2018-10-29T14:12:18-05:00 2017-12-31 521231901 GORFINE SCHILLER & GARDYN PA 10045 RED RUN BLVD SUITE 250 OWINGS MILLS MD 21117 990 2017-01-01 204950952 EPILEPSY STUDY CONSORTIUM INC C/O STERLING FOUNDATION MANAGEMENT LLC EPIL 7034379720 12030 SUNRISE VALLEY DRIVE NO 450 RESTON VA 20191 JACQUELINE FRENCH TREASURER 7034379720 2018-10-24 1 MATTHEW Q KEEFER CPA P00852427 4103565900 173.67.46.202 2018-10-24 11:51:31 ED P DBEABFCCAB818834074F9BBE2861B69BBE110449 B263F04E8ABAD6BDEFA989DF931AEA0A5351E7CC 2017 2019-02-21 02:37:17Z JAMES LINTOTT 12030 SUNRISE VALLEY DRIVE NO 450 RESTON VA 20191 2366288 0 X WWW.EPILEPSYCONSORTIUM.ORG X 2006 VA ACCELERATING THE DEVELOPMENT OF NEW THERAPIES IN EPILEPSY TO IMPROVE PATIENT CARE THROUGH RESEARCH. 4 4 4 0 0 0 1922580 1047050 1197278 1319229 2 9 0 0 3119860 2366288 246812 400576 0 0 457418 480623 0 0 0 1847598 931543 2551828 1812742 568032 553546 2797131 3350677 0 0 2797131 3350677 ACCELERATING THE DEVELOPMENT OF NEW THERAPIES IN EPILEPSY TO IMPROVE PATIENT CARE THROUGH RESEARCH. 0 0 699205 200288 583639 MADE AVAILABLE VAST EPILEPSY EXPERTISE WHICH WAS UTILIZED FOR ADVISORY BOARDS AND INDEPENDENT CONSULTING ACTIVITY. PROVIDED STUDY DESIGN CONSULTATION ON A NUMBER OF PROTOCOLS. DEVELOPED AND IMPLEMENTED EDUCATIONAL TOOLS FOR USE IN CLINICAL TRIALS TO ENSURE ENROLLMENT OF APPROPRIATE SUBJECTS. CENTRAL REVIEW OF DOCUMENTATION TO CONFIRM ELIGIBILITY FOR PATIENTS IN CLINICAL TRIALS. 1094071 200288 415351 DEVELOPED SEVERAL PROOF OF PRINCIPLE PROTOCOLS WHICH ARE AVAILABLE TO CLIENTS. IMPLEMENTED THE PREVIOUSLY DESIGNED PROOF OF PRINCIPLE STUDY TO ASSESS PHOTOSENSITIVE EPILEPSY INCLUDING SITE TRAINING. COORDINATED A MULTI-CENTER STUDY (HEP 2) TO ASSESS CLINICAL CHARACTERISTICS AND BIOMARKERS PREDICTIVE OF DISEASE OUTCOME, PROGRESSION, AND TREATMENT RESPONSE IN PARTICIPANTS WITH TREATMENT-RESISTANT FOCAL EPILEPSY.CONTINUING TO FOLLOW SUBJECTS WITH NEWLY DIAGNOSED EPILEPSY IN THE HEP 1 STUDY. 115 320239 PREPARE AND ORGANIZE MULTINATIONAL SYMPOSIUM ON EPILEPSY TRIAL DESIGN AND IMPLEMENTATION TO BE HELD IN 2017. 1793391 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 1 9 0 1 4 1 0 0 0 0 0 0 0 0 0 0 X 4 4 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 VA X STERLING FOUNDATION MGMT LLC 7034379720 12030 SUNRISE VALLEY DRIVE SUITE RESTON VA 20191 JAMES LINTOTT TREASURER 1.00 X X 0 0 0 MICHAEL SPERLING VICE PRESIDENT 1.00 X X 3666 0 0 JACQUELINE FRENCH PRESIDENT 5.00 X X 0 0 0 DENNIS DLUGOS VICE PRESIDENT 1.00 X X 0 0 0 MARYANN BRODIE EXECUTIVE DIRECTOR 40.00 X 157249 0 1572 BREE DIVENTURA CO-EXECUTIVE DIRECTOR 40.00 X 139969 0 1400 TRACY L DE VITO ADMINISTRATIVE-STAFF 40.00 X 106690 0 0 407574 0 2972 3 0 1 0 0 1047050 1047050 CONSULTING 900099 583639 583639 HUMAN EPILPSY PROJECT 900099 415351 415351 TRIAL DESIGNS 900099 320239 320239 1319229 9 9 2366288 1319229 0 9 400576 400576 443811 443811 2972 2972 33840 33840 5304 5304 10002 10002 2520 2520 812 812 6071 6071 48329 48329 26890 26890 MEDICAL STUDY AND RESEA 351585 351585 AED CONVENTION 190325 190325 INDEPENDENT CONTRACTORS 143087 143087 CONTRACT SERVICES 109285 109285 37333 33288 4045 1812742 1793391 19351 0 2781831 3335369 15300 15308 0 0 2797131 3350677 0 0 X 2797131 3350677 2797131 3350677 2797131 3350677 553546 0 X 0 0 0 X 335000 9300 608500 1322580 447050 2722430 335000 9300 608500 1322580 447050 2722430 1919811 802619 1 2 2 2 9 16 2722446 0.29480 0.27150 X EPILEPSY STUDY CONSORTIUM INC. QUALIFIES FOR PUBLIC CHARITY STATUS UNDER THE FACTS AND CIRCUMSTANCES TEST. ITS PUBLIC SUPPORT IS MORE THAN 10% OF ITS TOTAL SUPPORT AND HAS A SOLICITATION PLAN FOR ATTRACTING PUBLIC SUPPORT. ALSO, THE ORGANIZATION MAINTAINS A DEFINITIVE PROGRAM FOR ACCOMPLISHING ITS CHARITABLE WORK AND HAS A BROAD, REPRESENTATIVE GOVERNING BODY. SCHEDULE A, PART VI, LIST OF UNUSUAL GRANTS: DESCRIPTION: HUMAN EPILEPSY PROJECT GRANT DATE: 01/13/17 AMOUNT: 600000. 1 NYU SCHOOL OF MEDICINE 545 FIRST AVE GREENBERG HALL NEW YORK NY 10016 135562309 501(C)(3) 342612 GENERAL SUPPORT CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTE 3615 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(C)(3) 41929 GENERAL SUPPORT AMERICAN EPILEPSY SOCIETY 135 S LASALLE STREET SUITE 2850 CHICAGO IL 60603 046112600 501(C)(3) 16035 GENERAL SUPPORT 3 PART I, LINE 2: THE ORGANIZATION REQUESTS PROGRAM DOCUMENTS, DOES FOLLOW-UP CALLS AND GETS REPORTS BACK X 0 0 0 0 0 0 0 0 0 MARYANN BRODIE EXECUTIVE DIRECTOR 157249 0 0 0 0 0 1572 0 0 0 158821 0 0 0 MICHAEL SPERLING MICHAEL SPERLING IS THE VICE PRESIDENT OF EPILEPSY STUDY CONSORTIUM INC. 3666 CONSULTING SERVICES 0 STERLING FOUNDATION MANAGEMENT LLC JAMES LINTOTT IS THE TREASURER OF ESC AND THE PARTNER OF STERLING FDN MGMT. 10000 CONSULTING SERVICES 0 FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS REVIEWED BY AN INDEPENDENT ACCOUNTANT AND SUBSEQUENTLY BY THE BOARD. FORM 990, PART VI, SECTION B, LINE 12C THE EPILEPSY STUDY CONSORTIUM CONDUCTS AN ANNUAL REVIEW OF THE COMPANY POLICY. FORM 990, PART VI, SECTION B, LINE 15 IN DETERMINING THE COMPENSATION, THERE IS A REVIEW OF THE COMPARATIVE SALARIES IN THE NON-PROFIT WORLD AND THEN THE COMPENSATION IS REVIEWED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 UPON REQUEST.