2018-09-18T16:23:13-05:00 2017-12-31 221430039 SOBEL & CO LLC CPA'S 293 EISENHOWER PARKWAY LIVINGSTON NJ 070391711 990 2017-01-01 820547746 LIFE RAFT GROUP INC LIFE 9738379092 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 NORMAN J SCHERZER EXEC. DIRECTOR 9738379092 2018-09-18 1 BRIDGET HARTNETT P01429163 9739949494 2018-09-18 96.225.92.15 2018-09-18 15:03:38 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 338DD432CE3116FEF823C4CA9214FEB4C8E2204D 2017 2018-06-14 16:35:46Z NORMAN J SCHERZER 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 1143228 0 X WWW.LIFERAFTGROUP.ORG X 2002 NJ THE MISSION OF THE LIFE RAFT GROUP IS TO ENSURE SURVIVAL OF GIST PATIENTS THROUGH A COMPREHENSIVE APPROACH CONNECTING INDIVIDUAL PATIENTS' NEEDS, THE WORLDWIDE COMMUNITY OF GIST ADVOCATES AND THE GLOBAL HEALTH AND RESEARCH ENVIRONMENT. 7 7 21 30 0 0 898690 1003367 9184 285 17339 13838 29528 77429 954741 1094919 337500 30000 0 0 1259459 1351780 0 0 112317 770399 520197 2367358 1901977 -1412617 -807058 5244565 4427396 105048 94937 5139517 4332459 X OUR MISSION IS TO ENSURE THE SURVIVAL OF GIST PATIENTS THROUGH A COMPREHENSIVE APPROACH CONNECTING INDIVIDUAL PATIENTS' NEEDS, THE WORLDWIDE COMMUNITY OF GIST ADVOCATES AND THE GLOBAL HEALTH AND RESEARCH ENVIRONMENT. TO ACHIEVE THIS, WE FOCUS ON THREE KEY AREAS: PATIENT SUPPORT & EDUCATION, ADVOCACY, AND RESEARCH. 0 0 1147676 30000 RESEARCH: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER GIST (GASTROINTESTINAL STROMAL TUMORS) AND TO HELP THOSE LIVING WITH IT UNTIL THEN. TO ACHIEVE THIS, WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF GIST PATIENTS FOREMOST. THE LIFE RAFT GROUP HAS LEAD A COLLABORATIVE TEAM OF WORLD RENOWNED SCIENTISTS AND CLINICIANS IN GIST. LRG HAS THE LARGEST GIST PATIENT REGISTRY IN THE WORLD. OUR RESEARCH PARADIGM IS PATIENT-POWERED SCIENCE FOR LIFE, A COMPREHENSIVE APPROACH THAT COMPLEMENTS TRADITIONAL RESEARCH WITH REAL-WORLD EVIDENCE SUPPORTED BY DATA FROM OUR PROPRIETARY PLATFORMS, OUR GIST PATIENT REGISTRY, GIST/PRIME AND SIDEEQ, OUR SIDE EFFECTS MANAGEMENT TOOL. 455336 0 285 INFORMATION, EDUCATION AND ADVOCACY: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER-GIST (GASTROINTESTINAL STROMAL TUMORS) AND HELP THOSE LIVING WITH IT UNTIL THEN. THE LRG PROVIDES SUPPORT AND EDUCATION TO GIST PATIENTS, THEIR FAMILIES AND CAREGIVERS. EDUCATION IS PROVIDED THROUGH LOCAL GIST DAYS OF LEARNING AND OUR BIENNIAL MEETING (LIFEFEST) THAT GATHERS THE PATIENT, PHARMACEUTICAL AND MEDICAL PROFESSIONALS TOGETHER TO EDUCATE AND SUPPORT THE GIST COMMUNITY. OTHER EDUCATIONAL RESOURCES INCLUDE WEBCASTS, WEBSITE, A WORLDWIDE GIST SPECIALIST DATABASE, A ONE OF A KIND GIST- SPECIFIC CLINICAL TRIALS DATABASE, EXPERT PATIENT TRAINING COURSES, NEWSLETTERS AND OTHER MATERIALS AND EVENTS. 111767 PATIENT OUTREACH & SUPPORT: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER GIST (GASTROINTESTINAL STROMAL TUMORS) AND TO HELP THOSE LIVING WITH IT UNTIL THEN. THE LIFE RAFT GROUP PROVIDES SUPPORT TO GIST PATIENTS, THEIR FAMILIES AND CAREGIVERS THROUGH INTERVENTION AND REFERRAL CONSULTS. LOCAL SUPPORT IS AVAILABLE TO THE GIST COMMUNITY BY UTILIZING THE LRG NETWORK OF STATE LEADERS. OTHER PATIENT OUTREACH AND SUPPORT IS PROVIDED THROUGH EDUCATIONAL RESOURCES INCLUDE WEBCASTS, WEBSITE, A WORLDWIDE GIST SPECIALIST DATABASE, A ONE OF A KIND GIST- SPECIFIC CLINICAL TRIALS DATABASE, EXPERT PATIENT TRAINING COURSES, NEWSLETTERS AND OTHER MATERIALS AND EVENTS. 1714779 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 4 0 1 21 1 0 0 0 0 0 1 1 0 0 0 0 X 7 7 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 0 0 NJ X X X THE ORGANIZATION 9738379092 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 JERRY CUDZIL PRESIDENT 1.00 X X 0 0 0 STAN BUNN TRUSTEE 1.00 X 0 0 0 JIM HUGHES TRUSTEE 1.00 X 0 0 0 RODRIGO SALAS TRUSTEE 1.00 X 0 0 0 JOHN POSS TRUSTEE 1.00 X 0 0 0 TEENA PETERSOHN TRUSTEE 1.00 X 0 0 0 GARY GLASSER SECRETARY/TREASURER 1.00 X X 0 0 0 NORMAN J SCHERZER EXECUTIVE DIRECTOR 35.00 X 117797 0 10625 117797 0 10625 1 0 0 0 VDI EXPRESS LLC 16 KIMBERLY PLACE WAYNE NJ 07470 GENERAL IT SUPPORT 101121 1 100874 902493 1003367 EDUCATIONAL SEMINARS 611710 285 285 285 13838 13838 113850 100874 48309 65541 65541 OTHER 900099 11888 11888 11888 1094919 285 0 91267 X 10000 10000 20000 20000 128422 115580 5137 7705 1038460 934614 41538 62308 21109 18998 844 1267 66299 59669 2652 3978 97490 87741 3900 5849 9800 8820 392 588 199491 179542 7980 11969 630 568 24 38 46137 41524 1845 2768 10799 9719 432 648 132444 119199 5298 7947 55071 49563 2204 3304 3455 3109 139 207 6954 6258 279 417 COMMUNICATIONS 26003 23403 1040 1560 PRINTING & PUBLICATIONS 14990 13491 600 899 EDUCATIONAL SEMINAR EXP 9182 8264 367 551 POSTAGE 5241 4717 210 314 1901977 1714779 74881 112317 4223696 4404348 994168 0 4175 3977 147279 143159 7575 4120 14951 14951 5244565 4427396 105048 94937 105048 94937 X 4130517 3262384 1009000 1070075 5139517 4332459 5244565 4427396 -807058 0 X X 0 1 X 1 0 X 3059129 2777555 4129106 898690 1003367 11867847 3059129 2777555 4129106 898690 1003367 11867847 5862874 6004973 9136 9166 10472 17339 13838 59951 127 537 355 6320 11888 19227 11947025 571082 0.50260 0.53130 X 125353 121763 3590 21926 21396 530 4120 X 1095676 -9182 -9182 1104858 -9939 -9939 1094919 1902734 9939 9939 1892795 9182 9182 1901977 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIATION FOLLOWS ACCOUNTING STANDARDS THAT PROVIDE CLARIFICATION ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN THE ORGANIZATION'S FINANCIAL STATEMENTS. THE GUIDANCE PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, AND ALSO PROVIDES GUIDANCE ON DE-RECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, DISCLOSURE AND TRANSITION. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ON UNRECOGNIZED TAX BENEFITS IN INCOME TAX EXPENSE. NO INTEREST AND PENALTIES WERE RECORDED DURING THE YEAR ENDED DECEMBER 31, 2017. AT DECEMBER 31, 2017, THERE ARE NO SIGNIFICANT INCOME TAX UNCERTAINTIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: EDUCATIONAL SEMINAR EXPENSES INCLUDED IN NET SPECIAL EVENT REVENUE -9,182. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE -9,939. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES 9,939. PART XII, LINE 4B - OTHER ADJUSTMENTS: EDUCATIONAL SEMINAR EXPENSE 9,182. 0 0 0 0 0 0 0 0 0 0 SOUTH AMERICA CHILE DATA PROJECT 10000 WIRE TRANSFER NORTH AMERICA MEXICO DATA PROJECT 10000 WIRE TRANSFER 2 0 0 0 0 0 0 NIGHT TO FIGHT CANCER 201224 100874 100350 6500 11577 4070 19355 WATER OF LIFE 13500 0 13500 6223 584 214724 100874 113850 6500 17800 4070 19939 48309 65541 1 US SAN DIEGO FOUNDATION 9500 GILMAN DRIVE 0940 LA JOLLA CA 92093 952872494 501(C)(3) 10000 SDH DEFICIENT GIST RESEARCH 1 PART I, LINE 2: THE GRANT RECIPIENTS MUST SUBMIT REGULAR PROGRESS REPORTS, BUDGET REPORTS AND COPIES OF ARTICLES AND PRESENTATIONS IN WHICH THE PRINCIPAL INVESTIGATOR IS LISTED AS THE AUTHOR, AS WELL AS PARTICIPATE IN A SPECIFIED NUMBER OF IN-PERSON AND TELECONFERENCE MEETINGS. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS FIRST REVIEWED BY THE DIRECTOR OF FINANCE, THEN BY THE EXECUTIVE DIRECTOR AFTER DISCUSSION WITH THE DIRECTOR OF FINANCE. IT IS ALSO SENT TO THE BOARD TREASURER AND THE BOARD PRESIDENT AND ANY QUESTIONS OR COMMENTS ARE DISCUSSED WITH THE EXECUTIVE DIRECTOR AND DIRECTOR OF FINANCE. FORM 990, PART VI, SECTION B, LINE 12C POTENTIAL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 15A AT LEAST ONCE A YEAR THE EXECUTIVE DIRECTOR MEETS TO REVIEW AND DISCUSS REPORTS OF COMPARABLE NON-PROFIT SALARIES PREPARED BY INDEPENDENT ORGANIZATIONS. THIS REVIEW PROVIDES THE GUIDELINES FOR REVIEWING AND APPROVING ANY SALARY RECOMMENDATIONS PROPOSED BY THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES ITS FORM 1023 AND 990 AVAILABLE FOR PUBLIC INSPECTION THROUGH THE ORGANIZATION'S WEBSITE, UPON REQUEST AND VIA WWW.GUIDESTAR.ORG. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS, INCLUDING A CONFLICT OF INTEREST POLICY (PART OF BY-LAWS), AND FINANCIAL STATEMENTS ARE POSTED TO THE ORGANIZATION'S WEBSITE AND ARE ALSO MADE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER CONSULTING SERVICES: PROGRAM SERVICE EXPENSES 179,542. MANAGEMENT AND GENERAL EXPENSES 7,980. FUNDRAISING EXPENSES 11,969. TOTAL EXPENSES 199,491. FORM 990, PART XII, LINE 2C NO CHANGE IN THE OVERSIGHT OR SELECTION PROCESS FROM THE PRIOR YEAR.