2018-10-02T15:07:19-05:00 2017-12-31 KPMG LLP 1676 International Drive Ste 1200 McLean VA 22102 990 2017-01-01 912059167 CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC % PRESTON W CAMPBELL MD CYST 3019514422 4550 MONTGOMERY AVENUE Suite 1100N BETHESDA MD 20814 PRESTON W CAMPBELL MD PRESIDENT & CEO 3019514422 2018-10-01 true JG WHITE P01498698 7032868000 2018-10-01 167.68.102.5 54028020182755000000 2018-10-02 P C0C3D1D8EC12A840BFA470260C299EE72993102B 41105AB8FBF14702B75F527EDC7EBE4A10554F37 2017 2018-06-14 16:35:46Z PRESTON W CAMPBELL MD 4550 MONTGOMERY AVE STE 1100N BETHESDA MD 20814 125014560 false X WWW.CFF.ORG/RESEARCH/CFFT/ X 2000 MD THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. 9 8 61 0 0 0 138829706 115564401 51523824 127538 0 0 2315872 9322621 192669402 125014560 68673186 68089482 0 0 8094213 10480531 0 0 0 115902003 46444547 192669402 125014560 0 102927707 104967871 102927707 104967871 0 0 X THE MISSION OF CYSTIC FIBROSIS FOUNDATION THERAPEUTICS IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF MORE THAN 30,000 PEOPLE IN THE U.S. CURRENTLY, THERE IS NO CURE. false false 71708649 68089482 9450159 CFFT SUPPORTED A NATIONAL CLINICAL RESEARCH NETWORK OF NEARLY 80 FOUNDATION-ACCREDITED CARE CENTERS THAT COLLABORATE TO CONDUCT CLINICAL TRIALS, ALLOWING POTENTIAL NEW CF THERAPIES TO MOVE TO LARGER, LATE-STAGE STUDIES MORE QUICKLY. MEDICAL PROGRAMS IN 2017 CONSISTED OF COSTS TO SUPPORT SCIENTIFIC STUDY AND INVESTIGATIONS. 465 GRANTS WERE AWARDED IN 2017. 50577532 FUNDING BY CYSTIC FIBROSIS FOUNDATION THERAPEUTICS (CFFT) IN STATE-OF-THE-ART CONTRACTED RESEARCH HAS ACCELERATED PROGRESS TOWARD DEVELOPING NEW CF TREATMENTS AND FINDING A CURE FOR THE DISEASE. BY FUNDING CF DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES AND PROVIDING MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH, AND WITH A SPECIALIZED CF CLINICAL TRIALS NETWORK, CFFT HAS ATTRACTED SIGNIFICANT INDUSTRY INVOLVEMENT IN THE FIGHT AGAINST CF. THE CF PIPELINE HAD 30 THERAPIES IN DEVELOPMENT FOR CF IN 2017. CFFT ACCOMPLISHES ITS MISSION BY FUNDING LIFE-SAVING RESEARCH TO DISCOVER AND DEVELOP EFFECTIVE THERAPIES FOR PEOPLE WITH CF. CFFT HAS FUNDED HUNDREDS OF MILLIONS OF DOLLARS OF RESEARCH COSTS TO HELP DISCOVER/DEVELOP CF DRUGS AND THERAPIES. THROUGH CFFTS EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS DOUBLED IN THE LAST 30 YEARS, AND RESEARCH TO FIND A CURE IS MORE PROMISING THAN EVER BEFORE. 122286181 true true false false false false false false false false true false false true false true false true false false true true false false false false false true true true false false false false false false false false false false false false false true false false false true 137 0 true 61 true false false false false false false false false false false X 9 8 false false false false false true false true true false false true true true true true true true true false MI X X PRESTON W CAMPBELL MD 3019514422 4550 MONTGOMERY AVENUE STE 1100N BETHESDA MD 20814 X JASON M ARYEH DIRECTOR 3.0 0.0 X 0 0 0 JONATHAN COHN MD DIRECTOR 3.0 0.0 X 0 0 0 CAROLE B GRIEGO MD DIRECTOR 3.0 3.0 X 0 0 0 CATHERINE C MCLOUD DIRECTOR 3.0 8.0 X 0 0 0 D PAUL FLESSNER DIRECTOR 3.0 0.0 X 0 0 0 STEVEN SHAK MD DIRECTOR 3.0 3.0 X 0 0 0 ERIC R OLSON PHD DIRECTOR 3.0 3.0 X 0 0 0 THEODORE J TORPHY PHD CHAIR 5.0 3.0 X 0 0 0 PRESTON CAMPBELL MD PRESIDENT & CEO 18.0 37.0 X X 396810 805765 207207 MARC S GINSKY EXECUTIVE VP, COO & SECRETARY 5.0 50.0 X 0 663211 226013 VERA H TWIGG EXECUTIVE VP & CFO 5.0 50.0 X 0 524706 127750 WILLIAM SKACH MD SENIOR VP , RESEARCH AFFAIRS 47.0 8.0 X 421375 74361 67421 BRUCE C MARSHALL MD SENIOR VP OF CLINICAL AFFAIRS 41.0 14.0 X 101381 430358 32540 MICHAEL P BOYLE MD SR VP, THERAPEUTICS DEV 55.0 0.0 X 503945 0 63689 MARTIN MENSE PHD VP OF DRUG DISCOVERY 55.0 0.0 X 253980 0 66272 HERMANN BIHLER PHD FELLOW SCIENTIST 55.0 0.0 X 181398 0 18616 FENG LIANG PHD SENIOR SCIENTIST 55.0 0.0 X 154775 0 47472 JEROME MAHIOU PHD SENIOR SCIENTIST 55.0 0.0 X 153337 0 48980 ELIZABETH JOSELOFF PHD DIRECTOR, INTEGRATIVE BIOLOGY 55.0 0.0 X 152856 0 38171 ROBERT J BEALL PHD FORMER CEO 0.0 10.0 X 55949 383094 0 C RICHARD MATTINGLY FORMER COO 0.0 0.0 X 0 197010 0 2375806 3078505 944131 22 true true false VERTEX PHARMACEUTICALS INC 50 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false false false false false false true true SUPPORTED ORGANIZATIONS SCHEDULE A, PART I, LINE 12G ALL SUPPORT PROVIDED BY CYSTIC FIBROSIS FOUNDATION THERAPEUTICS AND REPORTED IN COLUMN (V) IS FOR THE BENEFIT OF CYSTIC FIBROSIS FOUNDATION, ITS SUPPORTED ORGANIZATION. THE SUPPORT PROVIDED TO THE ORGANIZATIONS LISTED IN COLUMN (I) FUNDS RESEARCH CRITICAL TO FURTHERING THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION. SCHEDULE A, PART IV, LINE 1 CYSTIC FIBROSIS FOUNDATION IS THE ONLY SUPPORTED ORGANIZATION LISTED BY NAME IN THE GOVERNING DOCUMENTS OF CFFT. ALL OTHER SUPPORTED ORGANIZATIONS ARE DESIGNATED BY THE PURPOSE FOR WHICH THEY APPLY FOR SUPPORT FROM CFFT. ALL SUPPORT IS GIVEN FOR THE PURPOSE OF FUNDING RESEARCH INTO DRUG DEVELOPMENT FOR THE TREATMENT AND CURE OF CYSTIC FIBROSIS. CONTINUED SUPPORT TO ALL ORGANIZATIONS NOT NAMED IN THE GOVERNING DOCUMENTS IS CONTINGENT UPON THE ORGANIZATION DEMONSTRATING SCIENTIFIC PROGRESS. SCHEDULE A, PART IV, LINE 2 SUPPORTED ORGANIZATIONS WHO HAVE NOT RECEIVED AN IRS DETERMINATION LETTER ARE EITHER STATE GOVERNMENTAL UNITS DESCRIBED IN SECTION 170(B)(1)(A)(V) AND TAX EXEMPT UNDER IRC 115 OR ORGANIZATIONS OUTSIDE OF THE U.S. CFFT RECEIVES FROM ALL AWARD RECIPIENTS A W-8 OR W-9 AND A LETTER CERTIFYING THEIR STATUS AS A PUBLICLY SUPPORTED ORGANIZATION EQUIVALENT TO 509(A)(1) OR 509(A)(2) EITHER WITHIN THE U.S. OR THEIR COUNTRY. SCHEDULE A, PART IV, LINE 4B CYSTIC FIBROSIS FOUNDATION, A SUPPORTED ORGANIZATION, HAD ULTIMATE CONTROL AND DISCRETION IN DECIDING TO MAKE GRANTS TO FOREIGN SUPPORTED ORGANIZATIONS. SCHEDULE A, PART IV, LINE 4C CFFT RECEIVED FROM ALL FOREIGN SUPPORTED ORGANIZATIONS A W-8 AND A LETTER CERTIFYING THEIR STATUS AS A PUBLICLY SUPPORTED ORGANIZATION EQUIVALENT TO 509(A)(1) OR 509(A)(2) WITHIN THEIR COUNTRY. FOR THE FULL MONITORING PROCESS OF AWARDS MADE TO FOREIGN SUPPORTED ORGANIZATIONS SEE SCHEDULE F, PART V. SCHEDULE A, PART IV, SECTION B, LINE 2 SEE NARRATIVE FOR SCHEDULE A, PART I, LINE 12G ABOVE. 4914 4914 5103217 2473342 2629875 2629875 INTERCOMPANY RECEIVABLE 98617622 98617622 0 0 X SCHEDULE D, PART X FIN 48 FOOTNOTE THE FOUNDATION AND CFFT ARE NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATIONS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAVE BEEN CLASSIFIED AS ORGANIZATIONS THAT ARE NOT PRIVATE FOUNDATIONS UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2017 AND 2016. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. THE TAX CUTS AND JOBS ACT (THE TAX ACT) WAS SIGNED INTO LAW ON DECEMBER 22, 2017. THE TAX ACT INCLUDES SEVERAL CHANGES RELEVANT TO TAX-EXEMPT ORGANIZATIONS, PRIMARILY RELATED TO UNRELATED BUSINESS INCOME, NET OPERATING LOSSES, CERTAIN NEW EXCISE TAXES, AND CHANGES AFFECTING THE DEDUCTIBILITY OF CERTAIN EXPENSES. MANAGEMENT HAS DETERMINED THAT THE NEW LAW WILL NOT HAVE A SIGNIFICANT IMPACT ON THE FOUNDATIONS FINANCIAL STATEMENTS. true East Asia and the Pacific Grantmaking NONE 714949 Europe (Including Iceland and Greenland) Grantmaking NONE 4016599 Middle East and North Africa Grantmaking NONE 206894 North America Grantmaking NONE 1382367 Europe (Including Iceland and Greenland) Program Services CONTRACTED RESEARCH 2993487 Middle East and North Africa Program Services CONTRACTED RESEARCH 200000 North America Program Services CONTRACTED RESEARCH 700000 10214296 10214296 East Asia and the Pacific CLINICAL RESEARCH 457799 WIRE East Asia and the Pacific CLINICAL STUDY 29120 WIRE East Asia and the Pacific CLINICAL STUDY 66663 WIRE East Asia and the Pacific CLINICAL STUDY 25209 WIRE East Asia and the Pacific CLINICAL STUDY 136158 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH CTR 1021369 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH CTR 122761 WIRE Europe (Including Iceland and Greenland) CLINICAL RESEARCH CTR 961212 WIRE Europe (Including Iceland and Greenland) CLINICAL STUDY 60000 WIRE Europe (Including Iceland and Greenland) CLINICAL STUDY 277681 WIRE Europe (Including Iceland and Greenland) CLINICAL STUDY 246239 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 107190 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 162000 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 102776 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 162000 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 201916 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 150245 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 150931 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 250000 WIRE Europe (Including Iceland and Greenland) THERAPEUTICS DISCOVERY 40279 WIRE Middle East and North Africa THERAPEUTICS DISCOVERY 98894 WIRE Middle East and North Africa THERAPEUTICS DISCOVERY 108000 WIRE North America CLINICAL CARE RESEARCH 135000 CHECK North America CLINICAL RESEARCH 24275 CHECK North America CLINICAL STUDY 51003 CHECK North America CLINICAL STUDY 214363 CHECK North America CLINICAL STUDY 304229 CHECK North America THERAPEUTICS DISCOVERY 270916 CHECK North America THERAPEUTICS DISCOVERY 216000 CHECK North America THERAPEUTICS DISCOVERY 166581 CHECK 20 0 false false false false false false PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. SCHEDULE F, PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANTS IN THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO BAR-ILAN UNIVERSITY AND WEIZMANN INSTITUTE OF SCIENCE, UNIVERSITIES IN ISRAEL. true CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501C(3) 48295 ACADEMIC ADVISORY AWARD ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N Euclid Room 510 TUCSON AZ 85722 742652689 IRC 115 30240 ADHERENCE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET Stanford CA 94305 941156365 501C(3) 30240 ADHERENCE CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501C(3) 2679083 ADHERENCE CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI RESEARCH ACCOUNTING 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501C(3) 30240 ADHERENCE NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER CO 80206 742044647 501C(3) 30073 ADHERENCE NORTHWESTERN UNIVERSITY 633 CLARK STREET CROWN G-547 EVANSTON IL 60208 362167817 501C(3) 30240 ADHERENCE REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER Anschutz Medical Campus AURORA CO 80045 846000555 501C(3) 30024 ADHERENCE THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET Baltimore MD 21205 520595110 501C(3) 326187 ADHERENCE THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 1044 ANN ARBOR MI 48109 386006309 501C(3) 30240 ADHERENCE THE RESEARCH FOUNDATION FOR SUNY 35 STATE STREET ALBANY NY 12207 141368361 501C(3) 63000 ADHERENCE THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM AL 35294 636005396 501C(3) 30240 ADHERENCE UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES 11100 EUCLID AVENUE CLEVELAND OH 44106 341567805 501C(3) 117946 ADHERENCE UNIVERSITY OF MIAMI PO BOX 025405 MIAMI FL 33102 590624458 501C(3) 30240 ADHERENCE VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND VA 23284 546001758 IRC 115 30240 ADHERENCE CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI RESEARCH ACCOUNTING 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501C(3) 2612382 CLINICAL RESEARCH CTR DUKE UNIVERSITY ERWIN SQUARE PLAZA SUITE 820 2200 DURHAM NC 27705 560532129 501C(3) 135000 CLINICAL RESEARCH CTR LOYOLA UNIVERSITY CHICAGO 820 N MICHIGAN AVE CHICAGO IL 60611 361408475 501C(3) 135000 CLINICAL RESEARCH CTR MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON SC 29402 576000722 IRC 115 59732 CLINICAL RESEARCH CTR REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER Anschutz Medical Campus AURORA CO 80045 846000555 501C(3) 1094607 CLINICAL RESEARCH CTR SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE SEATTLE WA 98105 910564748 501C(3) 1926110 CLINICAL RESEARCH CTR THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE NA-4 CLEVELAND OH 44195 340714585 501C(3) 158176 CLINICAL RESEARCH CTR THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET BALTIMORE MD 21205 520595110 501C(3) 759114 CLINICAL RESEARCH CTR THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 1044 ANN ARBOR MI 48109 386006309 501C(3) 593321 CLINICAL RESEARCH CTR THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 Oak Street ST MINNEAPOLIS MN 55455 416007513 IRC 115 135000 CLINICAL RESEARCH CTR TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 INDIANAPOLIS IN 46266 356001673 501C(3) 37053 CLINICAL RESEARCH CTR TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 133 SOUTH 36TH ST PHILADELPHIA PA 19104 231352685 501C(3) 135000 CLINICAL RESEARCH CTR UNIVERSITY OF PITTSBURGH PO BOX 371220 PITTSBURGH PA 15251 250965591 501C(3) 171237 CLINICAL RESEARCH CTR UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE WA 98105 916001537 IRC 115 212458 CLINICAL RESEARCH CTR WASHINGTON UNIVERSITY 660 S EUCLID AVENUE ST LOUIS MO 63110 430653611 501C(3) 135000 CLINICAL RESEARCH CTR CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501C(3) 36972 CLINICAL RESEARCH CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI RESEARCH ACCOUNTING 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501C(3) 37665 CLINICAL RESEARCH NATIONAL JEWISH 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OF SOUTH CAROLINA PO BOX 997 CHARLESTON SC 29402 576000722 IRC 115 209693 CLINICAL RESEARCH CTR NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER CO 80206 742044647 501C(3) 204929 CLINICAL RESEARCH CTR NEMOURS CHILDREN'S CLINIC ORLANDO 10140 CENTURION WAY JACKSONVILLE FL 32256 590634433 501C(3) 145973 CLINICAL RESEARCH CTR NORTHWESTERN UNIVERSITY 633 CLARK STREET CROWN G-547 EVANSTON IL 60208 362167817 501C(3) 38213 CLINICAL RESEARCH CTR OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT ST PORTLAND OR 97239 931176109 501C(3) 227988 CLINICAL RESEARCH CTR OSF SAINT FRANCIS MEDICAL CENTER 420 NE GLEN OAK AVENUE PEORIA IL 61603 370662569 501C(3) 70590 CLINICAL RESEARCH CTR PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE OFFICE OF RESEARCH AFFAIRS H138 HERSHEY PA 17033 246000376 501C(3) 106705 CLINICAL RESEARCH CTR PROVIDENCE ALASKA MEDICAL CENTER 4045 LAKE OTIS PKWY 209 ANCHORAGE AK 99508 920016429 501C(3) 68019 CLINICAL RESEARCH CTR REGENTS OF THE UNIVERSITY OF 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BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM AL 35294 636005396 501C(3) 728344 CLINICAL RESEARCH CTR THE UNIVERSITY OF IOWA OFFICE OF VICE PRESIDENT FOR RESEAR DIVISION OF SPONSORED PROGRAMS IOWA CITY IA 52242 426004813 IRC 115 151305 CLINICAL RESEARCH CTR THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL OFFICE OF RESEARCH CHAPEL HILL NC 27599 566001393 501C(3) 575757 CLINICAL RESEARCH CTR THE UNIVERSITY OF UTAH ROOM 406 SALT LAKE CITY UT 84112 876000525 501C(3) 193612 CLINICAL RESEARCH CTR THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 223 WATERMAN BLDG BURLINGTON VT 05405 030179440 501C(3) 143458 CLINICAL RESEARCH CTR TRUSTEES OF DARTMOUTH COLLEGE DARTMOUTH MEDICAL SCHOOL DEPT OF MICROBIOLOGY AND IMMUNOLOG HANOVER NH 03755 020222111 501C(3) 51701 CLINICAL RESEARCH CTR TRUSTEES OF INDIANA UNIVERSITY PO BOX 66057 INDIANAPOLIS IN 46266 356001673 501C(3) 467945 CLINICAL RESEARCH CTR TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 133 SOUTH 36TH ST PHILADELPHIA PA 19104 231352685 501C(3) 33447 CLINICAL RESEARCH CTR UNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES 239 BRYANT STREET 2ND FLOOR BUFFALO NY 14222 161238821 501C(3) 23866 CLINICAL RESEARCH CTR UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES 4301 W Markham St LITTLE ROCK AR 72205 716046242 IRC 115 92923 CLINICAL RESEARCH CTR UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY 231 ALBERT SABIN WAY CINCINNATI OH 45267 311405915 501C(3) 90414 CLINICAL RESEARCH CTR UNIVERSITY OF FLORIDA 123 GRINTER HALL GAINESVILLE FL 32611 596002052 IRC 115 154581 CLINICAL RESEARCH CTR UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 IRC 115 143441 CLINICAL RESEARCH CTR UNIVERSITY OF MIAMI PO BOX 025405 MIAMI FL 33102 590624458 501C(3) 192827 CLINICAL RESEARCH CTR UNIVERSITY OF NEBRASKA MEDICAL CENTER 985100 NEBRASKA MED CTR OMAHA NE 68198 470049123 501C(3) 150056 CLINICAL RESEARCH CTR UNIVERSITY OF PITTSBURGH PO BOX 371220 PITTSBURGH PA 15251 250965591 501C(3) 319011 CLINICAL RESEARCH CTR UNIVERSITY OF 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PHILADELPHIA PA 19104 231352166 501C(3) 205165 CLINICAL STUDY THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH 350 COMMUNITY DRIVE MANHASSET NY 11030 112673595 501C(3) 25424 CLINICAL STUDY THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON MA 02241 042697983 501C(3) 429159 CLINICAL STUDY THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE ST BALTIMORE MD 21205 520595110 501C(3) 764603 CLINICAL STUDY THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 3333 CALIFORNIA ST SAN FRANCISCO CA 94143 946036493 501C(3) 130000 CLINICAL STUDY THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 1044 ANN ARBOR MI 48109 386006309 501C(3) 241932 CLINICAL STUDY THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK STREET SE MINNEAPOLIS MN 55455 416007513 IRC 115 161072 CLINICAL STUDY THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF PO BOX 29789 GENERAL POST OFFICE NEW YORK NY 10087 135598093 501C(3) 247887 CLINICAL STUDY THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S 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UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501C(3) 1259876 THERAPEUTICS DISCOVERY CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BOULEVARD 65WIL SUIT LOS ANGELES CA 90048 951644600 501C(3) 216000 THERAPEUTICS DISCOVERY CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501C(3) 65450 THERAPEUTICS DISCOVERY CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI RESEARCH ACCOUNTING 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501C(3) 331147 THERAPEUTICS DISCOVERY DUKE UNIVERSITY 2200 MAIN STREET DURHAM NC 27705 560532129 501C(3) 323638 THERAPEUTICS DISCOVERY EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA GA 30322 580566256 501C(3) 520079 THERAPEUTICS DISCOVERY LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER 433 BOLIVAR ST NEW ORLEANS LA 70112 726087770 501C(3) 162000 THERAPEUTICS DISCOVERY REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER ANSCHUTZ MEDICAL CAMPUS AURORA CO 80045 846000555 501C(3) 79580 THERAPEUTICS DISCOVERY ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIEN GREEN BAY ROAD NORTH CHICAGO IL 60064 362181973 501C(3) 390059 THERAPEUTICS DISCOVERY RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 3 RUTGERS PLAZA NEW BRUNSWICK NJ 08901 462354111 IRC 115 324000 THERAPEUTICS DISCOVERY TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER 3601 4TH ST LUBBOCK TX 79430 752668014 IRC 115 182158 THERAPEUTICS DISCOVERY THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE CLEVELAND OH 44195 340714585 501C(3) 324000 THERAPEUTICS DISCOVERY THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON MA 02241 042697983 501C(3) 161600 THERAPEUTICS DISCOVERY THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE ST BALTIMORE MD 21205 520595110 501C(3) 183600 THERAPEUTICS DISCOVERY THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A 10920 WILSHIRE BLVD LOS ANGELES CA 90024 946006143 501C(3) 162000 THERAPEUTICS DISCOVERY THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE LA JOLLA CA 92093 956006144 501C(3) 123890 THERAPEUTICS DISCOVERY THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 1044 ANN ARBOR MI 48109 386006309 501C(3) 458978 THERAPEUTICS DISCOVERY THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS OH 43205 316056230 501C(3) 253594 THERAPEUTICS DISCOVERY THE ROCKEFELLER UNIVERSITY 1230 YORK AVE NEW YORK NY 10065 131624158 501C(3) 279906 THERAPEUTICS DISCOVERY THE SCRIPPS RESEARCH INSTITUTE 10666 NORTH TORREY PINES LA JOLLA CA 92037 330435954 501C(3) 208407 THERAPEUTICS DISCOVERY THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVE S THT422 BIRMINGHAM AL 35294 636005396 501C(3) 1300244 THERAPEUTICS DISCOVERY THE UNIVERSITY OF IOWA DIVISION OF PROGRAMS IOWA CITY IA 52242 426004813 IRC 115 1234288 THERAPEUTICS DISCOVERY THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL OFFICE OF RESEARCH CHAPEL HILL NC 27599 566001393 501C(3) 2372118 THERAPEUTICS DISCOVERY THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT H 7000 FANNIN STREET HOUSTON TX 77030 741761309 IRC 115 216000 THERAPEUTICS DISCOVERY THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C 223 WATERMAN BLDG BURLINGTON VT 05405 030179440 501C(3) 158000 THERAPEUTICS DISCOVERY UNIVERSITY OF PITTSBURGH PO BOX 371220 PITTSBURGH PA 15251 250965591 501C(3) 673043 THERAPEUTICS DISCOVERY UNIVERSITY OF SOUTHERN CALIFORNIA 1540 ALCAZAR ST LOS ANGELES CA 90033 951642394 501C(3) 404113 THERAPEUTICS DISCOVERY UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE SEATTLE WA 98105 916001537 IRC 115 31715 THERAPEUTICS DISCOVERY UTAH STATE UNIVERSITY 2400 OLD MAIN HILL LOGAN UT 84322 876000528 501C(3) 21600 THERAPEUTICS DISCOVERY GEORGIA INSTITUTE OF TECHNOLOGY 505 10TH STREET ATLANTA GA 30332 580603146 IRC 115 224280 THERAPEUTICS DISCOVERY SOUTHERN RESEARCH INSTITUTE 2000 NINTH AVE BIRMINGHAM AL 35205 630288868 501C(3) 600000 THERAPEUTICS DISCOVERY 103 0 FELLOWSHIP 2 14000 PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTION. SCHEDULE I, PART III FELLOWSHIPS ARE AWARDED TO INVESTIGATORS CONDUCTING RESEARCH RELATED TO GRANTS REPORTED IN PART II. SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. PRIOR TO MAKING FELLOWSHIP PAYMENTS, SUPPORTING DOCUMENTATION OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. X X X X X X true true false false false false false true false PRESTON CAMPBELL MD PRESIDENT & CEO 186037 369858 131212 266400 79561 169507 51107 131074 0 25026 447917 961865 65426 132835 MARC S GINSKY EXECUTIVE VP, COO & SECRETARY 0 467890 0 174227 0 21094 0 190903 0 35110 0 889224 0 68247 VERA H TWIGG EXECUTIVE VP & CFO 0 328670 0 178036 0 18000 0 92640 0 35110 0 652456 0 41058 ROBERT J BEALL PHD FORMER CEO 0 269500 34650 70350 21299 43244 0 0 0 0 55949 383094 14224 28879 C RICHARD MATTINGLY FORMER COO 0 0 0 104755 0 92255 0 0 0 0 0 197010 0 72855 WILLIAM SKACH MD SENIOR VP , RESEARCH AFFAIRS 329703 58183 86284 15227 5388 951 27465 4847 29843 5266 478683 84474 0 0 BRUCE C MARSHALL MD SENIOR VP OF CLINICAL AFFAIRS 79113 335833 21000 89144 1268 5381 6161 26151 43 185 107585 456694 0 0 MICHAEL P BOYLE MD SR VP, THERAPEUTICS DEV 397400 0 104305 0 2240 0 32312 0 31377 0 567634 0 0 0 MARTIN MENSE PHD VP OF DRUG DISCOVERY 211274 0 41959 0 747 0 31248 0 35024 0 320252 0 0 0 HERMANN BIHLER PHD FELLOW SCIENTIST 167916 0 12694 0 788 0 16621 0 1995 0 200014 0 0 0 FENG LIANG PHD SENIOR SCIENTIST 141905 0 12194 0 676 0 14148 0 33324 0 202247 0 0 0 JEROME MAHIOU PHD SENIOR SCIENTIST 141305 0 11347 0 685 0 14175 0 34805 0 202317 0 0 0 ELIZABETH JOSELOFF PHD DIRECTOR, INTEGRATIVE BIOLOGY 131782 0 20650 0 424 0 14066 0 24105 0 191027 0 0 0 PART I, LINE 4A SEVERANCE PAYMENTS A FORMER OFFICER LISTED ON THE FORM 990, PART VII, SECTION A RECEIVED PAYMENTS UNDER A SEVERANCE ARRANGEMENT, AS DESCRIBED IN FURTHER DETAIL IN SCHEDULE J, PART III, FOOTNOTE 9, BELOW. PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW. PART I, LINE 7: SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, (WHO ARE IDENTIFIED IN PART II, BELOW) PARTICIPATED IN AN INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE PLAN IS SPONSORED BY CFF, A RELATED ORGANIZATION. THE INDIVIDUALS PARTICIPATE BY VIRTUE OF BEING OFFICERS OF CFF. HOWEVER, IF AN INDIVIDUAL ALSO IS AN OFFICER OF CFFT AND RECEIVES COMPENSATION FROM CFFT, A PORTION OF THE INDIVIDUALS AWARD IS PAID BY CFFT. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES related to the development and approval of CF drugs. PART II: CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $186,037; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $63,476, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $33,086, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $34,650; (B)(III) OTHER REPORTABLE COMPENSATION: AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS - $4,125, VESTED SERP ACCOUNT (8) - $73,060; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $51,107; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $65,426. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: P. CAMPBELL, M.D.; (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $369,858; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $128,875, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $67,175, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $70,350; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS - $8,825, VESTED SERP ACCOUNT (8) - $148,334; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $103,762; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,173, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,253; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $132,835. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $467,890; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $81,980, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $68,247, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $24,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $3,094, SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $136,717, SERP (4) - $26,874; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $24,855, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,655; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $68,247. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $328,670; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $84,478, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $41,058, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $52,500; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $57,391, SERP (4) - $7,937; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $24,855, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,655; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $41,058. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. (A) NAME: R. BEALL, PH.D.; (B)(II) BONUS & INCENTIVE COMPENSATION: LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $34,650; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $21,299 (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $14,224. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: EXECUTIVE ADVISORY CONSULTING SERVICES FEES - $269,500; (B)(II) BONUS & INCENTIVE COMPENSATION: LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $70,350; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $43,244; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $28,879. CYSTIC FIBROSIS FOUNDATION. EIN 13-1930701. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $92,255; SEVERANCE PAY (9) - $104,755; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $72,855. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE CFF BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES related to the development and approval of CF drugs. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2017 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) THE SERP IS SPONSORED BY CFF, A RELATED ORGANIZATION. THE EXECUTIVE PARTICIPATES BY VIRTUE OF BEING AN OFFICER OF CFF. HOWEVER, BOTH CFFT AND CFF MAKE CONTRIBUTIONS ON THE EXECUTIVES BEHALF IF THE EXECUTIVE RECEIVES COMPENSATION FROM CFFT (AS AN OFFICER OF CFFT) AND FROM CFF (AS AN OFFICER OF CFF). A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) THE 457(B) PLAN IS SPONSORED BY CFF, A RELATED ORGANIZATION. THE EXECUTIVE PARTICIPATES BY VIRTUE OF BEING AN OFFICER OF CFF. HOWEVER, BOTH CFFT AND CFF MAKE CONTRIBUTIONS ON THE EXECUTIVES BEHALF IF THE EXECUTIVE RECEIVES COMPENSATION FROM CFFT (AS AN OFFICER OF CFFT) AND FROM CFF (AS AN OFFICER OF CFF). A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($18,000 FOR 2017). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES OF CFF, A RELATED ENTITY. THE INDIVIDUALS PARTICIPATE BY VIRTUE OF BEING OFFICERS OF CFF. HOWEVER, IF AN INDIVIDUAL ALSO IS AN OFFICER OF CFFT AND RECEIVES COMPENSATION FROM CFFT, A PORTION OF THE INDIVIDUALS AWARD IS PAID BY CFFT. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2017 (I.E., WITH RESPECT TO THE 2015-2017, 2016-2018 AND THE 2017-2019 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/17, 12/31/18 AND 12/31/19 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2015-2017, 2016-2018 AND THE 2017-2019 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/16 WAS PAID IN 2017, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2016, 2015 AND 2014 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS PAYMENT IS A DISTRIBUTION FROM THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, BECAUSE CONTRIBUTIONS TO THIS PLAN ARE FULLY VESTED WHEN MADE, CONTRIBUTIONS TO THIS PLAN WERE PREVIOUSLY REPORTED IN THE YEARS CONTRIBUTED, IN COLUMN B(III) AS "OTHER REPORTABLE COMPENSATION". THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2017 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH DR. CAMPBELL RECEIVED CONTRIBUTIONS FROM 2016-2017. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (9) AS PART OF A SEVERANCE AGREEMENT, THE EXECUTIVE RECEIVED THIS AMOUNT, WHICH RELATES TO A PORTION OF THE AMOUNT THAT WOULD HAVE BEEN PAID TO HIM UNDER THE ORGANIZATION'S LONG TERM INCENTIVE COMPENSATION PLAN HAD HE CONTINUED EMPLOYMENT WITH THE ORGANIZATION THROUGH 12/31/16. THE AMOUNT RELATED TO A PORTION OF THE THREE-YEAR PERFORMANCE PERIOD (I.E., THE PORTION OF THE 2014-2016 PERFORMANCE PERIOD DURING WHICH THE EXECUTIVE WAS EMPLOYED BY THE ORGANIZATION), AND WAS SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (NOTE THAT AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2015 AND 2014 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS. THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990.) THE SEVERANCE AMOUNT WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT AND APPROVED BY THE ORGANIZATION'S COMPENSATION COMMITTEE IN ACCORDANCE WITH THE IRS'S INTERMEDIATE SANCTIONS RULES. (10) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE AND PAYMENT OF THE AWARD, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT, UNLESS TERMINATION IS DUE TO RETIREMENT OR DISABILITY. THE PLAN TERMINATES ON DECEMBER 31, 2018. GOVERNING BODY APPOINTMENTS PART VI, SECTION A, LINE 7A THE MAJORITY OF THE ORGANIZATIONS BOARD MEMBERS ARE DESIGNATED BY THE BOARD OF TRUSTEES OF THE CYSTIC FIBROSIS FOUNDATION. THE OTHERS ARE EX-OFFICIO, APPOINTED TO THE BOARD BY THE BYLAWS. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 11B THE ORGANIZATIONS BOARD OF DIRECTORS RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE ORGANIZATIONS ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990 TO ENSURE COMPLETENESS AND ACCURACY. THE AUDIT COMMITTEE ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION THERAPEUTICS BOARD OF DIRECTORS RECEIVED A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED. CONFLICT OF INTEREST MONITORING PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF DIRECTORS, THE INTERESTED DIRECTOR OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2016 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY. DETERMINING COMPENSATION PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE ORGANIZATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. SHARES OFFICERS WITH CYSTIC FIBROSIS FOUNDATION, A RELATED ORGANIZATION. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION FOR EXECUTIVES OF THE ORGANIZATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE ORGANIZATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE ORGANIZATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE ORGANIZATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVES HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVES ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEES COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS AND KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO SENIOR VP, RESEARCH AFFAIRS SENIOR VP, THERAPEUTICS DEVELOPMENT SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2016, WITH THE EXCEPTION OF THAT FOR THE CEO POSITION WHICH WAS LAST CONDUCTED IN 2015. PUBLIC INSPECTION PART VI, SECTION C THE FORM 1023 FOR THE ORGANIZATION WAS AVAILABLE ON ITS WEBSITE, WWW.CFF.ORG/CFFTFinancialStatements, AND THE ORGANIZATION'S WEBSITE PROVIDES A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG.CFFTS GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) ARE AVAILABLE UPON REQUEST BY CONTACTING THE ORGANIZATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS IS AVAILABLE ON THE WEBSITE, WWW.CFF.ORG/RESEARCH/CFFT. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED CONSOLIDATED FINANCIAL STATEMENTS ARE AVAILABLE ON THE WEBSITE, WWW.CFF.ORG/CFFTFinancialStatements. CYSTIC FIBROSIS FOUNDATION 4550 MONTGOMERY AVE SUITE 1100N BETHESDA MD 20814 131930701 RESEARCH DE 501(c)(3) 7 NA false false false true false false false false false false false false false false true true false false false false