2018-06-29T21:12:44-05:00 2017-12-31 132781641 MITCHELL & TITUS LLP ONE BATTERY PARK PLAZA NEW YORK NY 10004 990 2017-01-01 202329938 AUTISM SPEAKS INC AUTI 6463858500 1 EAST 33RD STREET 4TH FLOOR NEW YORK NY 10016 KAREN ROBINSON CHIEF FINANCIAL OFFICER 6463858516 2018-06-29 1 P00446023 2127094500 2018-06-29 2017 2022-09-23 18:48:47Z ANGELA T GEIGER 1 EAST 33RD STREET 4TH FLOOR NEW YORK NY 10016 51992841 0 X WWW.AUTISMSPEAKS.ORG X 2005 DE AUTISM SPEAKS IS ENHANCING LIVES TODAY AND ACCELERATING A SPECTRUM OF SOLUTIONS FOR TOMORROW. 26 24 267 126000 0 0 47544741 50302151 0 0 1678 3551 10080 131376 47556499 50437078 7405256 8072357 0 0 21475585 18625085 300685 293500 6677669 17558147 15870360 46739673 42861302 816826 7575776 15392508 20577061 8369003 5977780 7023505 14599281 X AUTISM SPEAKS IS DEDICATED TO PROMOTING SOLUTIONS, ACROSS THE SPECTRUM AND THROUGHOUT THE LIFESPAN, FOR THE NEEDS OF INDIVIDUALS WITH AUTISM AND THEIR FAMILIES THROUGH ADVOCACY AND SUPPORT; INCREASING UNDERSTANDING AND ACCEPTANCE OF PEOPLE WITH AUTISM; AND ADVANCING RESEARCH INTO CAUSES AND BETTER INTERVENTIONS FOR AUTISM SPECTRUM DISORDER AND RELATED CONDITIONS. 0 0 18912711 1355073 AWARENESS, FAMILY SERVICES, ADVOCACY:IN 2017, AUTISM SPEAKS SERVED 58 PERCENT MORE PEOPLE THAN IN 2016 AND PROVIDED INFORMATION AND RESOURCES TO MORE THAN 1 MILLION PEOPLE. ENSURING ACCESS TO RELIABLE INFORMATION AND SERVICES ACROSS THE SPECTRUM AND THROUGHOUT THE LIFE SPAN IS PARAMOUNT TO THE WORK WE DO. WE CREATED OUR NATIONWIDE AUTISM-FRIENDLY CALENDAR, PROVIDING PEOPLE WITH AUTISM AND THEIR FAMILIES ACCESS TO MORE THAN 7,500 EVENTS, INCLUDING HOLIDAY TRADITIONS AND TRAVEL OPPORTUNITIES, MANY FOR THE FIRST TIME.WE ALSO EXPANDED OUR CAREER WEBSITE FOR PEOPLE WITH AUTISM BY 70 PERCENT. AUTISM SPEAKS WORKED COLLABORATIVELY TO EXPAND THE NUMBER OF CORPORATE DISABILITY CONSULTANTS TO HELP NATIONAL OR REGIONAL BUSINESSES CREATE AUTISM/DISABILITY INCLUSION HIRING INITIATIVES THAT BUILD SUSTAINABLE AND DIVERSE LABOR AND CUSTOMER POOLS.AUTISM SPEAKS PROVIDED OVER $900,000 IN GRANTS TO SERVICE ORGANIZATIONS AND FAMILIES THROUGH VARIOUS PROGRAMS OFFERED IN SUPPORT OF THE AUTISM COMMUNITY. THROUGH OUR LOCAL GRANTS PROGRAM, WE PROVIDED $604,936 TO 142 ORGANIZATIONS TO ENHANCE LOCAL SERVICES AND INCREASE THE FIELD OF SERVICE PROVIDERS IN THE MAIN MARKETS WE SERVE. WE AWARDED $163,479 IN SWIMMING AND WATER SAFETY SCHOLARSHIP GRANTS TO 54 PROVIDERS TO PROVIDE TUITION ASSISTANCE TO FINANCIALLY NEEDY SWIMMERS WITH AUTISM TO GAIN CRITICAL LIFESAVING WATER SKILLS. WE PROVIDED $48,433 IN AUTISM SPEAKS CARES GRANTS TO FAMILIES NEEDING HELP TO PAY FOR CRITICAL LIVING EXPENSES, PLUS $57,600 IN EMERGENCY CASH ASSISTANCE GRANTS TO PEOPLE WHO SUFFERED THROUGH NATURAL DISASTERS IN TEXAS, FLORIDA AND PUERTO RICO.WE PUBLISHED OUR FIRST SPECIAL REPORT, AUTISM AND HEALTH: ADVANCES IN UNDERSTANDING AND TREATING THE PHYSICAL AND MENTAL HEALTH CONDITIONS THAT FREQUENTLY ACCOMPANY AUTISM, BROUGHT TOGETHER COLLECTIVE SCIENTIFIC INSIGHT ON THE BROAD SPECTRUM OF AUTISM AND SOME OF THE CO-OCCURRING CONDITIONS THAT CAN IMPACT THE QUALITY OF LIFE. WE CONTINUED TO INCREASE UNDERSTANDING AND ACCEPTANCE OF PEOPLE WITH AUTISM THROUGH WORLDWIDE SOCIAL MEDIA ENGAGEMENT, REACHING MORE THAN 7.1 MILLION PEOPLE IN 170 COUNTRIES DURING APRIL, WORLD AUTISM MONTH.AUTISM SPEAKS ADVOCATES FOR THE NEEDS OF INDIVIDUALS AND FAMILIES WITH AUTISM ON THE FEDERAL AND STATE LEVEL. ON THE FEDERAL LEVEL, AUTISM SPEAKS WORKED CLOSELY WITH GRASSROOTS ADVOCATES AND CHAMPIONS IN CONGRESS TO INCREASE THE NATIONAL INSTITUTES OF HEALTH BUDGET BY $3 BILLION FOR FISCAL YEAR 2018. THIS INCLUDED PROVISIONS THAT FOCUSED ATTENTION ON THE AUTISM BUDGET AND THE INTERAGENCY AUTISM COORDINATING COMMITTEE'S RECOMMENDATION THAT IT BE DOUBLED AS PART OF ITS UPDATED STRATEGIC PLAN.AUTISM SPEAKS ALSO WORKED WITH POLICY MAKERS TO ADDRESS LIFESPAN ISSUES. SPECIFICALLY, WE PREVENTED CUTS TO MEDICAID SERVICES FOR INDIVIDUALS WITH AUTISM. FURTHER, WE WORKED TO PASS KEVIN AND AVONTE'S LAW, LEGISLATION TO SAFEGUARD CHILDREN WITH AUTISM OR OTHER DEVELOPMENTAL DISABILITIES WHO WANDER, AND THE RAISE FAMILY CAREGIVERS ACT (H.R. 3759) TO ESTABLISH A STRATEGIC PLAN TO SUPPORT FAMILY CAREGIVERS. AUTISM SPEAKS ALSO MADE PROGRESS ON THE STRENGTHENING CAREER AND TECHNICAL EDUCATION FOR THE 21ST CENTURY ACT (H.R. 2353), WHICH PASSED THE US HOUSE OF REPRESENTATIVES.AS PART OF THE TAX BILL PASSED AT THE END OF THE YEAR, CONGRESS ENHANCED STATE ABLE PROGRAMS BY ALLOWING ROLLOVERS FROM COLLEGE SAVINGS ACCOUNTS TO ABLE ACCOUNTS AND BY PROVIDING ADDITIONAL INCENTIVES TO SAVINGS FOR ABLE BENEFICIARIES WHO WORK. THIRTY-ONE STATE ABLE PROGRAMS ARE NOW OPERATING AS OF THE END OF 2017.ON THE STATE LEVEL, THE AUTISM SPEAKS ADVOCACY TEAM LED THE EFFORT TO PASS MEANINGFUL AUTISM INSURANCE COVERAGE IN ALABAMA. WITH FUNDING FROM THE SIEMENS FOUNDATION, THE NATIONAL GOVERNORS ASSOCIATION CENTER FOR BEST PRACTICES RECENTLY SELECTED NORTH CAROLINA, ALABAMA, IDAHO, ILLINOIS, NEVADA AND RHODE ISLAND FOR A PROGRAM FOCUSED ON CREATING POLICIES TO SUPPORT WORK-BASED LEARNING. AUTISM SPEAKS SPECIFICALLY PROVIDED CONSULTATION FOR THE NORTH CAROLINA GRANT, WHICH HAS AN AUTISM FOCUS, AND WILL CONTINUE TO PROVIDE TECHNICAL ASSISTANCE DURING THE INITIATIVE.AS A RESULT OF OUR ADVOCACY, THE NATION'S LARGEST HEALTH INSURANCE COMPANY, UNITED HEALTHCARE, WHICH HAS 37.7 MILLION MEMBERS IN THE U.S., BEGAN COVERING APPLIED BEHAVIOR ANALYSIS FOR AUTISM AS A STANDARD BENEFIT IN 2017. CIGNA IS FOLLOWING SUIT BEGINNING IN 2018. THE FEDERAL EMPLOYEES HEALTH BENEFITS PROGRAM, THE LARGEST EMPLOYER-SPONSORED GROUP HEALTH INSURANCE PROGRAM IN THE WORLD, COVERING MORE THAN 8 MILLION FEDERAL CIVILIAN EMPLOYEES, RETIREES, AND DEPENDENTS, NOW COVERS APPLIED BEHAVIOR ANALYSIS FOR AUTISM. 13140492 6717284 SCIENCE PROGRAM:THE PROGRAMMATIC GOALS OF AUTISM SPEAKS' SCIENCE PROGRAM STRIVE TO ENHANCE THE LIVES OF PEOPLE AFFECTED BY AUTISM TODAY, AS WELL AS IMPROVE THEIR FUTURE BY ADVANCING INNOVATIVE RESEARCH INTO CAUSES AND BETTER INTERVENTIONS FOR AUTISM AND RELATED CONDITIONS. THE AUTISM SPEAKS MSSNG PROGRAM CONTINUED TO BECOME A WORLD REKNOWN RESOURCE FOR GENOMIC DISCOVERY. BY THE END OF 2017, MORE THAN 120 INVESTIGATORS AT GREATER THAN 30 INSTITUTIONS IN 8 DIFFERENT COUNTRIES HAD GAINED ACCESS AND WERE USING THE MSSNG DATA. THIS PAST YEAR, MSSNG RELEASED MORE THAN 2,000 ADDITIONAL GENOMES WITH A TOTAL OF 7,241 COMPLETE GENOMES AVAILABLE. ANOTHER 800+ ARE IN THE PIPELINE AND EXPECTED TO BE RELEASED IN 2018, RAPIDLY BRINGING MSSNG CLOSER TO 10,000 FULLY SEQUENCED GENOMES. WITH THE CONTRIBUTIONS OF THE AGRE FAMILIES AND SCIENTISTS HAVING ACCESS TO THIS CRITICAL DATA, MSSNG HAS LEAD TO THE DISCOVERY OF 18 NEW AUTISM RISK GENES. MORE THAN HALF OF THESE GENES CLUSTER INTO ONE OF THREE BIOLOGICAL PROCESSES AND MANY HAVE IDENTIFIED PHARMACOLOGIC TARGETS THAT CAN BE TESTED TO FACILITATE PRECISION MEDICINE. IN SUM, THE MSSNG STRATEGY OF SEQUENCING THE FULL GENOMES OF INDIVIDUALS WITH AUTISM IS PROVIDING STRONG RETURNS.THE PRE-CLINICAL AUTISM CONSORTIUM FOR THERAPEUTICS (PACT) PROGRAM - FOCUSED ON IDENTIFYING REPLICABLE MOUSE MODELS OF AUTISM ASSOCIATED WITH GENETIC SYNDROMES - PRODUCED ITS FIRST SCIENTIFIC PAPER IN 2017. THIS STUDY IDENTIFIED REPLICABLE PHYSIOLOGICAL AND BEHAVIORAL PHENOTYPES, INCLUDING AUTISM SYMPTOMS, WITHIN A SHANK3B MOUSE MODEL. BECAUSE OF THIS WORK, A BIOTECHNOLOGY COMPANY HAS INVESTED IN THE PACT PLATFORM TO TEST NOVEL COMPOUNDS FOR AUTISM.THE 13 SITES IN THE AUTISM SPEAKS AUTISM TREATMENT NETWORK (ATN) PROVIDED FAMILY-CENTERED, INTERDISCIPLINARY CARE TO NEARLY 40,000 CHILDREN AND TEENS, AS WELL AS OVER 13,000 FAMILIES RECEIVED FAMILY NAVIGATION SERVICES IN 2017. WITH A FOCUS ON INCREASING SERVICES TO UNDERSERVED COMMUNITIES, THE NETWORK HOSTED MORE THAN 700 TRAINING AND OUTREACH EVENTS, REACHING OVER 30,000 PROFESSIONALS, STUDENTS AND FAMILIES. THE NETWORK PUBLISHED 15 SCIENTIFIC PAPERS ON MEDICAL TOPICS THIS PAST YEAR.NEW RESEARCH WAS PUBLISHED IN 2017 BASED ON AUTISM SPEAKS' GRANT SUPPORT TO THE UNVERSITY OF MANCHESTER THAT SHOWED FOR THE FIRST TIME USING PRE-EMPTIVE SOCIAL COMMUNICATION INTERVENTION IN HIGH RISK INFANTS PRODUCED A BENEFIT EVEN AFTER TWO YEARS FROM WHEN THE INTERVENTION ENDED. THIS RESEARCH POINTS TO HOW IMPORTANT EARLY INTERVENTION CAN BE IN HAVING A LONG-TERM BENEFIT AND WHY FOLLOW-UP ASSESSMENTS ARE NEEDED TO GIVE US THE EVIDENCE THAT THESE INTERVENTIONS CAN IMPACT A CHILD'S LIFE FOR MANY YEARS TO COME. ADDITIONALLY, AUTISM SPEAKS' FUNDING TO THE UNIVESITY OF NORTH CAROLINA SUPPORTED RESEARCH TO DEMONSTRATE THAT BRAIN IMAGING IN HIGH RISK INFANTS COULD IDENTIFY EARLY POST-NATAL INCREASES IN BRAIN VOLUME PRIOR TO THE EMERGENCE OF ASD. THE IMAGING WAS FOUND TO HAVE PREDICTIVE VALUE 12-18 MONTHS PRIOR TO A DIAGNOSIS. BRAIN VOLUME IMAGING MAY BE A VALUABLE BIOMARKER FOR INDENTIFYING HIGH RISK INFANTS THAT MAY BE ON A NEURODEVELOPMENTAL PATHWAY FOR DEVELOPING AUTISM. AUTISM SPEAKS FUNDED 52 GRANTS TOTALLING $6,717,284 IN 2017. THIS INCLUDES EIGHT NEW WEATHERSTONE PREDOCTORAL FELLOWSHIPS. 32053203 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 1 1 1 1 1 0 0 1 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 0 0 1 173 1 1 267 1 0 0 0 0 0 1 1 0 0 0 0 X 26 24 1 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT DE DC FL GA HI IL KS KY ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X KAREN ROBINSON 6463858516 1 EAST 33RD STREET 4TH FLOOR NEW YORK NY 10016 BRIAN KELLY CHAIR 10.00 X X 0 0 0 CURTIS ARLEDGE DIRECTOR 1.00 X X 0 0 0 TOM BERNARD DIRECTOR (BEGIN 4/2017) 1.00 X 0 0 0 JOSEPH COYLE MD DIRECTOR 1.00 X 0 0 0 CUONG DO DIRECTOR 1.00 X 0 0 0 BARRY FEIRSTEIN DIRECTOR 1.00 X 0 0 0 NANCI FREDKIN DIRECTOR (THROUGH 4/2017) 1.00 X 0 0 0 BRIAN HARPER DIRECTOR (BEGIN 4/2017) 1.00 X 0 0 0 MATTHEW HIGGINS DIRECTOR 1.00 X 0 0 0 DEE HILFIGER DIRECTOR 1.00 X 0 0 0 TOMMY HILFIGER DIRECTOR 1.00 X 0 0 0 ADRIAN M JONES DIRECTOR 1.00 X X 0 0 0 TIM JONES DIRECTOR 1.00 X 0 0 0 MEL KARMAZIN DIRECTOR 1.00 X 0 0 0 BILLY MANN DIRECTOR 1.00 X 0 0 0 GARY MAYERSON DIRECTOR (THROUGH 12/2017) 1.00 X 0 0 0 KEVIN MURRAY DIRECTOR 1.00 X 0 0 0 VALERIE PARADIZ PHD DIRECTOR 1.00 X X 0 0 0 HERBERT PARDES MD DIRECTOR 1.00 X 0 0 0 JAMIE T RICHARDSON DIRECTOR 1.00 X 0 0 0 ANDREW ROBERTSON DIRECTOR (THROUGH 12/2017) 1.00 X 0 0 0 CHUCK SAFTLER DIRECTOR 1.00 X 0 0 0 STUART SAVITZ DIRECTOR 1.00 X 0 0 0 DAN SCHULMAN DIRECTOR 1.00 X 0 0 0 STEPHEN SHORE EDD DIRECTOR 1.00 X 0 0 0 LAURA SLATKIN DIRECTOR 1.00 X 0 0 0 STEVEN P STANBROOK DIRECTOR 1.00 X 0 0 0 CHERYL VITALI DIRECTOR (BEGIN 4/2017) 1.00 X 0 0 0 JOHN B WILSON DIRECTOR (THROUGH 11/2017) 1.00 X 0 0 0 ROBERT WRIGHT DIRECTOR 1.00 X 0 0 0 ANGELA GEIGER PRESIDENT 40.00 X 514342 0 28229 LISA GORING CHIEF PROGRAM & MARKETING 40.00 X 261290 0 14365 KAREN ROBINSON CHIEF FINANCIAL OFFICER 40.00 X 243970 0 23896 GARETH THOMAS COO (THROUGH 5/17) 40.00 X 123575 0 6197 ANNE MARIE FORBES CHIEF FIELD OFFICER 40.00 X 222066 0 9799 THOMAS FRAZIER CHIEF SCIENCE OFFICER (BEGIN 4/17) 40.00 X 234319 0 18339 ANDY SHIH SVP PUBLIC HEALTH RESEARCH 40.00 X 235325 0 39842 PETER MORTON VP CORPORATE DEVELOPMENT 40.00 X 233106 0 37229 DONNA MURRAY VP, SCIENCE, CLINICAL PROG 40.00 X 192462 0 18080 LYNN HAPPEL SENIOR VP, SYSTEMS AND TECHNOLOGY 40.00 X 186593 0 29486 STUART SPIELMAN SR POLICY ADV & COUNSEL, ADVOCACY 40.00 X 169691 0 10908 2616739 0 236370 40 0 1 0 THE HOSPITAL FOR SICK CHILDREN RESEARCH 555 UNIVERSITY AVENUE TORONTO ONTARIO CA M5G 1X8 GENOME SEQUENCING & MSSNG PROJECT MGMT 637473 THE ADVERTISING COUNCIL 815 SECOND AVENUE 9TH FLOOR NEW YORK NY 10017 EDUCATION CAMPAIGN 471828 GENOSPACE LLC 700 MASSACHUSETS AVENUE CAMBRIDGE MA 02139 MSSNG CLOUD SERVICES 350000 THE O TEAM 1350 EYE STREET NW SUITE 250 WASHINGTON DC 20005 ADVOCACY CONSULTING 280000 THOMPSON HABIB & DENISON INC 80 HAYDEN AVENUE SUITE 300 LEXINGTON MA 02421 DIRECT MAIL CONSULTING 257500 12 197075 4815509 160314 45129253 178514 50302151 3551 3551 122170 122170 1550647 4815509 1550647 0 14322 5116 9206 9206 50437078 0 0 134927 6735436 6735436 696628 696628 640293 640293 1700389 1158168 341304 200917 13439686 8320969 1878582 3240135 403098 272984 42728 87386 1963276 1274574 248600 440102 1118636 695934 162652 260050 82808 73623 2930 6255 180260 180260 546528 546528 293500 293500 1621826 1509643 56965 55218 700737 631269 1787 67681 1563890 1099108 108461 356321 1576069 1043146 201999 330924 1554050 1046955 201479 305616 1139942 920983 8292 210667 403338 384948 3744 14646 371541 253622 35893 82026 159928 109730 15264 34934 TEAM UP & WALK EXPENSES 2360783 1888623 0 472160 GENOMIC SEQUENCING 2208386 2208386 DONATION PROCESSING 520410 520410 DIRECT MAIL 365634 182814 182820 514230 358839 119080 36311 42861302 32053203 4130430 6677669 X 8214910 10866335 2213905 2076304 1451283 3956617 2303097 2749438 336314 315303 2686620 2342098 614213 344522 1367 257419 268542 15392508 20577061 2827325 3296840 3819073 1205648 1722605 1475292 8369003 5977780 X 1153761 8639159 5869744 5960122 7023505 14599281 15392508 20577061 7575776 0 X 0 1 X 1 0 X 63725069 57552851 58085859 47544741 50302151 277210671 63725069 57552851 58085859 47544741 50302151 277210671 8913340 268297331 20220 4058 21951 1678 3551 51458 277262129 0.96770 0.97880 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 1 1 30965 0 0 1 611870 0 1 65341 708176 0 PART II-B, LINE 1, LOBBYING ACTIVITIES: IN 2017, AUTISM SPEAKS CHAMPIONED INCREASES FOR THE NATIONAL INSTITUTES OF HEALTH WHICH RESULTED IN AN ADDITIONAL $3 BILLION IN FUNDING FOR THE NIH FOR FISCAL YEAR 2018. AUTISM SPEAKS WORKED CLOSELY WITH GRASSROOTS ADVOCATES AND CHAMPIONS IN CONGRESS TO INCLUDE PROVISIONS THAT FOCUSED ATTENTION ON THE AUTISM BUDGET AND THE INTERAGENCY AUTISM COORDINATING COMMITTEE'S RECOMMENDATION THAT IT BE DOUBLED TO $685 MILLION BY 2020 AS PART OF ITS UPDATED STRATEGIC PLAN. AUTISM SPEAKS ALSO WORKED WITH POLICY MAKERS TO ADDRESS LIFESPAN ISSUES. SPECIFICALLY, IT WORKED TO PREVENT CUTS TO MEDICAID SERVICES FOR INDIVIDUALS WITH AUTISM. FURTHER, IT WORKED TO PASS KEVIN AND AVONTE'S LAW, LEGISLATION TO SAFEGUARD CHILDREN WITH AUTISM OR OTHER DEVELOPMENTAL DISABILITIES WHO WANDER; THE STRENGTHENING CAREER AND TECHNICAL EDUCATION FOR THE 21ST CENTURY ACT (H.R. 2353); AND THE RAISE FAMILY CAREGIVERS ACT (H.R. 3759) TO ESTABLISH A STRATEGIC PLAN TO SUPPORT FAMILY CAREGIVERS. AS PART OF THE TAX BILL PASSED AT THE END OF THE YEAR, CONGRESS ENHANCED STATE ABLE PROGRAMS BY ALLOWING ROLLOVERS FROM COLLEGE SAVINGS ACCOUNTS TO ABLE ACCOUNTS AND BY PROVIDING ADDITIONAL INCENTIVES TO SAVINGS FOR ABLE BENEFICIARIES WHO WORK. THIRTY-ONE STATE ABLE PROGRAMS ARE NOW OPERATING AS OF THE END OF 2017. AUTISM SPEAKS CONTINUED ITS FOCUS ON TRANSITION-AGED INDIVIDUALS WITH AUTISM. AUTISM SPEAKS PARTICIPATED IN THE DEVELOPMENT OF THE DEPARTMENT OF HEALTH AND HUMAN SERVICES' REPORT TO CONGRESS: YOUNG ADULTS AND TRANSITIONING YOUTH WITH AUTISM SPECTRUM DISORDER. WITH FUNDING FROM THE SIEMENS FOUNDATION, THE NATIONAL GOVERNORS ASSOCIATION CENTER FOR BEST PRACTICES RECENTLY SELECTED NORTH CAROLINA, ALABAMA, IDAHO, ILLINOIS, NEVADA AND RHODE ISLAND FOR A PROGRAM FOCUSED ON CREATING POLICIES TO SUPPORT WORK-BASED LEARNING. AUTISM SPEAKS SPECIFICALLY PROVIDED CONSULTATION FOR THE NORTH CAROLINA GRANT, WHICH HAS AN AUTISM FOCUS, AND WILL CONTINUE TO PROVIDE TECHNICAL ASSISTANCE DURING THE INITIATIVE. FINALLY, ALABAMA BECAME THE 46TH STATE TO PASS MEANINGFUL AUTISM INSURANCE REFORM LEGISLATION. AUTISM SPEAKS WORKED WITH STATES TO ENSURE THAT MEANINGFUL COVERAGE OF AUTISM SERVICES EXISTS THROUGH A VARIETY OF PROGRAMS, INCLUDING MEDICAID AND VOCATIONAL REHABILITATION'S PRE-EMPLOYMENT TRANSITION SERVICES. 563974 431550 132424 604621 562294 42327 1518025 1348254 169771 344522 DEFERRED RENT 1433292 ANNUITY LIABILITY 42000 1475292 X PART X, LINE 2: AS STATED IN THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS RECEIVED FOR THE YEAR ENDED DECEMBER 31, 2017: ALL SIGNIFICANT TAX POSITIONS HAVE BEEN CONSIDERED BY MANAGEMENT AND IT HAS BEEN DETERMINED THAT ALL TAX POSITIONS WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION IN THE ACCOMPANYING CONSOLIDATED FINANCIAL STATEMENTS OR FURTHER DISCLOSURE IN THE NOTES TO THE CONSOLIDATED FINANCIAL STATEMENTS. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 GRANTMAKING 336600 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 GRANTMAKING 303693 0 0 0 0 0 0 640293 0 640293 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM SCIENCE & RESEARCH 275000 CHECK NORTH AMERICA SCIENCE & RESEARCH 303693 CHECK 2 MEIXNER TRANSLATIONAL POST-DOCTORAL FELLOWSHIP EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIU 1 61700 CHECK 0 0 0 0 0 0 PART I, LINE 2: ALL GRANT PAYMENTS ARE DEPENDENT ON THE GRANTEE SUBMITTING THE NECESSARY DOCUMENTATION. THE FIRST PAYMENT REQUIRES A FULLY EXECUTED AGREEMENT, ETHICS APPROVAL, AND A TIMELINE BY WHICH THE FUNDED RESEARCH WILL BE COMPLETED. ALL GRANTEES ARE REQUIRED TO SUBMIT FINANCIAL AND PROGRESS REPORTS AT DEFINED INTERVALS DURING THE TERM OF THE AWARD. AUTISM SPEAKS' GRANTS AND SCIENCE STAFF REVIEW ALL DOCUMENTS FOR SATISFACTORY AND ACCURATE REPORTING BEFORE APPROVING SUBSEQUENT PAYMENTS. 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SCIENCE & RESEARCH RESEARCH INSTITUTE AT NATIONWIDE CHILDRENS HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 316056230 501 (C) 3 331028 SCIENCE & RESEARCH SOUTHWEST AUTISM RESEARCH AND RESOURCE CENTER 300 NORTH 18TH STREET PHOENIX AZ 85006 311496646 501 (C) 3 428595 SCIENCE & RESEARCH THE CHILDREN'S HOSPITAL OF PHILADELPHIA 34TH STREET CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501 (C) 3 97042 SCIENCE & RESEARCH THE CURATORS OF THE UNIVERSITY OF MISSOURI 118 UNIVERSITY HALL COLUMBIA MO 65211 436003859 115 203743 SCIENCE & RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE BIOSCI III SUITE 1400 IRVINE CA 92697 952226406 501 (C) 3 195893 SCIENCE & RESEARCH TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501 (C) 3 244710 SCIENCE & RESEARCH UNIVERSITY OF CALIFORNIA SANTA BARBARA 552 UNIVERSITY ROAD SANTA BARBARA CA 93106 956006145 501 (C) 3 7288 SCIENCE & RESEARCH UNIVERSITY OF NORTH CAROLINA 220 EAST CAMERON AVENUE CHAPEL HILL NC 27599 566001393 501 (C) 3 486364 SCIENCE & RESEARCH UNIVERSITY OF PITTSBURGH 116 ATWOOD STREET SUITE 201 PITTSBURGH PA 15260 250965591 501 (C) 3 237093 SCIENCE & RESEARCH UNIVERSITY OF ROCHESTER 910 GENESEE STREET BROOKS LANDING BUSINESS CENTER ROCHESTER NY 14611 160743209 501 (C) 3 194476 SCIENCE & RESEARCH VANDERBILT UNIVERSITY PMB 406310 2301 VANDERBILT PLACE NASHVILLE TN 37240 620476822 501 (C) 3 278340 SCIENCE & RESEARCH ADVOCATIONS LLC 310 ARLINGTON AVE STE 304 CHARLOTTE NC 28203 264389403 17500 FAMILY SERVICES AUTISM SOCIETY OF SOUTHERN ARIZONA INC 2600 N WYATT DRIVE TUCSON AZ 85712 472524160 501 (C) 3 9000 FAMILY SERVICES BARRY & FLORENCE FRIEDBERG JCC 15 NEIL CT OCEANSIDE NY 11572 112002556 501 (C) 3 5130 FAMILY SERVICES CARDINAL MCCLOSKEY SCHOOL AND HOME FOR CHILDREN 115 EAST STEVENS AVENUE SUITE LL5 VALHALLA NY 10595 131740443 501 (C) 3 15000 FAMILY SERVICES CELEBRATE AUTISM INC 1928 PEARL STREET BOULDER CO 80302 460897449 501 (C) 3 7500 FAMILY SERVICES GREATER BURLINGTON YMCA INC 266 COLLEGE STREET BURLINGTON VT 05401 030185810 501 (C) 3 5040 FAMILY SERVICES HAVE DREAMS 515 BUSSE HIGHWAY SUITE 150 PARK RIDGE IL 60068 364078008 501 (C) 3 5487 FAMILY SERVICES JEWISH COMMUNITY CENTERS OF CHICAGO 30 SOUTH WELLS ST SUITE 4000 CHICAGO IL 60606 362167758 501 (C) 3 7000 FAMILY SERVICES JOSEPHINE KERNES MEMORIAL POOL 15 PORTOLA AVE MONTEREY CA 93940 942227904 501 (C) 3 8000 FAMILY SERVICES KEEN ST LOUIS PO BOX 411942 ST LOUIS MO 63141 030570681 501 (C) 3 9000 FAMILY SERVICES NORTHWEST CENTER 7272 W MARGINAL WAY S SEATTLE WA 98108 910786790 501 (C) 3 60000 FAMILY SERVICES SOCIAL OUTDOOR FITNESS PO BOX 34442 LOS ANGELES CA 90034 475171738 5980 FAMILY SERVICES STRIDE INC 4482 NY HIGHWAY 150 WEST SAND LAKE NY 12196 141732830 501 (C) 3 6000 FAMILY SERVICES SWIM STRONG FOUNDATION INC 30-17 89TH ST EAST ELMHURST NY 11369 371526132 501 (C) 3 5440 FAMILY SERVICES THE GILLEN BREWER SCHOOL 410 EAST 92ND STREET NEW YORK NY 10128 133764868 501 (C) 3 404535 FAMILY SERVICES UNIVERSITY OF MASSACHUSETTS FOUNDATION INC ONE BEACON STREET 31ST FLOOR BOSTON MA 02108 046013152 501 (C) 3 6000 FAMILY SERVICES VIA REHABILITATION SERVICES INC 2851 PARK AVE SANTA CLARA CA 95050 941212130 501 (C) 3 7000 FAMILY SERVICES YMCA OF METUCHEN EDISON WOODBRIDGE & SOUTH AMBOY 483 MIDDLESEX AVENUE METUCHEN NJ 08840 221487616 501 (C) 3 5250 FAMILY SERVICES YMCA OF THE TRIANGLE 801 CORPORATE CENTER RALEIGH NC 27607 560591307 501 (C) 3 6000 FAMILY SERVICES 39 2 FINANCIAL ASSISTANCE - AUTISM CARES GRANTS 49 48433 FINANCIAL ASSISTANCE - DISASTER RELIEF 288 57600 DENNIS WEATHERSTONE PRE-DOCTORAL FELLOWSHIP 10 316800 ROYAL ARCH MASONS PRE-DOCTORAL FELLOWSHIP 1 30400 MEIXNER TRANSLATIONAL POST-DOCTORAL FELLOWSHIP 3 243395 PART 1, LINE 2: ALL GRANT PAYMENTS ARE DEPENDENT ON THE GRANTEE SUBMITTING THE NECESSARY DOCUMENTATION. THE FIRST PAYMENT REQUIRES A FULLY EXECUTED AGREEEMNT, ETHICS APPROVAL, AND A TIMELINE BY WHICH THE FUNDED RESEARCH WILL BE COMPLETED. ALL GRANTEES ARE REQUIRED TO SUBMIT FINANCIAL AND PROGRESS REPORTS AT DEFINED INTERVALS DURING THE TERM OF THE AWARD. AUTISM SPEAKS' GRANTS AND SCIENCE STAFF REVIEW ALL DOCUMENTS FOR SATISFACTORY AND ACCURATE REPORTING BEFORE APPROVING SUBSEQUENT PAYMENTS. X X X X X X 0 0 0 0 0 0 0 0 0 ANGELA GEIGER PRESIDENT 514342 0 0 0 0 0 8100 0 20129 0 542571 0 0 0 LISA GORING CHIEF PROGRAM & MARKETING 261290 0 0 0 0 0 13000 0 1365 0 275655 0 0 0 KAREN ROBINSON CHIEF FINANCIAL OFFICER 243970 0 0 0 0 0 7500 0 16396 0 267866 0 0 0 ANNE MARIE FORBES CHIEF FIELD OFFICER 222066 0 0 0 0 0 0 0 9799 0 231865 0 0 0 THOMAS FRAZIER CHIEF SCIENCE OFFICER (BEGIN 4/17) 234319 0 0 0 0 0 0 0 18339 0 252658 0 0 0 ANDY SHIH SVP PUBLIC HEALTH RESEARCH 235325 0 0 0 0 0 12274 0 27568 0 275167 0 0 0 PETER MORTON VP CORPORATE DEVELOPMENT 233106 0 0 0 0 0 9720 0 27509 0 270335 0 0 0 DONNA MURRAY VP, SCIENCE, CLINICAL PROG 192462 0 0 0 0 0 7800 0 10280 0 210542 0 0 0 LYNN HAPPEL SENIOR VP, SYSTEMS AND TECHNOLOGY 186593 0 0 0 0 0 7633 0 21853 0 216079 0 0 0 STUART SPIELMAN SR POLICY ADV & COUNSEL, ADVOCACY 169691 0 0 0 0 0 8542 0 2366 0 180599 0 0 0 PART I, LINE 3 THE EXECUTIVE COMMITTEE OF THE BOARD REVIEWS CEO COMPENSATION OF SEVERAL NATIONAL NON-PROFITS OF LIKE SIZE WHEN DETERMINING APPROPRIATE COMPENSATION FOR AUTISM SPEAKS' PRESIDENT AND OTHER SENIOR EXECUTIVES. ADDITIONALLY, AUTISM SPEAKS HAS A FORMAL COMPENSATION STRUCTURE BASED ON MARKET DATA OF SIMILARLY SIZED ORGANIZATIONS, WHICH DETERMINES A SALARY RANGE BY JOB. AUTISM SPEAKS' AIMS TO PAY INDIVIDUALS AT COMPETITIVE MARKET RATES TARGETED TO THE MEDIAN. THE ADVERTISING COUNCIL COMMON BOD MEMBERS 464998 EDUCATION CAMPAIGN 0 X 28 153417 FMV X SPECIAL EVENT SUPPLIES & EQUIPMENT 3 24597 FMV X MOVING SERVICES 1 500 FMV 0 1 1 PART I, COLUMN (B): THE NUMBER REPORTED IN COLUMN B REPRESENTS THE NUMBER OF CONTRIBUTIONS. PART I, LINE 32B: THE ORGANIZATION USES AN INVESTMENT FIRM TO SELL STOCK CONTRIBUTIONS. FORM 990, PART VI, SECTION A, LINE 2 TOMMY HILFIGER (DIRECTOR) AND DEE HILFIGER (DIRECTOR) ARE HUSBAND AND WIFE. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY FINANCE DEPARTMENT STAFF MEMBERS AND REVIEWED BY EXTERNAL INDEPENDENT CERTIFIED PUBLIC ACCOUNTANTS. ONCE COMPLETED, THE COMPLETE FORM 990 IS PRESENTED TO THE BOARD OF DIRECTORS IN ADVANCE OF FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTERESTS POLICY IS REVIEWED ANNUALLY AT A BOARD MEETING WITH KEY EXECUTIVES PRESENT. BOARD MEMBERS, KEY EXECUTIVES, AND ALL STAFF ARE REQUIRED TO REVIEW AND SIGN THE POLICY ON AN ANNUAL BASIS AND DISCLOSE ANY BUSINESS ENTITY WHICH PROVIDED SERVICES TO AUTISM SPEAKS OR TO WHICH AUTISM SPEAKS PROVIDED GRANTS OR SERVICES THAT THEY OR THEIR SPOUSE HAVE AN INTEREST. ALSO REQUIRED TO BE LISTED IS ANY ENTITY, WHETHER BUSINESS, INSTITUTION, OR NON-PROFIT ORGANIZATION, WITH WHICH THEY ARE CURRENTLY AFFILIATED WITH IN ANY WORKING CAPACITY. THE AUTISM SPEAKS STAFF REVIEW EACH GRANT AWARDED FOR POTENTIAL CONFLICTS OF INTEREST. EVERY BUSINESS ENTITY REPORTED BY BOARD MEMBERS OR STAFF WITH WHICH A WORKING RELATIONSHIP OUTSIDE OF AUTISM SPEAKS EXISTS IS INVESTIGATED FOR A POTENTIAL CONFLICT OF INTEREST. AUTISM SPEAKS MAY IMPOSE SANCTIONS ON A COVERED PERSON FOR NON-COMPLIANCE, INCLUDING TERMINATION. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD REVIEWS CEO COMPENSATION OF SEVERAL NATIONAL NON-PROFITS OF LIKE SIZE WHEN DETERMINING APPROPRIATE COMPENSATION FOR AUTISM SPEAKS' PRESIDENT AND OTHER SENIOR EXECUTIVES. ADDITIONALLY, AUTISM SPEAKS HAS A FORMAL COMPENSATION STRUCTURE BASED ON MARKET DATA OF SIMILARLY SIZED NATIONAL ORGANIZATIONS, WHICH DETERMINES A SALARY RANGE BY JOB. AUTISM SPEAKS' AIMS TO PAY INDIVIDUALS AT COMPETITIVE MARKET RATES TARGETED TO THE MEDIAN. FORM 990, PART VI, SECTION C, LINE 19 AUTISM SPEAKS' AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE ON ITS WEBSITE- AUTISMSPEAKS.ORG AND ARE AVAILABLE UPON REQUEST. AUTISM SPEAKS' FORM 1023, CONFLICT OF INTERESTS POLICY AND BY-LAWS ARE AVAILABLE UPON REQUEST. DELIVERING SCIENTIFIC INNOVATION FOR AUTISM LLC 1060 STATE ROAD PRINCETON NJ 08540 461157381 TO FUND PRODUCT DEVELOPMENT TO MEET THE NEEDS OF THE AUTISM COMMUNITY DE 0 1169 AUTISM SPEAKS ADVANCING FUTURES FOR ADULTS WITH AUTISM INC 1 EAST 33RD STREET NEW YORK NY 10016 264813657 TO PROVIDE SUPPORT FOR ADULTS WITH AUTISM DE 501(C)(3) LINE 7 AUTISM SPEAKS 1 AUTISM SPEAKS CANADA 2450 VICTORIA PARK AVENUE UNIT 120 TORONTO ON CA M2J 4A2 869420208 AUTISM RESEARCH, AWARENESS, & FAMILY SERVICES CA AUTISM SPEAKS 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 0 0 AUTISM SPEAKS CANADA B 303693 CASH PAYMENT