2018-10-31T15:21:19-05:00 2017-12-31 521446779 JOHNSON LAMBERT LLP 4242 SIX FORKS RD STE 1500 RALEIGH NC 27609 990 2017-01-01 364253176 CITIZENS UNITED FOR RESEARCH IN EPILEPSY CITI 3122551801 430 W ERIE NO 210 CHICAGO IL 60654 ROBIN HARDING CHIEF EXECUTIVE OFFICER 3122551801 2018-10-31 1 J CALVIN MARKS P01226973 9197196400 2018-10-31 66.77.128.118 2018-10-31 16:20:45 ED P E2AFCBC2CAC1A104CA8A10138DFED4C2A90A9C41 6B027F9228AF2038A75D85454ECD78232AB81595 2017 2019-02-21 02:37:17Z ROBIN HARDING 430 W ERIE NO 210 CHICAGO IL 60654 6571042 0 X WWW.CUREEPILEPSY.ORG X 1998 IL CURE'S MISSION IS TO CURE EPILEPSY, TRANSFORMING AND SAVING MILLIONS OF LIVES. WE IDENTIFY AND FUND CUTTING-EDGE RESEARCH, CHALLENGING SCIENTISTS WORLDWIDE TO COLLABORATE AND INNOVATE IN PURSUIT OF THIS GOAL. OUR COMMITMENT IS UNRELENTING. 13 13 20 370 0 0 4560949 4103518 0 0 108198 184570 -236564 -150858 4432583 4137230 3369674 1839338 0 0 1547268 1717905 0 0 653582 1153480 991994 6070422 4549237 -1637839 -412007 8107165 6635801 3984995 2622628 4122170 4013173 CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS DEDICATED TO FINDING A CURE FOR EPILEPSY BY RAISING FUNDS FOR RESEARCH AND BY INCREASING AWARENESS OF THE PREVALENCE AND DEVASTATION OF THIS DISEASE. 0 0 3212219 1839338 ISSUING OF GRANTS TO FUND RESEARCH FOR A CURE FOR EPILEPSY. SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $60 MILLION TO FUND EPILEPSY RESEARCH PROJECTS AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO A CURE. CURE AWARDS SEED GRANTS FOR NOVEL RESEARCH PROJECTS THAT ADDRESS THE GOALS OF "NO SEIZURES, NO SIDE EFFECTS." THESE GRANTS ALLOW NEW AND ESTABLISHED INVESTIGATORS TO EXPLORE NEW INNOVATIVE AREAS AND COLLECT THE DATA NECESSARY TO APPLY FOR FURTHER FUNDING BY THE NATIONAL INSTITUTES OF HEALTH (NIH). TO DATE, CURE HAS AWARDED FUNDING FOR MORE THAN 220 CUTTING EDGE PROJECTS IN 15 COUNTRIES. 203031 CURE SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES, DRIVING AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY THROUGH THE FRONTIERS IN RESEARCH SEMINAR SERIES. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. 3415250 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 20 0 1 20 1 0 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AR AZ CA CO CT DE DC FL GA HI ID IL IN IA KS KY MD MA MI MS MO MT NE NH NJ NM NY NC OH OK OR PA RI SC SD TN TX UT VT VA WV WI WY X X ROBIN HARDING 3122551801 430 W ERIE NO 210 CHICAGO IL 60654 SUSAN AXELROD FOUNDING CHAIR 1.00 X X 0 0 0 ANN BENSCHOTER CHAIR 1.00 X X 0 0 0 SHARON O'KEEFE IMMEDIATE PAST CHAIR 1.00 X X 0 0 0 KELLY CERVANTES DIRECTOR (FROM SEP '17) 1.00 X 0 0 0 SCOTT COPELAND DIRECTOR 1.00 X 0 0 0 BLAKE CUNNEEN DIRECTOR 1.00 X 0 0 0 PHIL EMERY DIRECTOR (TO SEP '17) 1.00 X 0 0 0 LYNN FLEISHER DIRECTOR 1.00 X 0 0 0 CAROL FULP DIRECTOR 1.00 X 0 0 0 PAUL HELDMAN DIRECTOR 1.00 X 0 0 0 CELIA HUBER DIRECTOR 1.00 X 0 0 0 SCOTT LEISHER DIRECTOR 1.00 X 0 0 0 STACEY PIGOTT DIRECTOR 1.00 X 0 0 0 EVELYN NUSSENBAUM DIRECTOR (TO SEP '17) 1.00 X 0 0 0 C RENZI STONE DIRECTOR 1.00 X 0 0 0 ROBIN HARDING CHIEF EXECUTIVE OFFICER (TO JUN '17) 37.50 X 153820 0 7166 KATHLEEN CARR CHIEF EXECUTIVE OFFICER (FROM JUL '17) 37.50 X 145063 0 8055 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 37.50 X 263400 0 12708 BRENDA ARANDA DIRECTOR, MARKETING & COMM 37.50 X 150330 0 14526 712613 0 42455 4 0 1 0 0 1782869 76711 2243938 4103518 182025 182025 2130849 2128304 2545 2545 2545 154650 1782869 305508 -150858 -150858 4137230 0 0 33712 1757613 1757613 81725 81725 590213 322205 98279 169729 933360 501463 156647 275250 7760 5586 1087 1087 81304 58540 11382 11382 105268 59542 13043 32683 19081 13739 2671 2671 116307 100241 8033 8033 17033 17033 143614 34727 48999 59888 128260 101000 13630 13630 86633 62377 12128 12128 68925 35628 32522 775 277700 219646 4430 53624 19974 14382 2796 2796 11002 7922 1540 1540 BAD DEBT 65051 65051 DUES & SUBSCRIPTIONS 23301 16777 3262 3262 LICENSES & FEES 10208 5104 5104 4905 4905 4549237 3415250 480405 653582 575409 528645 1226872 543538 1200000 1060000 146766 33592 94753 24983 163669 66802 109990 96867 4734713 4329514 18662 18662 8107165 6635801 122173 57773 3297789 2076533 565033 488322 3984995 2622628 X 2234802 2254956 1887368 1758217 4122170 4013173 8107165 6635801 X -412007 268798 34212 X 0 1 X 1 0 X 4584975 5533358 5734565 4560949 4103518 24517365 4584975 5533358 5734565 4560949 4103518 24517365 1119752 23397613 186840 181509 182661 157025 182025 890060 5293 8099 13392 25420817 836700 0.92040 0.92860 X 0 0 0 4549237 4549237 377462 94366 0 0 484964 495953 453521 377462 1811900 2717850 121241 123988 113380 94366 452975 679463 70127 13334 56793 93542 53468 40074 96867 4352404 268798 124501 393299 3959105 178125 178125 4137230 4461401 124501 124501 4336900 212337 212337 4549237 PART XI, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 178,125. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 178,125. RETURN GRANTS 34,212. 1 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION 81725 0 0 0 0 0 0 81725 0 81725 EUROPE TAKING FLIGHT 81725 1 0 0 0 0 0 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. CHICAGO GALA BENEFIT 1937519 1782869 154650 5387 74119 126507 66955 32540 1937519 1782869 154650 5387 74119 126507 66955 32540 305508 -150858 1 UNIVERSITY OF WISCONSIN-MADISON 21 NORTH PARK ST STE 6401 MADISON WI 53715 396006492 501(C)(3) 250000 CURE LIFESPLICE PHARMA 1 GREAT VALLEY PKWY MALVERN PA 19355 273674804 243479 TAKING FLIGHT '17 BROWN UNIVERSITY 141 ANGELL ST PROVIDENCE RI 02912 050258809 501(C)(3) 220000 SLEEP & EPILEPSY SEATTLE CHILDRENS HOSPITAL PO BOX 5371 SEATTLE WA 98145 910564748 501(C)(3) 220000 SLEEP & EPILEPSY BAYLOR COLLEGE OF MEDICINE PO BOX 201361 HOUSTON TX 77216 741613878 501(C)(3) 162149 INFANTILE SPASMS UNIVERSITY OF MICHIGAN 2727 ALLIANCE ST STE C LANSING MI 48910 237326060 501(C)(3) 150000 TAKING FLIGHT '17/INNOVATOR '17 EMORY UNIVERSITY PO BOX 935084 ATLANTA GA 31193 580566259 501(C)(3) 100000 TAKING FLIGHT '17 NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON IL 60208 362167817 501(C)(3) 100000 TAKING FLIGHT '17 UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST STE 305 PHILADELPHIA PA 19104 231352685 501(C)(3) 99985 TAKING FLIGHT '17 TUFTS UNIVERSITY 200 HARRISON AVE BOSTON MA 02111 042103634 501(C)(3) 69000 INFANTILE SPASMS COLUMBIA UNIVERSITY PO BOX 28789 NEW YORK NY 10087 135598093 501(C)(3) 50000 LGSF ADDENDUM YALE UNIVERSITY PO BOX 2038 NEW HAVEN CT 06521 060646973 501(C)(3) 50000 INNOVATOR '17 VIRGNIA TECH 902 PRICES FORK RD STE 4400 BLACKSBURG VA 24060 540721690 501(C)(3) 43000 HHMI-CURE MEDICAL FELLOW 12 1 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. X X X X 0 0 0 0 0 0 0 0 0 ROBIN HARDING CHIEF EXECUTIVE OFFICER (TO JUN '17) 137720 0 16100 0 0 0 3450 0 3716 0 160986 0 0 0 KATHLEEN CARR CHIEF EXECUTIVE OFFICER (FROM JUL '1 145063 0 0 0 0 0 1875 0 6180 0 153118 0 0 0 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 238400 0 25000 0 0 0 5100 0 7608 0 276108 0 0 0 BRENDA ARANDA DIRECTOR, MARKETING & COMM 150330 0 0 0 0 0 0 0 14526 0 164856 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15A COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE. FORM 990, PART XI, LINE 9: RETURN GRANTS 34,212.