2018-09-11T19:26:44-04:00 2018-02-28 271328499 Full Potential Accounting PO Box 12241 MILL CREEK WA 98082 990 2017-03-01 861108537 FRIENDS OF FSH RESEARCH FRIE 217 19TH PLACE KIRKLAND WA 98033 TERESA COLELLA PRESIDENT 4258278954 2018-08-31 true Justin Dagna CPA P00612140 2067749192 2017 2022-09-23 18:48:47Z TERESA COLELLA 666103 false X WWW.FSHFRIENDS.ORG X 2004 WA FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH 24 16 1 65 0 0 440539 558286 0 416 935 -24344 -17221 416611 542000 315948 359436 0 7832 29980 0 6355 55827 17084 379607 406500 37004 135500 585563 762706 71 41713 585492 720993 FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH 389416 259436 RESEARCH PROJECTS FUNDED DURING THE LAST FISCAL YEAR:FOR COMPLETE AND UP-TO-DATE INFORMATION, PLEASE REFER TO WWW.FSHFRIENDS.ORG.1) 6/19/2017 DEFINING THE ROLE OF POST TRANSLATIONAL MODIFICATION ON FSHD PROEIN DUX 4. JOCELYN O EIDAHL PHD, RESEARCH INSTITUTE AT NATIONWIDE CHILDRENS2) 6/14/2017 A XENOGRAFT MODEL OF FSHD FOR TESTING THERAPEUTICS. ROBERT BLOCH, UNIV OF MARYLAND.3) 5/28/2017 UTILIZATION OF CELL-FREE DNA(CFDNA) AS A SENSITIVE BIOMARKER FOR CLINICAL TRIAL ENDPOINT FOR INDIVIDUALS WITH FSHD. DAN MILL MD AND PREMI HAYNES PHD, UNIV OF WASHINGTON4) 5/28/2018 INVESTIGATION OF A THIRD GENERATION OLIGONUCLEOTIDE TARGETING DUX4 USING A NEW MOUSE MODEL OF FSHD. Y-WEN CHEN, DVM PHD, GEORGE WASHINGTON UNIV.5) 1/29/2018 EXPLORING MECHANISMS OF MYOPATHOLOGY IN FSHD. MICHAEL KYBA PHD, UNIV OF MINNESOTA6) EXTENDING U01 PARTICIPATION TO TWO EUROPEAN SITES. RABIT TAWIL, UNIV OF ROCHESTER. 5) 10/10/2016 UNIV. OF WASHINGTON $52,765.00 UW STUDY - DR. LEO WANGCLINICAL STUDY USING MRI TO MEASURE IMMUNE RESPONSE. INVESTIGATOR DR. LEO WANG.6) 10/23/2016 UNIV. OF MASS. $32,090.00 CHARLIE EMERSON GRANTA CELL CULTURE MODEL OF INNATE IMMUNITY FOR FSHD7) 10/25/2016 KENNEDY KRIEGER INSTITUTE $77,604.00 K. WAGNER STUDYHISTOCHEMICAL AND MORPHOMETRIC ANALYSIS OF FSHD BICEPS8) 10/24/2016 ENMC $4,500.00 FOR ENMC CONFERENCE/TRAVEL GRANT FOR 2 PARTICIPANTS 7920 PUBLIC EDUCATION AND AWARENESS 397336 true true false false false false false false false false false false false false false false false false false false false false false true false false true false false false false false false false false false false true false false false false false false false false false true 0 0 true 1 true false false false false false false X 24 16 true false false false false false false true true false false true false true true false false false WA X X LYNN COLELLA 4258278954 13001 176TH PL NE REDMOND WA 98052 X TERESA COLELLA PRESIDENT 10.00 0.00 X X 0 0 0 SANDRA EACKER MEMBER AT LARGE 2.00 0.00 X 0 0 0 SUSAN BRAUN SECRETARY AUCTION TEAM 2.00 0.00 X X 0 0 0 LYNN COLELLA TREASURERBOOKKEEPER 2.00 0.00 X 0 0 0 LYNN FISCHER MEMBER AT LARGE 2.00 0.00 X 0 0 0 RICHARD COLELLA MEMBER AT LARGE 8.00 0.00 X 0 0 0 BRADLEY H BAGSHAW VICE PRESIDENT 2.00 0.00 X X 0 0 0 TAI FUNG TREASURER 1.00 0.00 X X 0 0 0 GEORGE SHAW SECRETARY 8.00 0.00 X X 0 0 0 ABBI L ENGEL MEMBER AT LARGE 10.00 0.00 X 0 0 0 SCOTT MICHELSON MEMBER AT LARGE 2.00 0.00 X 0 0 0 GREGORY BLOCK MEMBER AT LARGE 2.00 0.00 X 0 0 0 AMANDA RICKARD MEMBER AT LARGE 2.00 0.00 X 0 0 0 KELLI IMLAY MEMBER AT LARGE 2.00 0.00 X 0 0 0 JACQUI DAVIS MEMBER AT LARGE 2.00 0.00 X 0 0 0 KALYNN DIBBLE MEMBER AT LARGE 2.00 0.00 X 0 0 0 PATRICIA GRAHAM MEMBER AT LARGE 2.00 0.00 X 0 0 0 DEBORAH SHIELDS MEMBER AT LARGE 2.00 0.00 X 0 0 0 BRIAN COLELLA MEMBER AT LARGE 2.00 0.00 X 0 0 0 DIANA SHAW MEMBER AT LARGE 2.00 0.00 X 0 0 0 PETE COLELLA MEMBER AT LARGE 2.00 0.00 X 0 0 0 BILL HERZBERG MEMBER AT LARGE 2.00 0.00 X 0 0 0 0 0 0 0 false false false 258973 299313 60910 558286 935 935 105804 258973 123025 -17221 -17221 1078 1078 542000 0 0 -16286 359436 359436 22659 22659 7321 7321 1345 1345 7920 7920 543 543 388 388 MERCHANT SERVICE AND BANK 6355 6355 LICENSES AND PERMITS 533 533 406500 397336 2809 6355 61607 109170 510486 636985 13470 16551 585563 762706 71 41713 71 41713 X 585492 720993 585492 720993 585563 762706 135500 1 0 X false false false X 416302 616658 631237 557205 659931 2881333 416302 616658 631237 557205 659931 2881333 708786 2172547 689 384 757 416 935 3181 794 29 823 2885337 0.75300 0.75530 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED AUCTION 364777 258973 105804 50941 1200 70885 364777 258973 105804 50941 1200 70885 123026 -17222 true UNIVERSITY OF WASHINGTON 1400 NE CAMPUS PARKWAY SEATTLE WA 98195 916001537 1151 96309 RESEARCH STUDIES UNIVERSITY OF ROCHESTER 601 ELMWOOD AVE ROCHESTER NY 14642 160743209 501C3 47500 RESEARCH STUDIES UNIVERSITY OF MARYLAND 4100 CHESAPEAKE BUILDING COLLEGE PARK MD 207423135 526002033 1151 50000 RESEARCH STUDIES CHILDRENS NATIONAL HEALTH SYSTEM 111 MICHIGAN AVE NW WASHINGTON DC 20010 521654453 501C3 78798 RESEARCH GRANT NATIONSIDE CHILDRENS HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 010782751 501C3 39329 RESEARCH GRANT UNIVERSITY OF MINNESOTA PO BOX 1450 MINNEAPOLIS MN 554855957 416007513 170C1 47500 RESEARCH GRANT 3 X 68 12666 STATED VALUE X 302 STATED VALUE X 23956 STATED VALUE X 79 10052 STATED VALUE X ENTERTAINMENT 55 9775 STATED VALUE X TRAVEL 27 TAX VALUE X SERVICES 11 TAX VALUE X RESTAURANTS 27 1659 STATED VALUE false false false Officer directors etc family relationship Part VI line 2 TERRY COLELLA AND RICHARD COLELLA ARE RELATED BY MARRIAGE.BILL AND JUDY HERZBERG ARE RELATED BY MARRIAGE.GEORGE SHAW AND LYNN FISCHER ARE RELATED BY MARRIAGE.LYNN COLELLA, PETE COLELLA AND RICK COLELLA ARE SIBLINGS.BRIAN COLELLA IS A CHILD OF TERRY AND RICK COLELLADIANA SHAW AND GEROGE SHAW ARE SIBLINGS. Form 990 governing body review Part VI line 11 FORM 990 IS SUBMITTED TO THE BOARD OF DIRECTORS FOR REVIEW BEFORE FINAL SUBMISSION. Governing documents etc available to public Part VI line 19 ANY GOVERNING DOCUMENT MAY BE MADE AVAILABLE UPON REQUEST. SOME ADDITIONAL DOCUMENTS ARE ALSO MADE AVAILABLE THROUGH THE ORGANIZATIONS WEB SITE.