2017-11-15T10:55:13-06:00 2017-06-30 930900579 McDonald Jacobs PC 520 SW Yamhill St Ste 500 Portland OR 97204 990 2016-07-01 930571472 National Psoriasis Foundation NATI 5032447404 6600 SW 92nd Avenue No 300 Portland OR 97223 RANDY BERANEK PRESIDENT/CEO 5032447404 2017-11-09 1 Sang Ahn P00540880 5032270581 50.204.228.78 2017-11-09 16:46:42 PS P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 F74B9DFC7FD5904B3E846088258ABE934E3FBCF2 2016 2017-02-10 21:41:12Z RANDY BERANEK 6600 SW 92nd Avenue No 300 Portland OR 97223 16530028 0 X WWW.PSORIASIS.ORG X 1968 OR TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED. 17 17 82 9100 566498 -500 9161189 13602330 611101 610080 192279 522279 -489913 -233285 9474656 14501404 1495327 2589414 0 0 4968864 5669243 34934 25135 1939205 4472147 4382580 10971272 12666372 -1496616 1835032 6546778 9454231 1368180 2686484 5178598 6767747 X THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE. 0 0 4507083 2498913 43582 RESEARCH AND PROFESSIONAL EDUCATIONDIRECTLY SUPPORTING 23 RESEARCH PROJECTS AND EMERGING RESEARCHERS THROUGH RESEARCH GRANTS. AWARDED 9 MEDICAL RESEARCH FELLOWSHIPS DESIGNED TO INCREASE THE NUMBER OF PHYSICIAN RESEARCHERS INVESTIGATING PSORIATIC DISEASES, LEADING TO MORE DISCOVERIES, BETTER TREATMENTS AND ULTIMATELY, A CURE. MORE THAN 17 MILLION HAS BEEN COMMITTED TO RESEARCH SINCE OUR INCEPTION.HOSTED PROFESSIONAL EDUCATION FOR MEDICAL PROFESSIONALS, DERMATOLOGY RESIDENTS AND RHEUMATOLOGY FELLOWS TO LEARN ABOUT THE LATEST ADVANCEMENTS IN TREATMENTS AND THE MANAGEMENT OF PSORIATIC DISEASE. HOSTED 19 EARLY CAREER RESEARCHERS AT A SCIENTIFIC SYMPOSIUM.PROMOTED PATIENT INVOLVEMENT IN RESEARCH STUDIES AND CLINICAL TRIALS.CONTINUE TO MAINTAIN THE NATIONAL PSORIASIS VICTOR HENSCHEL BIOBANK, AIDING IN THE SEARCH FOR SPECIFIC GENES THAT CAUSE PSORIASIS AND PSORIATIC ARTHRITIS. HOST AN ON-LINE COMMUNITY CALLED CITIZEN PSCIENTIST TO CONNECT PATIENTS WITH RESEARCH AND ESTABLISHED INFRASTRUCTURE FOR A NATIONWIDE RESEARCH AMBASSADORS PROGRAM.PUBLISHED THE JOURNAL OF PSORIASIS AND PSORIATIC ARTHRITIS, A PEER-REVIEWED MEDICAL JOURNAL TO PROVIDE RHEUMATOLOGISTS, DERMATOLOGISTS AND OTHER MEDICAL PROFESSIONALS WITH THE LATEST RESEARCH AND TREATMENT INFORMATION.LEAD DISCUSSIONS WITH HEALTH POLICY AND REGULATORY GROUPS TO IMPROVE HEALTH OUTCOMES MEASURES AND REMOVE BARRIERS TO CARE. 1210351 ADVOCACYTHE FOUNDATION'S ADVOCACY PRIORITIES ARE FOCUSED ON STRATEGIES THAT PROMOTE FEDERAL RESEARCH EFFORTS AND ENSURE INDIVIDUALS LIVING WITH PSORIATIC DISEASES HAVE FAIR AND AFFORDABLE ACCESS TO NEEDED TREATMENTS. HARNESSING THE COLLECTIVE EFFORTS OF TENS OF THOUSANDS OF ADVOCATES, THE PSORIASIS FOUNDATION WORKED THROUGH ADVOCACY EFFORTS AT THE STATE AND FEDERAL LEVEL: TO MAKE INSURANCE FAIR AND AFFORDABLE AND HELP IMPROVE COVERAGE FOR PEOPLE WITH PSORIATIC DISEASE, HELP SET PUBLIC HEALTH POLICY FOR PSORIASIS AND PSORIATIC ARTHRITIS THROUGH THE FINDINGS FROM DATA COLLECTION AT THE CENTERS FOR DISEASE CONTROL (CDC), WORKED TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSORIATIC ARTHRITIS TREATMENTS, AND INCREASE FEDERAL FUNDING FOR PSORIASIS AND PSORIATIC ARTHRITIS RESEARCH IN ORDER TO FIND BETTER TREATMENTS AND A CURE. 4023113 90501 3101 EDUCATION, OUTREACH AND PATIENT SERVICESPUBLISHED INFORMATION ON LIVING WELL WITH PSORIATIC DISEASES, AS WELL AS THE LATEST SCIENCE AND TREATMENT UPDATES FOR 216,000 READERS OF PSORIASIS ADVANCE MAGAZINE AND OTHER PRINT PUBLICATIONS.ASSISTED 5,136 PATIENTS THROUGH THE PATIENT NAVIGATION CENTER WHICH OFFERS FREE GUIDANCE ON LIVING A HEALTHY LIFE WITH PSORIASIS AND PSORIATIC ARTHRITIS BY WORKING ONE ON ONE WITH PATIENTS TO FIND SPECIALISTS, ACCESS NEW MEDICINES AND CONNECTIONS TO OTHERS WHO ARE LIVING WITH PSORIATIC DISEASE.PROVIDED COMPREHENSIVE RESOURCES AT WWW.PSORIASIS.ORG AND OTHER SITES FOR 3.6 MILLION UNIQUE VISITORS.SENT EDUCATIONAL E-NEWSLETTERS TO MORE THAN 150,000 SUBSCRIBERS.BROADCASTED 12 PATIENT EDUCATIONAL WEBINARS WITH A TOTAL OF 1808 LIVE ATTENDEES AND MORE THAN 12,000 ENDURING VIEWS. PROVIDED PERSONAL PEER SUPPORT TO 152 NEW PARTICIPANTS IN THE PSORIASIS ONE TO ONE PROGRAM.HOSTED 15 MORE THAN SKIN DEEP AND 3 BE JOINT SMART EDUCATIONAL EVENTS ATTRACTING MORE THAN 600 PARTICIPANTS. ENGAGED 4020 VOLUNTEERS THROUGH NON-FUNDRAISING PROGRAMS AND EVENTS. 9740547 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 77 0 82 1 1 1 0 0 0 0 1 1 0 0 0 1 0 X 17 17 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X BETTE DRAKE 5032447404 6600 SW 92nd Avenue No 300 Portland OR 97223 COLBY EVANS MD CHAIR 1.00 X X 0 0 0 PETE REDDING Chair-elect 1.00 X X 0 0 0 CHIP NEWTON vice-chair 1.00 X X 0 0 0 CAROL OSTROW secretary 1.00 X X 0 0 0 TERRI THEISEN treasurer 1.00 X X 0 0 0 STEVE BISHKOFF DIRECTOR 1.00 X 0 0 0 HOLLY FIELDS KRAFSUR DIRECTOR 1.00 X 0 0 0 MATTHEW KISELICA DIRECTOR 1.00 X 0 0 0 MIKE LAUB DIRECTOR 1.00 X 0 0 0 BEN LOCKSHIN MD DIRECTOR 1.00 X 0 0 0 RON GRAU DIRECTOR 1.00 X 0 0 0 ABBY VAN VORHEES MD dIRECTOR 1.00 X 0 0 0 NATE PAUL DIRECTOR 1.00 X 0 0 0 PETE MILLER DIRECTOR 1.00 X 0 0 0 JASON LICHTEN MD DIRECTOR 1.00 X 0 0 0 RICK SEIDEN DIRECTOR 1.00 X 0 0 0 MARK OBERMAN DIRECTOR 1.00 X 0 0 0 RANDY BERANEK President/CEO 40.00 X 297110 0 24324 LEAH HOWARD VP GOVERNMENT RELATIONS & ADVOCACY 40.00 X 145279 0 9667 BRIDGET HART DIRECTOR OF MAJOR GIFTS 40.00 X 130589 0 22318 SALLY NORBY VP TRAINING & ORG DEVELOPMENT 40.00 X 122518 0 18461 JULES GREENWALD DIRECTOR OF MAJOR GIFTS 40.00 X 121097 0 12918 JEREMY HALL DIRECTOR OF FIELD OPERATIONS 40.00 X 119485 0 17761 936078 0 105449 6 0 1 0 CONVERO 835 SHARON DRIVE SUITE 200 CLEVELAND OH 44145 PUBLICATION DEVELOPMENT AND DISTRIBUTION 222658 FAEGRE BAKER DANIELS LLP 1050 K STREET NW WASHINGTON DC 20001 CONSULTING 208802 PACIFIC MARKETING & PUBLISHING 9304 SE MAIN ST MILWAWUKIE OR 97222 DIRECT MAIL FULFILLMENT 123325 3 120894 2683189 10798247 743990 13602330 ADVERTISING INCOME 541800 566498 566498 CONSULTING 532000 43582 43582 610080 62020 62020 2252497 1792238 460259 460259 460259 0 2683189 236386 -236386 -236386 3101 0 3101 3101 14501404 46683 566498 285893 2389414 2389414 200000 200000 326317 250722 28743 46852 4224826 3246093 372134 606599 173771 133515 15306 24950 563150 432689 49604 80857 381179 292874 33575 54730 26910 22453 2025 2432 41300 41300 210750 210750 25135 25135 33517 33517 1036595 885442 57559 93594 16363 11083 5280 918103 438061 114511 365531 355650 307907 16533 31210 582875 320769 147921 114185 526297 448896 40472 36929 41762 32450 3649 5663 29684 22747 2649 4288 Special Events 415637 415637 Dues and Subscriptions 87774 69477 1920 16377 Bad Debt 21964 21964 Staff Education & Train 17150 9584 1548 6018 20249 15621 1690 2938 12666372 9740547 986620 1939205 X 312914 156457 0 156457 559070 1936543 113090 134267 1935697 2335480 159464 138174 29839 20767 218834 362682 694431 555879 143025 138552 3356668 4357159 31091 30607 6546778 9454231 1191569 2476745 176611 209739 1368180 2686484 X 2490840 3111739 2687758 3656008 5178598 6767747 6546778 9454231 1835032 -245883 0 X X 0 1 X 1 0 X 6743692 8404896 8705798 9161189 13602330 46617905 6743692 8404896 8705798 9161189 13602330 46617905 16650164 29967741 84774 84661 84329 76192 62020 391976 47009881 1328412 0.63750 0.64290 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 14388 401231 415619 10278031 10693650 684683 171171 0 0 545781 561791 629898 684683 2422153 3633230 357816 404532 430866 415619 1608833 136445 140448 157475 171171 605539 908309 34188 16786 17322 14388 82684 5335394 240633 5576027 5562686 23940 -51232 200000 5335394 5418985 189359 -45658 5562686 4839410 350615 513960 285000 5418985 4433255 506647 159508 260000 4839410 1.00000 0 0 15698 14298 1400 653953 539516 114437 24780 2065 22715 138552 DEFERRED RENT 96868 GIFT ANNUITY LIABILITY 37445 DEFERRED COMPENSATION 75426 209739 X 14230104 -245883 8100 -237783 14467887 33517 33517 14501404 12640955 8100 8100 12632855 33517 33517 12666372 Part V, Line 4: THE ENDOWMENT WILL BE USED FOR SUPPORT OF THE ORGANIZATION'S EXEMPT PURPOSE, LIMITED TO FIVE PERCENT OF PRINCIPAL PER YEAR, AS WELL AS SUBJECT TO APPROVAL. Part X, Line 2: THE ORGANIZATION FOLLOWS THE PROVISION OF FASB ASC TOPIC OF ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND CONCLUDED THAT THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS TOPIC. 1 0 0 0 0 0 0 0 0 0 Europe (Including Iceland & Greenland) Research-Fellowship 50000 CHECK North America Research-Fellowship 50000 CHECK Europe (Including Iceland & Greenland) Research-Translational grant 100000 CHECK 3 0 0 0 0 0 0 Part I, Line 2: Grant recipients with multi-year awards provide interim scientific andl progress reports. All grant recipients provide a final scientific report and accounting at the conclusion of the research term. The interim and final reports are reviewed by the VP of Research Programs of the National Psoriasis Foundation. X X X X X X 1 ARIA COMMUNICATIONS 717 WEST ST GERMAIN STREET ST CLOUD MN 56301 PHONE CAMPAIGN 0 17216 25135 -7919 17216 25135 -7919 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY TEAM NPF 1819114 1819114 58598 2776 7282 CTC Galas 864075 864075 1023 164459 2248 2683189 2683189 59621 167235 9530 236386 -236386 Schedule G, Part I, Line 2b, Column (v) Expenses are separately itemized and billed from fundraising fees. 1 Beth Israel Deaconess Medical Center 330 Brookline Avenue Boston MA 02215 042103881 501(c)(3) 50000 Fellowship Case Western Reserve University 10900 Euclid Ave Cleveland OH 44106 341018992 501(c)(3) 100000 Bridge East Bay Institute for Research and Education PO Box 1908 Rancho Cordova CA 95741 680177975 501(c)(3) 50000 Fellowship Eastern Virginia Medical School PO Box 1980 Norfolk VA 23501 546055378 501(c)(3) 41667 Fellowship Eastern Virginia Medical School PO Box 1980 Norfolk VA 23501 546055378 501(c)(3) 75000 Discovery Icahn School of Medicine at Mount Sinai 5 East 98 Street New York NY 10029 136171197 501(c)(3) 50000 Fellowship Massachusetts General Hospital 125 Nashau St Boston MA 02114 041564655 501(c)(3) 75000 Discovery National Heart Lung and Blood Institute 31 Center Drive Bethesda MD 20892 520858115 501(c)(3) 100000 NIH-NPF Fellowship - 1st year New York University School of Medicine PO Box 4105026 Boston MA 02241 135562308 501(c)(3) 50000 Early Career Regents of the University of California PO Box 989062 West Sacramento CA 95798 946036494 501(c)(3) 50000 Fellowship Regents of the University of California San Francisco PO Box 0897 San Francisco CA 94143 946036493 501(c)(3) 75000 Discovery Regents of the University of Michigan Mellon Bank Box 223131 Pittsburgh PA 15251 386006309 501(c)(3) 75000 Discovery Regents of the University of Michigan Mellon Bank Box 223131 Pittsburgh PA 15251 386006309 501(c)(3) 75000 Discovery Regents of the University of Michigan Mellon Bank Box 223131 Pittsburgh PA 15251 386006309 501(c)(3) 100000 Translational - 1st year Regents of the University of Michigan Mellon Bank Box 223131 Pittsburgh PA 15251 386006309 501(c)(3) 50000 Psoriatic Arthritis - 2nd year renewal Regents University of California Los Angeles 11000 Kinross Ave Los Angeles CA 90095 956006143 501(c)(3) 75000 Discovery Regents University of California Los Angeles 405 Hilgard Ave Los Angeles CA 90095 956006143 501(c)(3) 50000 Early Career Stanford University 269 Campus Dr Stanford CA 94305 941156365 501(c)(3) 100000 Translational - 2nd year The Board of Trustees of the University of Illinois 28395 Network Place Chicago IL 60673 376000511 501(c)(3) 100000 Translational - 1st year The Cleveland Clinic Foundation PO Box 931531 Cleveland OH 44193 340714585 501(c)(3) 75000 Discovery The Feinstein Institute for Medical Research 350 Community Dr Manhasset NY 11030 112673595 501(c)(3) 75000 Public Health The Rockefeller University 1230 York Ave New York NY 10065 131624158 501(c)(3) 50000 Early Career Trustees of the University of Pennsylvania 3545 Walnut Street Philadelphia PA 19104 231352685 501(c)(3) 50000 Fellowship Trustees of the University of Pennsylvania 3545 Walnut Street Philadelphia PA 19104 231352685 501(c)(3) 50000 Early Career Trustees of the University of Pennsylvania 3545 Walnut Street Philadelphia PA 19104 231352685 501(c)(3) 75000 Discovery Trustees of the University of Pennsylvania 3545 Walnut Street Philadelphia PA 19104 231352685 501(c)(3) 50000 Early Career University Health Network 140 ELLINGTON ST LONGMEADOW MA 01106 986000971 501(c)(3) 49728 Early Career University Of Florida Board of Trustees PO Box 115500 Gainesville FL 32611 592729133 501(c)(3) 75000 Discovery University of Louisville Research Foundation Inc 300 East Market St Louisville KY 40202 611029626 501(c)(3) 100000 Bridge University of Rochester 910 Genesee St Rochester NY 14611 160743209 501(c)(3) 75000 Discovery University Of Southern California 3500 S Figueroa Street Los Angeles CA 90089 951642394 501(c)(3) 50000 Fellowship University of Utah 30 N 1900 East School of Med Salt Lake City UT 84132 876000525 501(c)(3) 75000 Discovery Washington University 700 Rosedale Ave St Louis MO 63112 430653611 501(c)(3) 100000 Translational - 1st year 25 Part I, Line 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE DIRECTOR OF RESEARCH PROGRAMS OF THE NATIONAL PSORIASIS FOUNDATION. X X 0 0 0 0 0 0 0 0 0 RANDY BERANEK President/CEO 276603 0 20507 0 0 0 13250 0 11074 0 321434 0 0 0 LEAH HOWARD VP GOVERNMENT RELATIONS & ADVOCACY 145279 0 0 0 0 0 7586 0 2081 0 154946 0 0 0 BRIDGET HART DIRECTOR OF MAJOR GIFTS 130589 0 0 0 0 0 6876 0 15442 0 152907 0 0 0 X 12 743990 SALE PRICE 0 1 1 Part I, Line 32b: THE ORGANIZATION USES AN OUTSIDE COMPANY THAT RECEIVES DONATED AUTOMOBILES AND SELLS THEM ON BEHALF OF THE ORGANIZATION. Form 990, Part VI, Section B, line 11b THE FORM 990 IS EMAILED TO ALL BOARD MEMBERS FOR THEIR REVIEW PRIOR TO ITS BEING FILED ELECTRONICALLY WITH THE IRS. Form 990, Part VI, Section B, line 12c WE HAVE A CONFLICT OF INTEREST POLICY THAT IS SIGNED BY ALL DIRECTORS ANUALLY. ALL DIRECTORS AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. Form 990, Part VI, Section B, line 15 THE BOARD OF DIRECTORS ANNUALLY REVEIWS AND APPROVES THE CEO'S COMPENSATION. THE FOUNDATION UTILIZES AN INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY FOR COMPARABLE INFORMATION FOR SALARIES. Form 990, Part VI, Section C, line 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AUDTIED FINANCIAL STATEMENTS ARE ALSO DISPLAYED ON THE WEBSITE. Form 990, Part XII, Line 2c: THE PROCESS HAS NOT CHANGED.