2018-11-05T14:58:08-06:00 2017-12-31 GRANT THORNTON LLP 757 THIRD AVENUE 3RD FLOOR NEW YORK NY 100172013 990 2017-01-01 136193105 Crohn's & Colitis Foundation Inc % RONALD GOLDSMAN VP FINANCE CROH 8009322423 733 Third Avenue Suite 510 New York NY 10017 RONALD GOLDSMAN VP OF FINANCE 2126843440 2018-11-05 true Scott Thompsett P00741490 2125990100 209.220.136.124 26377520183095000005 2018-11-05 P 0AE51D185F2B8DBE64241C7507ECC047D5915589 7D14034AF515942D2ABE7F7E27EA16D2649DB046 2017 2018-06-14 16:35:46Z Michael Osso 733 Third Avenue new york NY 10017 88800534 false X www.crohnscolitisfoundation.org X 1967 NY To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. 27 27 363 5424 0 0 68702957 71431094 747505 647385 531740 2284263 795743 1477404 70777945 75840146 29281589 29169694 0 0 25011149 27163542 264647 480127 5084151 16346816 18851041 70904201 75664404 -126256 175742 40336506 46776925 29800511 36200067 10535995 10576858 X FOR FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). false false 32319169 29169694 0 SINCE ITS INCEPTION, THE FOUNDATION HAS BEEN AT THE FOREFRONT OF MEDICAL RESEARCH IN CROHN'S DISEASE AND ULCERATIVE COLITIS - COLLECTIVELY KNOWN AS INFLAMMATORY BOWEL DISEASE (IBD). BASIC RESEARCH EXPLORES THE SCIENTIFIC FOUNDATIONS OF THE DISEASES. IT ANSWERS SUCH QUESTIONS AS: WHAT ARE THE UNDERLYING CAUSES OF CROHN'S AND COLITIS? WHICH GENES ARE INVOLVED IN THESE DISEASES? THESE FINDINGS WILL ULTIMATELY LEAD TO THE CURE FOR IBD. CLINICAL RESEARCH HELPS DETERMINE THE MEDICAL AND SURGICAL OPTIONS THAT WORK BEST FOR PATIENTS. - WITH MORE THAN 1,000 GRANTS AWARDED, THE FOUNDATION HAS PLAYED A SIGNIFICANT ROLE IN MANY MAJOR SCIENTIFIC BREAKTHROUGHS IN IBD, FROM GENERATING DATA THAT LEADS TO NEW THERAPIES TO THE DISCOVERY OF THE FIRST GENE FOR CROHN'S. - THE FOUNDATION INVESTS IN HUMAN RESOURCES: IT TAKES 10 years to "build" a full-fledged, senior investigator. to make sure that the most TALENTED RESEARCHERS ENTER AND REMAIN IN THE FIELD OF IBD, THE FOUNDATION PROVIDES RESEARCH TRAINING AWARDS TO DEVELOP THE NEXT GENERATION OF INVESTIGATORS. MANY OF TODAY'S MOST PROMINENT RESEARCHERS RECEIVED TRAINING AWARDS FROM THE FOUNDATION EARLY IN THEIR CAREERS. - THE FOUNDATION SETS THE RESEARCH AGENDA: THE FOUNDATION BRINGS TOGETHER THE FINEST MINDS IN THE INTERNATIONAL SCIENTIFIC COMMUNITY (BOTH BASIC AND CLINICAL) AND DEVELOPS AND IDENTIFIES THE PRIORITIES AND RESOURCES THAT ARE ESSENTIAL TO MOVING RESEARCH FROM THE LABORATORY BENCH TO THE PATIENT'S BEDSIDE. - THE FOUNDATION SUPPORTS INNOVATIVE AND ESSENTIAL RESEARCH IN THE FIELD OF IBD. SINCE ITS INCEPTION IN 1967, THE FOUNDATION HAS INVESTED NEARLY $330 MILLION IN RESEARCH, RESULTING IN $4.2 BILLION IN FOLLOW-UP FUNDING FROM THE NATIONAL INSTITUTES OF HEALTH. - LAUNCHED IN OCTOBER 2017, IBD PLEXUS IS A FIRST-OF-ITS-KIND INFORMATION EXCHANGE PLATFORM HOUSING DATA FROM THOUSANDS OF PATIENTS PARTICIPATING IN FOUR OF OUR RESEARCH INITIATIVES - IBD QORUS, RISK PEDIATRIC, SPARC IBD, AND IBD PARTNERS. THOSE PATIENTS HAVE CONTRIBUTED MILLIONS OF DATA POINTS, WHICH ARE NOW ACCESSIBLE FROM A SINGLE LOCATION. BEFORE IBD PLEXUS, THERE WAS NO DATA STANDARDIZATION ACROSS RESEARCH PROJECTS, AND INFORMATION WAS OFTEN SILOED AND ACCESSIBLE ONLY TO THOSE THAT WERE PART OF THE STUDIES. THE TECHNOLOGY OF IBD PLEXUS ELIMINATES THESE CHALLENGES BY CENTRALIZING DATA AND GIVING RESEARCHERS EXPEDITED ACCESS TO DATA AND BIOLOGICAL SAMPLES (BLOOD, STOOL AND TISSUE). IBD PLEXUS ALLOWS INVESTIGATORS TO more RAPIDLY ACCESS KEY INFORMATION THAT PROMISES TO ACCELERATE THE RESEARCH PROCESS. 29557490 0 647385 THE FOUNDATION PROVIDES INFORMATION AND EDUCATION IN AN EFFORT TO REACH THE MORE THAN AN ESTIMATED 3.1 MILLION IBD PATIENTS AND THEIR FAMILIES THROUGH A VARIETY OF PERIODICALS, BOOKS, AWARENESS CAMPAIGNS, LOCAL CHAPTERS, ITS WEBCASTS, AND THROUGH ITS WEBSITE. THE FOUNDATION ALSO REACHES ITS MANY MEMBERS WITH EXCLUSIVE MAILINGS. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION ON INFLAMMATORY BOWEL DISEASES, ITS IBD JOURNAL, AND HEALTH PROFESSIONAL WORKSHOPS. THE FOUNDATION SUPPORT SERVICES ARE DELIVERED THROUGH ITS CHAPTERS NATIONWIDE WHICH OFFER MORE THAN 250 SUPPORT GROUPS ANNUALLY, SUMMER CAMPS FOR CHILDREN WITH IBD, AND A RANGE OF EDUCATIONAL AND TRAINING PROGRAMS FOR LOCAL COMMUNITIES. IN 2017, OVER 1,000,000 INDIVIDUALS PARTICIPATED IN OUR PROGRAMS. READ MORE ABOUT THE FOUNDATION'S CHAPTERS ON ITS WEBSITE, WWW.CROHNSCOLITISFOUNDATION.ORG 61876659 true true false true false false false false false false true false false false true true true false false false true true false true true true false true false true false false false false false false false false true false false false false false false false false true 368 0 true 363 true false false false false false true true false false false false X 27 27 true false false false false false false true true false true true true true true true true true true true false AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI X X RONALD GOLDSMAN VP FINANCE 2126853440 733 THIRD AVENUE NEW YORK NY 100178804 Michael Osso President/CEO (Non-voting) 35.0 0.0 X X 452028 0 35548 Donald Burke treasurer 1.0 0.0 X X 0 0 0 Paul Salerno Treasurer (thru 3/2017) 1.0 0.0 X X 0 0 0 Scott Snapper MD NSAC Chairman 1.0 0.0 X X 0 0 0 Vance Gibbs Esq Chairman 1.0 0.0 X X 0 0 0 Andrew Stern Secretary 1.0 0.0 X X 0 0 0 Bishop Walter Scott Thomas Trustee 1.0 0.0 X 0 0 0 Christopher Collette Trustee 1.0 0.0 X 0 0 0 David levenson Trustee 1.0 0.0 X 0 0 0 Eric Stone Trustee 1.0 0.0 X 0 0 0 james lewis Trustee (thru 3/2017) 1.0 0.0 X 0 0 0 Jennifer O'Neill Trustee 1.0 0.0 X 0 0 0 John Crosson Trustee 1.0 0.0 X 0 0 0 John Hasenauer Trustee (thru 3/2017) 1.0 0.0 X 0 0 0 Maria Oliva-Hemker MD Trustee 1.0 0.0 X 0 0 0 Matt Leavitt Trustee 1.0 0.0 X 0 0 0 Paula Hilbert Trustee 1.0 0.0 X 0 0 0 Shelby Modell co-founder/trustee 1.0 0.0 X 0 0 0 Maura Breen Trustee (thru 3/2017) 1.0 0.0 X 0 0 0 Brent Polk Trustee/ NSAC Chair-Elect 1.0 0.0 X 0 0 0 Donald Kortz Trustee 1.0 0.0 X 0 0 0 Mark Murray Trustee 1.0 0.0 X 0 0 0 Marcy Beth Nanus Trustee 1.0 0.0 X 0 0 0 Joseph Nemmers Trustee 1.0 0.0 X 0 0 0 Robert Van Pulley Trustee 1.0 0.0 X 0 0 0 Amber Backhaus TrusTee (as of 3/2017) 1.0 0.0 X 0 0 0 Noel Brown TrusTee (as of 3/2017) 1.0 0.0 X 0 0 0 Rep Ander Crenshaw TrusTee (as of 3/2017) 1.0 0.0 X 0 0 0 Alessandro DiNello TrusTee (as of 3/2017) 1.0 0.0 X 0 0 0 Alex Funderburg TrusTee (as of 3/2017) 1.0 0.0 X 0 0 0 Michele Kissous-Hunt TrusTee (as of 3/2017) 1.0 0.0 X 0 0 0 Joel ROsh TrusTee (as of 3/2017) 1.0 0.0 X 0 0 0 Robert Territo cfo/coo 35.0 0.0 X 260091 0 13428 Caren Heller Chief Scientific Officer 35.0 0.0 X 342822 0 14710 Michael Elkow EVP, CHAPTER GROWTH & DEVELOP. 35.0 0.0 X 233876 0 18378 Marie Granieri chief of staff 35.0 0.0 X 233365 0 14089 Sheri Markus-Kennell Senior VP,Business Development 35.0 0.0 X 183507 0 16128 Allison Coffey Senior VP, Advancement 35.0 0.0 X 178986 0 10500 Kimberly Frederick-snapper AREA EXEC. DIR., NEw england 35.0 0.0 X 185066 0 10613 Jennifer Fagerstrom VP, Chapter Growth & Develop. 35.0 0.0 X 180701 0 13540 Kristin Kaplan Vice President, Special Events 35.0 0.0 X 167364 0 16625 Robert Bryan VP, Chapter Growth & Develop. 35.0 0.0 X 164129 0 5500 Craig Comins Vice President, Team Challenge 35.0 0.0 X 162659 0 16619 2744594 0 185678 49 false true false Deloitte Consulting LLP 4022 belle drive HERMINTAGE TN 37076 patient d.base impl. 2598308 ROBERT MICHAEL EDUCATIONAL INSTITUT 101 LAUREL ROAD SUITE 200 VOORHEES NJ 080432368 EDUCATIONAL SERVICES 1619241 Blackbaud PO Box 930256 ATLANTA GA 311930256 DONOR DATABASE 1360220 BLUE WOLF GROUP LLC 11 E 26TH ST 21ST FL NEW YORK NY 10010 IBD PLEXUS & DESIGN 598730 CHARITY DYNAMICS LLC 4031 GUADALUPE ST AUSTIN TX 78751 MARKETING 563593 20 1603520 29301776 448102 40077696 689644 71431094 EDUCATION & CAMP REGISTRATION FEES 900099 501135 501135 COLLABORATIVE FUNDING AGREEMENTS 611430 146250 146250 647385 183033 183033 0 502943 502943 0 0 0 7935757 5834527 2101230 2101230 2101230 6790328 29301776 7058754 -268426 -268426 335533 67107 268426 268426 0 0 0 IBD PLEXUS DATABASE ACCESS FEES 900099 658759 658759 VEHICLE DONATION PROGRAM 900099 13497 13497 MISCELLANEOUS INCOME 900099 302205 302205 974461 75840146 1306144 3102908 26886018 26886018 0 2283676 2283676 0 1519880 1032816 309213 177851 0 19927097 13541214 4054081 2331802 802558 545368 163277 93913 3292040 2237065 669751 385224 1621967 1102188 329982 189797 0 98550 82027 10490 6033 115897 96466 12336 7095 345374 345374 480127 480127 0 7484643 6916856 539155 28632 759353 471474 182760 105119 777678 484595 186064 107019 1287631 1071745 137055 78831 0 1787501 1100207 436329 250965 1928254 1226237 445676 256341 0 769843 769843 0 0 672084 460688 134205 77191 349308 217474 83695 48139 GRANTS REFUNDED/RESCINDED -708300 -708300 PUBLICATIONS 1037364 639480 252597 145287 LIST RENTAL FEES 67811 42218 16248 9345 MISCELLANEOUS 2078050 1377304 395306 305440 75664404 61876659 8703594 5084151 0 0 9924371 14927797 9015454 8530763 0 0 0 0 0 0 0 0 631460 573074 1242529 1177935 5961816 4040547 2397651 1921269 14772899 17091594 1103852 1051151 0 0 0 0 1248290 1503342 40336506 46776925 2532276 2883755 26077074 30500567 574636 2193135 0 0 0 0 0 0 0 0 0 0 616525 622610 29800511 36200067 X -2273764 -150068 12809759 10726926 0 0 10535995 10576858 40336506 46776925 X 175742 -10670 -124209 X false true X true false X 52916365 60902280 65605925 68702957 71431094 319558621 0 0 52916365 60902280 65605925 68702957 71431094 319558621 45116378 274442243 723526 625821 650124 718756 685976 3404203 0 48092 0 295805 0 343897 7753879 7775390 6910304 7088687 8100322 37628582 360935303 2194971 0.76036 0.74545 X false false false true false false true 270755 false true 74619 345374 false Schedule C, Part II-B, Line 1(i) iN 2017, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES of two different professional consultants to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. The first consultant, Health & Medicine Counsel of Washington is a healthcare ADVOCACY GROUP THAT MAY LOBBY ON BEHALF OF HEALTHCARE ORGANIZATIONS; HOWEVER, IT IS NOT PAID TO DIRECTLY UNDERTAKE ANY LOBBYING ACTIVITIES ON BEHALF OF THE FOUNDATION. TOTAL AMOUNT PAID IN 2017 WAS $74,619. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH CROHN'S DISEASE VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED DURING THE CALENDAR YEAR 2017, FOR WHICH EXPENSES INCURRED WERE APPROXIMATELY $79,447. The second consultant, FAeger Baker Daniels, LLP, is a law firm specializing in U.S. legislation and regulations. The Foundation employed their services in November of 2017. The Foundation engages in state-based advocacy campaigns ensuring the needs of patients are being addressed through legislation that targets the cost of health care and access and ensures access to care and treatment with the ultimate goal of improving the quality of life for our patients. Total payments made in Calendar Year 2017 were $121,416. EXPENDITURES OF $79,447 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $79,447 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING). 476504 206700 269804 2196743 1696463 500280 3288569 2137384 1151185 1921269 0 REINSURANCE CONTRACTS 248183 DEFERRED RENT 374427 622610 X 82791440 -10670 6950439 11525 6951294 75840146 75840146 82750577 6950439 135734 7086173 75664404 75664404 Reconciliation of Revenue Part XI, Line 2d Changes in Charitable Remainder Trusts: $11,525 RECONCILIATION OF EXPENSES PART XII, LINE 2D Uncollectible Pledges: $135,734 Income Taxes Part X Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The adoption of this guidance did not have an impact on the Foundation's financial statements as management believes that there are no material uncertain tax positions within its financial statements. IN 2017, MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE FOUNDATION, AND HAS CONCLUDED THAT AS OF DECEMBER 31, 2017, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN. THE FOUNDATION HAS NOT POSTED THE INCOME TAX LIABILITY ON ITS STATEMENT OF ACTIVITIES AS THE AMOUNT IS IMMATERIAL FROM A FINANCIAL STATEMENT PERSPECTIVE. true Europe (Including Iceland and Greenland) 0 0 Grantmaking research 1718166 East Asia and the Pacific 0 0 Grantmaking RESEARCH 243867 North America 0 0 Grantmaking RESEARCH 321643 0 0 0 0 2283676 2283676 East Asia and the Pacific Broad Foundation 73715 BANK WIRE 0 East Asia and the Pacific Broad Foundation 81230 BANK WIRE 0 East Asia and the Pacific Broad Foundation 26400 BANK WIRE 0 East Asia and the Pacific Broad Foundation 62523 BANK WIRE 0 North America Broad Foundation 141166 BANK WIRE 0 North America Broad Foundation 32280 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 25809 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 40000 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 118525 BANK WIRE 0 Europe (Including Iceland and Greenland) Senior Research Award 97913 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 26961 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 61600 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 31823 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 30463 BANK WIRE 0 Europe (Including Iceland and Greenland) Senior Research Award 28941 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 83829 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 97500 BANK WIRE 0 Europe (Including Iceland and Greenland) Senior Research Award 208447 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 41535 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 63500 BANK WIRE 0 Europe (Including Iceland and Greenland) Senior Research Award 115530 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 107910 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 59950 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 89999 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 67056 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 61837 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 80841 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 95702 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 82494 BANK WIRE 0 North America Senior Research Award 61324 BANK WIRE 0 North America Senior Research Award 86873 BANK WIRE 0 32 0 false false false false false false X X X X X X X true sanky communication direct mail false 739773 158536 581237 chapman cubine and hussey i direct mail false 3550545 322111 3228434 4290318 480647 3809671 AL AK AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MN MS NV NH NJ NY NC ND OH OK OR PA RI SC TN TX UT VT VA WA WV WI WY TAKE STEPS 10965796 9551044 1414752 651699 763053 TEAM CHALLENGE 6407545 5041736 1365809 289446 1076363 89 18718763 14708996 4009767 2964593 1313600 36092104 29301776 6790328 3905738 3153016 7058754 -268426 335533 67107 false 335533 67107 67107 268426 CA CO CT FL GA MA MO NV NY NC OH OR PA TX WA true false false false 1.00000 Ronald Goldsman 733 Third Avenue Suite 510 New York NY 10017 false See part IV 0 none false Schedule G, Part III - GAMING ACTIVITIES The Crohn's & Colitis Foundation, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own special event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only twenty-eight chapters held raffles in twenty-one states: Arizona, Arkansas, California, Colorado, Connecticut, Massachusetts, Florida, Georgia, Illinois, Indiana, Michigan, Missouri, Nebraska, North Carolina, New Jersey, New York, Ohio, Pennsylvania, Tennessee, Texas and Washington. true Albany Medical College 43 New Scotland Ave Albany NY 12208 141338310 501(c)(3) 46600 0 Research Albert Einstein College of Medicine of YU 1300 Morris Park Ave Bronx NY 10461 132937352 501(c)(3) 105000 0 Research Baylor College of Medicine 1 Baylor Plaza MS Houston TX 77030 741613878 501(c)(3) 54822 0 Research Beth Israel Deaconess Medical Center 330 Brookline Ave Boston MA 02215 042103881 501(c)(3) 115799 0 Research Boston Childrens Hospital 300 Longwood Ave Boston MA 02115 042774441 501(c)(3) 18250 0 Research Brigham and Women's Hospital Inc 75 Francis Street Boston MA 02115 104231290 501(c)(3) 452304 0 Research Brown University Providence Providence RI 02912 050258809 501(c)(3) 22500 0 Research California Inst for Biomedical Research 11119 N Torrey Pines Rd La Jolla CA 92037 453682796 501(c)(3) 58250 0 Research Carilion Medical Center 3 Riverside Circle Roanoke VA 24016 540506332 501(c)(3) 74551 0 Research Case Western Reserve University 10900 Euclid Ave Cleveland OH 441064979 341018992 501(c)(3) 370150 0 Research Children's Hosp & Res Cntr Oakland 747 52nd St Oakland CA 94609 943281666 501(c)(3) 28957 0 Research Children's Hospital Boston 300 Longwood Ave Boston MA 02115 104277444 501(c)(3) 590299 0 Research Children's Hospital Los Angeles 4650 Sunset Blvd Los Angeles CA 90027 195612191 501(c)(3) 266744 0 Research Cincinnati Children's Hosp Med Cntr 3333 Burnet Ave Cincinnati OH 45229 131083393 501(c)(3) 569531 0 Research Dartmouth Hitchcock Medical Center 1 Medical Center Dr Lebanon NH 03756 020222111 501(c)(3) 102626 0 Research Duke University Medical Center 2200 W Main Street Durham NC 27705 560532129 501(c)(3) 90000 0 Research Emory University 1599 Clifton Rd NE Atlanta GA 30322 580566256 501(c)(3) 635070 0 Research Federation of American Soc Exp Bio 9650 Rockville Pike Bethesda MA 20814 520700497 501(c)(3) 10000 0 Research Georgia Institute of Technology 901 Atlantic Drive Atlanta GA 30332 586002023 501(c)(3) 53350 0 Research Georgia State University 1 Park Place S Atlanta GA 30303 586002050 501(c)(3) 37489 0 Research Georgia State University Research Fdn 38 Peachtree Cntr Ave Atlanta GA 30302 581845423 501(c)(3) 417750 0 Research Icahn School of Med at Mount Sinai 1 Gustave L Levy Pl New York NY 10029 136171197 501(c)(3) 492955 0 Research Iowa State Uni of Science and Tech 1138 Pearson Hall Ames IA 500112103 426004224 501(c)(3) 47891 0 Research Joan & Sanford I Weill Medical College 1300 York Ave New York NY 10065 131623978 501(c)(3) 116580 0 Research Johns Hopkins University-School of Med 12529 Collections Cntr Dr Chicago IL 60693 586002050 501(c)(3) 13921 0 Research Massachusetts General Hospital 101 Huntington Ave Boston MA 02199 042697983 501(c)(3) 235288 0 Research Massachusetts Institute of Technology 77 Massachusetts Ave Cambridge MA 02139 042103594 501(c)(3) 71573 0 Research Mayo Clinic 200 First St SW Rochester MN 559050001 416011702 501(c)(3) 141628 0 Research Memorial Sloan-Kettering Cancer Cntr 1275 York Avenue New York NY 10065 131924236 501(c)(3) 57915 0 Research Michigan State University 426 Auditorium Rd East Lansing MI 48824 386005984 501(c)(3) 86873 0 Research New York University School of Medicine 550 1st Avenue New York NY 10016 133971298 501(c)(3) 28958 0 Research Oregon Health & Science University 3181 SW Sam Jackson Pk Portland OR 97239 237083114 501(c)(3) 28958 0 Research Pennsylvania State University Old Main State College PA 16801 246000376 501(c)(3) 14563 0 Research Res Inst at Nationwide Children's Hosp 700 Childrens Drive Columbus OH 43205 316056230 501(c)(3) 208662 0 Research Rutgers The State University -Newark 249 University Ave Newark NJ 07102 226001086 501(c)(3) 90000 0 Research Sanford Burnham Prebys Med Dis Ins 10901 N Torrey Pines Rd La Jolla CA 92037 510197108 501(c)(3) 58250 0 Research Stanford University 3172 Porter Drive Palo Alto CA 94304 941156365 501(c)(3) 149935 0 Research State University of NY Uni at Buffalo Buffalo Buffalo NY 14260 161514621 501(c)(3) 22100 0 Research Temple Uni of the Commonwealth Sys 1801 N Broad St Philadelphia PA 19122 231365971 501(c)(3) 28101 0 Research The Children's Hospital of Philadelphia 3615 Civic Cntr Blvd Philadelphia PA 19104 231352166 501(c)(3) 196332 0 Research The Medical College of Wisconsin Inc 8701 Watertown Plank Rd Milwaukee WI 53226 390806261 501(c)(3) 28958 0 Research The Pennsylvania State University 110 Tech Cntr University Park PA 16802 246000376 501(c)(3) 57203 0 Research The Rector and Visitors of the Uni of VA PO Box 400195 Charlottesville VA 22904 546001796 501(c)(3) 61776 0 Research The Regents of the Uni of CA 1089 Veterinary Med Dr Davis CA 95616 943067788 501(c)(3) 92664 0 Research The Regents of the Uni of CA Los Angeles 10889 Wilshire Blvd Los Angeles CA 90095 956006143 501(c)(3) 133840 0 Research The Regents of the Uni of CA Riverside 245 University Office Riverside CA 92521 956006142 501(c)(3) 86873 0 Research The Regents of the Uni of CA San Diego 9500 Gilman Dr La Jolla CA 92093 195600614 501(c)(3) 295676 0 Research The Regents of the Uni of CA San Fran 3333 California St San Francisco CA 94143 946036493 501(c)(3) 234955 0 Research The Regents of the Uni of Michigan 3003 S State St Ann Arbor MI 48109 386006309 501(c)(3) 502995 0 Research The Regents Uni of CA Riverside 900 University Ave Riverside CA 92521 956006142 501(c)(3) 72000 0 Research The Rockefeller University 1230 York Ave New York NY 10065 131624158 501(c)(3) 176873 0 Research The Salk Institute for Biological Studies 10010 N Torrey Pines Rd La Jolla CA 92037 952160097 501(c)(3) 167664 0 Research The Scripps Research Institute 130 Scripps Way Jupiter FL 33458 330435954 501(c)(3) 159030 0 Research The Trustees of the University of PA 3451 Walnut St Philadelphia PA 19104 231352685 501(c)(3) 689017 0 Research The University of AL at Birmingham 1720 2nd Ave S Birmingham AL 352940111 163600539 501(c)(3) 147915 0 Research The University of Chicago 5801 S Ellis Ave Chicago IL 60637 362177139 501(c)(3) 46600 0 Research The University of NC at Chapel Hill 104 Airport Dr Chapel Hill NC 27599 566001393 501(c)(3) 2146387 0 Research The University of TX Health Science Cntr 7000 Fannin St 1200 Houston TX 77030 741761309 501(c)(3) 22157 0 Research Thomas Jefferson University 125 S 9th St Philadelphia PA 19107 231352651 501(c)(3) 90000 0 Research Tulane University School of Medicine 1430 Tulane Ave New Orleans LA 70112 720423889 501(c)(3) 64553 0 Research University of California San Diego 9500 Gilman Dr La Jolla CA 92093 956006144 501(c)(3) 43705 0 Research University of CO Denver AMC and DC 13001 E 17th Pl Aurora CO 80045 846000555 501(c)(3) 340747 0 Research University of Florida 219 Grinter Hall Gainesville FL 32611 596002052 501(c)(3) 50475 0 Research University of Maryland 100 N Greene St Baltimore MD 21201 152600203 501(c)(3) 95248 0 Research University of MA Medical School 55 Lake Avenue N Worcester MA 01655 043167352 501(c)(3) 63180 0 Research University of New Mexico HSC 1 Uni of NM Albuquerque NM 871310001 856000642 501(c)(3) 90000 0 Research University of Pittsburgh 4401 Penn Ave Pittsburgh PA 15224 250965591 501(c)(3) 72000 0 Research University of Southern California 1985 Zonal Ave Los Angeles CA 90033 951642394 501(c)(3) 82500 0 Research University of Utah 75 S 2000 E Rm 111 Salt Lake City UT 84112 876000525 501(c)(3) 52573 0 Research UT Southwestern Medical Center 5323 Harry Hines Blvd Dallas TX 75390 175600286 501(c)(3) 31773 0 Research Vanderbilt University Medical Center 3319 West End Ave Nashville TN 37203 162047682 501(c)(3) 165014 0 Research Virginia Commonwealth University PO BOX 980568 Richmond VA 232980568 546001758 501(c)(3) 81095 0 Research Washington University in StLouis 1 Brookings Dr St Louis MO 63130 430653611 501(c)(3) 2061346 0 Research Yale University PO Box 208057 New Haven CT 06520 060646973 501(c)(3) 222625 0 Research 74 0 Grants Part I, Line 1 The CrOhn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated. X X X X X false false false false false false false true false Michael Osso President/CEO (Non-voting) 377528 0 74500 0 0 0 31500 0 4048 0 487576 0 0 0 Robert Territo cfo/coo 250007 0 10084 0 0 0 12534 0 894 0 273519 0 0 0 Caren Heller Chief Scientific Officer 329748 0 13074 0 0 0 12710 0 2000 0 357532 0 0 0 Michael Elkow EVP, CHAPTER GROWTH & DEVELOP. 229276 0 4600 0 0 0 9452 0 8926 0 252254 0 0 0 Marie Granieri chief of staff 230865 0 2500 0 0 0 13795 0 294 0 247454 0 0 0 Sheri Markus-Kennell Senior VP,Business Development 181007 0 2500 0 0 0 11128 0 5000 0 199635 0 0 0 Allison Coffey Senior VP, Advancement 175486 0 3500 0 0 0 10500 0 0 0 189486 0 0 0 Kimberly Frederick-snapper AREA EXEC. DIR., NEw england 177056 0 8010 0 0 0 10613 0 0 0 195679 0 0 0 Jennifer Fagerstrom VP, Chapter Growth & Develop. 176107 0 4594 0 0 0 6410 0 7130 0 194241 0 0 0 Kristin Kaplan Vice President, Special Events 163931 0 3433 0 0 0 10179 0 6446 0 183989 0 0 0 Robert Bryan VP, Chapter Growth & Develop. 160185 0 3944 0 0 0 5500 0 0 0 169629 0 0 0 Craig Comins Vice President, Team Challenge 162659 0 0 0 0 0 10083 0 6536 0 179278 0 0 0 COMPENSATION SCHEDULE J, PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, GEOGRAPHIC LOCATIONS, TENURE, MISSION EXPENSES AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD AND COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF CHIEF STAFF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION LAST COMMISSIONED A STUDY IN 2015 AND is CONDUCTING ANOTHER ONE IN 2018. Incentive Program Schedule J, Part I, Line 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. The President/CEO's bonus, as reported in Schedule J, Part II, column (b)(ii) represents bonuses from two distinct calendar years: a bonus accrued in 2016, but paid out in 2017 and his 2017 calendar year bonus. The Foundation acknowledges all of its other employees through annual lump-sum incentive awards based on meeting individual, departmental, and overall Foundation performance goals. X 104 689644 Market Price false true true RELATIONSHIPS PART VI, SECTION A, LINE 2 BOARD MEMBER SCOTT SNAPPER AND HIGHLY COMPENSATED EMPLOYEE KIMBERLY FREDERICK-SNAPPER HAVE A FAMILY RELATIONSHIP. Process used to review form 990 Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the Chair of the Audit and Finance Committee members for discussion and comment. A copy of the 990 is distributed to all Board of Trustees prior to filing. Conflict of Interest Policy Monitoring & Enforcement Part VI, Section B, Line 12 All officers, directors, trustees, and key employees of the Crohn's & Colitis Foundation are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with THE FOUNDATION. THE FOUNDATION monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately. Process for determining compensation Part VI, section B, Lines 15 a & b The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic locations, tenure, mission and individual performance help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board and Compensation and Benefits Committee using guidelines and comparable data provided in National Compensation Studies of Chief Staff Executives. The Foundation has an independent compensation consultant to review and validate the compensation it pays its employees. The Foundation's practice will be to continue to rely on benchmarking surveys and other industry data comparing the compensation THE FOUNDATION pays to its employees with compensation paid to employees of other not for profit organizations of similar size. Availability of documents to the public part vi, section C, line 19 The foundation makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.CROHNSCOLITISFOUNDATION.org. The Form 990 is likewise published on the internet at www.guidestar.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion. Contributions Part VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation ("THE FOUNDATION") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to THE FOUNDATION nor does THE FOUNDATION have ownership rights to them. In 2017, THE FOUNDATION received $13,497 in revenues from this program. Additionally, THE FOUNDATION receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of THE FOUNDATION's mission. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, THE FOUNDATION has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2017, contributed services and airtime amounted to $6,950,439. Form 990, Part XI, Line 9 Other changes in net assets Changes in Charitable Remainder Trusts: $11,525 Uncollectible Pledges: $135,734 TOTAL TO PART XI, LINE 9: ($124,209)