2017-11-13T11:46:21-06:00 2016-12-31 521855942 Tate and Tryon 2021 L Street NW Suite 400 Washington DC 20036 990 2016-01-01 521419397 AMERICAN SOCIETY OF HUMAN GENETICS AMER 3016347300 9650 ROCKVILLE PIKE BETHESDA MD 20814 MONA MILLER EXECUTIVE DIRECTOR 3016347300 2017-11-13 1 Deborah G Kosnett P00290720 2022932200 2017-11-09 216.59.105.130 2017-11-13 11:46:19 ES P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 E907A8F149D67D06177CCD6DEBFA17496A4235B9 2016 2018-03-14 21:41:22Z MONA MILLER 9650 ROCKVILLE PIKE BETHESDA MD 20814 20931949 0 X http://www.ashg.org/ X 1985 MD The American Society of Human Genetics is established to bring into close contact investigators in the many general fields of genetic research, to encourage and integrate research in human genetics, and to deal with other related issues. 16 15 27 15 142685 83624 139672 179247 5437899 5531735 353237 424949 1547048 1617956 7477856 7753887 169850 239317 0 0 2505002 2728002 0 57750 57750 3624421 3961999 6299273 6987068 1178583 766819 17782686 18802119 852492 855937 16930194 17946182 X Our mission is to advance human genetics in science, health, and society through excellence in research, education, and advocacy. 0 0 3087574 74930 4432989 Annual Meeting - The Society organizes meetings attended by members, students, and others who have a common interest in recent developments and research in the field of genetics. 912124 2000 90562 Journal and other professional publications - The Society provides a monthly journal entitled The American Journal of Human Genetics that keeps members and other subscribers abreast of current research and trends in the genetic field. 830682 8228 Education - ASHG's primary educational objectives are to promote awareness of human genetics, encourage young people to enter genetics-related careers, and foster trust and support for genetics research. ASHG accomplishes those goals by educating students, health care professionals, health policy makers, the media, and the public about human genetics and its translation to health care practice. 301236 154159 1008184 MEMBERSHIP 424381 FELLOWSHIPS AND PUBLIC POLICY 725617 154159 1008184 5555997 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 1 1 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 60 0 1 27 1 1 1 0 0 0 0 0 0 0 X 16 15 0 0 0 0 1 1 0 1 0 0 0 0 1 1 1 1 1 1 0 0 MD X ASHGCHARLES WINDLE 3016347300 9650 ROCKVILLE PIKE BETHESDA MD 20814 Harry C Dietz MD PRESIDENT 2.00 X X 0 0 0 Nancy J Cox PhD President-Elect 1.00 X X 0 0 0 Neil J Risch PAST PRESIDENT 1.00 X X 0 0 0 BRENDAN LEE MD PHD SECRETARY 1.00 X X 0 0 0 GEOFFREY M DUYK MD PHD TREASURER 1.00 X X 0 0 0 Gorka Alkorta-Aranburu PhD DIRECTOR 1.00 X 0 0 0 William A Gahl MD PHD DIRECTOR 1.00 X 0 0 0 Joel N Hirschhorn DIRECTOR 1.00 X 0 0 0 Gail P Jarvik DIRECTOR 1.00 X 0 0 0 Nicholas Katsanis PhD DIRECTOR 1.00 X 0 0 0 Elaine Ann Ostrander PhD DIRECTOR 1.00 X 0 0 0 Charles N Rotimi PhD Director 1.00 X 0 0 0 Stephen W Scherer PHD Director 1.00 X 0 0 0 Sarah A Tishkoff PhD Director 1.00 X 0 0 0 Gert-Jan B van Ommen PhD DireCTOR 1.00 X 0 0 0 David L Nelson PhD Editor in Chief 20.00 X X 61992 0 0 Joseph McInerney Executive Vice President 40.00 X 309318 0 39529 Charles Windle Director of Finance and Admin 20.00 20.00 X 86719 86719 4682 Michael Dougherty Director of Education 40.00 X 165765 0 40840 Yimang Chen Director of IT 24.75 12.75 X 103728 53436 41111 Pauline Minhinnett Director of Meetings 40.00 X 140967 0 19894 Derek Scholes Director of Policy 40.00 X 148617 0 38223 Lucia Barker Program Manager 37.50 X 113401 0 26594 Hongqiang Zgang IT Project Lead 16.50 21.00 X 51870 66016 40322 1182377 206171 251195 6 0 1 0 Baylor College of Medicine PO Box 301207 Dallas TX 75303 PROFESSIONAL EDITING SERVICES 325070 freeman Inc PO BOX 650036 Dallas TX 75265 MEETING SERVICES 319158 2 109200 70047 179247 annual meeting 900099 4432989 4378489 54500 membership dues 900099 1008184 1008184 journal & other pubs 541800 90562 2377 88185 5531735 318048 318048 1603223 1603223 34100 34466 -366 -366 -366 13250497 13143596 106901 106901 106901 MAILING LIST 900004 14550 14550 miscellaneous 900099 549 549 15099 7753887 5389050 142685 2042905 55318 55318 134670 134670 49329 49329 997586 727217 270369 1323703 953052 370651 132479 98828 33651 131272 110178 21094 142962 114549 28413 2945 2945 61437 61437 57750 57750 57431 57431 150465 94314 56151 36090 7436 28654 229477 151294 78183 72152 72152 139711 139711 264121 189943 74178 1885222 1872977 12245 1797 1797 12086 12086 UBIT TAX 24201 24201 Journal 892105 892105 DUES AND FEES 97987 95553 2434 Professional Developmen 19435 7478 11957 15337 1756 13581 6987068 5555997 1373321 57750 1578926 1230899 661337 363348 311408 158856 35497 32266 1918 3231 15229097 17045785 17782686 18802119 344542 413335 507950 442602 852492 855937 X 16930194 17886182 60000 16930194 17946182 17782686 18802119 766819 249169 0 X X 0 1 X 1 0 X 316767 173758 80164 139672 179247 889608 5064563 5280043 5107550 5011770 5389050 25852976 5381330 5453801 5187714 5151442 5568297 26742584 3040 3040 0 3040 3040 26739544 1534781 1486310 1552059 1701813 1955371 8230334 86295 61985 56380 58981 66942 330583 1621076 1548295 1608439 1760794 2022313 8560917 80802 84985 71640 53112 15099 305638 7083208 7087081 6867793 6965348 7605709 35609139 0.75090 0.75270 0.24040 0.23570 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 1 0 1 856 1 856 0 1 6850 0 1 18368 26930 0 Part II-B, Line 1: --Line 1d: sending letters to members of Congress expressing the society's perspective on pending legislation. --Line 1e: Developing statements declaring the Society's position on legislation and proposed regulations. --Line 1g: meetings, phone calls and emails with Congressional staff and members of Congress. --Line 1i: lobbying expenses paid thru dues to FASEB. 32063 28832 3231 3434 3434 0 3231 7980091 249169 249169 7730922 57431 -34466 22965 7753887 6964103 34466 34466 6929637 57431 57431 6987068 Part XI, Line 4b - Other Adjustments: RENTAL EXPENSE -34,466. Part XII, Line 2d - Other Adjustments: RENTAL EXPENSE 34,466. 1 East Asia and the Pacific 0 0 GRANTMAKING 12690 Middle East and North Africa 0 0 GRANTMAKING 2311 Europe (Including Iceland & Greenland) 0 0 GRANTMAKING 10713 North America 0 0 GRANTMAKING 23615 North America 0 0 PROGRAM SERVICES 2016 ANNUAL MEETING 313579 0 0 0 0 0 0 362908 0 362908 North America PROGRAM SUPPORT 10000 CHECK 1 0 DNA Day Awards East Asia and the Pacific 1 400 CHECK Epstein Awards East Asia and the Pacific 1 750 CHECK Devoloping Countries Awards Middle East and North Africa 1 2311 WIRE Devoloping Countries Awards Europe (Including Iceland & Greenland) 2 4213 WIRE Epstein Awards Europe (Including Iceland & Greenland) 4 6500 CHECK DNA Day Awards North America 1 100 CHECK Epstein Awards North America 2 1500 CHECK Teen Genes Awards North America 1 150 CHECK Travel Awards North America 4 7365 CHECK Devoloping Countries Awards East Asia and the Pacific 5 11140 WIRE 0 0 0 0 0 0 Part I, Line 2: The Developing Countries awards are only offered to awardees after they attend the meeting. They are meant to cover the awardee's travel expenses. The other awards, SUCH Epstein Awards, DNA Day Awards, and Teen Genes Awards, are not monitored when the awardees reside outside the United States. X X 1 Nancy Jefferys 18 Wheeler Road Lexington MA 02420 FUNDRAISING SOLICITATIONS 0 60000 57750 2250 60000 57750 2250 MD 1 National Academy of Sciences 500 5th Street NW Washington DC 20001 530196932 501c3 12000 support of genomic based research American Board of Medical Genetics and Genomics 9650 Rockville Pike Bethesda MD 20814 953512145 501c3 15000 Support grant National Society of Genetic Counselor 330 N Wabash Ave Suite 2000 Chicago IL 60611 133052488 501c6 20000 support genetic counselor workforce study 2 1 William Allan Award 1 25000 Curt Stern Award 1 10000 Arno Motulsky - Barton Childs Award 1 10000 CW Cotterman Awards 2 2000 DNA Day Awards 12 2900 Teen Genes Awards 7 1800 Travel Awards 9 16720 Mentorship Award 1 10000 McKusick Leadership Award 1 10000 Charles Epstein Awards 49 46250 Part I, Line 2: If funds are distributed to an entity as general support, the purpose of the entity is analyzed to determine if the strategic goals of the entity are alligned with ASHG. If the grants are given for a specific purpose, grant procedures must be followed that include but are not limited to substantiation of expenditures, written proposals describing purpose of request, and budget submissions for proposals. X 1 1 X X X X X 0 0 0 0 0 0 0 0 0 Joseph McInerney Executive Vice President 265243 0 0 0 44075 0 24000 0 16501 0 349819 0 0 0 Charles Windle Director of Finance and Admin 85600 85600 0 0 1119 1119 2015 2015 776 776 89510 89510 0 0 Michael Dougherty Director of Education 164499 0 0 0 1266 0 24000 0 17786 0 207551 0 0 0 Yimang Chen Director of IT 103194 53161 0 0 534 275 11880 6120 15867 8174 131475 67730 0 0 Pauline Minhinnett Director of Meetings 140290 0 0 0 677 0 11150 0 9536 0 161653 0 0 0 Derek Scholes Director of Policy 147871 0 0 0 746 0 18000 0 21081 0 187698 0 0 0 Hongqiang Zgang IT Project Lead 51698 65797 0 0 172 219 7717 9821 10333 13152 69920 88989 0 0 Part I, Line 1a The Executive vice president's housing allowance is a specified amount detailed in his employment contract. the housing allowance is treated as taxable compensation to the executive vice president. Form 990, Part VI, Section A, line 1 The EXECUTIVE COMMITTEE consists of the President, President-elect, Immediate Past President, Executive Vice President, Secretary and Treasurer. The Executive Committee shall be authorized, subject to review by the Board, to act on behalf of the Board between meetings. Form 990, Part VI, Section A, line 6 ASHG HAS THE FOLLOWING MEMBERSHIP CLASSES: REGULAR - OPEN TO ALL ELIGIBLE PERSONS. TRAINEE - OPEN TO POSTDOCTORAL FELLOWS, RESIDENTS AND BONA FIDE STUDENTS PARTICIPATING IN DEGREE-GRANTING PROGRAMS. EMERITUS - OPEN TO ALL PERSONS WHO HAVE RETIRED FROM THEIR POSITION OR PRACTICE WHO HAVE BEEN REGULAR MEMBERS OF ASHG FOR AT LEAST 5 YEARS. Form 990, Part VI, Section A, line 7a THE MEMBERSHIP ELECTS THE PRESIDENT-ELECT AND at least one-third of the DIRECTORS ANNUALLY, BY BALLOT. Form 990, Part VI, Section A, line 8b THE ORGANIZATION REQUIRES DOCUMENTATION AND MINUTES TAKEN FOR ALL BOARD MEETINGS WHICH ARE GENERALLY HELD TWICE PER YEAR. MOST MAJOR DECISIONS AND POLICES ARE DETERMINED AT THE BOARD MEETINGS. THE EXECUTIVE COMMITTEE, WHICH CONSISTS OF THE PRESIDENT, TREASURER, SECRETARY AND OTHER BOARD MEMBERS, MEET MONTHLY TO CARRY OUT THE DIRECTIVES OF THE BOARD. HOWEVER, THERE ARE NO MINUTES KEPT OF THE MONTHLY EXECUTIVE COMMITTEE MEETINGS. Form 990, Part VI, Section B, line 11b THE RETURN IS REVIEWED INTERNALLY BY THE CFO AND EXECUTIVE DIRECTOR BEFORE THE TREASURER AND FINANCE COMMITTEE RECEIVES THE RETURN FOR REVIEW. Form 990, Part VI, Section B, line 12c Each officer, board member, the Journal editor, committee member, the executive vice president, and any member acting in any way as the society's designated representative shall file a conflict of interest disclosure statement annually. The disclosure statements filed by officers, board members, the Journal editor, the committee members, and candidates for any of the aforesaid shall be reviewed by the executive vice president and the president. The disclosure statements filed by the president and the executive vice president shall be reviewed by the treasurer. Any individual governed by the policy who becomes aware of a possible conflict of interest during his or her tenure in an ASHG position shall promptly (within 30 days) disclose the relevant circumstances to the executive vice president and the president and recuse himself or herself until the matter has been reviewed. ASHG employees are also required to disclose potential conflicts of interest on an annual basis. Form 990, Part VI, Section B, line 15a a compensation committee determines the hiring and compensation of the ashg executive vice president. the committee reviews regional compensation surveys to determine a competitive price range for the position. Compensation and performance are reviewed annually by the executive committee. For other officers and key employees, regional compensation surveys are reviewed for each position to determine a competitive range for the position. The executive vice president makes the decision to hire new offcers and key employees, based on interviews by the search committee for staff positions. Form 990, Part VI, Section C, line 19 CONFLICT OF INTEREST STATEMENT, CODE OF ETHICS, BY LAWS, MINUTES OF MEETINGS ARE AVAILABLE ON THE ASHG WEBITE. OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2c: THE AUDIT OVERSIGHT PROCESS HAS REMAINED UNCHANGED FROM THE PRIOR YEAR.