IS DEVELOPING A DATA AGGREGATE SYSTEM FOR ALS PATIENTS TO IDENTIFY KEY DRIVERS AND BIOMARKERS TO BETTER DEFINE THE DISEASE. FORM 990, PAGE 6, PART VI, LINE 2 JENNIFER AHLSTROM SONDRA HUDGENS PRESIDENT SECRETARY/TR SISTERS FORM 990, PAGE 6, PART VI, LINE 11B A COPY OF THE RETURN IS PROVIDED TO BOARD MEMBERS VIA EMAIL. FORM 990, PAGE 6, PART VI, LINE 12C COVERED ANNUALLY VIA BOARD MEETINGS. FORM 990, PAGE 6, PART VI, LINE 19 CROWDCARE FOUNDATION HAS NOT MADE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, OR FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC. FORM 990, PART IX, LINE 11G WEB DEVELOPMENT (PSA) 461 0 0 WEB DEVELOPMENT (SCT) 461 0 0 MYELOMA CROWD RADIO (PSA) 731 0 0 MYELOMA CROWD RADIO (SCT) 731 0 0 ALS CROWD RADIO SHOW (PSA) 233 0 0 OUTSIDE CONTRACT SERVICES 0 4,002 0 ALS CROWD DATABASE (PSA) 190 0 0 MYELOMA CROWD TV 3,694 0 0 MYELOMA CROWD WEBSITE DEVELOP 9,624 0 0 MUSCLES FOR MYELOMA 7,758 0 0 HEALTH TREE (PSA) 2,472 0 0 HEALTH TREE (DS) 5,345 0 0 MYELOMA CROWD ROUNDTABLES 122,890 0 0 PATIENT PROGRAM EXPENSES 500 0 0 MYELOMA CROWD STORE GOODS 2,841 0 0 COMPUTERS 0 630 0 TOTAL 157,931 4,632 0