2018-03-20T12:55:02-04:00 2017-09-30 330294439 JOSEPH S YUNG AND CO 10221 Slater Avenue Suite 101 Fountain Valley CA 92708 990 2016-10-01 330879421 National Spasmodic Torticollis NATI 14772 Moran Street Westminster CA 92683 Diane Truong Officer 7143789837 2017-10-17 false Joseph Yung P00169351 7143781430 2018-03-20 107.185.182.164 2018-03-20 12:56:11 3370702018079p4chlv0 2018-03-20 P F2F957F0C86146C3CBC92CB8F2261E80774A6CC4 F2F957F0C86146C3CBC92CB8F2261E80774A6CC4 2016 2021-01-29 14:40:06Z Association Mark LeDoux 855 Monroe Avenue 415 Memphis TN 38163 134032 false X www.torticollis.org X 2012 CA The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure. 8 2 3 0 0 93534 134031 0 7 1 0 93541 134032 0 0 98801 80175 0 0 62668 49866 161469 130041 -67928 3991 -57012 -53021 0 -57012 -53021 The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure. false false 16180 37313 People who receive the ST Quarterly magazine use it as a continuous source of up-to-date information regarding spasmodic torticollis. From the information they learn through the articles written by medical professionals and people inflicted with ST, they are able to communicate clearly with the medical professionals involved with their healthcare. In addition to information, readers are using the magazine as a source of emotional support. They take comfort knowing there are people who understand what they are going through and there is a place to contact if they should ever need information or support. 4980 Information and support for Spasmodic Torticollis is available through the 1-800 Hotline. By contacting our organization, they can acquire the knowledge to manage their healthcare so they can find the best treatment(s) possible for their symptoms. Through the support received from the call to the 1-800 hotline, conversations with the NSTA staff and contact people and by attending support group meetings, callers will gain self-confidence and assurance by knowing they are not the only ones with ST and there are people that understand.The NSTA responded to 754 phone calls to the NSTA requesting information and support and mailed the callers information that includes the treatments available for cervical dystonia. 2327 Information Packets, Pamphlets and Brochures 1690 11000 Conference attendees will have the opportunity to communicate with the physician and medical professionals involved with their healthcare about spasmodic torticollis. This will help them become more involved in their healthcare. Through the knowledge they gain at the symposium, they will have a better understanding of the available treatments for spasmodic torticollis. In addition to the newly acquired knowledge, attendees find support through the NSTA and the people they meet in person at the symposium 1395 10530 Zenathon FundraiserAwaremess Campaign - SummerfestAdditional:Consistently updated the information on the NSTA website (www.torticolis.org) regarding the various treatments available for cervical dystonia. Continuously restructure the NSTA website making it easier to navigate through and more visually appealing.Sent information packets about spasmodic torticollis and NSTA to neurologists offices all over the United States.Sent 226 information packets about spasmodic torticollis and NSTA to people inquiring about spasmodic torticollis/cervical dystonia via email and the 1-800 hotline. Responded to 234 phone calls to the NSTA requesting information and support and mailed the callers information that includes the treatments available for cervical dystonia. Responded to 241 emails about spasmodic torticollis 366 Provided email support to people inquiring information on spasmodic torticollis. NSTA answered over 350 emails for the year. 350 4000 Dystonia advocates, which include people with spasmodic torticollis (also referred to as cervical dystonia) come from all over the country to gather in Washington, DC for two-days to receive updates on dystonia research from leading investigators, comprehensive advocacy training, and the opportunity to network with other dystonia-affected individuals from across the country. Dystonia Advocacy Day culminated with a trip to Capitol Hill so that participants can meet with members of Congress and urge their support on key legislative issues. Without exception, volunteers who have participated in these in the past have found Dystonia Advocacy Day to be an incredibly rewarding and empowering experience. 153 Provided a forum where people who are diagnosed with spasmodic torticollis can log on and post messages and get answers from others who have the same movement disorder. The people emailing the NSTA office and visiting the message forum do so to learn more about spasmodic torticollis and the different treatments available. They also look for people in their area as a source of support. The NSTA primarily responds to emails from the United States but we have also responded to inquires internationally. We have helped people find specialists who treat Spasmodic Torticollis in places like, Canada, Mexico, Asia and Saudi Arabia. The website has the most up to date information on treatment and activities of NSTA. 3954 25530 27441 true true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 0 0 true 3 true false false false false false false false false false false false false false false false X 8 2 false false false false false true true true true false false true false false false false false false CA X Justin Aquines 7143789837 175 South Spring Street Blythe CA 92225 X Mark LeDoux Chairman 0.00 0.00 X 0 0 0 Diane Truong Vice President Secretary 0.00 0.00 X 0 0 0 Kenneth Price Treasurer 0.00 0.00 X 0 0 0 Justin Aquines Executive Director 40.00 0.00 X 0 0 0 0 0 0 0 false false false 99221 17313 10935 6562 134031 1 1 10935 134032 1 0 0 X 38404 38404 35165 35165 6606 6606 200 200 350 350 1690 1690 210 210 2937 2937 Bank Service Charges 165 165 44314 25401 18913 130041 27441 102600 0 -58095 -54104 14982 13899 1083 1083 -57012 -53021 0 0 X -57012 -53021 -57012 -53021 -57012 -53021 3991 0 X false false X 138305 132071 178673 93541 134231 676821 138305 132071 178673 93541 134231 676821 676821 33 14 6 7 1 61 33 14 6 7 1 61 1073 748 6207 1253 9281 139411 132833 184886 93548 135485 686163 0.98640 0.99310 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 14982 13899 1083 1083 Member election for additional members Part VI line 7a Only board members are able to nominate and elect a board member, and appoint additional board members. A person can submit a request to become a board member to the main NSTA office. Governing body decisions Part VI line 7b Only board members can approve governing body decisions. Form 990 governing body review Part VI line 11 The board members review the 990 at the official board meeting and can ask the office manager if they have any questions. Governing documents etc available to public Part VI line 19 Anyone can come to the NSTA office to look at the governing documents. They would need to call the office to make an appointment beforehand. List of other fees for services expenses Part IX line 11g Accounting fees for the year. List of other expenses Part IX line 24e Other expenses include: magazine expenses, printing, postage, rent, telephone, internet, license and permits, ST handbook, software, taxes, education, and supplies.